Grandmal Seizure Caught on Camera
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- Опубліковано 13 кві 2024
- Hey 👋 Everyone, Apologies for not posting in a while. since I last posted I have still been having grandmal seizures. they are nocturnal, and I must be given the rescue medication called Nayzalim because I have cluster seizures, and if I have one and don't get rescue medication I will have more back to back. I am on so many anti-epileptic medications and nothing is working so my neurologist has diagnosed me with refractory epilepsy. The last medication I'm going to try is Xcopri and if that doesn't work I either live with refractory epilepsy the rest of my life or I have brain surgery. I have an upcoming EEG soon. I will keep everyone updated. I haven't been on much because my seizures have been bad. My neurologist needs my seizures recorded to see which way my eyes look and which way my legs and arms are moving so we can pinpoint where in the brain my neuron is sparking off. I hope everyone has been doing well. thank you for the thoughts. xoxoxo
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I am glad to see you again. You are really a warrior Princess. I have seen all your videos and got so much inspiration and information regarding epilepsy. I want to know that whether you lose your bladder or motion control during your seizures or not? Because My loving friend has Epilepsy and he often loses his bladder control and sometimes motivation control during his seizures. When it happens I get so sad and he has to face embarrassment. Most of times I change his pants during his unconsciousness so that he couldn't know about it. His seizures are so dengerous and it takes around 2-3 hours to get him conscious and normal. If you any suggestions for this then please tell me. God bless you.
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Hey girl.. I have tried commenting on a diff video before... I like, reeeeeally want to contact youu to find out more about youur situation ... like what docs say, etc... i have been dealing with this 3/4 years now &&& all the drs want to do is increase the meds &&& send me on my way... which obv isnt helping... Our situations are sooooooo similar from what I can tell.. maybe even identical... thank youu..