Overcoming Grade 4 Glioblastoma: Ed’s Story
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- Опубліковано 18 чер 2024
- After his aggressive grade 4 glioblastoma continued to grow despite two rounds of surgery, Ed McCumber traveled from Myrtle Beach, South Carolina, to Houston Methodist to participate in an innovative clinical trial that combines surgery with gene therapy. More than a year later, Ed is tumor-free. Watch his story.
My dad was diagnosed with Glioblastoma in May of 2015. Dr's told us prognosis is about 9-14 months. My dad is still living today, over 8 years later. He was in a clinical trial at Emory University where he was given 25% more radiation. He has been on Temozolomide, and has had 2 resection surgeries. The tumor is in his speech part of his brain so they were not able to remove the entire tumor. He wore opptune for 2 years without recurrence but then showed some recurrence. That's when he had his second resection. Sadly, this week he has been struggling and I think the end may be coming soon. But I share this because I don't want anyone to feel hopeless like we did at first. We have had 8 GOOD years with our dad when we thought we may have lost him the same year he was diagnosed. sending you all my love and prayers for your family member.
I too was diagnosed with Glioblastoma, Stage 4 in Aug 2009. My treatments were at Emory University also. I have many problems (speech and neuropathy) but I am just blessed to be able to function at all. I am happy to hear your dad is a survivor and let’s pray for everyone to survive with this awful cancer.
@@melodiestuart9509 how are you now are you cancer free now
My mother just got diagnosed 17 Nov and had surgery the day before Thanksgiving. This gives my so much hope.. thank you
Thank you for sharing your story it brings so much hope❤
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My dad was diagnosed with gbm in May of this year.. He finished treatment but is declining. Please pray for my family during this hard time.
🙏🏻🙏🏻🙏🏻
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Sorry your going though it. There’s no denying this will dark days ahead. I would say from my experience prioritize all your time to be with that one person.
@@michellemichelle5202 Yes! I was looking for possible healing methods. I'll check it out
@@GlossaME great, I hope it works for you. Probably wouldn’t hurt to incorporate cbd oil and panacur. Check out Kerri Parkers channel on here as well.
My mother was diagnosed with GBM in Sept 2017. Had surgery a week after she was diagnosed. Completed all radiation and chemotherapy cycle. Had recurrence and grew back on the 13th May 2020. And today currently (3rd June 2020) my mother is in the OT going through surgery. Please pray for my mother 🙏🏻🙏🏻
Praying for you Mum. God bless her and your family.
I pray for your mum 🙏🏻 Let us know how the surgery went. My father will have first surgery this week, I found one flight to go back to my country and Im on my way to be with him. This will maybe sound weird, I must be desperate, but to me 3 years before recurrgence sounds not that bad. Can you please tell me about your mum habits, diet, so I get more info on how to help my dad..
@@bambina011 I'm sorry to hear that.. it is indeed truly a very difficult time for both of us. Stay strong. Thank God my mother's surgery went well. My mother changed her diet completely after her first surgery in 2017. My mother eats 7 different types of vegetables every single meal with brown rice,steamed fish and fruits. For fish itself she usually get white fish. Less stress as she stopped working after her first surgery in 2017. And lastly never stop praying 🙏🏻 and because God is so good that my mother is still with us at this moment battling with the devastating disease. If one thing I want from everyone reading this, please pray for my mother. Thank you🙏🏻
@@daviddowey8790 thank you.. please keep my mother in your prayer 🙏🏻
@Wayne Hollen Thank you, stay strong, will keep you in my prayer 🙏🏻
Update: Sadly my dad passed away from this horrible disease on March 16th. I miss him with all my heart, he was such a beautiful kind man who would do anything for anyone. I hope one day that there will be more success stories such as this one. RIP dad, I love you now and forever, to Jupiter and beyond x
Rebecca Midson 😔
pls pray for my father
@@jessiepinkman2345 I will xx I hope everything will be ok for him and your family ❤
Rebecca Midson rebecca , my dad is now feeling ok and he is shifted from icu to room. his infection is vanishing slowly.
@@jessiepinkman2345 That's great that his infection is vanishing, that can be the hardest part, if they keep getting infections it can slow down their chemo and radiation treatment.
My mom had her surgery Oct. 31,2021.
Last Nov. 15, on our scheduled appointment,
the doctor broke the news that my mom's biopsy result is glioblastoma. My parents were not aware of it, the doctor elaborated it to my sister. Coz for sure my mom will be depressed and my dad will be sad and will definitely burst in tears.
The doctor told us that she's going to have her mri on dec. And probably be scheduled for radiation and chemo. Please pray for my Mama, please pray for us. Im scared we're all scared.
