Fighting Brain Cancer Like a Tiger: Family Flips the Script on Glioblastoma | StacheStrong Ep. 1

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  • Опубліковано 9 гру 2018
  • The Gerner’s Story is too powerful to fit into a single video. First, we present Episode 1, where the StacheStrong story begins. GJ Gerner suffers an unexpected seizure that ultimately leads to his brain cancer diagnosis. Most faced with this reality have ten months to live. But, in the words of his father, GJ “fights it like a tiger.”
    This story will take you through the genesis of StacheStrong Foundation, onto Washington, DC for the Biden Cancer Summit, the inaugural StacheStrong 5K, and finally, the New York City Marathon. But this is just the beginning of the movement. www.stachestrong.org/
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КОМЕНТАРІ • 97

  • @blenaris1
    @blenaris1 Рік тому +51

    I was diagnosed with Glioblastoma 2 months ago. I have 7 more chemo and radiation treatments left. My doctor said there were no new growth of cancer and very minimal cancer left. Thanks so much 🙏 for this video. ❤️

    • @katherinejoymanlangit8605
      @katherinejoymanlangit8605 Рік тому +1

      What was your symptoms? If I may ask also if GBM is more commonly located on the left side of the brain?

    • @johnjacobs6062
      @johnjacobs6062 Рік тому +3

      Diagnosed and brain surgery for same Nov 17, finished chemo/rad today. I get looked at again end of Feb. Fingers crossed. Thoughts are with you, I can relate.

    • @lisaschoelles3316
      @lisaschoelles3316 Рік тому +1

      Was your tumor operable? My husband’s is not. Looking for some hope.

    • @blenaris1
      @blenaris1 Рік тому +2

      @@lisaschoelles3316 yes it was. I was having headaches and passed out in the shower. Next thing I know, I was in the hospital and they removed the tumor while I was unconscious.

    • @blenaris1
      @blenaris1 Рік тому +1

      @@katherinejoymanlangit8605 bad headaches, then I passed out in the shower.

  • @gollbach-cardenas5605
    @gollbach-cardenas5605 Рік тому +16

    GBM is a horrific diagnosis. My oldest brother was diagnosed in April 2022, underwent a craniotomy with tumor debulking. He passed on June 28, 2022. Fly high in heaven. ✨🙏✨

    • @joann1234
      @joann1234 Рік тому +3

      My hubby passed 2 weeks ago from GBM😭😭😭😪 I miss him sooo much...

    • @alierem4266
      @alierem4266 Рік тому

      Outside USA, my partner with GBM Gr 4, passed 17 mo, post diagnoses after aphasia as first sign of this. GBM, a most insidious cancer, appears with no apparent sign until too late for most.
      3xdebulking surgeries, radio, chemo. Final 4 mo. --after treatment was halted as no bebefit--, seizures started, limb deficit, lossbif speech, frequent falls, final 4 wks comotosed. Very poor quality of life final 6mths.
      My prayers with you.

  • @artfromtheheart6844
    @artfromtheheart6844 2 роки тому +11

    My brother god bless him .. lived with Glioblastom brain cancer “ the terminator “ for 4.5 yrs.. he died at the age of 48 yrs old. I miss him everyday 💗

  • @MarkJohnLopez
    @MarkJohnLopez Рік тому +7

    My loving aunt passed away last Feb 7, 2023, 18 months after her surgery in July 2021.
    She died peacefully in palliative care. GBM is really an aggressive type of cancer.
    We included a GBM awareness narrative in her funeral mass so people will know fully that early detection can save a life.
    We also pinned a gray ribbon as the cancer color related to the brain. Fly high mommy and I miss you so much :(

    • @blenaris1
      @blenaris1 Рік тому +1

      Praying 🙏.

