Hi, I also have colostomy and my surgeon advised me to include Nuts in my diet and cut off red meat , bread and do lots of walking. I really hope you get well soon! Praying for you Chris!!
Hi Chris Four years ago I had a blockage and I was advised to keep eating normally and take laxatives and it would sort itself. Three weeks later I had to go into A&E as the pain was unbearable. I ended up with an ileostomy. What you described in the vid is the exact feelings I had. When in bed my tummy all moved to the side on which I slept Don’t want to panic you but I was told I was lucky as my large intestine had started to shred. It may be worth considering going to A&E as you will get your MRI sooner. By what you say an ileostomy may be the best way forward but you would need to speak to your surgeon. I lived with my ileostomy for 3 years and apart from the leaks I forgot it was there. I had it reversed last June. That is another story but it has been successful . I hope you get help very soon . Take care
I have Crohns and got my ileostomy 2 years ago. Since you're already familiar with the ostomy lifestyle. A ileostomy won't be that much different from your colostomy. You will have to empty it a lot more. Mine is 2 to 4 hours. And you have to consume a lot more liquids with the emphasis on electrolytes. Having to wait until February for an MRI sounds crazy to me here in Oklahoma. But on the other hand, I normally have to wait 2 to 6 months to see my Gastroenterologist. If I were you I'd seriously consider the ileostomy. My heart goes out to you. And I hope you get some relief soon. Thank you for sharing.
I had severe paralysed large bowel and my was due to my h-eds and my large bowel didn't move at all. I was doing up to 8 1.5lt irrigations a night. I could put 1.5lt in and not even know it was in there and I had to weigh before and after and I was always left with loads of water at the ileum. I have always suffered with constipation from a baby, but after finding out I had eds I done the resource and asked for test. We decided I needed an ostomy and the large bowel was removed, carry thing they found when they got in there was that my large bowel was just flapping around in my body and wasn't attached to the fasher likes its ment to be. I would say you need an ileostomy and get rid of the large bowel, I agree if it's got this slow over there last few years its best to do something and change what you have as it's not working for you. I hope you get seen before feb as that is far to long a wait when your not having output especially with irrigation. I wish you the best of luck and I hape yrlour brought forward fast and have a new plan in place to help you. I know I would never ever want to go back to irrigations. I love my ileostomy farty Mc sharty, don't get me wrong I amnup the hospital 2 times a week for iv fluids and do sub-cut fluids at home and that's been almost 2 years niw and i have had sharty just over 2 years... because I have a very high output stoma and I get dehydrated so fast and still I would take this over what I lived like before. I'm great as I had severe Gastroparesis before my ostomy surgery and had a nj tube for a few years but now I'm in remission with that and I can eat really food and nit live on feeds through a tube or ones I drink. Sending good energy and vibes your way with much luck 💩
Thank you for sharing this with us. So sorry you're going through this, it is very worrying indeed. Sadly you'll find that only in an emergency when you can no longer take the pain, will something finally be done, which is ridiculous. For me it was that severe pain and big growing stomach which drove me to the hospital, they found i had a complete blockage in my colon, a sigmoid tumour, which is when they then operated and i got my colostomy as a result. There will be an answer Chris, just hang in there. Keeping you in my prayers. Subscriber from South Africa, i really appreciate your content🙏
Hi Chris, Just came across your videos, and all I can say is WOW!!! You explain stuff so well, and I have learned so much more about my Stoma from you than any consultant or Stoma Nurse has ever told me, and I’ve had it since 2020. Is there anyway I would be able to either PM you or ever have a chat you, because there is so many questions I have which I don’t actually know how to ask them, if that makes sense. 🤷♂️ Either way, you’ve got a new subscriber from me, keep it up please. 👍🏻
I am so sorry to hear you're struggling. Unfortunately can't give any advice, but my thoughts are with you. I hope you get a resolution soon and will feel better and relieved.
