What is it like having Crohn's Disease? My Story

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  • Опубліковано 14 гру 2024

КОМЕНТАРІ • 141

  • @tejbz
    @tejbz  4 роки тому +31

    As I wrote in the description for this video I feel like I have been a bit to glass half empty in this video. I really hope that the video is going to help and inspire. And also just to let people know what i have been through. Also also. Rewatching it when editing I felt like I could have done it 100% better. But there is also a realness about doing this take and this video which I hope you guys will appriciate.
    Please drop a like and share the video if you enjoyed it!

    • @nicfoster4094
      @nicfoster4094 4 роки тому

      Thanks for making this video, i've been curious about Crohn's disease since you first announced it many years ago. Glad all is well.

    • @luckeynumber7
      @luckeynumber7 4 роки тому +1

      Thank you for making this video!! I was 14 when I was diagnosed too (30 now, so 16 years ago). Same symptoms except i didnt crap my pants, i remember feeling like trash and going to the bathroom and there was a ton of blood (14 year old me panicked). My mom took me to the hospital that day, eventually the figured out it was Crohn's, ended up taking prednisone too (the side effects sucked!). Its a miserable disease, completely fucked with my physical and mental health, I remember going into a fairly deep depression when i was first diagnosed. Had it under control for a long time, but a few years ago it flared up and nearly killed me. Ended up on a new medication called Stelara to get it back under control (similer to Remicade or Humira). Stay healthy! Stay Happy! Keep up the great work!!

    • @tejbz
      @tejbz  4 роки тому +1

      @@luckeynumber7 Thanks for sharing Eric! And thanks for the nice words.

    • @AlvinDema
      @AlvinDema 3 роки тому

      @@luckeynumber7 I’m 8 months late but I just saw ur comment. Just started with stelara 3 weeks ago, headaches like a mdf for about a week but hopefully it’s gonna work out later on. Gonna go do some blood work in 2 weeks and see how much of the meds are left in my blood and when I need the next dose. Good luck to u hope everything works out!

    • @himanisom9982
      @himanisom9982 18 днів тому

      I m 24 i got diagnosed with crohn disease i m all alone I don’t have friends plz someone tell me it will get better i m single no one marry with this disease

  • @FifteenPixels
    @FifteenPixels 4 роки тому +17

    Had it since 2007, Recently turned 25, but I started watching you when you were playing MW2 with SeaNanners you are a legend in the UA-cam scene. Wish nothing but the best for you ♥️

    • @tejbz
      @tejbz  4 роки тому +1

      Thank you so much hellraiser!!

  • @therandomman2
    @therandomman2 4 роки тому +3

    I was diagnosed with Crohn's Disease back in 2015 and I'm thankful that I started to have issues in my 3rd year in University rather than earlier. The nature of this disease is very isolating and having someone be so open about their experiences is extremely helpful for people that were diagnosed recently. I've been a fan of yours since your MW2 videos, and when I learned about your experiences from your first video it brought my respect for you to another level. Reading some of the other comments has been pretty interesting comparing some of the things I've had the pleasure of experiencing. I am happy to say that after a couple hospital visits and a few medication switches, I've been doing really well (on Stelara for anyone who wants to know)
    To anyone reading this who has been recently diagnosed with IBD and looking for support, know that it gets better. With all things, this disease especially, it will take time for you to adjust and figure things out. It may suck a lot right now, but know there are people who have made it through the worst of it and are there to talk.
    To you tejbz, I want to sincerely thank you for opening up and sharing your experiences. You're going to help more people than you know.

    • @tejbz
      @tejbz  4 роки тому

      Thank you for sharing Reid! and thanks for the kind words!!

  • @J-Stoic
    @J-Stoic 4 роки тому +4

    I got Diagnosed with Crohns about two years ago now, such an awful disease, i remembered a video proabably about 5-6 or more years ago where you said you had Crohns. You're the only person i knew other than my Auntie that had it and it definately helped me knowing you also had the disease and was still making youtube videos and living life. So glad you're getting Crohns a bit more well known! Stay Strong, Stay Safe, keep gaming!

  • @hughjazz4642
    @hughjazz4642 2 роки тому +1

    Tejbz,
    Thank you so much for sharing this wonderful video. I have nothing but respect and admiration for you and your story. I was also diagnosed with Crohns Disease when I was 14 years old. I am now 26 years old and I still get emotional/teary eyed when talking about my journey with Crohn’s. Not because I am weak or ashamed, but because I am reminded of all the unfortunate obstacles I’ve had to overcome. Not only that, the people around me who were also affected by my disease. It is sometimes difficult to accept that this is my reality. Some days are better than others. So, you make the most of those good days and you fight back on the not so good days. When it’s bad, it’s bad. But when it’s good, boy is it really good. This chronic illness has humbled me, and I’d like to think it has made me a better person. I wish I would have come across this video back then when I was just diagnosed. I’m sure it would have helped, tremendously. Even with Crohn’s disease, I’ve managed to experience wonderful memories and will continue pursuing a life that is happy & fulfilling. Living with Crohn’s disease is difficult, but not impossible. Shout out to all my crohnies out there, rooting for you all

  • @Hankkyful
    @Hankkyful 3 роки тому

    Got the diagnosis a month ago and now undergoing my first treatment. I remembered that you uploaded a video about Chrons some years ago and ended up finding this newer video.
    Thank you for being so open about your experience, it helps more than what you realise.
    Ett stort Tack! Du är bäst!

