Prednisone Side Effects
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- Опубліковано 31 гру 2021
- What side effects have you experienced from prednisone?
I have been on and off prednisone for many years now. The side effects can be really scary but there are benefits to taking prednisone (corticosteroids). The long-term effects of prednisone can be very scary. Be sure to talk with your doctor to make sure you are taking this medication properly. Lately, I have been struggling with sleep and I have the moon face developing. These side effects are not as scary but they can take a toll on your mental health.
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My name is Samantha Wayne and I have been creating advocacy videos on UA-cam since 2009. This channel was formerly known as Live Hope Lupus and was created in order to start a community for those living with chronic illnesses. In September 2019, I transitioned to a plant-based diet and I have found my body is responding well to it. Along with my lifestyle change, I am learning to alter my focus more on the positive. My current content will focus on my healing journey, what food I am eating, and everyday life. I will still be posting an occasional update about my health. I hope you all are ready to join me on this crazy journey of healing. We are all learning how to navigate this life together. If you have subscribed, thank you! I appreciate your support and look forward to talking with you all in the comments.
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DISCLAIMER: This content within this video is not medical advice. The purpose of these videos are for general education and to share my own experience. This content should not be used to self-diagnose or self-treat any health condition. Please consult a healthcare professional before attempting anything in this video.
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Very informative video! Keeping it real! 👍
Hi Samantha, I have watched your videos for a while and I just wanted to say that you gave me the inspiration to start my own youtube channel around my autoimmune conditions as well. I too suffer from lupus and a few others but I was scared to begin a channel and not have the energy to continue to make videos. As you know there are days we hardly function at all. BUT watching your vidoes and you showing up as much as you can have helped me get started. Keep making your videos and speaking the word!
Keep going samantha we all love you !! Warm greeting from morocco 🇲🇦
Happy New year🎊wishing u much blessings in 2022
Thank you for talking about this
Thank you for this vid!
My last short burst of pred was a few months ago to help with SLE symptoms while I changed job roles.
My word. I’ve been in it before and disliked it, this time the side effects were really intrusive.
The worst was titrating down. Sweats, shakes, nausea, just awful. I was sitting next to my new boss and shirt went from dry to soaked and nasty looking in less than 20 mins. It sort of forced the Lupus discussion!
Hope you start feeling a lot better soon.
Love this and love you ❤️❤️ I’ve only ever been on prednisone in short spurts and had cortisone injected into joints and I’m so grateful for that. Now though for the first time I’m in a place where i can’t wean off without disabling symptoms resurfacing and I’m feeling scared and helpless with the uncertainty. Coupled with the anxiety and changes to my appearance I’m like WHEEEE. I had to restart sleeping meds again too. I’m losing the trust in my body I had gained back in two years on cellcept. Reading all of your stories and hearing yours Sam is making me feel less alone- one of the first comforts I’ve had with my whole situation because this disease is so isolating ❤️ thank you brave souls, hopefully what I’m dealing with helps someone too
Thanks for commenting and supporting as always Julia! I appreciate you! ❤️
I'm glad you are still doing the medical videos. That's why I subscribed to your channel and continue to come, although I enjoy your lifestyle ones as well. I love prednisone but hate the taper as get so fatigued and a few days of depression. I am tapering to 2.5mg from 3mg starting today so should be doing better in 2 weeks.
I hope it goes well for you!
I hardly ever comment but I found your channel yesterday. I have been living with lupus since 1986. In March, it will be 36 years. I have been on death's door twice. The second time was about 20 years ago. I was on 3,000 mg of prednisone for 3 days, then off and then 3 more days of 3,000 of prednisone. This went on for quite some time. During this time, I develop prednisone psychosis and went blind. Of all my pains, the mental pain from prednisone was the worst. Finally, started Cytoxin. Went in for intravenous Cytoxin every month for a year. The good news is I am 63 and doing quite well. I have not been on prednisone for 20 years and am only on Plaquenil now. No matter how hard your lupus is right now, things can get better. I really have not had a really bad flare since the Cytoxin.
Wow, 3,000 mg is a lot! I can’t fathom how that felt. So good to hear the Cytoxin is working for you!
Prednisone. Hate it. I was so emotional and never slept.
