🖐 5 Silly Things Said to Me About My Autism ➰ (4/11/18)

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  • Опубліковано 21 гру 2024

КОМЕНТАРІ • 287

  • @VictoriaPaikin
    @VictoriaPaikin 6 років тому +90

    I'm Dyslexic so I get a lot of 'You don't look Dyslexic' Or sometimes even 'But You don't look stupid'. LOL

    • @adambell8732
      @adambell8732 6 років тому +1

      Loving Life Fam aww well who ever says that you don’t listen to them there wrong I have frends that have it so you not the only one

    • @cathyjeudevine447
      @cathyjeudevine447 6 років тому +2

      Loving Life Fam I am also Dyslexic and have ADD too.

    • @ajdajenkole5002
      @ajdajenkole5002 6 років тому +3

      I get that a lot... Or when i read, people say I don't sound dyslexic.. what they don't know is that i practice reading almost every day...

    • @BunnyMalice
      @BunnyMalice 6 років тому +5

      I also have dyslexia but am a pretty quick reader with decent grammar and people doubt me. But unlike them, I'm aware of the hard work I've gone through to get where I am. I might not look stupid but your ignorance is showing fam. xD

    • @christineblack5719
      @christineblack5719 6 років тому +2

      I am also dyslexic and was treated poorly in school because I was so slow.. I am now 46 years old and LOVE to read, but still have issues if I am tired or stressed... You are not stupid... that is horrible..

  • @monkaholic100
    @monkaholic100 6 років тому +39

    I've heard all of these and more 🙄. My personal fave was "Oh, I'm gluten free, so I totally get it!"

    • @rachela2727
      @rachela2727 6 років тому +1

      Nicole D'Angelo what?!!! That's the most outrageous comparison I've heard yet 😂😂 I would have slapped the stupid straight out of them which might take a crapload of slaps lol

  • @oneeyedhusky
    @oneeyedhusky 6 років тому +4

    I come from a mostly autistic family, with more autistic people than non-autistic. It is always funny when people come over and get very confused because in our house, social norms are different/don't exist. We just are who we are. I am not autistic myself, but sometimes I feel like I understand autistic people more than non-autistic people. And I very much relate that diagnoses in adulthood can provide a lot of clarity. They really did for my family. And my sister is my absolute best friend, and I wouldn't change anything about her or her autism. Thanks for posting! I love your videos!

    • @lucyrogers7196
      @lucyrogers7196 6 років тому

      oneeyedhusky same here!!! My brother, mom, and I are all autistic. Both her parents are, and so is her brother, and I’ve got 2 autistic cousins. It’s our normal, and lots of neurotypicals don’t understand that. Our routines are very important, we stim a lot (even in public), and speak very directly. Just part of life!

  • @cajsamork6226
    @cajsamork6226 6 років тому +62

    I'm autistic myself and hearing things like that just makes me laugh at times

    • @adambell8732
      @adambell8732 6 років тому

      Cajsa Mörk Same I have Austen to

    • @adambell8732
      @adambell8732 6 років тому

      Same

    • @alishal6031
      @alishal6031 6 років тому

      same I have autism

    • @adambell8732
      @adambell8732 6 років тому

      Doris Flowerhome I have subbed to your channel

    • @danielgartin6993
      @danielgartin6993 6 років тому

      Why do some people disrespect us like that, they should accept us for who we are

  • @someoneovertherainbow5681
    @someoneovertherainbow5681 6 років тому +4

    My sis (15) has autism and I am younger so I have grown up around her and her friends ( also on the spectrum) and people can be so mean to them and it is always nice to see someone like you who is speaking up about it and not keeping it quiet. This is a real disorder and t affects people in so many different ways. This disorder does not effect them in a horrible way that when people hear about it they automatically feel bad for them. ITS NOT LIKE THAT!!People with autism are people like you and me and nothing can ever change that! Btw, I really love your channel!!!

  • @jreynolds6767
    @jreynolds6767 6 років тому

    My husband was diagnosed with Aspergers as an adult. He was relieved to finally understand why he always felt different. He is very blunt and cannot read body language. But he is also an excellent communicator, has a Master's in English, and is incredibly empathic.
    My son from my first marriage also has autism. His is mild to moderate. He is extremely literal, does have social difficulties, and ADHD. He's a smart little boy who can tell you all about his favorite subjects, but he has difficulties in school with the subjects he's not interested in. He is very affectionate with me, for which I am incredibly thankful.
    We suspect that my younger daughter is on the mild end of the spectrum. She does not seem to understand humor, she is very blunt, and has problems understanding what is socially acceptable. We want to get her assessed this summer.
    Thank you so much Jaquie for sharing how autism affects you!

  • @KitsunePhotography
    @KitsunePhotography 6 років тому +28

    My son is autistic and fall in the middle of the spectrum, he excels in some areas and struggles in others. When he was younger I was at a doctor appointment for myself and he was stimming by flicking the light switch. I apologized to the doctor and explained he has autism. The doctor said hi to him and he looked at her and smiled. Next thing I know she says to me "oh, he doesn't have autism"... I was in shock that a doctor could be so careless. You're lucky you don't struggle with certain areas like communication, this is a huge weakness for my son, but I can definitely see how your autism affects your social interactions similar to how You described it.

