I’ve lived with glioblastoma for 7 months , I’ve done 6 weeks of intense radiation and I’m still in active treatment for chemotherapy. I’m about to turn 23 in June. I sometimes still can’t process all the things I’m experiencing. I’m still waiting for it to feel numb. It’s hard living with any form of cancer but when it’s inside your head it’s a different kind of torture. I pray for everyone out there suffering that you make it and enjoy your life.
We are so sorry for your diagnosis! This is a devastating disease and our team is working tirelessly to contribute to a cure. Please reach out if we can help you navigate this diagnosis!
I'm.not one to prey cos .not religious but I'm.going to for you , Ur too young n deserve to live , I'm.in Australia, so as they say from.here , cheers my friend n I wish you well x
My wife Penny was diagnosed 13 1/2 years ago with glioblastoma. She was 62. She is thriving now with only minor short-term memory issues and word recall problems occasionally. She did only standard of care (resection, chemo, and radiation. She turns 75 next month. We expected 6-12 months of survival. There is hope people.
That’s amazing, could you please recommend measures or actions due to which your wife survived? My dad has been diagnosed with gbm an year ago and now it has reoccurred.
@@abhidhaverma8712 I have no idea. She did SOC only - no supplements or life style changes. She is a very upbeat, optimistic person. However, I am sure that could be said of many who do not survive also. Plain luck is all I can attribute her long term survival. Good luck to you and your dad.
@@Moist819 thank you so much for your reply, I really hope that we get lucky as well. Seems there was no reoccurrence. Wishing her many more happy years! If you don’t mind was it unmethylated Glioblastoma?
My father died at the age of 41 with a glioblastoma. I was 17 at the time. My mother was left with 4 children to raise by herself. My mom and my dad were the two strongest and good people I ever knew! I miss them both so much!
its funny how the word strong is like wonderful the thing is..what else can you do but be strong I LOST HUBBY MOTHER DOG FREIND WITHIN 8 MONTHs HUBBY CANCER MOTHER BRAIN BLEED DOG KIDNEY FAILURE FREIND CANCER OF THE BREAST..SO NOW IM ALONE,YES STRONG BUT WHAT ELSE CAN YOU DO ,WE DONT HAVE A CHOICE ,OK THANK, so no strong isnt the correct word having no choice but to be weak is not good for others, selfish of others to think that.ok
@@yvonnespearing I am sorry I don’t understand what you are trying to say. My mother and father were strong in so many ways not just facing cancer but in their every day lives. I am so sorry you are alone. I will pray for God to send people into your life who will bless you in every way.
We are so sorry for the loss of your father. ❤️ Our team understands how devastating this disease can be on the family and their loved one. Our team is working hard to contribute to a cure and improve the outcome for patients dealing with this diagnosis.
@@IvyBrainTumorCenter thank you! your reply means a lot to me! It’s wonderful to know people Understand this terrible disease. Those of us left face the fear we may have to go through that one day. I hope if I ever do that I can be as strong as my father was in dealing with the pain!
My adult son was diagnosed with glioblastoma in April of this year. Hospice became involved immediately, and he passed in June while I was caring for him at home. Such a fast moving relentless cancer. Thankfully he went to be with the Lord very peacefully.
I'm sorry for your loss. However I believe there is life after death. I'll be also undergoing radiation therapy for my prostate cancer which I was recently diagnosed few weeks ago.
My dad was diagnosed with glioblastoma (brain) in Nov 2021. After a week, around 60% had been removed via major operation. Based on his current condition (weak), we could only go for radiotherapy (15 sessions). i’m here with my dad in the hospital. help us to pray for my dad, so that he wouldn’t give up in this fight.
My husband was diagnosed with this in March 07 and passed peacefully at home with me and our boys around him in May 08. He was 54 and was brave throughout. Miss him every day. 💔
My first wife was diagnosed 5th Feb 2008, after every religion going praying for her she passed March 22nd 52 years old. Nasty disease, no gods did anything.
We are so sorry to hear about the loss of your husband. ❤️ This disease is very devastating and our team is working hard to contribute to a cure and change the outcome for future patients.
My Brother had this. He lasted 2 years. Couldn't do surgery because it was in the middle of his brain. He was courages till the end. I miss him. He was my best friend. He was 47.
@Ms. Farrell: So very sorry for your loss Ma’am. Your brother sounds like he was very courageous and battled this cruelest of cancers for 2 years. I hope you were physically with him as much as possible. My Mom passed from Glioblastoma in 1989, but feels like yesterday. ☮️
This Monday 8th of November will be my son Tony's 1st anniversary. He passed away with this. He was 32. We are still numb. Please stay strong sending prayers and hugs from Scotland
The amount of “my so and so died from this” comments on here and they say this cancer is one of the rarest yet it seems to be so common now, it breaks my heart. Here’s to hope for a cure one day
My husband has glioblastoma stage 4 . They removed his tumor in May, and it grew back in October. They removed his tumor for the second time. He did chemo and radiation, and it grew back bigger than it was the first time. He is now on hospice. They say he is in the last stage of life.
Oh my goodness, I am lifting up huge prayers right now for your husband, you, and your family! I'm so very sorry you are going through such a horrific ordeal! :(
Your journey is not going to be easy, I know, I am trying to get by after loosing my son in June, to a different rare cancer. May you and your husband find strength and peace.
My husband was diagnosed with glioblastoma at Christmas 2022 he is still here but his cancer has spread he is so brave its a heart breaking illness and I know I'm going to lose him I feel so sorry for all of you out there that are struggling with this awful cancer I pray that one day they will find a cure love to you all 😢
My dad passed away in 2000 from a glio. It was in his frontal lobe, he was diagnosed at 36yo and we had him for 4years. Which, for 1995-2000 time and a glio is unheard of. MD Anderson was aggressive in their treatment and sent him to Boston and Phoenix for clinical trials once they ran out of options. While he was with us for that time, he truly wasn’t. He was never the same after his first surgery. I was 16 at the time and would give anything for 10 more minutes with my daddy. I hope the clinical trials my dad went through, give someone more time with their families 💜 Special shout-out to those taking care of these patients. May you continue to provide care, support, compassion and CURES
We are so sorry to hear about your father❤️. Thank you for sharing your story and showing your support for caregivers and brain cancer research. We hope you are doing well.
My mother was diagnosed with glioblastoma on middle of brain 3 years ago we did her sucessful operation in September 2020 then took 2 months of radiotherapy and then chemotherapy for a year Her left side of body got paralised now a month ago 22 april she died. She survived for 3 years and 6 months i hope may god gave her place in heaven
I was born with a benign tumor so it was basically nothing . . . But it came back in 4th grade, and at that moment, I realized . . . You don’t know how long you’ll get to live your life, so live your life everyday!
Lost our son to a glioblastomas at 45yrs. In ,2008. We raised out granddaughter who was a teenager. From diagnosis to death was only 3 months. Hate cancer.Blessings to all who have lost a loveone.
My wife had a tumor removed a month ago and is now on chemo, and radiation for the next 6 weeks, she has lost some of her vision in her left eye, and has issues with her left hand and foot, they did an MRI and said the cancer is back, she’s 57, Our lives have changed, it’s a tuff battle and she is trying to stay positive, I’m hiding My tears from her, praying for the best.
Deeply sorry for your loss, my mum got diagnosed with Glioblastoma on April this year (2021) she can't go through to any operation due to the location of the tumour, it almost 8 months now and she is doing great! She's having problem with her right side, her speech and her memory but apart from that she doing really well. Thank God our saviour for miracle
We are so sorry for your mom's diagnosis.❤️ We are glad to hear that she is doing well. If you are looking for a second opinion on surgery or treatment options, please visit: www.barrowneuro.org/patient-care/your-journey/im-looking-for-a-second-opinion/
@@yoseffreedman6926 absolutely get a 2nd opinion and molecular testing so you know what medications or clinical trials he'll be eligible for. As I explained elsewhere on this forum, we waited too long and the medicine they were giving my husband wasn't working at all. God help us all, this is a journey from hell. The worst part is being helpless and not able to control your loved ones symptoms as you watch in horror as they slowly die every day.
We are so sorry for your loss ❤️❤️. Our team understands the devastation that this disease can have on families and their loved ones. We are working hard toward contributing to a cure and improving the outcome for others dealing with this disease.
My twin sister was diagnosed wIth GBM with mild stroke symptoms. She had surgery two days later to remove tumor. Three weeks later it had grown back completely so had surgery again…she died six weeks after her diagnosis without ever making it to chemo/radiation. Horrible shocking disease
My uncle has same issue. Operated first time, well recovered but within 2 weeks he fall sick and we identified it's grown agin. We did another operation last week. Don't know what will happen next week. Please help me to understand, what happen to ur sis post second surgery, so I can take precautions, thanks
My brother had just turned 60 when he died from an inoperable Glioblastoma. He said he had had a good life and had been fortunate to see his two daughters grow up. others are not so lucky. So sad about Ryan as he was a young man with a young child.