    • @GoldiBanks
      @GoldiBanks Рік тому

      My mom also had her first surgery in July 2021 and doctors are now saying she might only have a few weeks left

  • @tiffanyvega5629
    @tiffanyvega5629 2 роки тому +16

    My mother was just diagnosed with two plum sized tumors turns out its GBM she's 53 we were told we could have a few months to one year left with her. .. it so scary as family to hear this news this whole family has my prayers and my heart goes out to them dont give up the fight!

    • @takagi4118
      @takagi4118 Рік тому +4

      Me too…My husband had surgery last thu april 13 2023 and dr said he 1yr to live.I have 3 children and am afraid what they gonna feel😢…. Im loosing hope😢please pray for my family..

  • @cornellpolain8853
    @cornellpolain8853 2 роки тому +9

    I rejoice to hear a family with so much love for one another. My mom raised us to share same love. Keep up the good work because only what we do for Christ will last!

  • @curiousgeorge6921
    @curiousgeorge6921 3 роки тому +11

    He's lucky to have a brother like that..

  • @garvingray
    @garvingray Рік тому +4

    George John Gerner III, 30, of New York City, died on Tuesday, September 17th, 2019 at Mount Sinai in NYC with his family by his side after a courageous and inspiring 24+ month battle against Glioblastoma Multiforme (GBM).

  • @SilentPhill
    @SilentPhill 2 роки тому +3

    Crazy. And amazing. Almost how I found out about mine. Had 3 Nathan's hot dogs and a few Bluetooth Moons for dinner. Went to bed and woke up in the hospital. Said that had a massive seizure. Was the size of a marble or but it was the swell around it that caused the seizure. This was was back at the end of 2016. About to start my own Optune treat here soon finally and I can't wait!

  • @moemo1798
    @moemo1798 2 роки тому +3

    God bless your family. My brother has glioblastoma and he has been fighting for 2 years and it just came back.

  • @DouglasMiller911
    @DouglasMiller911 5 років тому +3

    Touching. Thanks for sharing.

  • @iamrodneyy
    @iamrodneyy Рік тому +7

    Oh God, this vid is making me cry crazy. I've been a health fanatic all my adult life. Vegetarian, organic eater and a runner who is out every day doing ,4 to 6 mile runs. Was diagnosed with glioblastoma after having a golf ball sized tumor removed twice now from my brain. I was offered the O cap by my doctors but could not bare putting it on my head. I at first refused to do chemo and radiation until my boyfriend and family pressured me into it. I am not looking forward to the side effects. But I'm so wishing this gentleman great effects from the cap.

    • @BillTu57
      @BillTu57 Рік тому +5

      I’m 69 years old and did radiation and a year of chemo. I passed on the Optune. I run 3-5 miles a day and play softball and do dumbbells. It’s been 19 months and tumors are still gone. I have the unmethylated kind that supposedly chemo doesn’t work on. Stay busy and healthy. Even during chemo. If the tumor isn’t back after chemo you’ll feel better than before diagnosis.

    • @blenaris1
      @blenaris1 Рік тому +2

      @@BillTu57 you gave me hope. Thanks so much 👍 🙏 💓

    • @kamranzaheri3016
      @kamranzaheri3016 2 місяці тому

      Magnets, hydrogen, sound waves, 60 + relevant supplements, mushrooms, keto diet and etc. Let me know if you need more info. Dr. Zaheri

  • @flix4u
    @flix4u 2 роки тому

    Gonna follow. Just finishing first round of SOC after 2 surgeries 4 #GBM4

  • @lindamastropietro4429
    @lindamastropietro4429 7 місяців тому

    What a great brother❤

  • @michaelpatanella
    @michaelpatanella Рік тому +5

    My 42 year old little brother is 3.5 years survivor of Glioblastoma #4. He's had 3 open awake craniotomy surgeries over 3 years. The last one likely a big waste of time. Unfortunately now he's in inpatient hospice. Seizure control unable to stop seizures. He lost all strength, is unable to walk. Hes mostly a 1 word response kind of a guy now too. His doctors were great early on. But the longer he survived, and the more Belle curves he's surpassed, the more clueless the doctors seemed to get. My brothers longevity is actually not a blessing. All the capital health NJ doctors of his know NOTHING except surgery, temozolomide, and radiation. Small closed minds.

