Hey, don't ever feel bad for making this kind of video. Aside from the main purpose of this video, it'll also act as an awareness. That's always a good thing. Stay strong!!
Agreed. There could be several people watching who have gone through this themselves or had loved ones go through it, it's always good to know someone else understands what you're going through.
The incredible energy you put into every video, i would never have guessed you had all this going in in the back ground...you guys are a credit to humanity. Best wishes
I work in Neurology (eeg) and have experienced patients with syngap. My heart goes out to you and your family. Kudos to you for raising money for this disorder.
Thanks for knowing about Syngap. If our EEG person had known about it, it would have saved us 3 months of testing & lots of medical bills. Unfortunately even our neurologist didn't even know about the disorder. 🤷♂️
Who the hell is leaving thumbs down!? UFDTech, thanks for having the courage to talk about such an important issue. I’m praying for you and your family. I hope great things are on the horizon for you all.
I'm from Sri Lanka and we don't have many people sharing technical stuff like you do .. so i really like your work .. I'm very sad about what your family is going through .. hope your son gets better .. may God bless your family
You're a stronger man than I, by far. You've been living with this for ages now, and you never let it show in your work - I can't even imagine what kind of toll that must have been taking on you. Bless you, your family, and everyone at UFD.
in 2018 my daughter was diagnosed with Epilepsy when she was 3 months old. I know what it's like to see your child seize... you have my deepest of sympathies and you have my hopes and prayers. We are now just over 16 months without a seizure on medication.
Had been a long time UA-cam lurker of your channel and idk why but had never hit the sub button. Definitely hit now and will be here for the stream, I wish y'all the best of luck with everything and you are in my families prayers 🙏!
Dude, stay strong. I have mild cerebral palsy due to being born 2 months premature. I wish your son all the best and keep up your great work. If there is anything I can help you with, do drop me a message.
Had a son with a rare disorder and I understand the challenges (and opportunities!) that may bring. I wish you all nothing but the best of any situation, and very glad to see you using your platform to try and help your son and others.
Sorry to hear this man, couldn’t imagine. At least your son has strong and caring parents to get him through it. If there’s anything outside of donating that I can do to help the stream please let me know.
My eldest son 10 now had a very bad heart condition called a Mitrovascular Valve defect that he was born with. He had to have open heart surgery at 6 months and were told by the surgeon it was the worst he’d ever seen he gave my son a week to live if he had not had the surgery when he did. Lucky the surgery went great (shout out to CHKD and their surgeons and staff) and he’s very healthy now he even didn’t have to take the medication any longer when he turned about 5 or 6 I believe. He did have delayed development due to it and has recently been diagnosed with autism but he is ours, he’s here, and we love him and wouldn’t change him for the world. Even when things look the worst there is always hope and every cloud has a silver lining. We will pray for you little one and your family. I wish the best for you.
My daughter was born with a rare genetic disorder called bardet biedl syndrome which has caused chronic kidney disease, developmental delays among others. She is 2 now and we are getting ready for her to have kidney transplant within the next year. From being told she wouldn't be born alive if at all till now, we have came a long way and cherish every moment with her.
Wishing you all the best and I hope everything works out, the charity stream is a fantastic idea, let me know if I can help with anything, stay strong!
There is absolutely nothing worse that finding out there is something that threatens your child’s health. I feel for you and it’s incredible how you have found the strength to not only take of care of your family but also bring us very informative, entertaining and well articulated videos . I wish the best for you and yours going forward and hopefully you guys will find the best resources and answers that you are looking for in order to best treat your son. You’ll be in our thoughts and prayers.
Sorry to hear about your son’s genetic disorder. Good that your wife and you decided to do this video to raise awareness, though it must be with sadness and grief. Pray that your family will pass the days as normal as possible. Be strong 💪
I welled up as soon as you started talking about your son and medical testing. I've got a two year old son, birthday was a week or so ago. He's my first born. I know that hurt for them when they're at the doctor and don't understand what's happening to them or why. Love you guys, all the work you're doing as a couple, and your outlook. Thank you for sharing something difficult to help others.
Wow. I can't wrap my head around the amazing amount of work you have been putting into the channel while at the same time suffering all of this. I'm stocked. I hope I can donate at least a little and help you out. Sending lots of love.
