This is what a "bad day" with glaucoma looks like
Вставка
- Опубліковано 18 жов 2024
- In this video, I process all my my anxiety and fears about the future. I show an true depiction of what a “bad” day looks like with glaucoma. This video is very honest, raw, and emotional. __________________________________________________________________
I post videos on Monday, Wednesday, and Friday
Monday- videos about glaucoma
Wednesday- “whatever” videos, (unboxings, tags, challenges, vlogs, etc.)
Friday- Faith related videos
__________________________________________________________________
This channel is about the good, bad, and ugly parts of life. I believe the world changes when we are our most authentic selves. I talk about my journey with glaucoma, my faith, my experience as a college student, and so much MORE!
__________________________________________________________________
CONTACT ME AT
mallette.emily96@gmail.com
I’m a patient of Glaucoma since 22 years, now age 76 woman. My eye 👁️ pressure was very high, using daily time Lubricant drops 3 times each drop and 1 time one drop in the evening name of that drop is Lumigan 0.01% made my eyes cool, apart from using drops concentrated on Diet food drinks and herbs, which really helped as eye pressure was 18-20now down to 16- 12. Eye Doc and specialist strictly said not to drink coffee and fast food, as coffee makes dry eyes. Everyday I drink Carrot 🥕 juice, one boiled pink colour sweet potato, green tea, before going to bed drink warm milk with half tea spoon of Turmeric powder. Or with warm water turmeric power with pinch of black pepper powder. To better sleeping and to cool nerve put pinch 🤏 of Nut meg powder, eating leafy greens 🥬.totally omitted sugar and sugary food. All the best, ow worry, you will fine. 👋 Zeenat from Canada 🇨🇦, 05 March 24 ( My background was Asian Indian) now in 🇨🇦. 🌹
Hi zeenat mam, i am from india too . Recently I visited eye hospital in nepal and they did my oct test and said to me that you have early stage of glaucoma. I was shocked to hear that. I am just 23 year old and in my family background also no one have this disease.
Yes, i am a myopic patient of -2. 00 right and -1.75 left. I do have eye floaters in my left eye which is negligible.
They gave me eye pressure medicine.
Should I change my eye doctor or see new one? Or should I start taking medicine?
can i ask what your eye prescription is ?
Did you undergo surgeries?
Hey sweetie I have been diagnosed with glaucoma for twenty years lost some vision however I am living the Good life ,let go and let God .
I’m 18 and have advanced glaucoma on my left eye and mild on my right. It is very scary and it led me to think anoint suicidal thoughts but we are not alone! Keep pushing and have faith that science is with us and sooner or later we will get pour vision back! By the way, you’re so beautiful 💕 God bless you!
Thank you so much for your comment and email! It means more than you know! Hope you are doing well, and keep inspiring others!
Hey Jenni, If you ever need someone to talk to, Ill do my best to help. I have 30+ years of experience with this. If you need some inspiration look into Kirby Puckett. Some medicines may add to those thoughts so please look at the side effects of your medication and ask for other options, if necessary.
Cassietta George - Dont Give Up
ua-cam.com/video/8r93jMKDbZM/v-deo.html
@@slickfirmament5934 thanks so much!
I am 43 yrs. I have glaucoma symptoms last 3 years. . My optician advised me to see an specialist at the very primary stage. But I did not realize how serious it is. Now I am waiting for an appointment. Still I can see properly but right eye is not good enough. Driving is my job... really worried..I have a family to look after.
I’m starting to date someone with glaucoma and your videos are helping me understand her. Thank you. There aren’t many out there!
I'm 14years old and I was diagnosed with glaucoma since I was 2. I lost my vision completely on my left eye and my vision on my right eye is poor. I went everywhere for my treatment from Cambodia, Vietnam, Singapore, Australia. I'm still a young teen but I've done almost 5 surgerys. livong with this conditiion is lonely, and sad it lead to depression, anxiety and low self-esteem. I really love studying and I really wish I could have friends and live happily like my other siblings. :((
I don't have glaucoma but I have had eye problems since I was five years old. My vision isn't that great either, but just know that you're not alone. Ive experienced the same mental health problems that you're facing, but time, self belief , self confidence and lack of concern for what other people think of me is what allowed me to move forward. You can do it to❤
So painful to hear what you're going through at such a young age. No eye problems myself (besides lazy eye), but lately been noticing a change in hearing at 28 years old with tinnitus after sickness. It's absolutely lonely and scary, and it's difficult not to be anxious about the future and sleep well with all those sounds in my head. Still in the stage of struggle and grief, but hopefully we'll be able to move on and make the best of what we have while we're here.
