♡ Admitted to the Hospital for Anaphylaxis! (16th-30th.11.19) | Amy's Life ♡
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- Опубліковано 1 жов 2024
- ♡ Admitted to the Hospital for Anaphylaxis! (16th-30th.11.19 )♡
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There are stretchy silicone "laces" that will turn any shoes into slip ons. My husband has lost the ability to tie his shoes as well and he really likes them.
Molly Conley those are my jam - I use them in all my shoes!
I dont mean to be offtopic but does any of you know of a way to log back into an Instagram account??
I somehow lost my account password. I love any assistance you can give me.
@Jameson Dexter Instablaster :)
I don’t have EDS but I do have allergy issues I can be allergic to something that I was Totally fine with one day and allergic to it the next day and I’ve had to use an EpiPen several times I wonder with your lipids did the manufacture change carriers I have learned through just my own research that the slightest ingredient change can set me off and I know you have mass cell disorder and I know it can just happen at anytime and anywhere but I’m curious if the manufacture of the TPN has changed something that they’re using with the lipids? Much love and respect 💜
You are so damn strong, Amy! It's truly inspiring and beautiful how gracefully you handle your health. I can only hope to be as patient and dedicated you are to your health. Also I absolutely love how you're basically your own nurse!
I can't believe she's gone... fly high 💔
Its so cool that ur dr has EDS, gives them such a different perspective than normal dr
I totally understand the gutwrenching moment when a specialist says they can't help you any more.
It's disheartening.
Well wishes to you!!
Amy, we are always here for you, hope you can get through these hard times and we will always be supporting you and next to you
I have EDS and I love watching this channel it's nice to see someone who has what I have and to really know I'm not alone
@Lollycraft2 thank you so much that made my night
I reacted to the lipids the short time I was on TPN. Turns out I had a soy allergy.
They have a couple other types of lipids thankfully
Did it work for you? They are thinking of putting me on it. I hv gastroparesis and am losing weight rapidly. I hv lost 70+. I'm a bit reluctant and scared cause I'm not sure how it works. Any tips?
TPN did not work for me actually. After a line infection, we choose to retry tube feeds a straight J this time, and it's not been great, but I am still here. I lose and gain weight in cycles depending on how much feed I tolerate at any given time
I’m still so secondhand mad about your nerve damage, that would drive me crazy!! 😤 but tingles & numbness make me especially anxious because they’re one of my migraine auras. though it would be handy to have a numb leg to do my weekly T injections in 😂 I do sub-Q with my T and I’ve found icing the injection site right after you finish makes a huge difference in soreness, stinging, bleeding, and swelling, so you might wanna try icing your belly next time you do Buscopan! 🧊
I feel you on the shoelaces too, I recently had to make the hard call to replace my beloved stompy Doc Martens 1460s because the weight of them started to subluxate my knees and ankles. I found a new pair of Docs that worked for me but I’ve been wearing the same style for almost a decade and I’m really going to miss them. 😭
You are one hell of a woman, Amy. The world wasn't ready for such a force.
Such poise, love & immeasurable intelligence.
Sleep sweet, Amy.
Xoxo
love....glad you out of hospital.... receive my love all the way from Africa, Kenya...
You are so strong. I just saw your video. You inspire me to keep going every day. I'm in hospice and have many condition,including severe pain and gastroparesis. So I know how you feel. But everytime I see you it makes me want to keep going a little longer. Thank you for what you do and for inspiring us all the time. Hugs and kisses from Texas-Dorma 🥰❤
Oh girl thank u for not keeping the kiss sound in the intro its so much better like this
Love your new intro!💕
Your are so beautiful even in your hospital bad, you are so strong and powerful. You are a BOSS LADY, you hang in there ❤️
I saw these no ties shoe laces on Aliexpress & thought of you. They are really cheap to. Will make life easier for you
She is gorgeous I love her accent
Wishing and praying for you to have a happy , healthy life❣ I wish for the both of you to enjoy your new home together❣
Amy-
I don’t know what else to say other than you are amazing. You’re so positive and strong. I love your relationship with Tom. He reminds me so much of my husband. He’s super sweet and supportive. I love you guys. Prayers to you all and your tiny Lily too. I hope all her cancer is gone and she continues to stay cancer free. Hugs and love to you! 💕
PS> I recently just discovered your channel. Thanks for sharing your story. 💜
A photo shot that’s fun. My church us to do them once a year. All those things scare, tubes, lines are just battle wounds.