  • @LetsPlayGamesBadlyUK
    @LetsPlayGamesBadlyUK 2 роки тому +1

    I’m 29 years old. I have lived with Crohn’s for over 15 years. It took health service in the UK 2 years to finally diagnose me when they eventually did. I used to think I had it bad. But, 15+ years later, I’ve managed to avoid any surgery, even when I probably should have gone for it.
    Thank you for this honest and open video. I won’t lie, I did get pretty emotional throughout it. But it’s great to see someone so open and positive about the disease. Thank you.

    • @himanisom9982
      @himanisom9982 18 днів тому

      Plz contact me i m 25 today diagnosed with crohns

  • @MIIZT
    @MIIZT 4 роки тому +7

    Tejbz I've been watching you since late 2009/early 2010, it's still crazy that you'll never understand how much you've shaped some of our teenage years, specifically mine.
    I heard you had Crohn's a couple years back which completely switched my perspective on you, I respected you so much more since I've seen first hand what Crohn's can do to someone (my aunt was diagnosed with it around 12 years ago, she's like a mother to me) To do and achieve the things you have over your whole time on the platform whilst dealing with Crohn's is AMAZING! I thoroughly enjoyed the upload and look forward to more potential stories in the future, you're a very strong minded individual and I just want to say that I admire you. Much love my friend, thank you for all the content throughout the years 💜

  • @Domoguy13
    @Domoguy13 2 роки тому

    Going through a lot of similar experiences with my own journey with this disease. I watched you back in the days of MW2/3. Thank you for this time and openness, it gives me and others a lot of hope.

  • @xjr15
    @xjr15 3 місяці тому

    I'm not sure what to say here. I don't have anything like your disease, but I can tell you that you are an inspiration to me and to anybody who hears your incredible story of pain and struggle and triumph. I am getting old but I have never had a very serious chronic condition like yours to deal with and so I feel very lucky but also a bit guilty. I have had it so easy compared with you, maybe you will inspire me to do more with the time I have remaining on this earth. I wish you all the best and I am glad to have somehow found your video. You are an amazing human being and I am so glad to have met you. You are an exemplar of courage. Be well, my friend. And always be kind to yourself first. You deserve love and kindness and support. Thank you for sharing your story with the world

    • @tejbz
      @tejbz  Місяць тому

      Thank you so much! And Stay healthy and positive. Appreicate you popping by!

  • @10Misterman
    @10Misterman 4 роки тому +1

    Big props to you for making this video and sharing your experience even though it was a very difficult one. I'm sure it'll help tons of people Crohn's or not there's lots to take from your resilience and things you learned. As always it's good to see you are happy and healthy!

  • @Mr_Snackz_DK
    @Mr_Snackz_DK 4 роки тому +1

    That was a hard watch Tejbz.. Not because it was done badly, but holy crap you have been through a lot. Being a teenager and young adult going through all that is nuts. You must have a lot of mental strength because of it. Thanks for sharing, excellent video and I hope it will help other people hit by that awful disease💪

  • @Cinnamon-Pancake97
    @Cinnamon-Pancake97 4 роки тому +7

    I like this personal side of this! It's good to see you being open!

  • @BurntToasTJ
    @BurntToasTJ 4 роки тому

    Thank you so much for sharing this.
    My commander in the army was diagnosed with Crohn's while we were serving and he didn't talk much about it.
    I learned a lot from this video. I hope things are going smoothly now and continue to into the future!
    Keep up the great content!

  • @hunterwebster46
    @hunterwebster46 4 роки тому

    I’ve been watching your videos since MW2 and I’ve always known you have Crohn’s. I was diagnosed with Crohn’s earlier this year. It was hard to embrace, but definitely coping with it better. Enjoyed the video. Keep it up!

  • @truluvw8ts73
    @truluvw8ts73 3 роки тому

    Thanks for this video. I have Ulcerative Colitis and also have a stoma bag that I also had through an emergency surgey. It's a traumatising experience and I'm so happy to hear that you chose to talk to someone. It has been essential to me. Hope you are doing okay 🙂

  • @savvvytyler
    @savvvytyler 4 роки тому

    Been subbed for probably 10 years. You were always the most fun/funniest early UA-cam CoD commentary creator. I think I remember you mentioning this before, but didn’t realize how impactful it is. Awesome video. Good luck. Good to see you still dropping videos and in good spirit.

