Escaping the Hidden Prison of Auditory Processing Disorder | Angela Loucks Alexander | TEDxTauranga

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  • Опубліковано 14 вер 2021
  • If your auditory system works like a computer, your ears are the hardware and your brain is the software. Even when the ears hear normally, errors in the software (the processing) can interfere with understanding or remembering what was heard. This is called Auditory Processing Disorder (APD) and often leaves sufferers feeling isolated and disconnected. Of the approximately 6% of the population struggling with APD, most don't even know it’s a disorder. The good news is that with specialised audiologist help, dramatic improvement in auditory processing is possible.
    Dr Angela Loucks Alexander, Audiologist, has spent fifteen years specialising in diagnosing and treating Auditory Processing Disorder (APD), a hearing difficulty with less to do with the ears and more to do with the brain. Despite significantly affecting potential and well-being, many of those affected are unaware of the condition, let alone their treatment options. Angela is the host of Between Two Ears podcast and founder of the Auditory Processing Institute, where she trains audiologists and speech-language pathologists to provide APD services. She has also created an online, searchable map to help clients find the help they need.
    www.AuditoryProcessingInstitute.com
    APDsupport.com
    linktr.ee/apdsupport
    / angelaloucks
    Dr. Angela Alexander, Audiologist is the Director of Education at Auditory Processing Institute where she teaches Audiologists and Speech-Language Pathologists how to provide effective auditory processing services ranging from testing to treatment through online, on-demand courses.
    Angela has spent the past fifteen years specializing in the diagnosis and treatment of Auditory Processing Disorder, a hearing difficulty that has less to do with the ears and more to do with the brain. She co-authored the chapter titled “Therapy and Management of Auditory Processing Disorders” in the most recent Handbook of Clinical Audiology. Her podcast, Between Two Ears has recently launched discussing and demonstrating listening and hearing disorders in ways you may have not previously considered. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at www.ted.com/tedx

КОМЕНТАРІ • 1,9 тис.

  • @jennylynn6804
    @jennylynn6804 7 місяців тому +40

    How is nobody giving this woman a standing ovation as she leaves the room! This was fantastic! She is fantastic!

  • @sfvalleygirl818
    @sfvalleygirl818 Рік тому +1299

    The foster mom saying, “Look how good you are. I’m so lucky to have you”. Ugh that tugged at my heart. What a beautiful change for that child

    • @sarahv1468
      @sarahv1468 Рік тому +6

      Yessss😭🥰

    • @FuzzyElf
      @FuzzyElf Рік тому +21

      I almost started crying. I knew there were things absent or severely lacking in my childhood, but this is new. Now I want to figure out what to do with this insight.

    • @copycat21c
      @copycat21c Рік тому +16

      I'll bet her mum and her foster mum are so proud now. As they should be. Of themselves as much as of her.

    • @loriacton5710
      @loriacton5710 Рік тому +16

      I’m a foster parent and I say positive messages to my kids and I will definitely add this one 🥰

    • @flowerpower9541
      @flowerpower9541 Рік тому +4

      I would have loved to have heard that

  • @-beee-
    @-beee- Рік тому +62

    My favorite part of this was the speaker saying that choosing to believe patients is a choice and one that doctors absolutely can make.

  • @kristinathomas5890
    @kristinathomas5890 2 роки тому +1990

    This lady was one of the very few lecturers on video who I never struggled to figure out what she was saying. I was surprised at not needing to turn on subtitles. I bet she talks slowly and clearly on purpose because she helps people all day at her job who have hearing disorders.

    • @rosepetals217
      @rosepetals217 Рік тому +16

      So true

    • @KGB.83
      @KGB.83 Рік тому +7

      I feel bad for you. Life must be incredibly difficult having a disability like that. What's it called?

    • @hollyhold6960
      @hollyhold6960 Рік тому +34

      Me, too. It's amazing how few lecturers, or people in general, enunciate properly. Her speaking speed was slower, too, which helps me.
      I am losing my hearing, can't afford aids, and have to often use cc and, sometimes, set the playback speed at slower.
      Then, I listen, hear, read, & process all together.
      Get hearing devices---processing is impacted without them if you suffer from hearing loss.
      I'm talking to me, too.

    • @sollv9787
      @sollv9787 Рік тому +32

      @@KGB.83 I feel bad for you. Life must be extremely difficult having a disability like that. What's it called?

    • @tiffanybluetarot
      @tiffanybluetarot Рік тому +35

      @@hollyhold6960 I’ve got to do the same in order to properly process what I’m watching/hearing. In real life, I often have to ask people to repeat themselves several times.
      Not sure if this is related at all, but loud music or sounds, too many sounds going on at once, and certain sounds (like high-treble music) give me terrible anxiety & I feel like my brain is being assaulted. It can be debilitating.
      Interesting how much hearing (or lack thereof) effects so many aspects of our lives.

  • @uhhmanda
    @uhhmanda Рік тому +693

    I went to an audiologist and they literally told me "your hearing is great. You just need to pay more attention." And now I'm just mad. Why couldn't they have offered me more tests or MENTIONED that there are such things as auditory processing disorders? That was YEARS ago and I'm still "not paying attention" and dealing with feeling like an airhead when I go places. Also, public places are so loud.

    • @alyssabrightmoon4783
      @alyssabrightmoon4783 Рік тому +50

      because they weren't qualified to help you to begin with. I find that I have educated myself more on my conditions than any of the medical people I have seen in my life, they don't know, or they don't care, and they want us to stay sick bcuz insurance and pharmaceutical companies tell them what to do. Its sad but true.

    • @michelebenedosso3899
      @michelebenedosso3899 Рік тому +19

      Yes… I finally got a hearing aid a couple of years ago ( 65 year old), but I noticed I still couldn’t make out group conversations, certain movie dialogues, and figure out lyrics to a song. I told my audiologist, but she seemed perplexed… 🤷‍♀️. I guess she never heard about APD
      It’s not the first time in my life that I felt inept due to my inability to hear.😩

    • @gregbrougham1423
      @gregbrougham1423 Рік тому +22

      @@michelebenedosso3899 APD has little, in and of itself, with hearing sounds; it is how you are processing those sounds and their sequence within and between the syllables of words. Its phonemic awareness that impacts many student's ability to decode and encode (spelling).

    • @mariannejohnson2619
      @mariannejohnson2619 Рік тому +17

      My son at 8yo had the same experience! I had researched and found a checklist of symptoms for APD, which my son checked on every one. The audiologist (PhD at a university hospital!) told me that he didn't have APD, but he was just inattentive! We lost a whole year getting to an APD diagnosis because of her ignorance. Long story, but ultimately we started therapy for brain wave activity, and the APD is resolved! He is 21 and awesome, but he is still having to learn things like common sayings, common knowledge about sports, etc., and overcoming habits of isolating himself because listening was too difficult. We are grateful every day for the wise man who tested him and knew what he was looking at. I hope you find the therapy you need. You are good!

    • @JdogFixit
      @JdogFixit Рік тому +15

      @@alyssabrightmoon4783 I think it's a little harsh to say that health care professionals don't care and I refuse to believe they "want us to stay sick" (especially since there's no end to sick people for them as is). However.. I do think you have hit it on the nose with "they don't know." This is reality of our medical field. Doctors and other medical professionals are trained in a very linear thinking, if a then b, if not a then not solvable. It isn't conducive thinking to treat the outliers. Sure they help the majority of people (in this example, people with hearing disorders) but what about the people with APD or some other issue.

  • @christincoggins481
    @christincoggins481 Рік тому +29

    I have a daughter with APD. She is 18 now and it's taken a lot of love and therapy to get her to where she is at. She will be starting college soon and will be working toward becoming a music therapist. She loves music and is a beast on a guitar! She is also on the Autism spectrum and is diagnosed with ADHD. She has never allowed her disabilities become her disabilities. She is one of the best humans I know and I am so period of her. Don't ever allow your diagnosis to hold you back! It may take you a bit longer than others but you are capable.

    • @gabrialblair5882
      @gabrialblair5882 Місяць тому +2

      Beautiful stated momma 🫂

    • @annamorgan2785
      @annamorgan2785 3 дні тому

      My mother loved me but denies that I have these same things and would not allow me to obtain help for them because she doesn’t believe that I can be bright and also struggle. Your daughter is so lucky to have a parent who supports her. I wish that all parents could accept that their children are perfect just the way they are but also struggle and need help.

  • @Beverlylemaster
    @Beverlylemaster Рік тому +26

    I am in tears .
    I never knew there was such a thing .
    I was told by my mom , you can hear what you want to hear . I strained so hard to understand the TV that I turned my head like a dog .
    My parents would fuss at me and say stop that.
    I then developed a habit of putting my hands on each side of my face to keep my head straight .
    My dad said he was going to make pictures of me so I could see how silly I looked and how was I ever going to get a date with a boy .
    I wanted to hear . I really did .I still do !!
    I frustrate my friends asking them to repeat themselves so much that I sometimes just sit back and pretend I know what they are saying but secretly wish I really did.
    I put subtitles on my TV about 3 years ago and it was so exciting that I have rewatched, I'm sure , a hundred or more .
    I am 61 and believed my whole life I was scattered brained and had severe ADD.
    Even if it's too late for me , it validates what I have known all along .
    Thank you for sharing your story
    I feel joy for the possibilities but saddened that I have lived my entire life in a fog.