Really hope you'll find some good friends that care about you and support you. Rooting for you 💙
Wish you speedy recovery dear 🙏.
hi ive got glaucoma at 27yearsold 2022 its so sad the pressure the pain and anxiety. So that i feel are real hard keep fighting and keep yourself related to LORD JESUS CHRIST
You’re such a sweet heart! I am only 28 and was just diagnosed with glaucoma about a month ago. I feel your fears and anguish. It’s very scary and debilitating. If you have a strong family unit, talk to them about your anxieties. They will be your rock in this trying time to help you get through life. Also true friends would be there for you especially through something like this. Sending prayers your way. Stay strong!
Hi how are you now? I just got diagnosed. I feel so sad
im 16, today i got diagnosed with glaucoma :)
@@north_airhow are you now ? Are you taking eye drop? Or you went for the confirmation with another eye doctor?
@@Learner-lq3vu hey, my family did went to other doctors and I got that test done too. Fortunately its very minor and will most likely not interfere with my life or at least till im in my 50s.
Thanks for asking, appreciate it.
I had glaucoma since 2010 from an accident that i got when i was 8 year old. Hearing your perspective about glaucoma is kinda relieving knowing that i'm not alone. You're so strong for always willing to do things as normal as possible, it's hard and you've been through this far. Thank you for sharing this..
I got diagnosed with glaucoma three weeks ago and the things you expressed here have been on my mind ever since. Thank you for baring your soul to us. Thank you for letting me know that I'm not the only one.
You are the strongest girl I've ever watched on UA-cam. But you don't need to be. It is ok when you feel down or feel weak. We have to fight back to our struggles on life and they ll all pass at the end of the day. We ll begin our strongest version on next day. You have posted this video about 3 years ago and I am sure that you learned so much lessons from life and you are more stronger now. You can handle so many things in life that you can not before. I am also sure you will find someone who ll truly love you. You deserve it more than anyone. I hope everything in your life will get better. You deserve better and you will get with your good energy :) Stay with love
I’m literally laying in bed dreading my doctors apt tomorrow. Lately I have been in so much pain, my headaches have been constant and I’m just so worried that I’ll have to get steroid injections. It’s all so draining. Congratulations on graduating I’m working on my BA and it’s a constant battle. We can do this! So happy I came across your videos makes me feel like I’m not alone.
Victoria Zamora good luck at your appointment! Praying for you! Im glad we can relate to each other in this!
How are you?
Awww I'm in tears reading this 😢😢
I’ve just been diagnosed with Glaucoma 2 days ago. This came as a shock because I don’t have any symptoms at all. The trip to the ophthalmologist was required since I was diagnosed with Lupus last week. I’m devastated and I agree that it’s affecting my mental health too. Hope you are doing well now.❤
My daughter just diagnosed with glaucoma today. She is 14 and already blind on her left eye and i feel guilty that it is my fault. I didnt brought her immediately to the doctor. Im scared for her future
There's not always signs/ clues. If she wasn't struggling/ asking for help... how could you know? If she was having issues and you blew/ put her off/ neglected her... then you should feel guilty... but I doubt that's what happened. And even if you put off an appt... most would agree that a delay in a script for glasses would likely be the worst thing to occur... or at least that's what most of us would think, anyway. Be there for her now and show her she can deal w it. Life throws us curve balls... may as well learn that early. It's how you deal from now, forward... and you'll be great!! That's why you're here. I didn't look... this may be 9 years old. Lol. Oh well.
