She's not wrong, I had to leave certain groups and individuals. It's hard when you're really isolated, but you can't let others destroy your hope or push you into a crash.
I'm about 90% improved and watching your channel has given me the information I need to realize that recovery is possible and how to actually take care of myself! I left all the support groups as well because there was just so much negativity and it was the crabs in the bucket situation, unfortunately. You're awesome Raelen! You are making a difference for so many people and giving people hope that recovery is a reality! I was in such a terrifying place 9 months ago when this all started but I know I will fully recover and will never give up!
Currently in my 4th week on creatine and I feel so much better. This week I've been running and been working out like I could before I got sick. I dont know if I have long covid or ME/CFS, but whatever it is, creatine is working a dream. Thank you much for this video. You gave me my life back!
@@satiatedghost9216 I started on 20mg a day for a week. I read that this is a normal loading phase and then I should go down to 5mg a day as a maintenance dose. But all my aches and pains came back after a few days on 5mg so I went up to 10mg a day. Did a 2 hour hike yesterday. I feel great!
Wow that’s fantastic! I am going to order some asap . I’ve been taking niacin (as nicotinic acid) and that was what started to move the needle for me so I’m hoping the creative will get me to full recovery. This is definitely giving me hope!! I’m 5 months in w long Covid…
Thats so awesome. Im LC and have been bouncing around with good and bad months. I tried creatine but didnt stick with it. Loooking back, my good months lined up with the creatine doses. I just restarted and felt a lot better the next day, mentally and physically. I'll keep it up! Thanks for sharing you story.
Oh man, listening to this, now as I am about 80% recovered, its bringing back so many memories and truths of the reality of this. Especially the part regarding medical professions and how unhelpful (and expensive *cough cough* they are), and how the best help was from Raelans channel and the online community! Thank you Raelan!!!!
I take Vimergy supplements (B-12, zinc, vit D, liquorice root, cat’s claw, golden seal, and more. These supplements are very clean without unhealthy fillers. They truly made/make a difference in my recovery.
This is so interesting. I recently went over all my blood tests from the past year and a half and noticed that I was low in salt and creatine and none of my doctors thought to bring this up to me. I'm definitely going to try this. ❤️
You weren't all over the place. You were awesome!!! It felt so good for me as a single mom of three and my youngest with autism to here from someone that made it through this as a mother. You were so candid in your interview. Thank you so much for stepping out and taking the time to do this and help the rest of us. One question! Where did you order your creatine from?
Great short interview.I hope she's left a review on amazon or wherever she bought it from. I'm glad she mentioned that she stopped all other supplements before, its really important to mention other factors that may have contributed as it can get confusing very fast .
I just love to watch these interviews. I learn a lot and get a lot of tips that I want to investigate further. We really have to be curious about our own condition in order to get better. I have the same experience about some of those groups. All that negativity and hopelessness🤯. I feel hopeful that I will get much better🌸.
I am a mum of 3 ages 3,5 and 18. After having my youngest I was never the same and started to go downhill, only recently realising this is the condition I have. Fir the first 2.5 years my daughter woke screaming every night 20-50 times shocking me out of my sleep. I believe this is what broke my brain initially. Because my middle son was only 17 months older it was chaos all day with both of them fighting and screaming, visits to a and e. It's been so tough and it messed up my ANS and I now believegot me stuck in fight or flight. My daughter almost 4 and still often wakes repeatedly, she's a sensitive girl. Tenisha thanks for sharing your story, you've given me hope. It must have been so tough to manage and I'm glad you had your partners mum to help you! I've ordered some creatine in the hope it might help! Thanks for your hope 🙏
Great interview and fascinating about the creatine!! I've often wondered how pregnancy affects CFS so it was really interesting to hear both sides of the 2 pregnancies. I'm so happy that you recovered and can take care of your babies 💖
great interview. there's something to be said for simplifying recovery, we can be doing all these things all at once not actually knowing what's helping. it seems like Tenisha really used her intuition, she figured out what her body needed and listened to her own voice. x
Hey, very valuable infos here. I am waiting to meet a Doctor Specialized on CFS in a couple of month and this video reminds me to not expect too much from this meeting. Indeed, the Doc is likely to give me a diagnosis (or not) and that's it.. The only thing I expect from this meeting is to get a proper diagnosis and finally get more understanding from friends and relatives. I also will search for Creatine too, looks interesting. Nice work for your recovery Tenisha. You look great.
She's really clever. I had the same kind of thoughts feeling like I was in a marathon for normal life activity but l didn't apply it practically like she did. Now I know it's a change in metabolism to anaerobic respiration. Creatine sounds really perfect! I take other amino acids and they help. The anaerobic metabolism burns amino acids. Research by Christopher Armstrong shows this.
