Epilepsy Warrior
Epilepsy Warrior
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Grandmal Seizure Caught on Camera
Hey 👋 Everyone, Apologies for not posting in a while. since I last posted I have still been having grandmal seizures. they are nocturnal, and I must be given the rescue medication called Nayzalim because I have cluster seizures, and if I have one and don't get rescue medication I will have more back to back. I am on so many anti-epileptic medications and nothing is working so my neurologist has diagnosed me with refractory epilepsy. The last medication I'm going to try is Xcopri and if that doesn't work I either live with refractory epilepsy the rest of my life or I have brain surgery. I have an upcoming EEG soon. I will keep everyone updated. I haven't been on much because my seizures have been bad. My neurologist needs my seizures recorded to see which way my eyes look and which way my legs and arms are moving so we can pinpoint where in the brain my neuron is sparking off. I hope everyone has been doing well. thank you for the thoughts. xoxoxo
#epilepsy #epilepsyawareness #grandmalseizure #clusterseizure #neurology #seizureawareness #seizures #medical #medicaleducation #epilepsywarrior #medicaleducation #neurology #tonicclonic #clusterseizures #refractoryepilepsy #eeg #brain #fypシ #fy #epilepsyadvocate
Переглядів: 17 051

Відео

24 Hrs. Later I had another Tonic Clonic Grand Mal Seizure.
Переглядів 36 тис.2 роки тому
I had another Tonic Clonic Grand mal seizure 24 Hrs after the previous video. I am diagnosed with left temporal lobe epilepsy. I am on Keppra and lamictal, but still having break through seizures so I am slowly increasing dosage as per doctor. I will post updates on medication and effectiveness and new updates soon ! thanks for the support and wishing everyone one else out there love and support 💘
Left Temporal Lobe.. tonic clonic.. grand mal seizure I had May 15.
Переглядів 6 тис.2 роки тому
I had a grandma's left temporal seizure May 25 in the morning in my sleep. As you can see my face starts to turn purple , my throat swells.uo, and I'm unconscious .. all while having trouble breathing. I usually don't remember having a seizure.. so my boyfriend has to tell me. I feel major headache, confusion ,memory loss, and tiredness after my seizure . I was diagnosed with epilepsy in 2019. ...
I had another temporal lobe grand Mal tonic clonic seizure this morning. they happen while sleeping
Переглядів 14 тис.2 роки тому
I had another temporal lobe grand Mal tonic clonic seizure this morning. they happen while sleeping
tonic clonic grand Mal left temporal lobe cluster seizures.it last for almost 2 mins.
Переглядів 44 тис.2 роки тому
I had a tonic clonic grand Mal left temporal lobe cluster seizures. it lasted almost 3 minutes and I had another seizure an hour after. my seizures only happen in my sleep . it happened while I was taking a nap in the morning. it out happens on the night or morning when I sleep . doctors think the seizures could be catamenial and caused by an hormonal balance during my menstruation period. The ...
I had more tonic clonic seizures march 27.
Переглядів 65 тис.3 роки тому
I woke up in the morning and started having back to back seizures. the ambulance was called and I was transported to the hospital.
Signs of a seizure
Переглядів 4,6 тис.3 роки тому
These are the signs I get before a seizure . I have grandmal cluster seizures and I get 10-20 back to back. In this video I am feeling like I might have a seizure . I get the deja vu and really weird feeling in my stomach . I hope I don't get one and my meds are working . I will let y'all know !!
seizure #3
Переглядів 11 тис.3 роки тому
this is the third seizure I had out of 15 back to back seizures. I have temporal lobe epilepsy due to brain trauma that started a year ago. I get grandmal cluster seizures. I wake up with no memory of what happened and forget who I am or my family is . it takes me a while to regain memory . this was right before the ambulance and emt came. they handled my seizures completely wrong and restraine...
Second seizure
Переглядів 23 тис.3 роки тому
I have epilepsy and get grandmal cluster seizures . my seizures only happen when im sleeping or taking a nap . this day I had 15 seizures in a row . my seizures usually last 2 mins . I lose consciousness . when I wake up I don't remember having a seizure . my seizures come from the temporal lobe which has to do with memory , so when I wake up I am very confused , don't know who I am or my famil...
This is what a grand mal seizure looks like. I had 15 seizures this day.
Переглядів 22 тис.4 роки тому
I had my first seizure February of 2019. I was not born with seizures. My seizures were caused by a traumatic brain injury. I was hit in mThis is the first video that caught my seizure happening live. I have temporal lobe epilepsy caused by a traumatic brain injury and I only get seizures in my sleep. Mine are tonic clonic meaning when I get them I get multiple in a row. This day I had 15 seizu...

