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Interstitial Lung Disease Info
United Kingdom
Приєднався 5 січ 2020
THE ILD EDUCATION PROJECT
Answering questions and comments about pulmonary fibrosis and related conditions, summaries of important research, news and other posts. Working to build awareness about the fascinating field of interstitial lung diseases, for better treatment and hopefully prevention.
🌐 There is also a website: interstitiallungdisease.info/
🎧 You can take the ILD info away! Audio versions of most videos available as a podcast:
open.spotify.com/show/4NHgvZw1pAyIMZXlKFWE4N?si=8f84378699824eb1
If you found the info helpful consider supporting my work by "buying a coffee" ☕
www.buymeacoffee.com/scstanel
⚠️ This channel does not provide medical advice for your specific case, just general medical information. Please see your own healthcare team if you are unwell or suffering from a medical condition.
Most videos should be easy to follow by a general audience (with no prior medical training), although some may be more technical.
Answering questions and comments about pulmonary fibrosis and related conditions, summaries of important research, news and other posts. Working to build awareness about the fascinating field of interstitial lung diseases, for better treatment and hopefully prevention.
🌐 There is also a website: interstitiallungdisease.info/
🎧 You can take the ILD info away! Audio versions of most videos available as a podcast:
open.spotify.com/show/4NHgvZw1pAyIMZXlKFWE4N?si=8f84378699824eb1
If you found the info helpful consider supporting my work by "buying a coffee" ☕
www.buymeacoffee.com/scstanel
⚠️ This channel does not provide medical advice for your specific case, just general medical information. Please see your own healthcare team if you are unwell or suffering from a medical condition.
Most videos should be easy to follow by a general audience (with no prior medical training), although some may be more technical.
Oxygen therapy in Sarcoidosis
Sarcoidosis can lead to severe lung scarring (pulmonary fibrosis). It can also sometimes be associated with pulmonary hypertension. These can significantly impact lung function and cause a drop in oxygen levels, particularly during exertion.
Oxygen saturation levels (SpO2) can be monitored using an oximeter, and values below 90% warrant a check of blood oxygen levels. This can be done through blood gas analysis from the earlobe or an arterial blood sample. If oxygen levels are indeed low, supplemental oxygen therapy may be prescribed to improve oxygen levels, reduce the risk of complications, and potentially enhance exercise tolerance.
However, it's worth noting that oxygen therapy may not alleviate all symptoms of breathlessness.
Regular follow-ups and additional tests, including imaging and lung function assessments, are crucial to monitor the progression of the disease and manage any potential complications, such as cardiac involvement. Patients experiencing palpitations at rest, or randomly occurring, should inform their doctors, who may recommend further tests like a Holter ECG or cardiac PET to assess heart function and rule out cardiac sarcoidosis.
Pulmonary rehabilitation and optimization of other treatments, such as those for other heart and lung conditions, may be beneficial.
#sarcoidosis #oxygen #pulmonaryfibrosis
Please leave comments below if you want me to cover other topics in ILD.
☕ Consider supporting my work by "buying a coffee" -- www.buymeacoffee.com/scstanel
📚 www.interstitiallungdisease.info
🐤X / Twitter: ILDinfo
🎵 Podcast links:
SPOTIFY: open.spotify.com/show/4NHgvZw1pAyIMZXlKFWE4N
GOOGLE PODCASTS: podcasts.google.com/feed/aHR0cHM6Ly9hbmNob3IuZm0vcy85NmViYzA1OC9wb2RjYXN0L3Jzcw
The opinions presented on this channel are my own and do not constitute medical advice in specific cases. If you are watching/listening to this content as a patient, you must seek personalized advice from your own healthcare team (who can provide you with a consultation and appropriate treatment and advice. This information presented here may not apply in your case. If you are a health professional, please use your professional judgement when treating patients.