You should look into an extreme elimination diet like carnivore or Lion diet. I have several autoimmune disorders and other health problems, and carnivore is helping everything. I feel amazing. Thanks for you video and information.❤
Thank you for making these videos and continuing to educate people about lupus 🤗🥰 I had steriod indused psychosis and full blown Cushings from prednisone, definitely don't underestimate this drug also did a number on my digestion on multiple occasions stomach always ends up feeling sore and raw when I take it, although there are medications they can prescribe you to help protect you stomach when you take it
Oh yes how could I forget the countless deep stretch marks some as wide as 11/2" from cushings at 18 yes old 😇 fun times, acceptance 🙃
In the past three years of my lupus journey I’ve been on and off of prednisone a couple of times…
I was on it (20 mg a day I think?) for a while, the main time, and developed moon face. It really helped though. At first I tried to taper down 5mg a week I think… big mistake. I got so sick. I just recently recovered from a very long taper. Being on prednisone left me in a bad state when I eventually got on a very low dose. I had adrenal insufficiency very badly because my adrenal glands were used to the prednisone providing enough cortisol for my body so they kind of went to sleep. I had to taper 1 mg a month to safely get off of prednisone, and it took my adrenal glands a couple of months I think to really wake up. Thankfully I’m feeling great now, though!! I’m very thankful that I only have had to take prednisone for bad flares. I’m also thankful that my new rheum doesn’t want me on a low dose indefinitely like my old rheum did. Thanks for the video!!
I am glad you were able to safely taper and get your adrenals back to normal. That must have been a scary experience at first. I have had to go by 2.5mg at a time and it is definitely a process!
Thank you for posting. Pred users can use all success stories esp after adrenal insufficiency. Cortisol tests have been very very low so need a retest before each new level of taper. One MD says I’ll prob never get off. I’m ignoring this.
Oh boy, prednisone... 🙃
I was on 10-20 mg for about 2 years and got the moon face and a few extra lbs while on it. Those mostly went away after I tapered off, but now I’m permanently dealing with thin, fragile skin/tissue. 😩
Definitely a love-hate relationship with this drug-I hope it works well for you with minimal side effects! 🤞
I also have the fragile skin! Most likely from 5+ years of use for myself as well. I’ll take that over the scary ones though.
@@HealWithSamantha True! I always remind myself it could be much worse anytime I start fixating on any one issue haha.
Sucky as it is, I’m glad to know I’m not the only one who also got the fragile skin side effect!
I am on this too
I had no idea about some of this, kinda scares me 😟
I think it is important to know the risks but I was on prednisone for five years straight and luckily have yet to experience any of the serious side effects.
prednisone gave me hallucinations, when i first started taking it. hope you all have a wonderful 2022 year.
Been on Prednisone since 2005🧟♀️
I have been on this steroid for 30 years as I have cerebral lupus. I have a moon face, am 30kg overweight (even though I am on a minimal plant based diet), fluid retention, insomnia, muscle wasting in limbs, sleep apnoea, thin skin which can lead to more bruising, injuries and dryness, and changed body shape (long term users can obtain a barrel shaped torso like mine). I take calcium, vitamin D and Prolia injections to prevent osteoporosis. I have a love hate relationship with this drug. I know I must take it, but I dislike most of the side effects. When taking it in tablet form it can literally be a bitter pill to swallow. If you accidentally let it touch your tongue, the bitterness is intense. One unexpected positive side effect was the reduction in body hair, which I can't complain about.
That is a long time! Thank you for sharing your experience with it and I can totally relate to the bitter taste. I relate it to tasting metal.
OMG...PREDNISONE! I used water enemas, tea enemas and coffee enemas for detoxing my body of prednisone.
Hi Samantha - I recently came across your videos and my sister has literally gone through a mirror image of what you are experiencing. My sister was diagnosed with Lupus 12 years ago. She's tried it all. Steroids are the only thing that helps her get by. The other medications have caused severe side effects. She's been on and off steroids for the duration of her diagnosis (12 years). We are also in Las Vegas and can't seem to find a good rheumatologist. Her local rheumatologist told her she is her youngest patient and the most complex case of Lupus she has. She asked her to find an out of state rheumatologist to assist her. Can you recommend a rheumatologist? Thank you. Jocelyn
Hi Jocelyn. I currently see Dr. Taherian in Las Vegas and she has been great! It may take close to a year to get an appointment with her though. I do think getting a second opinion out of state is always a good idea in more complex situations. When I was 15/16 I went to UCLA and The University of Michigan rheumatology pediatrics division. We wanted to make sure that my diagnosis was correct and we learned some great information during the process. If your insurance allows it, try giving medical centers like UCLA a call to see if they'll cover the visit.