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 років тому +7

      That is very careless, I am sorry you both had to deal with that!

  • @flannelfishguy
    @flannelfishguy 6 років тому +42

    Hi jaquie!! I don’t want to seem like a rude or bad person so i hope this comment isnt offensive at all...
    I noticed your thumbnail said “autism awareness month”
    A lot of autistic people (including me) like to call it “autism ACCEPTANCE month” instead, for several reasons. One of them is because autism speaks supports autism awareness month and its a really bad organization (they are searching for a “cure” for autism and promote abuse to “fix” it). Im not saying you have to change the thumbnail, and im not mad.
    All im saying is maybe to consider that
    Thank you!! And i really hope i didnt offend you at all

    • @lucyrogers7196
      @lucyrogers7196 6 років тому +7

      cripticCrow I left her a comment and used the term “autism acceptance month” instead. Didn’t do it to be rude or anything, just did it because I can’t stand A$ and their bullpucky “awareness.”

    • @adambell8732
      @adambell8732 6 років тому

      It’s just her opinion

    • @ZumieZumes
      @ZumieZumes 6 років тому

      I think we should change the title of the month too! Maybe for next year everyone could petition to change it to be Autism Acceptance Month. 😊
      I also am not a fan of autism speaks 😒

  • @Krista2882
    @Krista2882 6 років тому +16

    I have autism, too, and as a girl I was overlooked and wasn’t diagnosed until I was an adult. But my mom always tells me how literal I am and that I say things too bluntly. I just don’t know how to phrase things, and when I say something like, “Why would you do that?” People think I’m judging them but I’m honestly just asking the question. Plus I have SPD also

  • @Global_Havoc18
    @Global_Havoc18 6 років тому +4

    I’m so glad this video has been posted! I have been wondering for a long time about whether or not I have Aspergers Syndrome, and since I know that it can be under diagnosed in females, that would make sense why I have never gotten a formal diagnosis. My dad and brother both have it, and since I know Aspergers can be genetically inherited, it might make sense. I have several small quirks that would definitely be explained if I ever get a formal positive diagnosis. I have a bit of trouble making new friends, and I have an extreme passion for science (I love dinosaurs, outer space, prehistoric earth (prehistoric man and animals), genetics, the journey of ancestral migration, and the concept of Mitochondrial DNA tracking), but when I’m asked why I love it, I can never really explain the reason very well. I have a lot of trouble paying attention to a conversation in a crowded environment (background noise is very hard to “filter out”) and I sometimes have a tendency to talk too much, over share, under share, and sort of “disjoint” a conversation.

  • @catloverKD
    @catloverKD 6 років тому +2

    I have nonverbal learning disability/disorder (similar to autism, but not the same thing). The main ones I get are people think it means I'm nonverbal (we struggle with nonverbal communication), people saying "You're just autistic and don't like the label" There are a lot of overlapping symptoms, but they are NOT the same thing. And "It's not in the DSM so it doesn't exist." It's existence in a book has nothing to do with it's existence in my brain, but if it was in the book, I probably would've been diagnosed earlier and my life would've been a lot easier!

  • @auburneytuckerson2959
    @auburneytuckerson2959 6 років тому

    I just got diagnosed with autism about three weeks ago. I'm female, black, and was diagnosed by a psychologist at Chenal Therapy. I was soooooo happy to learn I had autism because all I've been through in life not knowing, especially my extremely sensitive hearing and smell, I always thought I was a mistake or a defective who was just stupid. But now I know I'm just autistic, and it is why I have my obsessions and never want to lose them! Autism is not fully who you are, but it's a PART of who you are. So I never want to lose it. I just want people to understand me (mostly for my sensitive hearing). Even though my mother was at the diagnosis, it's like she STILL doesn't understand that I can't just "get over" the loud noise. Before my sensitive hearing, I still had sensitivities to smell, touch, bright lights, and bits of taste. My hearing is what ruined everything. My ears never should have opened up! Plus I've always struggled with social norms, and now I know why. I like how my autism makes me ME. And it makes me hate myself way less than I always did. (I also have depression and anxiety as well as OCD and SPD) I think if I didn't have autism, I wouldn't have my obsession and strong love for animals, cartoons, and playing instruments. Plus, I'm eextremely ambitious and cannot give up. I'm incapable of giving up what so ever! I'm also logical, detailed (in drawing animals as well. Just look at my avatar. I drew myself as that hyena!), crazy, stubborn, weird, and loyal. Those are some of my good qualities, and I wanna keep them. I may take stuff literally and not understand things like the neurotypical people do, but I just don't give a shit. I get angry and frustrated when they don't listen to me or get frustrated at me when I don't get something. I hate people who get so offended easily over everything because I don't know what's offensive and what's not. I also hate people who call me weak just for being unable to make eye contact or call me retarded just for being weird and being goofy. I never want to lose my autism! It's into an illness or (maybe not even a disability for people higher on the spectrum); it's a way the brain is developed and the personality is formed. It's one of those good disabilities that you don't want to get rid of.

