Walking Toward Hope April 2021

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  • Опубліковано 11 лис 2024

КОМЕНТАРІ • 28

  • @emblakey4485
    @emblakey4485 2 дні тому

    Wow Simon what an AMAZE BALLS video! That is so darn brave & honest & boy im sure many people can & will draw your strength & hope from this. Well done mate, you are a brilliant & brave man, thankyou

  • @michaelreilly733
    @michaelreilly733 3 роки тому +12

    Thank you Captain Australia! I am a stage 4 H&N cancer survivor (2 years out) and still suffering from PTSD (from the treatment and near death). Grateful to be alive today in still in the life of my 4 year old son.

    • @TheCaptainAustralia
      @TheCaptainAustralia  3 роки тому +4

      Mate, I completely sympathise - in fact, we shared pretty much the exact same situation (except I have 3 kids - my youngest at diagnosis was 3 years old. Approaching the 5 year mark, and now my eldest is in high school. I love making him laugh and smile so much, giving these kids a joyful childhood (something I kinda missed out on). I remember how bad it was in the trenches, Michael. My advice is to get your thyroid levels checked by your GP (the H&N radiation can really mess with your thyroid, which regulates your metabolism - if you've noticed any weight gain, you could jump on it before it becomes too serious). Buddy, one thing I can tell you, absolutely, is that if you're brave, and find ways to keep your hope & love alive ... it gets better. 2 years out is a great milestone - the recurrence risk takes a BIG dip. 3 years it takes another ... 4 and 5 years they start to lose interest in you. You have every reason to hope for the future, mate, even though you're probably dealing with some pretty grim side effects (and that enduring fear of death/recurrence). Mate - 3 years out, I started to notice really scary lumps (and sometimes horrible cramps) in the side of my neck and face. The doctors didnt explain it well, but dont freak out if it happens. You feel the lumps and think "ahh damn it, I'm screwed", but it's actually built up lymphatic fluid due to your underperforming lymph nodes, and the cramps are from displacement due to the scarring and nerve damage, kinda like a leg cramp if you run too much. All the best, mate - I know 100% how it feels.

  • @TheCaptainAustralia
    @TheCaptainAustralia  3 роки тому +4

    Hey there - sorry all, I've just kind of left this video sitting on the shelf half-forgotten as I've stumbled about figuring out my "Captain Australia" persona. Building a boofhead superhero uniform, and getting out into public and starting walking. I should have updated in July, but I got really sick ! Not COVID, it was malnourishment .. over-exercise-under-eat took it's toll and it kind of wiped me out in July (I had reached 86 or 88 kilograms, I can't quite remember). So I had to start eating normally again (and still am today, a pretty full diet, although I can no longer taste foods in the same way I did). I put some weight back on, and have since been sitting stable in the mid 90s. But the weight -- that's just lumps of fat. My spirit, my hope, has been shining brighter and brighter. I'm perhaps happier now than I ever have been in my life, and that's beset by troubles and tragedies! Haha, but I laugh at it. COVID killed my travel insurance company, we're all over the shop financially, but we have such a deep pool of love for each other that nothing else matters (sorry, me and my hostages of fortune, my wonderful wife and three fantastic kids). Last week I walked about 60km, and this friday I'll walk to the Gold Coast (about 90km), my internal health is great, but I'm still kinda chubby - but that will slowly melt off as I start preparing in earnest for CAPTAIN AUSTRALIA'S BIG WALK. (26.12.21). Anyway, it's my sincere hope that if you're a person who is struggling somehow, dealing with a foe that you are finding it hard to understand, let alone fight - the best and most pure ammunition you can have in your arsenal is HOPE. And it's my personal hope that I can, even just a little, turn you toward it ... yep, it's over there .. that little spark of light .. that little ripple you feel across the skin on the back of your neck ... yes! That's it. You can do it. You truly can. Best of luck to you.

  • @amandakuhlman3723
    @amandakuhlman3723 3 роки тому +7

    Thank you for this. Thank you for caring so much about others that you put your vulnerable self out there.

    • @TheCaptainAustralia
      @TheCaptainAustralia  3 роки тому +4

      That's really kind of you to say. Thank you. I know the video is a bit .. weird. But .. I made it in the hopes that someone, some broken person, could see that spark of hope grow with each new me. It's not so much about weight loss as about how with hope we can overcome almost anything. That this .. rebirth, is available to all of us. If someone without hope can see a simple transition where I'm able to rebuild mine, and take heart from it. Live another day. Put down the substance that vexes them. Eat right. Rebuild their health. If I could guide even one person to that ....... god, it almost makes the cancer worthwhile. Ha, that's amazing. I never thought I'd reach this place. Sorry, I don't have a filter any more ;) Thank you so much for your kind words.