Oxygen saturation levels (SpO2) can be monitored using an oximeter, and values below 90% warrant a check of blood oxygen levels. This can be done through blood gas analysis from the earlobe or an arterial blood sample. If oxygen levels are indeed low, supplemental oxygen therapy may be prescribed to improve oxygen levels, reduce the risk of complications, and potentially enhance exercise tolerance.
However, it's worth noting that oxygen therapy may not alleviate all symptoms of breathlessness.
Regular follow-ups and additional tests, including imaging and lung function assessments, are crucial to monitor the progression of the disease and manage any potential complications, such as cardiac involvement. Patients experiencing palpitations at rest, or randomly occurring, should inform their doctors, who may recommend further tests like a Holter ECG or cardiac PET to assess heart function and rule out cardiac sarcoidosis.
Pulmonary rehabilitation and optimization of other treatments, such as those for other heart and lung conditions, may be beneficial.
#sarcoidosis #oxygen #pulmonaryfibrosis
Please leave comments below if you want me to cover other topics in ILD.
☕ Consider supporting my work by "buying a coffee" -- www.buymeacoffee.com/scstanel
📚 www.interstitiallungdisease.info
🐤X / Twitter: ILDinfo
🎵 Podcast links:
SPOTIFY: open.spotify.com/show/4NHgvZw1pAyIMZXlKFWE4N
GOOGLE PODCASTS: podcasts.google.com/feed/aHR0cHM6Ly9hbmNob3IuZm0vcy85NmViYzA1OC9wb2RjYXN0L3Jzcw
The opinions presented on this channel are my own and do not constitute medical advice in specific cases. If you are watching/listening to this content as a patient, you must seek personalized advice from your own healthcare team (who can provide you with a consultation and appropriate treatment and advice. This information presented here may not apply in your case. If you are a health professional, please use your professional judgement when treating patients.
Переглядів: 383
Відео
Understanding drug induced ILD / pulmonary fibrosis
Переглядів 9782 місяці тому
An overview of drug induced interstitial lung disease / pulmonary fibrosis. This video explains how the connection between a certain medication and pulmonary fibrosis is made. Several drugs can induce lung reactions and fibrosis, but unless we have a clear timeline it can be very hard to confidently say it was a specific drug that caused the fibrosis. Remember there may be other causes for pulm...
Interstitial Lung Abnormalities (ILA) = early pulmonary fibrosis?
Переглядів 1 тис.3 місяці тому
Overview of interstitial lung abnormalities (ILAs). ILAs represent incidental findings on a chest CT scan, which affect more than 5% of any lung zone (upper, middle or lower) in a person where interstitial lung disease / pulmonary fibrosis was not suspected. Interstitial lung abnormalities can be found in 2-9% of patients who have a CT scan (depending on the population studied). There is no cle...
Fibrotic NSIP meaning and treatment
Переглядів 9463 місяці тому
In this episode - fibrotic non-specific interstitial pneumonia (or NSIP) - what does this diagnosis mean and how is is treated? NSIP is a pattern that we can see on a chest CT scan or on a lung biopsy (on the pathology report). What does this mean for you as a patient or someone who cares for someone who has NSIP? NSIP may be associated with inflammatory conditions affecting the body (i.e. conn...
Hypersensitivity pneumonitis - fibrosis causes breathlessness? (+ other nuances)
Переглядів 8873 місяці тому
A general overview of hypersensitivity pneumonitis (HP) based on the example from a comment received. We discuss the types of HP: acute, subacute and chronic, pulmonary fibrosis in hypersensitivity pneumonitis. It is also important to identify the triggers (antigen) for HP and this can be difficult. Sometimes exposure questionnaires may help, and we have blood tests to look for sensitization to...
Cardiovascular disease and interstitial lung diseases (ILD)
Переглядів 1,1 тис.4 місяці тому
It is really important to have more awareness of the risks of developing cardiovascular diseases in patients who have interstitial lung disease / pulmonary fibrosis. Many patients with ILD can develop something called pulmonary hypertension, which is an increased pressure between the right side of the heart and the lungs. This can cause blood oxygen levels to drop significantly and lead to seve...