I sympathize with your situation. My wife has Juvenile Rheumatoid Arthritis and Crohn's disease, both run in my wife's family. We are working with researchers and doctors at The University of Washington to help with not passing on any of her genes that contribute to the development of these conditions. Our best wishes to you and your son, we hope everything else goes well!!
My little sister had seizures for about 4 years til a doctor recommended Topamax to my parents. She has been mainly seizure free for 15 years. I say mainly cause in the past 8 months she had 2 more, but it was because medication doses were changed and was changed back after she had them. I can’t say that it would be best for your son, but it’s nice to have more options.
As someone who is 76 years old and been through similar circumstances for over 50 years I know exactly how you feel and I will make a donation directly to Syngap. I wish you good luck!
I'm not a regular viewer and came across this video by accident. As a father of a son with Down's, stay strong and keep going but above all: ask for help when you need it! On the practical side: take a look at the early intervention program. This helped the development of our son a lot!
From the heart of your London UK fanbase thank u for sharing guys...he is lucky to have such wonderful parents and u are held in our prayers and will have our support ALWAYS..
As a 29 yr old father of a 2 year old son diagnosed with a rare fatal genetic disease called Spinal Muscular Atrophy or better known as SMA Type 1. Where his body does not produce the correct / right amount of proteins to support movement or strength. We've lived in hospitals for months and months at a time, visited many and many of specialist. We were told he would not make it past 2 yrs of age but look at him now he's about to turn 3 in August and is gaining strength and some movement. So I know how you guys feel, keep your head high and your minds in the right place and just be there for your little one for whatever and whenever he needs you. Thanks for this video and always staying positive!
I know the feeling of not knowing what is happening to a son, and I feel extremely lucky with the outcome seeing what other disorders and diseases are out there. It's great that you're rising awareness and trying your best to make a real change. Best of lucks with your child and his progress!
I can see how much this is weighing on you, I'll be praying for you and your family and I'm really happy that you have this channel to generate the resources to be able to tackle this. Thank you for what you do brother, and you're not alone in this.
Hey Brett and Mrs Brett, sending lots of love and support. Thank you for finding the strength to make this video, I can see it's not easy for you guys. I hope it does you and your son some good in time.
Prayers to you and your family. I will be promoting your fundraiser as best as we can. And thank you for everything, all you do, and for sharing. It's hard to share such a private party of our children's lives, but knowledge is key. And your families strength and bravery is why you are where you are.
My heart just breaks for you guys! It’s so sad seeing children going through such hard diseases like this. You guys have huge hearts! Hoping for the best for your family and hopefully in time you guys will find stable treatment for him.
I'm a 3rd year nursing student and have to say thank you for opening your heart and your lives about struggles with rare situations. Your commitment to public awareness shows such deep hearts. Love you too.
You, your wife and your children are an adoring family. Wish your son all the best, hope you can overcome this decease's difficulties. Cheers from Cape Town.
This channel is so positive, I can’t wait to help with the next charity drive. I’ll be praying for you guys and will definitely share the drive all over my social media, best wishes.
It's unfortunate that this happened to you I know I was scared thinking my son had this or autism. I was relieved that people around me where there for my family to support and help. State teachers helped my wife and I out and they reassured us that he just had a learning problem. Prayers to you guys and good fortune!
Praying for your son today. Definitely tunning into the charity stream. As an uncle of a wonderfull 3 year old boy with autism, I can somewhat relate. You guys have the knowledge, the capacity, and most importantly , the neverending love, to go through this as a family.
Hey man.... Fellow South African Christian here... I will pray for strength for you and your son for sure. I have 2 kids of my own and except for the love of God I don't think there is a bigger love. Where about in SA are you? Really Really all the best!!! Love your channel, please keep up the good work, online and offline! LOTS of love!
Wow, I had no idea about your son's illness OR that you and your wife were foster parents. It's so easy to forget the people we watch on UA-cam have lives outside of their videos and are dealing with the craziness of life like the rest of us. Wish you and your family luck in the future.
We got hit with Trisomy 9 for our latest addition to the family. Your not alone bro. Time will go by and you will find ways to cope. Maintain a good home no matter what bro and love your boy regardless. Also, like other comments below don't be sorry. Hell you've motivated me to maybe make a vid on my boy. I would've never known this to be happening with how awesome your vids are man!
