PS (a couple of things I wish I'd thought to mention in the video): it helps to get the injection pen out of the fridge so it reaches room temperature before you inject, lots of people say this makes it more comfortable. The instructions I have say to get it out of the fridge 15-30 minutes before injecting, but I gave it a good couple of hours and definitely think that helped. Also, when I said it didn't hurt at all this time at the end of the video (which is true!) I hope that didn't suggest it was painful the first time because it really wasn't - I was just conscious of the injection the first time I did it and didn't feel it at all this time. I don't know if this is helpful to add, but wanted to mention because they're things I might have found useful to know myself if I were watching ♡
thank you so much for this video! i have to do self injections and I started doing it recently. everytime I need to inject myself I always get sooo nervous and hesitant; I always need my mom to do it with me just to get it done. however, seeing someone do it bravely by themselves makes me feel so much better about my injections! :) again, thank you so much for this video! you're so brave.
Thank you for your lovely message! I'm so happy the video could be helpful to you in some way, that makes my day. It isn't an easy thing to get used to, doing self-injections, but I reckon you've got this x
Just did my first one as a 13 year old. Didnt hurt, just tiny sting at beginning as it went in but it wont last long and I wasnt tempted to take it out. Antibodies and inflimation. Found loads of ppl take it for things like authoritis and I have it with a medicine called azathioprine. Also yes, u need to make sure there is no cracks and check expiry date. Better than canula. Had a yellow bin for it.
Ah, synchronicity, perfect! Thanks so much for taking the time to leave a message, I love to hear about people's journeys with this. Really hope your new medication works out well for you 🌻
My first one is tomorrow with a nurse over a phone call. Soooo nervous! Thank you for this video this has really calmed me. Although no one mentioned getting any alcohol swabs!!
Oooh I hope it goes smoothly for you, and so glad if the video could help calm those nerves a little. It's honestly ok. The alcohol swabs come in the box with my injections so that's where I get them from, but I'm sure your nurse will talk you through everything - they may do things differently. Crossing fingers you get a good result with the adalimumab ♡
@ because I’ve been poorly with a virus or fibro she wouldn’t let me do it and we have to speak to my team before doing it. Need to get a new date and everything. Gutted.x
Thank you very much, I need to start using Adalimumab today (!) and it helped me a lot that you demonstrate how to do it properly. I have to say I am nervous but it is going to be ok! I got this! ;-)
Interesting, thanks for sharing! Where is that? I think syringes are often used in the US too, but where I live in the UK we're usually prescribed the pre-filled pens.
Sorry to hear about your illness. I was diagnosed with psoriatic arthritis last year, and got a bad flare up a few days ago that has pretty much made me unable to do any physical work. I'm scheduled to see a doc next Monday and possibly get on something similar. I've heard Enbrel is extremely expensive with no insurance, so I think she's putting me on something else.
Thank you for your message, though I'm sorry to hear you're dealing with a very similar situation. The early stages are the hardest I think, when you're trying to find the right medication or combination to get symptoms under control. I really hope your appointment on Monday is helpful and identifies a good option for you - and that the flare recedes very soon.
Hey, fellow psoriatic arthritis sufferer here.I’ve been on this medication a few months and I find it helps manage flare ups. I would recommend swimming also, I used to get spine pain a lot but swimming regularly seems to stop this. In fact when I stop swimming my spine pain returns. I was also on methotrexate but I’ve come off this and just take imradi
That's so hard. It is quite a thing to get your head around at first. Have you had a nurse appointment to show you how to do the injections and/or be there for the first one? I really hope you've been given some support with this?
Is it the first injection you've done? It's totally understandable to feel apprehensive beforehand. I've found the less you think about it, the better - and the quicker it's done with. You've got this Greg!
I'm really surprised you haven't had a nurse appointment arranged for your first injection - which country are you based in? (if you want to answer) I can't help feeling that might help with the very first one.