wow your video really helped me . I have glaucoma too. I was diagnosed 8 years ago and I been using all the medications they have to lover the pressure but its stopped helping me and I dont respond anymore to my teartment so I need to do surgery in my eyes next week and I with full of anxiety and I felt alone with glaucoma until I saw your video with all the comments here, so thank you I feel more relax now . I hope you okay ❤
and I feel I waited a long time to know someone with glaucoma in my age ( 19 )
@@shakedyehuda7206can you please tell me what was the early symptoms of your glaucoma? Please please request you to answer
I also have the same problem since birth but I am doing masters of history. Post graduation, I have gone through operation,and taking eye medicene daily
am also a writer , although it,s difficult in some aspects but never lose hope, God is with us, my eye size is also smaller than asian eyes and sometimes peaple do bad comments but have courage and think yourself beautiful and complete because it,s a great blessing that we can see the things, colors of life.
maryam chaudhry thank you for your encouragement. Means a lot!
I understand how you feel Emily I feel the same way as you because sometimes i worry about my Glaucoma getting worst In the future and the fear of going blind from Glaucoma makes me feel anxious and scared and when I first got diagnosed with Glaucoma in 2017 my eye doctor said that my eye pressure very high and my eye pressure was up to 30 mmHg and my eye doctor said that he needs to keep an eye on me and when my eye doctor said that to me it really scared me I been taking eye drops to lower my eye pressures every night before bed and plus I had laser eye surgery in my both eyes because the eye drops that I was taking for my eye pressures the eye drops stopped working and the eye pressure went up to 28 mmHg in my both eyes I had laser surgery to bring my eye pressures down but I still got have to take eye drops I been though a lot and it nice find people on the internet on UA-cam who going the same thing as me, i just subscribed to your UA-cam Channel im here for you Emily
🙏🏿🙏🏿❤💪
I'm 37 and just was diagnosed with glaucoma and I can relate to my vision has changed and the blurryness at time scares me
I'm the same age I got diagnosed in 2014 i was 27 now I'm 37 years old I notice changes in my vision as well 💔😭🙏🏼
Thank you for sharing and being so strong. I’m sorry for what you’re going through. I may have it but it’s a waiting game since I’ve never had an eye exam until today. Im scared for my future.
Thank you for sharing this. I also am dealing with glaucoma at 31 its really wears on you. My pressures are really bad I spend alot of time alone so I know what your going through I bope your doing okay.
Very proud of you! One by one each of your fears will work itself out. Enjoy your graduation!
I understand totally how you feel. I also have glaucoma and its my first year at varsity. Today I'm also having one of those days
Kelebohile Malefane sending good vibes and prayers your way!
Sending love Emily God will hear your voice. Your worries- tell him and he will comfort you and give you strength. I have glaucoma too. Believe me, we CAN manage We can get through there’s a lot to life Stick to your treatments or drops and don’t worry, just keep facing each day. We humans are stronger than our eyes There’s hope for all of us believe it I’ve had the same worries as you do and the same fear but you’ll find that things won’t be as bad as you fear. Take one day at a time and conquer each day 💕💕💕
Take a deep breath, relax and reason with yourself. Take care of what you 're able to do. I personally have had to live with idiopathic pulmonary arterial hypertension. I am on a meditation pump that continuously infuses via a Hickman catheter that is placed in a artery very close to my heart which then pumps it into my lungs to dilates the blood vessels in my lungs so I can breathe and live. I have to mix this medication daily and change my cassette on my pump. I have been doing this for 22 years. As severe as my case is if this doesn't work any more it would be lung transplant time , then only have a life expectation of 5 years. When I started on this medication I was so afraid how would I do all of this alone. I took what I could do ,took one day at atime. Handled the emergencies when they came up . I also deal with Generalized anxiety disorder and Major depressive disorder, and resantly diagnosed with Glaucoma. I take a lot of medication for my IPAH which also causes right side heart failure. What I have learned is that your REAL FRIENDS help you when you need it the most. I hope you havs an ESA support K9 to help you relax . Take one day at a time. When I got sick I lost my health, jobs, money,
Savings, retirement savings, everything. You have walk your onwunique path. Its not going to be like your friends that's ok it right for You. If you think about the future too much it will give you Major anxiety, If you think back to the past it will make you depressed because of all the things you can't do now. Im sure if you do some research there are some ways to midigate the problems that require a solution so you may do what you want to do. Just a little different way of getting it done. Never give up ! Ever. Much love from a understanding glaucoma patient and her ESA- support k9😊🐕🐾🐾💕🐾💕🐾💕🐾💕🐾🐾💕🐾💕🐾💕🐾
I have glaucoma in both of my eyes from cataract surgery as a baby . I was diagnosed at age 9. I am on 4 eye drops for my pressures. I know how you feel, I have struggles with glaucoma such as people giving me a hard time with using my cane and being restricted to go certain places. But dont worry you will be ok! You just have to do certain things differently.