  • @kelsiwasherelol
    @kelsiwasherelol 6 років тому +13

    Not gonna lie, I smiled really big at the beginning. You look so good and happy 💖💖

  • @itsjustme7169
    @itsjustme7169 6 років тому

    The first video I watched of yours was the one you first went public with your autism diagnosis. It was also right after my niece was diagnosed. I sent the video to my sister and it was so comforting and helpful to us. Thank you

  • @WishUponAHorse
    @WishUponAHorse 6 років тому +1

    Thank you for this Jacquie :) Loved this vlog, nice stroll with Harlow, a chat with Janice, fun adventure with friends and discussing awareness and understading about ASD :)

  • @RachBiebz
    @RachBiebz 6 років тому +9

    People think only boys have autism because for years the leading research pushed his 'male brain theory' and only now has he switched and says girls can get it too! It's so frustrating, but people like you bringing awareness to girls having the disorder is so important

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 років тому

      I never knew that (thanks for the info!) but figured it had to do with faulty research or misconceptions. Trying to break the stigmas!

  • @britaneelilly8147
    @britaneelilly8147 6 років тому

    This is the first video from your channel I have seen. I have a 3yo girl with ASD and SPD. I can't tell you how amazing this video was for me. You don't often see ASD adults "in the wild" and this video was so reassuring to me that yes, her life will be "normal" although a bit different from her NT peers. So thanks for making this momma cry in the best way possible.

  • @SouthofIllusion
    @SouthofIllusion 6 років тому

    My mom wasn't diagnosed with Autism until she was in her 50's! It's also very mild for her. And while her diagnosis came out of nowhere (it was sort of a shock at first) it actually did make a lot of sense to my family once we learned more about autism, and it's certainly strengthened our relationship with her. Glad you have supportive people around you Jaquie! And thanks for raising awareness, as always

  • @cymbiesMommy
    @cymbiesMommy 6 років тому

    If your friend thinks your autism affects you severely- she hasn’t been around many autistic people. I have a 10 year old autistic daughter who can barely speak and has melt downs with self injurious behavior that can last for hours sometimes.
    Thank you for speaking out and educating others on your platform. Speaking as the mother of an autistic girl who can not self advocate (YET-bc I’m never giving up on her voice) I appreciate you speaking openly about it. If someone doesn’t believe you they are not educated enough to understand the vastness of the spectrum).

  • @Fpsdan482
    @Fpsdan482 6 років тому

    I also have a spectrum disorder, Aspergers syndrome. I was diagnosed in elementary school and did a lot of therapy to help handle it. As an adult, I find it actually helps me more that it hurts me. Sure, I am very blunt sometimes and I get meltdowns where i lose control via various environmental triggers, but I also have positives. I am very empathetic, very kind and when I want something done, I do not stop until it is done or I cannot continue. My focus can either be fragile or unbreakable, depending on the day. I was also bullied from first to seventh grade because of my autism, they liked to pick and pick until i melted down, then gang up and hit me when i lost control. Sucked, but I am as strong as I as a person because of it.

  • @awildlizzy8586
    @awildlizzy8586 6 років тому +10

    Since learning that my friend was autistic I have learned not to judge, but to understand if that makes sense.

    • @adambell8732
      @adambell8732 6 років тому

      I have atisam that really means something thanks

  • @AnAspiesPOV
    @AnAspiesPOV 6 років тому

    i haven't even watched the video yet. i just wanted to tell you that i've seen a ton of your chronic illness vlogs (started watching you and The Raw Life in January when I was in the hospital) and was immediately drawn to you right away. You seemed to have a familiar air about you. when i saw this video in the recommended today, it all clicked. i connected with you because i understand you. people on the spectrum are able to relate to one another more than they are able to relate with NTs. Just wanted to let you know that sharing this part of your life is amazing and i'm glad you did because it made me feel less alone. :D

  • @georgiabrook8866
    @georgiabrook8866 6 років тому

    I work with children with Autism. Through this work I have developed an ability to spot signs of Autism and there are lots of people who are undiagnosed who show signs of Autism, like you said it is a spectrum disorder. I like to think that everyone is on this spectrum. This was very insightful and it isn't necessarily immediately obvious that you have Autism because it is mild. There are so many awesome people I have worked with who are Autistic and it is amazing that you are showing what you are capable of because many people think that Autism will stop a person being able to be a functional member of society which isn't necessarily true.

  • @nicolenbbw7947
    @nicolenbbw7947 6 років тому

    I love how people with autism view the world! It’s cool to see you learn social cues objectively, and that your best friend helps guide you so naturally.

  • @bethl4634
    @bethl4634 6 років тому +1

    I am SUPER SUPER happy that your friendship can go with eithers spouse ! That you 4 have such a AWESOME support base !!!!

  • @sarahisabear
    @sarahisabear 6 років тому

    Omg Jaq I haven’t been keeping up your videos as much as I used to but seeing you start the vlog out with you out for a walk with Harlow in your wheelchair made me sooo happy for you!!!

