Відео

my surgeon removed first 2 tubes the day after surgery and next 2 the following day.. no pain at all.. having urinary catheter removed was way worse 😏

My surgeon and his Nurse Practitioner pulled all my tubes out. Just felt funny. No pain at all.

Update: they did not do an autopsy on my uncle, so we will never know if he had a dilated, aortic root, or anything else that was dilated and his heart

If I was your husband, boyfriend, brother, or father, that nurse would be in the hospital and I would be in prison, so it would be a lose lose situation

Thank you for sharing this. My dad is in Oklahoma and I am in South Carolina. He has 3 tubes. Your video helped me understand. Dad wanted to keep it a secret. Now I can talk about this. He won’t answer phone.

Thanks for your video…I have a chest drain placed in my lung vs on the membrane (had to be placed deeper to get all blood out but don’t know if it makes a difference). I’m so anxious about the removal but after watching your video, I feel much better. Crossing my fingers to getting it out in the morning…&

Stop ragging on nurses and tough it up 🙄

I was watching this video right before they pulled mine. This video made me quite anxious. As someone else said, “I know everyone’s experience is different” but as he was about to pull it I was trying to control my breathing to prepare for an awful experience he didn’t tell me to breath out. He just said hold it and it was over. Barely felt anything. So just relax.

My son was diagnosed with marfan almost two years ago. He was a normal baby and we still doesn't know where is came from since no one is my family has any symptoms.

Thank you for doing this video. It will definitely help others. Hope you are doing well

Can I ask quetion

What happen if you living warfarin and take antibiotik

I woke up with a blurry shadow in my right eye's lower vision field. Optic nerve stroke. I thought I did it headbanging at a concert (in my living room). 53 and relatively healthy (relatively). First thing I checked after the doctor got done with me was my view through a scope, as I do a lot of backyard plinking- all good. The doc actually laughed when I asked him if I could have done this headbanging. The more you know...

I remember the tube being pulled out when I had by-pass surgery. IMO the anticipation was worse than the event but that tube was so long. Lol

Thanks for sharing this info. Very timely for me. My leaflets are mildly thickening. I'm on 20 mg Furosemide also. I'm on Lisinopril and two other BP meds Interesting though I have bradycardia at night in low 50's and very normal during the day. My LV is mildly dilated.

Sounds very familiar. I thought because my heart rate was higher than my age rate was a good sign. Lol. Like you I got out of breath and it seemed to me that it was an issue with my lungs. Took echo last month and was moderate to severe. Gave me diuretics and taking another echo in a few weeks to see if that helped. Praying

Oh the things ppl with CHD have to do that others dont understand… i hate the lovenox shots myself when Im hospitalized the medical team ususally gives them to me, i absolutely refuse them…

Im 3 years post op from an aortic mechanical valve replacement. Almost immediately I was experiencing double vision, deja vu type “seizures”, and vertigo. I learned to live with these inconveniences, and my cardiologist stated this is common after being on a heart-lung pump. As of 1 day ago I experienced my first TIA, and was rushed to the ER with arm numbness and inability to speak. My INR was in range, as well as my CT, MRI, and blood work. Like I said, I’ve learned to live with it, but after this TIA real fear has started to settle in. I am 26 years old, and I don’t want my life to be crippled by TIAs, or worse, a stroke. I hope you’re doing well, as we take this journey together…

I had a similar situation after open heart surgery. I had the first one 30 mins down the road after discharge. It is very similar to what you describe but it was so distorted I couldn't tell what was going on, seemed like each eye was smearing the images independent of each other and it also lasted about two mins. This happened again the next day the same way and in two days from then. In another two days it haplened again to a much lesser degree and I could see it was double vision vertically. That was the last time it happened until 4 weeks later when it happened once more. I talked to a nurse practitioner, a doctor and went to an ophthalmologist and nobody is concerned about anything serious but it really bothers me, I hope this isn't something they are overlooking. I also won't be able to do an MRI, one of my pace wires came all the way out but the other got stuck and wouldn't pull through my chest so they clipped it. More importantly I have steel wrapped around my sternum.

any tips? on warfrin and antibiotics witrh ink 1.1 for the last 3 weeks. hoping mine isnt endocarditis fightiung back

I had night sweats after diverticulitis/colostomy surgery and again after I had my reverse colostomy. I just had a quadruple bypass and am writing this comment while I'm still in the hospital (I get discharged today). Last night, I woke up early in the morning with night sweats. I knew this would happen after getting anesthesia. For me, it'll take the anesthesia another week or two to leave my body. In the meanwhile, my temperature will spike when I'm having these night sweats and I'll change my clothing 4-5x each night. I've learned to put a beach towel under me during this period so my bed sheets don't get soaked.

