♡ Gastroparesis is making my teeth FALL OUT!! (15th-19th.10.19)| Amy's Life ♡
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- Опубліковано 21 жов 2019
- ♡ Gastroparesis is making my teeth FALL OUT!! (15th-19th.10.19) ♡
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I'm constantly amazed at your honesty and generosity. Many would be too self-conscious to share such personal things. Your hair falling out because of nerves, your teeth falling out because of your vomitting. Vomiting on yourself and turning the camera on to let everyone know. You have my admiration.
L A Lou I know she is open about things that other people would be terrified to share she is such and inspiration
Amy is wise beyond her years. I am old enough to be her grandmother and yet I learn things from her! What an incredible person she is!
After you vomit swish water and baking soda around your mouth. That should neutralize your pH
Tom just coming in and moving the pumps out of the shot and then cleaning in the background honestly worlds best boyfriend award goes to him, stay strong Amy ❤️
Amy, I was wondering if Tom would ever do a video about his experience as a partner to someone with chronic illness?I’m so blessed to have a partner who helps me through my health journey, and itS been really difficult and it would be great to have him watch a video, or short Q&A about another persons experience with this!
Yes ma'am, ive lost 6 teeth and have zero enamel from the vomiting and stomach bile. I'm so sorry that you're dealing with another issue thanks to gastroparesis
I’ve been dealing with this all year. I’ve kept it silent as I don’t want people to Know. Worst part is I lost my dental insurance and at this point still fighting to stabilize.
5 tube and stomach surgeries in 5 months from Gastroparesis and other issues coming from my Gastroparesis.
This disease is so devastating and so hard to get people to understand.
I totally get the dentist costs thing, I work full time and have a broken tooth and it's been broken for like over a year and I physically cannot afford to go and get it fixed :( so annoying it's so expensive:(
Omg I don’t even know you personally but I was in tears when they announced you as the role model for the game and telling a little bit about you Amy! I look forward to your videos as they bring me joy and you’re always so positive and real.
Also can you please do another ASMR video soon? I watch that video almost daily when I nap in the afternoon after work. I love to see more! Love from NY 💕💕💕
K C yes I loved her ASMR video
Congratulations Amy!!! You’re so humble!! Thank you for your honesty and your kindness!
You would think they could come up with some sort of coating to help protect teeth in your situation. Or ever a pop in and out guard.
Just found your channel yesterday and I am obsessed!!
Thank you for making this! Makes me feel like I’m not alone in this. I experience so many of these things on a daily basis with gastroparesis and all the tips and honesty are so helpful!
Ur videos are so inspirational for anyone suffering from anything. No matter what u push through and come out stronger and it’s amazing. I hope they can fix ur tooth. Definitely gonna make u feel better.
I heard all they said loud & clear!! Thankyou SO much for your generosity-U give me SO much, & others with chronic illness everytime you upload! Ur honesty in ur struggle makes me feel not alone, as I too have dental issues, the struggle is real! Ur SO brave, awesome, & completely deserving of recognition! Thankyou SO, SO much!
I'm so sorry you're going through this. I've been there, lost 12 teeth to it. Stay strong girl!!!!
Baking soda is a natural acid suppressant or neutralizer so gargling with it using as a toothpaste or if you can't stand the taste even maybe a Tums would help save your teeth
Baking soda is a base and bases react with acids to make salts, which are neutral in the end. I wouldn't recommend making such a reaction happen in your mouth tbh, because it would fizzle. Oh and if you have burn the bottom of a pot and can't get the black stuff out by scrubbing, you can pour vinegar over the stain to cover it completely, put it on the stove at low heat and add baking soda to perform the exact same reaction. The fizzle loosens the burn mark and you can scrub it off easier.