Breathing worsening quickly in Pulmonary Fibrosis / Interstitial Lung Disease
Переглядів 2,3 тис.4 місяці тому
Why would breathing suddenly start to worsen for people who have pulmonary fibrosis? This can be the sign of worsening fibrosis (scarring of the lungs), but often there are some other factors involved (other medical problems). Normally, pulmonary fibrosis can be progressive, and in these cases we expect a slow worsening of breathlessness over time (months to years). In some cases, the progressi...
What do genetic tests mean in Pulmonary Fibrosis / ILD? (genomic testing interpretation)
Переглядів 1,1 тис.5 місяців тому
What do genetic test results mean in cases of pulmonary fibrosis / interstitial lung diseases (ILD)? How are genetic testing results interpreted? Super complex topic in this episode: - When do we request genetic (genomic) testing for patients with ILD / pulmonary fibrosis? - Where is genetic testing conducted? - What tests are normally done for pulmonary fibrosis? (telomere length, telomere-rel...
How to monitor Pulmonary Fibrosis over time?
Переглядів 3,1 тис.5 місяців тому
What to expect as follow-up for cases of interstitial lung disease (ILD) and pulmonary fibrosis? How will your doctor check whether the lung scarring is getting worse? What are the tests they may request? What questions will they ask? How often will you need to be seen? Do all cases of pulmonary fibrosis require long-term follow-up consultations? These are some of the questions that I answer in...
What is Langerhans cell histiocytosis (LCH)?
Переглядів 8855 місяців тому
An overview of Langerhans cell histiocytosis, or LCH. LCH is a rare lung disease caused by the accumulation of a type of cells in the lungs, around the small airways. These cells are called Langerhans cells. This condition leads to the appearance of so called "lung cysts", which are small cavities within both lungs. Typically, in LCH, there are multiple small cavities in both lungs, but which a...
Ventolin inhaler useful in Pulmonary Fibrosis?
Переглядів 1,7 тис.6 місяців тому
Is it useful to use a Ventolin (salbutamol, or "blue") inhaler if you have pulmonary fibrosis? Salbutamol inhalers are useful for patients who also have evidence of an airways' disease component. Some patients who have pulmonary fibrosis may also have other chest conditions associated (such as asthma or COPD). In these cases, inhalers may actually help with breathlessness. Also, patients who ha...
Testing for Pulmonary Fibrosis in Healthy relatives?
Переглядів 5486 місяців тому
This is a nuanced comment on whether someone who has family history of interstitial lung disease (ILD) but no respiratory symptoms should seek to have genetic (genomic) tests done or a chest CT scan to screen for the presence of early ILD changes. These interstitial lung abnormalities (ILAs) can actually be found in a very large number of people, but not always represent the early stages of pul...
Can Lung Function improve in Pulmonary Fibrosis?
Переглядів 1,8 тис.6 місяців тому
Can you have an improvement in lung function if you suffer from pulmonary fibrosis in the context of an interstitial lung disease (ILD)? Some forms of ILDs with pulmonary fibrosis can have a reversible component, which may respond to some treatments. Alternatively, the improvement in lung capacities may be due to not having very good numbers previously (due to technique performing spirometry, o...
Pulmonary Fibrosis and Birds!
Переглядів 1,1 тис.6 місяців тому
The link between birds and pulmonary fibrosis. Sensitization to proteins originating from birds (avian sensitization) can be responsible for hypersensitivity pneumonitis (HP). HP can lead to pulmonary fibrosis if the lung inflammation persists for a very long time. If birds are suspected to be the trigger, treatment will be most effective if contact with birds and bird feathers is avoided. Not ...