Wow, you refused a blood transfusion? That is brave. Cardiac surgery is number one for losing blood. But they have lots of ways to avoid giving a blood transfusion these days. And never mind about your hemoglobin, your body can heal much faster without that slam dunk on your immune system from a transfusion. It is so much safer without accepting someone else’s blood. May I ask why you refused? How did you become informed?

Stings like shit huh? I have 3 more to go, countdown is on. That one will likely bruise, i have heaps of bruises but they go in a couple days. Running out of space on my left side. Don’t know why we all do heavy breathing but I do the same, it either that or take the damn thing out I guess. 😬

Thank you for this. I hope your surgery went well. I'm 31 and have mitral regurgitation and its.causimg a lot of bad symptoms and possible afib. I think I'm going to have to have surgery and I'm scared. Symptoms are getting worse though where I can't function and HR skyrockets. In going to watch all.your videos for sure. 🙂👏

“Right side at night” is how I remember which side to inject. Also, choosing and cleaning the site first, letting the alcohol dry while you prep your dosage works best for me. Also, swinging that needle around while making this video and explaining the prep process makes me nervous.

I have my mom do mines I was on the pills first but now I’m pregnant so now I take injections the needle ain’t the bad part of it it’s the actual medicine being pushed inside it hurts so bad and burns 🥵 I hate it but I know it’s for the best

My uncle died yesterday 😣

I had the biggest needle phobia outa anyone u could meet. But I never let someone else gimme that shot. Almost passed out the first time I did it. And every time after that for a few years until I got used to it. Never really used to it

Ive been taking this since I was 16, for 16 years now. I know how to find a good spot lol still sucks though. God I know that burn. Usually bleeds when u hit a blood vessel. Bad spot

Hope you doing well now

Having mine in three weeks. Thanks for sharing.

Hi. I hope you are feeling better. Actually you should go at a 90 degree angle and do no rub the sight after. Good luck

I know it hurts,and I'm sorry you have to go through it as well,I too have to take them for my blood clot,they do not feel good at all,but please for your own health do not rub it hun,they should have told you not to rub it when explaining the procedure to you but I know it was probably hard concentrating on how when processing that you are going to have to do it!it really is not fun at all,I'm on my 4th blood clot so it's not my first rodeo but you never get used to it!

I have also Marfan Syndrome!Life is so hard!

Marfan Syndrome what a nightmare!My mother's family counts twenty members with this demon including me!I feel you but I cannot forgive God for such an emotional and physical pain!

Hey Stephanie how are you doing, you havent posted in a while, I hope you are doing ok.

That thumbnail is very misleading.

Your so brave, it took me 5 years to have the guts to injects my self. Thank you for the video. Best wishes and hope you’re doing well.

You helped me with giving myself the lovenox shot cause I’m terrified of needles thank you

I’m so sorry for you. I have to do it for 5 days twice this month for cath tests. I’m being put n the heart transplant list. I’ve had this once nd if I ever find the nurse who convinced to take it I’ll punch him directly in the face.

How are doing Stephanie?

Hi Stephanie. I watched your video and cracked up laughing. I started the injections a week ago, and my reaction has been the same as yours! Thanks for showing your courage and for validating my feelings! We can do this!

Hi. try to get your own machine the insurance cover mine and i do it at home. i also keep records of my reading and dosis wright next to it just in case i cant get in touch with my cardiologist i will know what he gave me in the past. i have a mecanical work done in my hart and aortha.

I go really slow and it didn't hurt much

I was so happy when I found your channel because all the videos that were showing up were the ones where there were no issues and had me thinking I was going crazy with how I was feeling a d I am praying for you honey. I had a heart attack over 15 years ago I have 7 stents. Now I have mitral valve leakage and am about to embark on my first open heart surgery. You inspire me honey thanks for sharing your story

Hello Stephanie I have a leaky mitral valve and am do to meet with the experts here in Virginia to discuss surgery. I had a heart attack 15 years ago and have 7 stents

I like your style and voice. 😘😘😘😘😘

They do shot in hospitals because I had in hospital mine. My inr was low too.

I like your voice and your hair 😘😘😘

Aww i feel for you I’m on lovenox now and I dread every time I have to inject myself which is every 12 hrs.