КОМЕНТАРІ

  • @DaSwerve618
    @DaSwerve618 Місяць тому

    I have tonic clonic seizures this is devasting go watch 🙏🏾

  • @miss_dezire
    @miss_dezire 2 місяці тому

    Hey girl.. I have tried commenting on a diff video before... I like, reeeeeally want to contact youu to find out more about youur situation ... like what docs say, etc... i have been dealing with this 3/4 years now &&& all the drs want to do is increase the meds &&& send me on my way... which obv isnt helping... Our situations are sooooooo similar from what I can tell.. maybe even identical... thank youu..

    • @Epilepsywarrior000
      @Epilepsywarrior000 2 місяці тому

      Hey ❤ I will send u a message so we can talk about it

    • @Epilepsywarrior000
      @Epilepsywarrior000 2 місяці тому

      Is there a way to contact you on here ?

    • @miss_dezire
      @miss_dezire Місяць тому

      @Epilepsywarrior000 I'm not sure... I don't think so though... =/

  • @francescagiughese9781
    @francescagiughese9781 2 місяці тому

    Deve fare la respirazione diaframmatica

  • @rishabhchaurasiya4070
    @rishabhchaurasiya4070 2 місяці тому

    Please post more of your videos We are waiting for your videos. Don't worry. I will pray for you. You will get good health. You were looking so pretty and hot after a long time like a real Epilepsy Warrior Princess.

  • @rishabhchaurasiya4070
    @rishabhchaurasiya4070 2 місяці тому

    I am glad to see you again. You are really a warrior Princess. I have seen all your videos and got so much inspiration and information regarding epilepsy. I want to know that whether you lose your bladder or motion control during your seizures or not? Because My loving friend has Epilepsy and he often loses his bladder control and sometimes motivation control during his seizures. When it happens I get so sad and he has to face embarrassment. Most of times I change his pants during his unconsciousness so that he couldn't know about it. His seizures are so dengerous and it takes around 2-3 hours to get him conscious and normal. If you any suggestions for this then please tell me. God bless you.

  • @miss_dezire
    @miss_dezire 2 місяці тому

    I have been dealing with this since 2019... I sweaaar my seizures are IDENTICAL just about (ive caught them on my indoor cams &&& also hubby has recorded.. THANK GOD FOR OUR HUBBYS RIGHT) .. No one can help me (drs) meds do not help...i truly believe its catamenial epilepsy... have they told youu what may be causing youurs?? *** I forgot to mention that 99% of my seizures happen while I'm sleeping... do youu?? Girrrl im so so sorry.. i just read youur bio.. i sweaaaar youu described me to the "T." I hope youu see this soon so maybe youu can help me .. Im curious what youur status is &&& how youu are now.. thanks so much I HOPE YOUU ARE DOING WELL

  • @francescagiughese9781
    @francescagiughese9781 3 місяці тому

    Devi fare la respirazione diaframmatica prima delle crisi

  • @francescagiughese9781
    @francescagiughese9781 3 місяці тому

    Prima delle crisi devi fare la respirazione diaframmatica

  • @francescagiughese9781
    @francescagiughese9781 3 місяці тому

    Prima delle crisi deve fare la respirazione diaframmatica

  • @francescagiughese9781
    @francescagiughese9781 3 місяці тому

    Prima delle crisi devi fare la respirazione diaframmatica

  • @Sasuke23363
    @Sasuke23363 3 місяці тому

    Yo is it just me or do yall think she has no underwear on???😮

  • @laurenbrunning7189
    @laurenbrunning7189 3 місяці тому

    Omg 😱

  • @brianjenniferdopson6878
    @brianjenniferdopson6878 4 місяці тому

    😢 I'm sorry that you're going through this, I pray that you find someone or something to help you with these seizures

  • @telepathicmagicshop
    @telepathicmagicshop 4 місяці тому

    Reported.