I'm not an expert but based on my knowledge in chemistry, I would rather not attempt something like this unless advised by a dentist. (btw dentists aren't too happy with using baking soda for *brushing* teeth because the granules can scratch your teeth so much more than toothpaste and the heavy duty products they use)
@@deniz_dee yes it can be really scratchy do make a good point with that but if you use something like coconut oil and essential oils it can be made far more tolerable and diluted to be far less granular
Yeah no. Baking soda literally removes the enamel off your teeth. Might as well use vomit as toothpaste
@@Erdf3542 according to this, baking soda has nearly the lowest abrasivity of tooth paste options:
www.sheltondentistry.com/patient-information/toothpaste-abrasivity/
Oh my god, Amy. That was such an amazing tribute. I actually cried. I'm so happy for you!
It really was!
So proud of you Amy! I found out I had moderate enamel erosion/loss from vomiting this summer too 😕 I considered talking about it on my channel, but was ultimately too embarrassed. I still don’t think I could talk about it openly like this, but you’ve helped me come to terms with it more, so thank you 💕
Hi I have just been diagnosed with delayed gastric emptying and I am type 2 diabetic. Although nothing like what you are going through I have followed and admired you for sometime. Thank you for you honesty and advise xx
Idk how you deal with vomiting so often! I have really bad emetophobia she would rather do absolutely anything that vomit, it’s literally my biggest fear! Ur so strong!
Love the pyjamas. You deserve the award you got. You are helping so many people and letting those who don’t know of these conditions learn. You are beautiful and I love you and Tom together. Look after yourself. Sending lots of love and hugs your way. Xx💕💕
You are definitely a hero and a roll model .thank you for sharing your life Amy you are one-of-a-kind.
Thankyou so much for this! I have gastroparesis and was diagnosed recently. I have so so many problems with my teeth and my dentist seems to think that it’s a choice for me to vomit almost every day 🤦🏻♀️ very frustrating. Not brushing afterwards is something I only recently learned too ! It feels gross but definitely helps xxx
You are a warrior. You amaze all on a daily basis. Love your courage and strength. You continue to inspire so many. Don’t lose heart. Sending peace and love. And Tom is a freakin rock. Stay strong baby girl. I can say that cause I am old enough to be your grandma. ❤️
I like Tom doing random things in the background in the beginning.
The teeth brushing tip is what my dentist recommended as well! But you can rinse with water straight after to get rid of the taste & lower the acidity in your mouth
I cired when they gave you the spotlight at the game! So sweet and well deserved!!!
You’re so amazing and inspiring!! So proud of you for doing that!! That’s so awesome that you got to be the role model! You deserve it! With all my chronic illnesses you inspire me to do my Channel and still live my best life so thank you sooo much! ❤️❤️❤️ love ya!
I had trouble with my pain patches but my pain management doc suggested I spray albuterol (yeah, for asthmsa) blow on it to dry then apply the patch. Worked fantastic!
I frigging love Dobby 😍😍
Congratulations on the role model shout-out well deserved 👏🏼👏🏼👏🏼
I have this and my teeth are breaking apart pieces at a time. I do my best to eat right but a liquid diet is the best. Stay strong.
I should be sleeping but here I am clicking on your vlog ASAP as per usual
Congrats on the Role Model at the game! You have such a great platform to spread awareness and you do such a wonderful job always. As someone with chronic illness also I am always amazed at your strength and positive attitude. Again, congrats! And you looked gorgeous on the big screen!
Sorry bout your teeth issues that’s really a hard thing to deal with and congratulations on your role model nomination that’s huge keep strong young lady you still have so much more to teach us
I am so happy to hear someone talking about how GP affects our teeth. My teeth are so brittle that there has been multiple times when anaesthetists have chipped my teeth whilst I’m being intubated in resus when my lungs are misbehaving & I need some time on the ventilator to give my body a rest.
In the next couple weeks I am going into surgery to have all my teeth (what’s left of them) removed.
