Got severly ill in April 2020, so 27+ months here. NO day since the infection that I havn´t had a hard time breathing, horrible vibrations and clinical proven arrhytmias. These are the two worst symptoms, the other 25 I just try to suppress. Still cant walk more than 2-400 meters. I am certain that the brain (medula oblongata) is damaged and/or the connections to the vagus nerve, hence there is no sign of any organ damages. Life is..... shattered... and a living nighmare. I am almost certain now that this state could be permaent hence the long time that has passed since i got infected. I would like for all of you to get well again! Keep strong
Thank you for your well wishes. I am so sorry to hear that you have had such a challenging experience of long covid. It really is heartbreaking to hear and I can only pray that things do get easier for you as time goes on. Keep strong too.
it helps me to hear others tell of their experience with long covid. It does make a difference to know you are not alone; to hear someone else totally understanding and describing what this really feels like. Thank you!I am at one year now from the first time I had covid and three months out from the second time. (yep, I have had it twice). About a week ago I had the best day since the start. I ws to happy. It is hard to even describe how happy it made me to have that much of a feeling closer to health. Of cours I over did it and am now dealing with the backlash a week later. But still... having that good day gave me so much hope. Recognizing, respecting and caring for that baseline is so important! It is hard to not overdo it upon improving, but essential.
Hi Laura, I am sorry to hear you are going through LC too and thank you for sharing your experience. I can completely relate to the challenge of respecting the base line. It is hard not to overdo it especially when you finally have a better day and have the energy to do more. I find it a constant balancing act of doing enough to stay sane but not too much to overexert. It takes time to learn a new way, I have been doing this for 2 years and still find it so challenging to have the same attention and care for the healing process on the better days. If you had one good day trust that there is the potential for more good days. Wishing you the best for your continued healing.
I sleep with a gun under my pillow and every morning I consider using it on myself. Everyday is a nightmare, thank you for giving us some kind of hope that things can improve over time. You look healthier in each video.
Hi Chael, I am so sorry to hear you are going through such a rough time. Long Covid is a challenge. I really hope that you are able to feel some ease and relief soon.
Chael, I hope you can find the resilience and fortitude to keep going. It has to get better at some point. You have coped so far and when you feel in the depths of despair perhaps you can remind yourself that as hard as it is, you have managed to hold on so far. That takes strength. I hope that you can give yourself another chance every day. When I feel that I am hitting rock bottom, because it is so unbearable, I realise that there is only one direction that I will go willingly, and that is to continue my search for better health. I hope and pray that you can feel encouragement and improvement. x
I totally get it, Chael. I can’t say I hope you learn to live with it, because the depression and fear is psychologically damaging, but I pray that you do find a way to find a “purpose” or a “reason” for all of this
I don't dare to look ahead in months let alone a year. When I'm worn out I don't resist. Frustration is ok. Good days of course are very much appreciated. But yeah...the symptoms are known but yet I have to remind myself not to"run from it." A lonely struggle but people who only just listen are making it less lonely.
Thank you for this encouraging video. I've been watching some of your other ones as well. I'm 3 months in. I also developed covid pneumonia and I'm still on oxygen as a result. Thank you for sharing your story and giving hope to LC sufferers!
This virus is something else, i have done every possible medical test and all specialists in medicine. Everything seems normal but I feel like shit, every day is struggle, finally someone told me its dysautonomia POTS neurological issues and will take years to resolve. I'm hoping for a miracle from God. This is simply the worst thing i have suffered.
I am happy to hear that you were able to finally get some answers, this is already a huge step forward. A prognosis of years of recovery ahead can feel very daunting, I would remind myself that now that you know what needs healing you can focus your efforts and attention there. It may not take so long to begin improving your quality of life.
I had a lot of POTs symptoms and I’m almost out the other side 15 months later.. I know others with POTs symptoms who have recovered after a year. Mindset is EVERYTHING! You have to believe you will recover :)
I have a nephew and cousin who have POTS. They use compression socks/nylons to improve circulation, Hesrt medications called Beta blockers, increased salt consumption as well as having things like GATORADE on hand have significantly improved their quality of life.