Brain "fog" and low oxygen in Pulmonary Fibrosis
Переглядів 1,5 тис.6 місяців тому
"Brain fog" has been described by many patients who suffer from chronic conditions. Short term memory problems, difficulty focusing on important tasks, fatigue and sometimes the inability to make fully rational decisions that impact one's care are very important topics to explore. In the case of pulmonary fibrosis, one reason why these symptoms may occur could be that some patients with more ad...
Residual fibrosis or Pulmonary Fibrosis?
Переглядів 2,2 тис.6 місяців тому
Residual fibrosis or Pulmonary Fibrosis?
How does Acid Reflux impact Pulmonary Fibrosis?
Переглядів 1,6 тис.6 місяців тому
How does Acid Reflux impact Pulmonary Fibrosis?
No one knows what causes pulmonary fibrosis?
Переглядів 9117 місяців тому
No one knows what causes pulmonary fibrosis?
Palliative care for pulmonary fibrosis
Переглядів 6327 місяців тому
Palliative care for pulmonary fibrosis
What is the UIP (usual interstitial pneumonia) pattern?
Переглядів 2 тис.7 місяців тому
What is the UIP (usual interstitial pneumonia) pattern?
Multidisciplinary team (MDT) discussion for interstitial lung diseases (ILD)
Переглядів 3597 місяців тому
Multidisciplinary team (MDT) discussion for interstitial lung diseases (ILD)
Patient perspective on ILD and pulmonary fibrosis (ahead of Christmas 2023)
Переглядів 5037 місяців тому
Patient perspective on ILD and pulmonary fibrosis (ahead of Christmas 2023)
Steroids to treat Interstitial Lung Diseases - necessary?
Переглядів 2,6 тис.7 місяців тому
Steroids to treat Interstitial Lung Diseases - necessary?
What happens during the first consultation for ILD?
Переглядів 4427 місяців тому
What happens during the first consultation for ILD?
3-5 year survival in Idiopathic Pulmonary Fibrosis (IPF)?
Переглядів 3 тис.8 місяців тому
3-5 year survival in Idiopathic Pulmonary Fibrosis (IPF)?
Pulmonary Fibrosis nursing - What does an ILD specialist nurse do?
Переглядів 6629 місяців тому
Pulmonary Fibrosis nursing - What does an ILD specialist nurse do?
Pulmonary Fibrosis symptoms explained
Переглядів 7 тис.9 місяців тому
Pulmonary Fibrosis symptoms explained
Exercise when having Pulmonary Fibrosis
Переглядів 15 тис.9 місяців тому
Exercise when having Pulmonary Fibrosis
try cayenne pepper low dose for vein problems, it worked for my daughter, not so much for me but I was a smoker
Losing weight, vitamin d c zink, simlplifi life and ist thing pray.
Thank you, your information are very useful and appreciate your effort. May I ask, how can we treat diabetes insipidus caused by langerhans histiocytosis in the pituitary gland? Many thanks.
An adult case😢
❤
Hello doctor, I am from india and I am going to explain my situation this might be helpful for some discovery but I really wish things had some treatment, I m elder child, my parents are fully fit, I was born just like any other normal child in almost 15 days my mom notice few black and white patches on skin, Eventually they increased and spread on whole skin, at the age of 2 and half I got cataract that was treated, when I was 5 years my parents planned another baby and my brother born very healthy beautiful but started getting same condition, patches, this time mom dad decide to visit to doctor but had no treatment for that at all, at the age of 12 and 13 we discover we are not getting the same height as the other children, my height is just 133 and my brother was 152 cms his cataract was also treated, at the age of 31 he was diagnosed with ILD NSIP and with in one and half year in 2019 October he passed away,I was diagnosed with ILD last year in Jul and since then I have been in immune suppressant, steroids, in my report of CT scan it is early sign , had not much scaring as per CT scan on 14th Jul’2024, I was also quite alright but for past one month slightly declined, I am 42 years. In addition to all me and my brother non smoker, never got exposed to smoke , bird etc,I watch your video because they are very informative and helpful and offcourse I will be glad if some treatment available for me.
