This reminds me of being little and my dad yelling that I need to listen better. And I would yell back that I was trying. But the harder I would try to hear him the harder it was for me to hear the words. Like reading a paragraph over and over again but not being able to understand the words you’re reading… in 33 now and it definitely hasn’t improved much. A tiny bit though. But I’ve also just learned how to cope. I now use ear plugs to filter out the excess noise. I use subtitles on tv shows so I can read it rather than trying to hear it. I apologize for not being able hear people talking and explain I have trouble hearing sometimes.
Notice the difference in Jackie's body language between two videos. In the first she points one ear toward the speaking person (I do so), closes her eyes (I do so or just stare into empty space) and she's so tense. In the second video she's much more relaxed, she doesn't have to move her whole body forward to focus on listening. Ah. I want it too
See now I do the opposite, I watch their mouth move and partially read their lips while they’re talking. My hearing is technically fine volume wise, but I can’t understand what they’re saying if I can’t read their lips. I think it’s interesting the different ways people find to cope with this!
Wait, there's TREATMENT for this?! Whaaaaaaaaaat... I'm not diagnosed, I've just plowed through life not understanding people on the phone and having an incredibly hard time in places with lots of human voices, like a restaurant. Also, a lot of guessing what people are saying based on context. I could get this worked on?! My mind is blown.
I specify voices, because IDK why being in a noisy music room doesn't bother me at all. I can process music just fine, even if everyone in the room is playing different things.
I have never been able to hear the lyrics correctly on any song, while everyone else memorize and can sing it anytime they choose. I can sometimes sing/remember the words as the son is playing. Makes me wonder. Also - seem to have selective memory and I prefer closed captions. Hum Hum Hum????
@@M.Tanner , Thank you for sharing what you did. I've always had the same lyrical challenge. Everyone else singing.. me lost not knowing what was being sung or talked about.. A shy, awkward teenager I was.. real self esteem booster. So I'm trying to learn all can about this, including turning off the closed captioning to relearn lip reading. Be well M. Tanner:)
A new co-worker that asked me a question resulted in a sad co-worker. He asked me “who pulls out the trucks”. I thought he said “pull out the trucks”….. I told him to pull out his own damn truck…. That was in 1986…. We still laugh about it to this day….. I still struggle with comprehension.
The learning difficulties one hit hard 😢 no matter how hard I tried to hear the teacher I just couldn’t. It made learning so incredibly difficult. Every once in a while I would get a good teacher who would take me aside into a quiet area and teach me something one on one, and I would understand it almost immediately and stop struggling. I just couldn’t learn in a classroom setting trying to listen to the teacher at the front of the room. There is not enough help for kids with this disorder, and most of us still struggle as adults.
Thank you for this! I went to an ENT to have my hearing tested because I have found myself needing captions on tv, speakers near my head, and now in my new relationship I’m constantly saying “huh?” “What?” And he literally has to talk slowly into my ear sometimes. We’ve had fun with it, me telling him the wonky things I think he’s actually saying 😂, but it has also knocked my self confidence down… I feel like I’m either getting old or am a ditz. Welp, my ears were wax free, my hearing was well within normal, but I missed interpreting a word during the test. My doctor then told me about CAPD and has referred me to a specialist. Omg… reading about CAPD in adults has made me feel so much better! I’m about to turn 40 and I really thought maybe I’m just losing my hearing or memory. This is explaining so so much and I feel so much better now. Anyhoo… thank you for sharing your knowledge!
How did you get referred for this testing? We are about the same age, and I’m experiencing all the same things as you. I even laughed when I read about you telling your guy all the wonky things you’ve heard! I do that too 😅😂🤦🏽♀️ As funny as that can be (because I KNOW I’ve heard it wrong) it’s becoming an issue in my daily life with conversations and especially at work. I don’t know what to do about it.
Wait till you are ten years or more older; you are nearing the part of your life where your outward appearance will drastically fade into the sunset permanently. Look around at women between 40-50 and compare them to those between 50-56; dramatic in most cases with a few exceptions. So enjoy!
I have medical I'm hoping to see an audiologist I'm not sure how to go about it though. I need to see what I can do about it I am 38 years old and as I age it's getting worse I am suicid** daily. I talked to a guy I worked with and told him right when I met him I have a disability and he was so sweet when I didn't hear what my manager said he said, "Yeah you must be tired..." but he knew I had a disability and he knew just how awful the manager was at times. Even he wasn't happy being their at his job and deserved so much better. It's so depressing having APD and no one understanding the only lady who had it was really old and she said she didn't want to be my friend because I was younger. It's weird meeting another person who has it though.
@@mariahconklin4150 🫂 Hope you stick around! Even if you don't see the exact path right now, I believe things can get better for you. So glad you had that guy at work to basically cover for you! Not sure where you're from, but do you have access to a GP? Perhaps you could talk about the issues you've been having, mention/show what you've found, and then ask for a referral to an audiologist? Really hoping for all the best for you!
This really affects my social life. Bars, clubs and restaurants I can’t hear a thing people say so it’s such a lonely experience. I take things the wrong way which leads to paranoia and anxiety. I never remember peoples names as well. I’ve been referred to be tested for ASD so maybe it’s all linked.
I can understand your frustrating situation. I can't understand someone talking to me when I brush my teeth the vibrating of my electric toothbrush, wash my hands due to I only hear the water,rock concerts, bars, restaurants, festivals, clubs, and if someone asks Hey, do you want a red bull? I may hear hey, do you want an O'douls? My response would be God no! That's disgusting! Or it's wah way wah. It's muffled. I also have inattentive ADHD.😢 I've learned to say, " let me clarify my understanding I heard.. Is that what I understood or did you mean something else?"
Before I was diagnosed with ADHD (in my late 20s) I thought I was going deaf! Im a doctor and I would stand in a noisy ICU and have to ask my consultant to repeat themselves again and again. The weirdest benefit of taking medication was that I could suddenly have conversations with people! I could hear them and follow their conversation without constant effort. I still have some issues which I think are likely APD related (I haven’t been tested) but these videos are so interesting and given me hope that this is something I can work on more in the future!
Somethings wrong with me..I’m 34 and have had this issue for years! I’ve tried to be a better listener, it seems like I just don’t get what people are saying especially if it’s a complex set of directions..anyways I have other mental health issues..
This is me! APD is the best explanation of how I struggle every day. When I was a child I had over a 100 year infections by the time the eye was 8 months old. My 1st hearing test showed that I could only hear a low Mail vowel sounds. Later is school I was diagnosed with a learning memory Disorder. And dyslexia. I have been struggling to hear people my entire life. I have had 3 autologists dismiss my complaints. My texts say my hearing is in the normal range. But I struggle to understand what you are saying especially in the room with other noises. I have to figure it out after somebody has said something to me to interpret what I think I heard. I tell people that I am hearing impaired, Because if they know that then they will AT LEAST speak more clearly and Face me before they begin speaking. I very heavily rely on lip reading to understand the context of what someone is saying. It is just one more clue. Mow i know what APD is, how do I get tested?
Too many vaccines before the age of three (see VAERS data) and exposure to artificial formulas as opposed to mothers breast milk from a mother who eats "healthy". For example, in the 70's (War on Cancer began and Nixon declared we would end cancer within 20 years) a child with cancer was so rare that the CDC would send a team to investigate. Now it is common we think nothing of it.
I was diagnosed with APD at a young age. I've struggled with being able to focus on class, build friendships, social gatherings, work environments, and family disputes. There was barely any information on APD back then, so I use to get sent away by the optician after passing their test. I knew that I didn't have problems with actually hearing sounds, but it was the ability to translate those sounds. Kind of like having a conversation with somebody while submerged in water. I can hear you, but what are you saying?? I'm very happy to hear that it is treatable o.O I was under the impression that I would have to combat this condition my whole life. I hope I can seek the right help to aid me in how to treat APD.
Are you KIDDING ME? I thought this was just ADHD, I've worked in aviation my whole life and now this is supposed to be linked to exposure to jet fuel? I'm so upset that I've had to struggle with this
@@musicandpoetry_8same! And I got adhd. Trying to research if I have APD bc I struggle to understand or miss words and feel like idiot so embarrassing, not being g able to keep up.
I’m getting tested soon to get a diagnosis and some help, but I didn’t know it was treatable, I thought it was something you could get support for. This gives me hope! Thanks!