The surgery on my mouth & teeth removal has to be done under GA because;
1. The risk of complications is extremely high so need to have a ITU bed post surgery (hopefully just one or two nights) due to having really poor Lung Function, Epilepsy, EDS, Anaphylaxis yada yada yada🤪 (I’d be here all day writing out my diagnosis best sleep inducing medicine ever😴)
2. I’m going to have incisions made all the way from right to left side of my upper and lower gum (makes me feel sick thinking about it🤢)
3. Due to my respiratory failure I need oxygen & BiPaP 24/7 they want me to have a safe stable airway for the procedure as unfortunately my past proceeds me as I’ve had a respiratory arrest in the local dental surgery. Now no regular dentist will take me, it has to be a dentist based in a hospital🙈
I’m horrified that it’s came to this🥺, I don’t speak face to face🤐with anyone other than my close close family. I’ll be glad when they’ve out in a way as that means no more pain 🤗
Thank you for helping me feel a little less alone & I’m not the only one who deals with this embarrassing problem.
I mean I knew it happened to other GPrs, but like you said not may people talk about it.
It’s had a huge effect on my self confidence as I don’t smile much anymore (I’m not normally a miserable git lol) I don’t let anyone take pictures with me, like my nieces & nephews which hurts as they are growing up way to fast.
Your teeth are perfect to look at though @amy mine however would scare away the trick or treaters this year hahah. ☠️
P.s I love that Lippy with your top it looks Lush!
Congratulations on the role model thing! You're videos always make me feel inspired and happy!
I spray Flonase and let it dry before putting my patch on. It really helps with the swelling and reactions! I absolutely love your videos 🖤 watching your videos normalizes my symptoms, thank you always for sharing.
Thank you! Amy, for sharing your personal life with us. Glad your living your life it's good to see your smile much love to you and Tom🥰🥰🥰🥰🥰🥰❤❤❤❤❤❤
Wah!! I already commented on your instagram but again this had me welling up seeing you up there on the big screen!! You go girl!! So proud of you. I would have been so nervous and awkward lol ❤❤❤
I’m so happy you got that opportunity to be the role model! Also I deal with teeth issues with my Crohn’s so I can relate.
Congratulations on the award Amy! You totally deserve it🥰
I liked what you said about sometime just have to lush yourself to do something even if it's hard. I think when we're (able) to, we're better for it. 😊 I hope you bloodwork and everything comes out okay this week.💜
So proud of you and you looked so beautiful!!!!
You had me at pajamas, I love cute fuzzy and fun designs on pajamas.
And oh gawd that teeth falling out nightmare has actually been a recurring nightmare I have suffered from for as long as I can remember. Haven't had it in a while luckily.
omg Amy I feel you with your skins reaction to the adhesive on patches/bandaids etc! while I don't have any allergies or health issues, my skin blisters if I have a bandaid on for a couple hours (such as that one time I wore pasties to a concert :/), and as someone who plays a lot of sported has a lot of soft tissue injuries that require taping, I find myself always red and blistery :(
I swear my nipples inverted reading this. I’m sending good vibes to yours, I hope they survived the pasties. Lololol
Congratulations on your role model appreciation, you are a role model to so many the encouragement you give us to keep going means a lot to all of us. Love from the US. PS. Love your pajamas.!!!
I have a rare condition called sphincter of oddi dysfunction that caused chronic pancreatitis, which has caused gastroparesis. I only have half my pancreas after they removed the other half during a modified whipple surgery. I suffer with chronic pain & nausea & vomiting, even with meds. I didn't have great teeth to begin with, heredity, I had 15 teeth pulled at once last fall & now have upper & lower partials. Your strength is incrediable.
I have been fighting cancer for over 8 years so my ailment is not the same as yours but I can completely relate to the side-effects. Sometimes my side-effects are worse than my actual cancer. I have bladder cancer. I have to use a foley catheter now because my bladder doesn't work anymore due to all the scarring. So, I have to carry a "supply" bag wherever I go. How do you get into sporting events and such when you have to carry a large bag with sensitive supplies? Do you just have your doctor write you a note? I have been avoiding going to anything because my bag is bigger than is allowed in the venues and it's a hassle. Hang in there, Sweetie!! TEAM AMY!!! :)
I cried with pride seeing you on the big screen ❤️
I have diabetes and one of my side effects is dry mouth. So my mouth is full of fillings as teeth keep chipping. It's a side effect no one takes about. I'm a regular at the dentist. I feel your pain and you just keeping trekking on! Your an inspiration!