You have always seemed like one of the most genuine and honest tech youtubers out there, as a farther hearing you speak about your son hits me hard, i cant begin to imagine going through this, i will deffo be tuning in for the live stream. love going to you and youre family from here in the uk.
Thank you for sharing your life with the rest of us. Inviting all of us into your personal lives. Sometimes we need the support from your fellow companions to get through tough times. You have our hopes and prayers.
Being a parent is one of the hardest job in the world but in case of a special child its even harder. Take good care of him his health will definitely improve by ur love, affection and care.
I have identical twins with a very rare genetic disorder. Not the best... but like yours not the worst. We are three years into it now and I can yell you that from the moment he was diagnosed all of your lives will get better. Tough to realize at first but trust me.
Great job keeping this channel active during all this. My wife just gave birth to our little girl three months ago, and she has been diagnosed with holoprosencephaly. We're told she will likely also suffer from epilipsy among other things. I know I couldn't have kept up like you did. Props.
I'm so sorry your family is going through this, prayers for your son and family. I applaud your courage and resolve in this, I would definitely want to contribute to this charity. Stay strong brother!
Some members of my family have been diagnosed with a rare version of multiple sclerosis (mom and sister), but because it's so rare it's also not that aggressive. Challenges unite. Strength to you and your family!
It's never easy. From one person who has a rare disorder as well to you guys you're doing the best job you can do, keep it up and I wish you and your little man all the best.
I haven't looked at any updates on this yet, but I can see your wife just holding back emotion. Stuff like this is hard for someone who is not use to being on camera, and I applaud her... Standing ovation for trying, and putting herself out there for your guy's son. I'm also so glad that you knew and would use your experience to communicate with the camera, which is the hardest thing a youtuber or streamer struggles with at the beginning of their career online. If I had the money I would donate, but I just want to say the strength you both have doing this is taxing, and I think you deserve a comment that at addresses that.
Just wanted to say hi thinking about want you need to go through like we did. Our 2nd daughter has extremely rare micro deletion syndrome that's causing her global delay, intellectual disability and etc. She's a lovely l, funny 6 year old kid who make all of us happy. She's truly special and making us better human being I truly believe that. She's slow but day by day she's making progress and I'm just happy that I spend my life watching her growing on her own pace.
I can't even imagine my daughter going through like this but as a father I can feel and relate to the pain that you're face shows through your stoicism. My heart goes out to you & your wife and I hope treatment alternatives improve in the time to come.
Enlist in a Montessori school it will really help with development of fine motor skills, language, math and other benefits. Been watching your videos for a few years. My prayers go out to your family and all those effected with this type of disease.
I really hope some miracle happens, I can literally feel heaft in Bret's voice... Bro don't feel dumb because you are light hearted, I know, because I'm also like that...
As a new parent i'm amazed and inspired by the strength of you and you wife through this video. I hope to participate in the charity event on the 21st. I hope those with a channel and public influence support this as well, especially those in the tech community.
bro i can understand what are you passing through. all i can say is that i wish you from my heart all of the best of luck and best chances for your little angle.
As a parent myself, you both have my heartfelt thoughts, support, and empathy. It's bad enough when an adult suffers some disabling disease but for a little Punkin to go through something debilitating....? ANd worse, is that they don't understand why.
Sorry for your son and you , I don't have any money but all my heart goes to my support for your familly and hope your son will be cured in a near future !
As strange as this might be to say, your son is blessed to have you two as parents, he's probably much better off than he could have been, and at least you know he's going to get the best care that he needs and deserves. My heart goes out to you! That happening to my son brings me to tears thinking about what you must be going through.
Hey stay strong and be strong. My thoughts and prayers for you and your family. Thanks for helping the community and being a voice. I wish the best for your beautiful son and wonderful family. "Love you too" Bless you all !!!
Praying for you and your family. Sorry to hear what you are going through. Not many people stay as humble as you and your wife and to be thankful when faced with challenging circumstances. I hope you guys raise a lot of money
Hey, don't ever feel bad for making this kind of video. Aside from the main purpose of this video, it'll also act as an awareness. That's always a good thing. Stay strong!!
I agree with you!!✋
Agreed
Agreed, I certainly learned of this five minutes ago! ♥️♥️♥️
Wholeheartedly agree. Wishing you and your family well.
Agreed. There could be several people watching who have gone through this themselves or had loved ones go through it, it's always good to know someone else understands what you're going through.
