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The Art Of Being Ill
Denmark
Приєднався 17 лис 2008
Thank you for checking out my channel!
My name is Caroline. I'm 32 and I live in Denmark.
I'm chronically ill and I was diagnosed with Morbus Crohn (IBD) when I was 22 and with ADD, depression and anxiety when I was 30.
On my channel I share my personal journey, my experiences with illness and practical advice on how to deal with being chronically ill.
I'm also educated a pharmacy technician. Therefore I will also share what I know about illnesses and medicine.
Enjoy my channel and thank you for checking in.
My name is Caroline. I'm 32 and I live in Denmark.
I'm chronically ill and I was diagnosed with Morbus Crohn (IBD) when I was 22 and with ADD, depression and anxiety when I was 30.
On my channel I share my personal journey, my experiences with illness and practical advice on how to deal with being chronically ill.
I'm also educated a pharmacy technician. Therefore I will also share what I know about illnesses and medicine.
Enjoy my channel and thank you for checking in.
Take a journey with me to just breathe #chronicillness #breathe
Your 14 days journey to just breathe begins here!
Start the new year of right and learn to breathe with me.
Breathing exercises has many benefits such as stress relief, anxiety/depression/stress management, pain management and much more.
Starting January 2 one video will be release every day for 14 days. Each day we will learn breathing technics and built on them. At the end you will have the tools to use breathing actively to manage the symptoms of your illnesses.
Hope you will enjoy taking this journey with me.
Disclaimer:
I am not a breathing coach. The technics we use are technics that I have learned over the years.
Start the new year of right and learn to breathe with me.
Breathing exercises has many benefits such as stress relief, anxiety/depression/stress management, pain management and much more.
Starting January 2 one video will be release every day for 14 days. Each day we will learn breathing technics and built on them. At the end you will have the tools to use breathing actively to manage the symptoms of your illnesses.
Hope you will enjoy taking this journey with me.
Disclaimer:
I am not a breathing coach. The technics we use are technics that I have learned over the years.
Переглядів: 9
Відео
Wanna know more about ADHD? Check out this video. #adhd
Переглядів 1721 годину тому
In this video I will go through ADHD: Causes Symptoms Medical treatment Non-medical treatment Chapters: 00:00-00:52 Intro 00:52-03:07 What is ADHD 03:07-04:35 Symptoms of ADHD 04:35-06:43 Why do people get ADHD? 06:43-08:14 ADHD medical treatment 08:14-10:31 ADHD non-medical treatment 10:31-11:11 Outro
Imagine a world where the chronically ill are valued
Переглядів 2521 день тому
In this video I'm talking about why it would be better for everyone if we valued all humans, incl. chronically ill and disabled people.
3 health trends there's no reason to try
Переглядів 2628 днів тому
Todays video is about 3 health trends you really don't have to try since the science are backing them up. Chapters: 00:00-00:55 Intro 00:55-03:40 Detoxing 03:40-07:53 Gluten free diet 07:53-12:23 Excessive water consumption 12:23-13:02 Outro
As chronically ill we are Guinea pigs!
Переглядів 30Місяць тому
In this video I share a story that happend recently that shows how we are guinea pig while we are looking for the right treatments for our illnesses. Chapters: 00:00-00:29 Intro 00:29-05:25 The story 05:25-12:10 What happend 12:10-14:10 Conclusion
What I experienced working at a pharmacy that shocked me! #chronicillness
Переглядів 24Місяць тому
What I experienced working at a pharmacy that shocked me! #chronicillness
Grateful and sad - The dilemmas of chronic illness #chronicillness #grateful
Переглядів 43Місяць тому
Grateful and sad - The dilemmas of chronic illness #chronicillness #grateful
Our immune system is really smart. Watch this to find out why! #immunesystem
Переглядів 632 місяці тому
Our immune system is really smart. Watch this to find out why! #immunesystem
3 medical treatments used back in the day that you will be grateful is not used anymore! #medicine
Переглядів 332 місяці тому
3 medical treatments used back in the day that you will be grateful is not used anymore! #medicine
2 pieces of advice you are sick of hearing but actually works. #chronicillness
Переглядів 163 місяці тому
2 pieces of advice you are sick of hearing but actually works. #chronicillness
3 medical treatments from the old times that will make you grateful to live in the 21 century.