My ex died from a gbm frontal lobe. From diagnosis he made it about 5 months. I think it’s crazy how so many people have gbm’s. There has to be a common denominator. It’s 2021 you would think we would have some solutions by now. Prayers to everyone
My husband was in the navy. He died at 44 yr from GBM. Had surgery and treatment. He was good for maybe 12 months. Our daughter was 10. I loved the hospice experience and watched for him to see spirits etc. He did and he would giggle and grab at the air ( because he could see the spirits). I laid with him a lot and he had a moment of clarity the day before he died. It was beautiful.
My daughter had a GBM, but she had an excellent surgery. Last year she had a re-occurrence after 9 years, but it was a non-graded astrocytoma. That was a year ago this month. Life is precious and we know how freaking lucky to be way outside the curve! Bless Brian and his family.
@Diamond her first symptom was a seizure at home. Then when she was in the ER she had a grand mal seizure so they sedated her and did a CT scan. She just had an MRI yesterday and they said you can go to every three months now🙏💪
Lost my mother in Sept 2014 of the same tumor; found in Jan 2014. She was such a strong, smart and professional lady and to watch her reduced to bedridden and unable to care for herself was beyond anything I could comprehend. I feel that there may have been other options for her that were never considered by the professionals; but now we'll never know. My sympathies to all families that have watched a loved one pass from this type of tumor.
We are so sorry for the loss of your mother❤️ . This is a devastating disease and our team is working tirelessly to contribute to a cure and improve the outcome for future patients.
@@IvyBrainTumorCenter This is a horrible disease. Does the Ivy brain Tumor clinic have a site to donate brains? How could I do this for GBM research? We are in PA.
@@traceywilson56 It's fast growing deadly disease. It's 21st century but still why we don't have proper treatment of this disease? My cousin got traced Brain cancer. Now we r counting days 💔😥
It is a shame that millionaires can vacation in space but the treatment for cancer is much the same as it was 43 years ago. It is such a helpless feeling when doctors look at you and say there is nothing they can do, RIP
@@shawnahenry2228 Just seen your reply, i remember i was 17 and went in office with my sister in big Hospital in North East where he was patient, Doctor said they could not operate and he had 6 months to live, that was December 1978 and he died February 1979! 2 months later. Surreal is all i can say and helpless and what really upsets me Brain Tumours are still a death sentence!
My 66 year old brother died from Glio 5/30/24 after 15 month courageous battle. Celebration of life in Houston TX, June 17, 2024. He was unflappable in his gallant effort. Gonna miss him. R.I.P. Coggs
My dad passed away in last October 10. he survived 22 month after the diagnosis he was just 53 when he passed away I hope he got place in heaven. Rest in peace dad
I lost my brother to glioblastoma 10-5-10, he was 46. We fought for 17 months along side him the whole way, continuously surrounded by friends and family. He died peacefully at home with our mom holding him in her arms, same as the day he came into this world. All my brother wanted was for the Lord Jesus to be glorified no matter the outcome, and He was and forever is! My heart is full for all of you who shared the loss of your loved ones ❤️
We are so sorry to hear about the loss of your brother. ❤️ Our team is working tirelessly to contribute to a cure and improve the lives of others suffering with this disease.
@@ololubebenitah6134 They started with frequent headaches and vision problems. It wasn’t until he had a seizure that he was diagnosed… of course immediate surgery, chemo, radiation, clinical trials in Houston Tx. Eventually loss of cognitive functions, vision, speech, paralysis, organ failure, sepsis then he passed. He just slowly deteriorated over 17 months. In that course of time there were many other symptoms, but too much to go into, I just wish to keep it simple. It’s still hurts, but I am ok to reply to you. ❤️🩹
My mother died about 22 years ago from glioblastoma. I've just heard diagnosis figures have doubled in twenty years. Her local doctor just told us we both needed to see to see a psychologist, when we demonstrated our difficulty talking to each other in front of him. I saw later that my mother tried to write and her handwriting was declining. She had a strong accent from Europe and Australian doctors could not understand that she was telling them she felt pressure in her head. I was looking after her for months without a diagnosis. For some respite, as she was getting up in the middle of the night, and I had my own medical stuff, I had her stay a week in a local hospital - on my side of the state border. The head nurse asked how old she was, as friends thought she looked 60. When I said 76, the nurse said that many old women point to their head! She was indicating where the cancer was. We lived in Australia, but I can't believe that we're in the year 2023, as fifty years ago when people went to the moon, it was expected that most cancers would be cured or managed by now. I was told, I had three to five years life expectancy in 1987, for a different incurable illness at that time, so I've always been keen on finding out what variables affect our health. Since there was no treatment at that time, I had to look into naturopathy to extend my life until there were orthodox treatments that worked. Now, most of my family and all my friends have died for one reason or another. Isolation has been terrible, when we live near Australia's bordering states with 'lockdowns' causing more stress, and lowering my immune system. I have constant shingles, and must fight orthodox state medicine for high dose acyclovir, as no-one is supposed to have shingles constantly. Our medical system seems to only deal with certain medical conditions, but not more complex cases, when we have side effects such as iatrogenic auto-immune conditions from being a guinea pig to programs that have us inject ourselves with Interleukin II - way above the natural amounts that help the immune system. I though I was having auto-immune renal thrombosis again, and took an ambulance into a hospital. It was during Covid-19 peak times. They tested me for Covid - which was positive, and then scans said I had multiple lymphomas around the waist. But, they then got me to leave at 10pm. Medicine appears to be absent these days. About five years after my mother died, an Australian man, diagnosed with glioblastoma at 35 years old, was lucky that his uncle in Norway was studying Glioblastoma, and went to Norway, and seemed to receive some success in treating it. But I could not find any follow up about this. Another man on UA-cam managed to survive more than ten years with his combination of treatments. My mother's specialist said it would have been too distressing for my mother to have surgery, as it was very large by the time a hospital diagnosed her. She had started hallucinating by this time, but was able to speak French when I took her home for a few weeks. It was distressing for me attempting to talk to my mother in hospital in a ward of four patients. [It was odd. The room she died in seemed to be the same one I had nearly died in in 1986. My brother died in hospital after bleeding after surgery - with no doctor available at four in the morning. Mother died 15 months after my brother. I wondered if this triggered her glioblastoma. My brother had caused a lot of stress, and put a microwave oven in her kitchen - at head height. Mother would stand watching things in it after Robert died. She also used electric blankets, sat too close to electric heaters, and I gave her a cordless phone. If I wake up with a headache, it's very likely that my mobile phone is right next to my head in bed. I've also experienced terrible headaches and nausea from high-pitched emissions from my heater. The nausea immediately stopped when the thermostat switched the heater off. A friend also looked after his mother at home with glioblastoma. Our mothers were both of Germanic stock. Surely data should have been collected about any aspects in one's life that may be related as to why people get certain illnesses. My mother's specialist just said, they have no idea what causes glioblastoma, and that they won't have any useful treatment for another thirty years! However, all data is on the WWW computer of everything, and available for the elite rulers in control who build shelters deep underground for probable Earth disasters. There's no profit in curing people, but $Billions in keeping people alive with illnesses that need constant expensive medications.
My boyfriend just retired from being a cop due to having glioblastoma. He was diagnosed in January, it's almost August. I thought maybe we could enjoy our time that we have but it's not like I imagined, its a roller coaster with ups and downs and his out of control anger. I pray for everyone going through this disease to find a miracle and to overcome all obstacles.
Glioblastoma really is a deadly cancer which is taking the young and old. Treatment hasn't really progressed in 20 year's which is shocking. Because they say that glioblastoma is still a relatively rare cancer it only receives 1% of research funding here in the UK! This is astonishing to me, more needs to be done to try and find better treatment for this awful cancer R.I.P to all those who have lost they're life to this devastating cancer. 💕🙏
I am trying to find a place to donate my husband's GBM inflicted brain for research and can't even find an option specifically for that. Doesn't make sense at all.
This has to be one of the worst cancers of them all. I mean, they all suck, but this one especially. It's completely relentless. With so many other cancers there are glimmers of hope. There are testaments of people beating, or living for many years with some Stage IV cancers, but with this one it is literally all just doom - most not living much longer than 1-2 years after diagnosis. There are very few people on this Earth that truly deserve this cruel disease. So unfair. I hope one day there is a breakthrough in medical research of glioblastoma, so that future patients can live longer, and hopefully even one day be cured. RIP Ryan - you gave it your best.
Glioblastoma is always terminal. My MIL was diagnosed in Oct 1995 and died only 2 months later in Jan 1996. Going through all the radiation treatments and rehab was hard on her and left her immune system weakened and vulnerable to infection. She actually died of sepsis, not cancer. During the weeks of her treatments she was miserable, stayed in her bedroom crying and praying. She was a good hardworking housewife and mother who felt God punished her. She had always supported the clergy of her Catholic Church, but they ignored her when she needed them most. A tragic end to her life at age 78. Sometimes the treatments are worse than a quick death. Her family wishes she had passed away on the operating table so that she would not suffer such grief and depression.