Isn't that what Dr John Sarno says about TMS which I think is another name for this; he says it lowers the oxygen that goes to the muscles and nerves as a response to fear and a hypervigilant brain.
@@RaelanAgle Definitely up for that, I’m just at the end of 11mths of long covid, nearly recovered. Your information around fatigue has been most helpful and very interesting. Loving the positive vibe. Thanks so much 🙌🥰
thank you both for sharing the evidence and hope that recovery is possible. i really appreciated all the insights. I could really relate to what you said Tenisha about the additional challenge of trying to educate (convince!) others about the illness, even while we're trying to reach an understanding of it ourselves - all while being weighted down by the fatigue and devastating impact on our lives, generally in the absence of any beneficial support from the so-called experts. I could really relate to your descriptions of what it was like for you; and you came across really clearly and coherently to me. I celebrate both your recoveries. Thank you again, Sarah, NZ
Your channel is incredible . Congrats! I don’t think I’ve seen a better channel so far. I like I see you sometimes comment other channels I love. I saw one in a video of Dr. Teitelbaum. ( my main physician). One thing that makes me a little uncomfortable when I see videos of CFS ; fibro; mold … is that they usually mention complete recovery , but when you warch to them, most people have to follow complex routines and feel just 70-85% better, with lots of relapses. No one seems to have a complete picture , long lasting, or do they? /: such a weird complex Situation
I think fatigue is really an inaccurate word bc healthy people aren’t getting it. I didn’t get it. Fatigue reminds me of a gentle but normal tiredness after massive exertion. Like a race horse might be fatigued after the derby & need a nap. But LC/ME/CFS fatigue feels like walking through 10’ of wet concrete all day. Not just walking but living through it, thinking through it. Feels like living in the upside down, cells suffocating. Like being poisoned. We need a better word to express this so people can explain it to their Drs. ❤️
This illness is so misunderstood and people have to battle on to survive. I totally agree with you that their should be better treatment options and support. Unfortunately I didn't have support and I am now 25 years later still ill. I was initially severe then moderate to mild. Got pregnant and had a bad pregnancy and ended up four years later as a single parent with very little support and I've gone mild to severe to mild several times over the years. Each time I started to recover I got a virus or something happened to cause stress and I would be back at severe again. I have been searching and chasing recovery a very long time. The Creatine powder makes sense so I've just ordered some. I have not given up but life has thrown me lots of curve balls and my struggle continues. The biggest thing I will say is medication ie strong pain killers like Tramadol, Codeine and Pregabalin or Gabapentin help very temporarily but cause so many bad side effects and withdrawing off them is a nightmare and in the long term do not help but telling people that doesn't go down well! I think people who have been ill a long time as in decades are not meaning to be nay sayers but they just have given up and are trying to survive. You do also get ones who their whole life is the illness which I agree is very draining. I run a support group in my area which is anything but wallowing in self pity but we are there to have a laugh, lift people up and be with people who understand which is so important in a world where majority of people think it's not a real illness. Keeping my fingers crossed xxx
I can also understand that people get negative and feel helpless after years with this illness. I have been working with guidance and coaching for many years, and what intrigues me is how different we are when coping with hard things in our lives. Keep up the chase for your recovery Rosie😊.
Just an update: I have been taking Creatine plus multi vitamin and also Folic Acid and D3 + K2 vitamins and I don't know which is helping, maybe all, but I am seeing a slow improvement from being severe to now being able to go out the house a couple of times a week and doing small tasks around the house. Only a small improvement but I'm going in the right direction now. I've also nearly totally cut out sugar from my diet as I was diagnosed as prediabetic in March. X
Creatine didn't help me much, but the thing that has had the biggest effect on me is high salt electrolytes. I noticed electrolytes lessened my crash and I read about it in a few CFS books.
I watch some of these. Hoping to identify with someone of them. I have been dealing with this from the age of 19 and I'm 39 now. Soon to be 40. I think of death so often. I can't imagine how much longer I have to live this way. I have tried everything except drastically reducing my work as I am a business owner and I had this before the increase of work.
Well said and great messages. Has anyone else seen significant or at least improvement from Creatine? Interesting haven’t come across someone suggesting it before. Will try it!
