BLOOD WORK RESULTS | Lupus and Sjogrens
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- Опубліковано 1 бер 2022
- Since I was able to get my full blood work results through my specialist, I decided to film a video. Blood tests can be confusing when you are being diagnosed with a connective tissue disease. I have been diagnosed with lupus and sjogrens syndrome and my blood work definitely shows this. Although I am not actively flaring, you can still see my antibodies are positive. I hope this video was helpful to show that seeing red in your blood work is okay and for me this is normal.
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My name is Samantha Wayne and I have been creating advocacy videos on UA-cam since 2009. This channel was formerly known as Live Hope Lupus and was created in order to start a community for those living with chronic illnesses. In September 2019, I transitioned to a plant-based diet and I have found my body is responding well to it. Along with my lifestyle change, I am learning to alter my focus more on the positive. My current content will focus on my healing journey, what food I am eating, and everyday life. I will still be posting an occasional update about my health. I hope you all are ready to join me on this crazy journey of healing. We are all learning how to navigate this life together. If you have subscribed, thank you! I appreciate your support and look forward to talking with you all in the comments.
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DISCLAIMER: This content within this video is not medical advice. The purpose of these videos are for general education and to share my own experience. This content should not be used to self-diagnose or self-treat any health condition. Please consult a healthcare professional before attempting anything in this video.
I have a lot of the same things hope your having a good day
wow congrats on the normal reference range inflammatory markers! My c3+c4 have been out of the reference range for the past 4 years but have been slowly climbing to reach normal ranges... I hope your sinus infection clears soon!
So wonderful the AIHA is not active 👏 I hope you’re feeling as well as possible. ❤️ Thank you for sharing.
I am so happy I found this video. I recently went to the rheumatologist due to a 1:1280 ANA test. They told me there is an extremely high chance I have SLE. I got my Lupus Panel results last week and the only ones are out of the normal so far are both my SS (both at 8), my ANA at 1:640. I don't see my Dr until June. I am still in pain, my hair is still falling like crazy and my symptoms are still around. Ir kills me that I don't have a diagnosis, specially because they also put me on Hydroxichloroquine without one.
Wow! Same with me. Ana 1:640 see her in one month and she put me on same medication. She suspects lupus. Im
Waiting for my labs
Almost same with me. Mines was at 1:640 and I have SS and R A was told lupus also and 6 weeks later said I don’t have lupus but I have lupus protein. It sounds crazy to me.
I'm praying for you! God bless.🙂💞🙏
Thanks for this. You inspire me to go to my doctor. To figure out my health
Thank you for sharring your story! I love finding your channel and having a space where others know what I live with!
Thank you!
Scl-70 test is for scleroderma (systemic sclerosis), and the different staining patterns have to do with the different diseases you suffer from. Where the disease is active in and what parts of your body, what disease you have. Also, it can be from certain medications and even show up from any infection you have at the time of your blood work. (If it is from infection, it would only be temporary) My patterns change from time to time. I have SLE, Scleroderma, sjogren's, and fibromyalgia.
Love love your hair ❤ love your channel ❤❤❤
I have taken several blood tests. All come out positive for some autoimmune issues, but the “pattern” doesn’t align with anything…. Removed salivary glands for testing, but nothing. Now I’m trying meds to see if I have Ankylosing Spondylitis or Lupus… it’s been over 10 yrs. No one will put a label on it. My facial muscles are always in pain with flares during that time of the month…
I just want to not hurt everywhere, or at least put a name on it so I’ll know where to go, and what to do. Glad I found your channel.
Good little channel. Was a competitive tennis player pre covid, than got covid and now got rnp amd ana positive, and super muscle pains evennif i do nothing. No clue what dietnto even follow as i was super healthy eater pre covid. Hope to learn more about diets to help verse taking hydroxychloriquin. Thanks for the great little channel.
Thanks for making this video. It's interesting to compare my results to yours (I don't often get the chance to compare with other lupus patients). My Anti-DS DNA antibodies were initially as high as 39, but now around 12, and My C3 (10) and C4 (1) were really low when I was first diagnosed, but have come back to the bottom of the normal range (C3) and almost normal (34). But I still have symptoms (mostly pleuritis and pleural effusion). My rheumatologist (I've had RA for many years) measured my anti nuclear antibodies, and the titers were like >1:2560 (the highest it goes), and that was like 6 years ago, but the doctor didn't investigate as to whether I might have lupus. I suppose at the time I didn't have any major symptoms that couldn't be explained by RA.. For me the pattern on my ANA antibodies is homogeneous only. I think that means I have lupus but none of the accompanying syndromes.