Bei Glioblastom 4 gibt es keine Rettung.Die Operationen,Chemo und Bestrahlung verlängern nur das Leiden.Am besten man geht in ein Hospiz und stirbt in Frieden 😢
My twinbrother passed away last september, with only a few month of glioblastoma. Such merciless cancer. Only 47 my brother became before he died. So suddenly it happened.
My mother in law was diagnosed with glioblastoma in May 2023. She passed away in September 2023 due to the collateral effects of chemotherapy treatment (temodal). So sad to be forced to see such a beautiful woman in those horrible conditions in a very short time. She was 60 yo.
My husband was diagnosed with the monster GBM in 8/2021, he passed away 8/2022. He was and forever will be the love of my life. All he wished for was to retire. He would be 65 this November.
@@zuclinator It's not true in every case. There are people who have survived, so this is a lie. It's likely that you're going to die but it's not guaranteed and they have a lot of nerve to steal that hope from people.
my husband and his brother both had glioblastomas they died 8 months and five months after being diagnosed its a relentless disease and my heart goes out to all the people that have beat this wicked tumour the day will eventually come when the scientists will have a cure but until then all we can do is pray for a miracle please all take care
Deeply sorry for your loss and anyone's loss of a loved one. I think we all have someone who has been through cancer, loss someone from this dreaded disease. Peace to all and take care of your loved ones. Australia
I lost my dad to this, he'd never been sick in his life, never went to a doctor. He was 71 when diagnosed, he lasted 56 days. It was nearly 30 years ago, so hard, the whirlwind of it all, it made me fearful for my health ever since. My mum died at the same age, different thing, but she was never sick either.........Dad had sudden stress at the time with a property matter, the neurologist/oncologist said it was usual in younger people, he thought that the stress had caused it.
@@IvyBrainTumorCenter thank you - even now all these later every time I read about somebody going through this, it reminds me.....it's 30 years next week - so much more research needs to be done in this field.....so little done.......we were told no hope, it took a while for anyone to take us seriously, by the time we did get my dad examined properly, we had 21 days left!
@@ianoulla That is awful. The pain you still feel just shows how much love you had for your father, he must have been a wonderful man. My husband has been wonderful as well, but this tumor has changed him & I hope I remember him as he was and not the agitated hurtful person he has become with this monster in his brain. When the tumor returns so aggressively, it is just devastating. May your dad rest in peace.
@@traceywilson56 oh Tracey.....you are going through a lot which I do sympathise with. My husband has various things wrong with him, also prostate cancer. He won't listen to good sense and Im afraid the drugs etc and these illnesses have changed him and i too now have to live with someone whose personality has been completely changed by illness. Im thinking of you......
@@ianoulla I am so sorry you are also dealing with these issues. I pray both you and your husband will get through this with compassion. My heart goes out to you because I know how much it hurts when the personality changes start. It is so hard to come to terms and finally decide to just let your loved one go. I often wonder if the personality changes are actually for our benefit, so we realize it's not fair to keep them alive for us anymore or that we need to step back and let a caregiver to the difficult stuff, so all we have to give them is love and support, without being the the one they direct their anger to. We begin to feel as if we are being cruel. It is so hard when we are just grasping at any chance of hope to help the one we love. Death is so cruel, perhaps God should not have rested that last day, and found a better way for this to happen. Sending hugs your way.
My friends wife has this currently. They have a small son, so sad. Cannot imagine what's going through there heads at the moment. Videos like this are inspiring, but show you that ultimately cancer will win this battle.
We are so sorry to hear about her diagnosis and we are wishing her the very best.❤️ This disease is devastating and we hope to provide an avenue of hope for these patients. Our team is working tirelessly to contribute to a cure.
I hate this cancer so much, there's no dog gone cure, it's taken so many kids lives, it's a death sentence! Something about this cancer, needs to be done!🥺
Moja cerkica je operisana od gliom sa13 godina i posle dve godine je javila endem paraliza na desnu stranu i skros je prikovao za krevet ...umrla je za 6 meseci 22 septemvri 2021 godine
They are so aggressive and grow back because when they take the tumour out they cannot get all the cells, My farther passed away from a Glioblastoma stage 4 brain tumour in 2006.
A glioblastoma took my sister's life in 1993. She was 51. I am 12 years younger and she was my best friend and mentor. It broke my heart. I had forgotten this word. I'm very sorry that Ryan lost his fight. My condolences to his family and friends. 😢 She had surgery to remove as much of the thing as possible at Scripts in La Jolla. Interestingly, my mother had a brain stem tumor that was successfully removed, but my other sister died from metastasis of melanoma in 1961 at the age of 17. Pops died of cancer in 1981. Seems we're cursed.
My Dad died at 52 years old in 1979 with a front lobal brain tumour, and it saddens me that far to many people are still dying of Brain Tumours! They need more research and more better methods of dealing with them.
We are so sorry for your loss ❤️ The Ivy Center is working toward contributing to a cure and providing new therapies to patients suffering from this disease.
@madelainemadelaine2934 So sorry for your loss. I think of my Dad every day, and he's been dead 45 years. They don't want a cure for it, that's why. All down money.
I remember when that news anchor died. Now my brother has it . Surgery, then stroke on operating table. Surgery in February, now at home not doing so well ( September). Wife totally hopeful thru the Lord. Ugly disease. Tumor was size of large baseball. Pray for Bill. Thanks.
My partner passed last year with inoperable liver cancer, we never ever gave up, even up to his last day, the last thing he said to me was everything will be on now your here, he was in a hospice and I laid on his bed with him and cuddled him till he fell asleep for the last time xx
My brother (eldest) died with glioblastoma after 2 surgeries to remove as much as they could. It was like an octopus, and getting all the parts out surgically would have killed him immediately. He survived about nine months from the first diagnosis.
My dad was diagnosed with glioblastoma in august 2022 and now his Tumor has reoccurred in may 2023 and the present scan in July shows that the size has increased and Tumor progression in evident. He doesn’t appear to be weak and is very much enthusiastic.
Hi @abhidhaverma8712 My dad is going through the same thing, we operated and removed his surgery but he is having glioblastoma grade 4 cancer and we have not yet started his chemo and radiotherapy, can you please tell how are you coping up with this?
My father has this tumor.. I hope he recovers. I cannot imagine life without him.. He will start chemotherapy and radiation because the operation is not possible despite the small size of the tumor, but the place is dangerous
My dad was diagnosed with Glioblastoma early this year in January. January 23 just a week after his 70 birthday. The location where the tumor was located made it impossible for an intervention to remove any part of it. (Splenium area). There was nothing we could do unfortunatelly. The tumor was so agressive, my dad lasted only two months and passed away on March 26. The worst part was that for the last month my dad was in a kind of coma so could hear his voice. Doctors say that patiens with Glioblastoma don’t have pain. Hope that is true :(
My brother died of GLIO. They dx'd him in April, but sadly died in June. They did brain surgery, however, the disease was too far advanced for any type of treatment or trials. It's sad to learn of how many other patients actually die from this cancer.😢😢😭💔🧠🎗☣️
I am so sorry to anyone affected. My daughter's grandmother passed away several years ago from this nasty disease. She had one brain surgery but a short time later it was back.
Im lucky to say that neither me nor a loved one is/ever was affected, but you never know. This horrible cancer can happen to everyone and I hope, there comes a time when we can't imagine people to die of it, bc a cure will be for granted. R.I.P.
my husband 46 has just been diagnosed with a large and aggressive glioblastoma and has had his operation, which went as well as it could, they used the new dye that makes the cancer cells glow pink and the surgeon said it made a huge difference. We are waiting on chemo and Radiotherapy. 4 weeks ago, he was working as a senior nurse in an ITU, now he can barely make himself a cup of tea. I have to admit, I am terrified, we should have had so much longer together. We are renewing our vows in 2 weeks and I just hope that will be possible, and he'll still be here. They said without the operation he had 2 weeks at the most, to live, so it has given us extra time, but we don't know if that's extra days, weeks, or months at this point
My brother had same diagnosis glioblastoma stay in hospital 2-3 days was sent home on hospice care and 4 days later succumbed. .He was so sick they wouldn’t survive a biopsy It sucks.
My Heart Goes Out To Ryan and His Family, Thank you for Sharing Ryan’s Story R.I.P Ryan 🕯🦋 And Thank you to ALL the People Sharing their Stories and Experiences in the Comment Section. I Hope All Your Loved One’s are R.I.P 🕯🦋 I Hope One Day There’s a cure for this and all the Other Horrible Diseases That are Taking Our Loved Ones Way Before Their Time. R.I.P My Loved Ones 🕯🦋
My husband had surgery rad & chemo 10/18/18. It was completely removed. He was re dxd in May this year. 9/11 he had a 25 min myoclonic seizure . Hes on Hospice at home. He has far outlived his expiration date of 6-12 mos. 3 yrs in October ...Its like advanced Alzheimer's. He is decreasing his swallowing. I kno it will then be time for morphine only. I love him so
lost my husband 0n 1.12.2014 after beeing diagnosed in mach 2013... in England he was the longest surviving person with gbm and im proud i cared for him til he past at home with our two boys aged 11 and 9 att
I lost my mother to Glioblastoma in March 2012. She was a retired RN and told her Doctor that she thought she had a brain tumor. He ordered an MRI and she was told it was normal. It was not normal and the Cancer had ravaged her brain. We do not know why she was told her MRI was normal. She had a series of seizures and was hospitalized. Her Dr. Refused to answer phone calls from her care team in the hospital. She died about two weeks after her hospitalization. Her original MRI was located and her brain had tumors. We do not know what caused them to tell her that her original MRI was normal. Her oncologist said he was going to see her family Doctor. My father didn't pursue things legally. I hope and pray no one else goes through what she did.
