Hello Greetings from Western Australia I had my stroke July 16th 2021. I am 65 I have had to give up work I am going through suicidality , financial stress , loneliness and being lost in life . Needless to say that having a stroke was not part of my life goals. I am coping somehow. Part of my pre stroke life was playing guitar . My right hand side was deeply affected. I picked up the guitar and I could not strum the guitar properly. I kept on trying and after about a year I can hold on to and use a plectrum. I also use the control from my PS4 to move/exercise my right hand. What you say is true. Nearly up to two years in my recovery. What will the future hold ? I don't know. I will however not suicide as I want to know what the future holds for me. God bless you
I had my strokeaversary this week. I had never considered what you said about interfering with my own progress. I still dressed the same way I’ve been dressing for the last year, and it never occurred to me to try and incorporate my affected side now that there’s some movement there. Thanks for your awesome videos. I told my neurologist and rehab doctor about your channel and how much it has helped me and encouraged me. I also really appreciate your emails as well. Both doctors wrote down your name so they can come check your channel out.
@heatherguill, I hope you're doing well this week. I know some people celebrate their strokaversary and others don't want to think about it. I'm glad this video helped you think about your recovery a little differently! Thank you so much for your kind words and for sharing my videos with your physicians! ❤️
My husband had a massive stroke. It's been almost two years now. Someone days he is good other days it's a struggle. We have been married for 28 years. I will not leave him. Thank you so much for sharing valuable information. Have a great day.😭
Thank you so much for sharing a bit about your story. Being a caregiver is one of the hardest jobs in this world. As much as you can, please remember to take some time for yourself, too. Wishing you and your husband a happy and healthy New Year ❤️
Your videos have really helped us. My husband had a stroke last May (2022) and my question is what do you think about mirror therapy. We were told about it when my husband was still in the hospital so as soon as he came home he started using it when he could. Some have suggested it takes thousands of reps for it to make a difference. That seems out of reach so I wanted your advice. Thanks for such great videos.
I had a stroke May 18 of 2018 I went into a coma, and so during the early recovery time that you had mentioned, I was in a coma and not able to have physical therapy. During that time. I have always had a positive outlook and I never gave up, in my mind thinking that I will not recover. Do you think that I have the chance to regain the ability to walk again with the current physical therapy because I have not received much physical therapy from the facilities that I have been in for instance, they don't allow me to take steps, which is what I so badly want to do, they put me on an exercise bike instead which I do three times a week and they have a little pedal bike in my room that I ride as well. My stroke affected my left side. Do you have any suggestions on what I can do to further advance myself with my goals. Thank you very much.
Thank you, im right at 1 year. I dont celebrate because its been too much of a burden in my life. I didnt get pt right away cause it made me dizzy and nautious. Still does. I was able to do pt after my 2nd operation. 4 months after stroke. I have no memory of first two weeks. I walk, but find it difficult. I have found this all hard and i wish it never happened.
Thank you for sharing your experience. It can be so difficult to remain optimistic after a traumatic experience like a stroke. Have you been able to see a mental health professional since your stroke?
I really appreciate how you make such complicated topics something my post stroke brain can absorb. I've watched lots of your videos and have put many of your teaching and workouts to good use, thank you! I wonder if you have talked much about "crossing mid-line" already? I keep hearing it's good, but I'd like to understand more about it. Much like "Neuroplasticity" has been talked about before now as a good thing, but I didn't have such a clear understanding of how to use it in recovery.
Thank you so much for your kind words and for your suggestion!! Wonderful topic that I definitely need to make a video about it. I really appreciate your input ❤️
Im not good in english but becouse ur good i understand all ur explanation. .i am filipina .and im stroke patient and 7 months in recovery thank you very much maam ellyse really help me a lot.😀😀 Sorry for my englesh
@stevekierstead, Absolutely! It's true for all of us. My examples come from experience. I took piano lessons when I was in elementary school. While I still remember the basics, when I start to play again I am SO rusty!