@kim sihyung currently my mom is undergoing radiation and taking chemo capsules. She still has this child like behavior, and doesn't want to swallow her meds. It usually takes us 1-2hours to make her drink/swallow her meds. But compared to her previous state, she is doing a lot better now. And she still can't remember some people.
How about your mom? How is she?
I’m sorry to hear. Wishing your mom the best. My mom is 67 and got diagnosed 3 weeks ago. Surgery done and waiting for treatment to begin. I’m very devastated but not loosing hope! She can’t speak well and doesn’t remember some people.
My dad diagnosed brain cancer grade 4 (globalstoma) 2019-oct then he was surgery. now he must have to therapy with chemotherapy and radiation
Please pray for my dad
Hope he will overcome my fren
Pray for his speedy recovery
God is with u dear we all suffering from gbm
What is current condition your father please reply?
How is he?
praying wont help lmao
Praying for your father
3 years ago In 2019 I was diagnosed with A stage 4 Glioblastoma in the thalamus to this day I am still living, God is great and has been with me this whole time
Wish u a healthy long life. Really happy to read ur positive story. Motivating
How are you doing?
@@davidcow4889 doing well, had a round 2 of radiation and started a new chemo drug called elecrinib( adults with lung cancer take) just been living 🤝🏻
@@briceworley9138 let’s goooooo! Jesus is king he will heal you for good. Never lose faith can’t believe you’ve had it for three years stage 4 and your standing up still strong. Nothing more than Gods grace and your faith❤️. I’ll keep praying for you Brice you got this
@@davidcow4889 thank you man! Appreciate you brother 🤝🏻! Yes never lose faith!
My husband of 50 years was diagnosed with a very large glioblastoma and lived one year, sixty three days. I miss him so much. My prayers go out to all who have it and their families.
My husband was only diagnosed in June and given six to twelve weeks but only lived for three.
@@sarahhardcastle2433 I am so sorry for you both. So heartbreaking!
So sorry 😓
Mein Mann ist nach 9 Monaten schweren Leiden an dieser Krankheit gestorben. 18 chemo und 30 Bestrahlungen haben ihm den Rest gegeben. Organversagen. Er war erst 60 Jahre. Glioblastom ist nicht heilbar.
I’m 60 and Ive been living with an aggressive stage 4 GBM diagnose since I suffered a siezure event in July 21…I write this in Apr 22. My deepest sympathies for your loss. It is a rather strange journey but in my case I have not been suffering pain so I just sort of wallow along and enjoy life as much as I can. My wife and I have 3 young daughters. We know the statistics but we just focus on what we can control and enjoy until we can’t anymore. As with your generousity my positive thoughts and best wishes are with you.
Happy you survived. My dads first High Grade Glioma was removed 9/11/01. 7 years later he had his second brain surgery. Other 12 years later, we found out yesterday that it’s back. It’s huge, it’s growing fast and it’s pissed off. I hope and pray he can beat this for a 3 time. I’m not ready, I still need my dad in my life.
you are so lucky that you had your dad with you for 10 plus years... my dad is bedridden fighting for life..
My prayers with you. Amen
@@fabulosity7732 thank you!
@@gunner2gunner god Is good! Never lose faith
@@denismoscol-silva6067 I’m faith has always been strong, but unfortunately my dad passed away in October 2020. I miss him, he was my best friend, a huge part of me died when he died.
My mom is a fighter and we just found out. We are just waiting for the treatment to start. Pray for her and my family
Same here. Praying for your mom and your family ❤️
OH MY GOD MARCELLE ! My mom is in the hospital right now at 2:44 Am as I type this, and she gets a biopsy tomorrow! I’m so scared! I pray for you mom!
Try search for keto diet
We're all on the same boat 😭, we just found out last month my mom has grade 4 and she can't do Operation due to the location of tumours, we all pray for each other.
My mom has had her diagnosis back in march, she hes 1 year and a half left
Amazing! My daughter was diagnosed 10 years ago and she had one recurrence. However she had multiple surgeries because they thought it had come back but it was actually just aradioactive rate changes to her brain tissue! She’s falls into that 5 percent 🥳🤗🙏
My wife is getting Breast cancer 3 years before and she passed all the treatments and Free of cancer. Just 5 days before the MRI shows a tumor in her brain 3cm . Now she is in pain and we are waiting for the doctor comites to do something please pray for her
Hi everyone. I just want to let you know that you should never lose hope. My dad has had brain cancer for 20+ years. Hes had operations and its come back a coupple of times, but just recently, his treatment is working and hopefully it will stay like this!