Praying for a quick resolution to this uncomfortable and painful problem. It sounds like a paralytic ileus. There could be several causes such as IBS, scar tissue, or even hypothyroid. Hopefully the medicine you are waiting for with help things pass. I had my colostomy created in July, 2024. I found out that I have a redundant colon or a longer than normal colon. I also have MS. Both of these conditions reduce nerve function in my colon which messes with transit time. This may sound strange, but here goes, to help the poop move, I do Reiki on myself. Reiki is a hands-on healing technique. It's also meditation and visualization. I literally visualize the poop moving and exiting my body. It has helped me a lot. Search UA-cam for Reiki or visualization videos. I wish you the best. ❤🙏
As a ‘colostomate’ for almost 3 years now the one thing that brings me down is the feeling that I am alone when it comes to stoma problems. My GP, the ED at hospitals etc know nothing about stomas. If it wasn’t for your and others videos I would have given up because of the stress and anxiety. Even the bag and wafer changes cause me anxiety until I see I have no skin conditions since the last change. Thankfully as a vegan on a high fibre diet constipation is rarely a problem. I wish I could offer you some helpful advice. All the best for 2025 and beyond, Chris. I hope your health improves. Thank you for your videos.
I have an ostomy and a urostomy have had 9 abdominal surgery because of complications. So I really feel for you I understand the slow output but never as bad as yours is now I drink Miralax when I notice it slowing down. Last year around this time had an other surgery because of hernia my intestine we're being pinched off. But the most important part is that I can't believe they're making you wait till February. I think that's very dangerous here in the US haven't heard that ever happening. Is it possible to go to the emergency room? To force their hand into getting you an MRI sooner before something happens.. I'll be praying that you get some relief way sooner than February. Thank you for sharing. My heart goes out to you.. Please keep us posted.
Hang in there! It so so hard I understand I went thru this for over a year I was so lucky to be get it reversed. You are not alone!! I'm still not completely normal. But it will get better bless you!
I live in the US so I guess it’s different like I said when I go to the ER here for no output they do MRIs and CAT scans and take care of it before they let me out of the hospital. I might have to have an ostomy because of it. I’m waiting to have my colonoscopy done at the end of January.
Other things you can try. An osmotic will make your colon excrete water, thats how the bowel prep works. an old enema trick used by nurses, non chemical osmotic is whole milk and equal part molasses. It actually does work, i have done it before i had a stoma. heated to 99 deg. put hat in the irragation kit is one alternative. This will losen the stool. Liquid irritates the bowel and hopefully cause parastalsus.
Sorry to hear you're going through all that. It's demoralising. People also have no damn idea how precarious the NHS is until they have to use it for chronic conditions. I haven’t kept up with your posts, so please excuse the ignorance before this horse-has-already-bolted advice. How aggressively do you manage the poop via your diet? For, example, fibre is often recommended but depending on the type and quantities it can wreak havoc. Likewise do you supplement with Miralax/Laxido at the same time as eating to trap water in with the food? Apologies if this is nothing new.
I am sorry to hear for your suffering. I had follow your for years. I at first think that all the problems solve after you have surgery done for your stoma bag, I am sorry to hear that the examination are latein Feb. I am not to be rude, would you have colonoscopy to see would it have mass that block your intestine. Pray for you.
It’s very difficult to eat anything and a lot of things make you nauseated and so bloated you can urinate. I know my doctor told me that I’m doing now stops working. I need to have an ileostomy.
Hi, I also have colostomy and my surgeon advised me to include Nuts in my diet and cut off red meat , bread and do lots of walking. I really hope you get well soon! Praying for you Chris!!
