My Chronic Lyme Disease Journey PT. 1 | Early Symptoms | Diagnosis
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- Опубліковано 6 жов 2024
- My journey with Chronic Lyme Disease, Bartonella and Babesiosis. Part One begins with my initial symptoms as a kid, becoming chronically sick at age 17, my move to New York and finally the diagnosis.
My next video will include details on my first appointment with Lyme Specialist, Dr. Liegner, and how my illnesses evolved and worsened as I tried to live as if I were “normal”.
Please comment, ask questions and share your journey too! Xx
Feel better, glad you’re feeling better
My heart goes out to you! I have lived with CLD for years, I gave up dance, sports, all you’ve been through!! If hugs , & you keep fighting!! My grandkiddos are such a light!
I’m watching this, I’m up to minute twelve. You have very good cognitive abilities. My Lyme and bartonella affected me neurologically. You had challenges that I didn’t have. It’s interesting dance (physical) was a big part of your life. You lost it. Thinking was vital to me. I’m so much slower (with a worse memory) now. Your cognitive skills are great. Hope you enjoy! Well both come back okay
So much love to you. My Mums dogs have been a huge support to her. I've recently shared her journey via an interview on my channel.
I have worked in Maine teaching dance at a girl summer camp called Wyonegonic when I was 19. So shout out to Maine!
I love that you collected bottles! 💗
Your story is making me cry. Xxx
Thankyou for making the video. So sad that you had to give up one of your dreams at such a young age. But there will absolutely be other dreams for you 🙏✨ chronic illness makes us appreciate life differently to others that dont or haven't suffered so much, this will give us so much inner strength. You are a strong, intelligent girl,you will be fine and I wish you the best of health now and in the future x
My favorites that people assume about me because of my illness. I’m on drugs or making it up.
I’ve even on antibiotics for 2 years & Rifamin 300 mg. SEEMS to work best but I took 2 at one time Minocycline100mg. 2X day & at first I got bad HERXS! It’s an endless battle!! Happy trails & Thanks for helping us learn!❤
Was perfect word!!!!❤
First off, love your accent. I hear it a bit when you speak and it’s adorable. Second off, I cried when you talked about giving up dance in this video. Knowing you since we were littles, I know how much you loved dance and how wonderful you were. Third off, thank you for making this video. I hope you’re well considering and I look forward to more of your videos. 💕
Thank you so much! I hope you are well too and taking care during these very strange times. More videos coming this week! Also, I have been trying NOT to get an accent but it keeps creeping in! 😂
I’m suffering with Lyme. From Florida also a dancer. Very active mom of 3. Now I have no use of my right hand due to neuropathy from Lyme and I’m a hairstylist. I gained weight during pregnancy but after being sick I’m lost 55 lbs within the first few months of being sick. It seems to be today attacking my lymphatic system,I’m having severe arthritis pain, neurological symptoms especially memory loss & neuropathy in both my hands and feet which is pinched off my radial nerve in my right arm. My family just expects that I’m supposed to get up and go to work every day like I did before this happened eight months ago. Right before I got sick I was going through a separation and I had to move back with my mom at almost 40. And now I’m stuck here because I can no longer work. If you go to my channel you’ll see that I actually even had a UA-cam channel that was gaining Subscribers and I really enjoyed making videos but I can no longer function normally because my suffering is so bad and nobody understands. Thank you for sharing this to help others understand. My mom just keeps telling me to go to the doctor and they’ll make it all better for me. But I’ve been on six courses of antibiotics and I’m still just as sick, almost weekly I wake up with new symptoms and new ways to suffer.
I’m so sorry to hear this, I teared up reading your comment. Have you tried some of doctor Horowitz’s natural remedies and advisements? Is there any questions or anything I can do to help you?
do you want to pray together?
I totally KNOW! I have it!!! Just started LDN. The hot flashes & sweating is “die-off” & called HERX reaction!!!! I’ve had 3 blood transfusions & am 70 SO I have prayed for death!! She much pain & suffering really takes u down 💔
Hang in there Kelly, you are really brave & courageous, you will beat this:-)
Shindler39 thank you so much! 🙏🏼
Thank you for sharing your story Kelly. After 10+ years of developing numerous, varied symptoms, I met a Dr, in December 2020, that finally took my concerns regarding Lyme seriously.