I’m in the US and have severe GP. I’ve lost all of my teeth. I’ve had GP symptoms since 2006 but not diagnosed until 2010. I got the stimulator in 2011 and it saved my life! GP took everything from me, my dream home we just built, our new car, and my career as a LDRP RN. I’m thankful that I still have my life♥️
Congratulations for being picked as role model for the game. You really deserve it! You're amazing! Ps: You suit red really well ^^,
I also have Gastroparesis and I'm studying to be a dental assistant because my Gastroparesis is damaging my teeth as well. I'm sorry that this is happening to you! I understand the struggle. Keep your head up girly
😊 Awwwww, That’s pretty awesome Amy that they mentioned you like that! Your so loved, don’t ever forget that! :)
I also have gastroparesis along with a plethora of other illnesses and My dentist says to keep baking soda next to the toilet for those vomiting spells. After you vomit do a baking soda rinse because that will neutralize the acid and then wait 30-45 minutes after that to brush your teeth. I hope this helps you Amy or honestly anyone in general with this problem. 💕
tooth mousse is really good to protect the enamel on your front teeth! It's an aussie product too. I use it after vomiting.
I love HR! Yes to the HP pj haul! Where did you get them?
This happened to me too. I have no teeth left and don't have money for replacements. Also, hope the cold doesn't make u worse. It's getting cold here. Lots of pain.
Take care. Have a great day everyone.
Oh yes a pajamas collection video ! that's so cute !
Aww that was beautiful i teared up u are truely an inspiration ❤️❤️
I’ve been following you for awhile now and i love your vids they make me feel less alone in dealing with chronic illnesses
Congratulations on your Wildcats Role Model. You deserve it. Your family must be so proud. You are humble. Yes, I would like to see the HP pj video.
I usually use music during my dental visits. And sunglasses to help with the bright lights. Afterwards, I treat myself to something for soldier-ing through.
Much love sweetie and congrats on being the role model that was amazing and u r so beautiful
Congratulations ROLE MODEL😍🎉🥂
You really are a role model! I ❤️ this channel!
Congratulations amy your inspiring to everyone and have a beautiful smile I love your Derby PJ's dog is my favourite
Red is your color!! You are rocking that lip!
I tried so hard to salvage my teeth but I'm down to only having 8 of my own they are all the front ones on the bottom (the ones you see when I smile) but my top changed to a full denture because they had to pull the ones I had left on top because I kept getting really bad infections. I cried but I'm getting used to it and most everyone including those close to me don't even notice that I don't have my real teeth and that I'm wearing a denture the denturist was amazing. Good luck girl and it is absolutely ok not being ok. I've been there.
Congratulations on the well deserved Role Model award!! Its nice to be acknowledged for all you do to help others and promote awarness.
Big shout out to Harvey Norman/ Ikea/ BBQ Galore etc.... how about coming on board to help these two well deserved couple for stuff for there new home when its built!!
I don't have gastroparesis but I had a problem with my teeth since I was four. I got cavities in my gums first then it spread through my mouth rotting all my teeth at once. I remember being in the hospital when I was four after having all my front teeth pulled and side teeth capped in silver crowns. I suffered with this until I was 25 and broke my front tooth on a piece of honey baked ham at Christmas dinner. After that I had the last 13 teeth I had pulled and dentures were put in. I am now 49 and I am much happier not having to struggle with rotting teeth anymore. Get the crowns but Do Not get a root canal!!! I had root canals done on three teeth and they just died faster.
Also, Congratulations on your moment in the limelight!!!!! You looked so beautiful!!!!!💗💗💗💗💗💗
You hair is sooo pretty!!!