Its not been GBM for 20 years, but its slowly developed into GBM as its progressed.
update:
It has come back once more and it seems like they are stopping treatment for now. We are waiting for a 2nd oppinion.
Latest update:
My dad passed away in april this year… i will miss every day of my life.
How old is your dad? Is he OK? I hope he do!!! 🙏🙏🙏
That’s so awesome. I wish it would have been that way for my Dad. We miss him so much.
Hi Steff, my sister got diagnosed with GBM in 2015. She got surgery/radiation and was clear for 5 years until it came back in august 2020. Once again she got surgery/radiation and was doing fine for the past few months but we just found out last night that it has come back again. Would you please be able to share with treatment is working with your dad? Thank you so much
Amazing man. Sending positive vibes you and your fathers way!!
How is he doing now?
@@yukacalifornia2753 how old your sister?
My mom died of stage 4 glioblastoma. I miss her so so much. I regret not spending more time with her bc i was only 10 when she died
Im so sry i lost my mom too like that😢😢😢😢
My father diagnosed GBM couple of weeks back , who doesn't had any co-morbidities earlier. Surgergical resection was done and now waiting for further treatment
Please keep him in your prayers
Same story with my dad also
Who needs hospitals. Just pray instead.
My 24yrs old boyfriend has stage 4 brain cancer and they removed 99% of the tumor. He is starting radiation next week and possibly chemo. Pray for him please 🙏❤❤
Do not worry my friend
God is above all things impossible with man. Only believe in God alone
I truly hope with all the hope in the world that your boyfriend pulls through and that you both have many more happy years ahead of you ❤️ xx
M K Please turn to Jesus He loves you very much, i was ill for many years but the doctors couldn't really help me, i don't blame them, there was only so much that they could of done for me, Then Jesus gave me a miracle and healed me, He is the God of miracles, There is Hope in Jesus, God has done amazing things in my life and in the life's of people i know, He can do the same for you and yours, When you need Him call on Him, He is the God of comfort and will there for you when you call on Him, The bible tells us in Romans 10:13 For whosoever shall call upon the name of the Lord shall be saved, God saved someone i love from an illness leading to death, There is nothing impossible to God, It's as simple as asking Jesus into your heart and life to be your personal Lord and Saviour, confess your sins to Jesus, and Jesus will for give you, If you truly seek Him, Jesus will answer you, i know this because He answered me when i called out to Him,
🙏
Is your boyfriend ok?
The day was July 19, 2022. My 52 year old son was diagnosed with GBM wild type after a seizure and heart attack at work. He had the usual surgery, radiation, and chemo treatments. They did not help much. The tumor grew back quickly. On May 1, 2023 he started a clinical trial at Riverside Methodist Hospital in Columbus Ohio. He is now taking a DNA specific pill in the morning and evening for treatment. On May 31, 2023 (30 days later) he will have an MRI to see if the clinical trial treatment is helping. He is back to work and mostly normal. Hope for the best.
Is it ok
How is your son doing ma’am?
At present he is fine but we are scared always
@@michaozga7825 Stopped the clinical trial do to side effects of drug. :(
May i ask what the side effects were? I'm on a trial for Optune currently
My dad had glioblastoma and just passed away on may 30th ❤️ praying for anyone who has to go through this.
How long was it between finding it and passing
Who needs hospitals. Just pray instead.
This is incredible. Thank God we’re starting to see some effective, novel treatments emerging for this devastating disease. I just hope that the people who need it can afford it
Yes, but the govts of many nations are too avaricious to allow it to be readily medically available.
@@effectiveinterwebs4676
If you’re diabetic ll in the US...you’re fucked financially.
An imaginary God has nothing to do with this research.
@@hondaguy59 Testify brother! If I want to thank anyone I thank Mr Neal Berua of Southmead Hospital Bristol
My dad was diagnosed with this in 2020. Got him to the ER on February 27 & he past away on March 27... only got 1 week with him before his surgery, bc after the surgery he had brain bleedings & became unresponsive.. I miss him everyday & would do anything to get him back❤
Praying for everyone who has lost a close person!, fighting for a person life! or himself going through therapies! YOU ARE ALL STRONG PEOPLE!
Don't lose hope & especially don't Lose HOPE! spend time with those who around you! LOVE IS WHAT MATTERS!
I just discovered St Peregrine Laziosi. Look into this if you have faith.
Who needs hospitals. Just pray instead.