I grew up on a semi-agricultural farm in England, and must have been bitten by 30+ ticks at least in my teenage years. I was a kid and was therefore pretty ignorant to the threats these little guys posed! Fast forward to the age of 18 and I'm away at college. I experienced the sudden-onset Obsessive-Compulsive symptoms, depression, confusion, fatigue etc. More recently, since my early/mid-20s, these have developed into morning nausea, peripheral neuropathy, tingling at the extremities, forgetfulness and worsening psychological symptoms!
For so long I've been thinking "something's really wrong!", and now I feel somewhat vindicated having received positive blood tests back from the National Health Service here a few days ago. I suppose now the challenge is to manage/treat the Lyme disease, but also to restructure the understanding I have of my past and what is possible for my future. I had put down my lack of success in professional environments as a result of being lazy or not trying hard enough, when I always felt exhausted!
Hope there is a positive journey ahead for you as well, good luck :)
Thank you for watching! I’m sorry you have been struggling for so long, but so pleased you now know it is Lyme and have it confirmed via testing! I hope you will be able to be supported by your new doctor and treated accordingly. I highly recommend books by Dr Horowitz “Why Can’t I Get Better” and “How Can I Get Better” for treatment protocols but also tips. You will get better, and this is not how life will be forever! Take care of yourself and please feel free to message if you just want to chat to a fellow Lymie!
I have alot of symptoms like you bit add insomnia inflammation in body cognitive impairment like dementia brain fog I am not able to do normal life but my lyme dieses is on the border I had private test done it will come after 2 weeks and I recently diagnose with hashimoto thyroiditis my is so so zero since 5 months lyme dieses need specialist it's very complex dieseas on diagnose all doctr can't diagnose specially when it's fresh infection.
I had western blot test last month and it was on border then someone told me I need specialist for this
I to believe I have Lyme disease but I have not got confirmation from testing as I have no insurance and no money right now because I can no longer work. At the onset of my symptoms I was going through a separation and had to move back in with my mom for the first time in 20 years. Now instead of being here a few months like I planned I’m indefinitely stuck as I have no way to earn an income with peripheral neuropathy causing my right hand to no longer function & im a hairstylist. I also have severe arthritis symptoms, neurological symptoms and pretty much everything you described including brain fog and severe memory loss. I was always a bright person and a positive person and now I feel lost and broken For the first time in my life. I am almost 40 years old my family especially my mom just expects me to go about life as usual and ignore the pain. But I literally can’t remember what I’m doing for a minute 10 minutes sometimes. So I get made fun of and taught that I’m drama and I’m thinking I’m just lazy and don’t wanna work but I’ve worked for the last 24 years and supported myself & my kids For many years by myself. Thank you for sharing I’m in Florida USA. It’s good to hear others speak out about their experience and know I’m not alone.
Thank you for the video. I am experiencing the symptoms of Lyme disease and was wondering what are the best tests at this time for finding out if you have Lyme disease? Please let me know. Thanks, Tony
stay strong and thank you.
Thank you thank you thank you
U can’t get stressed or worry causes flare/relapse!!! U NEVER know when u will be bed ridden again &again & again…. The NEVER ENDING STORY 😱
How r u feeling now r you better
Did you feel kongnativ issues memory loss irritated restlessness insomnia depression fearful burning sensations in body brain fog etc was you able to do daily life like home outside etc?
def. have burning sensations in the body
Did u try carnivore diet
Did you try ozone therapy and herbs?
It's not work for everyone try carnivore diet it's heal alot of people with treatment.
i love all herbs and take them daily
How did you get All three diseases at once , how unlucky you are :(
It’s more common than you think! Ticks carry thousands of diseases.
God gives us only what we can handle. Kelly, God knows you can beat this. He has given these challenges to you for a higher reason that you may not know if yet but it will be clear to you one day🙏keep shining bright Kelly✨
@@kinzelurban i pray that GOD GIVES ME THE STRENGTH TO