  • @MrSamoannn
    @MrSamoannn 4 роки тому +2

    Just wanted to say. Thank you for your bravery and courage to speak about your personal experience. And thank you for never giving up. Thank you to your friends and family for being there for you every step of the way. A lot of people don't have that support but they were there for you. Thank you for this useful information. I don't have this disease but I my recent ex was diagnosed with disease. Although we dont talk anymore. This gives me an insight perspective on the experiences she goes through and I respect her and respect you for being strong and handling this throughout your lives. I remember watching your channel back during mw2 times with your "TO THE FACE TO THE FACE" intro 😂🤣. Awesome times man. Just reminds me how old I am now too shit lol. Anyways, god bless you man! It never gets easier, You just get Stronger!😎🤙🙏💙

  • @radrngr
    @radrngr 4 роки тому

    Thank you for this. I have followed you for years and I shared this with my daughter (18) who was diagnosed about 3 years ago.

  • @FrankTheBuffalo1113
    @FrankTheBuffalo1113 4 роки тому

    Thank you for sharing your story, it must have been very difficult for you to do this but i have an insane amount of respect for you and your channel brings me back to simpler times. Keep being you!

  • @LoneStallion
    @LoneStallion 2 роки тому

    I have severe depression so this is a big help (In terms of health and the strength to keep going) . Keep it going bro

  • @AyoJeezy
    @AyoJeezy 4 роки тому +1

    Love you Tejbz Been watching you since I was a thirteen year old and I’m 23 now! I applaud you for making this video.

    • @tejbz
      @tejbz  4 роки тому +1

      Thank you very much!!

  • @scorpio13cat
    @scorpio13cat 2 роки тому

    I hope you’re doing ok. I have Crohn’s as well and have been very sick for almost a year now, after having been in remission for almost 7 years. It’s a struggle most people cannot understand. ❤

  • @Nammerothchannel
    @Nammerothchannel 4 роки тому

    Tobias/Tejbz you're so brave to share all of this story, honestly, it's gotta be really hard and like you said 8 months in the process, I'm really glad you've posted it here today. I always feel like no-one really understands what I've been through, I even remember watching the video you talked about Crohn's in 2014 when it came out, not knowing I'd get diagnosed with Crohn's a few years later in 2017, I've since gone back and watched that video here and there because it's good to hear someone's perspective that understands. I even asked on your stream questions about Humira to you, I think it'd be very early 2018 when I was on it, and yeah you just willingly and openly answered the 2 or so questions I had there and then. Yeah I just feel like I can relate on certain things and almost forget how bad it truly was, maybe as a coping mechanism, but just happy to be alive. I've been to a talk before with others that have it and everyone there was very old, and I'm 23, I always feel like I'm the outlier in the hospital for my age, even though most are diagnosed ages like 12-35, most there at the talk were 50+. It's an inspiration to see someone that I've grown up watching and listening to for more than 10 years with that same inspiring passion and enthusiasm through all that time. I know you don't know me but I do look up to you as like a wiser, older sibling. The shape of your body too and the person you've become, physically and mentally strong in both ways, again, an inspiration. I don't know how you did it, I still struggle with trying to put on weight myself, it is hard, and friends don't understand, but it's amazing to see someone cope with it so well after all you've been through. I'm not saying you're some transcendent fantasy superman of the world made of the perfection that you must portray, but to me you are an amazing human being, one of the best I know and I like how down to earth you are as a person, that's what I've always loved about you and stuck with you, keep being you, and people will admire you and your story.
    I'd share my story with Crohn's too but I think it'd look like an essay so, and wouldn't wanna make it about me.
    I'm glad you're able to talk about it, and put it out there for someone like me who's needed to hear it. I'm sorry for all that you've gone through, I'm glad you're able to find happiness in your days still after being through all what you said and more. Keep doing what you're doing and being who you are. :)
    Also biiig sidenote, if you haven't seen it. I'd recommend the show The Last Kingdom, it's very highly rated, it's about Vikings invading England 9th century and the character Alfred in the show has Crohn's and that get's portrayed very well and that's an inspiring story too, I know it's a big sidenote haha but yeah highly recommend you watch it if you find the time.
    Thanks for this video, it means a lot to me, and it's nice to see someone being real, it didn't have to be "perfect", this is authentic and amazing in my eyes. I'm sure I'll come back to this video many more times too. I hope this message finds you well, I hope it doesn't make you sad, I hope it makes you happy that you've made me happy and been a part of that happiness in my life for many many years.
    Hope the best for you Tobias, always will. Thank you, I'd say it a thousand times if I could.

