The news we never wanted to hear…
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- Опубліковано 11 лип 2024
- GO FUND ME LINK: gofund.me/9a39d737
This was never a video we thought we would be making, but here we are. Yesterday, we met with Seattle Children's Hospital's Surgeon-in-Chief regarding our son's future kidney transplant. What he had to say was unexpected to say the least.
As always, thank you for watching and thank you for your support of our family. It definitely doesn't go unnoticed!
Much love,
The Ransome Fam
You both are awesome parents ! We are all continuing to pray for sweet Sully and your beautiful family . I'm so sorry you got a lot of misinformation and built your hopes on that . God will provide Sully with a new kidney at the right time for your precious boy . I will continue to pray, and so will everyone at our church . Love Hug's and prayers 🙏🏻🤍
You are so kind Shirley, thank you for your prayers and sweet encouragement! We so appreciate you ❤
Have you thought about maybe allowing Taylor to be his IHSS provider? Shed gets paid for taking care of Sully essentially. It is a lengthy applicatin process to get approved but it might be worth it! @TheRansomeFam
@@tess5866 we looked into it and didn’t qualify! Thanks for the rec though!!
@TheRansomeFam aw darn it! I'm sorry to hear that ! Sully is so lucky to have you guy as his parents. So loving and supportive. Sending prayers to him and your family!
In Colorado, we are able through Medicaid or Medicaid Waivers to be able to be paid family caregivers for our children with extensive medical needs. I know a handful of other states have similar programs. I’m hoping your state may have a similar program. You are doing an amazing job with him. I’m so sorry about the news and the miscommunication. ❤
Yes! I work with Medicaid in NC. You guys definitely need to apply for Medicaid or SSI for Sully if you haven’t already
Oh man ... What can we say " But God.." He knows the whys and we know he is taking care of our Sully... Love you guys don't worry God has a better plan. Love you
Yup, there’s gotta be something more for him! This sucks for now, but we’re excited to see His plan unfold for our little guy! We love you too Gerri!
«And we know that in all things God works for the good of those who love him, who have been called according to his purpose.»
Romans 8:28 NIV
The process is extremely though, but he is with us all the time and thought it. It doesn’t matter where we are until God is with us.
A little testimony to give you hope: I’m 22 and I have 3 chronic and very painful disease since 2 years old. My body has grown in pain. Some days ago, I had one of my terrible peaks of absurd pain, and while I was screaming I said "Jesus I don't care where I am now, I prefer to stay here and suffer knowing that you are with me, that I am healthy but without you", and the pain has gradually gone. I am not healed yet, but on this occasion God assisted me. And he will provide, always.
Stay strong in Christ.
That is a crazy miscommunication!! I would be like are you sure you're looking at the right results? I can't imagine the disappointment. All we want is our kids to be healthy and happy and I'm sure it's hard when these roadblocks are in the way for Sully to be fully healthy. Praying for your family.
Truly. Kind of hard to fathom how it can happen… but we will give grace and push for better. Thank you so much for your prayers ❤
Thoughts and prayers for that sweet boy and your amazing family
Thank you so much ❤
Amen! Standing in prayer for sully and you both for strength and wisdom. My son had a kidney surgery at Seattle children’s and it was hard. Definitely appreciate the doctors but also advocated like heck for him and we got to keep his kidney. God is good and He’s got you 3 in His arms. ❤
Oh wow! That’s amazing to hear your testimony. Advocating is truly so tough sometimes, but absolutely worth it! So glad you hear your son is on the flip side! Amen ❤
This is a tough blow for sure. I'm so sorry. Not the news you wanted just like getting the news prior to his birth. You made the decision to bring that sweet child into this world and in time he will get to do things like other kids. Just being here for now is enough, I watch my adult son struggle daily being on the spectrum and he's a fantastic Dad taking care of spectrum kids. He's amazing and so is your son!
Thank you!