  • @juliealdridge2449
    @juliealdridge2449 3 роки тому +6

    Well done mate, you are inspiring. Been following you on the cancer forum. My hubby had the same cancer as you August 2019. He is now in recovery, unable to work although he tried for 14 months to go back. But he’s cancer free but living with the side effects of treatment.
    I have stacked on the weight due to the stress of it all but you have inspired me to stop mucking around and get serious about losing some. Keep up the great work. Julie (Joolz on the cancer forum)

    • @TheCaptainAustralia
      @TheCaptainAustralia  3 роки тому +3

      Hey Joolz :) Thanks so much for the kind comment. Honestly, this is exactly what I was hoping for - that somebody who was having the same kind of struggles I was could see it as a pathway, and start to turn things around. With cancer, it's so easy to slip into anxiety/depression .. quietly, not with big drama or fuss, it just oppressively grinds you down over time. I believe you can stand up, Julie. I'm sure your husband can too. You need to believe in yourself, find that hope - and get cracking. And you know what ? I'm just a boofhead - but if I can inspire you, even just a little .. when you start moving toward health, I reckon it'll also be an inspiration to the people around you (maybe even help your husband get through this horrible experience).
      All the absolute best to you both -- and thank you again for your kind comment :)

  • @xonvereher2846
    @xonvereher2846 3 роки тому +2

    Absolutely beautiful display of human bravery and determination. Keep fighting the good fight sir!

    • @TheCaptainAustralia
      @TheCaptainAustralia  3 роки тому +1

      I'm humbled. Thank you for your kindness. I can feel it rippling through me, mate - your kindness reached out over the internet, isn't that cool ? But it's FUEL. I'm a bit sick today and was thinking to skip my walk, but now I feel fueled up, a bit like someone has given me a big gentle push. Without getting over-dramatic, I think that's really hopeful - that we can do that for each other :)

  • @joegerhard615
    @joegerhard615 3 роки тому +2

    Thank you for being so wholesome. You have givin me hope

    • @TheCaptainAustralia
      @TheCaptainAustralia  3 роки тому

      Thanks Joe - hope is such an important thing - try and keep it going as long and as strong as possible. Best of luck :)

  • @Paulinhanunesm
    @Paulinhanunesm 3 роки тому +2

    Thank you for making this video and sharing with us. It's really hard to have hope when everything around you is crumbling but this moments do help. Thank you

    • @TheCaptainAustralia
      @TheCaptainAustralia  3 роки тому +1

      Thank you, Paula. That confirms a belief I have --- that trying to be kind, trying to do the right thing propagates .. it spreads (I think hate and cruelty work the same way). If you & me do what we can to help, share our hope --- maybe we can help other people find theirs.

  • @miKiOBeats
    @miKiOBeats 3 роки тому +1

    You such a fucking great human being

    • @TheCaptainAustralia
      @TheCaptainAustralia  3 роки тому +1

      Mate, that's generous of you. It's funny, you know - I've been broken for a while .. the cancer hit in 2016, and in the first year after treatment, even though I was wrecked, I took the family on massive road trips all over Australia in rented motorhomes, theme parks, kinda had a "time is short, love them hard as you can, buddy" approach. That was the first year, then after that all the side effects started to stack up and I realise now that an insidious post-cancer depression sunk it's claws in and slowly started eating away at my hope. I felt absolutely broken, but now I feel STRONG, like coming alive after a long period of sickness. It's weird though, because that broken part of me carried a lot of shame, sadness, and I guess some of that remorse & shame sticks with me, because the compliments people like your kind self are making feel a bit undeserved. But I absolutely LOVE them, not because of how they reflect on me but because of how great you guys are. It's inspiring :)

  • @masonchase4599
    @masonchase4599 3 роки тому +2

    This was amazing I hope you stick to your goal and walk that 10000 miles. very inspirational

    • @TheCaptainAustralia
      @TheCaptainAustralia  3 роки тому +1

      Thanks so much for your kind words, mate. To clarify though, in the video, poor broken old un-slept me first said 100 miles, then clarified that it's more like 1000 miles, now you're throwing 10,000 out there --- if I'm not careful, I'll end up walking for the next six years :):)
      The actual route will wind down the Aussie east coast, be about 2200km, and take me probably about 10 weeks. I'm going to start promoting the charity from July/August, and if it got enough support, I'd (MAYBE) think about circumnavigating Australia on foot .. but that would take 1 year, and I don't think my heart could survive that long away from my children.
      Thanks again so much for your kindness, what a boost.