Hi Chris
Four years ago I had a blockage and I was advised to keep eating normally and take laxatives and it would sort itself. Three weeks later I had to go into A&E as the pain was unbearable. I ended up with an ileostomy. What you described in the vid is the exact feelings I had. When in bed my tummy all moved to the side on which I slept Don’t want to panic you but I was told I was lucky as my large intestine had started to shred. It may be worth considering going to A&E as you will get your MRI sooner. By what you say an ileostomy may be the best way forward but you would need to speak to your surgeon. I lived with my ileostomy for 3 years and apart from the leaks I forgot it was there. I had it reversed last June. That is another story but it has been successful .
I hope you get help very soon .
Take care
I have Crohns and got my ileostomy 2 years ago. Since you're already familiar with the ostomy lifestyle. A ileostomy won't be that much different from your colostomy. You will have to empty it a lot more. Mine is 2 to 4 hours. And you have to consume a lot more liquids with the emphasis on electrolytes. Having to wait until February for an MRI sounds crazy to me here in Oklahoma. But on the other hand, I normally have to wait 2 to 6 months to see my Gastroenterologist. If I were you I'd seriously consider the ileostomy. My heart goes out to you. And I hope you get some relief soon. Thank you for sharing.
I had severe paralysed large bowel and my was due to my h-eds and my large bowel didn't move at all.
I was doing up to 8 1.5lt irrigations a night. I could put 1.5lt in and not even know it was in there and I had to weigh before and after and I was always left with loads of water at the ileum.
I have always suffered with constipation from a baby, but after finding out I had eds I done the resource and asked for test.
We decided I needed an ostomy and the large bowel was removed, carry thing they found when they got in there was that my large bowel was just flapping around in my body and wasn't attached to the fasher likes its ment to be.
I would say you need an ileostomy and get rid of the large bowel, I agree if it's got this slow over there last few years its best to do something and change what you have as it's not working for you.
I hope you get seen before feb as that is far to long a wait when your not having output especially with irrigation.
I wish you the best of luck and I hape yrlour brought forward fast and have a new plan in place to help you.
I know I would never ever want to go back to irrigations.
I love my ileostomy farty Mc sharty, don't get me wrong I amnup the hospital 2 times a week for iv fluids and do sub-cut fluids at home and that's been almost 2 years niw and i have had sharty just over 2 years...
because I have a very high output stoma and I get dehydrated so fast and still I would take this over what I lived like before.
I'm great as I had severe Gastroparesis before my ostomy surgery and had a nj tube for a few years but now I'm in remission with that and I can eat really food and nit live on feeds through a tube or ones I drink.
Sending good energy and vibes your way with much luck 💩
Thank you for sharing this with us. So sorry you're going through this, it is very worrying indeed. Sadly you'll find that only in an emergency when you can no longer take the pain, will something finally be done, which is ridiculous. For me it was that severe pain and big growing stomach which drove me to the hospital, they found i had a complete blockage in my colon, a sigmoid tumour, which is when they then operated and i got my colostomy as a result.
There will be an answer Chris, just hang in there. Keeping you in my prayers.
Subscriber from South Africa, i really appreciate your content🙏
Hi Chris, Just came across your videos, and all I can say is WOW!!! You explain stuff so well, and I have learned so much more about my Stoma from you than any consultant or Stoma Nurse has ever told me, and I’ve had it since 2020. Is there anyway I would be able to either PM you or ever have a chat you, because there is so many questions I have which I don’t actually know how to ask them, if that makes sense. 🤷♂️
Either way, you’ve got a new subscriber from me, keep it up please. 👍🏻
I am so sorry to hear you're struggling. Unfortunately can't give any advice, but my thoughts are with you. I hope you get a resolution soon and will feel better and relieved.
You’re not alone your symptoms sound exactly exactly like mine were. I have to take my medicines to make anything work.