    • @michele9491
      @michele9491 Рік тому +4

      I feel your pain! I hope it's not too late for us.

    • @gabrialblair5882
      @gabrialblair5882 Місяць тому

      It is never too late as long as you are willing to be patient with yourself and others. The pressures on the outside of us will always be there. I choose in each conversation I have to simply say, I'm sorry, I'm really trying to understand you......
      Can you repeat it slower, so my brain can keep up?
      Then, I repeat back to them what I thought they meant from what they said.
      Effective communication is a lost skill. It is an unfortunate situation. Especially since we each so deeply need to be seen, heard and validated ❣️
      I find that when I allow myself to be patient with myself others respect that and we each benefit. I hope that makes sense and is beneficial to the reader 🪶
      Blessings

  • @alison4316
    @alison4316 2 роки тому +1289

    I've been telling my son's doctors for six years that he has, he _must have,_ an auditory processing disorder. I'm so grateful I've found this talk. He has only been properly "diagnosed" with severe ADHD. His speech therapist started using visual cues with him for different sounds. Suddenly it clicked for him. He's eight years old and _finally_ making consistent progress ❤️

    • @illillyillyo
      @illillyillyo 2 роки тому +11

      Has he been screened by a speech therapist and followed up by an audiologist?

    • @patchthesinclair5896
      @patchthesinclair5896 2 роки тому +81

      @@illillyillyo The doctors may suffer from Acute Diagnostic Hindrance Disorder.
      Seeing something to blame is less important than seeing how to love proactively with a willingness to try to understand.
      I have finally diagnosed myself as being UID ( Unique Individual Disorder).
      During my difficult schooling it was suggested that I had learning difficulty.
      I, however, propose the hypothesis that the school staff had teaching difficulty.
      To look at the view outside or the dirt on the window pane?
      This is the question

    • @shinchanthebest
      @shinchanthebest 2 роки тому +10

      @@patchthesinclair5896 lol

    • @lumijasminasmr3583
      @lumijasminasmr3583 2 роки тому +5

      🙏🏾♥️

    • @jennhoff03
      @jennhoff03 2 роки тому +60

      I know from personal experience how utterly exhausting it is to have to be your own advocate with doctors who are dismissive. Way to go on pushing for your son. He has a good mama.

  • @laurenecarter246
    @laurenecarter246 Рік тому +4

    Wow... i came on here because of my 6 year old daughter. But you have just explained why I failed university... 😪

  • @jmvanzalinge5023
    @jmvanzalinge5023 Рік тому +51

    I learned about APD while looking into ADHD and it explains so much! I had learned to just nod, smile, and agree rather than asking for people to repeat or clarify over and over.

  • @kikibplays
    @kikibplays 2 роки тому +720

    I was in tears through at least half of this talk. What an incredible woman. I'm autistic and struggle immensely with auditory processing disorder. I learned to read lips from a fairly young age so I could follow conversations in noisy places. If the kitchen faucet is running, I am rendered what I call "functionally deaf." I never knew there was treatment today, but I will be talking to my care providers about this ASAP. What an amazing thing it would be to no longer be deafened by even the smallest of noises!

    • @NovaLeeNation1687
      @NovaLeeNation1687 Рік тому +31

      Also autistic, I also have APD, and I can’t read lips but I rely on subtitles a ton!

    • @DarkLittleMaiden
      @DarkLittleMaiden Рік тому +20

      Also Autistic, also struggle with SP issues (auditory being the most disabling) annnnd I also cried. ❤️

    • @davidvogel6359
      @davidvogel6359 Рік тому +9

      Congratulations! That is wonderful how you have learned to adapt. I have some hearing loss from working in high noise areas. I don't think I have this problem but I can't understand conversations with noise around me. I can hear the sound just can't understand what is said. I am excited that this information may help you.

    • @rkowalczykjr
      @rkowalczykjr Рік тому +21

      @@davidvogel6359 - I have the same issue from working in a tire shop for 10 years. I didn't realize how much I rely on reading lips until people started wearing masks all the time.

    • @davidvogel6359
      @davidvogel6359 Рік тому +14

      @@rkowalczykjr yes, that is a problem because it muffles the sound too. Just adds to the difficulties.

  • @stefankurlak9556
    @stefankurlak9556 2 роки тому +93

    There are some very horrible people out there. The mental illness that caused
    The step parents to act as they did is criminal

  • @richielelas
    @richielelas 2 роки тому +456

    I've always thought it's weird how different hearing and vision tests are. Vision, you stand at the far side of the room and identify tiny letters. Hearing it's just did you hear the beep. That's like doing a vision test by holding up a blank piece of paper and asking do you see the page!

    • @northerncanuckler5695
      @northerncanuckler5695 2 роки тому +15

      A hearing evaluation by an audiologist also includes speech testing.
      The vision test uses letters because it’s easier to identify

    • @calliemyersbuchanan6458
      @calliemyersbuchanan6458 2 роки тому +23

      Visual processing is a thing too though. You may be able to identify the individual letters/words you see but assigning meaning beyond symbolic graphemes is a whole different ball game.

    • @richielelas
      @richielelas 2 роки тому +33

      Both interesting points. I just meant that the standard hearing test seems a bit too simple in comparison to the standard vision test, kind of explains how auditory processing disorder can go unrecognised for so long in so many people.

    • @AmishGramish
      @AmishGramish 2 роки тому +11

      @@northerncanuckler5695 Where I'm from, the only tests that were ever performed were the simple audio beeps, but I'm not sure if that's actually different from audiology.

    • @travelwell6049
      @travelwell6049 2 роки тому +7

      The hearing test I had at school included different volumes of beep and different frequencies

  • @rally4reel77
    @rally4reel77 2 роки тому +402

    I love subtitles because I can read them before they are spoken, so the words make sense. Without subtitles im constantly asking myself, "did they say ___ or __?" And I just kind of fill in what I think makes sense. This is one the few Ted talks I would love to hear in person, because it was so good.

    • @bendietrees
      @bendietrees Рік тому +13

      I can relate to your words so much.

    • @geko1098
      @geko1098 Рік тому +16

      You may be the only other person I've ever heard say this about captions and it is spot on.

    • @tempkinvient
      @tempkinvient Рік тому +4

      Ohhhhhh. I do this too and actually hadn’t realised that it was part of it

    • @marjiescott2302
      @marjiescott2302 Рік тому +9

      I have put captions on since I was fourteen, and I don't have hearing problems I like to read things because I feel sometimes I dont understand when I hear first. My husband just thought I was weird and now I think he uses the captions too.

    • @wimsylogic65
      @wimsylogic65 Рік тому +3

      For Me Too!. I prefer watching stuff with subtitles.

  • @airohwalker2478
    @airohwalker2478 Рік тому +234

    I had my hearing tested twice as a kid because I kept claiming I didn’t hear when my parents called me. I felt so ashamed and confused when both came back normal, especially since I did hear most things. I only found out APD existed after getting diagnosed with ADHD a couple years ago and doing my own research. Most people still don’t understand, and I rarely mention it, but I take comfort finally understanding myself better

    • @mc-nw1rk
      @mc-nw1rk Рік тому +5

      I'm glad you've been able to work out your problem and come to understand yourself better. However, I wish that someone other than yourself paid attention to you and helped you out earlier. You must start believing that you are very GOOD too. It's clear that you have the ability to recognise things and make connections. Don't pay attention to those who don't understand. Those who are like you will appreciate your input. Hopefully, you will be able to help out others too, in future.

    • @netherdew
      @netherdew 10 місяців тому +1

      I was always in the drs offices when I was little for ear infections. I’m 46 now and I’m accustomed to never socializing bc I can never understand what anyone says. I’ve had many hearing tests where I can hear in a quiet space, of course, but I cannot hear people in real life! I’ve been dismissed by doctors who think I’m making something up- why would anyone do that? And people around me lose their patience when I ask what they said four times. It’s horrible.

  • @juliefordreister
    @juliefordreister 2 роки тому +507

    This makes me cry. I am constantly telling my students, "Wait - if there are several voices, I hear nothing." When you mentioned recording your lectures, I was taken back to lectures where - unless they were interactive - the information felt like sand in my hands. I could see it, but it would disappear as more "came in." Thank you for the transparency, sharing your story, and the phrase, "You are so good." 🙏

    • @kaypowell7755
      @kaypowell7755 2 роки тому +42

      SAME. And masks make it even harder, since my coping mechanism is reading lips and non-verbal cues. Was coping for years without diagnosis. Remember CRYING in the hearing test because "everything was normal." Students know now to write their questions down.

    • @charlenewilliams8131
      @charlenewilliams8131 2 роки тому +6

      Me too! Wow! I have such a hard time in public.

