Precision medicine ethics: Navigating genetic screening with care

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  • Опубліковано 10 жов 2024
  • With the dramatic increase in precision medicine research, there is a growing need to consider the ethics of genetic screening programs. This webinar, hosted Sano Partnerships Lead Lindsey Wahlstrom-Edwards, dives into different types of genetic screening programs, provision of services, and the ethical considerations of population-level testing programs. The conversation focuses on programs in the United States, and touches upon the federal protections granted through GINA and coverage for individuals diagnosed through testing that is provided through Medicaid and other federal programs.
    Guests include
    Erica Barnes, Executive Director, Minnesota Rare Disease Advisory Council
    Christine von Raesfeld, CEO, People with Empathy, & Committee Member, Partnership for Quality Measurement
    Jean Swidler, Executive Director, End the Legacy
    Molly McGinniss, Sr. Director, Client & Partner Relations, PopGen Counsel, Genome Medical

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