Відео

my brother is 37 years old, he still has this problem, please, can you help me with treatment, he has 2 childre

My mother has it got diagnosed last month after sudden headache and nausea.

Can anybody tell me how long it takes for a stage to diffuse astrocytoma to turn into a three or four? What is the timing?

That was my mothers name ? (Ivy) that's why I name my podcast ivycancerpodcast. I lost her to breast cancer last year. Good fight Ryan. Your story live on. Bless up ivy center. Keep doing the good work. I am determined to carry my mothers name by opening one of these institutions to help ppl with breast cancer one day .❤

This is an amazing talk, its really helpful.

My father passed away due to this brain cancer in Feb 2021, I was 25 years. He just survived for almost only for 5 months.

I appreciated this GBM discussion and was inspired. Three years since my diagnosis in Denver, CO and my recent recurrence has led me to Ivy in Phoenix. It was important to transfer my treatment with research and focus on recurrent trials.

Thank you Jaci & Michelle Grief came to me when I got the diagnosis l; once I realized I could have died a long time ago peace came over me. Thank you for covering these topics.

Everywords tolds the doctor are the real simple true …it’s only no lucky situation , it’s the life…bad ..but it’s life… me too i got 32 , no smoke ,no alcool e sugar beverage drink , very athletic person and i eat always vegetarian and low carb diet … and however i take it😢

Rest In Peace, Ryan :(

ua-cam.com/video/VaVC3PAWqLk/v-deo.htmlsi=7kc-ynOYtXUu3US_

Such a sad tumour that’s involved with memory. I cared for my dad at my home back in 2022. I taped some of our conversations and to this day, I haven’t listened to them. Some days I was referred to as this lady that cooks and cleans and makes his bed for him. Then there were days when I think he remembered who I was. Condolence to everyone who has lost a loved one. No more pain, no more drugs and knowing they are in a better world amongst departed family. 🙏🏾♥️ ****** No One Truly Dies, They All Live In The Hearts That Loved Them ******

@ivybraintumorcenter could this treatment be an option to shrink inoperable meningiomas?

Thank you Dr Kennedy for this wonderful talk in a precise way.

Thank you for explaining brain necrosis and long tear effects . Great job as always 😊

I think Flouride which crosses the blood brain barrier damages the astrocytes (glial cell) and causes the mutations and cell proliferation . Also EMFs weaken the blood brain barrier , maybe too much flying and long haul flights - lots of emfs. I have seen studies showing pilots / air crew get Glioblastoma at younger ages than the average age. Also another interesting study showed people in countries closer to the equator had very very low cases less than 100 out of 100 million people.

{{{}}}*******{{{}}} BE BLESSED WITH A CANCER FREE SPIRIT. *******{{{}}}******* PEACE, LOVE & LIFE...

What food you eat?

My mother in law was diagnosed with glioblastoma in May 2023. She passed away in September 2023 due to the collateral effects of chemotherapy treatment (temodal). So sad to be forced to see such a beautiful woman in those horrible conditions in a very short time. She was 60 yo.

To anyone who has Glioblastoma or known someone that had it. What Blood Group were they? I am trying to see if their is a link between blood group and developing Glioblastoma.

Nice one

and now my own 63 yr old sister is suddenly facing exactly the same as Ryan ~ it is shockingly painful & videos such as Ryan's story help understand much more of what is going on and how to cope with it all. Bless everyone who is part of anyone's journey with this

Bye Ryan, don’t randomly arrest people 😅

My dad was diagnosed with Glioblastoma early this year in January. January 23 just a week after his 70 birthday. The location where the tumor was located made it impossible for an intervention to remove any part of it. (Splenium area). There was nothing we could do unfortunatelly. The tumor was so agressive, my dad lasted only two months and passed away on March 26. The worst part was that for the last month my dad was in a kind of coma so could hear his voice. Doctors say that patiens with Glioblastoma don’t have pain. Hope that is true :(

Bullshit

My best friend (age 53) was diagnosed with glioblastoma six months ago and underwent immediate surgery. Just last week he experienced serious symptoms and it was discovered that his tumor has returned...larger and inoperable now...