    • @HaleyMary
      @HaleyMary 2 роки тому +24

      Same here. If there is lots of background noise, I can't understand what is being said. I have never been diagnosed with anything, but I'm sure that this is something I've struggled with for as long as I can remember. It made school very difficult and I feel more comfortable learning by myself in a quiet room. I hate the school and universities because I find the environments too loud.

    • @Hbomb411
      @Hbomb411 2 роки тому +18

      This made me cry too 😭... Your explanation of seeing the information "like sand in your hands.. you can see it but it would just disappear" is the most accurate description! I am wondering if my 6 yr old is having issues reading,spelling and comprehending with his virtual learning because of this same problem. He's so smart but he will lose focus so quickly with all the talking and videos being played in class. When the kids all talk at once, forget it, it might as well be white noise... But oddly , as I sit next to him, I find myself having similar issues of not hearing well at times, and use subtitles etc... I'm wondering if it's apd or something else, and if it is, is it genetic? 🤔 I hope you and everyone else here afflicted, find treatment and get help ❤️

    • @wimsylogic65
      @wimsylogic65 Рік тому +2

      Thank you yes I felt that I never knew how to describe it though.

  • @reenietta
    @reenietta 2 роки тому +21

    I remember a time at a company Christmas party. Someone I had just met was discussing something - some topic - and I remember thinking, "She is talking and I'm hearing, but I have no idea what she is saying." Anxiety shoots up - I wonder what is wrong with me and vow not to go to this type of gathering again. There was SO much background noise. And now it makes sense why I'm always telling people, "I'd love to join the group, but I so prefer talking just one on one." And I realize I don't feel heard in groups. This was a good and very informative Ted Talk.

  • @ashleyymahl
    @ashleyymahl 2 місяці тому +2

    being told that i am "so good" brought me to tears, and this explained what i think i have been struggling with for YEARS. wish i found this tedtalk sooner.

  • @rebeccagiovanini1124
    @rebeccagiovanini1124 Рік тому +43

    I never realized this was so common! I found out I have this disorder four years ago, but I’d learned to cope by just giving generic answers when I have no idea what someone is saying. 😅 People usually don’t notice, but my husband always does. I did well in school and college because I’m luckily a good reader, so I would teach myself out of the textbooks.

  • @melinachessex961
    @melinachessex961 2 роки тому +706

    I just turned 67 today and this talk was the best gift a got ever! Finally! I know now why I can’t follow group conversations and prefer to converse on one to one. I put on the subtitles when watching a movie. And worst, I never “catch“ the first words in a sentence when someone inadvertently is addressing it to me.
    Thank you! Wonder whether it is to late to do anything about it.

    • @meagangarlutzo9408
      @meagangarlutzo9408 2 роки тому +28

      its never too late!

    • @trgoyne
      @trgoyne 2 роки тому +71

      It's not too late! I'm a doctor of audiology, similar to Angela, and it's definitely not too late.

    • @melinachessex961
      @melinachessex961 2 роки тому +26

      @@trgoyne thank you. I will then find out an audiologist specialized in this particular problem.

    • @sovrappensiero1
      @sovrappensiero1 2 роки тому +41

      @@melinachessex961 get tested for actual hearing loss first (that audiologist will probably do that anyway). A surprisingly huge number of people are unaware they are losing their hearing, or refuse to acknowledge their hearing loss, because they think it makes them "old." I'm in my 30's, hard of hearing since birth, and honestly I don't care what anyone might think about my hearing aids...I care that I can hear. APD is one thing, but a much bigger majority of people have legitimate, undiagnosed or untreated hearing loss.

    • @melinachessex961
      @melinachessex961 2 роки тому +19

      @@sovrappensiero1 thank you for your suggestion. With my age it makes sense to check first whether I am loosing my hearing. Thanks.

  • @umbongonights
    @umbongonights Рік тому +180

    That was pretty powerful. In my teens I said to my doctor that I had trouble hearing people when there was background noise. His response ..’Pay more attention’. That was 35 years ago and nothing has changed. Socially it’s been crippling, academically it’s been challenging, professionally it’s been destructive! I hope that this lady’s work brings positive change to others before they experience the same.

    • @tempkinvient
      @tempkinvient Рік тому +13

      I am a doctor and literally only learnt about this last year when an audiologist diagnosed me.

    • @m.r.6222
      @m.r.6222 Рік тому +1

      @Philip Hill are you getting therapy for it?

    • @vLawcity
      @vLawcity Рік тому

      @@tempkinvient what type of doctor are you? I guess the more important question is - assuming you are a GP: did you refer to a specialist when prodded about something like this by a patient?

  • @adriennebyrne8237
    @adriennebyrne8237 Рік тому +18

    Last year while attending art college it was compulsory to wear face masks and l discovered for the first time l couldn’t hear people very well and I realised how much I depend on visual communication to understand and communicate. It was a tremendous eye opener for me.

    • @jaxfrater8318
      @jaxfrater8318 Рік тому +2

      Yea same here.. I've always known I struggle badly to process. But covid was a whole new level of stress when trying to understand ppl

    • @Domdeone1
      @Domdeone1 9 місяців тому

      I bet is too late at 55 to be able to go for re-training after a lifetime of being distractingly defunct with diagnosed adhd?

    • @moacirbarbosacastro8923
      @moacirbarbosacastro8923 2 місяці тому

      It's not, you can improve, your brain is very plastic@@Domdeone1

  • @joannewsome5202
    @joannewsome5202 2 роки тому +222

    My daughter was diagnosed with this by a learning specialist after being told she had a learning disability by a teacher. This was the mid 1960s so we were lucky to have found the right diagnosis. So, in the third grade & further grades, she had to relearn the first, second & third grades. We all worked hard to get up to speed & we did it. In high school she got As in Biology & Spanish because she had been trained to memorize correctly. She became a Nurse & was loved by her co-workers. She married & had a daughter,whom she loved very much. We were very close. She got a very aggressive cancer and died within three months of diagnosis. I miss her every day. She was my only daughter. Life is never the same after you lose a child. She had just turned 50.

    • @marti220
      @marti220 2 роки тому +19

      As a speech therapist it makes me so happy to hear stories of children who successfully overcome learning problems--in this case APD. I'm so sorry she has passed.

    • @F_the_T
      @F_the_T Рік тому +15

      I’m so sorry for your loss

    • @KYhomes4u
      @KYhomes4u Рік тому +14

      I’m so sorry you lost your daughter! Hugs

    • @yourgirllaurk
      @yourgirllaurk Рік тому +16

      I'm sorry for your loss. But please remember that you gave her the best life imaginable.

    • @joannewsome5202
      @joannewsome5202 Рік тому +16

      @@yourgirllaurk thank you very much for your kind thoughts. They’re appreciated. She was very much loved but was easy to love. She was a great daughter, granddaughter, sister, cousin & friends. But I know how much different my life would be right now if she were here- so much better. I miss her every day . You never get over the death of a child - no matter the age.. Joan

  • @SIC647
    @SIC647 2 роки тому +25

    That is why I always have to have subtitles on everything! 😲 I love UA-cam for it.
    And the having had my hearing tested several times, and it keeps coming back normal.
    And constantly having to ask people to repeat what they said.
    And finding it next to impossible to hear someone in a room with background noise.
    Movies and music make me exhausted. But I find it nice to watch movies, sound off, subtitles on.
    Woooooow. 🤯🤯🤯

  • @LavenderDarcangelo
    @LavenderDarcangelo 2 роки тому +191

    I feel like people who make the assumption that you're just not paying attention, are people who don't have complicated lives. I know that it's not an intentional assumption, but I just think it takes a special kind of person to understand the magnitude of neurodiversity. Like the full depths of it. I feel like when you think that the person just doesn't listen, that you're probably the kind of person who understands normal problems only.

    • @SweetiePieTweety
      @SweetiePieTweety 2 роки тому +15

      These are NOT my people. Sadly, there are primarily family and educators. When she revealed the people putting her in the basement with that treatment were educators I knew she spoke truth. Some of the most amazing people are educators. Some of the most horrid are teachers. School and school expectations and attempts for perform among school work at home for me and my children was on the permission ground for abuse due to learning disabilities. The very places you truly need knowledge and understanding and supports for differences in learning you so often simply find an opportunity for abuse. What don’t learn in curriculum you learn deeply about the character of an individual and the character of society. The person who can perform to expectation rarely sees a persons true character. But a person who can not perform to expectation and norms sees the character of a person fully. It makes the world feel incredibly scary to a young child. You pick up on the slightest indicator a person can’t “deal” with or accept differences outside their own and put them in the dangerous “not safe” category and social distancing and isolation can occur. The truth is that their are more of them in society than those who accept “differences” with kindness and respect. The mis labeling f behaviors is the norm of most and many. When they all collaborate such as teachers and parents aligning or teachers and school peers aligning or family members aligning in their beliefs about the person with learning differences are behavioral (often moral) failings vs a learning disability a life can be destroyed. Opportunity destroyed. A basement dweller is born. Breaks my heart every single time 💔. God bless this woman for her ability to do what all those “teachers” could not. Step above their abuse given the opportunity and prove them all just wrong to go on and help those who need it and want it. HERO. She is a HERO in my book of life. It’s sad that the abuse and adversity was the catalyst of her chosen study and profession, but glorious many will benefit . For those who life comes easily what measure is it of their character? Not much. Not much at all.