Well spoken with conviction your ultimately putting your FAITH IN OUR LORD FATHER GOD. AMEN 🙏🙌 I PRAY FOR STRENGTH AND COMFORT FOR ALL OF YOU, HOLY SPIRIT STAND AND KEEP CLOSE TO THIS FAMILY 😊🩷💛
please all who read this ACTUALLY REALLY PRAY.. THE POWER OF PRAYER HAS BEEN PROVEN. Lord God please take your sweet son sully Into your arms restore him with health Lord father we pray please continue to protect them all with the hands and eyes of our Lord you JESUS CHRIST OUR SAVIOUR.. AMEN ✝️🙏 WE LOVE YOU ALL stay STRONG 🙌🙏✝️🫶🧡💚🩵🩷💛💙💜🤍🩶♥️❣️💗💓💞💕♥️🤟 MIRACLES 🌠 TO COME😊😊😊😊😊
What a tough appointment…and prayers for
You!
Thank you ❤
I am so sorry to hear all of this about your sweet little man, Sully🙏✝️ ✨️ Praying God's plan is way better than anything you've heard from his doctor's so far❤ You two are amazing parents, and caretakers❤ I feel very blessed to have found your story. Hugs to all of you✨️
@@SadieGrace Thank you so much Sadie, we’re excited to see what God has ins tore for our family even though this is disappointing. Hugs back 🤗
This is so heartbreaking! But you’re totally right! 7 years on dialysis when he is older sounds miserable so definitely a blessing in disguise
Definitely on both accords!! That’s exactly how we’re hoping to look at it!
Wow that's a huge blessing that you'll be able to give him a kidney later in his life when he needs again! God is watching out for you all and planning the right path for you.
We can't imagine how difficult this must be for you all!
Thank you for being so transparent about your journey.
We'll be praying for you all and considering how else we can help :)
Anthony & Madison Smith
@@rosesmith2717 definitely a plot twist that’s for sure. But, thank you Anthony and Madison! Y’all are the absolute sweetest ❤️
I pray that your baby boy sully continues to have a speedy recovery ski he can go home sooner.
Thank you Jesus for healing this Baby! ♥️♥️ I just saw this page today y’all are a beautiful family
Thank you ❤
So proud of team Ransome! Your Anchor is holding firm through this storm. Praying for the living donor to be found quickly. 💗💗💗
Thank you Janine ❤ you’re the best!!
O+ here!!!
But I’m gonna be 45 in Feb and it sounds like he won’t be ready for a transplant with in the next 7 months 😭😭😭😭😭 but I’m still willing to see if I CAN help! I just started following you, I’m in Massachusetts and willing to do what I can, if I can! ❤
You’re so kind! Thank you for caring ❤ you’re right I don’t think he will be ready by then. But you can always help us by sharing and praying!! It means so much!
@@TheRansomeFam of course❤️ parenting is the hardest thing when situations arise that we have zero control over but you’ll all be in my prayers 🙏🥰
I'm heartbroken for you guys. Good things are to come!!!
Thank you for being so strong and sharing your story. I hope your story goes viral and a miracle happens ❤
Thank you so much!
SURRENDER YOUR WORRIES AND FEARS TO OUR ALMIGHTY GOD ALWAYS . PRAY AND SPEACK TO GOD OPEN HE KNOWS WHAT IS GOOD TO US TRUST HIM . GOD BLESS ❤❤❤
We love you guys, through all these seasons. We keep you guys in our prayers always 💕
Thank you dear friend! We love you too ❤
While I cant imagine the disappointment that you guys feel and are still processing, it's so encouraging to see you just give it all to God and keep moving forward. His ways are better! Praying for you all. Love your family!❤
Thank you Holly! Definitely a tough feeling to process, but one day at a time. Thank you for seeing our faith, that encourages us so much! We love you guys too!!
I'm so sorry. I'm a mama of two medically complex girls. My youngest daughter is in stage 4 kidney failure. She doesn't need dialysis yet. I try to not think about the future because it scares me. You both are doing such a great job! Your faith is amazing! I'll be praying for your family.
Thank you so much ❤ we will be praying your daughter can avoid it for as long as possible!!
I’m so sorry you guys💔 This simply isn’t fair. You’ve been and will continue to be in my prayers. Keep your spirits high and focus on the positive. ❤
Definitely tough news, but nevertheless he’s going to get his kidney-we’ve got faith in that! Thank you so much for your kindness and prayers ❤
@@TheRansomeFam absolutely!!! The power of positivity is unmatched. Will be praying for y’all indefinitely. 🙏❤️
Wow. Just know that you guys are at the top of my prayers every single day. Love always. ❤️
Wow is just the right word. Thank you Tim!