    • @tejbz
      @tejbz  4 роки тому +1

      Hello there!
      I am trying not to write too long replies.
      BUT Yes I gotta watch that show. Im watching norseman right now. And they are dumb vikings to I think that will be perfect to watch some more of that timeperiod afterwards hah.
      Thank you so effing much for the kind words. Today its been overwhelming. Thank you so much for sharing your story with me!

  • @theoctopuscandlecompany7457
    @theoctopuscandlecompany7457 2 роки тому

    I’m from nyc lived with crohns all my life great to hear your story Captain you inspire me to fight on

  • @klyftig
    @klyftig 4 роки тому

    Tack för videon tejbz, har bara hört namnet på sjukdomen men aldrig riktigt förstått hur den påverkar en. Du verkar som en riktigt fin och genuin person, hoppas att vi ses nån gång i framtiden så jag får säga det till dig personligen.

  • @go_gorilla_go
    @go_gorilla_go 4 роки тому

    Hej Tejb, been around since MW2 I think, watching yourself and Nanners and Hutch during my high school years. I remember you mentioning this years ago, really good video dude. I hope it serves people well and can be comforting to others going through similar. All the best man.

  • @KarlGaff
    @KarlGaff 4 роки тому +1

    Bro I can honestly say I wouldn't of been able to do what you did at that age, I have so much respect for you. Been watching since the old to the face to the face days. I'm 25 myself now, feels weird after all this time, but we're all here for as long as possible in this community to support :) EDIT: Watched the whole video & makes me realise I need to appreciate my life more & how lucky I am!

  • @MrBassem96
    @MrBassem96 4 роки тому

    Thank you for sharing your story with us, I can understand what you are going through, having a chronic illness is no fun, I wish u all the best tejbz.

  • @MichaelGibson
    @MichaelGibson 4 роки тому +1

    I've watched your videos for I don't know how long....never commented. But this video was so personal to me too as I have a similar story. It's so hard to talk to anyone about it I agree. I feel for you and applaud strength. I thought mine was mild as well but I went from taking pills to a shot a month to now doing it weekly. Keep healthy and I will too. Cheers.

    • @tejbz
      @tejbz  4 роки тому

      Keep healthy my friend! Glad to have you around after all these years!

  • @TickTockTaxi
    @TickTockTaxi 4 роки тому

    I remember you first talking about all of this while I was going through the process of diagnosing my own stomach issues. I'm really glad you're doing well, Tejbz!

  • @mannykathy88
    @mannykathy88 4 роки тому

    Hey Tejbz, its Manny from the sub games on the weekend, had a ton of fun playing cod, been a fan since Machinima days.
    To speak on experience, I actually had to rush my wife to the hospital once for a colon infection (diverticulitis), and I don't remember her ever being in so much pain. I've watched her give birth to our 2 children and yet I have never seen her in as much pain as she was in during that visit, they had to force tubes down her nose and clear her stomach, I've never been more worried in my life. Before it happened, I never even heard of situations like this but come to find out that it happens to a lot of people. Anyways, stay healthy Tejbz, keep the content up, wishing you all the best.

  • @JosueIsFunnyman1
    @JosueIsFunnyman1 4 роки тому

    Damn man just watching this i can tell youre a strong person both mentally and emotionally, i can see you had it rough in your early years but keep being strong and if you ever need a break take it!

    • @tejbz
      @tejbz  4 роки тому

      Thank you!!

  • @aaronhorn5190
    @aaronhorn5190 4 роки тому

    Tejb, I watched all of your MW2 videos growing up through high school. In college, I was hospitalized and diagnosed with Crohn's Disease. You were the only person at the time I knew who had Crohn's Disease. Your videos and personal stories have continued to inspire me. Prayers and blessings to you in your journey with Crohn's.

  • @Mr_Mooo
    @Mr_Mooo 4 роки тому

    This was a great honest video about a very difficult topic, and something that doesn't get a lot of exposure. Talking about the hard things in life is the best thing you can ever do. I too hope this inspires others to reach out.

  • @mateuscanobeneton3293
    @mateuscanobeneton3293 4 роки тому

    Hey Tejbz, what a great video. I have a very close friend of mine that got diagnosed with crohns desease and I can say that it was hard for me to watch and not have anything in my power to make her better. However what YOU had to go through, we can not even begin to imagine.
    Openning up like this and showing every guy out there that it's okay to show feelings and tell your family and friends that something is wrong with your body can be the difference between a diagnose and a much sadder and worst outcome.
    Great video, hope that you never have to go through a crysis again, and i'm really glad you are ok now!
    Hello from Brazil, and keep up beeing this awesome person and player!

    • @tejbz
      @tejbz  4 роки тому +1

      Brazil!! I went there in flight sim. and it looks so awesome. I wanna go sometime!
      All I can say is - thanks for the kind words! Really means alot!

  • @Eleanor-us2qg
    @Eleanor-us2qg Місяць тому

    Thank you for sharing your story ❤❤

    • @tejbz
      @tejbz  Місяць тому

      You are so welcome!