I'm so glad it was helpful, thank you for your message! I don't have B12 injections but do take a B vitamin complex (tablet) that includes B12. I hope your injection goes smoothly ♡
@@aslightlyatypicalpresentation just done it now 🙈felt nervous as it was my first , I’ve been on Humera few years back .how long did you see improvements?
That's great, hardest one already done! I'm not seeing therapeutic effects yet but am giving it six months so that it has a really solid trial. For some reason my symptoms don't seem to respond to medications very quickly, they've all been the same. Hope you get a quicker result!
Thank you for this! I have recently been switched to yuflyma pens because of supply issues with my other brand and am a bit worried about using them. A chronic illness and needlephobia does not match well 🤣
That's hard, especially if you'd got used to the other brand. I will keep my fingers crossed the yuflyma pens work out well for you, I've had no problems at all so far 🤞🏻
Did you notice the needle? Just done this on my dad and we heard both clicks and the window filling. But he said he didnt feel a needle. Im confused as to if it worked
No I don't really feel the needle as such, sometimes a mild sensation of pressure but nothing more. It is a really fine needle. If the clicks happened, and the window filled up, it sounds like it was a success!
Thanks so much for this. I received my first batch today and my first injection I have a faulty pen. No 2nd click and the plunger only came down 1/4 of the visible vial. Had it held for about 60 seconds waiting for the 2nd click. Took it away and the needle had pierced the skin as there was blood.... This video really helped to confirm the fact I had done everything correctly and it was a faulty pen. I hope your treatment works well for you! Sending love
Oh no, that definitely doesn't sound right. Sorry to hear that happened with your very first batch - it's enough to build up to starting a new medication as it is. I hope the medication team can get a quick replacement to you. Thank you so much for your kind words, though, I really appreciate it! Sending love back to you and crossing fingers for second time lucky with the injection pen ♡
Hi, Have you noticed a change with your arthritis since you’ve started taking this? I was diagnosed around 6 years ago with AS (age 24).I was on weekly etenercept injections for around 4 years but I’ve decided to change over to the adalimubab as it said to last for 2 weeks. Hope your symptoms are easing with this biological 🤞🏻
Hi, thanks so much for your message. I haven't noticed any obvious changes yet but it's still early days for me. It's a bit hard to tell too, because I had to stop a medication that was helping (sulfasalazine) when I started the adalimumab, and also reduced my prednisolone dose. I'm hopeful! I really hope it helps with your AS, it is definitely a bonus to only have to take it fortnightly. Fingers crossed for you too ♡
I am wondering if you had found anything that has helped with hair loss? I am currently going thru the same thing with RA medications that have thinned my hair.
Sorry to hear you're experiencing hair loss with these meds. I did too at the start, but my hair has grown back now so hopefully the same will happen for you. I used a combination of good diet and supplements, plus good quality hair products and definitely think that helped. Not to self-promote but I have a playlist on my hair re-growth process if you're interested! I hope you find something that helps for you ♡
Hy ,Emily! It 's been a while since we 've talked. I am glad you are on biological, l hope you are well and no pain, you had the other treatment sistemic for a long time, i guess it didn't made the good terapeutic reponse, l just want to thank you ,it meant a lot to me that you talked to me back then.l am well too ,l am on MTX and loosing prednison ,after a year,my blood tests were just fine. I wish you all the best, and what else are you taking exept Adalimubab?