How old are you, beautiful lady? How are you doing?
Hey Jasmyn, just wanted to send some hugs your way. HUGS!
Damn girl😢 you just make me sad when you cry, feel so sorry about your health problem. You can count on me, feel free to chat. I’m praying🙏🏻🙏🏻🙏🏻 for you beautiful ok. Stay strong 💪
Gilberto Rios thank you so much for your encouragement!!!
You are a very blessed young lady! Never forget that! Graduating from college is something to really be proud about. And your relationship with the Lord is awesome! It's natural when one is Young to have some of the fears and anxieties that you do. It's not easy in the world especially with the challenges of glaucoma. Believe me I know. I'm 54 and I've been dealing with glaucoma since I was 17. But like you I put God first and everything followed. I also graduated from college and was blessed with a very decent job. The Lord also blessed me with a wonderful wife who never let my glaucoma bother her. you keep doing what you're doing and it's going to work out for you. By the way my family has been watching your UA-cam videos for a while now and we pray for you everyday.
Thoughts On Jesus thank you so much for your encouragement and prayers! It really means a lot to me!
I was told too that stress is also really bad for this condition we have
I totally understand, processing the fact that you have glaucoma is hard. I had glaucoma surgery in June and i am about to do a second round of surgery because the first one did not quite work. I wake up every day wondering is this the day I lose my vision permanently. My eyes are constantly red from the eye drops I use so I couldn't hide the condition anymore.
I'm 37 I was I was diagnosed with Glacoma February 14thq 2014 till 2024 I was 27 when got diagnosed and I'm now 37 turning 38 next march I take 2 eye drops a day 2 in the morning and 1 at night. Be strong your not alone 🙏🏼😭💔
Hi Emily, congratulations you are an inspiration to others that are facing challenges. Always remember to "Cast your burden upon the Lord, and He shall sustain you: He shall NEVER let the righteous be moved. (Psalms 55:22). I shall continue to pray for you!
Saundra Gray thank you so much for this comment. It is so encouraging and it means a lot!
The funny thing is ./ we thing that we are alone.. in fact there are many if us who fear even to go on youtube and share and be open about what our lfe looks like... chiairs to all glu-falks in the world.. live everyday like your last day... enjoy looking around
If you only knew how much I understand you. Hope you are doing better.
I just lost my right eye to glaucoma. Out of nowhere, my vision was gone.
If you want to talk, let me know. I almost lost my eye (globe rupture) from Glaucoma. If you like baseball, Kirby Puckett lost his right eye from this as well. Maybe he can inspire you. Hope this helps. LOVE
@@slickfirmament5934hey sir can you please tell me is oct confirms glaucoma?
Things will work out for you and if an employer as why you have not worked just tell them it's because you wanted to focus on college, employers tend to like that response as it shows you have your priorities in order, and as far as transportation goes, well there is always options, and there are equipment that employers can get to make your job easier that are designed for low vision/blind people, so hang in there and things will work out also i would recommend contacting some of the other youtubers out there in the visually impaired/blind community they can offer advice as well as a supportive network.
MacGabhann thank you for your advice. It truly means a lot!
Anyway if you want you should check out blindtobillionaire's channel, and if you send him a 30 second video of what your channel is about he will promote your channel on his, he has built up a huge following of people who are all supporting each others channels and helping others with vision lose.