The ANA speckled pattern indicates Sjogrens.
Just got a really huge jump in my RNP test (I believe), indicating MCTD. My doctor was stumped and besides fatigue and standard eye irritation...I couldn't really feel or see any other flaring signs (usually I have cutaneous manifestations). But because of this, I was prescribed CellCept and was pretty bummed, since I had gotten off Prednisone and only been taking Plaquenil. I both love and hate getting all my blood panels and comparing all the charts lol thanks for sharing your results!
Det här
Hi dear new subscriber here... do you know if Kambucha is allowed? I make my own Kambucha but not sure if it affects the protocol.
My C reactive protein is at 44 this week. And anti dsDNA is 155. All my inflammation markers stay extremely high unfortunately for me, even after kidney transplant and chemo ( not to mention the very strong immunosuppressive drugs I take as part of n6 anti- rejection protocol). Good luck to you dear 🙏💝
Best of luck to you as well! Sorry to hear your inflammatory markers are always so high! I hope one day they’ll give you a break.
I am so curious. What about your diet? Has your doctor told you to stay away from inflammatory foods? Certain foods cause horrible inflammation! My organs were failing until I learned about this. People with any autoimmune disease have to stay away from inflammatory foods. I do not take any meds. I just follow a very strict diet and it turned me around. I have celiac disease...but even though I was eating gluten free, I still was so very sick. Blistery rash, joint and muscular pain, migraines every day, anemia, loss of balance, loss of hair, and my internal organs were on fire. I researched, stayed away from inflammatory foods and within 3 weeks, everything turned around! Research what foods you should avoid
if you have Lupus. I hope this helps!!!
@@mjblue84 great advice. I have been on a anti-inflammatory diet for close to 17 yrs. No dairy, ne meat, no sugar. I tried AIP (Auto Immune Protocol) for 8 months. I hate saying this but my lupus is severe. After being diagnosed at age eleven, over 30 yrs ago, my anti inflammatory diet helps to keep me only so much. I was on dialysis and had a very strict diet as well. I was in an induced coma for 3 months to control seizures and inflammation. I am truly blessed to still be breathing and honestly, some people have severe lupus.
Hi is it normal to get negative test results in-between as I had two positive test results before
I had a rash that was going to make me lose my mind after a hysterectomy back in 2015. Then a year went by tons of specialists, ana checked atleast 5 times and always positive but titer 1:40 speckled RA positive Sjogrens positive everything. The Rheumatologist had a horrible bedside manner and treated me like I was wasting his time. I ended up with 105 fevers in hospital for 14 days then left hospital after a team of Dr's couldn't figure out what was going on. The oncologist had me come to his office. Said I present in an unusual manner. He said part of blood work shows several things, including Hodgkins Lymphoma. Another part of blood work says no. I ended up getting 2 biopsies came back and said that after much deliberation with colleagues, they are going to treat me for Hodgkins Lymphoma. After 6 months of chemo every other week, I thought it was over. I never got better. I felt horrible. I couldn't focus, etc. Dr's couldn't help. Ana is still positive. Sjogrens are still positive, but because I do not have the dry eyes and mouth no diagnosis. I have a fibromyalgia diagnosis with chronic. Pain. I am half blind in one eye, and they can't figure out why. I cannot go out in the sun without itching and feeling like something is biting me. I could go on and on. I do not have the butterfly rash but I'm having kidney issues and I end up in bed by 3 o'clock most days. I have almost all signs of lupus. I'm on pain meds and am sick of having no life. I'm on disability for this. The judge said he had not ever seen so much medical evidence of Dr's saying they can't figure it out. I know I have Lupus. My ANA is now 1:80 Homogeneous. I'm going to Shands Hospital. It's so hard getting help. Sorry for the long rant.
Have you tried Dr Goldner's protocol?
I am so so sorry to hear of all you’ve been through/continue to go through. How are you now love? Sending care and thoughts your way
Oh man, I'm so sorry. It seems like you have lupus hands down. I'm tired of the Western medical model.
I feel you! I have a similar situation when it comes of getting the right diagnosis. It makes even tougher when one Antibody reflects different conditions and symptoms are not exactly ‘falling into the criteria’.
Hang in there! For what it’s worth you’re not alone in this confusing frustrating journey.