Hi Monica, I'm so happy to hear from you, thank you for your lovely message! I enjoyed our exchange too and am so so glad you are feeling well now. The medications I was taking helped me a lot but not quite enough so the adalimumab was prescribed. Alongside I also take MTX, hydroxychloroquine and a little prednisolone (but like you am trying to stop that one). Thanks again for taking the time to message and let me know how you are, it's made my day! Wishing you the very best and continued wellbeing ♡
@@aslightlyatypicalpresentation I am happy to hear that you got the right medications for you know , never lose hope and there so many options ,treatment options ,for mw it took an year to stabilized ,but i am so happy now, my life got back to normal, my son and my husband suported me all the time , l am working now and l enjoy life more than ever. It is like l don't have RA , only when i am remember and take meds, I ' ve learn all lot this year,and l've changed . And l want to share something with you: thinking pozitive it is my help,l know now that our body have the capacity to heal themself ,there is an inteligence in us that make our heart beat ,digest our food and that inteligence heal the body. I am pretty sure of that. You just have to believe it. I wish all the best and keep in touch. Emily ,you are such a great person. Thank you!😘
Thank you so much Monica, I love this! Your positivity shines through in your message! I'm so glad you are doing so well and that you have good support from your loved ones - and also your own inner strength. I will keep sharing as often as I can and hope to hear from you again sometime 🌻
I feel for you, it is nerve-wracking starting a new medication! This time when I filmed the injection I would put it at 0-1/10, it really didn't hurt. The first time maybe 2/10, I think I was a bit less relaxed then. It was still fine though. I will keep my fingers crossed for you, hope it goes well today ♡
PS (a couple of things I wish I'd thought to mention in the video): it helps to get the injection pen out of the fridge so it reaches room temperature before you inject, lots of people say this makes it more comfortable. The instructions I have say to get it out of the fridge 15-30 minutes before injecting, but I gave it a good couple of hours and definitely think that helped. Also, when I said it didn't hurt at all this time at the end of the video (which is true!) I hope that didn't suggest it was painful the first time because it really wasn't - I was just conscious of the injection the first time I did it and didn't feel it at all this time. I don't know if this is helpful to add, but wanted to mention because they're things I might have found useful to know myself if I were watching ♡
thank you so much for this video! i have to do self injections and I started doing it recently. everytime I need to inject myself I always get sooo nervous and hesitant; I always need my mom to do it with me just to get it done. however, seeing someone do it bravely by themselves makes me feel so much better about my injections! :) again, thank you so much for this video! you're so brave.
Thank you for your lovely message! I'm so happy the video could be helpful to you in some way, that makes my day. It isn't an easy thing to get used to, doing self-injections, but I reckon you've got this x
Just did my first one as a 13 year old. Didnt hurt, just tiny sting at beginning as it went in but it wont last long and I wasnt tempted to take it out. Antibodies and inflimation. Found loads of ppl take it for things like authoritis and I have it with a medicine called azathioprine. Also yes, u need to make sure there is no cracks and check expiry date. Better than canula.
Had a yellow bin for it.
Had to do 2 80mg ones
I'm glad the first one went smoothly, it sounds like you know what you're doing. I hope it works well for you and you get a good result 🤞🏻
Thank you for sharing! I’m due to take my first one in the next few hours and am very nervous. You’ve really helped! :)
Ah, good luck with it, you've got this! And thanks for your kind message! Makes my day to hear the video could help in some way 🌻
🎉❤ thank you for sharing. Today is my 1st day on this brand, previously used Hyrimoz.
Thank you for your message! Got my fingers crossed the transition to yuflyma goes smoothly for you ♡
I watched your methotrexate injection video when I was filmed! And I’m about to start biologics so this is perfect timing!
Ah, synchronicity, perfect! Thanks so much for taking the time to leave a message, I love to hear about people's journeys with this. Really hope your new medication works out well for you 🌻
My first one is tomorrow with a nurse over a phone call. Soooo nervous! Thank you for this video this has really calmed me. Although no one mentioned getting any alcohol swabs!!
Oooh I hope it goes smoothly for you, and so glad if the video could help calm those nerves a little. It's honestly ok. The alcohol swabs come in the box with my injections so that's where I get them from, but I'm sure your nurse will talk you through everything - they may do things differently. Crossing fingers you get a good result with the adalimumab ♡
@ thank you xx cross your fingers at 3.30!!
@ yes they are inside. Phew!