RIP Neil Peart of the Rock Band RUSH who passed away on 1/7/2020 after a 4 year battle with Glioblastoma.... *sigh*
Wish he would have had the same outcome 😥
This sounds very positive. Just looked at another video from these same doctors. Obviously we don't know what Neil's situation was. I am sure he was able to retain care from the very best in the field. Hopefully, they're getting a handle of some of these nasty tumors. Spain has been doing the studies with Cannabis regarding Glioblastoma. I am hopeful were on the dawn of finally getting the upper hand in disabling this terrible cancer . RIP Neil!!!!
I’d be happy to last 4 years. Diagnosed June 2019, went through 6 weeks concurrent radio/chemo following craniotomy of a 2cm glioblastoma on right parietal/occipital lobe. Now on 5 day Temozolamide course each month. Cycle 6 in March and MRI later on that month. More apprehensive of this 3rd MRI than the previous ones. Heard something about Mebendazole or Fenben being of some benefit.
@@namor357 so you did chemo first fir 6 weeks before surgery
curious george
No, I underwent the resection first to remove the tumour and this was followed a short while later by chemo/radiotherapy daily for six weeks with an adjunct 5 day chemo course a month later. After that I had five day chemo course each month for six cycles. MRI at 3 and six months, both of which were good. Was going to start cycles 7-12 commencing April, but with the WuFlu the risks are greater than the benefits due to compromised immune system. In other words, if I get WuFlu, I’d die from complications. I’m looking into cannabis treatment at the moment using 3:1 FECO.
Incredible story, and Ed or his fam that is great you posted this, helping give hope to me and others
What a wonderful story! Best wishes for continued good health!
Amazing! What a great therapy. Kudos to Dr Baskin and the team that created this new treatment.
14 years ago, today my mom died from stage 4 glioblastoma. Back then, in 2007, there was no long-term hope, she was given up to a year to live. We had 53 days from diagnosis to death to get a grip on what was going on. Mom chose not to do any treatment, she wanted to go home, hug her grandbabies and say goodbye her way. She did just that. Mom worked for a center for the aging in our home town and had met so many people through her job and we were pleasantly surprised to see even the Sherrif standing out on a busy street directing traffic for her funeral. I can only say that I hope this treatment continues to get better and help others overcome or have a better quality of life during the time they have left.
Same happened with my mom in 2018….i hope they will find cure for this terrible disease.
Oh DR BASKIN I LIFT MY HAT TO U AND THE STAFF FOR UR KNOWLEDGE AND TRYING THE NEW METHODS TO HELP PATIENTS GOD BLESS U AND UR FAMILY AND ALL UR TEEM
5 months ago when my father was diagonesed with GBM I was watching this to get an idea of this disease. He went through a successful operation followed by radio and chemotherapy. 5 months later here I am watching this again but my father is here no more. He died on 21st April, 2022. Never thought it would be this early🙂
So sorry to hear this, my father is going through the same thing! Praying for the best.
I'm so sorry for your loss. My husband passed away from this monster in 2001. Diagnosis to death--3 months 😥😥
Drs had some new treatments, fancy radiation. Just made him worse. I'm sick that these stories are still being told and patients and families suffering ❤🙏
Yesterday was the 9th anniversary of my husband’s death from the beast. I’m praying this therapy helps everyone diagnosed with GBM very soon!
Who needs hospitals. Just pray instead.
My 15 year old sister died of GBM... wish we would've known this treatment and it could've saved her life 😪
I wish too. However, I doubt this saved him. This is clearly advertisement. My husband also went through some "experimental" treatments. No help at all.
The cost od treatment would kill the rest of family if you don’t have insurance
Lost my late husband to this , thank God, there now seems to be some hope , thanks to your amazing work.
Wow... this treatment is amazing
My mother just has surgery for glioblastoma. Today is 3/7/2020. I am devastated. This video gives me hope.
Can I get an update?
Hope ur mom is well and pray for her speedy recovery
Please answer to me, how is she now?
She passed away.
@@ivanab787 she passed away. The tumor came back in a different part of her brain and it was inoperable. 7 months from diagnosis to the end of her life.
My dad diagnosed brain cancer grade 4 (globalstoma) yesterday but cannot for surgery but biopsy and now he must have to therapy with chemotherapy and radiation
Please pray for my dad
praying ❤️
Will be praying for him.
My dad is going through the same thing right now. They could not do surgery. He was perfectly fine a month ago and today he needs a walker.
Susan Conway I’m so sorry 💔🙏
Thank you for your pray 🙏 my dad still fighting till now
My twin brother just died last Sunday. He made it 5 years and 3 months. He was 56. He fought so hard but in the end cancer
Won. When he took his last breath I was holding him. I felt a strange tingle go through my hands up my arms and moved into my chest.