Bro, , know what's you going through. My 2nd has Septo-optic dysplasia. Which... also extremely rare.
Pray to you and yours.
We pray for your 2nd too
Haha
@@dragonbond5609 Hey a douchebag right here, everyone give him the attention he wants, but in reality doesn't need.
Gelu karma will come to you duma$$
Didn’t realize septic-optic dysplasia was rare. I have that as well. It’s not that bad though if that makes you feel better. Pretty normal life at 28
The incredible energy you put into every video, i would never have guessed you had all this going in in the back ground...you guys are a credit to humanity. Best wishes
Real talk. You guys are awesome
Hey man, I am so sorry to hear this, I am praying for strength and peace for you and your family.
RMC Videographers don’t pray help it’s better it’s come that prayers are useless!!!!
Prayers to you and your family, hope your son recovers soon.
Prayer is just a way to feel like you're helping when you're doing nothing to help.
@@itsJPhere That's your opinion
@@totallyjerd1751 The prayer doesn't exactly help though.
Prayers to you and your family, I will be sure to be on during the stream to help contribute to this cause.
Your profile pic looks like an intel/amd processor running without a cooler
Why you not verified wtf...love your vids
I work in Neurology (eeg) and have experienced patients with syngap. My heart goes out to you and your family. Kudos to you for raising money for this disorder.
Thanks for knowing about Syngap. If our EEG person had known about it, it would have saved us 3 months of testing & lots of medical bills.
Unfortunately even our neurologist didn't even know about the disorder. 🤷♂️
We always got your back man. Never lose hope. It's gonna be alright. May God Bless You and Your Family.
@@slyceth
tRUMPIST, right !!.
Which god?
@@itsJPhere May God, the God of May.
Apparently there's a different God each month... Well, that's new.
sIyceth no shit but why does that matter
@@slyceth Being rich doesn't make it less difficult.
Also from South Africa! Stay positive and hope for the best.
Who the hell is leaving thumbs down!? UFDTech, thanks for having the courage to talk about such an important issue. I’m praying for you and your family. I hope great things are on the horizon for you all.
I know right? Maybe their phone was upside down? Well, jokes on them... It's still viewer engagement which helps the channel.
Thumbs down for the genetic disorder, thumbs up for their strength.
Stay strong Brett, everything will be fine💪💪💪
I'm from Sri Lanka and we don't have many people sharing technical stuff like you do .. so i really like your work .. I'm very sad about what your family is going through .. hope your son gets better .. may God bless your family
Hey man, he's going to get through. Your son is a legend like you. It's gonna be fine. Take good care of him :) God bless
8:38 was when I had a lump in my throat. BLESS HIS BOY
You're a stronger man than I, by far. You've been living with this for ages now, and you never let it show in your work - I can't even imagine what kind of toll that must have been taking on you. Bless you, your family, and everyone at UFD.
Life happens sir we pray together for you and your family's wellness and well-being ❤️
Oh man, my thoughts are going out for you and your fam. He's lucky to have such good parents
Geez sorry to hear, praying for your son and the family. Love from Zimbabwe/Australia
in 2018 my daughter was diagnosed with Epilepsy when she was 3 months old. I know what it's like to see your child seize... you have my deepest of sympathies and you have my hopes and prayers. We are now just over 16 months without a seizure on medication.
Prayers from this Patreon! Hang in there buddy, your kid will be okay, and he has all of us Family!
You are wonderful people, I wish all the best for him, and will be there on the 21st x
Knowing is half the battle! Stay strong guys, your UFD fam is here for ya! Sending all the prayers your way!
Looking forward to the stream.
Had been a long time UA-cam lurker of your channel and idk why but had never hit the sub button. Definitely hit now and will be here for the stream, I wish y'all the best of luck with everything and you are in my families prayers 🙏!
I am a poor guy but ready to donate to help with what I can. Best wishes for you and your family, we're with you!
Dude, stay strong. I have mild cerebral palsy due to being born 2 months premature. I wish your son all the best and keep up your great work. If there is anything I can help you with, do drop me a message.
This dude gotta be the purest soul on UA-cam.
Had a son with a rare disorder and I understand the challenges (and opportunities!) that may bring.
I wish you all nothing but the best of any situation, and very glad to see you using your platform to try and help your son and others.