  • @lucyrogers7196
    @lucyrogers7196 6 років тому

    Thank you for this! I’ve been wondering for the past 11 days about it, but I figured you have an entire month to do a video so I shouldn’t be impatient. I was diagnosed with Asperger’s at 3, but now it’s just ASD. I’m in MENSA, so I never had any of the school issues in the traditional sense. I could read chapter books at 3, and that set off warning bells for my parents and other adults in my life haha. I do have shutdowns and meltdowns, but they’re very rare and only happen if I don’t get myself out of a situation that stresses me out (Black Friday shopping this past year was suuuuuper hard). It’s nice to see somebody else talking about autism acceptance month :)

  • @betterwiththeirish
    @betterwiththeirish 6 років тому +1

    I love how happy Paul was to make you so happy!! You two have some great men! As someone with no support and a failed relationship due to someone being too concerned with me not being able to clean than how I was, you are very lucky and it's great you treasure it. ❤️ many blessings and prayers to all 4 of you. Oops 7 I forgot Harlow, Orion and Yari!

  • @SartorialDragon
    @SartorialDragon 6 років тому

    amazing :) also, i like the topic switch from “autism isn't something wrong with me, it's part of who i am“ to “oh no... they don't have the sweater in my size!!“ - talking about actual life problems! :)

  • @Royalsprincess1
    @Royalsprincess1 6 років тому

    This is so me. I have friends that totally understand me and my situation. It is hard at times but of course what isnt hard in life. We are only given what is figured we can handle, and we are given what we are able to embrace. We embrace our autism with stride. I was told I was diagnosed late in life with Autism. I agree with you that it is a part of me, and it is something I wouldnt change either. But Autism is a disability. It is is a chronic illness, it is something you deal with day in and day out. It is a disability, it makes you realize you can't take for granted anything. We struggle so much with things that for others come naturally. I finally met my other half and he has the same disabilities I do. Now I also have ADHD with mine, which makes mine trickier. But still I wouldnt change a thing.

  • @Nilguiri
    @Nilguiri 6 років тому

    Janiece's new hair looks great. She looks even more beautiful than usual!

  • @crazycatalyst5149
    @crazycatalyst5149 6 років тому

    Hi there I just wanted to say I have a nephew that is autistic he is so sweet and special I wanted to post on your coming out post but comments were disabled how ever I love your story your such a wonderful and amazing woman I’m also disabled and dealing with chronic pain but your life has given me new hope for the future I wish there were more people like you out there the whole world would be a better place if we all thought and always lived life like it’s a gift not a burden thank you so much sweetie I hope you so much I hope you feel better

  • @sweetlynn0213
    @sweetlynn0213 6 років тому

    AMEN!!! My daughter was diagnosed at age 4 and she's almost 13 now. She also has ADHD. She cant make any friends in school (I had this problem too). While I dont believe she has any bullys the kids cant handle her non stop talking and straying off topic. Teachers love her but what good is that and besides even if a teacher does not like her they shouldn't ever express that. She also can not pick up on body language, sarcasm, and metaphors. She easily gets overwhelmed and has a tantrum. People anso say she does not appear to be autistic. They don't see the hard times. You dont record hard times and I don't take her out on bad days or typically most the time the issues are at home when she's required to do a task.

  • @mayra3277
    @mayra3277 6 років тому

    I've been watching your channel for a few weeks now and this is probably one of my favourite vlogs. All the situations you describe seem so accurate, and I can really understand what you say about not understanding social norms! I'm not diagnosed with anything, but people have told me I'm autistic quite a few times and after sneaking into some book samples I had to agree (by the way, some authors I'd recommend are Temple Grandin, Tony Atwood and, most of all, Liane Holliday Willey!).
    The way I'd try to describe this is like if you're living in a foreign country where another language is spoken. You learned the vocabulary, the grammar, all that stuff, and you can express yourself well. However - as soon as it comes to idioms, slang, abbreviations, anything typically local, you're screwed. You translate them word by word, but can't see any sense. You look them up, but your dictionary doesn't help.
    If you're lucky, you might have some good friends along the way who will help you and explain what things stand for (that's what my online friends did when I struggled with their English, especially informal phrases or idioms that we never learned in class). But it's very hard to find someone to explain the world you live in to you, because everyone will expect you to navigate it without any problems. As you said - you don't look autistic, you might not even act autistic. People will wonder why you act so strangely when in fact they just don't know the language (=social norms, sarcasm, whatever you struggle with) is foreign to you and you had to learn it bit by bit. While everyone else runs around, you have to test the ground all the time and explore the world in baby steps.

  • @Saturndazed74
    @Saturndazed74 6 років тому +4

    Don't you love when everyone thinks they are a doctor. Totally not worth the time or energy for the arguments. I wish I had a friend like Janiece close by, to help me with social ques. I am thirty, and I am still terrible with it.