I really appreciate you for this space & your channel, it helps with so much in knowledge & common-sense, look forward & looking forward to your content & more content every single day 🌻💞 - Alison
@clementjanis, I'm so sorry. The feedback I almost always get is that having patience with the recovery process is one of the hardest things about it. The brain recovers slowly and not at the pace we'd like to go. It is so hard. ❤️
Had my stroke 8 months ago I have movement in my hand arm and leg on my left side I can walk I have a lot of pain and my neurologist and primary doctor will not refer me to pain management I don't understand this it's it's horrible
Hi elyse. Thanx. In my case your right that I've heard them all before. You do a better job than many of explaining them and a more complete job of cataloging them in one place. 👏 You might like to look up Ebbighaus curves and read a synopsis of "make it stick" by roediger mcdaniel & brown (or read the whole thing!). Other relevant capability development topics include synaptic pruning and sleep. Perhaps lessons in child development apply to post stroke capability development? I also wonder if there is a cross over between some things observed in autism and stroke eg stimulation overload. I think your vid still has elements of confusion eg specitivity vs generality and practice in context. Also you omitted the discussion of Random here which has a bearing on pruning / retention. I speculate that Neuro development and muscle development are differently related to the need for repetition but the common vocabulary and thus mental model and thus approaches to rehab conflate (unhelpful) the two. I also speculate that the observed plasticity as stronger with in the sub acute phase has other cause (if only contributory & not main) than implied by therapists. E.g. It is the phase when access to therapy is easier. I wonder if there aren't factors in play such as side effects of brain chemistry change post trauma that also have effect? Good and bad. Lastly I've leaned to walk twice. Once at 0 onwards and once at 63 onwards. 1st time around I progressed that into running, climbing etc. 2nd time ive been much faster to progress to walking but haven't worked on progressing further so haven't progressed. I suspect I could and can (& should!). I'm struck by the comment above "I still dress as taught, (I haven't progressed my habits as my body has gained ability)". Learned Non Use is insidious and powerful. I wonder what evolutionary purpose it serves? We need (I use some but I suspect not all I could) strategies to overcome it. More would be welcome - any ideas? If you would do more vids on (re-) developing finger dexterity & eliminating spacticity that would help me and I suspect many others Keep up the great work :) Simon
@simonharris, Thank you for your kind words and thoughtful discussion! I appreciate the recommendations on reading material. I do try to stay up to date! You may find my video on Task-Specific Practice (Titled "Do This To Boost Hand Function) which takes more of a neuromuscular reeducation stance (motor learning + neurodevelopment) and includes the random principle as well as reinforcement (feedback)! Yes to more strategies to overcome learned non-use! It is one of the hardest things to change once learned. There is good evidence for the use of Constraint Induced Movement Therapy (and also the Modified version) to cause forced use of the affected arm and hand. It's primarily been studied in the upper extremity. Thank you for the suggestions on video topics (dexterity and spasticity). Will definitely put those on the docket! :)
Hi Elyse, yes I do want to learn how to play violin but I don't have any movement on my left arm. I can't even hold or grab simple thing. What must I do first? 😘🇦🇺Thank you for your inspiring info.
@ginaouranios, Great question!! If you don't have movement at all, my go-to suggestions are typically mental practice, mirror therapy, weight bearing, and e-stim (always double check with your doctor if you are cleared for e-stim). You can try one at a time or blend them together!
I had my stroke last November and my left arm is paralyzed as nowex gamer itsbeen very depressing the rehab facility I was in didn't try to break my left arm paralysisIm just turning 47 years old
Hi, my wife had a stroke on Sunday. (Laci) she is already speaking but slight bit slerd (sounding drunk) also the left side cannot seem to move and starting rehabilitation
I’m so sorry to hear about Laci’s stroke. Advocate for as much therapy as they will give her ❤️ I hope you’re doing okay, too. It’s a very traumatic thing to happen. Please take care
Thank you for that information. I am on my almost 7th year after my hemorrhagic stroke affecting my right basal ganggia. I want to ask your opinion on my case. At the moment, I'm basically OK. I can walk with a cane for my safety in areas that are not familiar with me. Do you think I will still improve my walking?
