Why My Cancer Is Classed As Terminal & So Rare It Doesn't Even Have A Wiki Page!
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- Опубліковано 4 вер 2024
- Why My Cancer Is Classed As Terminal & So Rare It Doesn't Even Have A Wiki Page!
That is right, it doesn't even have a wiki page! Nuts but true! So, the types are pleomorphic sarcomatoid carcinoma, primary cutaneous carcinosarcoma and unknown sarcomas.
My cancer is now classed as terminal as not a single person, doctor or medical professional is sure what to do with it! They can't give me a precise timeline as no one has made it this far before with so many reccurances and spread.
We are litterally trying everything now to keep me alive!
I have a Go Fund Me setup if you would like to support me get research done into this and pass on tissue samples in the hope we find a way to treat this.
www.gofundme.c...
Or PayPal is info@peeweetoms.co.uk
Find out more about the building of the community support hub and web portal for support so we can all support each other.
community.peew...
#dontgiveindontgiveup
Don't Give In! Don't Give Up!
Due to loads of interest you can now pre-order the #dontgiveindontgiveup hoodie and t-shirt now proceeds go to researching this beast: goo.gl/RFUMmW
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My Deets
You can find out loads about cancer, my journey and the things that have caused me issues on the link below to my blog.
Blog: peeweetoms.com
Twitter: / peeweetoms
Facebook: / officialpeeweetoms
Instagram: / peeweetoms
Email: info@peeweetoms.co.uk
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The Community & Support
If need help from like minded individuals and want to get support head over to this link and check out what is going on :)
community.peew...
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Who Am I!
Name: PeeWeeToms (Dan Thomas)
Job: Software Developer
Age: 32 Home: England!
Diagnosis: Sarcomatoid Carcinoma (peeweetoms.com...)
My Jacket Is An MA-1: goo.gl/LkfUz5
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My Kit
Main Camera: goo.gl/dMMU6s
Action Camera: goo.gl/trDHR5
Mic: goo.gl/MYSd87
Small Tripod Joby 3K: goo.gl/pK8Umr
Large Tripod Joby 5K: goo.gl/sZ1uPm
Light Ring: goo.gl/W2xgbm
Software: Premiere (goo.gl/oBm9rw) & Vegas (goo.gl/ze1g7v) & Hitfilm
5:21 when he said ''I just wanna have my life back'', knowing that he'a already passed, is pretty damn heartbreaking. What an awfull horrid disease cancer is... Rest in peace, man.
humans have to get this horrific disease cured. Stop spending money on wars, greed, etc. and direct it to HELPING people !! Bless this man he did well and helped others in his honesty.
Yes that's sentence made me cry, why on earth someone have to bear this pain and agony, why God don't just give simple life of 60 years we are not asking for immortality.
@@manojkale4408 everyone deserves a long, full life.
@@KindCountsDeb3773 that's not for us to decide. God's sovereignty decides that alone. We need to be humble to accept our finite existence on this plane.
@@marlonquintana3466 nice opinion, too bad its stupid
I will never forget you Dan, you will be in my heart forever.
If there was internet in HEAVEN PEEWEETOM would had surely replied to you 😖
I really hope the afterlife is real and this man is happy and resting in peace
Mentally you must be unbelievably strong. Never seen anything like it. I would be in a constant fetal position and cry.
Very true and awesome message!
You would for a while but then you would come too terms with it... it's funny what humans are capable of
Me too
Very true I was just hibernating and throwing up
Jesus is the strongest chump
If it helps, you are the funniest terminal illness channel that I am following
Ha ha awesome :) I'll try keep funny :)
I appreciate your courage Tom. You are such a wonderful man. I’m sending you hugs everyday. I’m sorry you must go through this. Good luck with your surgery. Prayers and light all around you.
Go follow Emily Haywood 2 she’s awesome just like dan!
I don't see the humor....
Second Emily Hayward. You are funny and lovely!
Dan,
You are loved by people you have never met you are an inspiration
I think the man had it rough but you don't speak foe everyone skank
@@ladyinred9656 what the hell is your problem?