Sorry to hear this man, couldn’t imagine. At least your son has strong and caring parents to get him through it. If there’s anything outside of donating that I can do to help the stream please let me know.
Really glad to hear that two of my most favourite channels are supporting each other...
I hope and pray for both of you and your well being..
Man you just became one of the most real people on UA-cam you have my support brother
Thank you for raising awareness about this disorder. Wish you all the best!
My eldest son 10 now had a very bad heart condition called a Mitrovascular Valve defect that he was born with. He had to have open heart surgery at 6 months and were told by the surgeon it was the worst he’d ever seen he gave my son a week to live if he had not had the surgery when he did. Lucky the surgery went great (shout out to CHKD and their surgeons and staff) and he’s very healthy now he even didn’t have to take the medication any longer when he turned about 5 or 6 I believe. He did have delayed development due to it and has recently been diagnosed with autism but he is ours, he’s here, and we love him and wouldn’t change him for the world. Even when things look the worst there is always hope and every cloud has a silver lining. We will pray for you little one and your family. I wish the best for you.
My daughter was born with a rare genetic disorder called bardet biedl syndrome which has caused chronic kidney disease, developmental delays among others. She is 2 now and we are getting ready for her to have kidney transplant within the next year. From being told she wouldn't be born alive if at all till now, we have came a long way and cherish every moment with her.
Your Strength is amazing, keep strong the community will never let you down.
I don’t really know what you’re going through cause I don’t even have a kid...
But I hope he gets better!
Fully support you. The success couldn't of happened to a nicer guy. Thanks for making a difference and making the world a better place.
Much love
Wishing you all the best and I hope everything works out, the charity stream is a fantastic idea, let me know if I can help with anything, stay strong!
There is absolutely nothing worse that finding out there is something that threatens your child’s health. I feel for you and it’s incredible how you have found the strength to not only take of care of your family but also bring us very informative, entertaining and well articulated videos . I wish the best for you and yours going forward and hopefully you guys will find the best resources and answers that you are looking for in order to best treat your son. You’ll be in our thoughts and prayers.
Sorry to hear about your son’s genetic disorder. Good that your wife and you decided to do this video to raise awareness, though it must be with sadness and grief. Pray that your family will pass the days as normal as possible. Be strong 💪
He doesn't have a disorder, he is just special in his own world,you guys need to stay strong and try to make him happy no matter what.
I welled up as soon as you started talking about your son and medical testing. I've got a two year old son, birthday was a week or so ago. He's my first born. I know that hurt for them when they're at the doctor and don't understand what's happening to them or why. Love you guys, all the work you're doing as a couple, and your outlook. Thank you for sharing something difficult to help others.
Wow. I can't wrap my head around the amazing amount of work you have been putting into the channel while at the same time suffering all of this. I'm stocked. I hope I can donate at least a little and help you out. Sending lots of love.
I sympathize with your situation. My wife has Juvenile Rheumatoid Arthritis and Crohn's disease, both run in my wife's family. We are working with researchers and doctors at The University of Washington to help with not passing on any of her genes that contribute to the development of these conditions. Our best wishes to you and your son, we hope everything else goes well!!
My little sister had seizures for about 4 years til a doctor recommended Topamax to my parents. She has been mainly seizure free for 15 years. I say mainly cause in the past 8 months she had 2 more, but it was because medication doses were changed and was changed back after she had them. I can’t say that it would be best for your son, but it’s nice to have more options.
As someone who is 76 years old and been through similar circumstances for over 50 years I know exactly how you feel and I will make a donation directly to Syngap. I wish you good luck!
Stay strong, I hope everything will get better for you and your family. We appreciate all your work for us and for charities.
I'm not a regular viewer and came across this video by accident. As a father of a son with Down's, stay strong and keep going but above all: ask for help when you need it!
On the practical side: take a look at the early intervention program. This helped the development of our son a lot!
From the heart of your London UK fanbase thank u for sharing guys...he is lucky to have such wonderful parents and u are held in our prayers and will have our support ALWAYS..
As a 29 yr old father of a 2 year old son diagnosed with a rare fatal genetic disease called Spinal Muscular Atrophy or better known as SMA Type 1. Where his body does not produce the correct / right amount of proteins to support movement or strength. We've lived in hospitals for months and months at a time, visited many and many of specialist. We were told he would not make it past 2 yrs of age but look at him now he's about to turn 3 in August and is gaining strength and some movement. So I know how you guys feel, keep your head high and your minds in the right place and just be there for your little one for whatever and whenever he needs you. Thanks for this video and always staying positive!
