Відео

Stopping gluten is the ultimate treatment for any autoimmune disease IMO. L-lysine is essential to produce the range of necessary collagen compounds.

I wanted to say a big thank you for this video, i watched this a couple of times before i applied for PIP, I also filled out my form myself and had a telephone assessment, I was told by others expect to appeal i was honest about my condition and i was awarded pip.

My brother has recently been diagnosed with PPMS. He came to live with us after his wife decided she'd had enough. Like Ed he has a hernia (going for surgery next month at last) and struggles to urinate. I don't think any of his doctors seem to see any connection there. Like Ed he has white matter disease in his frontal lobes. He's been medically boarded and is struggling to walk. And like Ed I suspect this started in his teens. He's now 60. Unlike Ed he seems pretty unconcerned about it all, he says he feels no stress. No approved drug in this country, but he's taking LDN and I've got him on a healthy diet and these seem to be helping. No active lesions in his most recent MRI. Thank you for this helpful video.

4 months and still haven't heard anything, they said it will take 8 weeks!

Hi everyone . i recently had my PiP application accepted , what was supprising was , I didnt have an assessment , This was because I supplied a large amount of medical documents/reports etc. to prove my conditions .

Hi. I had my phone assessment call on the 6th August & on the 7th September I had received a letter asking me for prof of identity to progress my claim. Is that a good sign? Thank you in advice xx

Bad quality sound. Very frustrating.

In America there almost never is a 2nd chance after you're put on a PIP. That is essentially the excuse managers use to fire people and avoid legal consequences.

My hands are balling into fists at night while I sleep, and sometimes just a couple of fingers curl while the rest are straight. I've noticed reduced dexterity in my hands and muscle fatigue in my forearms. typing and grabbing things are a bit more challenging and tiring than usual, due to a recent relapse. Thanks for the info! Helpful. :)

Im thinking 3rd time maybe the assessor was different

go for 2000 to 3000 mg per day of L-Lysine ... its kicking the MS out of my wife right now.

stay positive, focus on what you can control

You can ask any doctor at the hospital can you put points on your illness No they can not tell you on how many points you have Your doctor will say the same No shut thing is point

With this i have been told by the job centre That they are only 3rd party doctor You need to ask them are they fully qualified doctor and you like to see proof This is to what i found out They are only there to stop you getting PIP no matter to how bad your disabled is

Stay strong thank you

Guten Tag. Ich habe seit 4 Monaten Geh Beschwerden und Fatigue und Krämpfe und Schwäche in den Beinen und Nervenbrennen. MRT 2mal negativ und Lumbalpunktion negativ. Kein Arzt nimmt es ernst. Ich denke, dass es PPMS ist denn die Symptome sind da. Ich bin 55.Kann mir jemand irgendwie aus Erfahrung etwas sagen?

Hallo, darf ich fragen wie die Diagnose gestellt wurde. Ich meine MRT oder Nervenwasser?

Sending love 🧡

I have put in for pip for the 2nd time had my telephone assessment fingers crossed 2nd time lucky 🤞

I have Crohn’s disease on top of ppms and 45 years old, I can relate to so many things that Ed said. It’s scary.

My stuff all happens on the right side and I was right handed my whole life but eventually converted to left-handed. Always been pretty good about pain and I don't really get pain with MS as some do just numbness and lack of muscle control. Always got to Oxbridge from you but still surprised I was right. Dig the hair.

Hi how are you getting on LV

Situation with PIP is expected to get worst and that's where the line is crossed the government should protect the vulnerable

So you understood the website and can make yoursef a cup of tea and they gave you pip . My mate got only 2 points and everything the woman got told on the phone she lied and twisted .

My mate was honest and all the dogs did was lie and gave her 2 points . . She told them and they ignored every reply .

Great video, keep sharing. Anecdotal evidence is always the best thing when studies are limited. Fortunately Lysine has a ton of studies proving it is a crucial nutrient required for optimal health 👍

What kind of questions do they ask?

I’ve had PPMS for 30 years I figure, only diagnosed 7 years ago, last 3-4 it has really started to limit me. Only just started Ocrevus 2 weeks ago. I should have have been on it years ago, guess I could blame Covid but also my fault for not pushing for it and going along with Dr. Saying you’re not bad enough yet. So now I’m bad enough but damage is done and there is now going back. All I’m saying here is don’t sit back and take the let’s see attitude, it’s your body so push in a friendly way or see another Dr. That’s my truth. Keep your head up. 🙏

Is their any connection between L-lysine and Hashimoto thyroiditis and/encephalitis . I’m living my 51st year of hypothyroid, Hashimoto thyroiditis and possible encephalitis. And one day I read about my brain symptoms and the benefits of amino acids. Lysine was listed but I had a bottle in my arsenal of supplements and looked up their benefits. Inflammation, check; Anxiety, check. I think I stopped their and said I’ve taken them before let’s see… Mind you at this time I was having multiple absences seizures and probably just feeling overwhelmed and wreck less and tried it. And two weeks without a seizure and suddenly enjoying the productive side of me I haven’t seen since I was ten years old. I know the lysine didn’t transform my life but it did greatly improve it. The Superfood and plant-based protein smoothie, immune suppressant, acupuncture, regular castor oil pack for detoxing my liver and thyroid with exercise together ACTUALLY transformed my 51 year journey to that one moment in time I’ve held close because I didn’t want to stop until I could be that strength in me again.