This man has forever changed my life! I'll never forget Dan! Life is so damn unfair! I hate cancer!!!!💙
I've never seen someone exude such inner strength and bravery face this disease down with his own touch of humour, a warrior to the very end. I've never met you but I'll never forget you, or your VBlogs. RIP Dan.
He had everything to live for.
When will get rid of cancer maybe in 200 years. RIP he was someone special
The worst part of going thru this journey with you is feeling hopeless, anxious this shit is growing by the second, desperately attempting to run for a solution that's not there, or trying to dodge a bullet when you're frozen. I am so sorry brother. Keep searching, keep fighting! You have thousands of people like me, who would do anything to help you, wherever they are in the world.
Cancer is a cruel beast. It took my mum from us before she died because it was so cruel to her.... you are doing great mate even though u feel like shit. Doing these videos gives u a focus and I think it’s very important when u are in this battle. You are one strong guy mate. Keep up the good fight!
Dear Daniel, my name is Belmarie Rivera, im from the Caribbean island of Puerto Rico, and tonight I’m praying to God for you, your health & your life. You’re not alone.
Deceased
September 28, 2018
12:35 p.m.
32 years old
R. I. P. Dan - Hero!
Thank you. This had ti be incredibly difficult.
but he inspired people, i almost cried for someone ive never actually met. thats a true hero
Dan's Funeral is in Weston Super Mare, England. Monday 8 Oct 3.30 pm 2018. Everybody is welcome. R.I.P. Dan m8. St Paul's Church Walliscote Road, Weston-Super-Mare BS231EF
@Griffiith The words 'hero' and ' brave' are overused in todays society however in Dan's case those words are apt and still apply.
💔
because of you I am looking tr my life in a whole different perspective. Hugs & prayers ( Judy )
Same.
Yep me three .. thanks Dan
Daniel, You are very handsome, even with cancer. Whoever said that you have to be brave? It's normal to be afraid. If you were not afraid, I'd think you were nuts! It's ok to be angry as well. I would be! You have to go through all the range of emotions before you can find peace and really begin to deal with this evil visitor who is trying to claim your body. My thoughts are with you, always...... 🙏🏻🙏🏻🙏🏻
Cathy Hopkinson I agree!! ❤❤
Monday, 12 April 2021
UK.
Just discovered your you tube video. Thank you for your legacy. You are giving hope to us.
I think of you often and miss your sense of humor and voice.It really sucks everything that you are going through.Sharing your tragic journey and traveling down this road with you has been an honor and privilege. Thank you for being in my heart and touching my skul.You are at peace now and free from physical and emotional
That's 100% true god took away the pain and let in peace and no more fear in his life to care of the world
This man has amazed me with his strength, but even more so with his attitude, his courage. I just love his personality. What a great man❤️❤️❤️
I found this guy just today and have binge watched his vids and I feel changed.
😇
Oh Dan...I am sad to see you hurting so very much. I am angry with the medical community for not moving your surgery up to help slow this cancer the hell down! Infuriating system! Very glad your going to spend time with family. Surround yourself with love... it's a powerful thing. Do what you want, when you want, however you want. Leave haters all behind. I will always be thinking of you and praying for you. Sending you many hugs. Can't wait to see you and the fam real soon. I hope you can have the best weekend you possibly can surrounded by pure love. YOU ARE A CHAMPION! I love your spirit.
Hi Dan. People need to see what cancer does to a person. Sharing what your going through is showing the devastating truth of your illness. It definitely helps those of us who care for loved ones who are feeling exactly like you are. 💔
Love you to you. ❤🌠
Words can’t express his bravery
I came across your videos over the last few days and I can't stop thinking about you and how terrible your situation was and how very sad it is but you battled your cancer so bravely and openly for everyone to see. Rest in peace.
Thinking about you today! Really hoping your pain and anxiety calms down with some passing time. Just want you to know I'm thinking about you and praying for you & your family! Sending big hugs
Thanks you so much :)
What Tiffany said perfectly.
Just stumbled onto this vlog and I am heartbroken for what Dan went through. Blessings and prayers to his family and friends. He was hysterically funny!