@victoriatuibeo, You are so welcome. Thank you for sharing your experience with me! ❤️ Personally, I think there's always the possibility to improve, with repetition and consistency. I've worked with people 15 and 20 years out from their strokes and have seen improvement. You may not get back to "100%" but progress is still possible!
@dorialclarke, No one can promise that someone will make a 100% recovery but I do think that some progress is still possible regardless of how long it has been since your stroke. It takes putting in the work every day to really make those brain changes!
@contactcpl, Great question! I can't ever promise someone will recover 100%, but progress in recovery is always possible! Our brains are able to change and adapt. You may find this video helpful in answering you question in more detail: ua-cam.com/video/PUfW-CySHas/v-deo.html
Hello
Greetings from Western Australia
I had my stroke July 16th 2021.
I am 65
I have had to give up work
I am going through suicidality , financial stress , loneliness and being lost in life . Needless to say that having a stroke was not part of my life goals. I am coping somehow.
Part of my pre stroke life was playing guitar .
My right hand side was deeply affected.
I picked up the guitar and I could not strum the guitar properly.
I kept on trying and after about a year I can hold on to and use a plectrum.
I also use the control from my PS4 to move/exercise my right hand.
What you say is true.
Nearly up to two years in my recovery.
What will the future hold ? I don't know.
I will however not suicide as I want to know what the future holds for me.
God bless you
I had my strokeaversary this week. I had never considered what you said about interfering with my own progress. I still dressed the same way I’ve been dressing for the last year, and it never occurred to me to try and incorporate my affected side now that there’s some movement there. Thanks for your awesome videos. I told my neurologist and rehab doctor about your channel and how much it has helped me and encouraged me. I also really appreciate your emails as well. Both doctors wrote down your name so they can come check your channel out.
@heatherguill, I hope you're doing well this week. I know some people celebrate their strokaversary and others don't want to think about it. I'm glad this video helped you think about your recovery a little differently! Thank you so much for your kind words and for sharing my videos with your physicians! ❤️
My husband had a massive stroke. It's been almost two years now. Someone days he is good other days it's a struggle. We have been married for 28 years. I will not leave him. Thank you so much for sharing valuable information. Have a great day.😭
Thank you so much for sharing a bit about your story. Being a caregiver is one of the hardest jobs in this world. As much as you can, please remember to take some time for yourself, too. Wishing you and your husband a happy and healthy New Year ❤️
@@PostStrokeOrg Thank you for replying. Happy Holidays to you.
@@CreativeThinking52 💭
great dr elyse is a genius
Your videos have really helped us. My husband had a stroke last May (2022) and my question is what do you think about mirror therapy. We were told about it when my husband was still in the hospital so as soon as he came home he started using it when he could. Some have suggested it takes thousands of reps for it to make a difference. That seems out of reach so I wanted your advice. Thanks for such great videos.
It has been 1 month and 2 days since my stroke. Your channel inspires me. Thank you so much!
I hope you’re doing well and continue to heal❤️ and thank you for the kind words!
Thank you for your channel! I'm 2 years post-stroke (and recovering nicely), but I still watch your vids and am always learning new & useful info 🙏
@kennywood, You are so welcome ❤️ I'm so glad to hear that your recovery is going well!!
I had a stroke May 18 of 2018 I went into a coma, and so during the early recovery time that you had mentioned, I was in a coma and not able to have physical therapy. During that time. I have always had a positive outlook and I never gave up, in my mind thinking that I will not recover. Do you think that I have the chance to regain the ability to walk again with the current physical therapy because I have not received much physical therapy from the facilities that I have been in for instance, they don't allow me to take steps, which is what I so badly want to do, they put me on an exercise bike instead which I do three times a week and they have a little pedal bike in my room that I ride as well. My stroke affected my left side. Do you have any suggestions on what I can do to further advance myself with my goals. Thank you very much.
Thank you, im right at 1 year. I dont celebrate because its been too much of a burden in my life. I didnt get pt right away cause it made me dizzy and nautious. Still does. I was able to do pt after my 2nd operation. 4 months after stroke. I have no memory of first two weeks. I walk, but find it difficult. I have found this all hard and i wish it never happened.