I know the feeling of not knowing what is happening to a son, and I feel extremely lucky with the outcome seeing what other disorders and diseases are out there. It's great that you're rising awareness and trying your best to make a real change. Best of lucks with your child and his progress!
Prayers sent up for you and your family. Love your videos. Keep up the good work.
I can see how much this is weighing on you, I'll be praying for you and your family and I'm really happy that you have this channel to generate the resources to be able to tackle this. Thank you for what you do brother, and you're not alone in this.
Hey Brett and Mrs Brett, sending lots of love and support. Thank you for finding the strength to make this video, I can see it's not easy for you guys. I hope it does you and your son some good in time.
Prayers to you and your family. I will be promoting your fundraiser as best as we can. And thank you for everything, all you do, and for sharing. It's hard to share such a private party of our children's lives, but knowledge is key. And your families strength and bravery is why you are where you are.
My heart just breaks for you guys! It’s so sad seeing children going through such hard diseases like this. You guys have huge hearts! Hoping for the best for your family and hopefully in time you guys will find stable treatment for him.
I'm a 3rd year nursing student and have to say thank you for opening your heart and your lives about struggles with rare situations. Your commitment to public awareness shows such deep hearts. Love you too.
As a father myself, my heart goes to you both and the challenges facing you both.
You, your wife and your children are an adoring family. Wish your son all the best, hope you can overcome this decease's difficulties. Cheers from Cape Town.
All my love and support coming from across the Atlantic
A big hug for you, your wife and the boys! Thanks for all! God bless you!
This channel is so positive, I can’t wait to help with the next charity drive. I’ll be praying for you guys and will definitely share the drive all over my social media, best wishes.
It's unfortunate that this happened to you I know I was scared thinking my son had this or autism. I was relieved that people around me where there for my family to support and help. State teachers helped my wife and I out and they reassured us that he just had a learning problem. Prayers to you guys and good fortune!
Praying for your son today. Definitely tunning into the charity stream. As an uncle of a wonderfull 3 year old boy with autism, I can somewhat relate. You guys have the knowledge, the capacity, and most importantly , the neverending love, to go through this as a family.
Hey man.... Fellow South African Christian here... I will pray for strength for you and your son for sure. I have 2 kids of my own and except for the love of God I don't think there is a bigger love. Where about in SA are you? Really Really all the best!!! Love your channel, please keep up the good work, online and offline! LOTS of love!
Just became a dad myself. All the best to you Brett my prayers are with your son.
Anyone that disliked this video you need to grow a heart.
I pray for u and your family
Probably a miss click
@@balarab1 agree
Wow, I had no idea about your son's illness OR that you and your wife were foster parents. It's so easy to forget the people we watch on UA-cam have lives outside of their videos and are dealing with the craziness of life like the rest of us. Wish you and your family luck in the future.
We got hit with Trisomy 9 for our latest addition to the family. Your not alone bro. Time will go by and you will find ways to cope. Maintain a good home no matter what bro and love your boy regardless. Also, like other comments below don't be sorry. Hell you've motivated me to maybe make a vid on my boy. I would've never known this to be happening with how awesome your vids are man!
You have always seemed like one of the most genuine and honest tech youtubers out there, as a farther hearing you speak about your son hits me hard, i cant begin to imagine going through this, i will deffo be tuning in for the live stream. love going to you and youre family from here in the uk.
I’ll make sure I watch every single video you make from now on to support you.
So sorry to hear about the condition. I wish the very best for your son and your family.
Stay strong Brett. You got this man 💪! Keep praying 🙏, have faith, and trust in God bro. Everything has a positive side.
Thank you for sharing your life with the rest of us. Inviting all of us into your personal lives. Sometimes we need the support from your fellow companions to get through tough times. You have our hopes and prayers.
You have a strong family and faith. Prayers for you all and I will be watching and helping on the 21st.
As someone with a brother with a rare Genetic disorder I can relate to this and hope you and your wife all the best. God Bless, Brett!
I hope your son stays super healthy and gets all the ability to fight this rare disease!