    • @downtime86stars17
      @downtime86stars17 2 роки тому +6

      The people who assume you aren't paying attention may also have their own attention or hearing issues and get frustrated with you for not meeting their needs.

    • @LavenderDarcangelo
      @LavenderDarcangelo 2 роки тому +2

      That's very true but I think that's also very hippocritical.

    • @syrinix1893
      @syrinix1893 Рік тому

      my partner gets upset at me whenever i say ‘what did you say?’ ..says im not paying attention but i swear i try to but my brain just kinda.. fizzles

  • @betha.6279
    @betha.6279 2 роки тому +198

    It breaks my heart that parents/school teachers could do this to a child! I'm so glad she was blessed with a beautiful foster mother. This speaker is an incredible, brave amazing lady! I hope she knows she has great value a human,and a mentor!

  • @kjh5317
    @kjh5317 2 роки тому +501

    This is the most impactful TED Talk I’ve ever seen. She’s a beautiful soul. Bless her for talking about a disorder that causes such heartbreaking struggles but is so rarely talked about.

    • @alinamorejon9048
      @alinamorejon9048 2 роки тому +2

      Thank you.

    • @nicolemestas7629
      @nicolemestas7629 2 роки тому +6

      I seriously think I have this
      It all makes sense

    • @merissadoesstuff
      @merissadoesstuff 2 роки тому +4

      I have this and it is very detrimental to my every day life and relationships. I am so glad I found this video. I thought I would just have to struggle with it my whole life.

    • @jillnelson8746
      @jillnelson8746 Рік тому +6

      Best TED I have ever heard-before getting hearing aids this evaluation should be done!

    • @CSpottsGaming
      @CSpottsGaming Рік тому

      @@merissadoesstuff Hopefully it's gotten better for you. I haven't been formally diagnosed but as a person with ADHD the odds are high that I have it, and it aligns with a lot of what I've experienced.
      I actually sort of learned to read lips (not well, but enough) by accident because of it. Seeing the words formed helps process it for me. Maybe that would help you as well.

  • @rebecca9949
    @rebecca9949 2 роки тому +39

    I like how she speaks in a calm, even tone here. Sometimes I have trouble watching videos where people are speaking because they sound so harsh and abrasive lol

  • @Verdeangela12
    @Verdeangela12 4 місяці тому +3

    I was spellbound listening to her. Her foster mother's love and kindness was uplifting and heart-warming. Both women are heroes, including her caring, take-action school friends.

  • @houdinimagpie3364
    @houdinimagpie3364 2 роки тому +47

    This woman is so strong, intelligent, well spoken, and beautiful and anyone should be honored by her presence

  • @juliachan8421
    @juliachan8421 2 роки тому +338

    APD is such an unknown disorder, so anyone who has APD feels like an alien. i didn't get diagnosed until i was almost 27, and it can be a very isolating experience! thank you for brining light to APD- it makes us feel less alone :)

    • @NWAdventureGal09
      @NWAdventureGal09 2 роки тому +22

      @Julia Chan, I am 60 and it's the first time I've heard of APD. I'm going to go the path of getting the referral to find out if I have this or something else hearing and brain connection oriented. I've had my actual hearing tested, but I've had the issue of not being able to remember details and facts about what I heard (or read) since I was very young. I have a quick mind and retained enough to do pretty well in school. My parents always said it should be easy for me to do well in school because I had a high IQ. But it wasn't. And all my life I've struggled at work and at home to retain information. I wish I was like you--27!--and just finding out instead of 60 and still not knowing what's wrong. Take it in as a blessing; 27 is still quite young in the span of a lifetime.

    • @InVinoVeratas
      @InVinoVeratas Рік тому +10

      I was luckily diagnosed at 8, and since then I've at least had an idea of why I don't learn well in any environment that's loud.

    • @nmm8817
      @nmm8817 Рік тому

      Its sad this happens so often nowadays where such specialized tests & equipment are used! Many conditions that are "rare" are becoming more prevalent daily it seems. Im glad you got diagnosed tho, hopefully its getting better for you

    • @tempkinvient
      @tempkinvient Рік тому +1

      @@InVinoVeratas it also helps me to be able to tell people “hey, just so you know, I have an auditory processing disorder, and if it ever seems like I am ignoring you, that’s what is going on”
      People used to get annoyed at me at work, or think I was rude (in noisy reception environment) but are now totally ok waving or tapping my shoulder to get my attention first and it is so much easier

    • @LilChuunosuke
      @LilChuunosuke Рік тому +1

      We really need more education on APD! The universal responses to explaining APD are either "you need to focus more" or "yeah, I don't hear everything perfectly all the time either! that's normal"
      It's how so many people are able to struggle for decades before recieving help.

  • @johnny5isalive2020
    @johnny5isalive2020 2 роки тому +510

    YOU'RE SO GOOD! Thank you very much for this presentation, you've just helped me solve a 43 year old mystery. After a few hearing tests and being told my ears are fine after a lifetime of hearing difficulty it wasn't making any sense...now it makes PERFECT sense! Thanks for sharing your story as well!

  • @staceymoral4289
    @staceymoral4289 Рік тому +42

    The fact there are PRIMARY CARE TEACHERS WHO WOULD DO THIS TO ANY CHILD SICKENS ME TO AN ALMOST CRIPPLING DEGREE.. as I suffer with Only God knows my own prisons of stories.. APD. IS REAL GOD SAVE THE CHILDREN THROUGH MORE AMAZING HUMAN BEINGS LIKE THIS LOVING, LOVELY LADY!

    • @laurishumway5201
      @laurishumway5201 Рік тому +2

      Yes, just because you’re a teacher doesn’t automatically make you a good person.

  • @quickgirl80
    @quickgirl80 2 роки тому +121

    That’s me. I’m always asking my husband to repeat himself. Or I take a few seconds to replay what he said to come up with what I think he said, based on what makes sense for the context of the conversation. He gets so frustrated & says, “you heard me.” But I always have to explain, yes I heard you, but I didn’t fully understand you, especially the first few words of a sentence.
    If I can’t read someone’s lips while their speaking I won’t understand them. But I hear everything that come out of their mouth just fine.

    • @MDLhu
      @MDLhu 2 роки тому +12

      i have the exact same thing. i almost never can make out the first words of what my husband is saying to me. i always think it's because he is not articulating properly. i don't have that when I listen to movies or UA-cam.

    • @wientz
      @wientz 2 роки тому +17

      Same hear. No seriously I experience the same things that you are talking about. One other thing that I simply cannot do is listen to music and pick out the lyrics. I love music but I find it fascinating when other people quote lyrics from pop music when I have no idea unless I "google lyrics".

    • @MoonStarDivide
      @MoonStarDivide 2 роки тому +4

      Same here, it's so frustrating. 🙁

    • @swigswag3337
      @swigswag3337 2 роки тому +9

      yup! APD! i described is just like that to my doctor and he diagnosed me with that before i knew what it was. also, apparently you interpret information differently as well. so, even if you do happen to comprehend what words were said, you take it a different way than what was said. i get told a lot that i argue too much and my arguments are usually on the same side as the other person, and i repeated what they said, but in a different way. my doctor told me that its also how i personally interpret what is said if i do happen to hear it correctly, which explains why i am defensive. that may apply to you? i dont know.

    • @barbarastraley6168
      @barbarastraley6168 2 роки тому +10

      Quickgirl80, Thank you for your comment! My husband is hard of hearing and has hearing aids. However many of our conversations mirror what you said your experience is. So often I will say something to him and he doesn’t reply right away. I have accused him of ignoring me, but he says that he needs a few moments to realize exactly what I have said. Hearing loss is definitely an issue, but I now believe APD my very well be as well. So thank you and MDLhu and Weintz and others for sharing your problems. I will slow down, be more patient and be more aware of how I am communicating and give him time to process and respond. Please don’t misunderstand, I always believed him when he said he was not ignoring me, but over time it’s too easy to be in a hurry and forget to be patient. Hopefully, a greater understanding will also serve as reminders in the future. Best wishes to all of you.❤️

  • @marky2A
    @marky2A 2 роки тому +129

    Thank you. I have been isolated, an outsider, intelligent yet disassociated. I so totally appreciate your presentation. I am 67 years old and just now coming to an understanding. Your Talk enunciates what I have lived. So long. I think what you have said will help my children and grandchildren.

    • @tahsina.c
      @tahsina.c 2 роки тому +3

      I'm 20 and literally have been described as "intelligent but distant" in class. I never knew there was a word for this issue

    • @conorneligan7694
      @conorneligan7694 9 місяців тому

      Is this a bot

  • @gemneyelife
    @gemneyelife Рік тому +62

    In tears. I think I've had this my whole life. In my 40's and now possibly finding some answers as to why day-to-day activities are so difficult for me. Never been to therapy for anything so I research everything. I've felt misjudged and misunderstood my entire life.