I think a lot of it is time but also I found restorative yoga and pacing helpful for regulating the nervous system. Also gently increasing exercise (the body does push back) really helped to increase my tolerance for movement
Have you tried antihistamines? I suffered for over 2 years too. There are Dr.s that have long covid and they are trying antihistamines, so I tried Benadryl at night and it has changed my world! Best wishes to a full recovery.
@@felipejotz7054 It worked for my constant fatigue / exhaustion. Are your lungs stopping you from exercising? I have only been taking Benadryl for 4 nights and I felt 75% better the next day and now I feel 90% better.
@@krg9942 no problems with my lungs. I just feel fatigued and get symptoms of breathlessness if I exercise too intense. During the exercise I feel fine ,it is the post exercise malaise that is the problem, 2 hours later.
@@felipejotz7054 I just watched your video Groove rider creep! That music is amazing! Are you the singer? Also, I may suggest taking it easy trying to recover from covid. It took me months to be able to walk for any distance and I was & am in good shape.
@@krg9942 haha tks, I wish I could sing. That’s my friend from Brazil, I just played the drums. Yes, I know we must be patient but it is so hard to refrain from exercise. July 16 th will be 2 months since I got covid and feels like an eternity. Now Im gonna try fasting for a few days to see if I get some improvement.
Did your hair come out? That’s where I’m at right now. I started out with a lot of long hair. I’ve lost about 3/4ths and my scalp is itchy. Just found out about pumpkin seed oil capsules. Hope you have a good day.
Oh my gosh YES! I had so much hair come out, in the months following initial infection and then during relapses. I am hoping to share a video soon on what has helped my hair. I hope the capsules help and would be interested to hear how you get on with the pumpkin seed oil. Wishing you a good day too.
I'm at 7 months post Covid. I've lost at least 2/3 of my hair along with terrible sinus drainage, irritable bowel syndrome, hoarse voice, exhaustion, breathlessness, and I continue to cough. But I'm down to 4 liters of oxygen with activity and 2 liters resting. I have oxygen with me at home. I was in the hospital for almost 4onths. I'm now in pulmonary rehab twice a week. I'm slowly getting better but my progress is very slow. Don't lose hope or give up! You will live to fight another day!
Nancy Christensen Were you a smoker or have other health issues? I’ve never really even caught colds much but this virus almost got me. I am older at 66 but was healthy and still working. Was speaking to an ex coworker and she said she couldn’t speak well and was clumsy. Me too. Sounds like it really went hard on your resp. system. Mine not quite as bad but I was on home o2 for a month. I’m sure it compromises our immune systems. I’m taking all the dang vitamins. Doing anything is hard. I still have some hair but not much. Good luck with your fight.
I am so sorry to hear your going through such an intense period. I can only speak from my own experience and I am over 2 years and still very much in the healing process. I think it differs greatly person to person. I can say that I have felt close to death myself and even hoped for death at times just to be released from this experience and it did pass. I really hope that this period you are currently in passes very soon and you feel more ease and strength.
@@njoyliving The way the doctor said 2 years with such confidence and said I would get better, but minimized my symptoms, yet doesn’t know what the heck is going on asking me, and all the “it’s possibly psychosomatic” discussions that I’ve had to go through makes me not believe anything she says. It’s life crushing being this sick but then having people doubt you on top of it…Ugh
@@sloth6247 that is so sad that docs are suggesting its psychosomatic… post viral illnesses are known to exist for many other viral infections including sarscov1… why would this be any different? It affects multiple organ systems including the nervous system/immune and GI systems, and therefore contributes to neurological symptoms as well as psychological symptoms. How is a doc working as a long covid clinic not aware of this/ suggesting psychosomatic instead of acknowledging the neuro/psychological affects of the illness? It’s laughable. I am 8 months in post vaxx injury+concurrent infection and a reinfection. It gets better. I still have bad days where I feel like I cannot see the light. I haven’t been able to eat foods, mostly rice and a few veggies that don’t cause issues but at least eating this way keeps most of my symptoms at bay. My energy is getting better. Been to 6-7 different docs/specialists and 3 different ERS. They don’t know much tbh. I am on antihistamines (Allegra and Pepcid) and low histamine, low inflammation diet. Those things, plus my vitamin protocol, red light/NIR therapy/ trying to walk and get sun, doing my best to calm my body down, have been the most helpful things. If you aren’t on Reddit yet, look up the covidlonghaulers sub there, or go on fb groups where people share info and try the protocols suggested. It’s a lot of trial and error but at least its something.