I'm glad that i found you guys here in youtube. Your family is truly amazing n you guys are amazing parents to that little boy Sully. I look forward to see more videos.
Thank you Martha!
Do not worry. God will Bless your Baby abundantly.
Where do you live?
@@deepthipv4689 we’re in Washington state!
God bless all of you!! Believe me, I know how expensive life is!!! Overwhelming! Love & prayers to Sully and you two, as well as your extended family!! 🙏🏻💙🙏🏻💙🙏🏻💙🙏🏻
Thank you so much ❤
I’m so impressed how calm and measured your response is
Thank you for saying that ❤
God continue to bless you! I am praying God opens a better window SOON!!!!
Thank you Connie ❤
You guys are doing awesome even thought it might not feel like it right now. I admire your trust and faith. I just want you to know that your videos attract a number of different audiences. I am almost 15 years old and I wish so badly that I could donate my kidney to him. I’ll be praying for your family.
You are so kind! Thank you for caring and for watching, that is more than appreciated ❤
I’m so sorry the mini family we are here have your backs ❤
Thank you so much ❤
@@TheRansomeFam of course y’all make me so happy with your positive outlook on everything
You will be in my prayers ❤
Thank you ❤
Prayers for Baby Sully!!❤
I'm so sorry about the news about the kidney transplant you guys. God will find that sweet little boy Sully another kidney for him. Whenever it maybe. My thoughts n prayers are with you guys like always
Couldn’t agree more. Thank you for your compassion Martha ❤
Prayers. Stay strong ❤❤
@@clairesanders1456 thank you so much ❤️
I am so sorry I’m praying for your family
@@Gamer36757 thank you so much!
I’m so heartbroken for you guys! I really hope an aunty or uncle or someone close is a match so you don’t have to wait indefinitely. Go sully go! My goodness prayers for some growth spurts and lots of love and strength to keep on keeping on.
Also I 100% understand Dad not working full time. My husband and I get lots of comments about him missing work for some appointments and super tough times too. We’re in this together and support is so underrated. We wouldn’t have had kids if we weren’t both planning to be hands on parents sharing the load. Even psychologically, that’s a lot to go through day in day out and maybe at a pinch one of you could do it on your own (maybe it’s not physically possible, I’m not sure), …but my goodness, what I do know is no one wants that load on their shoulders solo. You guys are awesome being there for each other and Sully. You don’t have to explain yourselves to anyone. Your parents obviously want to help and so I hope they continue to be in the position where they can, and where you guys can stay with them as long as you need….and that your UA-cam blows up so it pays the other bills 😂❤
So sorry for you guys. Such disappointment. Love you both so much!
Thank you ❤
Omfg I would be so mad. Im praying for your family.
Thank you!
Still praying for BIG SULLY daily. (I am professing his growth as that is one of the parameters).
Still praying for your marriage daily, as I know this can take a toll on you both.
Sorry to hear that you guys didn't get the news you were hoping for.
However, we know that all things work together for good to those who love God, to those who are the called according to His purpose.
Don't lose heart, this is just another bump in the road.
I know it is easy for me to say, yet when it is all said and done, you will look back at this and realize that God has his hand on BIG SULLY's life.
Let us know how we can pray for you best when you get more info.
Love you guys!
Thank you so much Landon! Means a lot to us!
Remember God is in control!
God is going to heal him.
I stand in agreement with you.
Im o positive but I was diagnosed with stage 3 colon cancer in march 2024. I know God has healed me.
Oh my! I would be mad also that should have not happened. But I pray everyday that he gets a kidney. You are both awesome parents and you are not doing anything wrong.