Thank you for sharing your experience. It can be so difficult to remain optimistic after a traumatic experience like a stroke. Have you been able to see a mental health professional since your stroke?
I really appreciate how you make such complicated topics something my post stroke brain can absorb. I've watched lots of your videos and have put many of your teaching and workouts to good use, thank you! I wonder if you have talked much about "crossing mid-line" already? I keep hearing it's good, but I'd like to understand more about it. Much like "Neuroplasticity" has been talked about before now as a good thing, but I didn't have such a clear understanding of how to use it in recovery.
Thank you so much for your kind words and for your suggestion!! Wonderful topic that I definitely need to make a video about it. I really appreciate your input ❤️
Im not good in english but becouse ur good i understand all ur explanation. .i am filipina .and im stroke patient and 7 months in recovery thank you very much maam ellyse really help me a lot.😀😀 Sorry for my englesh
@josiemojica, Don't apologize. Your english is great! And I'm so happy that you are able to understand my explanation 😊
That’s right. If I don’t do something for a long time, it’s difficult to pick up later down the road. I can’t slack off
@stevekierstead, Absolutely! It's true for all of us. My examples come from experience. I took piano lessons when I was in elementary school. While I still remember the basics, when I start to play again I am SO rusty!
Thank you, most helpful.
I really appreciate you for this space & your channel, it helps with so much in knowledge & common-sense, look forward & looking forward to your content & more content every single day 🌻💞 - Alison
@alisonquadros, Thank you so much for the kind words. I'm so glad you find it helpful! ❤️
This whole experience is so challenging
@clementjanis, I'm so sorry. The feedback I almost always get is that having patience with the recovery process is one of the hardest things about it. The brain recovers slowly and not at the pace we'd like to go. It is so hard. ❤️
Madam im hemipledgic patient myleftgand fingers not working this is my4thyear starts is there is chancespls reply.
I bought a keyboard 🤷♀️ it’s helping
Had my stroke 8 months ago I have movement in my hand arm and leg on my left side I can walk I have a lot of pain and my neurologist and primary doctor will not refer me to pain management I don't understand this it's it's horrible
Very useful information for the stroke recovery patients, thanks a lot and waiting for new videos🙏
I am from India i would like to share one my incident, i got chronic infract i am not able to speak properly
Hi elyse.
Thanx.
In my case your right that I've heard them all before. You do a better job than many of explaining them and a more complete job of cataloging them in one place. 👏
You might like to look up Ebbighaus curves and read a synopsis of "make it stick" by roediger mcdaniel & brown (or read the whole thing!).
Other relevant capability development topics include synaptic pruning and sleep. Perhaps lessons in child development apply to post stroke capability development? I also wonder if there is a cross over between some things observed in autism and stroke eg stimulation overload.
I think your vid still has elements of confusion eg specitivity vs generality and practice in context. Also you omitted the discussion of Random here which has a bearing on pruning / retention. I speculate that Neuro development and muscle development are differently related to the need for repetition but the common vocabulary and thus mental model and thus approaches to rehab conflate (unhelpful) the two.
I also speculate that the observed plasticity as stronger with in the sub acute phase has other cause (if only contributory & not main) than implied by therapists. E.g. It is the phase when access to therapy is easier. I wonder if there aren't factors in play such as side effects of brain chemistry change post trauma that also have effect? Good and bad.
Lastly I've leaned to walk twice. Once at 0 onwards and once at 63 onwards. 1st time around I progressed that into running, climbing etc. 2nd time ive been much faster to progress to walking but haven't worked on progressing further so haven't progressed. I suspect I could and can (& should!). I'm struck by the comment above "I still dress as taught, (I haven't progressed my habits as my body has gained ability)". Learned Non Use is insidious and powerful. I wonder what evolutionary purpose it serves? We need (I use some but I suspect not all I could) strategies to overcome it. More would be welcome - any ideas?
If you would do more vids on (re-) developing finger dexterity & eliminating spacticity that would help me and I suspect many others
Keep up the great work :)
Simon
@simonharris, Thank you for your kind words and thoughtful discussion! I appreciate the recommendations on reading material. I do try to stay up to date!