@@HealWithSamantha Thank you so very much, Samantha for the quick reply, doctor referral and suggestion to see an out of state doctor. Her insurance does allow us to go out of state. I’ll keep trying to get her in with another doctor. Thank you for being so open and transparent with your life with Lupus. You are helping so many people in so many different ways. God bless you. 💗
This medication has brought me so many stressful moments. I’ve been on it for four years going five and I don’t even recognize my own face because of how round it is and the weight I’ve gained. Pretty sure I’ve developed a dependency for it, I’ve noticed that when I missed my pills for a day I start feeling sick to my stomach and start shaking. 😭😭
I’m sorry you are dealing with that. How many mg are you on? I was on it for 5 years and Benlysta allowed me to wean off. I hope you are able to do that as well and feel some normalcy again.
@@HealWithSamantha my doctors is having me slowly get down to 10mg from 20 mg, which is a great improvement bc when I started taking it four years ago I was on 60mg. Waiting for my next checkup on February to see if he lowers it more. 🤞🏻
Did you get painful ulcers in your mouth making it painful to eat and swallow food and drinks?
Prednisone-love hate relationship 😅😅🙃
I developed avascular necrosis this past year in my femur that I know of so far- i’ve had surgery on both my knees and 1 hip to try and slow it down. We don’t know if it’s from my lupus directly or from the steroids but it’s likely a combination of both. It was kinda scary but luckily I found a good ortho doctor. We caught it early which is good but almost everyone in my support group who has it from medicine says from steroids.
I’ve been on steroids for a little over 2 years
I'm so sorry.... *Hugs* I hate Prednisone but it's saved me a few times...
@@MarieObscured I hate it but it works!! My body was slowly shutting down from my first lupus flare and i earned 2 weeks in the hospital. The steroids from then and now I think are keeping me under control. I wish there were more less risky treatments for long term
@Brooklyn Goodness, that's one heck of a first flair! Maybe ask your rheum about kenalog injections rather than Prednisone pills? I'm dealing with my postpartum flair and my rheum wanted to see if kenalog would handle things and how well I tolerate it. I noticed it didn't cause as bad of side effects compared to Prednisone but this is the first time we've tried this approach so who knows if it'll work long term for managing my flairs.
Thank you for sharing your experience with AVN. I am glad you found a good ortho and have a support group as well!
I take it since 2 Decades..from 50-mg to 2.5 mg .. the fight is real
💯 🙏
Yup I’ve got avascular necrosis in my hips‼️😫 My body protests every time they try n taper me down
Noo, I am so sorry to hear that! Thank you for sharing with us.
I’m so sorry. I hope you’re OK.
I’m watching this at 1:30am 😅 insomnia
I just had some serious side effects from Gabapentin. These drugs are terrible.
What happened to u from gabapentin?????
Gabapantin is a horrible medicine! I took it once and I hated the feeling. Never took it again.
@@vj7220 but they suggest me that for nerve pain, im in horrible suffer daily what can i take instead? Cannabid doesnt help. I have to start gabapentin but u scared me, i cannot stay like this !:(
@@sapir614 Gabapantin is an old drug to prevent siezures so it heavily sedates you at first until you get use to it. I could not take it. It’s like walking around like a zombie. However some people it doesn’t bother as much. Amitriptyline is a old antidepressant med in high doses but they discovered at lower doses Iike 25/50 mg it helps nerve pain. You should take it at night because it’s like a Tylenol pm. You will sleep very well and it’s just gradual, it takes a couple hours to start feeling sleepy. I take it for nerve pain in my bladder from intestinal cystitis. You could ask your doctor if you could try it. Just putting it out there. Also at the beginning of my lupus I had nerve pain down my arms and I figured out what was causing it, It was equal. I was drinking it everyday in coffee and diet drinks. When I quit drinking all that and just water the neuro burning pain finally went away. I mean within 12 hours. Equal is made out of aspartame. It is a neuro toxin. Do some research on it. I hope this helps. God bless you!
@@sapir614 If it works for you try it. I don't want to discourage you in anyway. I was on it 3 days and today I had horrible anxiety/panic attack and mania. I cried for several hours uncontrollably and had a very hard time with shaking and convulsions.
I call it Chipmunk face