My husband had a seizure in the night of Nov 27th 2022, we went to ER to check it out and he came back home after 2 months, had gone through 2 surgeries, right side disabled, speech disabled, quality of life zero! The active fun life came to a grinding halt. 6 months of regal got him walking with a quadcane. Radiation, chemo for 1 year, cancer is back now, MRIs every 2-3 months, trips to dr office every other week! It is a horrible disease, worse when you are unlucky to have become crippled as well!

My dad died in 2019 due to gbm, I was only 10 about to turn 11, he lasted 11 months, I wish no kid has to go through this like I did.

I Will Survive This.

my husband 46 has just been diagnosed with a large and aggressive glioblastoma and has had his operation, which went as well as it could, they used the new dye that makes the cancer cells glow pink and the surgeon said it made a huge difference. We are waiting on chemo and Radiotherapy. 4 weeks ago, he was working as a senior nurse in an ITU, now he can barely make himself a cup of tea. I have to admit, I am terrified, we should have had so much longer together. We are renewing our vows in 2 weeks and I just hope that will be possible, and he'll still be here. They said without the operation he had 2 weeks at the most, to live, so it has given us extra time, but we don't know if that's extra days, weeks, or months at this point

This was a great episode. Thank you. I too , have breast cancer and Glioblastoma.

Mi son of 10 yr was disgnosed DIPG on april 27 he finish his 30 radiation rounds i am looking for this trial to my kid 🙏🏼

My husband was diagnosed with glioblastoma at Christmas 2022 he is still here but his cancer has spread he is so brave its a heart breaking illness and I know I'm going to lose him I feel so sorry for all of you out there that are struggling with this awful cancer I pray that one day they will find a cure love to you all 😢

3 years too late for my mother 😢

16.45 Disneyland is not a good Metaphor....

Common sense treatment that has taken an embarrassingly long time to develop.

just seven weeks diagnosed, here in England. I see my consultant for the fist time on Tuesday and hopefully get it out on 10th July. It would have been earlier if not for my Stelara treatment

I'm sorry. My husband struggled with that

Some neuro surgeons have access to gamma tiles. The tile is placed in the cavity left by the resection (removal of the tumor). Gamma tiles appear to have worked at the site for my spouse 6 months out. The tiles were used for Meningiomas.

He is amazing. Thank you

❤

My 66 year old brother died from Glio 5/30/24 after 15 month courageous battle. Celebration of life in Houston TX, June 17, 2024. He was unflappable in his gallant effort. Gonna miss him. R.I.P. Coggs

My twin sister diagnosed GBM in 2020.After RT and chemo she lived until 2024 May but another recurrence in 2024.😢

I have glioblostoma and it hurts so much 😭😭😭😭

beet root as salad , drumstick soup and other healthy food which maintains your Hemoglobin and Protein helps a lot during radiation.

How does it affect the rest of the brain cells (healthy ones)?

My Brother passed from 2 glioblastoma's First tim h seen a doctor in 49 years and was dx with gbm. The doctors could not do anything and he came and lived with me. 3 months and he passed in my arms. There are groups on facebook for people and Families who have or had gbm and also dealing with gbm loss. My heart goes out to you all.

Don’t believe brain surgery is a good idea for cancer It often diminish the quality of life and with all the chemo and radiotherapy it’s torture for patient and the family around. The best would take it slow, change a diet for a more alkaline one and maybe chemo or radio but from experience seeing my sister battling this awful disease: surgery + chemo + radiotherapy is torture

Dr. Sanai saved my life, comforted my family and gave us true hope to continue on with an excellent treatment plan. I worked in healthcare for 43 before retiring. I’ve always been enthralled by the development of medical science over the years. Seeing this team work was an absolute privilege. I lived in the Boston area for 20 years and met some world renowned clinicians but none were like Dr. Sanai and his team.

This has to be one of the worst cancers of them all. I mean, they all suck, but this one especially. It's completely relentless. With so many other cancers there are glimmers of hope. There are testaments of people beating, or living for many years with some Stage IV cancers, but with this one it is literally all just doom - most not living much longer than 1-2 years after diagnosis. There are very few people on this Earth that truly deserve this cruel disease. So unfair. I hope one day there is a breakthrough in medical research of glioblastoma, so that future patients can live longer, and hopefully even one day be cured. RIP Ryan - you gave it your best.