Could I ask Tenisha what made you try different brands of Creatine until you found this particular brand? Did you not find after taking the other brands this is not for me? I am tempted to try it but already taking other supplements...its a minefield out there so I was just curious that's all. I am very happy it worked for you 😊
I’ve heard a few other places throughout my rabbit hole research mention the part regarding certain “go go, push through” type A personalities being prone to metabolic/fatigue crash type diseases.
anyone have any idea how much/no of daily doses Tenesha took of the creatine? I have messaged her will wait to hear back but thought I'd check here too
For me, it’s sounds like iron deficiency that was giving you the heart palpitations and shortness of breath on top of the chronic fatigue. I saw myself in you when I used to have my periods and loosing blood and was vegetarian, I used to have those symptoms.
Short of breath, tachycardia, muscle cramp achy, migraines, shaky for 6 years tried so many things.. Might as well try creatine. Nice to hear someone who feels better though! This ain't no joke
The CFS/ME specialists in the UK on the NHS are all pretty useless. Waste of time and public money. The exception being the odd private doctor like Dr Myhill whose list is closed now. Like Tenisha,all the things that have helped me have been from the Internet and other people.
She's not wrong, I had to leave certain groups and individuals. It's hard when you're really isolated, but you can't let others destroy your hope or push you into a crash.
I'm about 90% improved and watching your channel has given me the information I need to realize that recovery is possible and how to actually take care of myself! I left all the support groups as well because there was just so much negativity and it was the crabs in the bucket situation, unfortunately. You're awesome Raelen! You are making a difference for so many people and giving people hope that recovery is a reality! I was in such a terrifying place 9 months ago when this all started but I know I will fully recover and will never give up!
Omg 90% well after 9 months is amazing! I’m so happy for you 🥂
What is that helps you recover the most? Can you share your methods please?
Joseph, this is amazing!!! I'm so happy to hear about all the progress that you've made. Great work!
How did you recover?
I reached out to Tenesha re dosage and she said she took 5g twice a day beginning Feb 2021. She now takes a maintenance dose of 5mg, once per day
Thank you 🙂
So true. People with CFS/ME needs daily support to recover.
Currently in my 4th week on creatine and I feel so much better. This week I've been running and been working out like I could before I got sick. I dont know if I have long covid or ME/CFS, but whatever it is, creatine is working a dream. Thank you much for this video. You gave me my life back!
💓💓💓
How much are you taking?
@@satiatedghost9216 I started on 20mg a day for a week. I read that this is a normal loading phase and then I should go down to 5mg a day as a maintenance dose. But all my aches and pains came back after a few days on 5mg so I went up to 10mg a day. Did a 2 hour hike yesterday. I feel great!
Wow that’s fantastic! I am going to order some asap . I’ve been taking niacin (as nicotinic acid) and that was what started to move the needle for me so I’m hoping the creative will get me to full recovery. This is definitely giving me hope!! I’m 5 months in w long Covid…
Thats so awesome. Im LC and have been bouncing around with good and bad months. I tried creatine but didnt stick with it. Loooking back, my good months lined up with the creatine doses. I just restarted and felt a lot better the next day, mentally and physically. I'll keep it up! Thanks for sharing you story.
Smart woman!! I really admire people who take things into their own hands and make educated attempts.
💓💓💓
Oh man, listening to this, now as I am about 80% recovered, its bringing back so many memories and truths of the reality of this. Especially the part regarding medical professions and how unhelpful (and expensive *cough cough* they are), and how the best help was from Raelans channel and the online community! Thank you Raelan!!!!
I take Vimergy supplements (B-12, zinc, vit D, liquorice root, cat’s claw, golden seal, and more. These supplements are very clean without unhealthy fillers. They truly made/make a difference in my recovery.
This is so interesting. I recently went over all my blood tests from the past year and a half and noticed that I was low in salt and creatine and none of my doctors thought to bring this up to me. I'm definitely going to try this. ❤️
Did it help?? How are you doing now?
Incredible interview and what Raelan said about the specialist who actually had no clue was so fun!
Thanks so much for the interview. I also find creatine helpful. I have only taken it now and again though. I am going to try it everyday now.
I'd love to hear how it goes! All the best for your recovery!
You weren't all over the place. You were awesome!!! It felt so good for me as a single mom of three and my youngest with autism to here from someone that made it through this as a mother. You were so candid in your interview. Thank you so much for stepping out and taking the time to do this and help the rest of us. One question! Where did you order your creatine from?
I totally agree on the retreat idea where people can go and focus on recovery!
💓💓💓
Tenisha, thank you so much for sharing your story with us!
💓💓💓
Great short interview.I hope she's left a review on amazon or wherever she bought it from. I'm glad she mentioned that she stopped all other supplements before, its really important to mention other factors that may have contributed as it can get confusing very fast .
I am so happy for you you managed to figure it out.