  • @auntdave180
    @auntdave180 6 років тому

    “Parts of my autism need guidance.” ❤️ I love that concept. ❤️
    I was diagnosed in my 50s, and was so relieved to know why I’ve had social quirks all my life. Someone said that now I could be “fixed.” I’m not broken!!! I’m just wired a little differently 🙃 I see many of my autistic tendencies as positive. But I do need guidance in how to say things in a proper way in social and public settings. I tend to be too honest about things and have been told it’s inappropriate at times. I am finally learning, with the help of counseling, how to use my black & white brain in a very gray world. 🎶💖🎶💖🎶

  • @izzymarie8987
    @izzymarie8987 6 років тому

    I have ADD and I’ve had people tell me “you can’t have ADD you’re a straight A student!” And I actually laughed out loud at that. Before my diagnosis and medication I was failing every class i took. Now that I know what I have I can cope better and do well in school.

  • @GenericBeans
    @GenericBeans 6 років тому

    I am so glad you have such great people in your life!

  • @radicallad
    @radicallad 6 років тому

    I was so happy when Paul found that hoodie for you! I know how irritating it can be when you set your mind on something and it feels like it's not going to work out. Especially since you took the time to love your original jacket

  • @bettablue2660
    @bettablue2660 6 років тому

    My 29 year old is on the spectrum. He is high functioning and crazy smart and funny. He misses social cues. He has learned to ask how he is making someone feel by how he is acting. One thing I think people don’t understand about people with autism is that they are very sensitive, and caring, once they get the cues. It totally comes out on your vlogs Jackie. Maybe I notice because I’m a mom of a son that is very similar to you. I am also on the spectrum, as is my dad.

  • @SatiricalSunflower
    @SatiricalSunflower 6 років тому

    I have adhd and I get the “you don’t look like you have it!” comment literally like 90% the time at least, and the “everyone is a little adhd” one a few times as well. There are some things I do like about having it as I think it’s helped me be more creative and make connections between different things faster, but even though I know people are more often than not unintentionally ignorant, I’ve gotten the same set of reactions so many times that now I just frustrated at having to explain the same things over and over about having adhd.

  • @natalieramsey4727
    @natalieramsey4727 6 років тому +1

    I like that when people are staring at my SD or whatever in public I don’t notice very much were it bothers other people with me

  • @grayskindablue
    @grayskindablue 6 років тому

    I love the friendship you have with Paul, too. (And he really is a lot like Judd!) I don’t think we’ve gotten to see that much. It’s clear you’ve got a lot of love and support around you. {:

  • @CindyDowdleSchoen
    @CindyDowdleSchoen 6 років тому

    Having a husband and son with Asperger's Syndrome, when I first started watching your channel, I knew right off that you were on the spectrum. My son thought it was cool that you are also an Aspie too! I wish I could teach everyone that doesn't know about Asperger's or Autism.. there are so many misinformed people out there that are unwilling to learn about the syndrome so they can understand the person better.

  • @AleiatheEnchanted
    @AleiatheEnchanted 6 років тому +1

    How do you manage to pay for all of your doctor, specialist visits and hospital visits. Insurance pays for some, yes, but I doubt that it pays for all?? I mean you might pay small co-pays but doesn't it add up??

  • @Kaalyn_HOW
    @Kaalyn_HOW 6 років тому

    I know you and Janeice fit together like a unique puzzle, but for as much as she says she's intuitive and helps guide you to "what's appropriate" there have been a lot of times she's made jabs about how literal you are, or telling people you "don't understand" a turn of phrase, or other jokes/insults, and they usually go over your head in the moment, and it hurts me to watch. Having ASD, I can witness these interactions in others more than I can in my own life, so when I see it here, I feel it as if someone was doing those things to me. She's also blunt and makes jokes about you and you don't notice it...which doesn't feel like what a good friend would do. But maybe I'm wrong. But I thought when friends make jabs at one another they're supposed to both be in on it and laughing together -- not one person laughing at your expense or making a joke to everyone else about you knowing that you won't get it. That sounds like a free pass to be mean just bc we won't know. But, maybe I'm wrong. Wouldn't be the first time. Mostly it just hurts others with ASD to see the friends of someone treat them like lots of people treat us.

  • @alishal6031
    @alishal6031 6 років тому

    I got diagnosed almost a year ago and it made sense to me and people in my family and friends. Thanks for making this video! You're awesome! (Harlow is so cute!)

  • @IDreamofVintage
    @IDreamofVintage 6 років тому

    I am autistic. Just got diagnosed at 21. I am fine with it, but it's hard when you reveal something that personal about yourself and then the person you told that to shuts you down. Saying "You do not have autism". It hurts. But I am proud of who I am. I also have sensory processing disorder. 💙

  • @nancymandle5215
    @nancymandle5215 6 років тому +52

    Paul (and Judd) are amazing!!!!!!!

  • @MegaAwesomeLady15
    @MegaAwesomeLady15 6 років тому +4

    My sister was diagnosed when she was 14. She hates new people. She hates loud noises. She doesn't understand social cues. But I wouldn't have it any other way. I love my little sister. Even if she doesn't understand it I will always protect her. I will always be there for her.