I don’t know if it was his spirit. I just know there was something that passed from him to me. I’m still trying to move through this sureal
Few days and I have my moments. I was with him when he was born and therefor him when he died but will not ever get over the suffering of his last day of life.
❤️❤️❤️
Spirit?
This a such great news. I love that doctor also mentioned boosting the immune system as a factor to help others. I’m learning a lot about whole plant foods as medicine working with new cancer therapies and this bring such hope and such to many people. Our general food system need to change to help eradicate these tumors and diseases. We must return to the land and grow our own clean food. The curse of convenience has gotten us into this problem of increase cancer rates due to our eating habits. Let’s all stay strong and work together in this great age of sharing knowledge.
My mom was diagnosed in 2013 had surgery did chemotherapy and radiation, she is still alive today and is going through chemotherapy again because she got a new tumor. It’s heart breaking to see the amount of people that are going through this horrible cancer 😔 I hope everyone can get through it
I hope your mom is with good health and better condition
Could you please share with me what grade cancer diagnosed to your mom?
My wife also diagnosed with gbm grade 4 so I need to know Howlong she can servive with this
Plz reply me
@@TahirKhan-fc5vo thank you. She was diagnosed with stage 4 She’s not doing so well right now and is no longer on chemo bc as the doctor said “we work to live, we don’t work to work” so it was time to let her body rest from the treatments and basically just wait and see what happens but she still hanging in there. Have faith I know it’s not easy believe me but it helps to have faith I’m so sorry your wife is going through this horrible situation i hope she gets better and is able to get through this
@@samantha3493 Thankyou dear for giving reply i pray to god for yiur mother to get in better heatlh.....
@@samantha3493 how is your mom ?
@Samantha how is your mother
My father passed away due to GBM. My only wish is we would have let him have his last days spend at home with family, instead of flying him from one city to another to see doctors who will all say the same thing.
Brilliant science! I'm fascinated by this treatment method.
God bless all who are fighting through this.
Who needs hospitals. Just pray instead.
Procedure sounds awesome.
I lost my dad last year on October 13, 2022. Even though we did surgery we couldn’t continue further treatments due to his health condition and diabetes played major role. I am still in guilt if I could have done something like this shown in the video but we don’t have such facilities in India nor they will accept the foreign patients here. I miss him everyday and I am crying inside. This pain of missing him cannot be explained in words, I love him so much and I want to see him again. I still couldn’t believe everything happened so fast. He was all healthy before we diagnosed it in June,2022. God please give him back. He wished to live little longer and see my baby but I couldn’t fulfill his last wish. And also his death was so painful, no one should go through such pain. As I am writing this I am still crying.
My mom has stage glioblastoma stage 4 as of 5/2023. We chose no treatment's because she had lung cancer in 2019; we went through chemo which wiped out the cancer and her good brain cells. It was horrible and she said she would never have chemo treatment again. Now this aggressive brain tumor is here. They did surgery but it won't change anything. She is on seizure meds and a few others. I'm wondering how long it will be for her. It's horrible. I'm so sorry about your dad..
@@dionnerice177prayers for your mom
My mother has been diagnosed with stage 3 diffused glioma... Bro I m from India ...can you plz help to find out where I can get best treatment?? Plz rply
@@tapashadhikari9197 Where do u reside?
"I will not die but live and declare the works of the Lord"
Yea it would of been nice of others would have known. My son lived 26 months after his diagnosis. I would of loved to save him or given him another chance
How old was your son
Amazing ! Really amazing what doctors can do nowadays ! Shout out to Houston Methodist Hospital 💪🏻💪🏻💪🏻💪🏻💪🏻
Thank you. We appreciate this kind shout out for our team!
My uncle survived a grade 4 glioblastoma. Back in 1997 they gave him 6 months and he’s still living in 2023
That is blessing! We would love to know his diet, please!
Does he avoid all sugary intake and no beef, no pork ?
Please share your treatment and food habits . I also want to survive my son
Hi, could you pls share the food diet and medicines of your uncle so that I can also do it for my mom. Thank you
Yes. Diet and treatment info pls
Incredible!
So happy about this!
Thats incredible! My dad got diagnosed with stage 4 glioblastoma and got surgery in September this year. So far he's going ok after radiation therapy and chemo, we will find out more in February next year when he has his MRI. It's so frightening. It is such a monster of a disease, I feel so terrible for my dad, I would do anything to take it away from him.
My prayers for your paps! he's a fighter i bet he is! sending love to you, your dad and your family!!!