    • @lionsivakumar
      @lionsivakumar Рік тому

      Did he able to walk, do his own activities. Sorry for the brother. need to know

    • @alierem4266
      @alierem4266 Рік тому

      Debulking surgery is a blessing and a curse. It extends life but after each resection, more deficit are to be expected, until no more can be removed for almost certainty for post paralyses, seizures, falls, speech deficit --for front lobe affected--.

    • @kamranzaheri3016
      @kamranzaheri3016 2 місяці тому

      How is your brother doing now?

  • @brendahidalgo8728
    @brendahidalgo8728 4 роки тому +7

    My brother has this! Im SO Scard for him!

    • @Lilyhale._
      @Lilyhale._ 9 місяців тому +1

      Is he fine now?

  • @rando9668
    @rando9668 3 роки тому +2

    ❤️❤️

  • @christinalustre3783
    @christinalustre3783 3 роки тому +3

    it's very touching story.my father diagnosed brain cancer two months ago 😭. the sadness we can't afford operation plus pandemic 😥

    • @tiffanyvega5629
      @tiffanyvega5629 2 роки тому

      My prayers are with you may you find some hope and peace I understand my mom is dealing with almost the same thing.

    • @janneal9156
      @janneal9156 2 роки тому

      What works do you live in that lets you die instead of giving you operation that could save your life .....

    • @tiffanyvega5629
      @tiffanyvega5629 2 роки тому +1

      @@janneal9156 my mother had the operation and treatment but now there is. Nothing more they can do

    • @janneal9156
      @janneal9156 2 роки тому

      @@tiffanyvega5629 so sorry 🙏

    • @tiffanyvega5629
      @tiffanyvega5629 2 роки тому

      Thank u for your prayers they are truly appreciated

  • @winkieblink7625
    @winkieblink7625 2 роки тому +1

    How are you doing two years later? Hope you are well and thriving. 🙏💙🙏

  • @robertdirocco1885
    @robertdirocco1885 2 роки тому

    RIP GJ

  • @farmingtoaddictionsrecov-ls7ud

    🌱

  • @ebarbie5016
    @ebarbie5016 3 роки тому +6

    The Optune cap is developed and made in Israel. It's currently the only thing that actually works to prevent reoccurrence.

    • @keirokeiro1976
      @keirokeiro1976 3 роки тому +1

      Gerner died in September 2019

    • @davejohnson6144
      @davejohnson6144 2 роки тому +3

      Unfortunately this cap did absolutely nothing for my good friend who’s tumor continued to grow and spread 😓. Hopefully it works for some people

    • @BillTu57
      @BillTu57 Рік тому +4

      I don’t believe in Optune. They say it works in some but not others. I’m almost at 2 years and mine isn’t back. If I had used Optune I would probably believe it was the reason I’m still here. But my life is normal now. I have hair and play softball and run. I couldn’t see wearing that for 18 hours a day and shaving my head ever other day just lo live 4-6 months longer. Plus without insurance they charge $21,000 a month. For 2 years they make a million dollars from 2 people or their insurance. If they discovered in made people’s hair grow they would probably sell it for $999. The only reason they want $21,000 is because only 13,000 people get glioblastoma a year and they could make money. A car costs $21,000. This thing is wires you glue to your head and a battery pack for $21,000 and it’s not guaranteed to do anything.

  • @rossbilliau1956
    @rossbilliau1956 Рік тому +2

    Read Professor Ben Williams and Jo Tippins story.

  • @boneyardmilitia3070
    @boneyardmilitia3070 5 років тому +20

    I have a friend that started cannabis oil therapy for his Glioblastoma and was clear of his cancer..His dr talked him into chemo and radiation and 2 days after he started it the cancer was back in 2 places..Cannabis oil therapy works..Doctors not so much..