  • @MonikaWoodstraveler
    @MonikaWoodstraveler 2 роки тому +99

    I remember when a woman who was married to my dad for about a year told her son, referring to me, that I was 13 but had the mentality of a 9 year old. I was hurt and ashamed for so long after that. My grades went down in school and I looked for a different identity, and became someone else for many years. Thank you for sharing your story and helping me realize that I needed to identify that moment so I could move forward. I have often heard and read things 2 to 3 times to understand, and I have wondered why for many years. thank you again!

  • @austincrane1465
    @austincrane1465 2 роки тому +66

    Got diagnosed yesterday with APD and I'm almost 30. Basically failed every test and was told my ears are not working together. For the record, I have had over a dozen hearing tests in my life and all said I have perfect hearing. But Jackie's experience is my daily walk in life. Unable to enjoy songs, watch movies, learn in class, understanding instructions / briefings at work, impairs normal conversations that effects social life, bad grammar, etc. Its traumatizing. Its exactly like this Audiologist says, catch this early in childhood to prevent the future hardships if left untreated.

  • @laneatkinson6441
    @laneatkinson6441 2 роки тому +207

    I feel so seen right now, and I also had no idea that I could treat this symptom of my ADHD. Listening to music, watching a movie, or even just having a conversation takes so much effort.

    • @adrianbalmes5704
      @adrianbalmes5704 2 роки тому +8

      Me: it seems totally crazy; like the input doesn't match the message however it makes complete and coherent sense. You can't dwell on your basement until high school and go unnoticed but if you don't even comprehend what people are saying how can you begin to think this is not normal. So relatable that I don't even perceive my own image much less how it comes across.
      also is this related to the broca and werner area language recognition? people with temporal injury may have aphasia so there's hope for everyone.

    • @jogrant3851
      @jogrant3851 2 роки тому +5

      I avoid music - too much info.

    • @virginiamoss7045
      @virginiamoss7045 2 роки тому +8

      @@jogrant3851 Me, too. Think how much we save in purchasing music, electronics to play music, etc. Even movies and videos are exhausting to me; I have saved a lot of money not buying recordings and electronics for them. Nothing is saved, though, in avoiding people; I only interact with people when I have to in order to make a living or get along in the world. I'm much happier being alone; it's just so much easier.

    • @oh2887
      @oh2887 2 роки тому +11

      I have ADHD and auditory processing disorder. I was inly diagnosed at 40. After years of struggle. I am terrible in the phone because the facial cues and body language are missing. I end up getting frustrated and shouting down the phone a onesided monologue because I cant take in what the other person is saying.

    • @virginiamoss7045
      @virginiamoss7045 2 роки тому +9

      @@oh2887 I just experienced that today. I try hard to not get frustrated, but the way American companies treat customers today is shameful. I've even had to ask my doctors to please slow down and allow me to process what they are saying. They want to spend as little time as possible with all their patients. I haven't been diagnosed, but I suspect auditory processing is one of my many challenges.

  • @BlaBla-rx7yl
    @BlaBla-rx7yl 2 роки тому +59

    OMG. THIS IS HAPPENING TO ME IVE BEEN TO 2 audiology exams. And it’s normal. This is eye opening. Why didn’t my audiologist tell me about APD ??!

    • @marti220
      @marti220 2 роки тому +5

      I believe it's because they deal almost exclusively in peripheral hearing issues. Central (brain) auditory processing is likely not an area they have much experience in.

    • @BoojumFed
      @BoojumFed Рік тому +5

      @@marti220 Yeah. Audiologist training is almost entirely focused on the ears themselves because that's what they're learning to identify and treat; APD isn't connected to any of the hardware involved in hearing, it's the processing software. That's neurology, not audiology.

  • @amonkeybird
    @amonkeybird Рік тому +96

    I was crying 3 minutes into this TED talk.. how can anyone do this to a child??!! and you not only thrived in spite of them, but helping others. You are a true angel.

    • @TheMoneyWiseMomma
      @TheMoneyWiseMomma Рік тому +3

      Same! 😢 I will NEVER understand people. 😔

    • @netherdew
      @netherdew 10 місяців тому

      But how did you get so well? I want to be too!

  • @CJGfarm
    @CJGfarm Рік тому +5

    Audiologist here, I was also taught by Jack Katz when I was at the University at Buffalo. He was absolutely the best professor I ever had. He's made a huge impact on CAPD diagnosis and therapy. I'm glad to see your following in his footsteps. 😃

  • @AleakweAndOlivia
    @AleakweAndOlivia 2 роки тому +16

    2 minutes in and i am like WTF. I want to hug Angela and all survivors. You are all amazing

  • @wientz
    @wientz 2 роки тому +29

    I love music but I never knew any lyrics other than a few bars here and there. I am often puzzled when others are quoting lyrics from popular music when I have listened to and enjoyed that same music, but never ever even caught even a few of those lyrics. There are thousands of songs that I listen to on the radio with the most convoluted and nonsensical lyrics imaginable. Also I only nod yes and smile during a dinner conversation in a room with background noise. Oddly I work in a noisy construction environment and seem to do okay there.

    • @susannicole5176
      @susannicole5176 2 роки тому +1

      Me too!! I love music, but rarely hear lyrics.

  • @LorryHill
    @LorryHill 2 роки тому +184

    This had me crying ; thank you this was a wonderful video; you are incredibly brave and beautiful!!

    • @tworivers491
      @tworivers491 2 роки тому +4

      I'm crying too...

    • @RnW9384
      @RnW9384 2 роки тому +5

      I'm just getting over the shock.
      Need another moment.
      Whewww

    • @glenholmgren1218
      @glenholmgren1218 2 роки тому +1

      Amen
      God Bless her

  • @Erin-xz2ng
    @Erin-xz2ng Рік тому +11

    I mentioned APD to my doctor and she said “that would have been diagnosed as a child if you had it.” Time to see a specialized audiologist!!!

    • @ineffablewhune
      @ineffablewhune Рік тому +4

      personally...
      I'd find a new general doctor as well.
      IF she's dismissive and assumptive in that regard
      THEN she's likely that way in general*
      but since she's the "expert" who is tasked with breaking things down for you...
      how can you know if her conclusions are competent?
      *the medical and scientific fields are rife with people that simplify and downplay;
      because it makes them feel significant and competent.
      The reality is they're small-minded; and are only certified because they're skilled at memorizing test-data. Thus they are a liability to health and true understanding; and this is part of why malpractice lawyers exist.

  • @angusorvid8840
    @angusorvid8840 2 роки тому +148

    I had lots of ear problems when I was a kid. I had tubes put in when I was three then removed when I was six. I was eventually diagnosed with Auditory Processing Disorder when I was eleven. I never had any issue with focusing and was always a voracious reader, very advanced, and also very advanced in writing. But I have a lot of trouble distinguishing words when there is background noise and often watch TV with subtitles.

    • @ruthjocaccivajjio274
      @ruthjocaccivajjio274 2 роки тому +2

      So does my son

    • @angusorvid8840
      @angusorvid8840 2 роки тому +5

      @@ruthjocaccivajjio274 If he's good at reading and writing that can be a great equalizer. I found out I was good at music too at a young age. But where I ran into trouble was when I transferred from a Montessori school where I attended from grades 1-3 to public school. I found that I had a lot of trouble understanding the teachers who would rush through everything, and I ran into trouble with math. I wound up getting tracked into remedial classes where I was always the best student (didn't need to be there for other subjects but I was for all of 5th grade). One of my biggest issues was in dealing with the larger class size of public school as opposed to Montessori where I did extremely well. My issue was in not hearing things clearly, or not being sure what I thought I heard. Also the noise in the classroom just from fellow students fiddling about would make it harder for me to distinguish what my teachers were saying. I have a bit of tinnitus too which is what makes it hard to hear through background noise. For instance, if I'm watching TV and a fan is on it will blot out the TV with white noise. This is NOT ADHD. That's an inability to focus, not an inability to hear properly. I don't know how old your son is, or if you've encountered this reality, but schools tend to be very anti-boy. This is in part due to the high prevalence of female teachers, but also just a bias, a kind of misandry. Boys also tend to be diagnosed with ADHD way more than girls and put on Ritalin. This is an awful trend. Young people need to utilize their energy, not have it drugged away. We are also in a time of extreme socio-political upheaval, where the forces of woke are just looking for any target to clobber. If your son is white you need to think about this, as un-pc as it sounds, because if he is out of sync with what his teachers, and eventually professors should he go to college, are teaching, he can find himself on the outs in a very bad way. Just think of what students with Tourette's syndrome go through. I knew a girl with turrets when I was sent to a school for learning disabled students in tenth grade. This girl would often blurt out things that were inappropriate or just completely random. Most of her fellow classmates were aware of this and made no issue of it. But she did have a problem with a classmate from the inner city when she blurted out one particular word and that girl started slapping her on the side of the head. That girl was expelled. The school was on the side of the student with Tourette's. Public schools do not have the ability to accommodate students with disabilities. They just don't. It's necessary to send them to specialize private schools.