@@BrightFallsTV Thank you so much! He really is a fighter, my dad and family is amazing. We keep each other strong ☺
@@Musicjunkie8 A friend was just diagnosed with Stage 4 Glioblastoma, is your dad having this same treatment with Dr. David Baskin? I'm so sad about my friend, she is a great person.
@@kornflakes3 I'm so sorry to hear that Enrique :( My dad had his surgery done by Dr. Cook at Royal Northshore Hospital in Sydney and now he's under the care of a cancer team which is lead by Dr. Michael Back. It's such a horrible disease. My dad isn't the same as he used to be and it breaks my heart. Be there as much as you can for your friend, she will really appreciate it xx
Rebecca Midson howz your dad doing ??
I was diagnosed with GBM in November 2017 had my tumor removed November 20, 2017 went through the standard of care and M still here 5 years later. This disease is devastating and I’m still recovering from its damage.
Thank you for sharing your story. We wish you health in your continued journey.
Hoping you’re still with us!
Are you still there?
My father is diagnosed with gbm 4 we just had the surgery done now we're looking forward for chemotherapy and radiation therapy .Your prayers are needed🙏
🙏 praying for you ❤️
My mother is going through the same thing. This was back in April. I hope your father is doing well. Prayers for your family.
My dad also
Prayers
@Crystal : Howz your father now..?? My dad also got same tumor a week ago :(
My prayers are with you and your father. Amen
My uncle was diagnosed yesterday and praying for a miracle. 46 years old and first time grandpa. They didn’t give him much hope. God bless
Who needs hospitals. Just pray instead.
Never would I be able to make it in that business but the medical world is crazy. It’s amazing what these doctors can do
my cousin died because of that in feb 24th 2020, i miss her a lot, i remember that at the beginning my aunt she thought that she was depressed, she went to the psychologist, and then she started to convulse and the vomits and all that, i really miss her a lot 😞 she will always be in my heart ❤️
Blue Tongue very sorry for your loss
So sorry for your loss....my Mum died on the same day as your cousin from GBM too. May they R.I.P.
Had I known about this treatment when my poor mom was diagnosed in 2014, maybe she would be here with us. She lead a healthy life until GBM struck her. God bless the research that Dr. Baskin is leading!
Yup that’s what I’m thinking …. My dad just passed away on may 30th from this ….
My mom was a very healthy person until GBM as well. Diagnosis on 6/5/2017- she passed on 9/17/2017. I miss her everyday. I always think of what else I could have done. I hope they find more treatments for this terrible disease.
This took my dad too soon. I wish we had a miracle
Amen! My grandmother died of this at 64 in 1964. They operated but she never woke up,
Thank you for sharing this. Commenters too! I was diagnosed 9 months ago. I feel the odds are against me, already planned my funeral. But this gives me hope! 💙🖖
Prayers for you!
How are you?
@@davidcow4889 I'm still standing (yeah, yeah, yeah!) 😊 thanks for asking!
@@robotrabbit5712 GOODJOB keep being strong i don’t know if you are Christian or not but I’ll be praying that the lord heals you❤️ I love you and so does he so never give up faith, you’ll make it🤞🤞
Things have changed so much since 1996--please be hopeful--this video is amazing news.
I wish this had been available for my husband. He was told 9 months, but he was lucky and we got 19 months. He even fixed Thanksgiving dinner 8 days before he passed. God bless. This Dr and hospital.
Who needs hospitals. Just pray instead.
@@sandgrownun66 we did pray, he was on many prayer lists. I attribute his journey with this terrible cancer to be so long because of prayer. Hospitals are necessary at times, like when he became severely dehydrated. Or most importantly at the outset of the journey when he had part of the tumor removed.
@@sandgrownun66 I’m hoping this is sarcasm, otherwise it’s pretty cynical.
@@kogle54 Nope, not cynical, just deadly serious. Just the truth based on logic, reason, and facts. Should it be any other way. if you know a better way to live, It'd be great to hear it. Before an effective vaccine was developed, millions of children developed Polio. Many died, and some spent the rest of their lives severely disabled, or in an iron lung, because they could no longer breathe on their own. Even President of the US, FDR, got Polio when he was thirty-nine. This lead to the formation of the "March of Dimes" in 1938, to find a cure. Before the vaccine, prayer was all people had, And there must have been plenty of prayers for miracles by people, who loved ones were affected. Almost one in three adults infected, died slowly through suffocation, as their respiratory muscles stopped functioning. If your god could heal through prayer, then why did any of those people die, even the ones who were true believers? Thankfully, this is all now history, since the development of the vaccine we take for granted. A treatment developed through the hard work of scientists and doctors.
Remarkable. I'm speechless.
