Hi! I've put up a poll on my 'community' tab because I'd love to hear what kind of content you'd find most interesting from this channel -www.youtube.com/@aslightlyatypicalpresentation/community Please let me know! All responses are much appreciated ♡
Thanks for sharing 😊 I've just got back from my consultation today and have been prescribed Adalimumab so currently just researching and came across your channel so fantastic to hear about it from yourself. I've had PsA since 2015 and been on Methotrexate previously but had to come off it due to it effecting my liver and now been on sulfasalazine.
Thanks so much for watching and sharing your experience, I love hearing from people also on this path! Fingers crossed that the adalimumab works a treat for you. I've had far fewer side effects with it than MTX so hopefully that'll be the case for you too. Wishing you all the best 😊
I’m glad to hear the adilimumab is working well for you! I recently took my third dose, and it has proved helpful so far. Best of luck with your prednisolone taper!
Thanks for sharing! I’m 5 weeks into starting adalimumab but interestingly I’ve not been told to stop Sulfasalazine! Really nice to hear other people’s shared experience 💖 I feel like I’m having a bit of flare up but I think I’ve been doing too much and need to slow down a little!
Oh, it's so nice to have some company! Sorry to hear you're having a bit of a flare though, I felt like things might be going that way too for a few weeks. Hoping things might have turned a corner for now. How interesting that you've been given different information about sulfasalazine! I've seen other people prescribed the two together as well. Sometimes it honestly seems like every rheumatology team has their own rules! I really hope the symptom flare passes soon for you and you see some benefits, please let me know how you go, if you feel like it 💜
I'm on week 7. I'm off everything else but steroids and Humira and doing well. Sleeping deeper and no flare ups. My RA is severe with deformities, but my fingers are working better.
I haven't tried it, does it work well for you then? From a quick search it looks like it might not be prescribed for my specific condition (rheumatoid arthritis), so perhaps it's not one I'd be able to try
@@aslightlyatypicalpresentation I haven't tried it yet. I have psoriatic arthritis. I thought it was RA at first since that's what my dad and grandpa had, but they've determined it's PsA. The Taltz is apparently similar to Humira and other biologics. But it's like $5k to $8k per month apparently. I was approved for free samples, but I don't know what happens after those run out lol. Apparently, Methotrexate works and is cheap but my doc says it's dangerous for the organs.
Very interesting, thanks for sharing that. From the webpage I saw it looked like it's designed for treating spondyloarthropathies, which would make sense because PsA fits with that but RA doesn't. They can be hard to tell apart sometimes, I think. One of the registrars I saw soon after diagnosis thought I might have PsA for a while, but later it was confirmed as RA.
Hi! I've put up a poll on my 'community' tab because I'd love to hear what kind of content you'd find most interesting from this channel -www.youtube.com/@aslightlyatypicalpresentation/community
Please let me know! All responses are much appreciated ♡
Thanks for sharing 😊 I've just got back from my consultation today and have been prescribed Adalimumab so currently just researching and came across your channel so fantastic to hear about it from yourself. I've had PsA since 2015 and been on Methotrexate previously but had to come off it due to it effecting my liver and now been on sulfasalazine.
Thanks so much for watching and sharing your experience, I love hearing from people also on this path! Fingers crossed that the adalimumab works a treat for you. I've had far fewer side effects with it than MTX so hopefully that'll be the case for you too. Wishing you all the best 😊
Literally just taken my first dose, needed this video thank you ❤
Thanks for your message! I'm so happy it could help in some way. Crossing my fingers this works well for you ♡
I’m glad to hear the adilimumab is working well for you! I recently took my third dose, and it has proved helpful so far. Best of luck with your prednisolone taper!
Thank you so much for your kind comment. I really hope it continues to be helpful for you!
Thank you x
Thanks for sharing! I’m 5 weeks into starting adalimumab but interestingly I’ve not been told to stop Sulfasalazine! Really nice to hear other people’s shared experience 💖 I feel like I’m having a bit of flare up but I think I’ve been doing too much and need to slow down a little!
Oh, it's so nice to have some company! Sorry to hear you're having a bit of a flare though, I felt like things might be going that way too for a few weeks. Hoping things might have turned a corner for now. How interesting that you've been given different information about sulfasalazine! I've seen other people prescribed the two together as well. Sometimes it honestly seems like every rheumatology team has their own rules! I really hope the symptom flare passes soon for you and you see some benefits, please let me know how you go, if you feel like it 💜
Great channel subbed
thank you!
I just started and am on week 6. Prednisone needs to go for me.. I'll work on that.
Same for me with the steroids! How are you finding adalimumab so far?
I'm on week 7. I'm off everything else but steroids and Humira and doing well. Sleeping deeper and no flare ups. My RA is severe with deformities, but my fingers are working better.
That sounds good, I'm so glad you're seeing benefits from it already - and hopefully more to come ♡
Have you ever used Taltz? I was given some free samples, but I almost want to just hold onto them and use them just in case I have a flare up.
I haven't tried it, does it work well for you then? From a quick search it looks like it might not be prescribed for my specific condition (rheumatoid arthritis), so perhaps it's not one I'd be able to try
@@aslightlyatypicalpresentation I haven't tried it yet. I have psoriatic arthritis. I thought it was RA at first since that's what my dad and grandpa had, but they've determined it's PsA. The Taltz is apparently similar to Humira and other biologics. But it's like $5k to $8k per month apparently. I was approved for free samples, but I don't know what happens after those run out lol. Apparently, Methotrexate works and is cheap but my doc says it's dangerous for the organs.
Very interesting, thanks for sharing that. From the webpage I saw it looked like it's designed for treating spondyloarthropathies, which would make sense because PsA fits with that but RA doesn't. They can be hard to tell apart sometimes, I think. One of the registrars I saw soon after diagnosis thought I might have PsA for a while, but later it was confirmed as RA.
@@aslightlyatypicalpresentation Sorry, I commented before watching the entire video. I hope this one works out for you
thank you ♡