Videoyu Türkçe çeviri olacak nasıl izleyebilirim
Thank you for info very useful- and will help going forward 👍
I'm 73 and got IPF from a Covid attack. My CT scans are not good and are not getting better over time. Right after I got IPF I also had a heart attack two days later. I had been going to the gym just about every day and my cardiologist told my family after he inserted SIX stents that he had no idea how I was still alive other than I was in excellent shape other than my heart - which he had now fixed, even upgraded. Now my only hope is research scientists coming up with a cure for Pulmonary Fibrosis. Since they fixed sickle cell I suspect a similar fix with CRISPR and nanoparticles might be the research path. I just wish there were a well-maintained database listing all current research and clinical trial future possibilities. I would be a candidate.
Thank you Dr. Stephan. You have helped me a lot. Keep up the good work.
I have interstial lung disease Still boxing, sprinting, and staying as active as possible. That has been my saving grace.
I don’t want to spend a minute in the hospital.
Hi I am 65 year old female worked all my life in horticulture on no medication no illness very strong, had a cough for 1 year, originally when breathing in, needed to cough out. The doctor referred me to respiratory Dr at local hospital i had 2 x rays, lung function, test and a ct scan. I have been told i have pulmonary fibrosis, no treatment available worse case 2 years to live. Does this sound right to you or should I seek a second opinion. My cough is not as bad as it was originally. Thank you your videos are very good.
Thank you, for the information and explanation
Hello Dr. Stefan, I don't smoke or don't have a cough..why did I have residual fibrosis?
My Dad has just been diagnosed 😢
My dad too just 2 weeks ago 😢
The best treatment with absolutley no side effects for removing fibrotic tissue from the lungs or any other organs like breast and uterus is an enzyme called SERRAPEPTASE and also Nattokinase. I would take 120000spu of Serrapeptase and 2000fu of Nattokinase twice daily on EMPTY stomach.
Does ir work?
Why criobiopsy prescribed for what?
My father was Not able to get diagnosed til 48 hrs. BEFORE his death.
Wow same here . They diagnosed my brother with pneumonia. He was in the hospital three days and sent home with nothing but a appointment to see a reg Dr . He died three days later . I called the hospital and they told me the Dr that seen him on the day of release said he actually had pulmonary fibrosis
My condolences to you both. I am so very sorry for your loss, both of you ❤
Oh wow I JUST found your channel. Subscribed and watched a few already and will dive in more. My husband, a lifetime smoker, and has fed on ant acids all his life for heartburn, well… Last Nov they found Esophageal cancer. (lower part.) Thankfully treatment was successful, no cancer anymore. And he had quit smoking last Sept. Now the doctors prescribed high strength ant acids… meanwhile only in the past year I learned ANT acids are the polar opposite of what you should do. I said start taking apple cider vinegar. Good advice but bad timing. Between the treatment and the cancer, that gave him a bleeding ulcer. So ok, back on the ant acids. Meanwhile now he has emphysema and fibrosis (lower part of his lungs.) He’s always had the smokers cough, but it’s worse now, and the phlem he hacks up is much thicker and slimier. He gets winded just walking to the mail box. Though he is doing better, gotta do more the doctor said today. Anyway his doctor first said because of the cancer he is NOT a candidate for lung transplant. TRANSPLANT? First line of defense is replace an organ? Right there I lost trust. Then he prescribed something called ofev. Not only expensive BUT the list of side effects, include liver damage, kidney damage, etc etc etc. Insurance will pay for it but neither of his think this is a great idea. Today we saw his cancer doctor, and HE explained to me that since he’s been on ant acids for so long, that his stomach lining may not be tough enough to hand normal stomach acid levels. Your thoughts? (Trust me, I know you cannot diagnose anyone this way, I won’t hold any online doctor accountable. Just looking for info to go to our doctors with. Only asking your opinion in general based on a tiny bit of info here.) We meet with his gastro doctor in a few months. Side note, I have learned a TON from doctors such as yourself on youtube. THANK YOU! I have already taken myself off an array of drugs for type 2 diabetes, BP, yea. ALL gave me side effects. Dr. Eric Berg on youtube is where I learned about the keto diet and started that just over a year ago. Lost weight, got my energy back, NO MORE damn drugs! A1c started at 10, down to 7 only two weeks into the diet change. 5 the last time I had it checked. So I know the diet works. And why I got in this shape to begin with. (Seriously our diet in this country is shit. And that is being nice.)