❤️I wish I found your videos before you passed away you were so strong
2020. I so miss your smiling face & amazing attitude 😢😢
Soooooooo sad 😭😭😭😭😭😭😭😭😭
Such a positive man with all of the horror and pain. So scary how fast your body deteriorates. So unfair and incredibly sad. RIP
We wouldn't want you to be anyone but who you are. Showing us who you are through this is what makes you special. I'm praying for your cancer and pain. Love ya.
You have become a part of my life. I check in on you daily. I want to hear from you. Your vlog gives me so much. A touch of humanity and confronting my own mortality. Thank you.
Fight the good fight. You've got a fantastic attitude with all of the problems you're facing. You're very inspiring I've faced stage 4 colon cancer and I've been blessed to be in remission for 2 1/2 years. I hope you're able to have good days through this troubled journey you show enormous strength and dignity💙
How are you now,Donna France.I hope you are well.
He fought the good fight, he never gave in, he never gave up. Until the very end he never did, was a true warrior.
Dan, Dan, Dan......oh how my heart breaks! You know you have people all over the world who now like you more than some of their own family....you are in our home and hearts every single day. Even though we haven't met you in person, this is the virtual world we live in and feel like we know you. You are so real, so raw and as humans we respond and relate to that. My point is we all love you now and of course every single day we are concerned with how you are. It's like waiting for that important update on your brother. We are all pulling so bloody hard for you, so damn hard. We can't lose you, we just found you! Our collective hearts are broken with your suffering and I know if there was anything ANY ONE of us could do to relieve it, we would do it in a nanosecond. Without question. Hoping beyond hope you feel better after your surgery. Sending you loads of love from Chicago ❤❤❤
L C what beautiful words! That’s exactly how I feel. He’s like a brother. I don’t have much family but I’d love to have him as my annoying little brother! OK? OK!
this comment, yes
Miss you, beautiful human.
I know you're not here anymore. But when you said " I just want my life back" made me cry because April 2020 I heard my Dad struggle to say the exact same words days before he past away💔 bless you Daniel
Hi Dan. I hope you don't mind me messaging you late at night. But I just wanted to say that I have massive respect for how you are trying your best to fight against such an unfair illness, and for your bravery with sharing your life challenges with us all, and inspiring us all with your determination, and your humour! Much love and respect to you bro!.. 💪❤
Also I have 3 chronic illnesses myself, not as challenging and hard as yours, but I kind of understand. I have Crohns disease, fibromyalgia, and M.E. and I just wanted to say that I have a lot of struggles with the routine of an ordinary life, and get long periods of being house bound and in pain, I'm up now unable to sleep because of it. I know I dnt know you. But if you ever need a lads chat late at night, or whatever. Pls feel free to message me anytime. Your videos, and your positivity, and courage really inspire me bro!.. x
So sorry Dan, thinking of you and Clair and your family. My sister is coming from England next week to visit I can't wait family is precious, I hope you get to see your Bro.
Hey Dan every one of our community are praying for you stay positive don't give in don't give up chin up and lots of love xxx
Hi Sweetheart....I know exactly where you are coming from with the pain and not being yourself anymore...I disappeared along time ago because of my illness's it strips every part of you away and that really hurts...In your head you think i want to do this i want to do that but your illness's stop you from doing them and i understand how frustrating that is for you sweetheart...It is so upsetting seeing you like this...After i left you a message yesterday i sat on my bed and cried thinking of you going through all this and how bloody unfair it is...I am glad you are going to see your dear family always such a pleasure seeing your Mum and Dad they are such lovely people bless them...I hope you have a special weekend with your family sweetheart...You are always in my thoughts...Sending you Claire and your dear family loads of love and big hugs xXx
We love you Dan!!😍😜😋😎🤩🧐😏😊😇😂 yes, we want to know how you are each day. I check you out every morning...even before I have my coffee! I am sending you big hugs and some chicken soup. Yes, we do love mommy and daddy. How are Dads 🦀 crabs? Lol........ta ta ba bye
Thank you Sharon for your post. You said something about the way cancer strips a cncer paitent. I have felt this way for 23 years and it isnt something that anyone else understands. My cancer was Stage 3b inflammatory carcinoma breast cancer. I was not expected to live 1year, much less 2 years. I positivelyknow i am here because of the grace of God. But being stripped of yourself ..... who you are doesn't leave.
