another MonSter carrying friend here. i have never had the eye problems but i lost the ability to control my entire right side of my body and have awesome NOT tremors. i am glad to see that there are people with the MonSter that have a sense of humor.
Great video, and very similar experiences/reactions to the news (I thought I had something MUCH worse too, the relief I felt initially when hearing "MS" was unreal!). Hugs xoxo
WOW, you are very very funny, it feels good to see someone brings joy to living with MS..:D I would love to talk with you.. i'm 20 years old, just got diagnosed wih MS two weeks ago, and i do have the same left eye problem!
Your story is very similar to mine. I was dx with hyperthyroid and it went away on its own too! I've been dx with ms now for 9 months. Thanks for making this video, nice to know I'm not alone.
Hi Lanie I have an aunt that has the monster and plus I am in school to become a MA Im have to do a project on MS. I have been listening to a lot of people on youtube with it and I think you are all fucking amazing to go on here and tell your personal life.
I really enjoyed this video. I totally "get" your topic as well as your shining personality. I hope to see more of your vids. Drs in LA sound just terrible. I admire how you are still able to smile & laugh even though the monster lingers close by. That is was I want too. And it is possible as long as we continue to value ourselves. --I too, was glad when I heard my Dx, because I was relived to find that there was a name for it & although it remains a life sentence, it is NOT a death sentence. :)
Thanks for sharing you story. I was diagnosed 6months ago and have been having difficulty walking for over a year. I was told a year ago by my old doctor that it was psychological..... then by my next doctor..... I finally got one that listened! Still have alot of trouble balancing and walking, but it is heaps better. One of the most annoying things is the spasticity, but luckily my bf paints my nails and puts my eye liner on hehe. Good luck babe :)
I don't have MS but my boyfriend does and I don't quite think I got how tired he was until I heard you say it. Hope you make more video's because it's quite insightful :) Thanks!
A wonderful video ! As you were vegan at the time of the ms diagnosis - I just want to say that it could be vitamin b12 deficiency. B12 injections, or even liquid b12 helps !
Lanie amazing video! My name is Sergio Rodriguez and I also have MS. I appreciate you putting it out there the way you have. I have been struggling with finding a way of putting my story "out there” too, in the hopes of connecting with others in similar situations, and also, because I want to help those who are still learning about life post diagnosis. I’ve started using my counterpane.com; it's a modern-day journaling tool that allows individuals to blog using video, text, and pictures in a way where others can easily find your story. Because you’re doing video, you know that video posts have the ability to change the course of one's individual journey and can also inspire others. I’ve found that counterpane.com allows you to blog in a new way that's more user-friendly and emotionally compelling than UA-cam. You can also organize your old posts in a visual way to see how far you’ve come. I’m curious what you think. Let me know if you have a second to check it out.
hahhaha thanks for sharing your story, i hope you're kicking back! +1 austin +1 TEXASSS+1 psychology yayyyy are you still doing your post doctoral fellowship? at UT assuming?? :)
I had optic neuritus for 10 years, with my eye doctor insisting it's just that, not MS. After years of numbness, cognitive stuff, etc, I finally saw a neurologist, and found out I had it for 10 years. It's crazy.
i know ur feelng, they thought i had brain ca, they came back with ms, i was dx aug 2003, im a former emt, 14 years 10 months, 5 of those with ms..keep up the fight against the monster
I had a neuro tell me most of my problems were because I was fat and depressed. Erm. No. I had hypothyroidism and depression as a side effect of Rebif. My mom nearly strangled him! Drs can be such dicks. I have a nationally renowned MS specialist as my Dr now. The MonSter is kicking my ass but I'm strong and I'll make it!
Oh and I just started a small group on facebook for those of us that think a little out side the box. It makes me laugh everyday. Add me to facebook if you are interested. Kassity Ireland
How appalling that the doctor called you fat. It takes the professionalism out of health professional. When I went to a doctor about my symptoms she told me I drink too much alcohol (I had 3 beers per week) and called me a binge drinker! I stopped drinking alcohol and unsurprisingly my symptoms got worse each year regardless.
I do also have MS and I wish all the best for you!! Have Patience,Courage and Optimism!!;))))))))))))))
I too was relieved to not have a tumour. I completely understand. :) well done
much respect to you for telling your story and how you don't let your condition define you. you have a character as beautiful as your eyes...
another MonSter carrying friend here. i have never had the eye problems but i lost the ability to control my entire right side of my body and have awesome NOT tremors. i am glad to see that there are people with the MonSter that have a sense of humor.
Great video, and very similar experiences/reactions to the news (I thought I had something MUCH worse too, the relief I felt initially when hearing "MS" was unreal!). Hugs xoxo
Great video, I love how spontaneous you are. Enjoyed it so much Hugs.