Have been complained about multiple times at work for ‘not listening’ coming across as RUDE. Had multiple hearing test but all came back perfect. Now knowing what this is hopefully will make it so in the future I’m not anxious about going into work🙌
I can talk to people in general for the most part , but when it gets to being told to do something like follow directions or just someone saying something to me that I don’t find important, I zone out..either way it’s affecting my ability to work :(
Honey, thank you. This validates me. I'm certain my mom has undiagnosed APD and I never looked into it for fear of being her. My parents took me to a learning specialist when I was a kid. I don't remember what for. I had thousands of ear infections as a kid and as an adult, sometimes struggle to hear friends and following group conversations feels exhausting. Where can I see you haha?
Yeah I have found that throughout my life I have been labelled as the dumb one or have brought upon enemies for no reason. My main goal in life is to understand others contexts and treat them kindly no matter the person. But I found that people just didn’t give me the time saying “don’t worry about it”when I am trying my absolute hardest to understand them failing every time and being shot down as useless dumb and not worth anyones time. I don’t like to tell others I have a hearing disorder because I have a feeling they would use it as a label against me. But I know deep down they don’t understand and I keep a smile on my face and don’t give those people any of my time or attention. The real friends understand you and give you the time to listen regardless if you told them you have a disorder because you know from the start they don’t treat anyone else with with disrespect based on their weaknesses.
I went to a speech therapist because I thought I had DLD due to difficulty expressing myself but with the tests showing really poor “recalling sentences” I was suspected of having APD. I struggle to figure out how APD could cause / affect my verbal fluency/ communication skills though. Is it linked to how the brain puts together your thoughts before you speak or something?
Yes, it has to do with how the brain stores and processes speech, verbal fluency and communication skills are directly affected if your brain processing sound efficiently. In other words, the harder your brain has to work to process speech sounds the more likely this will also impact communication.
Really wish this company was available near me. My doctor recently sent me to a local Audiologist and they told me it was too late to deal with this as I had just turned 50 years old (something to do with the brain functions change in your 50s, I'm 'still confused). I had gone in full of life, feeling on top of the world thinking I may actually finally deal with having APD but left the Audiologist more broken and crushed.
I didn't know there was different treatments, this video gave me some relief. I was diagnosed at age four and lived with it not knowing I had it all throughout school. I was put into special classes where I couldn't learn normally and didn't know why. My school honestly thought I had memory problems, and I just wasn't paying attention and listening on purpose. My social anxiety and depression developed from it as I was shy with a few friends since I'd talk with such a quiet voice that I was unaware of. My classmates just assumed I had other problems since I was in those special classes. My mom eventually told me what I had (APD) and I was a little mad but I finally understood why I was like this. My older cousin has the same thing and he's a lawyer, so I really look up to him and have hope for my future living with this impairment.
Me and my mom for sure have this. It is fkng frustrating lol I will just nodd my head most the time. I’ve had a lot of foreign people tell me I’m so easy to talk to because I talk loud and clear I said yeah that’s the only way I can understand anything unfortunately
Hi. When I google APD (auditory processing disorder) therapy, speech-language pathology (speech therapy) comes up. Check with your local university/college that teaches speech-language pathology. Mine has a comprehensive community clinic that evaluates and provides therapy (treatment). It is done by graduate students under the supervision of a licensed speech-language pathologist. They do not take insurance. That being said. It's about $100 for evaluation, $150 for the semester (that's 20 sessions!) Again, that's $150 for 20 sessions, not PER session. They also have scholarships available.I have found doctors don't always know what is available. Good Luck!
I was suffering from malaria, the injection saline medicine affected me. From then I have Auditory neuropathy. I car hear pure tone(birds chirping/ car horn) but feel hard to understand words/ sentence.
I am at an all time low. My father noticed I had trouble following multiple conversations in groups or in family car road trips I had trouble following along with what everyone else was talking about so he took me to get tested for CAPD when I was in elementary school and I tested positive. The brain training treatment program was going to be fully covered under his insurance, so he said, and I was supposed to go 5 days a week. But my dad claims that he didn't end up taking me because my mom didn't want to take me on her weeks as they were divorced and somehow he just "gave up" because she didn't want to believe I was diagnosed or something? It just seems like a lame excuse because she also didn't like me playing ice hockey but that sure as hell didn't stop my dad from pushing me into that sport on his weeks. I feel like he is hiding or lying about something about the brain training exercises I was supposed to get treatment for. So I ended up struggling really badly at school, at work, at college, and in social situations. And even in sports because I couldn't hear what my coach or teammates were shouting at me half the time, going first during practice or scrimmages was nerve racking since I could never be sure if I heard the coach's instructions clearly. I've become an introvert out of embarrassment. Having untreated CAPD made it hard for me to read to this day. Or take notes in class. My reading retention and comprehension rate is awful. Everyone thinks I'm sucking at life and failing on purpose because my hearing levels are so normal and my intelligence level is relatively decent. People hear me speak or read my writing and believe that my ability to articulate my words and my vocabulary indicate that I should be a fairly high functioning person who is industrious in the workplace and able to achieve a higher level of education. The reality is that I'm overcome with emotions and tearing up as I write this because I had to drop out of college because I could not get good grades to save my life. Even though I was in school during covid and all my classes were recorded and I could play back my professor's lectures a million times a day with captions and a transcript on the side of the screen while sitting alone in my home I still could not understand the material. I could hear the words, I could see the words, I could write the words, I could understand the individual words spoken, but I could not grasp the concepts the professor was saying. Like I had all the pieces of a bicycle with the instruction manuel but just could not for the life of me understand how to assemble the bicycle or visualize what a completed bicycle could possibly look like. I have quit jobs because I get so overwhelmed with the pace and workload. I have had to take brain dead low paying jobs where I don't have to think or interact too much with others or read too much writing material because my brain simply cannot handle it without me having an emotional breakdown. I've had coworkers hate me because they end up having to do my job for me because I get brain freeze and can't think straight and they think that I'm being lazy or playing dumb to get out of doing hard work at it feels awful. My father lectured me on Father's day yesterday how I still owe him and the government to pay off my remaining $20,000 student loan for the "wasted" money I "squandered" on being a college drop out by not completing my college education even though my dad knows I have CAPD and he never followed up on the treatment for whatever piss poor excuse he has. Instead he told me I had to control my emotional problems and I spent time in therapy and he encouraged me to take dangerous medications such as Ritalin, Prozac, and Adderall since I had trouble in school and was unhappy due to low self confidence academically and socially. My sister used to make fun of me and call me retarded all because I seemed "slow" when really I had trouble distinguishing what people were saying and took my time to respond in case I misheard and didn't wish to embarrass myself. It is so hurtful that my dad is turning his back on me fir struggling in school and at work because of the hearing and learning disability he refuses to help me seek treatment for and now he's holding it over me that I can't pay off my student loans he coerced me to cosign with him, even though my parents kicked me out and I'm homeless now and sleep in my car working whatever minimum wage job I can depend on and barely able to have enough money to eat, pay my bills, keep gas in the tank, and stay on top of car maintenance. Meanwhile my well to do family members are all living the high life in the lap of luxury celebrating all their successes and achievements while I cry here alone in my car homeless and in poverty contemplating suicide because I've been disowned by my family that refused to help me get treatment for my disability which would have allowed me to function properly in the world. I am hurt beyond words. This is a pain that never ends. The shame for having a disability that no one can see, and now I will cling to life with the hope that my Medi-Cal insurance will cover brain training exercises for me at 32 years old. I'm in agony but maybe there is still some hope for me. If I ever am able to get treatment for my CAPD and finish school, pay off my student loans, get an apartment, and get a well paying job, I will never talk to or see my father ever again. I won't be helping him in his old age. I won't be visiting his hospital bedside. I won't be going to his funeral. He used to scream and rage at me and terrify me in middle school and high school for having bad grades. Instead of getting me the CAPD treatment and a tutor. He pressured me to go to college even though I didn't want to - K-12 had been bad enough to endure. Then he shames me for dropping out "ruining our deal". I didn't just drop out. I had a complete psychotic break from reality because of the adhd drugs and antidepressants my psychiatrist put me on and my dad was the one who drove me to the psychiatric hospital. The second time I dropped out of college was because I came home one night and got raped and attacked by a masked home invader with a gun and had another psychotic br3ak from reality. My father is cruel and unempathetic. I tried to do everything to please that man. Trying to finish school has nearly killed me several times. He said the only joy I brought him was him watching me do well in sports. Anytime I got a good grade he would just say, "Great, just keep it up and don't f*ck up next semester." Very little positive reinforcement. Every time I tried to work he would make me feel less than because it would be a low paying job and the fact that I still hadn't finished school and I couldn't bare the shame and humiliation.