❤ You guys are angels!
GBM is not as uncommon as people (meda) says it is. We need more research and treatments for this horrendous disease.
Happy for you but so sad it’s not universal yet. My forever 15 year old might still be with us 💓
I am so very sorry for your loss. This disease breaks the person and the people around them
My mother in law just passed early this morning form this. It is a horrible thing to see someone going through. Pray for all those who currently are experiencing this debilitating condition.
Who needs hospitals. Just pray instead.
Prayers going up brings blessings down.
My beautiful dad has this :( was diagnosed 5 months ago.
praying for him ❤️
Sophia Villegas he died 5 days ago
J J I’m so sorry 💔 may he Rest In Peace
I'm so sorry 💔
🙏🏽
MY BROTHER WAS ONE OF THE 5%ers
So good to hear uncle,Love from 🇮🇳 ,
Rockbottom to the cancer💪
My father was diagnosed and done surgery of glioblastoma stage 4 last June 15, 2023 and died in November 25, 2023 due to reccurence and he never had chemotherapy and radiation due to his conditions and negligence of doctor’s prescriptions. It was just 5 months and 11 days from his resection. I missed him everyday 😞💔
that’s incredible!! xx
I just found out my dad has this… Please pray for him he is the kindest person I know and he doesn’t deserve this. The tumor was removed 2 weeks ago and the biopsy said it’s stage 4 cancer. I want him to live a long and happy life, to see me grow old and to see his grandchildren have their own family… I am crying as I type this message.
We pray for each other. My 10 year son are in Children’s Hospital now. He’s now in prep for radiantion therapy next week. Just wanted to let you know. This life my sound like it’s the end, but I have witnessed there’s the other side after we died. I have this experience when I was 5 years old. I have experience several miracles which science can Not Explain. This is not the questions WHY this evil monstrous is happening. Because when we live a happy and normal life, we never ask why. These will happened to everyone and each one of us. And we do not get to choose. The only thing we can do is to cry our heart out and wait for time to heal from this suffering. And pray for miracles to come. Life is full of good and bad surprises. And death is just a word, not the end. And when there’s the end there’s always the new beginning. From another place besides or above us.
@@tomill1085 Thank you and praying for you too.
Sending prayers and hugs.
Dang i also have the same exact situation and this made me cry too
How is your dad now
Amazing Doctors
What an interesting approach to a glioblastoma!
My partner of 18 years ended up having a seizure June 11th 2021, MRI's induced coma's we found out late June it looked like a grade 2 cancer, after the biopsy and first surgery they told us the bad news, it was more aggressive than they thought and was grade 4 Glioblastoma. He ended up having 2 back-to-back surgeries surgery July 7th and July 9th. They had to do the second emergency surgery because of the swelling and seizures that were happening within the critical 48 hour period after the first surgery. He's done 30 rounds of radiation and was on chemo pills at the same time. Starting late October will be on 4 times the strength of chemo pills once a week every month for 6 months. This disease destroys lives. As his caregiver I'm full of anger and sadness, I'm happy he's still here but it's still a hopeless feeling knowing where the road's leading too. I try so hard to enjoy every day, At 39 and 41 years old you don't picture this happening, any age I guess. I feel awful for these parents and their son, who is so young!
It sounds like you're doing an extraordinary job in terms of of providing him with care. I hope that you are also getting the support you need to help you through such a difficult time.
@@Alex-mx6mu no 😞 this disease is a monster. He passed away April 6th 2022, He only lived 10 months🥺 i kept him home until the last 12 days called 911 and he was admitted into the hospital. Life is not the same, i have constant flashbacks of all the seizures and decline that happened in our new house, I have a lot of anger towards the universe. I don’t know if this will get any easier.
@@shawnpayer5594 Shawn my first husband died on July 5, 1997. Diagnosis came only 10 days after our wedding day. We got 15 months. Life will never be the same but remind yourself of the dedication and love you provided during those 10 months. It takes time...be kind to yourself.
My DAD is no more with us.He was diagnosed with GBM grade 4.Although I myself am a biotechnologist but it’s so sad That I couldn’t do anything to make GBM gone. I really really miss him it’s like I lost my soul and the body is here only. He was diagnosed in 2017 and in 2018 he was gone.
How many times did he gone for surgery ?
Can you please describe
Great watch
God bless you guys!
My Dad was diagnosed with Glioblatoma 3 days ago, surgery is scheduled for Wednesday. We are all so scared.
same ♡ :( prayers to them
My dad just had his tumor removed yesterday. Doc said it looks like glioma but results havnt come back yet. I am so worried and I'm so sorry for what you're going through. Please update.