    • @abbeys.2808
      @abbeys.2808 2 роки тому +4

      @@angusorvid8840 Are you individually offering to pay for all kids with disabilities to attend a private school? If not, then who is going to step up? Don’t tell me that you expect every parent that has a child with disabilities should be able to send that child to a private school on their own dime! It’s not as though it should become commonplace for couples to put aside a dedicated “in the instance of us conceiving a disabled child fund,” as they might a “rainy day fund,” or a “retirement fund.”

    • @SuperRitai
      @SuperRitai 2 роки тому +5

      Thank you, I feel like I'm listening to myself when i read this. Same Exact Issue has plagued me and interfered with me my whole life. Nobody heard or even knew of this when I was young.

    • @sylvestercalzone1003
      @sylvestercalzone1003 2 роки тому +2

      I felt like I wrote this.

  • @kyliehawker-green9488
    @kyliehawker-green9488 2 роки тому +272

    A powerful and emotional watch. As a parent of a child with APD, the struggle is real. We have been so lucky to have him diagnosed and have a plan and treatment in place to support him... he's gone from being a lonely and isolated kid who struggled at school to a thriving, engaged and happy boy. Thanks Angela for sharing this message and for your bravery is telling such a personal story.

    • @MotivationalShots47
      @MotivationalShots47 2 роки тому +2

      God bless u dear how r u

    • @spiritseal
      @spiritseal 2 роки тому +13

      Please don't stop supporting him because some "therapist" has convinced you that he's "cured." I'm 46. We don't get cured. We learn to live with it.

    • @MotivationalShots47
      @MotivationalShots47 2 роки тому +1

      @@spiritseal how r u dear

    • @joanpascal7745
      @joanpascal7745 2 роки тому +2

      Brave and very well done communication!
      Thankyou sooooo much for this piece.

    • @MotivationalShots47
      @MotivationalShots47 2 роки тому

      @@joanpascal7745 how r u

  • @katherinec2759
    @katherinec2759 2 роки тому +8

    Unrelated to the content of the video: I love the way she effortlessly slips in and out of that Southern accent. :)

  • @PlantTrees
    @PlantTrees Рік тому +73

    The fact that I listened to this entire Ted Talk as a person who needs subtitles and constantly in need of repeating - or actors seem to jumble words while my husband understands perfectly - is wow.
    I can hear fine, I speak perfectly, I love to read a LOT but my big issue is w processing and comprehending what I read unless I am absolutely alone with absolutely no distractions. There are no work-arounds. I’m in school so I just isolate and do my homework over and over until I really understand what the objectives are.
    I really appreciate this video. And I am truly happy for you. Excellent talk and excellent lesson. 🙏🏻

    • @Natasha-zv8dh
      @Natasha-zv8dh Рік тому +2

      That's a lot of hard work. Your persistence is inspiring 😁👍❤️

    • @jennis4647
      @jennis4647 Рік тому +1

      You are not alone.

    • @PlantTrees
      @PlantTrees Рік тому

      @@jennis4647 Thank you. 🙏

  • @Romans219
    @Romans219 2 роки тому +7

    I love hanging out by myself as much as possible

  • @susanb2589
    @susanb2589 2 роки тому +15

    My husband at the age of 54 was finally diagnosed with APD. He went in for testing because he feared losing his job. Now the state(Utah) has to provide assistance when taking classes and testing for his on going education.

  • @jodyvelie6072
    @jodyvelie6072 2 роки тому +17

    I’m an md. I have two children that I think have this. I didn’t know until today. Thank you for your courage and knowledge

    • @lulumoon6942
      @lulumoon6942 Рік тому

      Glad as an MD you are seeing a problem, with a view to solving it. Seen many doctor's deny family illness/struggles (Source: married to one/family history).

  • @bajone02
    @bajone02 Рік тому +3

    What a beautiful person you are, Doctor. Inside and out. God bless your journey.

  • @MotifMusicStudios
    @MotifMusicStudios 2 роки тому +61

    “I also know what it’s like to be set free.” Absolutely powerful! What a gift you are to this world!

    • @chris-dresdenm6854
      @chris-dresdenm6854 2 роки тому +1

      Unfortunately, forcing religion upon others isn't something that Americans do to other Americans, actionable.

    • @MotifMusicStudios
      @MotifMusicStudios 2 роки тому +3

      @@chris-dresdenm6854 not sure I understand the reply. I was quoting your quote within the video and saying that was a powerful moment.

  • @mable90shaynne
    @mable90shaynne 2 роки тому +28

    I just found out I have this. My husband told me for the millionth time that I need to clean my ears and I had accepted a long time ago that I probably needed earing aids. I went for my hearing test but was beyond confused when I was told I had perfect hearing. Then the women explained this to me. It all makes sense now. Wish I would have know this before.

    • @nicoleschwyzer6022
      @nicoleschwyzer6022 Рік тому

      I had the SAME experience! I also watch the TV super loud... I give him wrong responses to questions because it turns out I have CAPD !!! It made me so happy to hear I had a valid reason for my issues! I found it so interesting that the doctor asked me if I had trouble reading around grade 3 and if I am a poor speller! I was in a reading lab in grade 3 and I have always been a terrible speller too, even now! I cannot wait for my treatment to start soon!

  • @catherineduenas4532
    @catherineduenas4532 Рік тому +8

    My. Entire. Life. Was always told I needed to pay more attention or how I never listened. My mom always told me I struggled with listening skills, yet nothing was ever done to help me. Now I'm 36, diagnosed ADHD only a few years ago and even though ADHD medication has helped me focus better, I still struggle w/ auditory processing. Had no idea that there was actual auditory TREATMENT available for this and I'm literally crying just thinking about the potential relief. Thank you for your vulnerability in sharing your story and thank you for your passion in what you do. YOU ARE SO GOOD!

  • @noracalvert9786
    @noracalvert9786 2 роки тому +15

    I have four amazing children, all with Central Auditory Processing Disorder. The audiologist explained it was really being "audio dyslexic". Through their diagnosis, I have learned I also have this disorder, as did my father and other members of his family. I am now seeing this with both my grandchildren. Genetics!!!!! Here in this part of Canada, we are lucky enough to have use of FM systems in the schools for children diagnosed. The teacher speaks into a microphone headset and the students with the disorder wear headphones, so they only hear what the teacher is saying without any background distractions. It's still a struggle, as awareness to this disorder is still new, and the lack of trained audiologists in this field are desperately needed. I'm thrilled to see this presentation and eager to learn more. Ty for sharing your heartfelt story and for making this your life mission. Your smile says it all

    • @marti220
      @marti220 2 роки тому +1

      Do your children say they feel much improvement with the FM systems?

    • @juliadixon8465
      @juliadixon8465 Рік тому +1

      What is this intervention called?

    • @sarahbethgoncarova9810
      @sarahbethgoncarova9810 Рік тому

      The headset in classrooms would have been a life changer as a kid. What a great solution!!!

  • @michellevano8870
    @michellevano8870 Рік тому +3

    I used to joke that I had a disability where I could treat, but I didn't get it. People couldn't understand why I needed subtitles, but didn't need the volume turned up. Then I read briefly on the internet about auditory processing disorder and felt I must have it. After watching this, I believe there's help for me and suddenly began to wonder if my son with ADHD has it. And there's a treatment!!! This is so exciting. Thank you so, so much.

  • @panchitop2909
    @panchitop2909 2 роки тому +31

    I didn't think I was gonna get emotional but this hit deep. Ive struggled with audio processing my whole life but didn't find out it was even a thing til a couple years ago. It is very isolating and lonely. It destroys your confidence. Im always pretending that I heard whatever the people talking to me say just because im tired of constantly asking them to repeat themselves. Phone calls are so incredibly difficult to understand and mentally draining because even with 110% of my focus, I can't seem to understand.
    I never thought to seek treatment or diagnosis. But now knowing it might be possible, I think I will try.

  • @LMDinNC
    @LMDinNC 2 роки тому +65

    I never struggled with reading but I have always had difficulty following multi-step verbal instructions and have to take notes to learn. Interestingly, I listened to this while sitting next to my parakeet’s cage and she became very agitated during the speech in noise task.

    • @messyhead3155
      @messyhead3155 2 роки тому +16

      Oh yes me too! I also like to put on subtitles any time I can because it helps me follow the plot of a film or absorb the given information.

    • @laurieberry4814
      @laurieberry4814 2 роки тому +2

      Lisa, since I struggled with reading, kids didn’t want to compliment me. I listen well. I was called a good listener. Reading was hard. I wear glasses for astigmatism now. I don’t know about you, but I feel that my vision is a problem, but I graduated without without glasses. My reading disability was confused as psychiatric. I was put on horrible pills. But I wish people understand and use their brain because I use it. Hopefully you aren’t biased. Vision loss causes nervousness. Ouch.

    • @virginiamoss7045
      @virginiamoss7045 2 роки тому +4

      @@messyhead3155 Subtitles help, but watching movies or videos is very exhausting for me. I can't make out words or recognize faces. I figured out in midlife that I have face blindness (prosopagnosia) and now I am confirmed in late life that I have audio processing issues as well. No wonder life has been such a difficult challenge for me. It's just way easier to be by myself.