I have adhd and I read it…thank you for sharing this. I can relate to you a lot. Please don’t give up hope and I won’t give up either. I promise you, you are worth it. F your dad…and find the people who love you for all of you. But first you have to love you for all of you. I hope you read this. Don’t ever give up.
Can you get treatment at any age? I’m 51, was diagnosed with mixed receptive/expressive disorder in my late-20s, but never followed up on it (diagnosed with ADHD at the same time; life got in the way), and would greatly love to have better word retrieval as well as not having to ask people to repeat something as often.
Wow, I wish I had this resource. I don’t like talking about it but I compensate a lot also require subtitles for TV and movies. People don’t take that stuff seriously. I’m curious about about the treatment
I’m a teen and I think I have APD, when I’m at home and my parents are speaking to me I sometimes don’t understand what they are saying. Sometimes i feel that if my family learnt sign language I could understand them better. How do I approach them about this?
hey i feel like i might have this disorder but for me it has only occurred in recent years im 20 now it began about 3 to 4 years ago i recently started a new education after not going to school for about 2 years and whenever the teacher is teaching about a topic unless i concentrate a full 100% on what they are saying i just cant procces what they are saying im hearing the indivuall words but they dont form to meaningful sentences in my head i though the problem was the language since i was born in the netherlands and moved to germany 4/5 years ago i blammed it on my German not being good enough i notice though that when people are loud or im looking even thinking about something else i hear everything but i cant procces it even watching this video i was thinking about this comment and everything that was said was not processed in my head this has been happening a lot too for me in my mother tongue too and in english wich i would say that im fluent at my mother always says that i need to pay attention since that it doesnt seem like i am whenever people speak to me but im just really trying to procces what is being said. im almost sure that it cant be my hearing being bad since whenever im gaming im always the one that notices the slightest little noises for example when someone is walking up on me or reloading a gun in the game where there are a lot of noises happening at the same time is the anyway that you could help me or test me since i for a job have decided to become a esports commentator where you need to be watching and paying full attention to what is happening in the game while at the same time listen to and process what your fellow commentator is saying in order the further go on about what they say, this has been a very huge problem in my life and it has effected me a lot. i would be willing to be recorded if you would want to do that if you want to contact me my email is thijswittermans@gmail.com
2:07 I was listening but then I had to rewind because I was blowing my nose and literally couldn't understand anymore 😅 Edit: idk if they're not annunciation well or the recording is bad but I'm having trouble listening to the questionnaire without looking at it. Uh oh.
I found out I had APD as an adult. My friends son had it and I knew I absolutely had it as well. I've spent my entire life feeling stupid. It affects every part of my life. The worst thing is the feeling of not understanding...not getting it....feeling out of the loop...and feeling stupid. To this day I have recieved no help for it. My only consolation is I know I have it.
OMGoodness...I know that my nephew has a processing disorder since childhood...This test with Jackie may explain why he might not want to participate in some of the typical social activities that we as typicals all take advantage of on a regular basis...we thought he was being anti-social. This makes me hopeful.
Dang okay, I spent the entirety of elementary and middle school just quietly eating at lunch because I couldn’t understand a dang thing anyone was saying in the crowded lunchroom. Thought I was just weird I guess. It got better to deal with in high school when there weren’t hundreds of us condensed in the same room but I would still have moments. Honestly it’s still a trick to tell the difference between left and right if gps is reading it off. Cool to know that there is treatment, I didn’t know that was a thing.
I didn't know that there is treatment for it....😭 I thought there is no point in getting officially diagnosed, if there is no treatment...I have to reconsider that now cause it affects me similarly badly as jackie here :(
It can almost get you arrested for using the wrong word. I was in a Walgreens I needed aspirin and was thinking aspirin but the word anavar was coming out. There was a cop there and I was detained and investigated and written a criminal trespass.
2 minutes in- I lost what she was saying bc I wasn't reading the subtitles but focusing on reading the video text despite it being essentially the same.
Hah, I have the same answers to those questions. Had my hearing checked repeatedly, and it always comes back as fine. I usually hear real sounds others don't. But I can't keep up with conversations, or remember words said to me. Still trying to figure this out.
Dyslexia was one idea I thought my kid had based of so patterns and number sequence deficiencies like ten fingers up and if I took away one hand away it was still hard to simply say 5. But since then has passed regents math. Now has issues with small talk, listening but doesn’t get triggered by answers in a conversation in other words it doesn’t prompt to asking another question or perhaps see the importance of asking as another question or the need to know or see what you might want to know about this person it’s just not there.
Omg I tried working at The Original Pancake House and although the job was fun when they told me to use a microphone I couldn't hear my manager call for me to buss the tables. The owner laughed at me to and management would yell at all of us and was passive aggressive. I finally left after one day because I couldn't sleep I was so depressed and yet again suicida* Mental health professional diagnosed me with Bipolar 1 now but I know it's my bad APD it's just getting worse I'm so depressed I want to cry as I listen to this and type. It's weird because sometimes I could hear on the walkie talkie other times I can't hear. But then when I take the tests on here I do well. I feel like my brain is messing with me. I forget things all the time to so does my ex boyfriend he has ADHD and possibly autism. Imagine being abuse* and yelled at by people at work though and made to feel like you are dumb and or lazy or not listening. Imagine being told you all are doing so good but you need to be faster and thinking you are already fast enough. I just want to disappear because I feel so depressed and people (even my family think I'm just mooching off of them and emotionally they won't help. My mother and grandmother say their is something wrong with me while my dad says their is nothing wrong with me I just need Jesus. It's so depressing...And other jobs like janitorial that aren't fun...those jobs aren't fun to me I really enjoy bussing and dishwashing but I'm not fast enough and am stupi* clearly. I wish people would listen I keep telling them it's like being deaf then it's "Well you can't work then..." I even had a social worker tell me that. I'm just so depressed. I put ear plugs in my ears all the time to it's rare I have them out.
Honestly I wonder if APD is a mix of ADHD and/or language disorders or autism. You see all these comments who've been diagnosed with them asking if they have APD. APD's not officially recognized in the DSM 5 too so that's my theory
I'm 51 and wonder if I have mild APD. I'm an audiophile with pretty good hearing for my age, but if it's a reverberant room, the person is facing away from me, or there's other noise around me, it's sometimes hard for me to understand what others are saying. I've done online tone-deafness/pitch tests and can detect 1/32nd changes easily, 1/64th most of the time. I even use subtitles sometime when watching TV.
I'd highly suggest finding someone near you as the first port of call. We have a list of providers on our international APD map here: APDsupport.com/apdmap If you're still needing more support, there is also information about the online therapy program on that same website. Thanks for reaching out and I hope you get the help you need! Kind regards, Angela
Well, I didn't understand any of the questions said to Jackie when not reading the text below. I understood all the questions when reading the texts. I suffered to an AVM at 19 and I am completely dependent on visual information as verbal is always mixed up and I do not know where the questions are going.
Does ADP make it hard to retain information? Does ADP make it hard to ratain information that I read? I have diagnosed with ADD, but sometimes have no clue what people are saying unless I looking at them, it's super hard to stay in conversations. Would this be ADP related too?
Do any of you suffer from hearing music out of tune ? My extensive iTunes library is slowly diminishing. Some tracks are still ok . But most have one problem or another. Instruments missing vocals missing. Out of tune. Especially piano. But the same tune played on guitar sounds ok . I’ve got the rest of symptoms though. Hearing people ok but not understanding. Not coping in noisy environments. Good job I’m a complete introvert that actually seeks solitude. I’m missing my music though. Oh yeah, forgot. With me location is everything. Different rooms have different acoustics. And I can talk all day on the phone to my brother but struggle to understand anything he says face to face. Bloody weird
What is it called when you only seem to have auditory processing problems when taking notes? (You can't process what is currently being said when you are taking notes).
Sensory overstimulation? Idk, I had to ask a teacher once to stop reading out the notes on the board (because she would skip words or say it slightly off, my tism did not like that). It was difficult to understand what I writing down and pay attention to what she was saying. Quite frustrating when it's the same material.
I swear I have this.. literally I have so much struggle with understanding people especially in areas with a lot of background noise. I physically can't focus on the voices with lots of background noise. Instead I focus on the noises and not the voices of others. Makes it hard to understand what others are saying.