  • @walkinglibrarian
    @walkinglibrarian 4 роки тому

    Hi my name is leah, I have Crohn's disease. Thank you for sharing your story even if it was hard. I am impressed with how fast you were diagnosed. This life is tough and can be embarrassing but I get the feeling you are a strong minded person. Also I detect an accent.
    Edit: oh Sweden

  • @Mahakasmieslapsi
    @Mahakasmieslapsi 4 роки тому +1

    Thanks for sharing tejbz

  • @basedjaguar4649
    @basedjaguar4649 3 роки тому

    I feel u my man I've had crohns disease for 2 years now and I'm keeping hope prays uo for u man🙏🏼

  • @AwakenedAtlas
    @AwakenedAtlas 3 роки тому

    Thanks for sharing your story man, I'm 28 now, I've had Ulcerative Colitis since almost 3 years ago now. It's rough at first, but you learn to live with it and what you can do to manage it. I'm almost certain for me drinking caused the worst flare of my live in early 2020, I've given it up almost entirely since then. I came within a few hours of having my entire colon removed, drinking is just not worth it for me. I'm on humira now too.

  • @JitterEye
    @JitterEye 4 роки тому

    I remember hearing you mention having Chrohn's disease before, but I never knew what it actually is and the struggles it has put you through. This really gives an insight and I truly respect how you've managed to push through and come out with such a great mindset.

  • @lawfx8449
    @lawfx8449 3 роки тому

    Thank you for sharing this video Tobias... my prayers will be with you, i hope you get everything you deserve

  • @MsSandman426
    @MsSandman426 4 роки тому

    Great and inspiring video, I’m 22 and was diagnosed when I was 16, for the past 4 years im struggling with butt absceses, I already had 14 surgeries because of that and next month it is supposed to be last one, after 4 horrible years of pain and body waste pouring out of my .. It is terrible disease but managable, it also helps you to appreciate and value things more and be more kind and thoughtful person, at least happened for me :)
    Anyone with IBD or any else non IBD related illness, keep fighting, stay positive, things will surely get better !!!

  • @kasperjensen1218
    @kasperjensen1218 4 роки тому

    I have chronic faucet syndrome, it’s not all the time, but my back hurts so much I cant do anything when it flares. It’s not really something anyone understands (besides my mom) since it’s only sometimes, so it can be hard to explain why i have to go home/cancel plans. It’s not nearly as bad as crohns, but chronic pain sucks man.. Ive been following you for a Long Long time, and I remember your first video about Crohns. It had such a big impact on me, and remember crying when you did in the video. Thank you for sharing, as much as it sucks, it’s nice to have someone who knows your struggles.
    Ps. i know it’s not a competition to be most ill, but I really dont mean to imply I know even Half the struggle youve sent through.

    • @tejbz
      @tejbz  4 роки тому

      Thank you so much KJ!
      Im just glad I got do to an impact on you! Keep fighting and stay stronk!!

  • @Mr_Bobulate
    @Mr_Bobulate 5 місяців тому

    Actually getting the colonoscopy tmr! Finishing prep, and looked here for any info or help, and saw this. GI already prepped me with a chronic illness specialist, and I have been told I have Crohn’s by 2 rheumatologists, this is just the confirmation. My gut is fine, but my stomach has demolished my health. I feel excruciating pain and nausea, that slowly goes down my body, and in intensity. My throat has closed up slightly from GERD and gastritis and from that I have lost the ability to vomit. Conversely, I am severely constipated, and life kinda sucks. I have rheumatoid arthritis, and respond well to Humira, so I have high hopes. At 20 my life has kinda been turned upside, but this has been nice, thanks :)

    • @tejbz
      @tejbz  5 місяців тому

      I really hope you start feeling better friend! CD is rough but I believe in you!!

  • @tusitc
    @tusitc 4 роки тому

    I remember from back in the day what you were going through on the surface, but to here what was going on behind the curtain; you’re a superhero dude.

  • @heronheart6100
    @heronheart6100 4 роки тому

    I was diagnosed with Ulcerative Colitis all I did in 2011 was play Counterstrike Source haha. Thank you for sharing your story, its rough having IBD It's great so many are sharing their stories