God will see you through. 🙏🏽❤️
Dont cry be positive ❤️❤️❤️
We are fighting through everyday.. we share the same fears.. we are glaucoma patient who die slowly .. i sometime wishes to get cance than having glaucoma.. cause eventually cancer take your while life not part of u .. ugh hopefully they get the optic nerve regenerated
Yesterday I have gone for my eyes checkup ,my doctor said I have glucoma in my eyes,they have done my Oct test,I was scared.
Me too.
Hey how are you now ? Csn you please tell me is oct confirms the glaucoma or are there any other test which confirms glaucoma? Please do let me know .
Watching and knowing that soon you'll get your bachelor's degree made me cry ,because I am so proud of you ,you're an inspiration to me ,despite of your eye condition and struggles ,you made it ❤️ I have the same feels and struggles like you do, having glaucoma is really hard ,but God is bigger than our problems ,have faith Emily ,God is with you .
Jenelyn Suyat thank you so much! You’re so encouraging, and it truly means a lot!
Yes I have glaucoma too but im 68 years old so I feel for you I think you are too young to be having that problem I hope you get proper treatment and get better i will pray for you
i can feel how you would be feeling. my pressure of the eye went upper than 30mm hg i was very anxious that i would go blind in few years . i am putting eye drops to lower my eye pressure. my vision of right eye has declined very much.
i AM IN CLASS 10 and i have acuried deppresion because of my condition . and my studies are getting affeted very bad .
and sometimes i dont even want to live in this world.and people on the other hand are so toxic and bad that they dont even know from what i am going through in my life and they are just humiliating me a lot.😭😭😭
Bro give me your insta or phone number I have same condition class11 glaucoma vision loss headach not proper study
I have been recently diagnosed with glaucoma and I’m scared. I’m only 21 and I was doing pretty good with my grades, I was going to study in another country to live a new experience and to take my studies to another level and now I just want a normal life. I just want to get marry and have children and I don’t know if that’s going to happen. I thought in some very bad things, but I think that it’s important to keep fighting. The good thing in my case it’s that they detected me this disease in a early stage and I know that there’s going to be a cure someday. Just think in the incredible pace science and technology is advancing. Maybe we don’t have a cure, but there is some research being done to help us.
You are doing good just keep going.
A job you may enjoy is a massage therapist. Massage schools accommodate visually impaired. testing and so forth. I went to school and there were 2 that were limited. One was blind from a gun shot and one was blind from an early age.
I have been a massage therapist for many years and have always preferred working alone.
Most clients talk very little but sometimes they do. It is like if you click together.
There is little to no paper work. The clients like it because they do not have to worry about you seeing them.
some are very insecure about their appearance.
Every challenge has its hurdles .
Doing massage you literally see with your hands. There is a part of your bran that detects feeling and as time goes you become more sensitive to touch.
just one idea. Also as pretty as you are some man will want to marry you. Men are naturally inclined to protect women.
Try to focus on the advantages in your life. do all you can for yourself and let others help, we all need help in one way or another.
Don’t be scared I have accomplished some goals also but like you, I have more I want to do in life I know what it feels like to worry about the future I pray to God, he hears me and comforts me he can do the same for you in a way that will surprise you If you’re not Christian that’s ok. But if you are or aren’t, tell god your worries and believe in him and you’ll see that he will show you that he cares the Bible promises that
I hope for the best -- but prepare myself for the worst. (diagnosed with 20/2000 vision in 1979) Rhetorically speaking, does anyone have control over his or her life?
This is interesting, but I was hoping (from the title) that it would describe daily fluctuations in the glaucoma symptoms themselves. Still interesting.
You can do it !! I found you through boxy charm video . As for work you’ll find someone who is nice and will help . I wouldn’t mind at all if you were at my job I’d help .
Look up Molly Burke she’s here on UA-cam has RP the cause her to go blind . She does it all .
I have friend from elementary school that is blind so is her husband . They have guide dogs , live on their own . They use a service to get to and from work . You’ve got this one step at a time
Emily Carriker thank you so much! Your kind words truly have encouraged me this morning! I love Molly, and she is definitely an inspiration for me!