I'd highly suggest finding someone near you as the first port of call. We have a list of providers on our international APD map here: APDsupport.com/apdmap If you're still needing more support, there is also information about the online therapy program on that same website. Thanks for reaching out and I hope you get the help you need! Kind regards, Angela
Is nobody going to mention that in the first interview Jackie had a Spanish accent and the second interview “Jackie” had a British/Australian accent? Or am I missing something lmao
@@Me-ei8yd sounded more lower to middle class South Australian, Central Coast Australian or Kiwi/New Zealander to me. Because her inflection didn't upswing during her explanation, I suspect more Aussie than Kiwi, however, she could have a partner or parents from NZ, and/or could have lived there for a large portion of time. Definitely not South African, because while they're similar accents, South Africans have more variation in tonality across their sentence. It could be possible she's autistic, which tends to give some people a monotone voice, however, the way she holds herself also appears Aussie. And she has a very similar accent to Julia Gillard, who grew up in South Australia.
This is a fantastic and inspiring video. I’m on a wait list for an APD assessment in Canada, but right now, I feel kind of hopeless that I could get treatment for my auditory processing difficulties. A little feedback on this video: it is obvious that Dr. Alexander is speaking clearly and slowly for the people watching, who like me, struggle in processing sound - and that Dr. Alexander’s parts of the video have captions which viewers can follow along with while they watch. However, during the showing of the first of Jackie’s HHIA tests, the “subtitles” (written form) of the questions from the professional conducting the test, as well as Jackie’s responses, did not show up until after the questions were asked. As a person who typically needs subtitles to follow along with a video, I disliked the delayed showing of the questions of that first HHIA test, since the professional asking the questions spoke quickly. I had to pause the video multiple times, to read the questions after they were asked, before moving to the next questions. I was alarmed that during the second HHIA test recording shown, the professional conducting the test spoke slower and clearer, and I only needed to pause the video once or twice. If, in the future, you upload more case studies with HHIA test recordings involved, your presentation of the written questions and their answers prior to the start of each questions being asked would be majorly helpful for people like me who have trouble understanding people who speak quickly and/or unclearly. Thank you in advance!!
Hi, Can you provide an update if you got help in canada? My partner was diagnosed with this as a teenager but never got help, its severely impacting his life and I am trying to find help and cost info. Thanks!
@@plantbasedtravelbound9744 Hi. Thanks for the follow-up. I’m sorry to say that I got assessed and the audiologist clinic said I don’t have APD, that it’s just my anxiety and my hearing is way above average. Unfortunately I can’t give you advice on funding or Canadian APD resources, or anything. I feel like mentioning my having a naturally intuitive musical ear (I’m weirdly good at ear training and sightreading) because my parents are really musical, might have been a factor in the results from my APD assessment, but idk. My above-average hearing ability is really just my hypersensitive nervous system, but ok whatever, it was two audiologists’ opinions out of how many audiologists in the world. What about the ppl with APD who are sensory-avoidant and what about the fact that APD is not a hearing disability but a brain disability?? Anyway, I refuse to believe my symptoms are “just my anxiety” and right now I’m in the process of getting a psychoeducational assessment for learning disabilities+, through my post-secondary college. I, more than ever, have suspicions of having ADHD or something of the like, but in a month I’ll see what the psych-ed results say. It’s good timing that you followed up on this, rn! I live in Alberta, so my college told me that if any diagnoses come out of the psych-ed assessment (which I’m getting my second screener for, today!!! ✨), I can get government funding support for that/those diagnosis/es for free. In which province or territory do you/your partner reside? I got my APD assessment done at the Soundwave Hearing Care audiology clinic in Calgary, AB. I had to take a road trip and drive there, the waiting list to get assessed was REALLY long because ppl travel from all over the country to get assessed there, and my assessment fee at the end was $500. I don’t remember if the fee included the online telehealth results appointment a while after the in-person assessment. To start out, you go to their website, send them an email asking for info, and then they get [your partner] to fill out an APD questionnaire and scan it back to them while you wait for your assessment to roll around. I think part of the questionnaire you will fill out on behalf of your partner, another perspective so the clinic doesn’t think it’s a hypochondriac situation. At the start of the actual assessment, they will likely ask your partner why they’re there at the assessment, like their symptoms and [neurodiverse] history, what arrived them at the conclusion that they could have APD. Then they put your partner through a bunch of tests, starting with a hearing test then the APD test. The whole thing is 2.5 hours long. My appt was early in the morning like 9:15am, so I had to leave my town around sunrise to get there in time...and it was summer, so the sun rose really early.
@@itsdune079 Thanks so much, we are in Toronto, and he also comes from a musical family, thats interesting. I will pass on your information and hopefully it helps him! I think he might also have ADHD, but he has a really hard time understanding things and communicating what hes heard.
@@plantbasedtravelbound9744 You’re welcome! Ohhh okay yeah then you’d have to fly to Calgary. It’s good that Calgary has an airport! I’m not sure what the COVID guidelines are for leaving ON, though, so you’d have to read up on that. Yeah it is quite interesting! Great. I hope it helps him, too. My main suspicion is ADHD, but APD was one of the first things that came up in my dad’s differential diagnoses process (he’s a GP) when I told him all my symptoms, so I thought I’d look into it
Can we develop APD at any age? Because i'm 20 year old and till 19 i could hear everything clearly and understand well but since a year i couldn't understand what people are saying sometime😭😭
Yes, this is correct. While some people may have difficulties early in life with auditory processing, it can also occur later in life for various reasons.
I am also not good at using different words for the same object for political reasons. Like marijuana plants I tend to call all cannibas plants marijuana and make no distinction. I tend to say squid instead of the fancy word for it.
Ah! Great question. I've been living in New Zealand and Australia for the past 12 years where we speak more British English than American English. I hadn't realized (we would say realised here, lol) that I had changed how I say it! ua-cam.com/video/3SEQUtNZ36o/v-deo.htmlsi=LQlJEbZhrGZVmQ74
John 3:16 NIV For God so loved the world that he gave his one and only Son, that whoever believes in him shall not perish but have eternal life. 🙏!!!!!!!
Why is your skull so thick? It's for people who have APD and might need someone to speak slowly enough to understand the information being conveyed. Numbskull.
Im tired of getting yelled at , because "im not listening, " when im listening as hard as i can, and i asked to clarify part of it because I *CARE*.
Exactly this! Also, I wish it were more common to address others and initate conversations instead of just starting and i dont know lol
This reminds me of being little and my dad yelling that I need to listen better. And I would yell back that I was trying. But the harder I would try to hear him the harder it was for me to hear the words. Like reading a paragraph over and over again but not being able to understand the words you’re reading… in 33 now and it definitely hasn’t improved much. A tiny bit though. But I’ve also just learned how to cope. I now use ear plugs to filter out the excess noise. I use subtitles on tv shows so I can read it rather than trying to hear it. I apologize for not being able hear people talking and explain I have trouble hearing sometimes.
Notice the difference in Jackie's body language between two videos. In the first she points one ear toward the speaking person (I do so), closes her eyes (I do so or just stare into empty space) and she's so tense. In the second video she's much more relaxed, she doesn't have to move her whole body forward to focus on listening. Ah. I want it too
See now I do the opposite, I watch their mouth move and partially read their lips while they’re talking. My hearing is technically fine volume wise, but I can’t understand what they’re saying if I can’t read their lips.
I think it’s interesting the different ways people find to cope with this!
Wait, there's TREATMENT for this?! Whaaaaaaaaaat... I'm not diagnosed, I've just plowed through life not understanding people on the phone and having an incredibly hard time in places with lots of human voices, like a restaurant. Also, a lot of guessing what people are saying based on context. I could get this worked on?! My mind is blown.
I specify voices, because IDK why being in a noisy music room doesn't bother me at all. I can process music just fine, even if everyone in the room is playing different things.
You should totally see a doc about this. Sounds like CAPD to me! (I’m not a professional.)
I usually just say ‘oh yeah’ and laugh. Most of the time it works.
I have never been able to hear the lyrics correctly on any song, while everyone else memorize and can sing it anytime they choose. I can sometimes sing/remember the words as the son is playing. Makes me wonder. Also - seem to have selective memory and I prefer closed captions. Hum Hum Hum????
@@M.Tanner , Thank you for sharing what you did. I've always had the same lyrical challenge. Everyone else singing.. me lost not knowing what was being sung or talked about.. A shy, awkward teenager I was.. real self esteem booster. So I'm trying to learn all can about this, including turning off the closed captioning to relearn lip reading. Be well M. Tanner:)
Glad there’s subtitles
I believe I would test like Jackie. I had had no idea that there was such a thing as auditory processing disorder, I just knew I struggled.
A new co-worker that asked me a question resulted in a sad co-worker.