An Abbotsford Police officer who battled a rare form of brain cancer and received treatment in Arizona died Thursday morning (March 26, 2020). Ryan “Chopper” Masales, 46, died with family and friends by his side, according to a post on a GoFundMe page that was set up by his wife Estelize - also an Abbotsford Police officer - to raise money for his treatment.
This diagnosis is such a nightmare. It's scary that in 50 years, there's been basically no developments that can improve the average lifespan of someone with a glio. Maybe someday that will happen.
I only know one person who beat glioblastoma. He went on the keto diet indefinitely with no recurrence. Cancer needs glucose to grow. Starve the tumor by not eating any sugar or carbs. I had a different type of brain cancer (hemangiopericytoma) and went on the keto diet. Its been 8 years already and all my scans are clean
There's a guy called Pablo Kelly that's lived with glioblastoma for 9 years following a strict ket o meat based diet. I don't think you can cure glioblastoma but I think it may be possible to prolong your life and quality of life through a keto diet, fasting, stress reduction and lifestyle.
It seems all the comments are about their problems and not for you. U r in our thoughts and prayers. Much love from Kentucky Lesley and medical Service Dog Jake
Some neuro surgeons have access to gamma tiles. The tile is placed in the cavity left by the resection (removal of the tumor). Gamma tiles appear to have worked at the site for my spouse 6 months out. The tiles were used for Meningiomas.
I just want say my fiance died in 2006 from this horrible cancer glioblastoma is very scary but she lost her battle and I'm grateful for having another year with her I ask God to let her live and he did but it came back year later and we had her with hospice it's hard I wish there's something to kill this monster it's cancer I want to say my heart hurts when I hear of this and just want say I'm here I know what you guys and family went through it's hard thing to deal with but I just want wish prayers to this man in video and to everyone that's went through this God bless my prayers are with you all 🙏🙏🙏😢
@@realsozixe yes she started out in year 2001 she would have headaches they started out just like migraines she started to eat Excedrin like candy she went to family doctor had ct scan and it was clear so as time went on it got worst in 2005 she started losing her vision and her left harm was hanging basically it was limp and dead she went again had ct scan done this time they found 5 inch tumor in frontal lobe that actually controls your ability to move and your memory so they did surgery in Pittsburgh Pennsylvania she made it through I ask God to please let me have one last chance with her and he did it was hardest thing I ever experienced in my entire life she passed on November 6 2006 terrible disease. Hope this helps she would throw up a lot and migraines constantly.
@@jasonhamilton258 god bless you and im sorry for your loss, ive been having this headache on front left side of my head its not a huge pain just a soft pressured pain but the thing is is ive had this pain for years so i dont know if i should be concerned or not.
@@realsozixe yeah I understand I mean it could just be having headaches it may be definitely get it checked out just to be on the safe side God bless you ❤️🙏
Nothing is impossible for ALLAH My cousin had luikamia - bood cancer. He is so religious. He had continued his praying to Allah. And Allah have given back his normal life. Don't lose your hope. Allah is nearer than your thoughts. Allah knows your condition better than your self. Keep your hope on one and only god - Allah Miracles are really exists and happens by Allah
I’ve lived with glioblastoma for 7 months , I’ve done 6 weeks of intense radiation and I’m still in active treatment for chemotherapy. I’m about to turn 23 in June. I sometimes still can’t process all the things I’m experiencing. I’m still waiting for it to feel numb. It’s hard living with any form of cancer but when it’s inside your head it’s a different kind of torture. I pray for everyone out there suffering that you make it and enjoy your life.
Prayers for you. God bless.
So hope that you will be one of the lucky ones, God bless you on your journey.
We are so sorry for your diagnosis! This is a devastating disease and our team is working tirelessly to contribute to a cure. Please reach out if we can help you navigate this diagnosis!
I'm.not one to prey cos .not religious but I'm.going to for you , Ur too young n deserve to live , I'm.in Australia, so as they say from.here , cheers my friend n I wish you well x
@@sukanyashaw2275 I’m just getting done with my 5 round of chemo I’m alive so that’s all I can say
My wife Penny was diagnosed 13 1/2 years ago with glioblastoma. She was 62. She is thriving now with only minor short-term memory issues and word recall problems occasionally. She did only standard of care (resection, chemo, and radiation. She turns 75 next month. We expected 6-12 months of survival. There is hope people.
That is wonderful... 53rd month for me
Man I stumbled upon the most sweet people, thank you for giving me a smile today. Bless both of you x
That’s amazing, could you please recommend measures or actions due to which your wife survived? My dad has been diagnosed with gbm an year ago and now it has reoccurred.
@@abhidhaverma8712 I have no idea. She did SOC only - no supplements or life style changes. She is a very upbeat, optimistic person. However, I am sure that could be said of many who do not survive also. Plain luck is all I can attribute her long term survival. Good luck to you and your dad.
@@Moist819 thank you so much for your reply, I really hope that we get lucky as well. Seems there was no reoccurrence. Wishing her many more happy years! If you don’t mind was it unmethylated Glioblastoma?
My father died at the age of 41 with a glioblastoma. I was 17 at the time. My mother was left with 4 children to raise by herself. My mom and my dad were the two strongest and good people I ever knew! I miss them both so much!
its funny how the word strong is like wonderful the thing is..what else can you do but be strong I LOST HUBBY MOTHER DOG FREIND WITHIN 8 MONTHs HUBBY CANCER MOTHER BRAIN BLEED DOG KIDNEY FAILURE FREIND CANCER OF THE BREAST..SO NOW IM ALONE,YES STRONG BUT WHAT ELSE CAN YOU DO ,WE DONT HAVE A CHOICE ,OK THANK, so no strong isnt the correct word having no choice but to be weak is not good for others, selfish of others to think that.ok
@@yvonnespearing I am sorry I don’t understand what you are trying to say. My mother and father were strong in so many ways not just facing cancer but in their every day lives. I am so sorry you are alone. I will pray for God to send people into your life who will bless you in every way.
We are so sorry for the loss of your father. ❤️ Our team understands how devastating this disease can be on the family and their loved one. Our team is working hard to contribute to a cure and improve the outcome for patients dealing with this diagnosis.
@@IvyBrainTumorCenter thank you! your reply means a lot to me! It’s wonderful to know people Understand this terrible disease. Those of us left face the fear we may have to go through that one day. I hope if I ever do that I can be as strong as my father was in dealing with the pain!
Bless diamonds are forever forever in heart and mind stay strong stay safe takecare sending luck hugs love from UK takecare xxx
My adult son was diagnosed with glioblastoma in April of this year. Hospice became involved immediately, and he passed in June while I was caring for him at home. Such a fast moving relentless cancer. Thankfully he went to be with the Lord very peacefully.
sorry to hear that. Prayers to him and your family. God bless
GOD bless hospice!!
Prayers for you all. I'm so sorry for your loss.
Aaawww......I'm sorry for all your losses also! The pain of losing a loved one is never easy but hopefully over time it gets a little less!
I'm sorry for your loss. However I believe there is life after death. I'll be also undergoing radiation therapy for my prostate cancer which I was recently diagnosed few weeks ago.
My dad was diagnosed with glioblastoma (brain) in Nov 2021. After a week, around 60% had been removed via major operation. Based on his current condition (weak), we could only go for radiotherapy (15 sessions). i’m here with my dad in the hospital. help us to pray for my dad, so that he wouldn’t give up in this fight.
🙏praying for your Dad!
My dad passed away on 07.02.22 @ 0933 am. 😭
@@josephajangyusup9685 I am so sorry to hear that! My deepest condolences to you and your family! 😢
May God help all of your family cope.
We are so sorry for your father's diagnosis.❤️ We are sending him and your family our best wishes.
My husband was diagnosed with this in March 07 and passed peacefully at home with me and our boys around him in May 08. He was 54 and was brave throughout. Miss him every day. 💔
I'm so very sorry for you loss and your boys. Thanks for being brave and sharing ❤ xx
My heart goes out to you. My dad died of glioblastoma in 1981 after surgery that left him vegetative. I'd never have surgery. Best wishes.
My first wife was diagnosed 5th Feb 2008, after every religion going praying for her she passed March 22nd 52 years old. Nasty disease, no gods did anything.
