What are Atonic Seizures?
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- Опубліковано 19 вер 2024
- Welcome to our Understanding Epilepsy Series as our founder Natalie Boehm discusses what atonic seizures are, symptoms of atonic seizures, what to do if someone has an atonic seizure, and treatment options.
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I lived next door to a neighbor who had a severe brain disease called Rasmussen’s Syndrome. It effected the whole entire right side of her brain, and these were the type of seizures that she had. Just fell to the ground and her left side became limped. Before she turned 7 years old she had a procedure done called a hemispherectomy. Neuro suergons removed all of her right hemisphere of her brain. Her left hand is paralyzed, but she can still walk, communicate, and live a normal life seizure free. She is now about to end her sophomore year of college hoping one day to graduate with a degree in early childhood development and become a teacher.
Thank you for sharing your neighbor's story with me and I am so happy to hear that despite her challenges she is in college and is working to become a teacher. It makes me happy when people with epilepsy show the world what they are truly capable of despite what they have to deal with. Please let her know that her dreams and goals are possible. I finished my master's in business administration a few years ago and I am hoping in the next couple of years to start a doctorate program. So many people told me it was not possible and I am happy to say I proved them wrong, but in a positive and productive way. Thank you again for sharing.
@@DefeatingEpilepsyFoundation You’re welcome. I’m extremely proud of how far she’s come. I can’t wait for her to be a teacher and to live on her own.
I have atonic seizures and I hate them. Suddenly I fall on the ground. I had many injuries. Now I have Lamotrigin and Levetiracetam and seizure free
I'm so sorry you have experienced that. I have a couple of friends who have atonic seizures and have sustained injuries as well. I have had tonic-clonic, complex partial, and simple partial seizures throughout my life. I'm happy to hear that they found a combination of medications to control your seizures and they have stopped. Continue to stay well and take good care of yourself.
well done
I HAVE ATONIC SEIZURE THANK YOU FOR YOUR VIDEO AND GOOD INFORMATION YOU GAVE TO US WITH EPILEPSY.
You are welcome Andri. We are here to support you and others in the community who are battling epilepsy.
I love the work you're doing to support the community! Keep it up! #defeatepilepsy
I have atonic seizure and i took medicine for long time but after finishing course it started again slowly. What to do now ????
Please contact your doctor and see them as soon as possible. It is very dangerous to stop your treatment. If you are ever running low on medication, please reach out to your doctor for a refill.
After years of working in LTF settings and witnessing many; I too seem to be having them too. Waiting to be seen by local neurologist, praying it will be soon. I'm a little scared of it now. I surely didn't plan for this.
I hope your visit at the neurologist's office goes well and you get the answers you need. No one plans for epilepsy and it is perfectly normal to feel scared. I have had epilepsy now for 41 years due to a traumatic brain injury. I caught covid-19 in the fall and caused me to have complications. I had a number of simple partial seizures and severe brain fog which was scary for me. Please feel free to reach out to us at info@defeatingepilepsy.org if you have any questions. We are here to help.
My best friend Cali have that seizure
I am sorry to hear that your friend is battling epilepsy. It is good to know that she has your support.
Please explain about abdominal seizures my son is suffering from that . Any treatment available madam?
I'm sorry that your son is not doing well. Please email me at nboehm@defeatingepilepsy.org and I can see if I can find you some journal articles going more into detail about the condition and treatment. Right now here is a link for an article on abdominal epilepsy: www.mayoclinicproceedings.org/article/S0025-6196(11)62437-3/fulltext
Is atypical absence seizures a mixture of atonic and typical absence seizures 🤔
They are not a mixture, but the thing that they have in common is the risk of falling and sustaining injury. Atonic seizures are known as drop seizures and many people who have them are at risk for injury. For atypical absence, they were formally known as petit mal seizures. Common symptoms are staring, eye blinking, chewing movement, rubbing their hands, and on average last no more than 10 seconds. Depending on where someone is when the seizure takes place, they can be at risk of falling.
@@DefeatingEpilepsyFoundation ok thanks 😁
My 3 year old son has had big seizure 6 months ago. Then after he have head drop 20 to 25 times every day. What can I do...plz help...
Where are you located? I don't know a lot of doctors internationally. If you are in India, I can refer you to someone.
@@DefeatingEpilepsyFoundation yes I am from India kindly suggest me best doc...
@@nianbeast Dr. Nirmal Surya who is in Mumbai is an excellent doctor. He is also the president of the Epilepsy Foundation of India.
@@DefeatingEpilepsyFoundation I'm working as nanny here in Riyadh the kid have atonic seizure his doctor is not good what can I do I care so much of the kid
@@sailormoonmars3213 @sailormoon mars I am so sorry that their doctor is not good. I strongly suggest having a seizure action plan in place for emergencies. If you go to our community resources tab on our website at www.defeatingepilepsy.org, you can scroll down to seizure action plan. Click on there and then you can download one of the plans. The fact that the child has atonic seizures, I would make sure that they have a helmet and that the area they are in, proper precautions are taken to prevent any injuries in case they fall while having a seizure. If the doctor is not helping the family, I would see if they are able to get a second opinion. I have had epilepsy for 42 years now and I have had some great doctors and some who were horrible. There is nothing wrong with seeking a second opinion and finding a better provider. One thing I can say helps is providing a lot of love and support. Living with epilepsy as a child is very stressful and if that child knows that they are not alone and are accepted helps to reduce a lot of stress and can help improve their quality of life. If there is anything else I can do or if there is any information you would like me to look up for you, please let me know. I am here to help.