There is hope! The glaucoma association is busy with deep study and will solve glauacoma with stem cell development. Go to the best specialist and keep hope. Worry deepens the problem. I have bad vision my whole life and have very successful life. Put your worries aside. Stop thinking about it. I know people with 10 percent vision who get on with life. Google, coffee is bad for glaucoma. I drink decaf max 2 a day.
I am so sorry 🙏
Cool
I was born a premie (24 weeks) they told my mom id be blind when I was like 2? And at 8 years old I was diagnosed with Glacoma in my left eye I had surgery on it to stop the high pressure (it was in the 80s pressure wise and very painful) now at 24 I was told I have glaucoma in my right eye and I'm scared of losing what vision I have left x.x
All the wishes of good luck to you my friend.. iam kinda same as you how is your eye now?.. did you lose some vision?
Me too my left eye is very affected more than the right and I’m not sure about my future. Let’s hope for new treatments❤
Try to only drink Decaf coffee, I started doing this before my first check and my optic nerves didn't change, they're still very thin though.
Decaf coffee is the most toxic kind. I have a client who was CEO of a coffee company and told me this. I would suggest organic coffee only and small amounts.
Give your problem to God and he will take care for it
I think coffee increases blood pressure but idk
If I were younger I would be honored to be your husband. Far from being a burden, you would be a gift from God.
Please look into Cansol eye drops. Love to you all.
Dr Manley West from Jamaica created Canasol in 1981 and was FDA approved in 1987.
ua-cam.com/video/zTXyLpU_N10/v-deo.html
Congrats
Sheesh... it's depressing over here. I guess my diagnosis hasn't set in yet... although I've been through hell already w this crap. I figure either armageddon will happen and we'll be gone or we'll roll out those med beds in a couple years and fix all of our 'issues' the easy way... just in time. Lol. And don't forget about self driving cars!! Girl... you won't need rides. We're gonna all be just fine. Well...I dunno...I go back for that nail gun in the face 'relatively easy' procedure tomorrow... and I'll just say, last time... it DID NOT go well. No it did not. But don't tell me I'm gonna feel a little pressure and then blast me with a bb/ nail gun in my eye. Omg. Clearly... they lie. 😆😆 they hate me now... YAY!! Going back today!! 🙄 But now... I KNOW what to expect... and that's a problem. Only an idiot would be cool w sitting there again... waiting to get blasted... expecting pressure but getting ice pick through the eye instead. 💩 I'm not sure I can do that again. They act like everyone is fine w it. I don't believe it. Lol. Ive had numerous kidney stones, many tattoos & 3 kids... one w no meds, so I'm not a baby. I'm also not an idiot. It's my 👀's! Sedate me and quit being ridiculous. It's a torture procedure. 😆😆
I pray in Jesus name eyes be healed
Yes, life it s hard when you are ill. I know it cause I am one of the victims. Only God can make things right. The Bible is His Word. Listen to Him audio.
Do u have fb emily??im filipino
I can truely tell you if we were living near each ofher i'd take you wherever you want to go everyday and it will be my pleasure....yiu need to believe in JESUS and surrender your life to him and repent of your sins (repent is to have grief and Godly sorrow for your sins) and He will give you eternal life. Heaven, hell, angels, devils, God and Satan are all real...God bless...i really wish i can be there for you everyday and anytime my friend....and it will be no burden...but i am in the Middle East...Lebanon
Hello sir, can you please tell me if have done oct test and my doctor said you are suspect of glaucoma and they gave me eye drops. I am not using it now. Because it has side effects. Should I visit another doctor to confirm it?
@@Learner-lq3vu i am not an eye doctor....you can to to another eye doctor and perhaps he'll give you another kind of eye drop with less side ecfects but DO NOT stop using it....your eye pressure will increase then you'd need surgery and trust me eye drops are wayyy better...much easier and cheaper
@@salehmalaeb4788 thanks for your reply sir.
Actually I was thinking that may be I was misdiagnosed as early glaucoma. I want it to be confirmed by other doctors too so that i can start taking medications?
@@Learner-lq3vu sure that's a good idea...i have glaucome too