He asked me “who pulls out the trucks”. I thought he said “pull out the trucks”….. I told him to pull out his own damn truck…. That was in 1986…. We still laugh about it to this day….. I still struggle with comprehension.
The learning difficulties one hit hard 😢 no matter how hard I tried to hear the teacher I just couldn’t. It made learning so incredibly difficult. Every once in a while I would get a good teacher who would take me aside into a quiet area and teach me something one on one, and I would understand it almost immediately and stop struggling. I just couldn’t learn in a classroom setting trying to listen to the teacher at the front of the room. There is not enough help for kids with this disorder, and most of us still struggle as adults.
One positive thing I learnt from APD is we get to see the world from a lil different angle.lets cheer up
Thank you for this! I went to an ENT to have my hearing tested because I have found myself needing captions on tv, speakers near my head, and now in my new relationship I’m constantly saying “huh?” “What?” And he literally has to talk slowly into my ear sometimes. We’ve had fun with it, me telling him the wonky things I think he’s actually saying 😂, but it has also knocked my self confidence down… I feel like I’m either getting old or am a ditz. Welp, my ears were wax free, my hearing was well within normal, but I missed interpreting a word during the test. My doctor then told me about CAPD and has referred me to a specialist. Omg… reading about CAPD in adults has made me feel so much better! I’m about to turn 40 and I really thought maybe I’m just losing my hearing or memory. This is explaining so so much and I feel so much better now. Anyhoo… thank you for sharing your knowledge!
How did you get referred for this testing? We are about the same age, and I’m experiencing all the same things as you. I even laughed when I read about you telling your guy all the wonky things you’ve heard! I do that too 😅😂🤦🏽♀️ As funny as that can be (because I KNOW I’ve heard it wrong) it’s becoming an issue in my daily life with conversations and especially at work. I don’t know what to do about it.
Wait till you are ten years or more older; you are nearing the part of your life where your outward appearance will drastically fade into the sunset permanently. Look around at women between 40-50 and compare them to those between 50-56; dramatic in most cases with a few exceptions. So enjoy!
I have medical I'm hoping to see an audiologist I'm not sure how to go about it though. I need to see what I can do about it I am 38 years old and as I age it's getting worse I am suicid** daily. I talked to a guy I worked with and told him right when I met him I have a disability and he was so sweet when I didn't hear what my manager said he said, "Yeah you must be tired..." but he knew I had a disability and he knew just how awful the manager was at times. Even he wasn't happy being their at his job and deserved so much better. It's so depressing having APD and no one understanding the only lady who had it was really old and she said she didn't want to be my friend because I was younger. It's weird meeting another person who has it though.
When you look for an audiologist make sure they test for auditory processing disorder specifically.
@@mariahconklin4150
🫂 Hope you stick around! Even if you don't see the exact path right now, I believe things can get better for you. So glad you had that guy at work to basically cover for you!
Not sure where you're from, but do you have access to a GP? Perhaps you could talk about the issues you've been having, mention/show what you've found, and then ask for a referral to an audiologist? Really hoping for all the best for you!
Did you have to turn the volume up during Jackie's assessment and still missed some of the questions? Yes.
Also very difficult to follow because the audio and video are not synced
Yes
This really affects my social life. Bars, clubs and restaurants I can’t hear a thing people say so it’s such a lonely experience. I take things the wrong way which leads to paranoia and anxiety.
I never remember peoples names as well. I’ve been referred to be tested for ASD so maybe it’s all linked.
I can understand your frustrating situation. I can't understand someone talking to me when I brush my teeth the vibrating of my electric toothbrush, wash my hands due to I only hear the water,rock concerts, bars, restaurants, festivals, clubs, and if someone asks Hey, do you want a red bull? I may hear hey, do you want an O'douls? My response would be God no! That's disgusting! Or it's wah way wah. It's muffled.
I also have inattentive ADHD.😢
I've learned to say, " let me clarify my understanding I heard.. Is that what I understood or did you mean something else?"
Before I was diagnosed with ADHD (in my late 20s) I thought I was going deaf! Im a doctor and I would stand in a noisy ICU and have to ask my consultant to repeat themselves again and again.
The weirdest benefit of taking medication was that I could suddenly have conversations with people! I could hear them and follow their conversation without constant effort.
I still have some issues which I think are likely APD related (I haven’t been tested) but these videos are so interesting and given me hope that this is something I can work on more in the future!
Hi may I ask what medication helped you hear better? I have APD too and people think I have adhd.
Which medication has helped if you don't mind sharing
Somethings wrong with me..I’m 34 and have had this issue for years! I’ve tried to be a better listener, it seems like I just don’t get what people are saying especially if it’s a complex set of directions..anyways I have other mental health issues..
It’s getting more difficult holding down jobs and I can’t get on disability
My brain fog is awful as well from my meds for my mental health uggh
This is me! APD is the best explanation of how I struggle every day.
When I was a child I had over a 100 year infections by the time the eye was 8 months old. My 1st hearing test showed that I could only hear a low Mail vowel sounds. Later is school I was diagnosed with a learning memory Disorder. And dyslexia. I have been struggling to hear people my entire life. I have had 3 autologists dismiss my complaints. My texts say my hearing is in the normal range. But I struggle to understand what you are saying especially in the room with other noises. I have to figure it out after somebody has said something to me to interpret what I think I heard. I tell people that I am hearing impaired, Because if they know that then they will AT LEAST speak more clearly and Face me before they begin speaking. I very heavily rely on lip reading to understand the context of what someone is saying. It is just one more clue.
Mow i know what APD is, how do I get tested?
Too many vaccines before the age of three (see VAERS data) and exposure to artificial formulas as opposed to mothers breast milk from a mother who eats "healthy".
For example, in the 70's (War on Cancer began and Nixon declared we would end cancer within 20 years) a child with cancer was so rare that the CDC would send a team to investigate. Now it is common we think nothing of it.
I was diagnosed with APD at a young age. I've struggled with being able to focus on class, build friendships, social gatherings, work environments, and family disputes. There was barely any information on APD back then, so I use to get sent away by the optician after passing their test. I knew that I didn't have problems with actually hearing sounds, but it was the ability to translate those sounds. Kind of like having a conversation with somebody while submerged in water. I can hear you, but what are you saying?? I'm very happy to hear that it is treatable o.O I was under the impression that I would have to combat this condition my whole life. I hope I can seek the right help to aid me in how to treat APD.
Are you KIDDING ME? I thought this was just ADHD, I've worked in aviation my whole life and now this is supposed to be linked to exposure to jet fuel? I'm so upset that I've had to struggle with this
It feels like ADHD, they feel similar..I find my mind going all over the place like it’s vocal dyslexia
@@musicandpoetry_8same! And I got adhd. Trying to research if I have APD bc I struggle to understand or miss words and feel like idiot so embarrassing, not being g able to keep up.
I’m getting tested soon to get a diagnosis and some help, but I didn’t know it was treatable, I thought it was something you could get support for. This gives me hope! Thanks!
Have been complained about multiple times at work for ‘not listening’ coming across as RUDE.
Had multiple hearing test but all came back perfect.
Now knowing what this is hopefully will make it so in the future I’m not anxious about going into work🙌
Im struggling I have this disorder its so hard to learn and remember things and have conversations with people
I can talk to people in general for the most part , but when it gets to being told to do something like follow directions or just someone saying something to me that I don’t find important, I zone out..either way it’s affecting my ability to work :(
Honey, thank you. This validates me. I'm certain my mom has undiagnosed APD and I never looked into it for fear of being her. My parents took me to a learning specialist when I was a kid. I don't remember what for. I had thousands of ear infections as a kid and as an adult, sometimes struggle to hear friends and following group conversations feels exhausting. Where can I see you haha?
Yeah I have found that throughout my life I have been labelled as the dumb one or have brought upon enemies for no reason. My main goal in life is to understand others contexts and treat them kindly no matter the person. But I found that people just didn’t give me the time saying “don’t worry about it”when I am trying my absolute hardest to understand them failing every time and being shot down as useless dumb and not worth anyones time. I don’t like to tell others I have a hearing disorder because I have a feeling they would use it as a label against me. But I know deep down they don’t understand and I keep a smile on my face and don’t give those people any of my time or attention. The real friends understand you and give you the time to listen regardless if you told them you have a disorder because you know from the start they don’t treat anyone else with with disrespect based on their weaknesses.
I went to a speech therapist because I thought I had DLD due to difficulty expressing myself but with the tests showing really poor “recalling sentences”
I was suspected of having APD. I struggle to figure out how APD could cause / affect my verbal fluency/ communication skills though. Is it linked to how the brain puts together your thoughts before you speak or something?