You won your place on the sky big boy !!!RIP.
Cancer sucks..from one survivor to another...feel your feelings and take care of you. This vlog is good for you..hugs back to you!!!
fudge cakes I love it I shall adopt that saying & when people ask where I got that from I shall say my special from Dan over the pond !!
Yes Daniel................keep the video's coming! you are such and inspiration!
It’s ok to say ok!! I love it when you say ok! Thinking of you all the time. We all want to leave a legacy. Your experience shared in these videos is your legacy❤️
I just want to give you a big mumma hug.i have a son who is the same age as you.my heart goes out to you.i wish I could take your pain away.you are such a lovely guy and I really hope the doctors can zap your cancer and enable you to have some good quality time with your family and friends pain free.💕🌻🌼🌾
I just happened to come across Dan and his amazing blogs ! Dan , how incredibly sad your story made me feel. I felt devastated that your life was cut SO very short ! 😪 I just can't imagine your nightmare. How I wish you could have beaten this. I am just one more person whose life you have touched even in your passing. I've never hoped for an afterlife as much as I do now, at this very moment, feeling your desperation for life to continue. A big, love filled hug man, wherever you are . XxX 💜
❤❤❤❤ DAN YOUR A HERO !!! YOUR THE REASON... THAT SO MUCH HAS BEEN DONE FOR RESEARCH!!! THAT WILL HELP PEOPLE WITH YOUR TYPE OF CANCER!!! HEROE'S NEVER DIE... THEY JUST CHANGE LOCATION'S..❤
Hi Dan, for totally different health reasons to you as I have different long term issues, I understand to some degree what it's like to live with 24/7 unrelenting, unremitting serious pain. It's so so difficult and like you say it's all pervasive and why we try to keep a sense of humour as that does help. It doesn't take away the pain by any means, but it does help us crack a smile and struggle on coping. Yours is way worse than mine but I just hope it helps to have people commenting who may be able to understand a little. Very gentle but big hugs from Chester, Uk xx
RIP Dan. Loved watching your videos. You educated me on cancer and enjoyed how you handled a bad situation. Trying to make it through my own petty issues in life and you helped me see things that matter. Tata and goodbye.
Daniel, I am so sorry that you are feeling so sick....I understand the pain. Don't be so hard on yourself, you are doing more than most. Thank you so much for vlogging and posting. Sending you a hug from Sunny Florida. Go rest. 😉👍💖💋🌞🌴🐚🐬
Nancy Peteja Florida Love
Nancy Peteja I'm sending love from Florida too 💝
*Big massive hugs* to you, Dan ❤ Am upset seeing you like this. This makes me so sad and frustrated with the hospitals making you suffer like this. Sending positive vibes and love your way ❤❤❤
♥️so brave doing this even with how sick you are. A comfort to people who are going through similar & us who have experienced loss. Thank you Dan your legacy lives on more than you could imagine
Dont give up and don't give in! Your in a world of pain and you still stick by your motto, love it Dan!! I hope you are feeling better by the time you read this. Sending you a big fat hug. Dont give up and don't give in angel💛💛💛💛💛
Hi Dan, you touch peoples heart when you talk. That's why your channel is growing so fast. You hang in there. Things are going to get better. Your friend Peter
You taught me how to live how to love our life.. How to be happy in every odd situation.. U r my inspiration daniel thomas... Really you are still alive... 😊
I'm Team Ok! I don't know what else to say. My eyes are tearing up. You're a class act, Daniel. x
I"m Team OK too... it"s a great team.
Mate... keep saying OK. It's your call sign. Your channel is the best of the cancer sufferers. Your channel will live on forever.
As much as it is heart-wrenching to see you suffering to move ahead, one thing is sure --- you will be a part of my consciosness forever, and will continue to be a reminder of how to face adversity with courage and hope . My hat's off to you for enlightening others in dealing with all manner of life struggles. You are a light that testifies to the strength of the human spirit . You remain my undefeatable hero . Sending warm hugs and massive amounts of hope and support.