  • @fernviking7909
    @fernviking7909 5 місяців тому

    If your docs aren’t taking you seriously, find a new doc. Seizures can kill a person! SUDEP is real!

  • @encarnacionlujanp.6412
    @encarnacionlujanp.6412 5 місяців тому

    Esta es mi pregunta es que estos enfermo no tienen un tratamiento para esta enfermedad el peligro que tienen estos enfermo es que se pueden tratar la lengua señores por favor traducido al inglés yo solo se español

  • @Hearts4Kaiden
    @Hearts4Kaiden 6 місяців тому

    ❤💜

  • @wickedwildwezt
    @wickedwildwezt 6 місяців тому

    I hope you’re feeling better I have bad cluster seizures too. Grand mal. It’s a terrible feeling especially after having multiple seizures back to back. Ive woke up butt naked on my bathroom floor I had a seizure in the shower I’ve woke up with wet pants a couple times I have a scar beside my eye from falling on my face walking down the road. My nose is crooked from falling on my face.They suck. But A cold glass of water always makes me feel a little better after my seizures. I get really dehydrated after seizures. Weed doesn’t help stop mine but it’s the one thing I use that relaxes me after seizures. And excedrin really helps with the migraines too. I take keppra but I’m about to change I have seizures at least once a week

    • @Epilepsywarrior000
      @Epilepsywarrior000 2 місяці тому

      Wow, you are strong and brave fellow epilepsy warrior. I'm on all the medications and nothing is stopping them. The Dr. Is saying mine are refractory. The last medicine I'm going to try is xcopri and if it doesn't work I have option for brain surgery. Have they found out where in the brain your neuron is sparking. Thank you for commenting. Your not alone. It helps to know we are not alone.

  • @amirah8078
    @amirah8078 6 місяців тому

    Whats after this nasal spray??do take her to hospital or no need?more info🥹

    • @crazycait317
      @crazycait317 4 місяці тому

      I was prescribed this recently and my neurologist said that you don't need to go to the hospital unless the seizure doesn't stop. I've never had to use it though yet

  • @isaiahhernandez1252
    @isaiahhernandez1252 6 місяців тому

    y’all are dumb she’s is strapped in because she was trying to fight them that’s why

  • @user-xr3cr7hw3m
    @user-xr3cr7hw3m 6 місяців тому

    On top of the patient being restrained when she shouldn’t be why did they video this and upload it to the internet? Also I can almost see her privates too! Just imagine if someone posted you going through a hard time in your life and your hoo haah is showing! I feel so bad for this poor woman I hope she gets justice for what they did to her!

  • @snowy6156
    @snowy6156 7 місяців тому

    I'm confused. Why would you ever want to restrain a seizure patient?

    • @austinlinco
      @austinlinco Місяць тому

      Coming from an EMT, several (although not ideal): - Patient was combative before seizures were induced (such as this video). - Properly securing the patient for transport on the stretcher. - Keep head & body away from objects or potentially falling off the cot. Of course, it’s unclear whether what they were doing was against their standards of care without further context. It’s always important for prehospital medical professionals to follow their local protocols. Regardless, the video, by itself, still looks pretty bad.

    • @snowy6156
      @snowy6156 Місяць тому

      @@austinlinco I see. Thank you for the wonderful explanation! 😊

  • @bdogg20101
    @bdogg20101 7 місяців тому

    Your supposed to keep them calm and move any dangerous objects away from them. And never stick anything in their mouth like a bite block.

  • @bdogg20101
    @bdogg20101 7 місяців тому

    Your not supposed to hold or restrain someone down that's having a seizure. You can cause more harm than good.

  • @brandosdot
    @brandosdot 8 місяців тому

    i have seizures and i am an emt. sounds weird i know right. but you were being restrained with seizure pads…we are required todo that on a bed or stretcher so you don’t break your skull or arms or such…only complaint i have is they needed to get you moved a lot quicker.

  • @ShadowPrincess87
    @ShadowPrincess87 8 місяців тому

    People having seizures should not be restrained like this. They should be put on their side and given space to breath and feel safe but held enough to ensure they are ok.