@@janet6909 I was offended when the long covid doctor suggested it as well as the cardiologist and my PCP for 1 1/4 year. They were suggesting that covid gave me a mental Illness. It wasn’t until they could physically see that something was going on that they took me seriously or they’re kids got sick. I feel like I’m getting better and at times I almost feel back to normal but then I regress. I’m wondering if this is how it’s going to be or if I’m going to make a full recovery. I have the dysautonimia and some vein and arterial damage that I’m worried won’t get heal😢.
I have not experienced symptoms of chest pain. Although I still experience some brain fog I do believe it has reduced and find I have clarity to listen to podcast, webinars and even do some reading which were all things I found very challenging before. I hope to share a video soon with updates on my healing🙂
Got severly ill in April 2020, so 27+ months here. NO day since the infection that I havn´t had a hard time breathing, horrible vibrations and clinical proven arrhytmias.
These are the two worst symptoms, the other 25 I just try to suppress. Still cant walk more than 2-400 meters.
I am certain that the brain (medula oblongata) is damaged and/or the connections to the vagus nerve, hence there is no sign of any organ damages.
Life is..... shattered... and a living nighmare. I am almost certain now that this state could be permaent hence the long time that has passed since i got infected.
I would like for all of you to get well again!
Keep strong
Thank you for your well wishes. I am so sorry to hear that you have had such a challenging experience of long covid. It really is heartbreaking to hear and I can only pray that things do get easier for you as time goes on. Keep strong too.
I love you, just for living with this and helping me to not feel alone😢
@@vjcarter4657 sending you lots of love and hope that you continue to heal each and every day!
it helps me to hear others tell of their experience with long covid. It does make a difference to know you are not alone; to hear someone else totally understanding and describing what this really feels like. Thank you!I am at one year now from the first time I had covid and three months out from the second time. (yep, I have had it twice).
About a week ago I had the best day since the start. I ws to happy. It is hard to even describe how happy it made me to have that much of a feeling closer to health. Of cours I over did it and am now dealing with the backlash a week later. But still... having that good day gave me so much hope.
Recognizing, respecting and caring for that baseline is so important! It is hard to not overdo it upon improving, but essential.
Hi Laura,
I am sorry to hear you are going through LC too and thank you for sharing your experience. I can completely relate to the challenge of respecting the base line. It is hard not to overdo it especially when you finally have a better day and have the energy to do more.
I find it a constant balancing act of doing enough to stay sane but not too much to overexert. It takes time to learn a new way, I have been doing this for 2 years and still find it so challenging to have the same attention and care for the healing process on the better days. If you had one good day trust that there is the potential for more good days. Wishing you the best for your continued healing.
I sleep with a gun under my pillow and every morning I consider using it on myself. Everyday is a nightmare, thank you for giving us some kind of hope that things can improve over time. You look healthier in each video.
Hi Chael,
I am so sorry to hear you are going through such a rough time. Long Covid is a challenge. I really hope that you are able to feel some ease and relief soon.