Dan, you have a beautiful extended family here....we all love you, support you and are praying for you! We hate to see you suffer but know in some small way we are here for you! God loves you!!! and is with you always!!!
dear Dan, you don't have to worry about editing. I love old school and off the cuff. wish I could take all your pain away. I do hope you have a better weekend at Mom and Dad's, and look forward to seeing them too. big hug.
We deeply appreciate you, Daniel. You have helped me to carry my own 'cross" with a little bit of the dignity, grace and courage that you have shown.
Oh my goodness Dan how are you doing this video! You are simply amazing and funny. In spite of it all, you have a great fighting spirit! I am praying you will find the solution to your pain soon I was in tears seeing you suffer like this. You are young and strong to keep fighting this and be victorious!!!
Allie DeVincenzo i
I'm 29 years old, I'd give you half my life if I could. Hang in there! Keep going. There's nothing to lose. You have the right to feel devastated, dont spend too much energy on trying to ''look strong'' for others. I feel like you're already doing a heck of a good job! Keep vlogging, I love it! I hope you get some relief and find the cure! xoxoxox
What Dan said there really resonated with me 'I have had enough, I just want my life back'. As someone who's also battling cancer Dan I understood you better than anyone, I wish you could have had your life back. It pains me that this disease has ripped you away from the beautiful life you had ahead of you. I'm sorry Dan I honestly am.
You are an example!! I admire your brave way of being!!! Fight and beat it!! Hugs 🤗🤗
Hi Dan, I’m here today to check on you and share a hug and a joke 🤗😉 I deeply appreciate the fact that you are using a huge chunk of your daily energy just to keep us updated 👨🏻💻and I hope you will feel better tomorrow ❤️
Totally agree, what a wonderful person he is ❤️
Enjoying doing your vlogs we all love to see how you are everyday your honest and tell it how it is teaching and learning people about this awful illness keep yourself positive dan its your life f cancer. X
Daniel, you have such a fighting spirit, which is wonderful. Until the end, there is always HOPE!
Keeping you in my prayers.
Sending you a great big virtual hug. . Xoxo ❤ from the USA
We think the world of you we are all here for you be yourself I will try as a nurse and see what treatment available xxxx ❤️❤️❤️❤️❤️❤️
Yes, we appreciate everything you give us! I know that it takes every ounce of strength in your body to give us these videos every day. We love you. Take the time to rest that you need.
Love you and God bless little brother!!
Hugs and continual love Daneil!!
I think these videos are a great way for you to vent. A video diary in other words. Don`t hide your pain from your family. They seem to very supportive and wouldn't mind being there for you. I log in to you tube every day just to see how you are doing. Hugs to you Dan,
You are the most wonderful & honest person I’ve ever come across, I’ve never even met you, I wish I could take this all away from you, your an Angel & again I’m so deeply sorry
Keep up the good fight DAN. We keep on praying for you to live longer and enjoy life. More hugs of love and prayer for you....God bless you more.❤️❤️❤️❤️🙏🙏🙏🙏
You are a true inspiration. I told my 14 yr old daughter all about you & what a strong , kind, caring individual you are. As always, you are in my thoughts xx
Oh Dan - I really hope that the surgery brings you some relief and that you're able to make your way to being yourself again. I've just found your channel, but if any of us can offer you any support, you must not be afraid to ask for it! And keep vlogging as long as you enjoy doing it!
You're such a positive person, which is the way it should be, rest now and enjoy your peace
Wish I could squeeze you. Get some rest if possible and YES all your effort is truly appreciate. I will see you tomorrow.
Dan, I followed you when you were alive and I'm sure you're smiling that big smile knowing that your videos are still being watched daily. You only left behind your body, but your spirit is still strong.
You tube to me ....means Daniel 🍀🍀 l now watch with silent tears....U r amazing xx
If you don't say okay at the beginning we will all worry ...Its YOUR word now so use it as often as you want...Massive hugs and love from me and my family to you and yours.❤Xxxxxxxxx
*O k a y!* 💪❤💪 #DansArmy
All sending *You* continued *Love, Huggs, Strength, Positivity & Prayers* and for *Claire, Mum & Dad, & all who love you* 💕😘💕
*WE* #DontGiveUpDontGiveIn
*WE* #LoveYouDan 💪💗💪
"Nobody puts Baby in the corner!" Even in pain you still make people smile, thanks Dan!