My dad died last month from this SILENT killer. No symptoms til it was too LATE!!! I will Not allow it to SNEAK up on me!!!
thanks for this information... try Kankasav and Vasaka capsules by planet Ayurveda which are very effective in the management of Pulmonary fibrosis.
Greeting how do i vope with Shallow Breathing
Thank you, Dr., as a South African citizen age 74 yrs old. i have been diagnosed with Pulmonary fibrosis idiopathic i cannot use any Shower gel with any smell wht do you recommend.
I was diagnosed with NSIP, after a crises, May 2020. I have deteriorated over the last 6 months and, was last Monday put forward for assessment for a lung transplant. Chemical treatment has slowed progress a little, but not enough.
Audio on this video is very low, I had to turn up the volume all the way and still barely audible.
My wife took nintedanib (Ofev) for about 8 months but discontinued due to severe side effects, primarily diarrhea and nausea.
Actually I think she took Ofev for about a year. It seemed like the side effects were getting worse before she finally stopped taking it.
I appreciate these videos very much. I was just diagnosed 3 weeks ago. Bless you!
Hi, thank you for this! In 2021, I was in ICU for 35 days from delta covid. That strain was the hardest on the lungs. Oxygen for 7 months. Recently diagnosed with PF, with issues on the upper lobes. This lead to sensitivity blood work resulting in very high levels of 5 fungus/molds. Biopsy scheduled soon. Replacing HVAV system soon & have been using allergy meds for quite sometime. Grew up with 2 parents for 18 years of second hand smoke. Mother & grandfather died from lung cancer. Genetics in play for sure. All other blood work is fantastic which I attribute to good eating & nutrients. Of course, the mental strain is huge since covid my body is not the same😢. I have a strong will & very diversified business background but have t worked in over 2 years. Need to find out if my lungs have fungus so I can quickly be treated. Unsure about the 2 anti-fibrotic meds… ad side effects. Question is, has anyone tried nebulizing with L-Glutathione for helping cellular activity in the lungs? Dr Jockers in GA has this product. I’m holding off until I get the biopsy & the results. There has been a clinical trial on this. I’m an advocate for functional medicine & take many things to build up the immune system. Thx for your thoughts!
My facebook is filled choc-a-bloc with your videos - so inspiring and informative. You have got a servant's heart - kind and gentle.
Hello doctor my wife has fibrotic nsip and has in the last 2 months been in hospital twice fist time she received oxygen for her breathlessness for a week then was sent home, the second time they gave large dose of steroids and oxygen and this time was sent home with oxygen at home and a portable oxygen for when going out, she is on oxygen all the time and needs it otherwise her oxygen level drops and has been taking steroids for about 6months. They suspect worsening nsip but when I ask them will my wife die from this disease they just tell me we can treat it, the oxygen nurse just said don’t believe what you read on google, google says some people with fibrotic nsip die 5 years after diagnosis some live longer. My wife used to smoke so I assume this may have caused the nsip. My question: can my wife be treated and actually not need oxygen therapy and can this disease go into remission basically can she get better.