I will do, good luck for 3:30!! 🤞🏻
@ because I’ve been poorly with a virus or fibro she wouldn’t let me do it and we have to speak to my team before doing it. Need to get a new date and everything. Gutted.x
Thank you very much, I need to start using Adalimumab today (!) and it helped me a lot that you demonstrate how to do it properly. I have to say I am nervous but it is going to be ok! I got this! ;-)
You have absolutely got this!! Please let us know how you go! And thank you for your kind comment, I really appreciate it ♡
great! in my country this comes as a classic style piston and 2 inch long needle.
Interesting, thanks for sharing! Where is that? I think syringes are often used in the US too, but where I live in the UK we're usually prescribed the pre-filled pens.
@@aslightlyatypicalpresentation Bangladesh.
Thank you so much. Very helpful.
Thanks for your message, I'm so happy to hear it was helpful.
@@aslightlyatypicalpresentation❤
Sorry to hear about your illness. I was diagnosed with psoriatic arthritis last year, and got a bad flare up a few days ago that has pretty much made me unable to do any physical work. I'm scheduled to see a doc next Monday and possibly get on something similar. I've heard Enbrel is extremely expensive with no insurance, so I think she's putting me on something else.
Thank you for your message, though I'm sorry to hear you're dealing with a very similar situation. The early stages are the hardest I think, when you're trying to find the right medication or combination to get symptoms under control. I really hope your appointment on Monday is helpful and identifies a good option for you - and that the flare recedes very soon.
Hey, fellow psoriatic arthritis sufferer here.I’ve been on this medication a few months and I find it helps manage flare ups. I would recommend swimming also, I used to get spine pain a lot but swimming regularly seems to stop this. In fact when I stop swimming my spine pain returns.
I was also on methotrexate but I’ve come off this and just take imradi
I'm terrified to inject myself. I've been sat here an hour looking at my thigh
That's so hard. It is quite a thing to get your head around at first. Have you had a nurse appointment to show you how to do the injections and/or be there for the first one? I really hope you've been given some support with this?
@aslightlyatypicalpresentation no I didn't have a nurse. Still haven't done it and I'm starting to get really frustrated with myself now
Is it the first injection you've done? It's totally understandable to feel apprehensive beforehand. I've found the less you think about it, the better - and the quicker it's done with. You've got this Greg!
@aslightlyatypicalpresentation yes my first. It's been 3 hours now that I've had the pen against my skin but my hand won't physically push down
I'm really surprised you haven't had a nurse appointment arranged for your first injection - which country are you based in? (if you want to answer) I can't help feeling that might help with the very first one.
Finally one video with all details I needed. Now I can do my injection. Thank you ☺️
I wanted to ask you, do you take vitamins B12 injection too?
I'm so glad it was helpful, thank you for your message! I don't have B12 injections but do take a B vitamin complex (tablet) that includes B12. I hope your injection goes smoothly ♡
@@aslightlyatypicalpresentation just done it now 🙈felt nervous as it was my first , I’ve been on Humera few years back .how long did you see improvements?
That's great, hardest one already done! I'm not seeing therapeutic effects yet but am giving it six months so that it has a really solid trial. For some reason my symptoms don't seem to respond to medications very quickly, they've all been the same. Hope you get a quicker result!
Thank you for this! I have recently been switched to yuflyma pens because of supply issues with my other brand and am a bit worried about using them. A chronic illness and needlephobia does not match well 🤣
That's hard, especially if you'd got used to the other brand. I will keep my fingers crossed the yuflyma pens work out well for you, I've had no problems at all so far 🤞🏻
Did you notice the needle? Just done this on my dad and we heard both clicks and the window filling. But he said he didnt feel a needle. Im confused as to if it worked
No I don't really feel the needle as such, sometimes a mild sensation of pressure but nothing more. It is a really fine needle. If the clicks happened, and the window filled up, it sounds like it was a success!
Thanks! That was helpful.
I'm so glad it was helpful, thanks for your message!