Yes, it has to do with how the brain stores and processes speech, verbal fluency and communication skills are directly affected if your brain processing sound efficiently. In other words, the harder your brain has to work to process speech sounds the more likely this will also impact communication.
Really wish this company was available near me. My doctor recently sent me to a local Audiologist and they told me it was too late to deal with this as I had just turned 50 years old (something to do with the brain functions change in your 50s, I'm 'still confused). I had gone in full of life, feeling on top of the world thinking I may actually finally deal with having APD but left the Audiologist more broken and crushed.
That's awful. I'm trying to get evaluated and I would feel devastated and discouraged.
Don’t let this stop you. Never stop searching for doctors that will help. Please don’t give up.
Saw a vid where a type of hearing aid that filters out background noise really helped someone with apd
I didn't know there was different treatments, this video gave me some relief. I was diagnosed at age four and lived with it not knowing I had it all throughout school. I was put into special classes where I couldn't learn normally and didn't know why. My school honestly thought I had memory problems, and I just wasn't paying attention and listening on purpose. My social anxiety and depression developed from it as I was shy with a few friends since I'd talk with such a quiet voice that I was unaware of. My classmates just assumed I had other problems since I was in those special classes. My mom eventually told me what I had (APD) and I was a little mad but I finally understood why I was like this. My older cousin has the same thing and he's a lawyer, so I really look up to him and have hope for my future living with this impairment.
Were you ever tested for autism? I am a 48 year old mom and I'm currently in the process.
Me and my mom for sure have this. It is fkng frustrating lol I will just nodd my head most the time. I’ve had a lot of foreign people tell me I’m so easy to talk to because I talk loud and clear I said yeah that’s the only way I can understand anything unfortunately
My audiologist told me there wasn't Therapy for adults that are diagnosed....
Hi. When I google APD (auditory processing disorder) therapy, speech-language pathology (speech therapy) comes up. Check with your local university/college that teaches speech-language pathology. Mine has a comprehensive community clinic that evaluates and provides therapy (treatment). It is done by graduate students under the supervision of a licensed speech-language pathologist. They do not take insurance. That being said. It's about $100 for evaluation, $150 for the semester (that's 20 sessions!) Again, that's $150 for 20 sessions, not PER session. They also have scholarships available.I have found doctors don't always know what is available. Good Luck!
It looks like I might have to find a way to get treatment, I found the questionnaire online and scored 66 out of 100 ;-;
I was suffering from malaria, the injection saline medicine affected me. From then I have Auditory neuropathy.
I car hear pure tone(birds chirping/ car horn) but feel hard to understand words/ sentence.
I am at an all time low. My father noticed I had trouble following multiple conversations in groups or in family car road trips I had trouble following along with what everyone else was talking about so he took me to get tested for CAPD when I was in elementary school and I tested positive. The brain training treatment program was going to be fully covered under his insurance, so he said, and I was supposed to go 5 days a week. But my dad claims that he didn't end up taking me because my mom didn't want to take me on her weeks as they were divorced and somehow he just "gave up" because she didn't want to believe I was diagnosed or something? It just seems like a lame excuse because she also didn't like me playing ice hockey but that sure as hell didn't stop my dad from pushing me into that sport on his weeks. I feel like he is hiding or lying about something about the brain training exercises I was supposed to get treatment for.
So I ended up struggling really badly at school, at work, at college, and in social situations. And even in sports because I couldn't hear what my coach or teammates were shouting at me half the time, going first during practice or scrimmages was nerve racking since I could never be sure if I heard the coach's instructions clearly.
I've become an introvert out of embarrassment. Having untreated CAPD made it hard for me to read to this day. Or take notes in class. My reading retention and comprehension rate is awful.
Everyone thinks I'm sucking at life and failing on purpose because my hearing levels are so normal and my intelligence level is relatively decent. People hear me speak or read my writing and believe that my ability to articulate my words and my vocabulary indicate that I should be a fairly high functioning person who is industrious in the workplace and able to achieve a higher level of education.
The reality is that I'm overcome with emotions and tearing up as I write this because I had to drop out of college because I could not get good grades to save my life. Even though I was in school during covid and all my classes were recorded and I could play back my professor's lectures a million times a day with captions and a transcript on the side of the screen while sitting alone in my home I still could not understand the material. I could hear the words, I could see the words, I could write the words, I could understand the individual words spoken, but I could not grasp the concepts the professor was saying. Like I had all the pieces of a bicycle with the instruction manuel but just could not for the life of me understand how to assemble the bicycle or visualize what a completed bicycle could possibly look like.
I have quit jobs because I get so overwhelmed with the pace and workload. I have had to take brain dead low paying jobs where I don't have to think or interact too much with others or read too much writing material because my brain simply cannot handle it without me having an emotional breakdown. I've had coworkers hate me because they end up having to do my job for me because I get brain freeze and can't think straight and they think that I'm being lazy or playing dumb to get out of doing hard work at it feels awful.
My father lectured me on Father's day yesterday how I still owe him and the government to pay off my remaining $20,000 student loan for the "wasted" money I "squandered" on being a college drop out by not completing my college education even though my dad knows I have CAPD and he never followed up on the treatment for whatever piss poor excuse he has.
Instead he told me I had to control my emotional problems and I spent time in therapy and he encouraged me to take dangerous medications such as Ritalin, Prozac, and Adderall since I had trouble in school and was unhappy due to low self confidence academically and socially. My sister used to make fun of me and call me retarded all because I seemed "slow" when really I had trouble distinguishing what people were saying and took my time to respond in case I misheard and didn't wish to embarrass myself. It is so hurtful that my dad is turning his back on me fir struggling in school and at work because of the hearing and learning disability he refuses to help me seek treatment for and now he's holding it over me that I can't pay off my student loans he coerced me to cosign with him, even though my parents kicked me out and I'm homeless now and sleep in my car working whatever minimum wage job I can depend on and barely able to have enough money to eat, pay my bills, keep gas in the tank, and stay on top of car maintenance.
Meanwhile my well to do family members are all living the high life in the lap of luxury celebrating all their successes and achievements while I cry here alone in my car homeless and in poverty contemplating suicide because I've been disowned by my family that refused to help me get treatment for my disability which would have allowed me to function properly in the world.
I am hurt beyond words. This is a pain that never ends. The shame for having a disability that no one can see, and now I will cling to life with the hope that my Medi-Cal insurance will cover brain training exercises for me at 32 years old. I'm in agony but maybe there is still some hope for me.
If I ever am able to get treatment for my CAPD and finish school, pay off my student loans, get an apartment, and get a well paying job, I will never talk to or see my father ever again. I won't be helping him in his old age. I won't be visiting his hospital bedside. I won't be going to his funeral.
He used to scream and rage at me and terrify me in middle school and high school for having bad grades. Instead of getting me the CAPD treatment and a tutor. He pressured me to go to college even though I didn't want to - K-12 had been bad enough to endure. Then he shames me for dropping out "ruining our deal".
I didn't just drop out. I had a complete psychotic break from reality because of the adhd drugs and antidepressants my psychiatrist put me on and my dad was the one who drove me to the psychiatric hospital.
The second time I dropped out of college was because I came home one night and got raped and attacked by a masked home invader with a gun and had another psychotic br3ak from reality.
My father is cruel and unempathetic. I tried to do everything to please that man. Trying to finish school has nearly killed me several times. He said the only joy I brought him was him watching me do well in sports. Anytime I got a good grade he would just say, "Great, just keep it up and don't f*ck up next semester." Very little positive reinforcement.
Every time I tried to work he would make me feel less than because it would be a low paying job and the fact that I still hadn't finished school and I couldn't bare the shame and humiliation.
Almost nobody with adhd can read all of that. I hope things go better for you. ❤
I have adhd and I read it…thank you for sharing this. I can relate to you a lot. Please don’t give up hope and I won’t give up either. I promise you, you are worth it. F your dad…and find the people who love you for all of you. But first you have to love you for all of you. I hope you read this. Don’t ever give up.
Can you get treatment at any age? I’m 51, was diagnosed with mixed receptive/expressive disorder in my late-20s, but never followed up on it (diagnosed with ADHD at the same time; life got in the way), and would greatly love to have better word retrieval as well as not having to ask people to repeat something as often.