I just love to watch these interviews. I learn a lot and get a lot of tips that I want to investigate further. We really have to be curious about our own condition in order to get better. I have the same experience about some of those groups. All that negativity and hopelessness🤯. I feel hopeful that I will get much better🌸.
I am a mum of 3 ages 3,5 and 18. After having my youngest I was never the same and started to go downhill, only recently realising this is the condition I have. Fir the first 2.5 years my daughter woke screaming every night 20-50 times shocking me out of my sleep. I believe this is what broke my brain initially. Because my middle son was only 17 months older it was chaos all day with both of them fighting and screaming, visits to a and e. It's been so tough and it messed up my ANS and I now believegot me stuck in fight or flight. My daughter almost 4 and still often wakes repeatedly, she's a sensitive girl. Tenisha thanks for sharing your story, you've given me hope. It must have been so tough to manage and I'm glad you had your partners mum to help you! I've ordered some creatine in the hope it might help! Thanks for your hope 🙏
I AM SO HAPPY FOR YOU💓
💓💓💓
Great interview and fascinating about the creatine!! I've often wondered how pregnancy affects CFS so it was really interesting to hear both sides of the 2 pregnancies. I'm so happy that you recovered and can take care of your babies 💖
great interview. there's something to be said for simplifying recovery, we can be doing all these things all at once not actually knowing what's helping. it seems like Tenisha really used her intuition, she figured out what her body needed and listened to her own voice. x
Hey, very valuable infos here. I am waiting to meet a Doctor Specialized on CFS in a couple of month and this video reminds me to not expect too much from this meeting. Indeed, the Doc is likely to give me a diagnosis (or not) and that's it..
The only thing I expect from this meeting is to get a proper diagnosis and finally get more understanding from friends and relatives.
I also will search for Creatine too, looks interesting. Nice work for your recovery Tenisha. You look great.
She's really clever. I had the same kind of thoughts feeling like I was in a marathon for normal life activity but l didn't apply it practically like she did.
Now I know it's a change in metabolism to anaerobic respiration. Creatine sounds really perfect! I take other amino acids and they help. The anaerobic metabolism burns amino acids. Research by Christopher Armstrong shows this.
Well I say I didn't apply it but I finally did after 10 years because of reading Chris Armstrong PHD and I recovered really quickly on amino acids.
Isn't that what Dr John Sarno says about TMS which I think is another name for this; he says it lowers the oxygen that goes to the muscles and nerves as a response to fear and a hypervigilant brain.
Thank you what a powerful and positive interview, I hope I can be in that spot one day ❤
Looking forward to have you on soon! 💖💖💖
@@RaelanAgle Definitely up for that, I’m just at the end of 11mths of long covid, nearly recovered. Your information around fatigue has been most helpful and very interesting.
Loving the positive vibe. Thanks so much 🙌🥰
thank you both for sharing the evidence and hope that recovery is possible. i really appreciated all the insights. I could really relate to what you said Tenisha about the additional challenge of trying to educate (convince!) others about the illness, even while we're trying to reach an understanding of it ourselves - all while being weighted down by the fatigue and devastating impact on our lives, generally in the absence of any beneficial support from the so-called experts. I could really relate to your descriptions of what it was like for you; and you came across really clearly and coherently to me. I celebrate both your recoveries. Thank you again, Sarah, NZ
Thank you so much Tenisha and Raelan!!
💓💓💓
Your channel is incredible . Congrats! I don’t think I’ve seen a better channel so far.
I like I see you sometimes comment other channels I love. I saw one in a video of Dr. Teitelbaum. ( my main physician).
One thing that makes me a little uncomfortable when I see videos of CFS ; fibro; mold … is that they usually mention complete recovery , but when you warch to them, most people have to follow complex routines and feel just 70-85% better, with lots of relapses. No one seems to have a complete picture , long lasting, or do they? /: such a weird complex
Situation
How can We get into one of those groups you mention?