Thank you so much for praying ❤
Hello! I just found your channel through a short on UA-cam, and I will definitely be praying for your sweet boy and for you both! He is absolutely adorable! Your channel caught my attention because I have a good friend who just had a kidney transplant in April. She went for so long searching for a donor, on dialysis, and not able to do much but focus on staying healthy and alive. I do know the amount of time that is consumed with this illness. The miracle here is, after so many people offered to donate a kidney, it took what seemed like forever to find her match. The lady that donated her kidney was actually a member of our own church! They grew up in church together, knew each other well, but weren’t really close. They are definitely family now! The day before their surgery, we had such a beautiful service and God’s presence was so strong! The surgeries went so smoothly and the donor was back at church in just a few weeks. The recipient is doing well, and has had just a couple of minor setbacks, but we have a Mighty God Who is with her every step of the way! I just felt led to share this with you and hope and pray it will bring you some encouragement and comfort! I will be praying for your family! 🙏🏼❤️
Thank you so much for sharing their story, that does give so much hope for us in our waiting season. Dialysis is definitely no joke, and transplant is tough too! So glad they’re both recovering well ❤
I'd give him mine, but I've only got one!
That’s horrible! Please let us know about your GoFundMe once it’s up. I’d love to donate and share it with others.
Oh no this is must be so hard. Hope you are doing okay
Definitely a hard turn of events, still processing around here but very sad. Thanks for your support! Means so much ❤
Praying for you all.
If you have ads on your videos you can make more money?
Our channel is monetized now so yes!
I am sorry this happened to you guys. I really do wish I could donate my kidney but I have other health problems that would keep me from doing it. I do know a couple people that have passed away that are registered organ donors. If you can’t find a living donor you can always look into getting one from someone who is deceased. But there is another donor out there for Sully. You just have to find them. Maybe try seeing if another person in your family is a match for Sully and can donate to him.
Thank you for your kindness! We will start looking for sure!
But GOD!!! 🙏🙏🙏❤❤❤
Oh that is such a blow… and although it’s likely Gods plan and this is the way that it should be and it will be better long term… I’m frustrated on your behalf that you couldn’t have known this 5 months ago and could have made different plans and taken a different path! Always praying for your family
Definitely, God’s plan will always be better… just hard because we had thought this was it! The five months of wasted time is the hardest part. But He will provide and we will be faithful in the meantime! Thank you for supporting our family and celebrating and weeping with us!
Guys, I’m at a loss of words, I am so bummed out 😢 But on the other hand, trying to look at the bright side I’m thinking that there is a better and bigger solution for Sully, I just know there is, there just has to be. Sending prayers and hugs to mom, dad and obviously Sully. Hang tight guys. 💜
Thank you so much for being so kind and caring! That’s exactly our hope too ❤ hugs back!
Hi! I’ve been following you and I am praying for you. God has his reasons, sometimes it’s hard to see them. I’m not sure if sully has more needs, but type O+ can receive from both O+ and O-. I would be willing to be tested.
Hi! Thank you for your willingness and your kindness. We were told by our transplant team he will need O+!
since O is considered the universal blood could an O - (neg) donate or is that something that's not possible in Sully's case? GBY I'll be praying for your family tonight...
🙏🏻🕊️🙏🏻
For him, it has to be O+! Thank you for asking and for praying ❤
God is going to save him, it was risky for you and I know you want to save your kid life but at the same time he needs you ok. God knows what he is doing!!
Mom and Dad I feel your pain. Hopefully they will find baby Sully a perfect kidney. You were saying a kidney transplant last 25 or less and that he will need multiple kidney transplants in the future so perhaps this is God's plan. Taylor can bless him in the future. Sully can get Social Security and you can get paid by the state and some times the county and Medicaid to be Sully's care giver. Hopefully this helps.
😢😢😢
But God … on my knees now . God is in control
Amen ❤
I hope to GOD someone can donate to Sully ❤
Thank you! Us too ❤
I'm so sorry for the miscommunication.☹️ Hopefully Sully will be able to get another kidney soon. Perhaps a kidney from a child around his age or a little older would be better than an adult kidney from his mother. So many kids die every day in accidents,so it makes sense for a child to donate a kidney to another child. God bless you guys and stay positive.
It was tough! They do not transplant children’s organs into children. The kidney had to be full sized, because a transplanted organ would grow with him! It’s a lengthy process for sure. We’re hoping for a living donor!
I don't know how I came across your channel, but after watching a couple of your short videos, I realized that I have a similar condition with my kidney. I had never heard of a duplex kidney, so I looked it up. I actually have a unilateral bifid ureter, which is a type of duplex kidney anomaly. I had never heard of it referred to as a duplex kidney. Only as bifurcated. I had surgery to dilate the ureter when I was 3. It hasn't given my any issues throughout my life except that I got my first 2 kidney stones in 2015. I asked the doctor about my kidney and he said that yes, he had noticed it on the CT scan. I thought this was a rare defect. He made it seem like it was unremarkable. I have alot more studying to do now!