WOW, you are very very funny, it feels good to see someone brings joy to living with MS..:D
I would love to talk with you.. i'm 20 years old, just got diagnosed wih MS two weeks ago, and i do have the same left eye problem!
Your story is very similar to mine. I was dx with hyperthyroid and it went away on its own too! I've been dx with ms now for 9 months. Thanks for making this video, nice to know I'm not alone.
Hi Lanie I have an aunt that has the monster and plus I am in school to become a MA Im have to do a project on MS. I have been listening to a lot of people on youtube with it and I think you are all fucking amazing to go on here and tell your personal life.
I really enjoyed this video. I totally "get" your topic as well as your shining personality. I hope to see more of your vids. Drs in LA sound just terrible. I admire how you are still able to smile & laugh even though the monster lingers close by. That is was I want too. And it is possible as long as we continue to value ourselves. --I too, was glad when I heard my Dx, because I was relived to find that there was a name for it & although it remains a life sentence, it is NOT a death sentence. :)
Thanks for sharing you story. I was diagnosed 6months ago and have been having difficulty walking for over a year. I was told a year ago by my old doctor that it was psychological..... then by my next doctor..... I finally got one that listened! Still have alot of trouble balancing and walking, but it is heaps better. One of the most annoying things is the spasticity, but luckily my bf paints my nails and puts my eye liner on hehe. Good luck babe :)
I don't have MS but my boyfriend does and I don't quite think I got how tired he was until I heard you say it. Hope you make more video's because it's quite insightful :) Thanks!
Fantastic! good for you!
hey I'm a MonSter Survivor too!! whoo hoo!
A wonderful video ! As you were vegan at the time of the ms diagnosis - I just want to say that it could be vitamin b12 deficiency. B12 injections, or even liquid b12 helps !
I appreciate your video. MS'er for almost 12years
Lanie amazing video! My name is Sergio Rodriguez and I also have MS.
I appreciate you putting it out there the way you have. I have been struggling with finding a way of putting my story "out there” too, in the hopes of connecting with others in similar situations, and also, because I want to help those who are still learning about life post diagnosis. I’ve started using my counterpane.com; it's a modern-day journaling tool that allows individuals to blog using video, text, and pictures in a way where others can easily find your story. Because you’re doing video, you know that video posts have the ability to change the course of one's individual journey and can also inspire others. I’ve found that counterpane.com allows you to blog in a new way that's more user-friendly and emotionally compelling than UA-cam. You can also organize your old posts in a visual way to see how far you’ve come. I’m curious what you think. Let me know if you have a second to check it out.
I have MS to and I wish I could punch it in the face repeatedly
I was used to call the MS my silent companion... but i like the expression MonSter ;) that's quite fitting!
Living with RRMS since diagnosed in 2005 after having symptoms for two years before. I hate this MS monster yet here I am dealing with it each day...
hahhaha thanks for sharing your story, i hope you're kicking back! +1 austin +1 TEXASSS+1 psychology yayyyy are you still doing your post doctoral fellowship? at UT assuming?? :)
I had optic neuritus for 10 years, with my eye doctor insisting it's just that, not MS. After years of numbness, cognitive stuff, etc, I finally saw a neurologist, and found out I had it for 10 years. It's crazy.
ive got ms,im 53 and lifes f ,,,
luv th hair its cute and so is the kitty. i have been hangin w/ the MonSter since 2001. what do you do about the fatigue?
i know ur feelng, they thought i had brain ca, they came back with ms, i was dx aug 2003, im a former emt, 14 years 10 months, 5 of those with ms..keep up the fight against the monster
I'm a lumbar puncture away from my MonSter! It has been a very long road for me. But I am very curious about CCSVI.
I had a neuro tell me most of my problems were because I was fat and depressed. Erm. No. I had hypothyroidism and depression as a side effect of Rebif. My mom nearly strangled him! Drs can be such dicks. I have a nationally renowned MS specialist as my Dr now. The MonSter is kicking my ass but I'm strong and I'll make it!
Oh and I just started a small group on facebook for those of us that think a little out side the box. It makes me laugh everyday. Add me to facebook if you are interested. Kassity Ireland
How appalling that the doctor called you fat. It takes the professionalism out of health professional. When I went to a doctor about my symptoms she told me I drink too much alcohol (I had 3 beers per week) and called me a binge drinker! I stopped drinking alcohol and unsurprisingly my symptoms got worse each year regardless.
If you like Rufus Wainright listen to Sharon Van Etten.
I have similar story
lol you're funny..
try calling it mahatma sclerosis.... you should feel better... all the best.