I hope some day I can advocate as well as you through my channel.
Chronically Cooking I agree I have old self harm scars and they just show I’m still here
I’ve had 4 sugury all thick scaring
Yes I have a port scar
I have old chicken pox scars
i got so many scars but as mama my kids say mama is a warrior . accept two recently had my twins they don't talk yet
Much love beautiful Amy your doing well and so brave and so lucky to have a lovely caring gent like Tom keep it up lovely x
The new intro is so much better without the creepy kissy sound 😅
Lmao I was gonna comment the same thing
That rude not be rude
I am almost out of my Diet Shane lip balm! *Cries* I got the bundle too! I hope the restock the lip blam very close to the begining of the year!!!
I definitely feel for you I have had a chronic abdominal pain illness mystery diagnosis for about 6 years now and I was just recently in the hospital as well the same time you were admitted I was admitted for 4 days. I send all my love and prayers to you.
I’m so sorry you felt under the weather I hate seeing you in the hospital be strong as you are Tom seems worried about you as always keep thinking about your new house also your new intro is gorgeous 💋🌹💋
It must be horrible to have your life consumed by your illness. You can’t travel, do things you wanna do coz your feeling like shit all the time. Kudos to you for keeping on loving and living the best life you know how😉
With all the things that you react to, is it possible that you'll react to an EpiPen? And it not work?
Amy did say that her EpiPen wasn't working right away. And that it took forever to work. This was not so long ago, when she had the anaphylactic episode.
EpiPens are basically filled with adrenaline, which is a substance produced naturally by the human body, so the chances of becoming sensitive to it a very very low.
Hi Amy hope u r doing well I've been here for a while now I was wondering did u get a candy calendar this year for December lol 🖤🖤🖤🖤💙💙💙🖤🖤🖤🖤🖤
Love the new intro Amy
😊
Omfg I got a Buscopan ad after you showed your injection!! 🤣
Oooo that intro is boojeeeeee af ha! Great vlog xxx love Emily Cheltenham UK
Amy i just want to say that you are soo strong and incredibly brave!! I love watching your videos
You’re so lovely and I’m so sorry that you had an adventure to the hospital. Happy you are free and safe!
Glad your out of hospital again. I suspect it would freak people out watching you inject, if they haven't had to do it themselves. I finally got a replacement order of my Nature yesterday.
Yep, it sucks when Specialists can't help you. I get that all the time.
You go through so much and still are so so positive❤❤ praying for you amy!!
Love love love love to you Dear One!!!!!♡♡♡♡♡♡ Sending love love and more love!!!♡♡♡♡I know much of what you go through, you have my total love and understanding!♡♡♡♡♡♡
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Sending you lots of HUGS and GOOD VIBES. STAY STRONG!❤❤❤❤❤🤩🤩🤩🥰🥰🥰
Her giving herself a needle like it’s nothing👌🏻
Me punching the nurse in the face getting a jab at school 😂
Imogen Trainor you get used to it after a while.
I hope you’re joking and not actually laughing about assaulting a nurse for real 🙁
J aneh M I am 😂 x
Sending you lots of love!!!!!!!! Hope you are feeling better~ we love you❤️
You are amazing!!! your strength and beautiful positiveness is beyond words. I hope you know you are a true super woman x
Omg woman, you inspire me to cherish every day that I have... I dont have health issues (small ones, not worth of mentioning compared to yours), but I really really get a reality kick in when I see your daily routines and struggles. I hope you are doing well now and found a way to get those lipids into your system.. sending you lots of kisses from Croatia, stay positive and know that you are an inspiration to many ❤️
I am also so proud of you for winning and doing that photo shoot❤️ all bodies are different, some run differently and all look so very very different. You are such a beautiful woman and I am always rooting for you❤️ you are always in my thoughts and prayers also happy holidays
I recently found your channel and Been watching your videos ! I already love you 😂😭 ! Your so inspiring and strong ❤️! So happy I found you !
Holy shit I’m in Perth’s children’s hospital right now u should come and see me pleaseeeee ur like my fave person I look up to u so much
Wow you had a stressful November I hope things are turning for the better
sending you so much love
Omg you are so close to 100k 🥰🥺 you deserve it so much !!! I love all off your Videos
( from Germany )
Prayers heading your way. I was recently diagnosed with Borderline Gastroparesis, colitis, gastritis, and a few other things. Without finding your channel I never would have had the knowledge to ask for testing and get diagnosed. I am so sorry your in the hospital again that must suck a lot.