Chael, I hope you can find the resilience and fortitude to keep going. It has to get better at some point. You have coped so far and when you feel in the depths of despair perhaps you can remind yourself that as hard as it is, you have managed to hold on so far. That takes strength. I hope that you can give yourself another chance every day. When I feel that I am hitting rock bottom, because it is so unbearable, I realise that there is only one direction that I will go willingly, and that is to continue my search for better health. I hope and pray that you can feel encouragement and improvement. x
Things will get better - hope you can find the right help and get better, even if it is a long slow process
I totally get it, Chael. I can’t say I hope you learn to live with it, because the depression and fear is psychologically damaging, but I pray that you do find a way to find a “purpose” or a “reason” for all of this
Hi Chael, I wanted to check in and see how you are doing.
I don't dare to look ahead in months let alone a year. When I'm worn out I don't resist. Frustration is ok. Good days of course are very much appreciated. But yeah...the symptoms are known but yet I have to remind myself not to"run from it." A lonely struggle but people who only just listen are making it less lonely.
Thank you for sharing this great advice!
Thank you for this encouraging video. I've been watching some of your other ones as well. I'm 3 months in. I also developed covid pneumonia and I'm still on oxygen as a result. Thank you for sharing your story and giving hope to LC sufferers!
Hi Jeanne,
I am so happy to hear that this video and sharing my experience has offered some hope 🙏
Wishing you so much good health and healing.
got it have it an now kicking its butt!
maga up on D3 60000+ VD 2000+ Niacin 1000+ Zinc an antihistamine
an start at your comfort level, an walk
This virus is something else, i have done every possible medical test and all specialists in medicine. Everything seems normal but I feel like shit, every day is struggle, finally someone told me its dysautonomia POTS neurological issues and will take years to resolve. I'm hoping for a miracle from God. This is simply the worst thing i have suffered.
I am happy to hear that you were able to finally get some answers, this is already a huge step forward. A prognosis of years of recovery ahead can feel very daunting, I would remind myself that now that you know what needs healing you can focus your efforts and attention there. It may not take so long to begin improving your quality of life.
I had a lot of POTs symptoms and I’m almost out the other side 15 months later.. I know others with POTs symptoms who have recovered after a year. Mindset is EVERYTHING! You have to believe you will recover :)
@@katiemcdonnell8777 that's great, can you tell me what did you do or any specific meds that helped you.
I have a nephew and cousin who have POTS. They use compression socks/nylons to improve circulation, Hesrt medications called Beta blockers, increased salt consumption as well as having things like GATORADE on hand have significantly improved their quality of life.
I think a lot of it is time but also I found restorative yoga and pacing helpful for regulating the nervous system. Also gently increasing exercise (the body does push back) really helped to increase my tolerance for movement
Have you tried antihistamines? I suffered for over 2 years too. There are Dr.s that have long covid and they are trying antihistamines, so I tried Benadryl at night and it has changed my world!
Best wishes to a full recovery.
How long do you have to take benadyl for? Im taking and felt a bit of improvement but still cannot exercise.
@@felipejotz7054 It worked for my constant fatigue / exhaustion. Are your lungs stopping you from exercising?
I have only been taking Benadryl for 4 nights and I felt 75% better the next day and now I feel 90% better.
@@krg9942 no problems with my lungs. I just feel fatigued and get symptoms of breathlessness if I exercise too intense. During the exercise I feel fine ,it is the post exercise malaise that is the problem, 2 hours later.
@@felipejotz7054 I just watched your video Groove rider creep! That music is amazing! Are you the singer?
Also, I may suggest taking it easy trying to recover from covid. It took me months to be able to walk for any distance and I was & am in good shape.
@@krg9942 haha tks, I wish I could sing. That’s my friend from Brazil, I just played the drums. Yes, I know we must be patient but it is so hard to refrain from exercise. July 16 th will be 2 months since I got covid and feels like an eternity. Now Im gonna try fasting for a few days to see if I get some improvement.
Did your hair come out? That’s where I’m at right now. I started out with a lot of long hair. I’ve lost about 3/4ths and my scalp is itchy. Just found out about pumpkin seed oil capsules. Hope you have a good day.
Oh my gosh YES! I had so much hair come out, in the months following initial infection and then during relapses. I am hoping to share a video soon on what has helped my hair.