We are so sorry to hear about the loss of your husband. ❤️ This disease is very devastating and our team is working hard to contribute to a cure and change the outcome for future patients.
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My Brother had this. He lasted 2 years. Couldn't do surgery because it was in the middle of his brain. He was courages till the end. I miss him. He was my best friend. He was 47.
My mom had it as well. She passed away 10 months after her diagnosis. She was 46
❤️❤️❤️
We are so sorry for your loss. ❤️❤️
❤️🩹
@Ms. Farrell: So very sorry for your loss Ma’am. Your brother sounds like he was very courageous and battled this cruelest of cancers for 2 years. I hope you were physically with him as much as possible. My Mom passed from Glioblastoma in 1989, but feels like yesterday. ☮️
This Monday 8th of November will be my son Tony's 1st anniversary. He passed away with this. He was 32. We are still numb. Please stay strong sending prayers and hugs from Scotland
So sorry, sending you love
Condolences, sending you lots of hugs…sorry you lost your boy xx
Sorry for your loss 😪😪🙏🏼🙏🏼
Sending you my very best wishes at this difficult time, all the way from Melbourne, Australia xx
It is really sad and painful seeing young people die. I can really feel the pain you might have felt or are feeling. I offer my humble condolences
My amazing husband passed away with this leaving a 8yr old and 12 yr old here with me. Sad times happy memories love you Kevin
Sorry for your loss, prayers to you and your family.
Thank you for sharing and we are so sorry for your loss. ❤️ We are sending you and your family our heartfelt thoughts.
I'm so sorry for your loss, I lost my wife to cancer almost 20 years ago. I think of her every day.
What where the symptoms he faced
🙏🏼
It's horrible to hit that like button when you see something so tragic...RIP Ryan.
He died I think he is recovered here
i think the same. Sometimes im doubtful to do so
My husband passed 11 years ago glioblastoma he was 70 I miss the love of my life 🌹
One day will be with our loved ones once again so sorry for ur loss he is watching over u ❤
My husband died last year with this he was 71.
Thank you for sharing your personal connection to this disease and we are so so sorry for your loss. ❤️❤️
The amount of “my so and so died from this” comments on here and they say this cancer is one of the rarest yet it seems to be so common now, it breaks my heart. Here’s to hope for a cure one day
Yes it's so terrifying
My mom has this cancer
I just wanted to watch people junory to have some hope
But no
@@Asma-hk2wn how is your mom now?
Not the rarest by a long shot. It is the #1 cancer killer in children and young adults. 25k cases every year in US only.
My husband has glioblastoma stage 4 . They removed his tumor in May, and it grew back in October. They removed his tumor for the second time. He did chemo and radiation, and it grew back bigger than it was the first time. He is now on hospice. They say he is in the last stage of life.
😢😢😢 🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼
Oh my goodness, I am lifting up huge prayers right now for your husband, you, and your family! I'm so very sorry you are going through such a horrific ordeal! :(
Your journey is not going to be easy, I know, I am trying to get by after loosing my son in June, to a different rare cancer. May you and your husband find strength and peace.
@@kathymiller9351 thank you
@@kaplyn6580 thank you, prayers for you also
My husband was diagnosed with glioblastoma at Christmas 2022 he is still here but his cancer has spread he is so brave its a heart breaking illness and I know I'm going to lose him I feel so sorry for all of you out there that are struggling with this awful cancer I pray that one day they will find a cure love to you all 😢
My dad passed away in 2000 from a glio. It was in his frontal lobe, he was diagnosed at 36yo and we had him for 4years. Which, for 1995-2000 time and a glio is unheard of. MD Anderson was aggressive in their treatment and sent him to Boston and Phoenix for clinical trials once they ran out of options. While he was with us for that time, he truly wasn’t. He was never the same after his first surgery. I was 16 at the time and would give anything for 10 more minutes with my daddy. I hope the clinical trials my dad went through, give someone more time with their families 💜
Special shout-out to those taking care of these patients. May you continue to provide care, support, compassion and CURES
We are so sorry to hear about your father❤️. Thank you for sharing your story and showing your support for caregivers and brain cancer research. We hope you are doing well.
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My mother was diagnosed with glioblastoma on middle of brain 3 years ago we did her sucessful operation in September 2020 then took 2 months of radiotherapy and then chemotherapy for a year
Her left side of body got paralised now a month ago 22 april she died.
She survived for 3 years and 6 months i hope may god gave her place in heaven
I’m sorry😢
I was born with a benign tumor so it was basically nothing . . . But it came back in 4th grade, and at that moment, I realized . . . You don’t know how long you’ll get to live your life, so live your life everyday!
How are you doing now?
Lost our son to a glioblastomas at 45yrs. In ,2008. We raised out granddaughter who was a teenager. From diagnosis to death was only 3 months. Hate cancer.Blessings to all who have lost a loveone.
We are so sorry for your loss. ❤️ Our team is working hard to improve the outcome for others who are suffering from this disease.
❤️🩹
Can i ask what symptoms did he have?
My wife had a tumor removed a month ago and is now on chemo, and radiation for the next 6 weeks, she has lost some of her vision in her left eye, and has issues with her left hand and foot, they did an MRI and said the cancer is back, she’s 57, Our lives have changed, it’s a tuff battle and she is trying to stay positive, I’m hiding My tears from her, praying for the best.
Love to you Gregg. I wish the best for you and your wife
Hoping for you and your wife 🙏 cancer is terribly unfair.
Khuda ussko zindagi de ameen
Deeply sorry for your loss, my mum got diagnosed with Glioblastoma on April this year (2021) she can't go through to any operation due to the location of the tumour, it almost 8 months now and she is doing great! She's having problem with her right side, her speech and her memory but apart from that she doing really well. Thank God our saviour for miracle
How is your mom doing ?
We are so sorry for your mom's diagnosis.❤️ We are glad to hear that she is doing well. If you are looking for a second opinion on surgery or treatment options, please visit: www.barrowneuro.org/patient-care/your-journey/im-looking-for-a-second-opinion/
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My brother in law was just diagnosed with inoperable gbm, we are devastated. How is your mum and any advice for us?
@@yoseffreedman6926 absolutely get a 2nd opinion and molecular testing so you know what medications or clinical trials he'll be eligible for. As I explained elsewhere on this forum, we waited too long and the medicine they were giving my husband wasn't working at all. God help us all, this is a journey from hell. The worst part is being helpless and not able to control your loved ones symptoms as you watch in horror as they slowly die every day.
My mom passed away from stage 4 GBM. She only survived 5 months after diagnosis. I hate cancer. 😞
My farther had a GBM 4 in 2006, 8 months after being diagnosed we laid him to rest. A GBM 4 is a very aggressive cancer.
Hate cancer too .
My mom too…and also 5 months…
We are so sorry for your loss ❤️❤️. Our team understands the devastation that this disease can have on families and their loved ones. We are working hard toward contributing to a cure and improving the outcome for others dealing with this disease.
My twin sister was diagnosed wIth GBM with mild stroke symptoms. She had surgery two days later to remove tumor. Three weeks later it had grown back completely so had surgery again…she died six weeks after her diagnosis without ever making it to chemo/radiation. Horrible shocking disease
My uncle has same issue. Operated first time, well recovered but within 2 weeks he fall sick and we identified it's grown agin. We did another operation last week. Don't know what will happen next week. Please help me to understand, what happen to ur sis post second surgery, so I can take precautions, thanks
Soooo very very sorry for your loss 😢
My brother had just turned 60 when he died from an inoperable Glioblastoma. He said he had had a good life and had been fortunate to see his two daughters grow up. others are not so lucky. So sad about Ryan as he was a young man with a young child.
My ex died from a gbm frontal lobe. From diagnosis he made it about 5 months. I think it’s crazy how so many people have gbm’s. There has to be a common denominator. It’s 2021 you would think we would have some solutions by now. Prayers to everyone
What are all the symptoms he faced
Please tell me
It's very fast & deadly disease
My husband was in the navy. He died at 44 yr from GBM. Had surgery and treatment. He was good for maybe 12 months. Our daughter was 10. I loved the hospice experience and watched for him to see spirits etc. He did and he would giggle and grab at the air ( because he could see the spirits). I laid with him a lot and he had a moment of clarity the day before he died. It was beautiful.
@@jenandrews2300 that is beautiful
My daughter had a GBM, but she had an excellent surgery. Last year she had a re-occurrence after 9 years, but it was a non-graded astrocytoma. That was a year ago this month. Life is precious and we know how freaking lucky to be way outside the curve! Bless Brian and his family.
@Diamond her first symptom was a seizure at home. Then when she was in the ER she had a grand mal seizure so they sedated her and did a CT scan. She just had an MRI yesterday and they said you can go to every three months now🙏💪
@Diamond so the astrocytoma was found on a routine scan.
Thank you for sharing your personal experience with this disease. ❤️ We are wishing you and your daughter well!
@@IvyBrainTumorCenter thankfully she continues to beat the odds!
How’s she doing now? I hope she’s doing well!!!