Переглядів 253 місяці тому
3 medical treatments from the old times that will make you grateful to live in the 21 century.
Exhaustion as chronically ill! #exhausted #chronicillness
Переглядів 224 місяці тому
Exhaustion as chronically ill! #exhausted #chronicillness
Heat intolerance? Here is why and what to do about. #heat #chronicallyill
Переглядів 124 місяці тому
Heat intolerance? Here is why and what to do about. #heat #chronicallyill
Why you should be aware of dry mouth! #chronicillness
Переглядів 2004 місяці тому
Why you should be aware of dry mouth! #chronicillness
3 things I always do before traveling abroad. #chronicillness #travel
Переглядів 645 місяців тому
3 things I always do before traveling abroad. #chronicillness #travel
Did they discover the cause of IBD?! #chronicillness #ibd
Переглядів 285 місяців тому
Did they discover the cause of IBD?! #chronicillness #ibd
A look in to my past depressed self. #depression #chronicillness
Переглядів 345 місяців тому
A look in to my past depressed self. #depression #chronicillness
Should you take supplements as chronically ill? Pharmacy tech weighs in! #supplements
Переглядів 306 місяців тому
Should you take supplements as chronically ill? Pharmacy tech weighs in! #supplements
Going out as chronically ill & the aftermath #timeofmylife #chronicillness
Переглядів 186 місяців тому
Going out as chronically ill & the aftermath #timeofmylife #chronicillness
3 myths about mental illness! #mentalhealthawareness
Переглядів 197 місяців тому
3 myths about mental illness! #mentalhealthawareness
3 things I cannot live without as chronically ill. #chronicillness
Переглядів 377 місяців тому
3 things I cannot live without as chronically ill. #chronicillness
Everyday angels #chronicillness #angels
Переглядів 167 місяців тому
Everyday angels #chronicillness #angels
What is the difference between IBS & IBD #ibd #ibs
Переглядів 288 місяців тому
What is the difference between IBS & IBD #ibd #ibs
Vlog - What I eat in a day as chronically ill #wholefoodplantbased
Переглядів 438 місяців тому
Vlog - What I eat in a day as chronically ill #wholefoodplantbased
New study might have found the cure for IBD?!
Переглядів 238 місяців тому
New study might have found the cure for IBD?!
How to reply to dumb comment about chronic illness! #chronicillness #medicalgaslighting
Переглядів 138 місяців тому
How to reply to dumb comment about chronic illness! #chronicillness #medicalgaslighting
Dumb things people say to people with chronic illness! #chronicillness
Переглядів 399 місяців тому
Dumb things people say to people with chronic illness! #chronicillness
Please stop saying THIS to people with chronic illness #chronicillness
Переглядів 1999 місяців тому
Please stop saying THIS to people with chronic illness #chronicillness
Can an online test diagnose me with AD(H)D? #add #adhd #chronicillness
Переглядів 119 місяців тому
Can an online test diagnose me with AD(H)D? #add #adhd #chronicillness
I am physically & mentally exhausted! #chronicillness #fatigue
Переглядів 219 місяців тому
I am physically & mentally exhausted! #chronicillness #fatigue
You are like a beacon of light in a dark place. Yes, people pleasing. Christmas is hell on earth for many.
yet another informative video...thanks
1) deep inhaling and then with a force exhaling out 2) fast paced inhaling and exhaling and 3) horizontal and vertical inhaling - exhaling - few techniques that i practice
thanks caroline, yet another informative video...thanks
yet another vegan diet video .....as a vegan myself i can relate to all your food videos....sincere appreciation for caroline...regards...anurag mittal ( estonia )
thanks caroline for yet another relevant , impactful informative video. As a blessed noble angel you have taken initiative to make content on "out of the box" health and wellness topic on "Invisible Disabilities" that very few understand.....sincere appreciation for the good work being done in the interest , hope and empathy with those who have or are suffering with Chronic Illnesses with Invisible disabilities.