Wow, I wish I had this resource. I don’t like talking about it but I compensate a lot also require subtitles for TV and movies. People don’t take that stuff seriously. I’m curious about about the treatment
I’m a teen and I think I have APD, when I’m at home and my parents are speaking to me I sometimes don’t understand what they are saying. Sometimes i feel that if my family learnt sign language I could understand them better. How do I approach them about this?
hey i feel like i might have this disorder but for me it has only occurred in recent years im 20 now it began about 3 to 4 years ago i recently started a new education after not going to school for about 2 years and whenever the teacher is teaching about a topic unless i concentrate a full 100% on what they are saying i just cant procces what they are saying im hearing the indivuall words but they dont form to meaningful sentences in my head i though the problem was the language since i was born in the netherlands and moved to germany 4/5 years ago i blammed it on my German not being good enough i notice though that when people are loud or im looking even thinking about something else i hear everything but i cant procces it even watching this video i was thinking about this comment and everything that was said was not processed in my head this has been happening a lot too for me in my mother tongue too and in english wich i would say that im fluent at my mother always says that i need to pay attention since that it doesnt seem like i am whenever people speak to me but im just really trying to procces what is being said. im almost sure that it cant be my hearing being bad since whenever im gaming im always the one that notices the slightest little noises for example when someone is walking up on me or reloading a gun in the game where there are a lot of noises happening at the same time is the anyway that you could help me or test me since i for a job have decided to become a esports commentator where you need to be watching and paying full attention to what is happening in the game while at the same time listen to and process what your fellow commentator is saying in order the further go on about what they say, this has been a very huge problem in my life and it has effected me a lot. i would be willing to be recorded if you would want to do that if you want to contact me my email is thijswittermans@gmail.com
I'm an adult who has the symptoms of APD. Watching from London UK 🇬🇧
Not me saying “huh” and “what” to the questions the doctor asked Jackie.
2:07 I was listening but then I had to rewind because I was blowing my nose and literally couldn't understand anymore 😅
Edit: idk if they're not annunciation well or the recording is bad but I'm having trouble listening to the questionnaire without looking at it. Uh oh.
I found out I had APD as an adult. My friends son had it and I knew I absolutely had it as well. I've spent my entire life feeling stupid. It affects every part of my life. The worst thing is the feeling of not understanding...not getting it....feeling out of the loop...and feeling stupid. To this day I have recieved no help for it. My only consolation is I know I have it.
OMGoodness...I know that my nephew has a processing disorder since childhood...This test with Jackie may explain why he might not want to participate in some of the typical social activities that we as typicals all take advantage of on a regular basis...we thought he was being anti-social. This makes me hopeful.
Dang okay, I spent the entirety of elementary and middle school just quietly eating at lunch because I couldn’t understand a dang thing anyone was saying in the crowded lunchroom. Thought I was just weird I guess. It got better to deal with in high school when there weren’t hundreds of us condensed in the same room but I would still have moments. Honestly it’s still a trick to tell the difference between left and right if gps is reading it off. Cool to know that there is treatment, I didn’t know that was a thing.
I didn't know that there is treatment for it....😭 I thought there is no point in getting officially diagnosed, if there is no treatment...I have to reconsider that now cause it affects me similarly badly as jackie here :(
It can almost get you arrested for using the wrong word. I was in a Walgreens I needed aspirin and was thinking aspirin but the word anavar was coming out. There was a cop there and I was detained and investigated and written a criminal trespass.
No way is this real 😅
@@desecrator8979 my grandmother has apd too she says skeet instead of sleet and wrench instead of reach
2 minutes in- I lost what she was saying bc I wasn't reading the subtitles but focusing on reading the video text despite it being essentially the same.
I have moderate apd and it’s just crazy I noticed what I was actually missing when I got hearing aids
have you got help? anyhting helped you ?
Thinking back hearing aid can help but it also increases background noises too so I won't recommend it. 😅
Hah, I have the same answers to those questions. Had my hearing checked repeatedly, and it always comes back as fine. I usually hear real sounds others don't. But I can't keep up with conversations, or remember words said to me. Still trying to figure this out.
Very great video thank you for being an advocate for APD!
I can't even understand what the questions were that she asked Jackie...
She's not lying! I feel about the same or worse in some areas. It's hard to live with. Mine is due to brain damage.
Dyslexia was one idea I thought my kid had based of so patterns and number sequence deficiencies like ten fingers up and if I took away one hand away it was still hard to simply say 5. But since then has passed regents math. Now has issues with small talk, listening but doesn’t get triggered by answers in a conversation in other words it doesn’t prompt to asking another question or perhaps see the importance of asking as another question or the need to know or see what you might want to know about this person it’s just not there.
I though everyone had superhearing being able to communicate in loud environments...
Omg I tried working at The Original Pancake House and although the job was fun when they told me to use a microphone I couldn't hear my manager call for me to buss the tables. The owner laughed at me to and management would yell at all of us and was passive aggressive. I finally left after one day because I couldn't sleep I was so depressed and yet again suicida* Mental health professional diagnosed me with Bipolar 1 now but I know it's my bad APD it's just getting worse I'm so depressed I want to cry as I listen to this and type. It's weird because sometimes I could hear on the walkie talkie other times I can't hear. But then when I take the tests on here I do well. I feel like my brain is messing with me. I forget things all the time to so does my ex boyfriend he has ADHD and possibly autism. Imagine being abuse* and yelled at by people at work though and made to feel like you are dumb and or lazy or not listening. Imagine being told you all are doing so good but you need to be faster and thinking you are already fast enough. I just want to disappear because I feel so depressed and people (even my family think I'm just mooching off of them and emotionally they won't help. My mother and grandmother say their is something wrong with me while my dad says their is nothing wrong with me I just need Jesus. It's so depressing...And other jobs like janitorial that aren't fun...those jobs aren't fun to me I really enjoy bussing and dishwashing but I'm not fast enough and am stupi* clearly. I wish people would listen I keep telling them it's like being deaf then it's "Well you can't work then..." I even had a social worker tell me that. I'm just so depressed. I put ear plugs in my ears all the time to it's rare I have them out.
Is there a connection between this and autism?
Yes, there is. Most neurodivergence is correlated
Thank you for introducing this model to us Angela !
Honestly I wonder if APD is a mix of ADHD and/or language disorders or autism. You see all these comments who've been diagnosed with them asking if they have APD. APD's not officially recognized in the DSM 5 too so that's my theory
I'm 51 and wonder if I have mild APD. I'm an audiophile with pretty good hearing for my age, but if it's a reverberant room, the person is facing away from me, or there's other noise around me, it's sometimes hard for me to understand what others are saying. I've done online tone-deafness/pitch tests and can detect 1/32nd changes easily, 1/64th most of the time. I even use subtitles sometime when watching TV.
I'd highly suggest finding someone near you as the first port of call. We have a list of providers on our international APD map here: APDsupport.com/apdmap
If you're still needing more support, there is also information about the online therapy program on that same website.
Thanks for reaching out and I hope you get the help you need!
Kind regards,
Angela
@@TheAngelaloucks Thank you. :)
Well, I didn't understand any of the questions said to Jackie when not reading the text below. I understood all the questions when reading the texts. I suffered to an AVM at 19 and I am completely dependent on visual information as verbal is always mixed up and I do not know where the questions are going.
My mom thought I was going deaf
I NEED HELP- no one helps the uninsured. I just get crap for what i cannot control
The second list of quesions was a completely different set of questions though, it should be the exact same set of questions
What an excellent point! If I make a new video comparison, would you watch it?
Beam me up im in florida im adult 52 screened that i struggle in switching one task to another and noise distracts the point !, helppp
This made me sad. I had rewind and cut on cc just to hear this video.
I saw the word " before ", but I heard the word " prior !"
Means the same thing
I can hear a fly buzzing in another room , but can't understand what people are saying, especially when a jet passes
overhead.
Does a neurologist diagnose white noise and APD because I’m troubled by my possible score on this questionnaire…
Does ADP make it hard to retain information? Does ADP make it hard to ratain information that I read? I have diagnosed with ADD, but sometimes have no clue what people are saying unless I looking at them, it's super hard to stay in conversations. Would this be ADP related too?
Hi...I am 67 and have had this issue for as long as I recall. DID anyone ever get back to you??
Do any of you suffer from hearing music out of tune ?
My extensive iTunes library is slowly diminishing. Some tracks are still ok . But most have one problem or another. Instruments missing vocals missing. Out of tune. Especially piano.
But the same tune played on guitar sounds ok .