  • @DeFySniping
    @DeFySniping 2 роки тому

    Hey man, I used to watch your MW2 vids all the time back in the day, your story hits home to me as I've had crohns since i was 16 and im 27 now. Had 6 inches of my ileum removed when i was 24 and had complications after the surgery and had to have an emergency resection after that due to bleeding in the stomach. I stayed in the hospital for 3 weeks with an NG tube in my nose going down to my stomach to suck all the fluids up and was being fed through a tube going through my arm into my chest. i weighed 104 at my lowest. I couldn't eat or drink for 3 weeks straight, every day was the hardest day of my life as the doctors didn't understand why my stomach wasn't working. I passed kidney stones in the middle of that hospital stay too and having that pain on top of the pain from the surgery is not fun. I haven't been able to work for the last three years and have been legally disabled. I started taking the biologic called Stelara in March and am just starting to feel some relief after 7 months of taking it. I've had 3 surgeries for pilonidal abscesses/cysts on my tailbone as well, and i heard crohns gives you a higher chance of getting them. My kidneys have an abnormal build up of calcium and i've had multiple procedures for kidney stones. Crohns gives you a higher chance to get those too. It really is an awful disease and I really appreciate you sharing your story. The times I've broken down in tears in my room alone is too many to count, but still have my whole life ahead of me, so there's reason for hope. You'll be in my prayers every day man, take care!

  • @JezzaTheChamp
    @JezzaTheChamp 4 роки тому +1

    Also, I don’t think this video was pessimistic like you said in the description. It was just real, open, and honest.

    • @tejbz
      @tejbz  4 роки тому

      Thank you!!

  • @iAfricanRicebowll
    @iAfricanRicebowll 4 роки тому

    Been rockin’ with you since mw2 man! Appreciate the vulnerability you’re a fighter!

  • @SiggEye
    @SiggEye 4 роки тому

    Super interesting video, Tejbz!

  • @SharpSteelz
    @SharpSteelz 4 роки тому +1

    Whoa cool to see Tejbz! I've made some video's on having crohns too, the abscesses had to be the worst part for me at least. Being on Remicade made things a lot easier then I got moved to Inflectra which is like the same thing

    • @tejbz
      @tejbz  4 роки тому +1

      That is awesome buddy! Yeh abcsesses can suck my ass!!

    • @SharpSteelz
      @SharpSteelz 4 роки тому

      @@tejbz for real! I had to sit on this poofy donut thing so I could sit without it hurting at the time. I'm glad Remicade stopped them and let my body heal

    • @SharpSteelz
      @SharpSteelz 4 роки тому

      Anyways your stuff is so inspiring man! Sounds like crohns was really tough for you. Makes me feel fortunate about my experience since it wasn't so bad. Your channel inspired me to make gaming videos and it's been a lot of fun! I'll have to make a video covering my crohns story at some point

  • @0liv3rP
    @0liv3rP 4 роки тому +2

    First time I'd heard anything other than the name of the disease was one of your videos, probably from mw2, where you mentioned you have it. It was many years ago!
    While I don't have crohns, when I was 22 I noticed blood when I went to the toilet. I panicked and just hoped it would get better. Over the next 6 or 7 months I got more and more symptoms, I felt worse and worse, all while pretending everything was fine. Put myself through agony at work every day, sneaking off to the toilet hoping nobody would notice I was gone all the time, a combination of being shit scared and bloody embarrassed... Something was wrong and it was coming out of my butt, just the worst thing I could imagine!
    I finally grew a pair and asked for help. I went to the doctor. While waiting to find out what was wrong with me I told just 1 person. And my step mum found a letter from the hospital. I let her tell my dad, so 3 people knew something was wrong in the whole world.
    While waiting for a diagnosis after having camera test (no painkillers or anything - they didn't search far initially thankfully) I had a family reunion and found out my cousin and grandad both suffered with something called ulcerative colitis. Coincidentally, I only found out about this disease a couple weeks earlier because a friend of a friend had it. Still, I pretended I had never heard of it, but realised the obvious.
    A couple weeks later I received the diagnosis, that of course I had ulcerative colitis too.
    All of a sudden I felt like that validated the disease and all the embarrassment went away immediately. I was no longer ashamed, and not particularly scared. I was happy telling people what I'd been going through.
    Ups and downs along the way, and luckily I haven't been anywhere near as affected as you have, no stoma for instance, but I remember thinking if I did have one, my life would be ruined. I once took a turn for the worse and it got to the point where I actually wanted a stoma, if that could make me feel better.
    These days I'm generally fine, I take my tablets and live a normal life, and I eat what I want. Sometimes I know it will affect me but I can control the disease and just weigh up the pros and cons and make a decision that I'm happy with.
    It doesn't control me like it did when I kept it to myself, so if anyone else is scared or embarrassed like I was, just ask for help. It makes a world of difference.
    A year or so ago, you did a charity stream that was to raise money for a crohns charity, and at my request, you broadened that to raise money for colitis as well, so once again... Thanks.
    Watched every second of the video, and I hope it can help someone
    X

    • @tejbz
      @tejbz  4 роки тому +1

      Im moved by your comment. Like I am from alot of people here. All I can say without writing another essay is - thanks for the kind words. And stay very very strong! You aint alone!