thanks for sharing, i can completely connect and relate.....take care...i have been a care giver to my beloved parents, my beloved pet and now living a solitary life......explaining and making someone understand about "Invisible Disabilities" is not easy. The one who suffers can only know what one goes through...take care...regards...anurag mittal
sincere appreciation for wonderful work done by caroline...regards...anurag ( estonia )
caroline sincere appreciation for your wonderful channel.....i lost my beloved parents and my beloved pet untimely and can relate to you living a solitary life in Estonia working on my Social Entrepreneurship project to help small and medium businesses in Estonia leveraging my International experience .....thanks and regards...anurag mittal ( Estonia )
sincerest thanks for this wonderful content for those with Visible and Invisible Disabilities....regards...anurag mittal
sincerest thanks for this wonderful content for those with Visible and Invisible Disabilities....regards...anurag mittal
sincerest thanks for this wonderful content for those with Visible and Invisible Disabilities....regards...anurag mittal
Hello caroline, sincere appreciation for this informative content created by you . I am am experienced compliance and audit professional and volunteered for DEI committee at University of Illinois, Urbana Champaign, USA during my Masters in Management. I prepared a comprehensive presentation after extensive research of the kind of jobs opportunities, internships, remote jobs available for DEI students - Visible and Invisible Disabilities. Most of the times Visible disability is quite understood but more problem is with those who suffer from Invisible Chronic Disabilities like IBS, Anxiety, Depression etc. Many rather most of the students are not available of their Rights and Federal and State resources and other support systems from Not for Profits. If need be i can share the same with you for perhaps creating a useful informative content on the same to reach out to those with Visible and Invisible Disabilities. I have subscribed to your wonderful channel. I am based in Eastern Europe in one of the Baltic Countrys and is working on Skill Development and Access to Entrepreneurship Ecosystem by SMEs and those with Visible and Invisible Disabilities. I worked across USA and i agree most of the employers have DEI policy on paper!....sincere thanks.....I know may be this message will not be read but i felt duty found to express my sincerest thanks and appreciation for having this channel that js reaching out to DEI - People , Students with Visible and Invisible disabilities looking out for Support System and that is what you are doing through this Health and Wellness Channel....god bless you....regards...anurag mittal.
As a nurse I try to always educate people what their pills are and why they are taking them. In hospital the pills are wrapped individually, so I unwrap them and educate them as I do so. When people are really sick and in pain they are not in a good frame of mind to learn sometimes.
I just can't feel good about potentially passing on my mental and physical illnesses to another human being. I would feel guilty about it every single day.
This is wild 😮 but I appreciate you taking the time to address this topic! It's a great reminder for all of us. ❤
@@thechronicallyillcowgirl You are so welcome. Thank you for watching. 🥰
You did a really good job at conveying something that most healthy people will never be able to wrap their heads around. I don’t know what Søren Kierkegaard was referring to when he said, “The most painful state of being is remembering the future, particularly the one you'll never have”, but it sums up how I feel. I always worked in jobs that provided value to society but now… I don’t know what I can offer. It’s hard to accept.
@@seanleacy7226 It’s so hard to accept and it’s so painful. You being here is more than enough, but I know exactly what you mean. ❤️
I can empathize with you all too well. I always feel sad because I'm constantly grieving over the fact that, like you said, stabilizing personal health is typically the greatest achievement. And it gets old to feel that way. I will always be sad about the things I planned to do that will never come to fruition. But! I am also extremely GRATEFUL for my Life and I love my family and my home and my friends.
@@vanessawillison134 I feel you. It’s hard. But yes, we have to remember what we have to be grateful for. 🥰
Your UA-cam video content is so good. However the video does not get many views. Because your UA-cam channel has some problems. Do you want to know about the problems?
Great video with great tips, as always! 🥰
I have fallen in love with you madam.💘💘💘💘💘💘💘💘💘💘💘.Respect from Bangalore.
I also went to a concert recently and had such a great time because for a couple of hours I kind of forgot about my chronic illnesses and anxiety and almost felt like how I used to feel. For a little while I didn't feel like a 50 year old woman with secondary progressive multiple sclerosis. But then the concert ended and we had to walk to the car 😂 and that was rough!!!