  • @21vegito
    @21vegito 3 роки тому

    Hard sometimes bro. Super hard. Life brings ya down and down and down and down. You find someone that lifts you up and they fail you and you keep falling down and you feel like a loser and go into depression and alcoholism for sure. I have my kid on my days off 50/50 and I drink like a bastard when I'm on shift its ridiculous I'm a functional alcoholic and I do nothing with life. Sometimes it just feels like whats the fucking point. Obviously care for my son and do it all for my son. But us as guys have nobody to talk to that won't talk shit or spread rumors. Just a broken guy all alone most days. Used for sex. That's the only connection I have to the world

  • @hohesC24
    @hohesC24 3 роки тому

    Hey Cap, did you know, that there is a Wiki (encyclopedia) for Real Life Super Heroes? You also have an entry there:
    wiki.rlsh.net/wiki/Captain_Australia
    and even on another Wiki too:
    rlsh.fandom.com/wiki/Captain_Australia
    Oh, and you are mentioned on the normal Wikipedia:
    en.wikipedia.org/wiki/List_of_real-life_superheroes#Australia

    • @TheCaptainAustralia
      @TheCaptainAustralia  3 роки тому +1

      Thanks so much for sharing those links, mate - I had no idea. I'm actually quite moved that there have been some people, unknown to me, who were with me during my fight with cancer. I think back when I created Captain Australia, I didn't know exactly what he was FOR. I just saw the world darkening, and thought I could and should try and fight that. The balance was to Do Good / Fight Evil / Have Fun and Break Norms - be joyful and share joy.
      Post cancer, I'm realising that last part is by far the most important. As you can see in the video, I've discovered how crucial HOPE is, and how powerful. In that sense, Captain Australia and this BIG WALK (which is really just a metaphor for overcoming adversity, finding ways to move forward no matter what life throws at you) have saved my life.
      Not super. Not a hero. The scientists funded by The Kids' Cancer Project are in a stand up fight for children's lives, so if there are heroes, I'll back them :)

    • @hohesC24
      @hohesC24 3 роки тому +1

      @@TheCaptainAustralia Yeah i think sharing joy is especially in these days even more important.
      And don't forget some of the most popular Superheroes, like Batman and Iron Man, have no powers too.
      They are "just" rich, so they can buy fancy action stuff to fight crime - but they also could make stupid or bad things with that money.
      The main thing is their WILL to do something good, to fight evil, to help others, just like you, Cap.
      So, in my opinion.. just like a fire fighter or a paramedic.. you are a Hero and super :)

    • @TheCaptainAustralia
      @TheCaptainAustralia  3 роки тому +1

      Mate, that's incredibly generous of you. I don't deserve that high praise - for me fire fighters, paramedics, teachers, nurses, doctors - they're the heroes who deserve our respect. Captain Australia is really just a mirror, a reminder that you, me, all of us - our society - that we should strive to rise above the petty behaviours, road rage, selfishness, thievery, distrust, xenophobia - and hold ourselves to a higher ethical standard. Real people, trying to live as if we were superheroes. If we can aspire to a higher standard, we may fail, fall over - but we get back up again and keep trying. That's my hope for the world anyway - that we can work to cultivate and spread the kindness and decency that is inside all of us, but often hidden behind a layer of hurt & confusion inflicted by the world. Anyway, your kindness is well and truly intact mate - thank you for your kind and inspiring words - I promise to do my very best to live up to them.

    • @TheCaptainAustralia
      @TheCaptainAustralia  3 роки тому +1

      PS mate - I checked your channel, I think we grew up on some of the same movies. Massive horror fan. I like all kinds of movies - haha, maybe I'm supposed to be embarassed by this but one of my favourite movies is "The Princess Bride", but I also really love stuff like "The Exorcist" and "Pan's Labyrinth", as well as Misters Freddy, Jason, Michael and so on :)

    • @hohesC24
      @hohesC24 3 роки тому

      @@TheCaptainAustralia
      Haha, i don't know if this saying exists in english, but in german i would say „Wir sind wie zwei Bären die sich gegenseitig Honig ums Maul schmieren“ (literally: we're like two bears who smear honey around each other's mouths), meaning that we only compliment each other :'D
      But yes, i share your hope for the world and i like your perspective “trying to live as if we were superheroes”.
      And in fact, I've never heard of The Princess Bride, until it was featured in one episode of The Goldbergs (Season 2 Ep. 21) were it is one of the favorite movies of the protagonist too. I would like to have a look at it though.
      And yes i'm a big movie fan, and i really like scary and uncanny things in general, they are some kind of fascinating. I made some of these informative videos for (younger) people who never heard of Freddy etc. Most of the other videos are just fun for me and friends to do :) we try to make one every Halloween. Last year we switched to another channel for this:
      ua-cam.com/users/ProjectUrbanLegendsvideos
      i found a pretty funny promo from that episode :D
      ua-cam.com/video/N_AaPmKhVK8/v-deo.html