You’re such an inspiration!!
I totally understand!!!. I don't have Gastroenteritis but I had anorexia and bulimia in my younger years, about ages 11 till early 30's. And I have been dealing with 3 cancers, (1 stage 3b and 2 stage 4 cancers). I am now 45, and because of the malnutrition and from the acid from vomiting with cancer, I have major dental disease, and every tooth of mine has major damage to it. I had to get an upper partial at the age of 35, and now have to have the rest of my upper teeth removed. This is after I had 3 of my lowers removed 1 1/2 yrs ago. Plus, last week, I found out that I have to have another 3 lowers taken out and 2 lower rt. canals. It is all very embarrassing, and painful. I did a video a few yrs ago about trying one of those "As seen on TV" dental products If you want to watch it, here is the name. . "My personal review of As Seen On TV - Perfect Smile Veneers" It turned out to be very funny! But it does tell the truth about my teeth. Good luck to all who have to deal with invisible diseases, and these horrible dental side effects from them.
Thank you for mentioning this. I hate how my dentist treats me.
I have scars from my attempt at pain patches. My doctor won’t let me retry them.
Hi Amy ❤️ my dentist has prescribed a high fluoride toothpaste as it protects more against stomach acid. And his advice was *never rinse your mouth after brushing your teeth.* With this toothpaste or normal paste. It basically washes away what it's designed to do. Xxx
Congratulations for being honoured and seen on the big screen at the game... You totally deserve it! 😊🏀☺️
Having CRPS and Fibromyalgia I have similar teeth problems. The difference is mine are being eaten from the inside out. My bones do the same thing, being eaten from the inside out. I have to be really really careful because a small fall can cause an instant break. The teeth though are horrible because I only have a few left before I will be forced to get dentures and I’m only 47! I got CRPS and Fibromyalgia in 2003 so my body is seriously screwed up!
But thank you for sharing your life and trials, it makes me feels less alone
I use the same patches, I use them on my lower back/ hip area. Hopefully they help you too!!
Hi Amy, Aus Post notified me that you picked up a package I sent to you. Just so you know it comes in two parts and the second package is still in its way. My packages are entirely Harry Potter themed so you should be able to tell which packages belong together. 😄
Nicole Seymour: Oh wow Nicole, you are so kind. Wishing you good Karma today, tomorrow and always. ☺
@amy'slife the second package is due to arrive to your PO Box next Wednesday (it's coming from Melbourne
Nicole Seymour: Good morning from Melbourne also!! Hoping Amy might open your package in a video so we can see your gift👍
Brilliant But Blue, I'm actually in Sydney but the gifts I wanted to give her were only available in Melbourne (except the first package which was available in WA).
Thank you so much! I’ll look out for it ❤️🙏🏼
Yes. Definitely. I want to see HP stuff. Show everything you have. Everything.
I had the same thing happen to me last year although it was determined that it was a combination of just a direct result of EDS making my enamel weaker, and all the medication I have to take, as well as mild malnutrition from my own stomach issues, giving me dry-mouth. People don't realize just how damaging dry-mouth is to your teeth - it is more damaging than constant vomiting and often is a huge contributor to why people with vomiting disorders end up with teeth issues (when you're vomiting all the time you're dehydrated which means less saliva to protect your teeth). It can be scary and expensive so my only advice is to try and find a really good compassionate dentist who will work with you to tailor a plan to your specific circumstances, AND TO DRINK AS MUCH WATER AS YOUR TUM ALLOWS
I lost my teeth at a very young age do to a chronic illness, but we just muscle on. Any try on that is Harry Potter is a good try on. You are such a beautiful and inspirational young lady, I am very glad I found your channel.
Keep up the good work,
Jimmy
Congrats! You deserve it. Love the jammies💜
How exciting! You deserve it! Love the Harry Potter stuff!