Lost my mother in Sept 2014 of the same tumor; found in Jan 2014. She was such a strong, smart and professional lady and to watch her reduced to bedridden and unable to care for herself was beyond anything I could comprehend. I feel that there may have been other options for her that were never considered by the professionals; but now we'll never know. My sympathies to all families that have watched a loved one pass from this type of tumor.
We are so sorry for the loss of your mother❤️ . This is a devastating disease and our team is working tirelessly to contribute to a cure and improve the outcome for future patients.
@@IvyBrainTumorCenter This is a horrible disease. Does the Ivy brain Tumor clinic have a site to donate brains? How could I do this for GBM research? We are in PA.
Please what are the symptoms she faced
@@traceywilson56 It's fast growing deadly disease. It's 21st century but still why we don't have proper treatment of this disease? My cousin got traced Brain cancer. Now we r counting days 💔😥
❤️🩹
My mom passed in Augustus after being diagnosed with gbm in February. It was a great inconvenience to her - brave warrior woman we all dearly miss.
So sorry for all of you that have lost people to this devil, maybe someday there will be a cure
My best friend died from this at the age of 57. So sorry you are dealing with this.
We are so sorry for your loss❤️❤️.
So sad. My Dad died of a Brain Tumour 43 years ago, its normally quick how fast it takes them and how helpless you feel.
It is a shame that millionaires can vacation in space but the treatment for cancer is much the same as it was 43 years ago. It is such a helpless feeling when doctors look at you and say there is nothing they can do, RIP
We are so sorry for your loss! ❤️❤️
@@shawnahenry2228 Just seen your reply, i remember i was 17 and went in office with my sister in big Hospital in North East where he was patient, Doctor said they could not operate and he had 6 months to live, that was December 1978 and he died February 1979! 2 months later. Surreal is all i can say and helpless and what really upsets me Brain Tumours are still a death sentence!
@@IvyBrainTumorCenter Thankyou
My 66 year old brother died from Glio 5/30/24 after 15 month courageous battle. Celebration of life in Houston TX, June 17, 2024. He was unflappable in his gallant effort. Gonna miss him. R.I.P. Coggs
Soooo very very sorry 😢
I lost my dad, too soon from glioblastoma. He met my two babies, but didn't get to watch them grow up :(
We are so sorry to hear about the loss of your father. ❤️ Thank you for sharing!
Lost my husband to gliobastoma 24 years ago at the age of 44. Miss you always Ron.
We are so sorry for your loss. ❤️ Thank you for sharing and we are sending you our warmest thoughts.
What a beautiful family and health care team. RIP Ryan.
My dad passed away in last October 10. he survived 22 month after the diagnosis he was just 53 when he passed away I hope he got place in heaven. Rest in peace dad
We are so sorry for your loss!❤️
I lost my brother to glioblastoma 10-5-10, he was 46. We fought for 17 months along side him the whole way, continuously surrounded by friends and family. He died peacefully at home with our mom holding him in her arms, same as the day he came into this world. All my brother wanted was for the Lord Jesus to be glorified no matter the outcome, and He was and forever is! My heart is full for all of you who shared the loss of your loved ones ❤️
We are so sorry to hear about the loss of your brother. ❤️ Our team is working tirelessly to contribute to a cure and improve the lives of others suffering with this disease.
What where the symptoms he faced
@@ololubebenitah6134 They started with frequent headaches and vision problems. It wasn’t until he had a seizure that he was diagnosed… of course immediate surgery, chemo, radiation, clinical trials in Houston Tx. Eventually loss of cognitive functions, vision, speech, paralysis, organ failure, sepsis then he passed. He just slowly deteriorated over 17 months. In that course of time there were many other symptoms, but too much to go into, I just wish to keep it simple. It’s still hurts, but I am ok to reply to you. ❤️🩹
@@theabardetti3601 thanks a lot, what is sepsis
KEEP PUTTING MONEY INTO MEGA MILLIONS AND POWERBALL LMFAO LETS PUT OUR MONEY INTO FINDING THE CURE FOR THESE TERRIBLE DISEASES INSTEAD
DIPG is even worse
i have the cure. i shoot out 1 dose medicine.
🙄🙄🙄
My mother died about 22 years ago from glioblastoma. I've just heard diagnosis figures have doubled in twenty years. Her local doctor just told us we both needed to see to see a psychologist, when we demonstrated our difficulty talking to each other in front of him. I saw later that my mother tried to write and her handwriting was declining. She had a strong accent from Europe and Australian doctors could not understand that she was telling them she felt pressure in her head.
I was looking after her for months without a diagnosis. For some respite, as she was getting up in the middle of the night, and I had my own medical stuff, I had her stay a week in a local hospital - on my side of the state border. The head nurse asked how old she was, as friends thought she looked 60. When I said 76, the nurse said that many old women point to their head! She was indicating where the cancer was.
We lived in Australia, but I can't believe that we're in the year 2023, as fifty years ago when people went to the moon, it was expected that most cancers would be cured or managed by now.
I was told, I had three to five years life expectancy in 1987, for a different incurable illness at that time, so I've always been keen on finding out what variables affect our health. Since there was no treatment at that time, I had to look into naturopathy to extend my life until there were orthodox treatments that worked. Now, most of my family and all my friends have died for one reason or another.
Isolation has been terrible, when we live near Australia's bordering states with 'lockdowns' causing more stress, and lowering my immune system. I have constant shingles, and must fight orthodox state medicine for high dose acyclovir, as no-one is supposed to have shingles constantly. Our medical system seems to only deal with certain medical conditions, but not more complex cases, when we have side effects such as iatrogenic auto-immune conditions from being a guinea pig to programs that have us inject ourselves with Interleukin II - way above the natural amounts that help the immune system.
I though I was having auto-immune renal thrombosis again, and took an ambulance into a hospital. It was during Covid-19 peak times. They tested me for Covid - which was positive, and then scans said I had multiple lymphomas around the waist. But, they then got me to leave at 10pm. Medicine appears to be absent these days.
About five years after my mother died, an Australian man, diagnosed with glioblastoma at 35 years old, was lucky that his uncle in Norway was studying Glioblastoma, and went to Norway, and seemed to receive some success in treating it. But I could not find any follow up about this. Another man on UA-cam managed to survive more than ten years with his combination of treatments.
My mother's specialist said it would have been too distressing for my mother to have surgery, as it was very large by the time a hospital diagnosed her. She had started hallucinating by this time, but was able to speak French when I took her home for a few weeks. It was distressing for me attempting to talk to my mother in hospital in a ward of four patients.
[It was odd. The room she died in seemed to be the same one I had nearly died in in 1986. My brother died in hospital after bleeding after surgery - with no doctor available at four in the morning.
Mother died 15 months after my brother. I wondered if this triggered her glioblastoma. My brother had caused a lot of stress, and put a microwave oven in her kitchen - at head height. Mother would stand watching things in it after Robert died. She also used electric blankets, sat too close to electric heaters, and I gave her a cordless phone.
If I wake up with a headache, it's very likely that my mobile phone is right next to my head in bed. I've also experienced terrible headaches and nausea from high-pitched emissions from my heater. The nausea immediately stopped when the thermostat switched the heater off.
A friend also looked after his mother at home with glioblastoma. Our mothers were both of Germanic stock.
Surely data should have been collected about any aspects in one's life that may be related as to why people get certain illnesses. My mother's specialist just said, they have no idea what causes glioblastoma, and that they won't have any useful treatment for another thirty years!
However, all data is on the WWW computer of everything, and available for the elite rulers in control who build shelters deep underground for probable Earth disasters. There's no profit in curing people, but $Billions in keeping people alive with illnesses that need constant expensive medications.
My niece is 6 years old and has brain cancer. She has less then 6 month....... So sad when it's a child
My boyfriend just retired from being a cop due to having glioblastoma. He was diagnosed in January, it's almost August. I thought maybe we could enjoy our time that we have but it's not like I imagined, its a roller coaster with ups and downs and his out of control anger. I pray for everyone going through this disease to find a miracle and to overcome all obstacles.
I heard that a tea with guanabana leaves cure cancer. They sell it at Walmart
He is okay now
Glioblastoma really is a deadly cancer which is taking the young and old. Treatment hasn't really progressed in 20 year's which is shocking. Because they say that glioblastoma is still a relatively rare cancer it only receives 1% of research funding here in the UK! This is astonishing to me, more needs to be done to try and find better treatment for this awful cancer
R.I.P to all those who have lost they're life to this devastating cancer. 💕🙏
I am trying to find a place to donate my husband's GBM inflicted brain for research and can't even find an option specifically for that. Doesn't make sense at all.
This has to be one of the worst cancers of them all. I mean, they all suck, but this one especially. It's completely relentless. With so many other cancers there are glimmers of hope. There are testaments of people beating, or living for many years with some Stage IV cancers, but with this one it is literally all just doom - most not living much longer than 1-2 years after diagnosis. There are very few people on this Earth that truly deserve this cruel disease. So unfair. I hope one day there is a breakthrough in medical research of glioblastoma, so that future patients can live longer, and hopefully even one day be cured.