How did the surgery go? How does the recovery looks like so far? My father is having a sugery this week. Im freeking out, I dont know what to expect...
My second cousin has been diagnosed with this as well. Wish you and your family all the best
@@erfahnh7127 Dad passed 5 months after diagnosis.
How is Ed? Is he still alive? 🙏🏻
My head pulsates really painfully.
i hope i or any of my loved one has deal with this horrid disease reading through the comments i wish strength for everyone what horrible cancer i hope treatment for it can improve
Such an inspiration!
How about those who don't live in your country
This is awesome wish my dad could of done this he passed 8 months after diagnosed on DEC23/2018. Congrats
Jeffery, I am sorry for your loss
I am sorry for your loss. My mother passed away 10 weeks after diagnosis
RIP! 8(
@@adithyahk she did chemo during this 10 weeks ?
curious george my dad just got diagnosed and I’m scared
thank youuuu!!!!!
im going through this right now please let me know you’re still here 🥰🥰🥰🥰
I hope Ed is doing okay - prayers for you.
He passed away unfortunately.
@@Theultrazombiekiller I am sorry to hear that :-( Hugs and love to you
@@Theultrazombiekiller how you know??
@@Theultrazombiekiller He is alive
@@stefanospecia7511 IS Ed alive ? I have been searching that question . My wife with GBM has a opportunity for this treatment . So much would like to know more of his story ?
my best friend died of stage 4 glioblastoma when we were freshly 18. i miss her dearly and wish there was more research. i wish there was a cure.
Total Miracle
Totally amazing GOD gave the Drs and team a wealth of info to design this specialized treatment.
I pray for all your parents suffering from this disease
My mom passed away from glioblastoma in 2013. She lived approximately 18 months after diagnosis. She was 68. I’m very excited to see new treatments that are responding so successfully.
What’s state your mom’s gbm
Who needs hospitals. Just pray instead.
Wow. Awesome trials
God bless this doctor….
Who needs hospitals. Just pray instead.
My beautiful Mum age 58 had been diagnosed with Glioblastoma today. I am so very heart broken. Love to everyone going through this with their family and loved ones ❤️
My mom has just been diagnosed too, about three weeks ago. I’m really sorry this is happening to your family. I don’t know how to process this, I’m also heartbroken, I thought I would have many years ahead with my Mom. Hope you are hanging in there and wishing your family the best.
I’m sorry to hear. Wishing both of your moms the best. My mom is 67 and got diagnosed 3 weeks ago. Surgery done and waiting for treatment to begin. I’m very deviated but not loosing hope!
@@agfhdl239
What where all the symptoms please 🥺
My cousin has also been diagnosed last week
My mom was diagnosed with stage 4 gleoblastoma in mid March 2020, we took her to Methodist and they did all they could, but hers was located right in the middle of her brain, not on the edge, so it was non operable (the scans in the video make it seem like it was near the edge so I'm assuming that's why they could operate and have a successful outcome). We tried radiation, chemo wasn't an option. During radiation, it went from looking like an egg to looking like a grapefruit with lots of legs. It was crazy to see something grow so aggressively while being attacked with radiation 5 days a week for 6 weeks. She passed away 11/10/2020.
My mother’s also doubled if not tripled in size during radiation. The debulked her tumor but could not remove all of it. You know she had a good 6 weeks on steroids and felt good and we had a pretty good time. She had a great sense of humor about it, which disturbed some people lol. Diagnosed 6/5/17 passed 9/17/17 she was 63 and beautiful.
i had my tumor removed last 23 of February. now the fun starts.
both my sisters 17 and 30yrs old passed away due to glioblastoma grade 4..and now my nephew 13 diagnosed with same tumour grade 4 last year..
My 12 year old son Luke died in 2018 from this monster when will this technology be offered to children ??! So unfair
I’m sorry for your loss
I am very sorry for your loss .
My grand nephew is not even 2 and has spent more time at the hospital in Atlanta more than he has been home.
His is inoperable because of where it is attached....at his brain stem🙏
My daughter had tumor, resected 18 months ago, glio 4, received proton laser beam, chemo, she is stable today 5,11,2021, she is being treated at baylor, has been to anderson, utc, sloan and none of them have mentioned these test and treatments to her, they all provided no positive comments. We called Houston today!!
Is she alive
@@Alex-mx6mu yes she is, 3 yrs. this week, we are petrified and walk very light, day by day!!!
My sister fought this tumor but it grows back and passed,some years after her daughter got the same tumor and got surgery but passed also I hope there is a future treatment for this horrible cancer
God help these people continue their amazing work👍