A very inspiring story. Stories like this gives me hope! Thank you for sharing your CFS journey
I think fatigue is really an inaccurate word bc healthy people aren’t getting it. I didn’t get it. Fatigue reminds me of a gentle but normal tiredness after massive exertion. Like a race horse might be fatigued after the derby & need a nap. But LC/ME/CFS fatigue feels like walking through 10’ of wet concrete all day. Not just walking but living through it, thinking through it. Feels like living in the upside down, cells suffocating. Like being poisoned. We need a better word to express this so people can explain it to their Drs. ❤️
This illness is so misunderstood and people have to battle on to survive. I totally agree with you that their should be better treatment options and support. Unfortunately I didn't have support and I am now 25 years later still ill. I was initially severe then moderate to mild. Got pregnant and had a bad pregnancy and ended up four years later as a single parent with very little support and I've gone mild to severe to mild several times over the years. Each time I started to recover I got a virus or something happened to cause stress and I would be back at severe again. I have been searching and chasing recovery a very long time. The Creatine powder makes sense so I've just ordered some. I have not given up but life has thrown me lots of curve balls and my struggle continues. The biggest thing I will say is medication ie strong pain killers like Tramadol, Codeine and Pregabalin or Gabapentin help very temporarily but cause so many bad side effects and withdrawing off them is a nightmare and in the long term do not help but telling people that doesn't go down well! I think people who have been ill a long time as in decades are not meaning to be nay sayers but they just have given up and are trying to survive. You do also get ones who their whole life is the illness which I agree is very draining. I run a support group in my area which is anything but wallowing in self pity but we are there to have a laugh, lift people up and be with people who understand which is so important in a world where majority of people think it's not a real illness. Keeping my fingers crossed xxx
I can also understand that people get negative and feel helpless after years with this illness. I have been working with guidance and coaching for many years, and what intrigues me is how different we are when coping with hard things in our lives. Keep up the chase for your recovery Rosie😊.
Just an update: I have been taking Creatine plus multi vitamin and also Folic Acid and D3 + K2 vitamins and I don't know which is helping, maybe all, but I am seeing a slow improvement from being severe to now being able to go out the house a couple of times a week and doing small tasks around the house. Only a small improvement but I'm going in the right direction now. I've also nearly totally cut out sugar from my diet as I was diagnosed as prediabetic in March. X
Which came first? The pregnancy or taking creatine? So happy you found the way that worked for you to get better. Thank you for sharing your story!
Loved this interview.. perfrct amount of time, hopeful and great infon
💓💓💓
Creatine didn't help me much, but the thing that has had the biggest effect on me is high salt electrolytes. I noticed electrolytes lessened my crash and I read about it in a few CFS books.
Hi Kerry, it is possible that it's to do with the stage of recovery you were/are in?
Hi Kerry, what brand do you take, please?
I got pregnant the second year of cfs and went from moderate to mild cfs and i am in my 3 year now and didnt went back to my previous condition
Great video 😊 thank you Raelan
Congratulations 👏🏻😊
Thank you, Jo! 💓💓💓
I watch some of these. Hoping to identify with someone of them. I have been dealing with this from the age of 19 and I'm 39 now. Soon to be 40. I think of death so often. I can't imagine how much longer I have to live this way. I have tried everything except drastically reducing my work as I am a business owner and I had this before the increase of work.
How are you working if you are so ill. ?It is always the first thing that has to go.
Single moms are my heros anyways but doing it with CFS is monumental.
Well said and great messages.
Has anyone else seen significant or at least improvement from Creatine?
Interesting haven’t come across someone suggesting it before. Will try it!
I have felt much better after taking it. Like the next day. I'll take it daily and see how it goes.
My symptoms disappeared after my first child. I swear it resets your body or something
I wonder how the creatine helped Tenisha but great it did! 😊 what a lovely lady and well done Tenisha!
Could I ask Tenisha what made you try different brands of Creatine until you found this particular brand?
Did you not find after taking the other brands this is not for me?
I am tempted to try it but already taking other supplements...its a minefield out there so I was just curious that's all.
I am very happy it worked for you 😊
Just get plain creatine monohydrate. The brand doesn’t matter. 5g twice per day.
I’ve heard a few other places throughout my rabbit hole research mention the part regarding certain “go go, push through” type A personalities being prone to metabolic/fatigue crash type diseases.
anyone have any idea how much/no of daily doses Tenesha took of the creatine? I have messaged her will wait to hear back but thought I'd check here too
Please, tell us if she answers your question! 🌺
@@anyest Ive added a new post re dosage xx
For me, it’s sounds like iron deficiency that was giving you the heart palpitations and shortness of breath on top of the chronic fatigue. I saw myself in you when I used to have my periods and loosing blood and was vegetarian, I used to have those symptoms.
How long did it take you to feel effects from the Creatine ??
How can I get in touch with Tenisha?
Short of breath, tachycardia, muscle cramp achy, migraines, shaky for 6 years tried so many things.. Might as well try creatine. Nice to hear someone who feels better though! This ain't no joke
I developed it in 2005 I had to stop my nursing career in 2012 I’m still the same I’m 65 now!
Fibromyalgia and chronic fatigue syndrome
The CFS/ME specialists in the UK on the NHS are all pretty useless. Waste of time and public money. The exception being the odd private doctor like Dr Myhill whose list is closed now. Like Tenisha,all the things that have helped me have been from the Internet and other people.
sorry, this was not ME, that was a burn out....