Thanks so much for this. I received my first batch today and my first injection I have a faulty pen. No 2nd click and the plunger only came down 1/4 of the visible vial. Had it held for about 60 seconds waiting for the 2nd click. Took it away and the needle had pierced the skin as there was blood.... This video really helped to confirm the fact I had done everything correctly and it was a faulty pen. I hope your treatment works well for you! Sending love
Oh no, that definitely doesn't sound right. Sorry to hear that happened with your very first batch - it's enough to build up to starting a new medication as it is. I hope the medication team can get a quick replacement to you. Thank you so much for your kind words, though, I really appreciate it! Sending love back to you and crossing fingers for second time lucky with the injection pen ♡
Hi,
Have you noticed a change with your arthritis since you’ve started taking this? I was diagnosed around 6 years ago with AS (age 24).I was on weekly etenercept injections for around 4 years but I’ve decided to change over to the adalimubab as it said to last for 2 weeks. Hope your symptoms are easing with this biological 🤞🏻
Hi, thanks so much for your message. I haven't noticed any obvious changes yet but it's still early days for me. It's a bit hard to tell too, because I had to stop a medication that was helping (sulfasalazine) when I started the adalimumab, and also reduced my prednisolone dose. I'm hopeful! I really hope it helps with your AS, it is definitely a bonus to only have to take it fortnightly. Fingers crossed for you too ♡
I am wondering if you had found anything that has helped with hair loss? I am currently going thru the same thing with RA medications that have thinned my hair.
Sorry to hear you're experiencing hair loss with these meds. I did too at the start, but my hair has grown back now so hopefully the same will happen for you. I used a combination of good diet and supplements, plus good quality hair products and definitely think that helped. Not to self-promote but I have a playlist on my hair re-growth process if you're interested! I hope you find something that helps for you ♡
Hy ,Emily!
It 's been a while since we 've talked.
I am glad you are on biological, l hope you are well and no pain, you had the other treatment sistemic for a long time, i guess it didn't made the good terapeutic reponse, l just want to thank you ,it meant a lot to me that you talked to me back then.l am well too ,l am on MTX and loosing prednison ,after a year,my blood tests were just fine. I wish you all the best, and what else are you taking exept Adalimubab?
Hi Monica, I'm so happy to hear from you, thank you for your lovely message! I enjoyed our exchange too and am so so glad you are feeling well now. The medications I was taking helped me a lot but not quite enough so the adalimumab was prescribed. Alongside I also take MTX, hydroxychloroquine and a little prednisolone (but like you am trying to stop that one). Thanks again for taking the time to message and let me know how you are, it's made my day! Wishing you the very best and continued wellbeing ♡
@@aslightlyatypicalpresentation
I am happy to hear that you got the right medications for you know , never lose hope and there so many options ,treatment options ,for mw it took an year to stabilized ,but i am so happy now, my life got back to normal, my son and my husband suported me all the time , l am working now and l enjoy life more than ever.
It is like l don't have RA , only when i am remember and take meds,
I ' ve learn all lot this year,and l've changed .
And l want to share something with you: thinking pozitive it is my help,l know now that our body have the capacity to heal themself ,there is an inteligence in us that make our heart beat ,digest our food and that inteligence heal the body.
I am pretty sure of that.
You just have to believe it.
I wish all the best and keep in touch.
Emily ,you are such a great person.
Thank you!😘
Thank you so much Monica, I love this! Your positivity shines through in your message! I'm so glad you are doing so well and that you have good support from your loved ones - and also your own inner strength. I will keep sharing as often as I can and hope to hear from you again sometime 🌻
Hi how much is the pain in the scale of 1/10. Today is my first time and I'm REALLY SCARED
I feel for you, it is nerve-wracking starting a new medication! This time when I filmed the injection I would put it at 0-1/10, it really didn't hurt. The first time maybe 2/10, I think I was a bit less relaxed then. It was still fine though. I will keep my fingers crossed for you, hope it goes well today ♡
@@aslightlyatypicalpresentationHi, thank you very much. You were right it really was a 1-2/10 pain. I think next week it will be much better 💗
@@SophiaSok-t5z I'm so glad it went well 🌻
You will be fine - keep us posted 🙂
thank you, will do! :)