You may find my video on Task-Specific Practice (Titled "Do This To Boost Hand Function) which takes more of a neuromuscular reeducation stance (motor learning + neurodevelopment) and includes the random principle as well as reinforcement (feedback)!
Yes to more strategies to overcome learned non-use! It is one of the hardest things to change once learned. There is good evidence for the use of Constraint Induced Movement Therapy (and also the Modified version) to cause forced use of the affected arm and hand. It's primarily been studied in the upper extremity.
Thank you for the suggestions on video topics (dexterity and spasticity). Will definitely put those on the docket! :)
Hi Elyse, yes I do want to learn how to play violin but I don't have any movement on my left arm.
I can't even hold or grab simple thing.
What must I do first?
😘🇦🇺Thank you for your inspiring info.
@ginaouranios, Great question!! If you don't have movement at all, my go-to suggestions are typically mental practice, mirror therapy, weight bearing, and e-stim (always double check with your doctor if you are cleared for e-stim). You can try one at a time or blend them together!
I had my stroke last November and my left arm is paralyzed as nowex gamer itsbeen very depressing the rehab facility I was in didn't try to break my left arm paralysisIm just turning 47 years old
Hi, my wife had a stroke on Sunday. (Laci) she is already speaking but slight bit slerd (sounding drunk) also the left side cannot seem to move and starting rehabilitation
I’m so sorry to hear about Laci’s stroke. Advocate for as much therapy as they will give her ❤️ I hope you’re doing okay, too. It’s a very traumatic thing to happen. Please take care
Thank you
awesome...
My right side feet and hand no control.
Thank you, God bless you 🙏
@anjumafshan, You are so welcome ❤️
Thanks a lot, you gave me a lot of information 🙏
Thank you for your explanations
Of course! 🙂
Bliss madam Hindi mein bataiye
Thank you for that information. I am on my almost 7th year after my hemorrhagic stroke affecting my right basal ganggia. I want to ask your opinion on my case. At the moment, I'm basically OK. I can walk with a cane for my safety in areas that are not familiar with me. Do you think I will still improve my walking?
@victoriatuibeo, You are so welcome. Thank you for sharing your experience with me! ❤️ Personally, I think there's always the possibility to improve, with repetition and consistency. I've worked with people 15 and 20 years out from their strokes and have seen improvement. You may not get back to "100%" but progress is still possible!
Can I get recovery after 6 years. My entire leftside is weak from head to toe.
@dorialclarke, No one can promise that someone will make a 100% recovery but I do think that some progress is still possible regardless of how long it has been since your stroke. It takes putting in the work every day to really make those brain changes!
Awesomely, Queen 👑 of rehabilitation 🌹🍓
@hoorainzaheer, haha thank you!❤️
very usefull
Yes
after strocked 3 years ago, can recovery ?
@contactcpl, Great question! I can't ever promise someone will recover 100%, but progress in recovery is always possible! Our brains are able to change and adapt. You may find this video helpful in answering you question in more detail: ua-cam.com/video/PUfW-CySHas/v-deo.html
❤❤❤ thank you how are you?
Aapka video mere ko Hindi mein translate Karke
@annusharma, As mentioned before, unfortunately, I don't have someone who is able to help me translate into Hindi at this time.
?Ř????ϻ ?
Thank you I needed that
Hi thank you for all u do I go to the YMCA and work out but I feel like I get more working out with u so I need this thank you
THANK YOU SOOOO MUCH...THESE ARE GREAT TIPS TO TAKE UP !!
@octoberopal, You are so welcome!! Glad you found them helpful 😊
So nice
God bless you abundantly
@antonyraj, Thank you for your kind words ❤️
Thank you.. God bless you
@ektamomaya, You are so welcome ❤️
thank u i just get stroke this videos u have are helpfu ❤
❤️❤️
Great ideas
@gloriadlondon, Glad you like them! - Elyse
Good stuff
@clementjanis Thank you! ❤️
Thanks!
Thank you so much!! We appreciate you more than you know!
Thank u maam
So welcome!
Hi Elyse, what is your email? Is alright to send email to you rather than post comment ?