As sad as the topic is, this is a wonderful interview. Deborah Kan asked the questions that people struggling for answers want to know, and Katie Brandt answered them in concise, heartfelt answers that were easily understood by people unfamiliar with this disease. Thank you ladies, and thank you Katie for taking the tragedies in your life and turning them into thoughts to help others.
Had a friend get it at 30. His was diagnosed After accidently getting in a closet and couldn't get out. Dial a random number and they called 911. He died 9 months later. RIP kelly
My dear husband was diagnosed with FTD primary progressive aphasia at the age of 77. He lived for three years and I kept him home until 15 days before he passed away. He was at the hospice house for the last 15 days of his life. It is quite different from BV FTD as well as Alzheimer’s. I miss him terribly but am so glad I got to keep him home. It was the hardest thing I have ever done but I wouldn’t trade a min. Of the time we spent together.
I have never heard of this nightmare! Just goes past heartbreaking!!! My deepest sympathy, I can’t imagine. I am so very very sorry! The loss of such a brilliant mind, is a great loss to society as a whole!
Deb as someone with FTD I can tell you that one of the worst things you can say to someone living with dementia is that they don't seem /look like they have dementia as it very demeaning.
I don't understand? If I said you don't look like you have dementia... Dementia really doesn't have a look on most!? I think with my dad o said, out loud to company, I don't know if it's dementia CZ doesn't get aggressive, doesn't escape it and I think he is maybe depressed.... I don't do this now. But,.why does this seem demeaning? Respectfully I ask.
Can this video please be relisted under the title 'Frontotemporal Dementia'? It would certainly help those of us searching for info on this particular illness. Thank you.
Your such an awesome and strong young women. Your family members were so Blessed to have you with them. God Bless you. How is you child doing now and how did all this effect him ?
How sad...I fear for her son, in the future, whose father got this terrible condition, along with his grandfather on the other side of the family who had Alzheimer's.
I kno right☹️She said her husbands family didn’t have it but I’m wondering if there’s family history, does that guarantee you’ll get it too? This is so unfair! It’s like dam if u do, dam if u don’t🤷♀️
@@YugoslavGirl - It is very easy to inherit your family's diet. When someone is diagnosed with dementia, they should stop eating plants and take the 90-day beef, butter, bacon, lamb, and egg challenge. Some folks respond in a matter of hours.
🙌🙌🙌🙌😪😪Thank You!! How heartbreaking!!! But Amazing Courage & Strength 🙏🙏😇💖💖💖🌠👣God Bless 😇 Most all alcohol/drug abuse is do to mental or Trama related personal choice to try to cope with whatever the person is trying to hide/ cope with. Why stigma to mental health must change 🙏🙏🙏✌👍💖🌠😇
Hello...my name is sayali Age 30...during my pregnancy I noticed that I am forgetting things, spelling , names and all...i am a nurse by profession I thought it's pregnancy and baby stress that I am forgetting quickly...but now I think there is something wrong with me..is it early signs of dementia?? It's been nearly 2.5 year m suffering with this What should I do ?
I am a Neuro icu nurse and I’m having difficulty with aphasia and short term memory mostly. Communication is so difficult for me. Comprehending text, spoken words, forgetting names, conversations, keys, everything… I tend to describe what objects look like or nearby things that can give context clue to what I’m actually trying to communicate. My boyfriend and best friend are always completing my scentences for me. when trying to think of the actual word in my head it’s an incredible struggle. I’ve been contemplating quitting my job b/c I can’t mentally keep up. I am meeting with a Neuro Psychologist to hopefully get some answers.
It’s important for all women but especially those who have just given birth to have their TSH & their thyroid antibodies levels checked. Both being abnormal could cause these same symptoms. If they’re normal levels move onto a Neuro doctor especially those of you who are in professions in which patients rely on you to be at your best.
amazing information thank you amazing information thank you amazing information thank you amazing information thank you amazing information thank you amazing information thank you amazing information thank you amazing information thank you amazing information thank you
This is what my brother-in-law has. He was diagnosed with Alzheimer's but I knew within about a half hour he didn't have Alzheimer's (my mother died of Alzheimer's). He has FTD.
As sad as the topic is, this is a wonderful interview. Deborah Kan asked the questions that people struggling for answers want to know, and Katie Brandt answered them in concise, heartfelt answers that were easily understood by people unfamiliar with this disease. Thank you ladies, and thank you Katie for taking the tragedies in your life and turning them into thoughts to help others.
Had a friend get it at 30. His was diagnosed
After accidently getting in a closet and couldn't get out. Dial a random number and they called 911. He died 9 months later. RIP kelly
Oh my God.
Sounds like BS.