  • @AndreaMartinez-qu1be
    @AndreaMartinez-qu1be Рік тому +3

    “And you are so good.” Ahhh man. That was the perfect closing for her talk. 💕

  • @mrs.morris5506
    @mrs.morris5506 Рік тому +6

    First seconds in..... 😵😥😭
    It's SO BRAVE of this lady to speak about such a hurtful, haunting lifestyle. That somebody can overcome, is a profound joy.

  • @paulware6586
    @paulware6586 2 роки тому +30

    Every sound in the room is at the same level. Everyone's speech and all the ambient sounds are all at the same audio level. It is very hard to focus clearly when you are listening through the noise. This is why being in around a lot of people is exhausting. When you reduce the sound sources your performance improves dramatically. This means going from C level to A level performance. As a child my teachers wanted me put into the mentally handicapped class. This was terrifying. The school could not do this because my IQ tested out too high (around 180). Oddly enough my career has been in high tech communications.

    • @YeshuaKingMessiah
      @YeshuaKingMessiah 2 роки тому

      It’s not hard to focus unless u have a PD. Auditory, visual whatever
      Neurotypical ppl can focus

  • @azerbaycanazerbaycan5632
    @azerbaycanazerbaycan5632 2 роки тому +10

    "Because You are so good!" Fantastic ending💎

  • @stuttgartkimmer1
    @stuttgartkimmer1 9 місяців тому +1

    I just saw this. When you said you were in the lecture and were happy because you weren't "tired from listening". I actually cried. Tired from listening is my life...and so many hearing mistakes... even with my hearing aid.

  • @snblee
    @snblee Рік тому +3

    I have a diagnosed daughter. And it’s ridiculous that after nearly 2yrs we still struggle to find a therapist/Dr to treat her.

  • @STaSHZILLA420
    @STaSHZILLA420 2 роки тому +41

    "I know what it feels like to be imprisoned, but I also know how it feels to be set free."
    How powerful.

  • @dublinjazz1
    @dublinjazz1 2 роки тому +5

    This wonderful woman has the brightest sunshine emanating from her like a glow. My now 21 year old son was in Early Intervention for a host of issues from when he was 7 months old. He started out with physical therapy for low muscle tone, and then occupational and speech therapy followed. On advice from a friend we had him tested for APD when he was almost 4. Insurance didn't cover the treatment back then, but we bit the bullet and went for it anyway, and it made a huge difference to his life, and as a result, our whole family.
    I'm not ashamed to say I watched this talk with a lump in my throat

  • @karenbird9522
    @karenbird9522 Рік тому +7

    This is a heartbreaking story. My heart hurts knowing how much you suffered. It’s so beautiful that you were able to have a healthy life after. You are so strong. Congratulations on getting on the other side of that horror.

  • @meganchristian7085
    @meganchristian7085 Рік тому +10

    Just hear to say that Auditory Processing Challenges make you work twice as hard ( and that's not a bad thing ). I am a person with autism, OCD, and significant learning disabilities such as auditory and visual processing challenges - and yes, sometimes I hate it - but it the right circumstances it can be a great motivator to stick with it and not give up.

  • @leegalen8383
    @leegalen8383 2 роки тому +14

    Well, I'm 64 and learned something new! Never knew there was such a thing! Thanks!

  • @joanhaselman444
    @joanhaselman444 2 роки тому +4

    WOW! I have worn hearing aids for over 50 years, but as a child, I was always in trouble for not hearing. If an assignment wasn't written on the board, I didn't know about it. But even with hearing aids, I knew there was something else, that even when I could hear the words, the understanding wasn't coming through. Now I have a name for that.

  • @sveinthered6117
    @sveinthered6117 Рік тому +6

    I watched this video as it closely resembles ADHD. I saw a specialist on 31st Aug. One of the things I mentioned was that I went for a free hearing test, just to prove to people that my hearing is great. The audiologist confirmed this. As for the specialist I saw five days ago? She confirmed I have severe ADHD. My life changed forever on that day in the most beautiful ways possible. 👂🧠💡

  • @lauriec9183
    @lauriec9183 2 роки тому +10

    I am positive I have this disorder but never knew the name of it. I struggled so much in school because when the teacher was giving directions for our assignments I literally could not understand what she said.. when I am talking with someone and there is background noise I definitely can’t comprehend what they are saying. Thank you for helping me and others know why we struggled most of our lives to understand what people were saying.

  • @anonuser111
    @anonuser111 2 роки тому +6

    I've known for years that I've had APD it's so embarrassing....but I didn't know there was a treatment!!!! No one ever told me!!

    • @spiritseal
      @spiritseal 2 роки тому

      Be gentle with yourself. there is no proven treatment. This video is really messed up. Sounds legit, but the more I think about it, the worse it seems.
      You can absolutely get therapy! Therapy is a great thing. You can ask an audiologist about it, or skip right to working with a SLP (speech and language practitioner) But they don't cure you. You won't walk away with every social marker "green" and every embarassment suddenly clear. You'll just strengthen some areas and develop some coping skills. If your therapist is good and doesn't try to sell you snake oil - that they have a 12 week course that can cure everyone.

  • @cs5384
    @cs5384 2 роки тому +121

    My son and I are both autistic and we both have SPD, especially auditory processing disorder that really shows through hypersensitivity. It's hard to process because certain sounds are also painful. When my daughter talks sometimes she makes a slight snort sound and it is absolutely painful for me so it's hard for me to comprehend what she's talking about. It really bothers me that sometimes I cringe when I know she's going to talk. That is not what you want to feel when your daughter talks to you and I hate it. I've tried modulated sound therapy because it did help my son but it hasn't really helped me and I feel like it's getting worse as I get older. Also that part of the talk where she's playing the crowd noises, I just had to skip past it. Not only will I struggle to comprehend in that environment it hurts me, like electric shocks going down my jaws and in to my spine.
    My son was diagnosed at age four and he's had support in school and I think it's really helped him. I wasn't diagnosed until I was 47 and I feel lost. It's hard to work. I don't really like going out especially in crowded places. Being autistic isn't really such a bother for me, I have lived with it and learned to adapt, how to "mask" by playing a character so it's really not a big deal, in fact I kind of like it because I seem to be the voice of reason in my group. I'm less likely to lie so people trust me and value my opinion. So it's not the autism that holds me back it's this APD.

    • @livkind3522
      @livkind3522 2 роки тому +2

      Very similar story 🥰

    • @publicserviceannouncement4777
      @publicserviceannouncement4777 2 роки тому +13

      I'm not sure if it would help or not. There's a silicon thing that goes in the ear by a company called Flare. It helps with background noises and makes speech a little more crisp and not so muddled. It's very subtle but I notice I feel less nervous when I where them. I forget to wear them but I think I'm going to try them on since my tinnitus is driving me crazy.

    • @virginiamoss7045
      @virginiamoss7045 2 роки тому +9

      I've done as you have, assuming a character for the benefit of whomever I'm dealing with. It as well as my inability to lie has brought me success (people trust me greatly), but it's very draining. At age 65 I was finally diagnosed with high-functioning autism (Asperger's Syndrome). Sure could have used that 60 years ago as well as my face blindness (prosopagnosia) and now I realize audio processing issues!

    • @lauramonahan9343
      @lauramonahan9343 2 роки тому +2

      Would some of the new selective hearing aids help? I've been thinking of trying them. My symptoms are getting worse with age.

    • @cs5384
      @cs5384 2 роки тому +7

      @@virginiamoss7045 We could be sisters! I wasn't diagnosed until I was 47 and I too have face blindness! I have never been good with lying or having a "poker face" either but I do really good with putting on that character face. I am so glad women are finally starting to be heard when it comes to autism. We are often misdiagnosed with mental disorders or at the very least chastised for behaviors that weren't considered "normal". Now young girls are finally getting recognized as being autistic. I remember when I was a kid autism was mostly a condition applied to boys.

  • @Nitrostreak
    @Nitrostreak Рік тому +1

    "I had made the conscious decision to believe every client who tells me they are struggling"
    This right here? This is so important.

  • @joynkindness
    @joynkindness Рік тому +1

    My son and I have had speech therapy. Prayers for everyone!!! M

  • @Nosagram
    @Nosagram 2 роки тому +15

    Ohh Lordy, three audio grams with me being sure that I have hearing loss, just to be told “your hearing is perfect”. I just assumed my brain was wired wrong. You never really thought that this was a thing though that was potentially treatable. Thank you.

    • @kristinathomas5890
      @kristinathomas5890 2 роки тому

      Our brains ARE wired wrong, but it's nothing to be ashamed or afraid of. I suspect I have APD but wasn't going to bother getting diagnosed because I didn't think there were effective treatments for adults. I'm so glad to be wrong! So getting evaluated is now a goal!