I went through the PIP process a couple years ago, got 0 points, then 0 for mandatory reconsideration and again 0 for tribunal... what a joke. I've now reapplied, this time with third-party help and I will be recording the phone assessment.

Are you sure it is not Lyme Disease?

When you had a phone assessment did you spokes for your self or someone else spoke in your your behalf?

I have diagnosed with MS and have optic neuritis 😢 i am on steroids iv i am confuse i have severe pain back of my eye and head

OMS or Overcoming MS is amazing. If you haven't found this already Google George Jelinek, it has changed my life 🙂 Wishing you all the best 🙂

The most difficult task for me is to admit to myself my condition and explain to others. Years later even my wife does not have a clue what I am going through day in and day out. Thank you for encouragement.

Thank you so much for sharing I have Lyme, M.S. adn some new mass cell Hystamine, auto Imune also, thinking of Lemtrada doing tons of research this really helped hearing someone who went through it and not just Drs adn studies, Thank you soo much for sharing I'm in New Jersey in the U.S. your sharing helped someone that far the net is good for allot ;) Renn is a musician from Brighton near you his music speaks allot to diagnosis lie ours though he had Lyme like me first then autoimune, it's a crazy cycle

❤ all the best with your future.

After 6 months of waiting, I got my decision letter. They scored me 0 on everything, and on handwritten part, it literally just full of lies, stuff that I wasn't even asked about, and some that I was asked about, but they're claiming the opposite of what I said.

Thank you so much for your sharing. It means so much to me. I have Ms and just diagnosed 2023. Thank you so much.

I was taking it during covid.

Today i had a 2nd pip assessment over the phone to get more information, it was about 2.30pm and lasted about 25 miniures, after it ended i turned off my phone to get some peace and chill out a bit, i put some music on, then banging on my door and i could hear shouting and radios, it was two paramedics, telling me i had been calling my GP threatening to kill myself, we never talked about low mood at all in the 2nd assesment and in the 1st i never said at anytime i was thinking of doing anything, all they asked me is if i'd ever had any suicidal thoughts, it was pretty embarressing, what my neighbours must think i dunno, i've no idea what the assessor has said to my GP sugery for this to happen, i was shocked, shaken and embarressed...They left and about 30 minutes later they were back banging on my door, this time with a member of the Crisis team on loudspeaker wanting to know why i had been calling my GP threatenin suicide when i had not, last time i called me GP was too book a nure app for a vitamin enjection...crazy...i have no record at my GP practice of suicide or threatening to do so, just some depression associated with long tern illness.

Few years ago i had a accessment i went there and it was full with people waiting, i was overcome with stress panic anxiety i had to get out of there, i phoned pip told them what happend they reccomenfed a home assessment which iv had helpd me big time fortunate to have understanding pip workers.🎉

So amazing! Came across your UA-cam totally by fluke… I was a client of yours a few years ago. You inspired me to take a new career! Thank you and take care. Nye ❤

I'm so sorry to bother you, I applied for pip in march had my phone call 2nd may, had a txt on 3rd may saying my assessment is with the assessor and then a txt on the 20th saying the still haven't made a decision, so I requested my assessment letter and at the back page it says based on the claimant's likely future circumstances it would be appropriate to review the claim in 2 years what does that mean please? Thank you x

You are beautiful

Hi Laura, my name is Kerrick. I live in Pennsylvania. Have MS and similar story, had a very active lifestyle and rode motorcycles, a Black Beauty. 1981 Yamaha 650 Midnight Maxim. Noticed I was loosing my balance when riding, thought it may have something to do with blood pressure, fatigue, whatever. Quickly afterwards went numb from waist down. Went to family doctor about symptoms, he immediately sent me to hospital for testing. All of them including spinal tap, MRI, etc. I thought that it would be temporary at first. Was wrong. Immediately lost all balance in my mobility, walking, speaking, eating, bowels and bladder. Diagnosed 4 years ago, same as when you posted this video. Bummer it took that long for me to discover it especially since I've been doing not much of anything besides watching UA-cam since I'm now disabled. Coping has been difficult, I miss the great lifestyle that I had and I'm sure that you do too.