Dan, you are in my thoughts and prayers. I’m so sorry that you’re having to deal with this. I went through my dad’s cancer journey and stayed by his side. I’ve witnessed first hand the ups and downs, the good days and bad. You have been so brave to share this with so many people. You take care and God bless you❤️
I just wish i could hug you. Your strength is such an inspiration. Love from NY
Am so sorry you have to go true all of this. I will keep you in my prayers😘
Just be yourself Dan, you've put on a brave face for too long. We can see the discomfort you are going through, as well as many other emotions - you have done amazingly well standing up to this dreadful illness. We are all here to provide support & that includes the hard days/nights as well as the good. I guess what I'm trying to say is don't be afraid to share your more challenging days. Love & light to you, take care 💜💜💜
Never be a fake or try to be brave ,be yourself ,if you don't feel good ,scared,upset just show it .,You are right, hope and laughter is good for the soul when you can be this way .i am a realist with knowing how things really are but fighting and not giving up is great way to bring that hope so hugg to you for trying hard .
I love you saying "OK"! Please don't stop saying it! XX
So praying for you - seek peace - I know that sounds trite, yes, it does, but seriously, your honesty is so appreciated, and keeping you in my prayers. My prayer is for you to achieve some level of peace to embrace the "new you." You are changing lives, helping people, probably saving lives with your videos/blogs. Keep going as long as you can.
It breaks my heart to see you in so much pain, Dan. I wish so bad I could help you somehow, I pray everyday for the surgery to work and make you feel better. Thank you for doing what you do, you are awesome!
Here a huge bear hug! You deserve it and love hearing you try giving up!!!
Never give up! You’re gonna get through this and be better than ever 🙏🏼x
You are so real & so alive! I pray your pain can be managed well. I know you’re so sick and thousands of us are praying for you every day. You’re in our lives and you touch our hearts ❤️ often with your amazing vlogs. Thank you for sharing your story with us. You’re a strong man who is amazingly positive despite your illness. We all love and adore you!! 🙏🙏🙏💙💙💙🙏🙏🙏
You are an inspiration and enjoy your videos explaining your journey. Had some health issues and had a biopsy and waiting on results....all a waiting game now n it's the uncertainty that drives you nuts. Keep your videos coming they offer so much comfort. Good job! From ya number one Cyprus fan Dee xx
Dan even though you’re not here in body anymore you live on in spirit. Your death was nothin vain. Everyday new viewers like me learn something about life and how to live it because of you. You will never really die. You are still here helping people every day. Thank you.
What a brave and dedicated man . Thru his pain he found time to laugh and explain to all of us his journey to where we learned and become compassionate for another human being uncertainty. He loved life and he never blamed life
Daniel, I wish I could give you such a BIG HUG 😔 I am praying for you, we love you!! ❤🌸❤🌸❤
DONT GIVE IN DONT GIVE UP! Dan
And yes we love to hear how you are.
You are an inspiration to the CANCER... I know you’re suffering and finding so many things a lot harder right now, but remember everybody is loving you through this difficult time, you make a difference every day Dan
Much love, please look after yourself. Love you, send my love to the family ok 👍🏻🙏🏼🦋❤️🍀💋xxxxxx
Was so sad when you left this world Dan still loved still missed ta ta bye bye xxxxxxxxxx
You're so young. God cancer really doesn't discriminate. I'm so sorry. Your attitude is amazing. Definitely rooting for you.
I’ve only been a viewer of your vlog for a month or so. As a registered nurse, it’s very hard for me to see you in such great pain but you are giving awareness to this horrific diagnosis through your daily vlogging. You, Dan, are an inspiration to me...I’m not sure I would be able to handle what you are going through with much dignity. I love your humor! Keep on fighting!!! Prayers and thoughts from Tampa, Florida!
Susan Little I agree with you. Dan breaks my heart. Praying for him and his family. 💓
Soooooooo sad 😭😭😭😭😭😭😭😭😭
I am so glad you are being honest with your feelings. Get them out. Holding them in feeds our illness. If vlog is too much, blog is good. You have a beautiful spirit, be good to yourself.💞