I’ve got the rest of symptoms though. Hearing people ok but not understanding. Not coping in noisy environments. Good job I’m a complete introvert that actually seeks solitude. I’m missing my music though. Oh yeah, forgot. With me location is everything. Different rooms have different acoustics. And I can talk all day on the phone to my brother but struggle to understand anything he says face to face. Bloody weird
Thanks, O mighty algorithm
What is it called when you only seem to have auditory processing problems when taking notes? (You can't process what is currently being said when you are taking notes).
Sensory overstimulation? Idk, I had to ask a teacher once to stop reading out the notes on the board (because she would skip words or say it slightly off, my tism did not like that). It was difficult to understand what I writing down and pay attention to what she was saying. Quite frustrating when it's the same material.
this test seems hard since you have to listen to the question, you would loose me there.
I swear I have this.. literally I have so much struggle with understanding people especially in areas with a lot of background noise. I physically can't focus on the voices with lots of background noise. Instead I focus on the noises and not the voices of others. Makes it hard to understand what others are saying.
I'd highly suggest finding someone near you as the first port of call. We have a list of providers on our international APD map here: APDsupport.com/apdmap
If you're still needing more support, there is also information about the online therapy program on that same website.
Thanks for reaching out and I hope you get the help you need!
Kind regards,
Angela
Thank you so much
Thank you sooo much TnT
i am from overseas, please tel me if there is a way to do online consultation?
Please help where i contact i am suffering.
Please help what I can do i also have same problem
Is nobody going to mention that in the first interview Jackie had a Spanish accent and the second interview “Jackie” had a British/Australian accent? Or am I missing something lmao
I’m right there with you like how the hell did she go from Russian/Latin grandma to young British woman
She's got a South African accent. Same in both clips.
@@Me-ei8yd sounded more lower to middle class South Australian, Central Coast Australian or Kiwi/New Zealander to me. Because her inflection didn't upswing during her explanation, I suspect more Aussie than Kiwi, however, she could have a partner or parents from NZ, and/or could have lived there for a large portion of time.
Definitely not South African, because while they're similar accents, South Africans have more variation in tonality across their sentence. It could be possible she's autistic, which tends to give some people a monotone voice, however, the way she holds herself also appears Aussie. And she has a very similar accent to Julia Gillard, who grew up in South Australia.
This is a fantastic and inspiring video. I’m on a wait list for an APD assessment in Canada, but right now, I feel kind of hopeless that I could get treatment for my auditory processing difficulties.
A little feedback on this video: it is obvious that Dr. Alexander is speaking clearly and slowly for the people watching, who like me, struggle in processing sound - and that Dr. Alexander’s parts of the video have captions which viewers can follow along with while they watch. However, during the showing of the first of Jackie’s HHIA tests, the “subtitles” (written form) of the questions from the professional conducting the test, as well as Jackie’s responses, did not show up until after the questions were asked. As a person who typically needs subtitles to follow along with a video, I disliked the delayed showing of the questions of that first HHIA test, since the professional asking the questions spoke quickly. I had to pause the video multiple times, to read the questions after they were asked, before moving to the next questions. I was alarmed that during the second HHIA test recording shown, the professional conducting the test spoke slower and clearer, and I only needed to pause the video once or twice.
If, in the future, you upload more case studies with HHIA test recordings involved, your presentation of the written questions and their answers prior to the start of each questions being asked would be majorly helpful for people like me who have trouble understanding people who speak quickly and/or unclearly. Thank you in advance!!
This is really good feedback! I am so sorry. Accessibility for people with APD is important to me. I think I can edit it and upload a new version!
Hi, Can you provide an update if you got help in canada? My partner was diagnosed with this as a teenager but never got help, its severely impacting his life and I am trying to find help and cost info. Thanks!
@@plantbasedtravelbound9744 Hi. Thanks for the follow-up. I’m sorry to say that I got assessed and the audiologist clinic said I don’t have APD, that it’s just my anxiety and my hearing is way above average. Unfortunately I can’t give you advice on funding or Canadian APD resources, or anything. I feel like mentioning my having a naturally intuitive musical ear (I’m weirdly good at ear training and sightreading) because my parents are really musical, might have been a factor in the results from my APD assessment, but idk. My above-average hearing ability is really just my hypersensitive nervous system, but ok whatever, it was two audiologists’ opinions out of how many audiologists in the world. What about the ppl with APD who are sensory-avoidant and what about the fact that APD is not a hearing disability but a brain disability?? Anyway, I refuse to believe my symptoms are “just my anxiety” and right now I’m in the process of getting a psychoeducational assessment for learning disabilities+, through my post-secondary college. I, more than ever, have suspicions of having ADHD or something of the like, but in a month I’ll see what the psych-ed results say. It’s good timing that you followed up on this, rn! I live in Alberta, so my college told me that if any diagnoses come out of the psych-ed assessment (which I’m getting my second screener for, today!!! ✨), I can get government funding support for that/those diagnosis/es for free.
In which province or territory do you/your partner reside? I got my APD assessment done at the Soundwave Hearing Care audiology clinic in Calgary, AB. I had to take a road trip and drive there, the waiting list to get assessed was REALLY long because ppl travel from all over the country to get assessed there, and my assessment fee at the end was $500. I don’t remember if the fee included the online telehealth results appointment a while after the in-person assessment. To start out, you go to their website, send them an email asking for info, and then they get [your partner] to fill out an APD questionnaire and scan it back to them while you wait for your assessment to roll around. I think part of the questionnaire you will fill out on behalf of your partner, another perspective so the clinic doesn’t think it’s a hypochondriac situation. At the start of the actual assessment, they will likely ask your partner why they’re there at the assessment, like their symptoms and [neurodiverse] history, what arrived them at the conclusion that they could have APD. Then they put your partner through a bunch of tests, starting with a hearing test then the APD test. The whole thing is 2.5 hours long. My appt was early in the morning like 9:15am, so I had to leave my town around sunrise to get there in time...and it was summer, so the sun rose really early.
@@itsdune079 Thanks so much, we are in Toronto, and he also comes from a musical family, thats interesting. I will pass on your information and hopefully it helps him! I think he might also have ADHD, but he has a really hard time understanding things and communicating what hes heard.
@@plantbasedtravelbound9744 You’re welcome!
Ohhh okay yeah then you’d have to fly to Calgary. It’s good that Calgary has an airport! I’m not sure what the COVID guidelines are for leaving ON, though, so you’d have to read up on that.
Yeah it is quite interesting!
Great. I hope it helps him, too.
My main suspicion is ADHD, but APD was one of the first things that came up in my dad’s differential diagnoses process (he’s a GP) when I told him all my symptoms, so I thought I’d look into it
Please, I couldn’t find anyone to give me help with APD. I tried.
4:00 This is difficult to understand for people with apd.
they ask her the questions so fast i can barely understand
Can we develop APD at any age? Because i'm 20 year old and till 19 i could hear everything clearly and understand well but since a year i couldn't understand what people are saying sometime😭😭
Yes, this is correct. While some people may have difficulties early in life with auditory processing, it can also occur later in life for various reasons.
I am also not good at using different words for the same object for political reasons. Like marijuana plants I tend to call all cannibas plants marijuana and make no distinction. I tend to say squid instead of the fancy word for it.
Hello Angela!
I certainly got this
In English we usually pronounce "adults" with the accent on the second syllable. Is there a reason you are saying it on the first? Is it academic?
Ah! Great question. I've been living in New Zealand and Australia for the past 12 years where we speak more British English than American English. I hadn't realized (we would say realised here, lol) that I had changed how I say it! ua-cam.com/video/3SEQUtNZ36o/v-deo.htmlsi=LQlJEbZhrGZVmQ74
I've always thought I was just dumb or hard of hearing 😂😂
I have so many issues with this video
Cecil Passage
I think I have this
Daugherty Extension
Roderick Wall
I heard family members as random numbers, wtf!
Kailyn Point
I'm highly skeptical to APD is treatable. Also there is no privilege associated with APD. I find the tone deaf narration of this video to be insulting
Lilyan Extension
Is she mumbling or is it just me?
Which person?
@@MsBluebot I just watched this video again but, it seems to be normal this time. Must have been a poor signal or the speaker I was using at the time.
John 3:16 NIV
For God so loved the world that he gave his one and only Son, that whoever believes in him shall not perish but have eternal life. 🙏!!!!!!!
These sound like two completely different people. The first one has a Hispanic type accent and second woman sounded from the UK…
Marianne Mountain
You’re so pretty 😍
Hills Divide
Why do you talk so damn slow?
Why is your skull so thick?
It's for people who have APD and might need someone to speak slowly enough to understand the information being conveyed. Numbskull.