  • @tonioshea9870
    @tonioshea9870 2 роки тому +52

    I'm sobbing. Ty for sharing your story. I wish you love & happiness♡♡

  • @mandyduncan8208
    @mandyduncan8208 Рік тому +13

    This video was heaven sent! My son who is 21yrs old has been battling this his whole life and has been misdiagnosed by drs and teachers and has struggled his whole time in school being looked at as lazy or careless but was too afraid he may be called on in class so he would put his head down on his desk everyday. He has battled depression and anxiety for so long. He did graduate but now has difficulty finding a job suitable for him. I’ve tried so hard to help him overcome his self doubt knowing deep inside there was more to his struggle. He never seems to know what to say n will stay quiet while everyone is talking around him. It’s been absolutely heart breaking to watch because he is such a good kind hearted person and I know he feels so lost. Please any help on this issue would be such a blessing! Thanks for this eye opening video!

    • @mandyduncan8208
      @mandyduncan8208 Рік тому +2

      @BB502 Yes I’m sure I made mistakes along the way, no parent is perfect I’m sure yours wasn’t and if you’re a parent I guarantee you’re not either. But I did the best I knew how. He started at a young age w ear infections n later tubes were put in his ears. So

    • @mandyduncan8208
      @mandyduncan8208 Рік тому +4

      @BB502 I feel sorry for you that your childhood made you the inconsiderate person that you are. And i truly hope your life gets better so that you don’t have to see the world from such a negative perspective. And thank you for taking the time to read my comment !

    • @annrosebrook9808
      @annrosebrook9808 Рік тому

      @@mandyduncan8208 I

    • @Merip1214
      @Merip1214 Рік тому

      Having just watched a video about SCT, I now wonder how many things overlap between the two - I definitely identify with a bunch of SCT things, but also with this

    • @nanwilder2853
      @nanwilder2853 4 місяці тому

      @@BB-wl4qz: Actually, Mr. Ignoramous, family GENETICS are the source of both Anxiety and Depression. Shame on you!

  • @jennadewitt
    @jennadewitt Рік тому +9

    As another commenter said, it is a great feeling to be able to understand and process every word from this speaker without needing the captions. That almost never happens. I feel like I actually processed every word! Aside from speaking skills, this was so healing not just as someone with APD but the heart behind it. "I know what it feels like ... to be imprisoned but I also know how it feels to be set free." Yes, yes this. "You are good, and we are so lucky to have you." I feel the same about this speaker and her work.

  • @UriValdez
    @UriValdez 2 роки тому +11

    Didn’t even know this existed. I have a hard time at school to remember anything from a lecture.

  • @cherylroberts5100
    @cherylroberts5100 2 роки тому +24

    I know exactly what it is like to live with APD, I struggled my entire life in school but I did not find out until I was in my 30s and growing up was told, on a daily basis, I was lazy and just refuse to listen. After I was diagnosed and got help, my entire life changed for the better. When my children also showed signs I went to the school district and asked and asked for my kids to be tested. Finally they were and the school provided them with IEPs and treatment for APD. The school had a teacher with specialized training in the Linda Mood Bell method and it is phenomenal. I also went to the military hospital in Honolulu, interesting she said kids in the Pacific islands are more likely to have APD, anyway, the military clinic set my kids up with fastforward sessions and they improved remarkably. Thank you so much for bringing awareness about APD. Not a lot of people know about it and I was thrilled when I found this video .

  • @Tourdetrio
    @Tourdetrio Рік тому +6

    Thank you so much for this information!!!! 😭😭😭 My daughter has been told her hearing and speech are “fine”, that she just needs to “pay attention more”. As her mother, I knew there were more issues, just didn’t know where to turn to. I’m looking at the auditory training now!❤❤

  • @supplychaing.o.a.t6947
    @supplychaing.o.a.t6947 2 роки тому +1

    My GOD!!
    ENT Dr office was my second home growing up.
    Having to record conversations/meetings at work is exhausting af.
    It's literally like working two full time jobs. Be present for 8 hours and then listen to the 8 hour day from home

  • @brothermaleuspraetor9505
    @brothermaleuspraetor9505 2 роки тому +21

    I think I might have discovered what might be wrong with my hearing. People have often said to me, "Are you deaf?" And I'd hear everything but not always... 'hear' everything. This seems to be some opportunity for me to investigate this further with my Doctor. I'm so glad I discovered this video.

  • @rachelpotter5858
    @rachelpotter5858 2 роки тому +79

    Thank you for speaking out about this. There was a lot of sadness in your eyes when talking about your upbringing, its alright to be sad and not smile when you talk about something so horrible that has happened to you. I know the challenges of a hard upbringing. I'm so glad you had the love of your mother after that.

  • @ConnectionsInLightClasses
    @ConnectionsInLightClasses 2 роки тому +5

    This is my problem. It's not that I can't hear, I can hear everything at the same time, so it's hard to pick out one conversation.

  • @tigerlilysoma588
    @tigerlilysoma588 2 роки тому +10

    This happened to me too. Now even hearing my roommates footsteps in the house at night wakes me up and causes an explosion of anxiety. It’s getting better as I get older though. Thanks for reading

    • @palmfrond
      @palmfrond Рік тому +1

      This could be hypervigilance as part of general anxiety or PTSD. You may want to ask a doctor about it. Take care.

  • @Sunshine75616
    @Sunshine75616 2 роки тому +17

    Wow! You have described me exactly. I have had difficulty my entire life. School was very difficult. When my teachers spoke in class, I had no idea what they were talking about. I was disciplined often in front of the entire class. I believed I was an terrible kid. I grew up feeling ashamed and discouraged. Being more determined didn't help. I knew there was something I couldn't do that everyone else could. I've worked so hard my entire life just to get by. My hearing tests were always normal.
    Could it really be possible that there is something that could help me? I can't tell you what your lecture means to me. Thank you!!!

  • @Citylight-yq8dp
    @Citylight-yq8dp 2 роки тому +21

    Well. This was nothing short of revolutionary for me. When my brain says that lumber=blubber and come here=gun fear I thought I was going deaf.

  • @orionross1832
    @orionross1832 Рік тому +3

    I got the treatment and can hear so much better

  • @SarahPriceHancock
    @SarahPriceHancock 2 роки тому +11

    As a person who lives with auditory processing disorder, I had to smile when the audience member stood up and left in the middle of the auditory discrimination test. I never knew it could be treated. I am so excited to learn more.

    • @marymdegeorge2694
      @marymdegeorge2694 Рік тому

      I noticed as well. I actually had to turn off the sounds of background noise midway through the exercise. It was almost “deafening” to me.

    • @bcase5328
      @bcase5328 Рік тому

      When I was getting formally tested for auditory learning difficulties, there was one test that almost had me ripping off the headset and breaking it by throwing it against the wall. That caught me by surprise.

  • @edwardbasham7800
    @edwardbasham7800 2 роки тому +66

    Wow, I just got several of those words wrong. I also realise that I can't make out song lyrics at all, I also really struggle to understand people when there are multiple people talking or I'm in a crowded room. Also, in way of asking people to repeat themselves, I've kinda just resigned myself to not fully understanding what people are saying and go on what I think they are saying most of the time. My life is starting to make a lot of sense. I could never get along in school, it was a really confusing place. I found it very hard to make friendships and only generally had one friend at a time since I felt really uncomfortable in groups since I couldn't understand what they were saying. I also really struggled with some classes where they were especially dictatorial, and got teachers getting angry at me because of it. Guess I need to follow this up..

    • @rainydaylady6596
      @rainydaylady6596 2 роки тому +3

      I hope you do follow this up. I'm wondering if this could help me in restaurants and places where I can be sitting across from someone and can't understand what they're saying. I did ok on her test, but I couldn't tell if the voice said slack or something else. Turned out it was slap. Good luck to you. 😊🖖💕

    • @sovrappensiero1
      @sovrappensiero1 2 роки тому +3

      I grew up much the same. I have moderate-to-severe hearing loss since birth, but the pediatricians ignored it because I was doing well in school (turns out I was just smart and good at teaching myself stuff...but it was deeply affecting me socially). My first hearing aids cost my parents $6,000 (in the U.S.) and the second pair cost me the same. Third pair I got 3 yrs ago, they cost me $3,000. Hearing aids are getting cheaper because they are more available than ever. If you live near a Costco and are member, you can get a hearing test done there. It's important to have a hearing test done by a professional. APD is one thing (I probably have some of that too, just from 15-20 yrs without "full" auditory input), but APD therapy won't help if you have untreated hearing loss. Hearing aids changed my life completely, for the better.

  • @bchbuni
    @bchbuni 2 роки тому +23

    Wow, like you I was the child in the basement, and then my son was diagnosed with auditory processing problems during 2nd grade and after treatment, the world opened up for him. He has since graduated college with a Horticulture degree while getting his realtor license. Thank you for your work, I just sent him your talk.

  • @michellemercy2715
    @michellemercy2715 Рік тому +1

    I constantly have this issue, I have to rewatch my coursework constantly. I paid thousands for tutors believing I wasn't taking to teaching styles. I have been told many reasons but ever this and now I am feeling hopeful.

  • @thecolorjune
    @thecolorjune Рік тому +1

    This explains a lot. So often I will stare at someone and be like, I have no idea what you just said.

  • @katiebelcher1593
    @katiebelcher1593 2 роки тому +4

    When I was a kid my mom thought I was Deaf- I was then diagnosed with this! I have issues at the comprehension level. Goes one ear out the other! Can be embarrassing