Much love ❤
Hello there Samantha. I have been following your story for a while, even back in the day when you tried Dr Brooke Goldner's Lupus protocol. I am so sorry that this didn't work for you though hopefully your anti inflammatory vegan diet is helping in some way. I have a diagnosis of Ulcerative Colitis and my CRP level is usually below the normal range however I mistakenly had my bloods taken when I had a chest infection and my CRP number increased dramatically. The nurse told me to wait until two weeks after I had recovered from the infection before testing again. I did this and my CRP returned to below range. From my experience it seems likely that your sinus infection is the cause of your latest raised level. Best wishes from the UK.
Dr. Goldner’s protocol didn’t work because Samantha couldn’t stick with it long enough to completely heal herself of lupus. She wanted cooked vegan foods so her autoimmunity never resolved itself. She’s happy with her life as is & puts more faith in medications. If she’d have stuck with it her results would’ve been better but it’s hard without support. Hopefully Samantha will try again at some point.
Thanks. Very informative, I am always confused if I have SS or SLE , I have ANA 1:80 and SSA positive but all other antibodies all negative, I have speckled pattern,
Once again i want to appreciate Dr.Auchi for helping me with his herbal medicine to cure my Lupus disease completely, i really suffer from this disease for the past 5year, Right now I'm Lupus negative after using the herbal medicine Dr.Auchi sent to me. I gave all thanks to God for leading me to Dr.Auchi who was able to cure me completely from Lupus disease, Dr.Auchi you are the best traditional herbal doctor in the world God bless you sir Dr.Auchi on UA-cam channel...
I suppose may be SS just like me. What symptoms are u suffering now?
@@khhtutorWhat does it mean by speckled pattern? I have positive ANA 1:160, SSA-RO and RO-52 positive. Doc told i have sjogrens syndrome. What is your symptom? Do you have heart pounding hard?
I also have sjogrens and lupus thank you for sharing awareness about all of this. I’ve been eating a lot cleaner and exercising. I’ve wanted to ask if you think it’s ok to drink alcohol just like once in a month because I know it’s really inflammatory. Love your videos so much and you’re super pretty ☺️
I personally drink alcohol about once a month. Usually a wine. I think it is okay but I know if I drink a lot it is not good on my body. I think it’s all about balance and reading how you feel!
Once again i want to appreciate Dr.Auchi for helping me with his herbal medicine to cure my Lupus disease completely, i really suffer from this disease for the past 5year, Right now I'm Lupus negative after using the herbal medicine Dr.Auchi sent to me. I gave all thanks to God for leading me to Dr.Auchi who was able to cure me completely from Lupus disease, Dr.Auchi you are the best traditional herbal doctor in the world God bless you sir Dr.Auchi on UA-cam channel...
SCL 70 is for scleroderma
Hi, I’ve watched all your videos on your Costochondritis journey and I need your help
I’ve been seeing a physio, doing stretches and mobility work and I’ve seen a chiropractor, it seems to help a bit, but I still feel like I can’t take a deep full breath in
I’ve ordered the backpod on the 11th of Feb and I’m still waiting for it to come in, because I live in South Africa, this condition really makes a person anxious
Some days I have my ups and some days I have my downs, do you have any tips ?
I’ve had costo for the last 6 months and it’s absolutely horrible :(
Did the backpod really help your costo ?
Did you have difficulty taking deep breaths when you had Costochondritis?
I’m sorry you’ve been dealing with this for six months. The BackPod did indeed help my costo and it went away within a week of using it. I have had many others report the same but some don’t have as great of a result. I really hope it helps you!
I did have trouble with breathing in when the pain was severe. It was so bad sometimes I would never wish that pain on anyone.
Mine is also cytoplasmic, just received positive ANA yesterday and haven’t spoken to Dr yet, anyone know what that means? There is not much info about it online.
I meant to add there was no additional note on the type of staining like yours with speckled and so fourth
So having a lupus dose your hair fall out a lot?
I have lupus and Sjogrens and more than 1/2 of my hair gas fallen out. It’s about time that I turn towards wigs. I have long hair and am quite upset about the hair loss.
I do not lose hair due to lupus but it is actually quite common
Any person with seropositive autoimmune disease should consider themselves lucky . If you are seronegative you will not get any help every rheumatologists I have met only believe blood tests that fit what they learned in college text books they will explain away lean there head to the side give you a eye role and a smile nothing you say and no physical evidence will alter that and if you become persistant and beg them to please listen you will get blacklisted and every rheumatologist will give you the famous simotanious eye role and smile I have given up all hope