Get well soon 😊
Praying for a quick resolution to this uncomfortable and painful problem. It sounds like a paralytic ileus. There could be several causes such as IBS, scar tissue, or even hypothyroid. Hopefully the medicine you are waiting for with help things pass. I had my colostomy created in July, 2024. I found out that I have a redundant colon or a longer than normal colon. I also have MS. Both of these conditions reduce nerve function in my colon which messes with transit time. This may sound strange, but here goes, to help the poop move, I do Reiki on myself. Reiki is a hands-on healing technique. It's also meditation and visualization. I literally visualize the poop moving and exiting my body. It has helped me a lot. Search UA-cam for Reiki or visualization videos. I wish you the best. ❤🙏
As a ‘colostomate’ for almost 3 years now the one thing that brings me down is the feeling that I am alone when it comes to stoma problems. My GP, the ED at hospitals etc know nothing about stomas. If it wasn’t for your and others videos I would have given up because of the stress and anxiety. Even the bag and wafer changes cause me anxiety until I see I have no skin conditions since the last change. Thankfully as a vegan on a high fibre diet constipation is rarely a problem. I wish I could offer you some helpful advice. All the best for 2025 and beyond, Chris. I hope your health improves. Thank you for your videos.
I have an ostomy and a urostomy have had 9 abdominal surgery because of complications.
So I really feel for you I understand the slow output but never as bad as yours is now I drink Miralax when I notice it slowing down. Last year around this time had an other surgery because of hernia my intestine we're being pinched off. But the most important part is that I can't believe they're making you wait till February. I think that's very dangerous here in the US haven't heard that ever happening. Is it possible to go to the emergency room? To force their hand into getting you an MRI sooner before something happens.. I'll be praying that you get some relief way sooner than February.
Thank you for sharing.
My heart goes out to you.. Please keep us posted.
Hang in there! It so so hard I understand I went thru this for over a year I was so lucky to be get it reversed. You are not alone!! I'm still not completely normal. But it will get better bless you!
I live in the US so I guess it’s different like I said when I go to the ER here for no output they do MRIs and CAT scans and take care of it before they let me out of the hospital. I might have to have an ostomy because of it. I’m waiting to have my colonoscopy done at the end of January.
Other things you can try.
An osmotic will make your colon excrete water, thats how the bowel prep works. an old enema trick used by nurses, non chemical osmotic is whole milk and equal part molasses. It actually does work, i have done it before i had a stoma. heated to 99 deg. put hat in the irragation kit is one alternative. This will losen the stool. Liquid irritates the bowel and hopefully cause parastalsus.
When my MRI is showing my intestines clogged up when I go to the emergency room, they put me on no food or drink they do an NG tubes.
may be daft question but do you not take laxido sachets i have to take 2 everyday
Sorry to hear you're going through all that. It's demoralising. People also have no damn idea how precarious the NHS is until they have to use it for chronic conditions.
I haven’t kept up with your posts, so please excuse the ignorance before this horse-has-already-bolted advice. How aggressively do you manage the poop via your diet? For, example, fibre is often recommended but depending on the type and quantities it can wreak havoc. Likewise do you supplement with Miralax/Laxido at the same time as eating to trap water in with the food? Apologies if this is nothing new.
I am sorry to hear for your suffering. I had follow your for years. I at first think that all the problems solve after you have surgery done for your stoma bag, I am sorry to hear that the examination are latein Feb. I am not to be rude, would you have colonoscopy to see would it have mass that block your intestine. Pray for you.
So sorry to hear this Chris! I hope you get sorted soon
It’s very difficult to eat anything and a lot of things make you nauseated and so bloated you can urinate. I know my doctor told me that I’m doing now stops working. I need to have an ileostomy.
Can’t urinate and yes, it feels like your skin is gonna just pop explode
I’ve been to the ER because of the exact same thing and they do an MRI and a CAT scan whenever I go to the ER
Oh, and I have a colostomy so that’s a milk of magnesia and motegrity
Chris in my large intestines I have extremely long transit time and I hate take milk of magnesia every morning motegrity
Hope it gets sorted...my stomach bloats. Keep away from peas. Sweetcorn etc. Don't know if coke may help you, you look good anyway... best wishes ❤