Oh wow! Yes not sure if they’re the same thing, but sounds similar. I would never have known I had it before the CT scan. We were told it’s in 3-7% of the population, but fairly uncommon!
Please focus on this "you can give him a kidney when he is an adult".. this is really important also!.. i hope God provide another perfect match for sweet Sully
I’m a o+ blood type but I’m also in the UK- I’m unsure on how that would work considering I’m so far away?
Thank you so much! I believe it has to be within the US. But I so appreciate your heart to even offer ❤
I wish I could give him my kidney but sadly I can’t because the things going on in my body right now
can you share who is the doctor of sully?
Oh I am so so sorry. I know you are being careful with your words, but this mistake shouldn’t have ever happened. As well as with his height and weight. I can’t imagine how y’all feel right now! 💔 Of course mistakes do happen, but this is a massive oversight. I’m glad he acknowledged how big of a mistake that was. I hope soon y’all will have a clear path forward
Yes we totally see that too, but we’ve got to move on and make sure we triple check things even more intentionally moving forward. Thank you!!
You can have the Cleveland’s Clinic (for a fee of course,) do a chart review and give you a second opinion. That a radiologist would say that there was only one artery on ct scan, and a chief of service would say no, is questionable. Every doctor can have a bad day. It is possible that the chief of service could have had a bad day. Get another opinion!
I don’t get how someone missed this in a big hospital system like Seattle Children’s. I get people are human and make mistakes, but how many people viewed the scans before the Chief?
I think we’re all at a loss for how it gets missed. There’s a lot of bureaucracy to the process and somehow it was missed. It’s unfortunate, but people make mistakes! So thankful the news has at least been shared now so we can move forward ❤
«And we know that in all things God works for the good of those who love him, who have been called according to his purpose.»
Romans 8:28 NIV
No matter what terrible situation we are in, the important thing is that God is with us.
I have more than one chronic and really painful disease and some days ago I had one of my usual peaks of absurd pain. While I was crying and screaming I said "Jesus I don't care where I am now, I prefer to stay here and suffer knowing that you are with me, rather than being healthy but without you", and the pain gradually went away. I am not healed, but on this occasion God assisted me.
God will always provide.
Stay strong in Christ.
If the CT scan said 1 artery for your smaller kidney I would push back on that. Maybe even demand another CT scan/ultrasound of that kidney to double.check. it sounds like the cheif was very confused and mixing up info during your conversation and he could be the one that's mistaken. Maybe get a second opinion from a different transplant dr./hospital if you have too. Sometimes as parents of a special needs kiddo it's so hard because we are their only advocate and it seems like people are against us or don't take us seriously at times. Don't be afraid to let mama and papa bear come out to get things done if you have too ❤ as an RN our healthcare system is not what is used to be at all. But I know and will be praying everything works out for Sulley no matter what. Everything happens for a reasons and God's timing is always perfect ❤
4:50 absolutely toot your own horn. You’ve been so diligent in your care for Sully and the care of yourselves so you could donate. I’m appalled that they had such a big miscommunication. I’m praying for a kidney to show, and I’m praying it’s from a live donor so it’s at its healthiest! Much love to you all!
So what can we do to help you? Do we need to help find a match???
That’ll be our goal soon! We will post more information through a shareable video as soon as we gather everything we need! Thank you so much!
@@TheRansomeFam absolutely 💯
Let’s find you a match .. please tell us what you need ! I would give mine without thinking twice if I’m a match. Please find out . I’m sure they’re tons of people who would donate for sully!
@@StephaniesFamily we need O+ blood, with no diabetes or blood pressure issues. We’re located in Seattle, WA and local will be easier but it can be from anywhere!
@@TheRansomeFam I’m o positive, no diabetes or blood pressure issues. I do have a history of addiction though, just being truthful, I’ve been in recovery for two years but I don’t know what effects my past has had on my body. I do live in Philadelphia which is very far away.
I hope you find a kidney.