I hope you're alright Amy!!
P.S. Loving the new intro, what's the song?
I'm glad they gave you a pressure-relieving mattress. It really makes a difference for people who can't get out of bed (or can only get out for short periods). Get well soon!
You girl are something else! A shining example to everyone else! Stay strong cos we all love you too and we wish you all the best from back here in the UK! Have a great Christmas! xx
I know the feeling my specialist always tell me they can’t do much with my chronic bone infection as it progressive disease and infection I been to 30 orthopaedics and 20 infection disease doctors all said the same thing so every time it spreads to a new part or plays up I have to either have IV antibiotics or surgery or both I learned to just go through it even though I had it since I was 7 and now 35 it has spread to bone and some organs I have made my life been married lost it had a child lost it due to my lost marriage and health I have no regrets
I hate those word how sad I was when my pulmonologist told me there is nothing more they can do I have cystic fibrosis
I dont want to talked about it anymore so it does my chemo diebeitts does made me so sick for myself I will throw up on the bathroom by myself
0:15 hi watching this and me knowing you passed you were a hell of a damn woman
I am so impressed how strong you are and how you handle your illness. I really hope you getting better soon. I wish you the best 💜🍀👼🏼🙏🏻
You're my fave 💗 such an inspiration 💗 you have the best attitude and the heart of a lion!!!!!
Congratulations. I saw your instagram post, I pray that you're doing ok. You're an inspiration to so many. Stay strong and Tom is such a great person, so supportive.
Does any doctor recommend you supplementary oxygen for EDS and compression clothes ? In France that's the two main treatments doctors prescribe for hEDS :) It's really interresting to see the differences between countries! Much love!
That's interesting, I have hEDS and supplemental o2 has helped me a lot with neurological issues, despite there being no medical justification for that (that I know of/can objectively "prove"), but I'd never heard of it for eds... That is interesting! Thanks for sharing!
I wish I could speak to you as a friend. I find you amazing and you give me the courage to get on with life. Xx
I am so happy that you're feeling better! We are waiting for some more makeup looks with the ShanexJeffree palette :)
sending you all the positive vibes!
It's sad that Amy passed away some time ago. She was a very strong woman.
You are your own nurse.
You can get silicone laces things that make you not have to tie your laces I think they may be helpful
The body shop peppermint candy cane hand cream was last years christmas limited edition, this year its juicy pear, a vanilla one and a berry one. 🙁🙄
I love your music Amy's God bless you guys alot likes
Your such a brave lady! My sister was diagnosed with Crohn's at the age of 16. She's now 42 yrs old. She's had an ostomy since, shortly after that.
Amy keep doing your best! Enjoy every good moment of life to the fullest! :D
Sending my prayers and I hope you get well soon.
I’m sorry you’re feeling unwell! I hope you’ll be able to kick this in the butt! ❤️from the us
You are so strong! You amaze me of the person you are despite what you go through on a daily basis❤
Amazingly, even with your "spots" you look beautiful.
My name mabatho Love you have video 🤘💜🥰
It looks like u have the tube extensions on which is why it’s always out of your shirt??
I have a Hickman, but it’s a double lumin.
I run my feeds in at 100 ml an hour. I have to run mine all day and night, so I do two large bags.
That’s what body positivity should be💞
you’re so so strong, don’t think you understand how much i look upto you xxx
So glad you are out of hospital 😄. I would love to know the name of the EDS Dr you saw. I have been looking for a Dr here in Perth for years. I was diagnosed by Kevin Murray but he only sees kids now. I have seen so many rheumies over the years but none of them know anything about EDS 😢.
Waikiki Mum her name is Dr Krista Makin Shes really good and I saw her at Charlie’s ❤️
Amy's Life thank you so much Amy. I have heard of her. Wishing you both a very merry Xmas x
Loving the new intro!!
Sending love! I hope you get to feeling better and get homeeee! Being in the hospital is just no fun!
You've fallen for the age-old gimmick of photography studios "You've WON!!". You'll get a basic picture BUT they'll take numerous poses. Then show you awesome pics and then spring on you the price for said pictures. You'll also forever get their ads.