I love the coverage on your foundation what one do you use I’m looking for a full coverage
So jealous you have Nando's! They're only in a few states in the US, including mine, but not nearby. I had it the first time a few weeks ago and omg - obsessed! I've been craving it ever since but it's 100 miles away from me. 🥺
A crown is generally just a covering over your tooth. They are generally gold or some sort of acrylic. My dad has two of them. US healthcare though and he grew up in the 1960's/ 1970's and did not have decent dental until his 30's. He said the worst part was getting used to the new feeling in his mouth after it was put on and that it was sore at first, but now he does not even know it is there.
I have to agree with him as I had invisalign braces due to a nickel allergy and the worst part was getting used to the texture if the acrylic nibs on my teeth. I also have sealants on most of my teeth as they have deep indents, courtesy of my dad from genetics, and the worst part was that they were a little sore for a few days after and eating felt weird for a while and now I do not even realize they are there.
Hope this helps, sorry for the long explanation there as been a lot of dental work between me, my dad, and younger sister.
Me too with the teeth.
Mine have broken off at the gum line and I’m really self conscious about them.
My dentist told me to swish out my mouth with bicarbonate of soda in water to help neutralise the acid, and gave me a prescription for toothpaste with a higher fluoride content.
You looked really good on the giant screen, (and in your pyjamas (!) 😮). 😀
I saw you at the Wildcats game! Congratulations for being on the big screen. Also Myer are selling Harry Potter PJs atm, they are cheaper than Peter Alexander
I’ve had a root canal on my tooth for the same reason. The root canal itself has been super complicated, which has sucked. Still in the process two years on. Seeing a specialist makes the process less painful and more effective - I would always go to an Endodontist for teeth problems over a dentist now. I also have nightmares about losing my teeth often.
I also use a flouride mouth wash and special tooth vitamin paste to try and get my teeth in the best condition possible. There’s only so much we can do though.
The five dollar Kmart glass screen protector is I find are usually better than the really expensive ones from like JB hi-fi or other places if that’s helpful.
Sophie R I’ve found they all crack, however my Kmart one has been cracked for over a year and not progressed. My JBHIFI ones used to just keep on cracking.
You could wear those pjs out , love them x
Dental assistant here! Great advice! Don’t brush your teeth right away and have a really really good rinse with water immediately after vomiting. You’re wonderful Amy, keep up the amazing videos 💕
Even if you rinse lots of times after you throw up? I'm sorry you deal with that. Omg I love the red outfit you're wearing! Looks so fly! 😅
My little boy 11 has got enosophilic esophigitis his isn't good, in worst cases it leads to a feeding tube but we're hoping to get it all under control and he has very slow digestive motility, although not diagnosed with gastroparesis, we have to give him medication daily just to get him to go the toilet, before we knew this he was vomiting all the time and he was born without tooth enamel, so he's had a few teeth removed. He has awful acid reflux,Poor kids digestive system was so backed up his bladder hasn't grown, his intestines aren't receiving proper signals, There's so much more but I'm rambling. Thanks for this, I can show him he's not the only person who deals with these things ♥
I was going to suggest a baking soda gargle after vomiting.
It neutralizes the acid.
My teeth are terrible. I didn't have a cavity until I was 21; now I have filling in most of them. Not having dental insurance for years didn't help either. Yep, I'm from the US 😒.
Love the Harry potter PJ's Amy 😀
Every time I see you guys are at a wildcats game all I can think is "WILDCATS! GET YA HEAD IN THE GAME!" 😂
Congratulations on being selected as a role model at the game, but please know you've been a role model to many for years and years, I just love those pajamas you had on at the end. When you brushed off the owl that Tom was pointing out, is it because you are not a fan of them?
hi i’m sorry if you’ve answered this in a previous video but i was curious what pain patches you use?
That's so Awesome Amy!!!
You are amazing!! This vlog resonated so much with me this round. Oh man. Xoxoxo guys. ❤️
yes please show off your harry potter collection, sounds awesome, im sure you look so cute in them too!