RIP Ryan - you gave it your best.
Glioblastoma is always terminal. My MIL was diagnosed in Oct 1995 and died only 2 months later in Jan 1996. Going through all the radiation treatments and rehab was hard on her and left her immune system weakened and vulnerable to infection. She actually died of sepsis, not cancer. During the weeks of her treatments she was miserable, stayed in her bedroom crying and praying. She was a good hardworking housewife and mother who felt God punished her. She had always supported the clergy of her Catholic Church, but they ignored her when she needed them most. A tragic end to her life at age 78. Sometimes the treatments are worse than a quick death. Her family wishes she had passed away on the operating table so that she would not suffer such grief and depression.
There's a guy called Pablo Kelly that's lived 9 years with Glioblastoma, he's followed a strict keto meat based diet. There is always hope.❤
Bei Glioblastom 4 gibt es keine Rettung.Die Operationen,Chemo und Bestrahlung verlängern nur das Leiden.Am besten man geht in ein Hospiz und stirbt in Frieden 😢
My twinbrother passed away last september, with only a few month of glioblastoma. Such merciless cancer. Only 47 my brother became before he died. So suddenly it happened.
My mother in law was diagnosed with glioblastoma in May 2023. She passed away in September 2023 due to the collateral effects of chemotherapy treatment (temodal). So sad to be forced to see such a beautiful woman in those horrible conditions in a very short time. She was 60 yo.
My husband was diagnosed with the monster GBM in 8/2021, he passed away 8/2022. He was and forever will be the love of my life. All he wished for was to retire. He would be 65 this November.
I can't believe they actually told him there was no hope. What kind of crap is that?! It's just cruel.
It’s true. I’d rather be told the truth
@@zuclinator It's not true in every case. There are people who have survived, so this is a lie. It's likely that you're going to die but it's not guaranteed and they have a lot of nerve to steal that hope from people.
my husband and his brother both had glioblastomas they died 8 months and five months after being diagnosed its a relentless disease and my heart goes out to all the people that have beat this wicked tumour the day will eventually come when the scientists will have a cure but until then all we can do is pray for a miracle please all take care
😢😢
Deeply sorry for your loss and anyone's loss of a loved one.
I think we all have someone who has been through cancer, loss someone from this dreaded disease.
Peace to all and take care of your loved ones.
Australia
My brother was diagnosed in 2018. He passed in 2020. He was a warrior and it was something we never imagined it would happen.
I lost my dad to this, he'd never been sick in his life, never went to a doctor. He was 71 when diagnosed, he lasted 56 days. It was nearly 30 years ago, so hard, the whirlwind of it all, it made me fearful for my health ever since. My mum died at the same age, different thing, but she was never sick either.........Dad had sudden stress at the time with a property matter, the neurologist/oncologist said it was usual in younger people, he thought that the stress had caused it.
We are so sorry for your loss!! ❤️❤️
@@IvyBrainTumorCenter thank you - even now all these later every time I read about somebody going through this, it reminds me.....it's 30 years next week - so much more research needs to be done in this field.....so little done.......we were told no hope, it took a while for anyone to take us seriously, by the time we did get my dad examined properly, we had 21 days left!
@@ianoulla That is awful. The pain you still feel just shows how much love you had for your father, he must have been a wonderful man. My husband has been wonderful as well, but this tumor has changed him & I hope I remember him as he was and not the agitated hurtful person he has become with this monster in his brain. When the tumor returns so aggressively, it is just devastating. May your dad rest in peace.
@@traceywilson56 oh Tracey.....you are going through a lot which I do sympathise with. My husband has various things wrong with him, also prostate cancer. He won't listen to good sense and Im afraid the drugs etc and these illnesses have changed him and i too now have to live with someone whose personality has been completely changed by illness. Im thinking of you......
@@ianoulla I am so sorry you are also dealing with these issues. I pray both you and your husband will get through this with compassion. My heart goes out to you because I know how much it hurts when the personality changes start. It is so hard to come to terms and finally decide to just let your loved one go. I often wonder if the personality changes are actually for our benefit, so we realize it's not fair to keep them alive for us anymore or that we need to step back and let a caregiver to the difficult stuff, so all we have to give them is love and support, without being the the one they direct their anger to. We begin to feel as if we are being cruel. It is so hard when we are just grasping at any chance of hope to help the one we love. Death is so cruel, perhaps God should not have rested that last day, and found a better way for this to happen. Sending hugs your way.
My husbands step-sister passed from glioblastoma. It's a horrific cancer. I am so sorry for you Ryan, and your family.
We are so sorry for your loss ❤️.
thank you for ur service and sharing ur story with us . i am so sorry what you are going thru and ur family . prayers and hugs
My friends wife has this currently. They have a small son, so sad. Cannot imagine what's going through there heads at the moment. Videos like this are inspiring, but show you that ultimately cancer will win this battle.
We are so sorry to hear about her diagnosis and we are wishing her the very best.❤️ This disease is devastating and we hope to provide an avenue of hope for these patients. Our team is working tirelessly to contribute to a cure.
Heartbreaking
I hate this cancer so much, there's no dog gone cure, it's taken so many kids lives, it's a death sentence! Something about this cancer, needs to be done!🥺
It really is a vicious cancer. Survival rates haven't really improved in 40 years. It's so hard to treat because of how aggressive it is.
Moja cerkica je operisana od gliom sa13 godina i posle dve godine je javila endem paraliza na desnu stranu i skros je prikovao za krevet ...umrla je za 6 meseci 22 septemvri 2021 godine
This disease is truly devastating and our team is working tirelessly to contribute to a cure and change the outcome for patients with brain cancer.
Omg he passed away 😢 so young. Did it grow back? I pray for his family and centers like yours! R.I.P. special man.
They are so aggressive and grow back because when they take the tumour out they cannot get all the cells, My farther passed away from a Glioblastoma stage 4 brain tumour in 2006.
@@j0llyroger889 rip!
They can remove the tumor itself, but it's the tentacles that branch out that they're unable to - that ultimately allow it to regrow.
@@j0llyroger889 so sorry to hear this . Prayers are with u🙏🙏
@@j0llyroger889 oh my. So sorry for loss.
A glioblastoma took my sister's life in 1993. She was 51. I am 12 years younger and she was my best friend and mentor. It broke my heart. I had forgotten this word. I'm very sorry that Ryan lost his fight. My condolences to his family and friends. 😢 She had surgery to remove as much of the thing as possible at Scripts in La Jolla. Interestingly, my mother had a brain stem tumor that was successfully removed, but my other sister died from metastasis of melanoma in 1961 at the age of 17. Pops died of cancer in 1981. Seems we're cursed.
My Dad died at 52 years old in 1979 with a front lobal brain tumour, and it saddens me that far to many people are still dying of Brain Tumours! They need more research and more better methods of dealing with them.
We are so sorry for your loss ❤️ The Ivy Center is working toward contributing to a cure and providing new therapies to patients suffering from this disease.
@madelainemadelaine2934 So sorry for your loss. I think of my Dad every day, and he's been dead 45 years. They don't want a cure for it, that's why. All down money.
By the comments I'm seeing this cancer is more prevalent than they're saying a young news anchor from Atlanta just died of the same thing.
I know!! They say it is rare but I personally know 4 people who were diagnosed with this , all different age groups! It’s really scary!
I remember when that news anchor died. Now my brother has it . Surgery, then stroke on operating table. Surgery in February, now at home not doing so well ( September). Wife totally hopeful thru the Lord. Ugly disease. Tumor was size of large baseball. Pray for Bill. Thanks.
My dad just recently died this day because of this cancer 😭😭
So sad? He had so much to live for, syill. Praying for family to stay strong and trusting God for their future !!❤
My partner passed last year with inoperable liver cancer, we never ever gave up, even up to his last day, the last thing he said to me was everything will be on now your here, he was in a hospice and I laid on his bed with him and cuddled him till he fell asleep for the last time xx
Thank you for sharing your story.❤️ We are so sorry for your loss!
@@IvyBrainTumorCenter thank youmso very much xxx
My brother (eldest) died with glioblastoma after 2 surgeries to remove as much as they could. It was like an octopus, and getting all the parts out surgically would have killed him immediately. He survived about nine months from the first diagnosis.
My dad was diagnosed with glioblastoma in august 2022 and now his Tumor has reoccurred in may 2023 and the present scan in July shows that the size has increased and Tumor progression in evident. He doesn’t appear to be weak and is very much enthusiastic.
Hi @abhidhaverma8712
My dad is going through the same thing, we operated and removed his surgery but he is having glioblastoma grade 4 cancer and we have not yet started his chemo and radiotherapy, can you please tell how are you coping up with this?
@@RohitGupta-hi1lf sure, I’d love to help. Do you want to connect?
@@abhidhaverma8712 yes we can connect,
@@RohitGupta-hi1lf is it okay if I contact you through any other platform such Instagram or Whatsapp?