Missed your videos....you have made a very positive impact on the lives of those who are lucky enough to see you! Sending you all the positive thoughts that I have. :-)
Is there a support group for gastroparesis and central lines, chronic illness??
I would like to start a channel and support group for those with chronic illness. Even if it’s mental illness. We need to be here for each other.
I’m sorry you ended up in the hospital, but glad you’re home and doing better.
Here in the US, most rheumatologists don’t deal with EDS. I saw a rheumatologist for psoriatic arthritis and she knows a fair amount about EDS, but she’s not an EDS specialist. Here in the US, geneticists are the ones who mostly deal with EDS. My geneticist has EDS as well, as does her daughter! But yeah, unfortunately you just have to see different specialists depending on what symptoms you’re dealing with. For me, I see GI, cardiologist, rheumatologist, pulmonologist, ophthalmologist, PT, endocrinologist, hematologist, immunologist, etc.
Wonderful video
Stay strong
I was wondering, do you also have mast cell activation syndrome? Do you have antiphospholipid antibody syndrome? I feel so bad for you. I have some of the issues you have, but in different forms. I have possible hyper pots. My blood pressure goes into hypertensive crisis levels when standing and 30 bpm in heart rate change, APS, a bunch of stomach issues that force me to eat one meal a day. I cannot handle three meals a day and even the one meal moves very slowly, but nothing as bad as what you have. I don't know how you remain so positive and upbeat. I am very angry all the time with all this stuff. But I also kind of have what Dr. House had. Blood clots jacked up my right leg and it is in pain 24/7. I lost a lot of strength in the leg and have a horrible time climbing stairs. standing, and walking. I need pain meds to work part time. So I am not as enthusiastic about the world as I once used to be. I have no specialists and doc's do not even understand half of these conditions. I only know about mcas because I am on a forum for Dr. Jill Schofield. She in an expert in autoimmune disorders. I heard you talk about clotting issues on another video and thought about APS, since APS and all of these other things like POTS and autoimmune disorders are interconnected in one way or another. Any how, I hope you are feeling better. It is like a roller coaster day to day.
I’m glad you are feeling better.
Sooo missed you hunni lots of love Tracey and I'm thinking about your dog
I was on steroids before like 6 months prednisone. I swelled up and my feet hurt.
Being on steroids so long I got osteoporosis and that caused me to have fractures in my sacrum and pelvis and my femur bones so the doctor put rods and screws in my femur bones and now I can’t walk I live with chronic back 24/7 and I recently got a pain pump that’s not doing anything for my pain hopefully they will get it where it needs to be soon.
U are inspiration for all of us. Keep Going we all are with u dear...👍👍👍👍👍👍👍
I hope you all the best and I send all my dreams and all my love to you Amy
Hey Amy, can i ask.Why did you guys move to Australia? xx
Sending love and good vibes. You're amazing Amy! Thanks for the needle warning, I'm trying to get over my phobia, but it's not easy. Also, can someone explain what Buscopan is?
Maddie Tillem It helps with abdominal pain and spasms that Amy gets from her gastroparesis.
@@kelsys2512 Thank you!
Don’t know if it’ll do the same to you but that Carmex lip balm totally makes my lips so much worse. Beware! Lol
So sirry you are going through yet another hospital stay! Hugggsssss
There's a lot of shoes you can get with elastic pull tab things so you don't have to struggle with laces. I can't feel the nerves in my fingers and my coordination is messed up so I wear them. They also are not any more expensive than normal shoes because there's enough of a market out there for them. If you somehow can't find them anywhere I got mine from "Stride". They have a few stores around Perth.
I’m thinking of u, sending positive vibes, & hoping-wishing u will get at least a little break from how constant the challenges are for u ATM. We are always here for U!! U constantly thank us, but THANKYOU!! U give me SO much strength & encouragement!! Hang in there, we are all cheering for U!!! (HUGS!🤗)
Why did you and tom move to Australia from england?
That's where her family is.
I love the nurses in hospital but agree the hospital sucks! Hope you get out soon your cronie buddy from Wa st.!
I'm glad to hear you're okay Amy. You had us worried there for a bit. Congrats on finding and EDS specialist. I know it does help to find a doctor who specializes in your disease. I just recently got paired with a movement specialist for my Tourette's and it's the first time in about 10 years that I've had been to one. Glad you're home! Love and prayers💜
You are a amazing young lady I pray for you