  • @Wasab58
    @Wasab58 4 роки тому

    Want to say I been here since day one. When I was just a little boy. Your one of my favorite people. I'm glad you opens up. I appreciate you and your constant. Maybe one day we can get into the same Cod lobby. Bless up man. Keep the awesome content coming. 🤘🏼

    • @tejbz
      @tejbz  4 роки тому

      Thank you so much!
      (pssst you can - on sundays I do subscriber lobbies) :D

    • @Wasab58
      @Wasab58 4 роки тому

      @@tejbz 🤦🏼‍♂️ I'm definitely looking out for Sunday then ahaha 🤘 dude I just gotta say one of the hardest times in my life when I was in highschool you were always to "To the face to the face" and that always made me laugh. Ahaha man I'm glad your still doing this youtube stuff.

  • @sarahlund-nt3kw
    @sarahlund-nt3kw Місяць тому

    I have Irritable Bowel Syndrome, and every time I've had a new lover, I've always been quite open about letting them know about it, incase they ever witness me having a flare-up. Also, I get IBS brain, when my IBS flares up. You can't always think straight, once you're in physical pain with it, and I definitely can't eat meals, when unwell with it. I have to eat only light food, like yogurt, soup, noodles, ice cream, etc, when I get really unwell with it. I often make jokes about my IBS symptoms. It just helps me a bit, to be able to laugh about my own illness.

  • @kss914
    @kss914 4 роки тому +3

    Humira is such a miracle drug. I’m a doctor in the US and it’s so sad to see how many of my patients love it but are unable to afford it.

    • @tejbz
      @tejbz  4 роки тому +2

      Hello! Yeh. Hearing and learning about medicalcosts in the US (I wanted to move there a few years ago) makes me really concerned.
      afforable healthcare is a human right.
      Super cool you found this video!

    • @kss914
      @kss914 4 роки тому

      @@tejbz I've been watching you since i was 17 bud! almost 10 years later , now im all grown up!

  • @JezzaTheChamp
    @JezzaTheChamp 4 роки тому

    I’ve known you’ve had this since you’ve mentioned it throughout the years but thank you for sharing it again.

  • @ParanormalSchkitzo
    @ParanormalSchkitzo 4 роки тому

    Awesome video, love that you share this 🔥

  • @Jonathan-wu9vw
    @Jonathan-wu9vw 4 роки тому

    thank you for sharing your experience, man!

  • @carven1
    @carven1 4 роки тому

    Great video Tejbz!

  • @maxtvtvtv8623
    @maxtvtvtv8623 4 роки тому +1

    Great video, thanks for sharing

  • @Blazeomir
    @Blazeomir 4 роки тому

    Love you Tejbz

  • @jakenorman5201
    @jakenorman5201 4 роки тому

    Hi Tejbz - just thought I would mention as a doctor, there's good reason we don't always put people to sleep for things like colonoscopies. They do carry risks and can be dangerous; and although they are rare, these risks are much greater in people with older age or other health problems. We always try to do the best thing for our patients - if we can keep someone comfortable on just nitrous and IV pain relief then that's safer than a general anaesthetic and lets people recover much quicker, plus it usually works well. Really interesting to hear your story though, wishing you all the best.

    • @tejbz
      @tejbz  4 роки тому

      Hey Jake!
      I totally understand that there are medical reasons. I maybe could have phrased myself differently. I think more information to the patient would have been great in my experience when I was younger.
      Thank you so much for reaching out. And hopefully most people that wanna go Zleepy zleep are allowed to :)

  • @colinclarke9379
    @colinclarke9379 4 роки тому

    thank you for sharing tejbz! always wondered how you were doing with your condition. very proud of you man. truly inspiring! you’re very blessed to have great healthcare in sweden. in the united states this situation would likely put an entire family in the poorhouse.

    • @tejbz
      @tejbz  4 роки тому

      Yeh. Socialism rocks!

  • @xUNITEDxCHIKENxKILLR
    @xUNITEDxCHIKENxKILLR 4 роки тому

    i remember loving your call of duty videos so much when i was a kid. i had to deal with ulcerative colitis (very similar to crohns) when i was in high school. i had to have a stoma and eventually a j pouch and now i’m dealing with abscesses and a fistula. thank you for making this video, i love you. keep making videos forever pls

    • @tejbz
      @tejbz  4 роки тому

      ah! Sucks to hear friend. But im glad you enjoyed the video. Stay healthy and hit the snnipes friend!

  • @Bullseye_wb
    @Bullseye_wb 4 роки тому

    I remember those older days when you were parting a lot. Glad your in a good place and doing well.

  • @johnkase724
    @johnkase724 4 роки тому +1

    I was diagnosed with crohn's when I was 10ish, and I completely understand it's a rough one.

  • @ariesdragon4950
    @ariesdragon4950 3 роки тому

    I have Crohn's diseses and my story is a little different but ur story is inspiring to me.

  • @KevinKnight91
    @KevinKnight91 3 роки тому

    Thank you

  • @MrLarsagne
    @MrLarsagne 4 роки тому

    Very interesting!