@@abhidhaverma8712how is your dad now
What a brave man.
I am a cancer survivor. But nothing in the realm of this magnitude. God bless all who are dealing with this.
My brother died of this the Weds before Easter 2022 he lived a good 5yrs after diagnoses .
My father has this tumor.. I hope he recovers. I cannot imagine life without him.. He will start chemotherapy and radiation because the operation is not possible despite the small size of the tumor, but the place is dangerous
The stats are grim but I'm still here after 50 months..... yes, I count my time in months, not years
My dad was diagnosed with Glioblastoma early this year in January. January 23 just a week after his 70 birthday. The location where the tumor was located made it impossible for an intervention to remove any part of it. (Splenium area). There was nothing we could do unfortunatelly. The tumor was so agressive, my dad lasted only two months and passed away on March 26. The worst part was that for the last month my dad was in a kind of coma so could hear his voice. Doctors say that patiens with Glioblastoma don’t have pain. Hope that is true :(
My husband is in hospis care right now he is 71 yrs. I don't know how much time he has left I 'm praying for him to survive.
My brother died of GLIO. They dx'd him in April, but sadly died in June. They did brain surgery, however, the disease was too far advanced for any type of treatment or trials. It's sad to learn of how many other patients actually die from this cancer.😢😢😭💔🧠🎗☣️
My mom died of glioblastoma 4 months after diagnosis and her operation. Very sad to loose someone so young. Terrible disease.
We are so sorry to hear about the loss of your mother. ❤️❤️ Truly a devastating disease.
I am so sorry to anyone affected. My daughter's grandmother passed away several years ago from this nasty disease. She had one brain surgery but a short time later it was back.
Very sad to hear that your husband Ryan passed away from cancer, brave man and lovely family. Godbless .
Im lucky to say that neither me nor a loved one is/ever was affected, but you never know. This horrible cancer can happen to everyone and I hope, there comes a time when we can't imagine people to die of it, bc a cure will be for granted.
R.I.P.
Sorry to hear this. 🙏🏻😔
my husband 46 has just been diagnosed with a large and aggressive glioblastoma and has had his operation, which went as well as it could, they used the new dye that makes the cancer cells glow pink and the surgeon said it made a huge difference. We are waiting on chemo and Radiotherapy. 4 weeks ago, he was working as a senior nurse in an ITU, now he can barely make himself a cup of tea. I have to admit, I am terrified, we should have had so much longer together. We are renewing our vows in 2 weeks and I just hope that will be possible, and he'll still be here. They said without the operation he had 2 weeks at the most, to live, so it has given us extra time, but we don't know if that's extra days, weeks, or months at this point
Sorry to hear this !! What blood group was she? Some studies say mainly A get gliobladtoma
Billions for Ukraine and southern border should be given to brain cancer research instead
So much sadness, greatful that these beautiful beings touched so many
My brother had same diagnosis glioblastoma stay in hospital 2-3 days was sent home on hospice care and 4 days later succumbed. .He was so sick they wouldn’t survive a biopsy It sucks.
They wouldn’t give my husband a biopsy either, he died three weeks after diagnosis.
We are so sorry for your loss. ❤️ ❤️
My Heart Goes Out To Ryan and His Family, Thank you for Sharing Ryan’s Story R.I.P Ryan 🕯🦋 And Thank you to ALL the People Sharing their Stories and Experiences in the Comment Section. I Hope All Your Loved One’s are R.I.P 🕯🦋
I Hope One Day There’s a cure for this and all the Other Horrible Diseases That are Taking Our Loved Ones Way Before Their Time.
R.I.P My Loved Ones 🕯🦋
My husband had surgery rad & chemo 10/18/18. It was completely removed. He was re dxd in May this year. 9/11 he had a 25 min myoclonic seizure . Hes on Hospice at home. He has far outlived his expiration date of 6-12 mos. 3 yrs in October ...Its like advanced Alzheimer's. He is decreasing his swallowing. I kno it will then be time for morphine only. I love him so
So so sorry , you are dealing with this. But so thankful you had those extra 3 years together.
We are so sorry to hear about your husband❤️❤️ We are sending you and your family positive thoughts.
lost my husband 0n 1.12.2014 after beeing diagnosed in mach 2013... in England he was the longest surviving person with gbm and im proud i cared for him til he past at home with our two boys aged 11 and 9 att
I lost my mother to Glioblastoma in March 2012. She was a retired RN and told her Doctor that she thought she had a brain tumor. He ordered an MRI and she was told it was normal. It was not normal and the Cancer had ravaged her brain. We do not know why she was told her MRI was normal. She had a series of seizures and was hospitalized. Her Dr. Refused to answer phone calls from her care team in the hospital. She died about two weeks after her hospitalization. Her original MRI was located and her brain had tumors. We do not know what caused them to tell her that her original MRI was normal. Her oncologist said he was going to see her family Doctor. My father didn't pursue things legally. I hope and pray no one else goes through what she did.
That person needs to be sued and behind bars!!!! What the fuck😡 that is unacceptable
We are so sorry to hear about the loss of your mother❤️❤️.
@@jayalexander9033 agree totaly
Might i know what symptoms did your mother have?
God bless you Brian and your family. I’m so sorry for outcome but you got more time with family which is amazing
An Abbotsford Police officer who battled a rare form of brain cancer and received treatment in Arizona died Thursday morning (March 26, 2020).
Ryan “Chopper” Masales, 46, died with family and friends by his side, according to a post on a GoFundMe page that was set up by his wife Estelize - also an Abbotsford Police officer - to raise money for his treatment.
RIP Ryan
People stay away from black ink tattoos!!! 😣
Do you affected?😢
Much love brother, I have it too. Thank you! 👏👏👏❤❤❤🙏🙏🙏
My mum aged 59 had a Glioblastoma she was diagnosed late July and passed away October 😢
We are so sorry for your loss! ❤️❤️
This diagnosis is such a nightmare. It's scary that in 50 years, there's been basically no developments that can improve the average lifespan of someone with a glio. Maybe someday that will happen.
My best friend passed away from Brian Cancer he was 57 they pass away fast
I only know one person who beat glioblastoma. He went on the keto diet indefinitely with no recurrence. Cancer needs glucose to grow. Starve the tumor by not eating any sugar or carbs. I had a different type of brain cancer (hemangiopericytoma) and went on the keto diet. Its been 8 years already and all my scans are clean
I don't believe that for a second (beating glioblastoma, that is)
There's a guy called Pablo Kelly that's lived with glioblastoma for 9 years following a strict ket o meat based diet. I don't think you can cure glioblastoma but I think it may be possible to prolong your life and quality of life through a keto diet, fasting, stress reduction and lifestyle.
It seems all the comments are about their problems and not for you. U r in our thoughts and prayers.
Much love from Kentucky Lesley and medical Service Dog Jake
RIP brother 🙏
Some neuro surgeons have access to gamma tiles. The tile is placed in the cavity left by the resection (removal of the tumor). Gamma tiles appear to have worked at the site for my spouse 6 months out. The tiles were used for Meningiomas.
I just want say my fiance died in 2006 from this horrible cancer glioblastoma is very scary but she lost her battle and I'm grateful for having another year with her I ask God to let her live and he did but it came back year later and we had her with hospice it's hard I wish there's something to kill this monster it's cancer I want to say my heart hurts when I hear of this and just want say I'm here I know what you guys and family went through it's hard thing to deal with but I just want wish prayers to this man in video and to everyone that's went through this God bless my prayers are with you all 🙏🙏🙏😢
Might i ask what kind of symptoms did your fiance have?
@@realsozixe yes she started out in year 2001 she would have headaches they started out just like migraines she started to eat Excedrin like candy she went to family doctor had ct scan and it was clear so as time went on it got worst in 2005 she started losing her vision and her left harm was hanging basically it was limp and dead she went again had ct scan done this time they found 5 inch tumor in frontal lobe that actually controls your ability to move and your memory so they did surgery in Pittsburgh Pennsylvania she made it through I ask God to please let me have one last chance with her and he did it was hardest thing I ever experienced in my entire life she passed on November 6 2006 terrible disease. Hope this helps she would throw up a lot and migraines constantly.
@@jasonhamilton258 god bless you and im sorry for your loss, ive been having this headache on front left side of my head its not a huge pain just a soft pressured pain but the thing is is ive had this pain for years so i dont know if i should be concerned or not.
@@realsozixe yeah I understand I mean it could just be having headaches it may be definitely get it checked out just to be on the safe side God bless you ❤️🙏
Nothing is impossible for ALLAH
My cousin had luikamia - bood cancer. He is so religious. He had continued his praying to Allah. And Allah have given back his normal life. Don't lose your hope. Allah is nearer than your thoughts. Allah knows your condition better than your self.
Keep your hope on one and only god - Allah
Miracles are really exists and happens by Allah
Allah doesnt exist, just like other God based religion. Fake & made up for $$.
I'm sorry. My husband struggled with that
Sorry to hear this !! What blood group was she? Some studies say mainly A get gliobladtoma