    • @sincitylv
      @sincitylv 5 місяців тому

      I had to be put in restraints to stop from scratching and harming myself ,attacking the nurses and ripping the iv out of my arm after recovering from multiple grand mal seizures

    • @Alatar06
      @Alatar06 6 днів тому

      ShadowPrincess87…do you have epilepsy? Have you had seizures? I am a high risk epileptic and more than happy for them to restrain me like this should I have a seizure again (hopefully not). It sounds like you have no idea what the hell you are talking about so please shut up.

    • @bradjohnson4190
      @bradjohnson4190 4 дні тому

      I agree with you 100%

    • @ShadowPrincess87
      @ShadowPrincess87 3 дні тому

      @@bradjohnson4190 if someone did this to me during my panic attacks, I'd probably go into a seizure. This alone in it's self is panic/seizure inducing.

  • @servicedakota4476
    @servicedakota4476 9 місяців тому

    LMFAO 🤣 these are all dumb ASF first responders who don't know what TF they're doing

  • @brynniebearsss
    @brynniebearsss 9 місяців тому

    Your not supposed to restrain them btw her cooch is out

  • @JasonMartin915
    @JasonMartin915 10 місяців тому

    Have they considered doing any type of surgery? How are you doing now?

  • @AbieElliott
    @AbieElliott 10 місяців тому

    Why is she naked?

  • @ooommm4024
    @ooommm4024 10 місяців тому

    Grand Mal seizures are awful and incredibly scary for those helping anyone who is having a seizure. I don't have epilepsy but have diabetic hypoglycemic unawareness with frequent seizures and await a pancreas transplant. Fight on Epilepsy Warrior!

  • @Theroehlfamily
    @Theroehlfamily 10 місяців тому

    How many seziures have u had

  • @richardanderson-gj8wr
    @richardanderson-gj8wr Рік тому

    I hope the one in the video is doing ok now and recovered well

  • @Goliushi
    @Goliushi Рік тому

    They seem very angry to me. I grunt like that when I'm angry, but I think they're not angry

  • @JonathanMeuser
    @JonathanMeuser Рік тому

    As someone that has nocturnal seizures like this I'm so concerned for you. Please comment so viewers can know you are ok.

  • @s.g2344
    @s.g2344 Рік тому

    Yeah if someone has a seizure you're meant to keep them calm and not restrain the-most leave them be and if need be put them in the recovery position afterwards. Hope this person is okay

  • @abdokalhed7412
    @abdokalhed7412 Рік тому

    I can help you ❤️

  • @annjean8709
    @annjean8709 Рік тому

    Wishing the lovely ❤️ lady a full and quick recovery. Thank you for sharing this helpful video.

  • @renettareno662
    @renettareno662 Рік тому

    Just checking up on you and hope your doing well

  • @sophieamarant1536
    @sophieamarant1536 Рік тому

    How r u doing now?

  • @Muuip
    @Muuip 2 роки тому

    Thanks for taking good care of her!👍

  • @mattgaldikas1511
    @mattgaldikas1511 2 роки тому

    I'm sorry this happened my sister in arms I'm here for you

  • @renettareno662
    @renettareno662 2 роки тому

    That is awesome I hope that it continues to help

  • @twylotwo
    @twylotwo 2 роки тому

    Hope you find the right meds. So many crap ones out there. Keppra was an absolute NO for our daughter. Vigabatrin 1000mg & Zonisamide 0.9mg currently

  • @alexusturner3231
    @alexusturner3231 2 роки тому

    Astrid Star praying for you hopefully your able to get to a place where you can completely stop having seizures

  • @Nordoav
    @Nordoav 2 роки тому

    I hope your feeling well Astrid!

  • @renettareno662
    @renettareno662 2 роки тому

    Dear Astrid star I just wanted to check up on you and hope that you're doing OK and I'm also wanted to send you love and hugs

  • @clannad99germany70
    @clannad99germany70 2 роки тому

    I am real sorry again, Astrid, all the best for you. Good luck, fingers crossed.

  • @KCsBabies
    @KCsBabies 2 роки тому

    Bless you. I’ve been having more recently - I had one early hours of Saturday morning and it’s taken me 2 whole days of sleeping to get over it enough to be able to function

  • @beckycooper9063
    @beckycooper9063 2 роки тому

    Prayers