  • @BunnyMalice
    @BunnyMalice 6 років тому

    Was not aware this was even something you struggled with, as I haven't watched all your diagnosis videos (diagnosis videos give me anxiety >_>). My brother and I are both adopted from entirely different countries but we both struggle with it. He is affected more severely, where it's very obvious within a few minutes of talking with him (if you have the chance to think, the only time he's not talking is when he's asleep), and I struggle socially....you can't tell just by talking to me because I probably won't talk to you, lol. It was initially diagnosed as severe social anxiety, as can be the case with girls. I also struggle with picking up on social ques and other such things, and can be obsessive and -, well, I'm rather obviously OCD. I also severely struggle with changes to anything in my life, as insist on going to the same places for vacation, sitting in the same spot in ANY car, stuff like that. But yeah, I 'don't look stupid', because I'm not. My brain is just a jerk about some things. :') Autism doesn't necessarily mean one struggles with intelligence, as it's quite the opposite for me. I'm very book smart, just not...not people smart. At all.

  • @navygirl54
    @navygirl54 6 років тому

    hearing what you say I am going to get tested. I am 32 and have questioned it over the past few years if I have autism. Another awesome vlog.

  • @katelyns9787
    @katelyns9787 6 років тому +3

    I have a question about your GP! I remember in one of your older videos or instagram posts you said you were diagnosed with decreased gastric accommodation? Do you still have that? Just wondering for more information on it and to see how it affects you! Docs are thinking I may have it

  • @bethanypascoe8182
    @bethanypascoe8182 6 років тому +27

    So I was watching some of your old videos and I have noticed that you hair (which still looks amazing) has gotten a lot thinner. Is this due to your gp causing you to not get enough nutrients? I’m not trying to be mean I just noticed.

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 років тому +57

      Yes, my hair used to be much thicker. But I lost so much of it when I was malnourished. I think it is slowly gaining fullness again though :)

    • @bethanypascoe8182
      @bethanypascoe8182 6 років тому +6

      Chronically Jaquie that’s good hopefully it goes back to it’s original thickness soon :)

  • @FunsizedStyle
    @FunsizedStyle 6 років тому

    I'm so glad you were able to find another jacket! :)

  • @purpleluma4715
    @purpleluma4715 6 років тому +4

    So many people go undiagnosed! but I’m glad you found out about it. Like the saying goes, it’s better late than never. Does Janice have some type of speech impediment by the way? I noticed she has trouble articulating her thoughts sometimes, so I’m just curious.

  • @skyewiersma9737
    @skyewiersma9737 6 років тому

    Also, I thought it was good timing that you talked about autism in this vlog, and your immediate reaction about the jacket was very much an autistic reaction. My brother is on the spectrum, and he reacts the same way! Since you couldn't get that specific jacket, you said you would have to go without a jacket (even though there were other jackets in the store). Folks without autism would have the first response of "oh well I'll have to look for a different jacket." Of course, I don't mean any negativity in that statement, just pointing out the different reactions. :)

  • @gothic1774
    @gothic1774 6 років тому

    Hi Jaquie, i wanted to say happy safe trip to you, Janice, Paul and Judd. Great video!

  • @ChronicallyKats
    @ChronicallyKats 6 років тому

    I'm not diagnosed with Autism, But have alot of learning disabilities and cognitive and social problems. And I agree with you, just because your an adult doesn't mean you don't have problems anymore. Someone said that to me once and I was like uh excuse me? No. I hope you have another great night! Continued prayers!

  • @jonathandpg6115
    @jonathandpg6115 6 років тому

    There was a vlog I think it was with judd's family I noticed the autism because as you say they don't usually come out in videos. I forgot what exactly but you had difficulty telling someones reaction to something and Judd helped you understand. That was the only moment. That being said your still inspiring as a person and we as society at large should learn to love each other despite our differences.

  • @suzanneellis9493
    @suzanneellis9493 6 років тому

    cracked up when you said you go into other peoples frig's and stuff. Do you think anything about someone doing that in your home now that you are aware? You are the best!

  • @alexjoseph7772
    @alexjoseph7772 6 років тому

    The only thing I can think of that is an immediately observable symptom of autism in a lot of people is a lack of facial movement when speaking. I notice that a lot in your vlogs, but I also struggle with moving my face when I talk and I'm TERRIBLE at taking pictures because unless I'm laughing reflexively I physically can't make my face move the way I want.

  • @Star30009
    @Star30009 6 років тому

    I'm so lucky I was diagnosed with aspergers in the 2nd grade. I was suffering in school because of day dreaming and spacing out, so my parents got me tested for ADHD and they also found I had aspergers as well. I'm kinda like you that it is very mild and I just need help with some interactations. It's great watching someone that is similar to me!

  • @nicolekelaher1979
    @nicolekelaher1979 6 років тому +1

    Jacquie ❤️you girl you inspire me every day your amazing keep your chin up and keep being you xxx

  • @desi12346
    @desi12346 6 років тому

    I'm color blind, weirdly most things you've said are the same, except the added "prove it" and "what color is this" and the shock people experience when I tell them I have trained myself to switch from red to green and from green to red.

  • @lauralshobbies2710
    @lauralshobbies2710 6 років тому +1

    I’ve been diagnosed with autism for a majority of my life. My parents never told me. Until a few months ago that is. And I feel the exact same way about it as you do.

  • @lunargem6217
    @lunargem6217 6 років тому

    I have a dog, and want to train her. How do you train the dog to be calm and not bark?