  • @DeimosPC
    @DeimosPC 4 роки тому +2

    For the past year I’ve been having stomach ache, nausea and I always feel like I need to shit. The doctors here have done blood tests and scans but they can’t figure it out. I wonder if this is what I have..

  • @bigshow379
    @bigshow379 4 роки тому

    Great video! I have had chrons disease for 8 years im currently in the hospital for a flare getting steroid injections been in the hospital for 4 days so far not sure when I'm going home.

  • @deruntergangvannederland1868
    @deruntergangvannederland1868 3 роки тому

    I have crohns to had since i was 15 im now 40 had 5 surgeries had a stoma still struggling with crohns because mu biological isnt working enough anymore , i have always had good and bad periods , but now that im getting older i still feel like 60/65 years is old enough for me cant see myself being 70 and having extra problems from being old and crohns , sometimes is see older people with crohns and think hopefully this will not be me , u just get tired from going to the hospital so many times just to stay alive.

    • @tejbz
      @tejbz  3 роки тому

      STAY Alive marco. There is hope. Maybe soon too for a cure. Who knows. Crohns friends 4lyfe you know!!

    • @deruntergangvannederland1868
      @deruntergangvannederland1868 3 роки тому

      @@tejbz im staying alive i just dont want to get old and still have these problems and have to go to hospital every week just to stay alive because my own immunesystem is killing me.

  • @Knighttus
    @Knighttus 3 роки тому

    What medecine do you take now?

  • @walkinglibrarian
    @walkinglibrarian 4 роки тому

    A g-tube? NJ tubes are brutal.
    I love the way you say humira. I am on humira too. Have you been checked for a stricture?

    • @tejbz
      @tejbz  4 роки тому

      Not in a while no :)
      I reply to you other comment too : Thjank you so much sir! :)

  • @mevlidasofic9131
    @mevlidasofic9131 2 роки тому

    Good video. Thank you and I am sorry obout your cron,s. My son has crons to

  • @dnlgby
    @dnlgby 3 роки тому

    You are great.

    • @tejbz
      @tejbz  3 роки тому

      Thank you! :) I can tell you are too!

  • @GabzitoHD
    @GabzitoHD 3 роки тому

    Sitting here drinking 3 litres of Laxabon and watching this, got my colonoscopy tomorrow

    • @tejbz
      @tejbz  3 роки тому

      damn! I hope it went well!

  • @96manuel96ify
    @96manuel96ify 4 роки тому

    Tack!❤

  • @Sabari633
    @Sabari633 6 місяців тому

    I was diagonosed with chrons disease when I turned 13.Now my age is 17 and I have gone through your same instances........ Currently taking biologics but my greatest fear is can I able to grow or get some height? . I am asking this since I ' m too short... Like 158 cm......

    • @tejbz
      @tejbz  6 місяців тому

      Hey friend! I am not the best person to ask. That is a tricky question. I would talk to your doctor directly and ask. But I think its never to late to get some help with it. Since crohns is very draining I think sometimes you do stick the same height for longer even after puberty, but I think there might be options out there. Stay strong!

    • @Sabari633
      @Sabari633 6 місяців тому

      @@tejbz thnks for you reply...

  • @djviperd25
    @djviperd25 4 роки тому +4

    Know your your struggles, I have ulcerative colitis, so far I have had a full bowel removal and a anal stump removal and left with a colostomy bag now for life.
    It’s still a daily struggle but at least I’m not bleeding from my rear anymore

    • @tejbz
      @tejbz  4 роки тому

      Hell yeh no more bleeding!
      Take care mah strong IDBbro!

  • @adammillington5053
    @adammillington5053 4 роки тому

    ❤️

  • @adrianelefalk5061
    @adrianelefalk5061 4 роки тому

    🙏🏼🙏🏼🙏🏼

  • @adamhowarth8497
    @adamhowarth8497 4 місяці тому

    Good lad, them tubes are horrible, oh no, you ended up doing it...🙈 distended... been there, done that...🤣

  • @PaleVoyager
    @PaleVoyager 2 роки тому

    So it's more like To The Butt To The Butt, then.
    (it's okay, I also have crohn's. I hope it's gotten better for you rather than worse)

  • @TheForistality
    @TheForistality 4 роки тому

    Damn, when it comes to muscular composition, you have won a genetic lottery. I have IBS and I look like a holocaust prisoner.

    • @tejbz
      @tejbz  4 роки тому

      Yeh pretty lucky there. I have also always been working out. Execpt when I have been feeling really bad.
      I do bet your holocaust body looks hella sharp in some nice clothes. And nobody cares anyways whats underneath :)

  • @Knighttus
    @Knighttus 3 роки тому

    Mr beast suffers from that too :/

  • @fredric2910
    @fredric2910 4 роки тому