My dear husband was diagnosed with FTD primary progressive aphasia at the age of 77. He lived for three years and I kept him home until 15 days before he passed away. He was at the hospice house for the last 15 days of his life. It is quite different from BV FTD as well as Alzheimer’s. I miss him terribly but am so glad I got to keep him home. It was the hardest thing I have ever done but I wouldn’t trade a min. Of the time we spent together.
I have never heard of this nightmare! Just goes past heartbreaking!!! My deepest sympathy, I can’t imagine. I am so very very sorry! The loss of such a brilliant mind, is a great loss to society as a whole!
Gosh so young .That's really tragic .
Deb as someone with FTD I can tell you that one of the worst things you can say to someone living with dementia is that they don't seem /look like they have dementia as it very demeaning.
I don't understand?
If I said you don't look like you have dementia...
Dementia really doesn't have a look on most!?
I think with my dad o said, out loud to company, I don't know if it's dementia CZ doesn't get aggressive, doesn't escape it and I think he is maybe depressed....
I don't do this now.
But,.why does this seem demeaning?
Respectfully I ask.
Why?
Can this video please be relisted under the title 'Frontotemporal Dementia'? It would certainly help those of us searching for info on this particular illness. Thank you.
I PSP Erwin ooo
Right @waynem
Agreed. It’s so hard to find practical information on FTD. Especially the various types.
This. Seriously. Also add meta tags for it as well to help search engines find this.
Your such an awesome and strong young women. Your family members were so Blessed to have you with them. God Bless you. How is you child doing now and how did all this effect him ?
love this , thanks for making this video
How sad...I fear for her son, in the future, whose father got this terrible condition, along with his grandfather on the other side of the family who had Alzheimer's.
I kno right☹️She said her husbands family didn’t have it but I’m wondering if there’s family history, does that guarantee you’ll get it too? This is so unfair! It’s like dam if u do, dam if u don’t🤷♀️
@@YugoslavGirl - It is very easy to inherit your family's diet. When someone is diagnosed with dementia, they should stop eating plants and take the 90-day beef, butter, bacon, lamb, and egg challenge. Some folks respond in a matter of hours.
My thoughts as well. Isn’t early onset dementia genetic? Doesn’t bode well for those kids.
Amazing information thank you
Im new to this, and lost...gonna have to look into all this, good info tho! Wish this lady was my neighbor
🙌🙌🙌🙌😪😪Thank You!! How heartbreaking!!! But Amazing Courage & Strength 🙏🙏😇💖💖💖🌠👣God Bless 😇 Most all alcohol/drug abuse is do to mental or Trama related personal choice to try to cope with whatever the person is trying to hide/ cope with. Why stigma to mental health must change 🙏🙏🙏✌👍💖🌠😇
im sorry. my grandma started getting at age 50....unfortunately she had dementia on both sides of her family although neither of her parents had it.
Good!
Hello...my name is sayali
Age 30...during my pregnancy I noticed that I am forgetting things, spelling , names and all...i am a nurse by profession
I thought it's pregnancy and baby stress that I am forgetting quickly...but now I think there is something wrong with me..is it early signs of dementia??
It's been nearly 2.5 year m suffering with this
What should I do ?
If you’re a nurse get an appointment with a neurologist
I am a Neuro icu nurse and I’m having difficulty with aphasia and short term memory mostly. Communication is so difficult for me. Comprehending text, spoken words, forgetting names, conversations, keys, everything… I tend to describe what objects look like or nearby things that can give context clue to what I’m actually trying to communicate. My boyfriend and best friend are always completing my scentences for me. when trying to think of the actual word in my head it’s an incredible struggle. I’ve been contemplating quitting my job b/c I can’t mentally keep up. I am meeting with a Neuro Psychologist to hopefully get some answers.
@@oliviar2560 Try to learn sign language, both of you? Could be needed soon.
It’s important for all women but especially those who have just given birth to have their TSH & their thyroid antibodies levels checked. Both being abnormal could cause these same symptoms. If they’re normal levels move onto a Neuro doctor especially those of you who are in professions in which patients rely on you to be at your best.
Sorry to ask this? But did the husband pass away?
Yes, they mentioned it briefly in the beginning. 🥺
@@NickanM I think it was a terrible joke.
@@sashatagger3858
Excuse me? English is my second language, what joke?
0
Was he involved in an accident in the past that may have hurt his neck?
amazing information thank you
amazing information thank you
amazing information thank you
amazing information thank you
amazing information thank you
amazing information thank you
amazing information thank you
amazing information thank you
amazing information thank you
Hi Deborah..If you spelled you last name Kahn..we could be related. 🤩☮
Did her husband died or not?
Yes
He passed away around 31 or 32 years of age.
@@ittybittykittyrescue4843 33
This is what my brother-in-law has. He was diagnosed with Alzheimer's but I knew within about a half hour he didn't have Alzheimer's (my mother died of Alzheimer's). He has FTD.