  • @benben9794
    @benben9794 6 років тому

    I remember they told me i was autistic at a young age and i was so happy i cried because for so long they told us nothing was wrong and that i was just a bad kid but you have no idea what it was like when i didnt have this channel to turn to when i was sad now i have a safe haven where i can talk about it... i have high functioning autism so i can do everything like a normal person but i see things differently than others if that makes sense sorry im rambling now i hope you have a wonderful day Jaquie

  • @deannschlatter1288
    @deannschlatter1288 6 років тому +13

    Yay Paul! What a hero!

  • @skyewiersma9737
    @skyewiersma9737 6 років тому

    Oh my gosh I literally started watching this video and seriously Jaquie you look so gorgeous! Of course you are a beautiful person, but you just shined today (yesterday?) haha! :) Love you and all you do!

  • @KoudaiCoun
    @KoudaiCoun 6 років тому

    I know it has nothing to do with the video, but its kind of adorable that Jaquie has her port on the right and Jannice*(?) has hers on the left. Which, I had my port on the left when I was younger. Or vice versa.

  • @aurij1985
    @aurij1985 6 років тому

    I absolutely love Paul's facial expressions lol he is funny.

  • @katelynlewis3206
    @katelynlewis3206 6 років тому +14

    We will never amount to much in life.
    That one always made me mad.

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 років тому +10

      That is just deplorable to say to anyone! Totally incorrect and based in ignorance.

    • @meganlovesdisneyandcrafts4780
      @meganlovesdisneyandcrafts4780 6 років тому +1

      I think Chronic illness warriors born with certain conditions get that. It just looks different, that's all. YOU are worthy please remember that.

    • @adambell8732
      @adambell8732 6 років тому

      Katelyn Lewis who ever stayed that is not troo I have atisam and I can do meany things

  • @Nyctolust
    @Nyctolust 6 років тому

    i'm autistic too, i've gotten all 5 of those things way too many times 😩 there's lots of little things i've noticed in your vlogs in the 13 months i've been subscribed to you that i notice in most other autistic people only, so i especially don't get the "you're not autistic" or "you don't seem autistic to me" one lol

  • @alienmissy4836
    @alienmissy4836 6 років тому +5

    When I was a kid, several doctors/therapists tried "pushing" an autism diagnosis on me.. I guess, because I have a social anxiety disorder, they thought it might be autism... the social anxiety disorder I have is called selective mutism, and I guess the fact that mutism and autism sound alike, they thought it was the same? Maybe?.. but the biggest reason was; they knew how to treat/help someone with autism. They had no information whatsoever on my actual disorder...
    Obviously, there is absolutely nothing wrong with having autism, but when I tell people I have something called selective mutism, a lot of them just go "oh, so, like autism?" And because they've never heard of mutism they don't really get what it is... 😅 it's just really frustrating when people think that your actual diagnosis is a completely different diagnosis... 😅
    Now I don't even try to explain mutism, unless someone rrally cares😂 usually I just go "it's what raj in the big bang theory has" 😂 it seems to be easier to understand that way.

    • @ZumieZumes
      @ZumieZumes 6 років тому

      AlienMissy 483 I get it. But the reason is likely because it is common for children /adults on the spectrum to have selective mutism. Not like super super common. But it is one of the ones that happens more often in combo with ASD.

  • @nessbailey7931
    @nessbailey7931 6 років тому

    My prof. diagnosis is Unspecified Neurodevelopmental Disorder (UNDD) but I believe I am autistic and didn’t get my true diagnosis because of the biases like, I’m a female and did very well in school. I didn’t even get screened until age 15 when I needed accommodations in school. My autism affects me similarly to how you explained yours, but I also stim quite a bit.

  • @harm0ny696
    @harm0ny696 6 років тому +1

    Thank you. You’ve helped me get more confident in being my own advocate and more comfortable and confident with my chronic illnesses. #SassyJaquie

  • @jessthehorse2254
    @jessthehorse2254 6 років тому +2

    Always
    Unique
    Truly
    Intelligent
    Sometimes
    Mysterious
    Now read all of those by just the first letter

  • @cloudyskyz2237
    @cloudyskyz2237 6 років тому

    I have autism, very similar to yours, and I get the 5th thing so often! People have this idea in their head of what autism should look like; they don't understand that it is a spectrum disorder that does affect everyone differently, even drastically different. It does get annoying sometimes, but I have learned to ignore their generalizations and move on.

  • @Imaginaryviolets
    @Imaginaryviolets 6 років тому

    Hi Jaquie, I was wondering if you ever stim or have ‘tics’ that you do?

  • @VulcanOnWheels
    @VulcanOnWheels 6 років тому +1

    2:06 Maybe they confuse autism with Down's syndrome.
    11:42 I'm also quite logical.
    12:55 Some people do that just for fun.
    Kind of like when someone pours you a drink and they say: Say, "when".

  • @GamerGoop
    @GamerGoop 6 років тому

    IT was pretty easy to tell from the moment i started watching, but i am also pretty observant.

