100% spot on. After getting better from POTS, with the help of docs like Dr Keizer, I’m so appalled at the lack of actual health care we get from standard medicine. And even more appalled that they don’t even seem to want to do any better.
@@lauracastle6035 First I found through research that POTS is a symptom of autonomic dysfunction, and then looked for what helps rebalance the autonomic nervous system. It’s also helpful to understand what’s driving the dysfunction. For me the driver was Lupron which shut down my hormones, on top of severe anemia caused by fibroids. What I did to get better was a combination of physical/neurological therapy, removing dairy, gluten, and other potentially inflammatory or problematic foods, taking supplements like Glutathione, Resveratrol, magnesium (that’s a big one), curcumin, B vitamins, zinc, and maybe most importantly allowing myself to rest and removing as much stress as possible. I noticed the biggest change when I took a3.5 week vacation at my parents house and slept 9-11 hours every night.
The short term solutions are exactly what I’m concerned about. How do we talk to medical providers to get additional testing done, to see where the actual problem lies?
I think the statement that "no one is looking for the cure for POTs and just using band aides for management" can be said for the whole medical industry. Especially for chronic illness.
If a healthy body needs less than 500mg of sodium/day to function properly and the WHO recommendation is less than 2,000mg/day, because of the known health risks associated with consuming more, is it actually safe for someone living with POTS to consume 3,000mg -10,000mg/day?! It seems this is like putting a Band-Aid on a damn; a short-term "fix" that's going to give.
Love this line "they say that theres no cure for pots but I don't think anybody is looking"
100% spot on. After getting better from POTS, with the help of docs like Dr Keizer, I’m so appalled at the lack of actual health care we get from standard medicine. And even more appalled that they don’t even seem to want to do any better.
How did you get better? Asking for my teenager in a wheelchair
@@lauracastle6035 First I found through research that POTS is a symptom of autonomic dysfunction, and then looked for what helps rebalance the autonomic nervous system. It’s also helpful to understand what’s driving the dysfunction. For me the driver was Lupron which shut down my hormones, on top of severe anemia caused by fibroids. What I did to get better was a combination of physical/neurological therapy, removing dairy, gluten, and other potentially inflammatory or problematic foods, taking supplements like Glutathione, Resveratrol, magnesium (that’s a big one), curcumin, B vitamins, zinc, and maybe most importantly allowing myself to rest and removing as much stress as possible. I noticed the biggest change when I took a3.5 week vacation at my parents house and slept 9-11 hours every night.
Thank you ❤
The short term solutions are exactly what I’m concerned about. How do we talk to medical providers to get additional testing done, to see where the actual problem lies?
I think the statement that "no one is looking for the cure for POTs and just using band aides for management" can be said for the whole medical industry.
Especially for chronic illness.
If a healthy body needs less than 500mg of sodium/day to function properly and the WHO recommendation is less than 2,000mg/day, because of the known health risks associated with consuming more, is it actually safe for someone living with POTS to consume 3,000mg -10,000mg/day?! It seems this is like putting a Band-Aid on a damn; a short-term "fix" that's going to give.
Why is there not enough research on pots?
Why it's called a mystery disease? Why no help :(
Those 👀
How would you help someone with hyperPOTS who lives in AZ? 😩🥵