I hope the capsules help and would be interested to hear how you get on with the pumpkin seed oil. Wishing you a good day too.
I'm at 7 months post Covid. I've lost at least 2/3 of my hair along with terrible sinus drainage, irritable bowel syndrome, hoarse voice, exhaustion, breathlessness, and I continue to cough. But I'm down to 4 liters of oxygen with activity and 2 liters resting. I have oxygen with me at home. I was in the hospital for almost 4onths. I'm now in pulmonary rehab twice a week. I'm slowly getting better but my progress is very slow. Don't lose hope or give up! You will live to fight another day!
Nancy Christensen Were you a smoker or have other health issues? I’ve never really even caught colds much but this virus almost got me. I am older at 66 but was healthy and still working. Was speaking to an ex coworker and she said she couldn’t speak well and was clumsy. Me too. Sounds like it really went hard on your resp. system. Mine not quite as bad but I was on home o2 for a month. I’m sure it compromises our immune systems. I’m taking all the dang vitamins. Doing anything is hard. I still have some hair but not much. Good luck with your fight.
I know how you feel, I caught Covid in January 2022.
The long covid clinic keeps saying is a 2 year recovery. Is this true? Because it feels like I’m close to death.
I am so sorry to hear your going through such an intense period. I can only speak from my own experience and I am over 2 years and still very much in the healing process. I think it differs greatly person to person. I can say that I have felt close to death myself and even hoped for death at times just to be released from this experience and it did pass. I really hope that this period you are currently in passes very soon and you feel more ease and strength.
@@njoyliving The way the doctor said 2 years with such confidence and said I would get better, but minimized my symptoms, yet doesn’t know what the heck is going on asking me, and all the “it’s possibly psychosomatic” discussions that I’ve had to go through makes me not believe anything she says. It’s life crushing being this sick but then having people doubt you on top of it…Ugh
@@sloth6247 that is so sad that docs are suggesting its psychosomatic… post viral illnesses are known to exist for many other viral infections including sarscov1… why would this be any different? It affects multiple organ systems including the nervous system/immune and GI systems, and therefore contributes to neurological symptoms as well as psychological symptoms. How is a doc working as a long covid clinic not aware of this/ suggesting psychosomatic instead of acknowledging the neuro/psychological affects of the illness? It’s laughable. I am 8 months in post vaxx injury+concurrent infection and a reinfection. It gets better. I still have bad days where I feel like I cannot see the light. I haven’t been able to eat foods, mostly rice and a few veggies that don’t cause issues but at least eating this way keeps most of my symptoms at bay. My energy is getting better. Been to 6-7 different docs/specialists and 3 different ERS. They don’t know much tbh. I am on antihistamines (Allegra and Pepcid) and low histamine, low inflammation diet. Those things, plus my vitamin protocol, red light/NIR therapy/ trying to walk and get sun, doing my best to calm my body down, have been the most helpful things. If you aren’t on Reddit yet, look up the covidlonghaulers sub there, or go on fb groups where people share info and try the protocols suggested. It’s a lot of trial and error but at least its something.
@@janet6909 I was offended when the long covid doctor suggested it as well as the cardiologist and my PCP for 1 1/4 year. They were suggesting that covid gave me a mental Illness. It wasn’t until they could physically see that something was going on that they took me seriously or they’re kids got sick. I feel like I’m getting better and at times I almost feel back to normal but then I regress. I’m wondering if this is how it’s going to be or if I’m going to make a full recovery. I have the dysautonimia and some vein and arterial damage that I’m worried won’t get heal😢.
Anyone from India suffering from long covid symptoms ? Because doctors in India not believing my horrible symptoms 😢
Haw are you now ?muscle contraction spasm .. chest pain ..
brain fog..
can you share your experiences
clue ?
Thank you
I have not experienced symptoms of chest pain. Although I still experience some brain fog I do believe it has reduced and find I have clarity to listen to podcast, webinars and even do some reading which were all things I found very challenging before. I hope to share a video soon with updates on my healing🙂
It’s a long process