I am 46 years old and was just diagnosed with IPF. My mother had it, as well as other health issues, and passeed away at the age of 41. I got 5 years up on her... This has been quite the shock to my system, needless to say. I have alwaays haddd issues with mental health and this has just blasted me. i am seeing a therapist about that, but where I am living makes it difficult to get any help as to what and where I need to go, where to turn to get treatment for my IPF. Your videos have been very helpful in what I can ask the doctors and where I can turn. Thank you, God bless.
Do you think prednisone would be ok during chemo for gastric adenocarcinoma? My father is 85y/o, and after his last chemo treatment, his breathing became significantly worse. He gets winded after walking for 5 minutes.
Perfume is my worst enemy, as well as nicotine on people's clothes. I am now reacting to shampoos cat hair. There is in get out, I have to stay indoors most of the time.
Hi sir i need help please how can I contact you
Thank you for this excellent advice. I will listen to this regularly.
Thanks Doctor.This video is very encouraging.
I suffer from violent coughing episodes upon exertion and at night. I become breathless during conversations of two or more sentences. I take prednisone (10 mg) does not really help with the coughing but the breathing is better. Great to hear of other means to control coughing and will discuss these options on my visit with ILD specialist and pulmonologist. Very informative video. Trying to get oxygen now also.
Thank you for this video. My 84 yo father was recently diagnosed. Waiting to see Pulmonoligist. We believe the scarring came from his 40's ... 10+ years of wood sanding (walnut). The scarring is old they say. * He is going downhill... fatique from anything strenuous. He was just placed oxgen for sleeping. My question is, if we get him going with a good Pulmonary Rehab and exercise program (with oyxen) can we stop the spread of the scarring? in other words...Do old 45 years scars get worse? We are not sure that we want to have him take medicine. (risks may outweigh benefits, we are thinking already) Was hoping that he could successful live with what he's got, and make his last years as comfortable as possible through pulm. rebab and O2. Thank you.
Hello dr. What do you think of taking the medication pirefidone or called sentient? I could not take Ofev was to many side effect s … but so far so good on the Enbrient. But I was on prednisone for many years for my Rhuematoid arthritis been off it for a while an u hav to be weened off the prednisone
Thank you for all the much needed infomation.
Thank you for this video! I hope you can make a video about Post COVID-19 Interstitial Lung Disease (PC-ILD). It would really help a lot of COVID survivors.
There are a variety of meds post transplant some have side effects for some people. My medical team are very good at monitoring, adjusting dosage, or taking a different med altogether. I get shakes from some meds but I can deal with this so I can keep my new lungs. By shakes I mean shaky hands. When that med was higher dose it would cause whole body shakes.
Thank you very much. That was an excellent presentation. It couldn't have been clearer.
Rituxin for ipf
thank you. the video gives a confidence to accept the reality and move.
Please make vedio how to improve arterial blood gas thanks
My Dr is treating me with both MMF & Nintedanib for hypersensitivity pnumonitis, since with Nintedanib there was still progression. Is it ok. They's many a time where my stomach is affected. Though my condition was diagnosed early, no treatment was started for 2yrs. And finally when Nintenadib was started it was only 100mg twice... Any suggestions Dr, because i still feel very unwell
Same here i have bouts of nausea feel really bad for days my hypersensitivity originated from silica dust
I am Usha Mehta. I am suffering wit pulmonary fibrosis since October 2023 . I’m still getting up and down Struggling with daily leaving, I’m looking for some exercise and get done with my life thank you
Hi I have amyloidosis in my heart, lungs, gastro and skin, also mm all under control with Dara and immunotherapy, I continue to be in poor shape eg sob when walking up stairs, they aren’t too many specialist here, Adelaide Australia, thanks
I just completed three weeks of umbilical cord stem cell transplants in Bangkok to treat IPF. I now have no symptoms. My blood oxygen is 99. I can run, sing, play trumpet and exercise again. I have my life and my health back.
That's terrific news. I would be interested in knowing the name of the hospital and how much your three week treatment cost.
Pls do share the details of the hospital
Please share details