I saw your UA-cam Channel Girl, Get Your Mind Right , your video quality is good but notproperly SEO. Your SEO score is very poor. That's why your channel is notgrowing organically. SEO means Search Engine Optimization. I think youunderstand, for views, subscribers, and comments your video should be ranked ontop of UA-cam, Proper SEO that means keyword session ( low competitor keywordselection) can help your channel to rank on the top. Thank You
good video .but your video is not seo so your video is not getting views ,your need video (95+ seo score) If you SEO your video properly then your video will get a lot of views
Dear, you are making very good videos, your video quality is very good. Only maa your videos are not getting views because of seo, if you do seo properly your videos will get a lot of views, give me your gmail address, so that I can inform you more about this, and we can discuss.
I LOVE this video! What beautiful reflections! Thank God/ the universe/ nature/ whoever lol for these walking angels!! ❤
Thank you. ❤️ Yes, they are everywhere if we look closely. 🥰
Just an interesting point you were making about people in the ER being seen in order of arrival. Here in Canada is based in order of urgency, so even if you were the last person to arrive if you are showing this much abdominal pain you would definitely be seen before let’s say the kid burn in the arm, even though it was a child. You could be having an appendicitis that could burst any moment, so they see you here pretty quickly for that. Unless there is a bunch of trauma patients coming in by ambulance. Then you are in bad luck.
This is how it is at GOOD hospitals here in the US too. When I went to the ER with chest pains from pleurisy, they took me in the minute i was done at the check-in desk. But I used to go to a really crappy ER when I was younger and i remember a man walked in with a LARGE TOWEL SOAKED ALL THE WAY THROUGH with blood from a head injury and they made him wait for HOURS in the waiting room. They only brought him a new towel once. That was traumatizing. That poor man. I think about him sometimes and hope he turned out okay.....
Well ER is not correct. I just did not know what to call it in english. 🙈 It was more like a doctor you call when the doctors office is closed. You get an appointment. They might choose to admit you and then things speed up. That way I do not have to risk waiting for hours due to trauma patients. 🤗 The ER Definitely takes the most ill/wounded first. 🤗
@@Theartofbeingill Ah, okay. We have "Urgent Care" centers in the US who take patients when the doctors office is closed but they don't have the ability to admit us there in the center. If we need to be admitted, they just tell us to go to the ER lol.
Loved this video. ❤ so heartfelt
I have gastroparesis and intestinal dysmotility, which can mimic IBS or IBD. Due to my issue being digestive motility, the prokinetic Mestinon (Pyridostigmine) fixed me. It's nice when an older medication can be repurposed to treat additional medical conditions, since older medications cost much less than newer ones.
So glad you found something that helps you, and is affordable. 🥰
Hi Dear, U need a professional UA-cam thumbnail designer? Let me know please Thanks
Love the sarcasm! These are great responses. You give the best advice. :)
Excellent conversation as always! I agree - there is NOTHING i want more than to be able to hold down a normal full-time job longterm just like everyone else. People are so ignorant, its actually insane.
Booking site link: tr.ee/n3YXIDE3dv
This was such an EXCELLENT video, Caroline! You really explained everything so well. I hope others without chronic illness watch this and develop some understanding and compassion for everyone who is in this situation. Keep spreading the word! 🥰
Thank you so much Lauren! ❤
I’m sorry you are feeling that way. It sounds like depression is making another appearance. Maybe your meds are not working as well as before. Don’t think that just because you are taking them you are protected. You might need to adjust your dosage or maybe even switch meds. You should definitely talk to your doctor. Fatigue and exhaustion is very common with depression.
Thank you for caring. ❤️ I am in contact with my doctor. I do not want to fall into depression again. ❤️
It’s interesting how where you live there are those kinds of support to find out how much and what kind of work you can do. Here we find out by applying and getting fired. lol!! The biggest issue for me regarding work is that I am unreliable. My symptoms fluctuate too much to be able to commit to a certain day and time. If I had a task and had let’s say a window of a week or ten days to complete it would be more doable. I still haven’t found a job that provides that kind of flexibility. I’m glad you found something that works for you and that you get supplemental income.
I booked Feb 17!