  • @circleofleaves2676
    @circleofleaves2676 6 років тому +1

    Hi Jacqui. I'm Autistic too, diagnosed in adulthood (and have multiple rare and chronic diseases). I know you're a keen youtuber and into advocacy, so if you haven't yet checked out Amethyst Schaber's youtubue channel (with her Ask an Autistic series), I highly recommend it.

  • @kellycannon9796
    @kellycannon9796 6 років тому

    When autism first became popular, it was often thought that boys were affected more than girls and more seriously. It was thought that girls suffered from aspergers more. So I feel it makes sense when ppl say only boys got it because that was initial thoughts.

  • @francesd2913
    @francesd2913 6 років тому

    You can always dye the jacket Jaquie so it can be saved and you can have it any colour you want. I'm glad Paul found one for you though. WTG Paul!

  • @susano7587
    @susano7587 6 років тому +1

    ENJOY THE TRIP!! I am anxious to find out where the secret destination is!

  • @rachelsolano19
    @rachelsolano19 6 років тому +1

    Paul you are a life saver! Woohoo for finding a jacket in your size!

  • @mayaceasar55
    @mayaceasar55 6 років тому

    I get that with ADHD too. But I’m also looking into Aspergers because aside from the focus issues I also have some sensory input stuff and I’m quite socially awkward. Im a very sarcastic person but for whatever reason I have a hard time reading sarcasm in other people.

  • @sarahp6554
    @sarahp6554 6 років тому

    Thank you for sharing your life with us!

  • @patmccoy8758
    @patmccoy8758 6 років тому

    I get: "You're too old to be autistic. Only kids have it." By the time Aspergers Syndrome was recognized and included in the DSM, I was already well into middle age. I'm a Senior Citizen now and it's frustrating. I still struggle.

  • @sammizelitt5494
    @sammizelitt5494 6 років тому

    I was wondering if you could do a video about how you cover your port to take a shower? Unless you've already done one! Love your videos!

  • @RoadkillbunnyUK
    @RoadkillbunnyUK 6 років тому

    I see your autistic traits in the vlog but this maybe because my 10 year old son is also autistic. He is very high functioning and I wouldn’t change him for the world, his autism is part of who he is and he brings so much joy. He takes helping to look after me very seriously, we call him my ‘service son’ he is so sweet natured ‘counter balance mummy?’ And a benefit for him like you is that if somebody is being mean it just sails right over his head.

  • @sophiepalmer-doran344
    @sophiepalmer-doran344 6 років тому

    i have Asperger like tendencies due to my epilepsy which i know is difficult to understand to put it in simple terms as a result of my seizures my brain compensated and rewired itself and so i have all of the symptoms of Aspergers but lack any sort of understanding math as a result i have no understanding of money and never really learned my basic math facts.(i am just learning them now in college which for most Aspergers people they are gifted with math abilities )i also have orthotic because due to my seizures that i had straight feet at birth. i also have a sensory processing disorder. i have low gross motor control and other motor issues as well.

  • @Flareontoast
    @Flareontoast 6 років тому

    Yaaay it's so awesome when you talk about autism!
    My partner also sees my autistic traits in me more than myself sometimes :P

  • @Hayden-rc1ru
    @Hayden-rc1ru 6 років тому

    10:05 "Really Paul? You're just like Judd.
    -Pretty much, it's why we get along so well."
    👌

  • @lorimitchell9025
    @lorimitchell9025 6 років тому

    I have high functioning autism. I was diagnosed at 16.The way that it effects me is that I can’t live alone because I need someone there if I need to go to the hospital or urgent car because I don’t drive. Other than that I can do pretty much allot of everything myself. Just like you I love to cook and bake.

  • @katelynlewis3206
    @katelynlewis3206 6 років тому

    Its wonderful when we have friends who truly understand. My best friend knows I very much struggle to understand sarcasm. It's one of my biggest struggles. Many times someone has said something sarcastic and i dont understand so i end up turning to my friend in confusion when I get weird looks. She giggles when i get excited when do i understand it though.

  • @BlueDiamondStar
    @BlueDiamondStar 6 років тому

    I sometimes do think I am either autistic or something similar because even if I made it through school I was never into social nor ever had much friends nor ever felt comfortable around people but I had to make it till the end and be done. I suspect there is some attention/learning issue because now that I know more about things it explains why I always were doing like million things at the same time but in the end some other things I paid enough attention to memorize which weren't the ones I needed to memorize. I don't think I can do school anymore because I won't be able to hold my attention and suffer through socializing which has been made today's education base (at least where I live)

  • @tammyminckler1040
    @tammyminckler1040 6 років тому

    I truly feel people get Down's Syndrome mixed up with Autism. And sadly that is due to simply not taking the time to be informed (reading). And furthermore, many do not realize it is a spectrum. It is not a case of either you have it or you do not have it. It is a deep ocean of information. If you are not that well informed on the topic, be honest and say, "Oh, I do not know that much about it, thank you for the information!" Thanks for the VLOG girl!! If you can, get out for another stroll today!!

  • @Stalaxian
    @Stalaxian 6 років тому

    I get "Why do watch adult shows if you have autism? Shouldn't you be watching kids show?" Me- sighs...