Being a parent is one of the hardest job in the world but in case of a special child its even harder. Take good care of him his health will definitely improve by ur love, affection and care.
You have a very brave son. Don't have words, just stay strong. Lots of love to your family especially your son from India.
I have identical twins with a very rare genetic disorder. Not the best... but like yours not the worst. We are three years into it now and I can yell you that from the moment he was diagnosed all of your lives will get better. Tough to realize at first but trust me.
Great job keeping this channel active during all this. My wife just gave birth to our little girl three months ago, and she has been diagnosed with holoprosencephaly. We're told she will likely also suffer from epilipsy among other things. I know I couldn't have kept up like you did. Props.
I'm so sorry your family is going through this, prayers for your son and family. I applaud your courage and resolve in this, I would definitely want to contribute to this charity. Stay strong brother!
I'm so sorry Brett, as a father myself, my heart goes out to you and your wife. I wish you guys and your son the best.
Some members of my family have been diagnosed with a rare version of multiple sclerosis (mom and sister), but because it's so rare it's also not that aggressive. Challenges unite. Strength to you and your family!
Man I’m very sorry to hear. I’m dealing with my son who’s 3 & autistic. I can’t imagine the difficulties it is for you both.
It's never easy. From one person who has a rare disorder as well to you guys you're doing the best job you can do, keep it up and I wish you and your little man all the best.
I haven't looked at any updates on this yet, but I can see your wife just holding back emotion. Stuff like this is hard for someone who is not use to being on camera, and I applaud her... Standing ovation for trying, and putting herself out there for your guy's son. I'm also so glad that you knew and would use your experience to communicate with the camera, which is the hardest thing a youtuber or streamer struggles with at the beginning of their career online. If I had the money I would donate, but I just want to say the strength you both have doing this is taxing, and I think you deserve a comment that at addresses that.
Just wanted to say hi thinking about want you need to go through like we did. Our 2nd daughter has extremely rare micro deletion syndrome that's causing her global delay, intellectual disability and etc. She's a lovely l, funny 6 year old kid who make all of us happy. She's truly special and making us better human being I truly believe that. She's slow but day by day she's making progress and I'm just happy that I spend my life watching her growing on her own pace.
He's gonna be fine - with such loving parents. My prayers are for you and for little one.
I can't even imagine my daughter going through like this but as a father I can feel and relate to the pain that you're face shows through your stoicism. My heart goes out to you & your wife and I hope treatment alternatives improve in the time to come.
Come on, promote this channel, they post quality content, you're awesome
Enlist in a Montessori school it will really help with development of fine motor skills, language, math and other benefits.
Been watching your videos for a few years. My prayers go out to your family and all those effected with this type of disease.
No children deserve to endure pain and sicknesses. My prayers and thoughts are with your son and your family.
I really hope some miracle happens, I can literally feel heaft in Bret's voice... Bro don't feel dumb because you are light hearted, I know, because I'm also like that...
As a new parent i'm amazed and inspired by the strength of you and you wife through this video. I hope to participate in the charity event on the 21st. I hope those with a channel and public influence support this as well, especially those in the tech community.
bro i can understand what are you passing through. all i can say is that i wish you from my heart all of the best of luck and best chances for your little angle.
As a parent myself, you both have my heartfelt thoughts, support, and empathy. It's bad enough when an adult suffers some disabling disease but for a little Punkin to go through something debilitating....? ANd worse, is that they don't understand why.
Sorry for your son and you , I don't have any money but all my heart goes to my support for your familly and hope your son will be cured in a near future !
As strange as this might be to say, your son is blessed to have you two as parents, he's probably much better off than he could have been, and at least you know he's going to get the best care that he needs and deserves. My heart goes out to you! That happening to my son brings me to tears thinking about what you must be going through.
Sorry to hear about your son health issues, I wish a speedy recovery.
Hey stay strong and be strong. My thoughts and prayers for you and your family. Thanks for helping the community and being a voice. I wish the best for your beautiful son and wonderful family. "Love you too" Bless you all !!!
Praying for you and your family. Sorry to hear what you are going through. Not many people stay as humble as you and your wife and to be thankful when faced with challenging circumstances. I hope you guys raise a lot of money
Wow! That's rough just & your wife to keep strong 💪 may God bless him to keep him through with the strength to regain
I wish you, your son and your family all the best.