My biggest advice is to help people gain knowledge about their chronic illnesses. Unfortunately doctors (even good ones) haven’t been educated on our illnesses and know close to nothing about them. If they’ve been taught anything, it’s probably not true. They often rely on our knowledge and experiences to learn about our illnesses so that they can help others. This is the case for my doctors, unfortunately they haven’t been taught and want to learn. We shouldn’t have to research and learn everything about our illnesses ourselves, that’s our doctor’s job, but that’s the reality for now. At least we can educate those who want to listen and they can add their knowledge about medications and other possible treatments. It requires teamwork between you and your doctor. Another reason to be educated on your illnesses is when you are gaslighted into being told your illness is fake or not serious. I have severe ME/CFS and many call it “yuppie flu” they think people with ME/CFS just are a little tired and need to try harder to get better. Having knowledge about your illness can counteract their false accusations and facts and prove to them that you know what you’re talking about, whether this is gaslighting from doctors, family members, or people you know.
I agree. We need to educate ourselves. Become experts on our own illnesses. 💪
Beautifully stated! This is something so many people need help with! I know I could have used your help back when I was seeking a diagnosis. I took me years of trial and error. I could have potentially gotten answers faster and with less medical trauma if I had your help back then! Thank-you for doing this for others!
To fight my medical gaslighting, I completely switched medical facilities to a place that didn't have my records. Then I obtained all of my records from my previous doctors, since that's free to do in the USA. Then I went through and weeded out all of the garbage and gave my new doctors the records I wanted them to have. Then I directed my care with the new doctors, bluffing that my previous doctors had planned to check this and that, or try a certain medication, and I finally received the care I needed. There were also bad medications that I never wanted to be on, due to some bad reactions. I had them all added to my drug allergies list, since that list is also for drug reactions. I typed that list up, grouped by drug class (I have five beta blockers on it!) and I give that to all of my doctors now. I also give them an organized list of my current medications and doses and purposes of each one.
That should not be necessary! 🥺❤️
@@Theartofbeingill It shouldn't, but I had a bad primary who gaslit every specialist he referred me to. I had to get away from a lot of garbage. My Ehlers Danlos diagnosis was delayed until age 38, even though it was suspected at age 21.
Being born with Ehlers Danlos syndrome, and with doctors being so unfamiliar with it, I was gaslit until I was finally diagnosed properly at age 38. The doctors thought my pain, POTS, hypermobile joints, fatigue, gastrointestinal problems, etc. were all separate health issues, when they were all signs of Ehlers Danlos syndrome the entire time.
Oh wow. This is what I expected when I got sick. But I've been terribly ill since 2018 and, in the USA, it takes ten years on average to get a diagnosis. A nurse laughed at me when I once, in the ER, asked "But can't you admit me and take tests and then find out what's wrong? Isn't that was hospitals are for?" Then, talking me as as if I had no sense at all said, "No, they are for getting procedures done. And you are not eligible for admission because you're not dying." I was dying though. I didn't die. But I don't get any care. And I have insurance. The USA is nothing of what the propaganda has been lying about for the last.... forever. The horrors here... I'm almost jealous that I can relate to your trauma but, in my experience, there was no help or testing. They just said I was lying and it was normal and leave them alone. Once, "the hospital is bursting at the sames you may as well just gone home" was the response I appreciated most. It helped me spend the least time in a horribly painful waiting room. The chairs are so painful, you can't lay down, and everyone is crammed together like sardines.
Sounds like you found the perfect job for you!!
Thankyou for this video, Caroline. This was the BEST advice and so beautifully stated. I'm so happy for you that you found something unexpected that you absolutely love! Thats so awesome and it helps give others hope!
Thank you so much Lauren. 🥰
Definitely agree with you that people who have actually been hurt or who are ill rarely complain or seek attention, if anything they hide it. I will say that being a Christian and being chronically ill I think you could say I’m a victim of illness. In a worldly sense I’m a victim but when it comes down to the sovereignty of God and His plans nothing is an accident and something like my illness that He ordained to put into my life isn’t necessarily a bad thing. I’m not a victim of God is what I’m trying to say. Definitely an interesting topic and thing to think about. A very creative and interesting video, keep it up!❤
I believe everything happens for a reason to. Thank you for your support. 🥰
Love from india ❤
I love your perspective on this and I agree! Setting intentions in place of goals feels so freeing. :) Good luck with your intentions this year! I feel you with getting out into nature more this year. Always a great intention! Happy 2024!
Thank you! Happy new year to you to. 🎉❤