I had AVM removed at Mass Gen almost 10 yearsago. I sufferered a stroke on the operating table and woke up with left side paralysis... Through months of rehab it regressed ti left side neglect, and now I'm at 90% mobility gross motor skills on my left with some fine motor skill issues... Besides fatigue and some mumbling I feel great. I actually just completed a half Ironman triathlon this past summer! I'm very lucky and blessed!!!
Joe Devitto where was your avm?? I got Diagnose with AVM 5 Days ago. It is near the left temple. I am just 15 Years old so I am a bit scared of course. Thats why I'd like to know where your avm was
@@FortexVize 3cm big, not a small one but, treatment is going well and i am happy. Just believe in god and pray everynight. I even returned to gym and started working out. Point is not be scared at all if it god wants you to die you will die in 10 seconds.
I discovered i had avm on 2013. I collapsed at school & became coma for 3-2 days. Couldnt speak after i regain conscious. Even walk or hold stuff on my left side body. I was 16 then. But now i could speak, walk except for my hand of course since it really took time to be back by itself again. I even had my surgery 3 months ago. I feel a little bit better but still living with some side effects. Though it was tough at first with me crying all the time after knowing that i could never be the same again, but i have my family who cares for me. They are my strength. To make me keep looking things on the bright side. To stay positive and go through this sickness with faith inside. To be strong cause life awaits. We cant stop here. I kept thinking that i can do this. Shoutout to kids and adults who have avm, STAY STRONG, LIFE ISNT OVER YET, JUST DONT LOSE HOPE & I LOVE U MAY GOD BLESS US ALL
same as you, but i didnt got into coma, and i could speak. god dammit i almost died 6 times. i got it on my front-right side of my brain [nerve system].. im still doing tons of sport inorder to recover.
I had a brain bleed in December caused by an AVM. I went to the hospital because of a headache, and vomiting. Then I was diagnosed with a brain bleed, and they found the AVM. I had four embolizations, and my open brain surgery was in January. I was very lucky to get out of this with no deficits. Just on medication to prevent seizures. I never had one, but doctors want to be on the safe side. I had an amazing neurology team at Mount Sinai
i had an avm in my brain at the age of 10 that was bleeding and caused a big blood clot. the way i found out i had an avm was i got pushed over and my head hit a pole. i went to sickbay and i couldnt see out of my right eye because the blood was pushing against it. i started vomiting and the school nurse was extremely worried and i got an ambulance to the hospital. they told me it was a concussion and i had to stay the night for them to check on me. the next morning they asked me some questions and asked if my head still hurt i said it still did but the sent me home anyway. later on in that day my head was getting worse and worse so my dad took me to the hospital again and they did a ct scan on me and put me in a room. 30 mins later the doctor came in and explained to me that i had a tumor like object in the right side of my brain. my dad immediately called my mum and they told me i was getting operated on in 2 days. the surgery was 6 hours long and thay explained it was an AVM they said i will not be able to walk for a couple of weeks but the next day i was on my feet. when i started going back to school i got severe bullying. now im fine and i still get occasional headaches. please like this, dont believe my story then ignore it
Dear Karla, Thanks for sharing your experience with AVM. This might inspire other patients or family members of patients who experience the same. Thanks
Dear, we do appreciate your positive feedback and appreciate more sharing with us your experience with AVM. Many patients would need a psychological support that gives them a hope in recovery and empowerment to challenge the medical condition. We believe your story would inspire other AVM patients and their families. Thanks again and all our wishes to have a joyful and healthy life.
My sister has this, but in her jaw. At the time of her diagnosis, the doctor who had recently developed treatment for this rare disorder...had just finished writing a book about it and the random dentist in my hometown had happened to finish reading it when he had xrayed my sister after massive bleeding from her gums. She's been having surgeries for 9 years to correct it and she is almost fully into remission. Her treatment info and her case was published in medical textbooks
Its really hard to give a thumbs down, because I am so appreciative of anyone that puts out free, beneficial, useful information. This video is awesome and would be even better if it had words with it; this will prevent confusion....thanks for this video.
I had a large AVM in June 2007, had brain surgery, removed the AVM. Had a stroke from the surgery and AVM. Got a good case of aphasia. Could not read or write. Lost some of my vision so now I can't drive. But I learned to read and write again. Now a slower reader, etc. But I survived! Was on vacation in Italy. Drs. in Siena saved my life! YAY!
This is a great animation. I am also an AVM survivor, which lead to an intra parenchymal bleed. I had mine removed when I was 14. That was 16 years ago.
I am a 55 year old bus driver at a university campus. An AVM in my brain took me down one week ago while driving a bus. I experienced strobe light flashes in my left field of vision, a headache, dizziness and confusion. I parked up the bus and stepped out, radioed in "4234 to base, I can no longer drive this bus!" and passed out, smacking the sidewalk. I broke my nose, bit my tongue and put a knot on my head. In the ambulance, they said my blood pressure had gone through the roof. For now, I am forbidden to even drive my car and filed for workman's compensation. This is some freaky stuff, I feel like I'm stoned all the time. Thank you for the animation to help me understand what has happened.
I have a large AVM in the left frontal-lobe of the brain when I was 29 years old. I was treated with Proton Beam In Mass Gen Hospital in 1982, however, it wasn’t successful. Five years later I suffered another bleed. This time Doctors recommended Colombia Presbyterian in NYC. I was treated with Platinum pellets inserted into my brain to cut off the blood supply. That procedure work well, however, I had some complications. The vein where the Platinum pellets went caused a “bubble “ and I stopped treatment. Ten years later I have a 3rd bleed and I returned to Colombia Presbytery Hospital. This time a new staff and new chief of Neurosurgery was there and they suggested a “glue” procedure. I took this procedure. I am now 69 years old , living well and never had a bleed again.
@@samuelmeghnathan1594 Hello, how are you? I have never been bleed since 1997 and no body has enter my body to photo my lesion since the glues procedure. I have had countless seizures and continue to have them, about 1 to 4 or 5 per year, a result, I suppose I do have the lesion. Do you have the same problem? They come a long way in treating AVM. Keep in touch, I would like to hear from you again. Thank you for your interest.
@@michaeljfanoun7237 hello sir actually my mom diagnosed with an avm in 2017 when she has her first bleed doctors suggested that we have to tackle this avm into four steps,the reason is the avm is too large but different doctor suggested that do not treat the avm,now before 1 weak my mom has second bleed after 5years now doctors removed the blood from her head,now shes feeling too weak doctors are suggesting that after 1.5 month we have to treat this avm,my mother is in hospital now plz suggest me what to do iam so depressed..
@@samuelmeghnathan1594 How old is your mother and where was she treated? Does she have seizures and what medications is she on? Every AVM is different; it’s location and size. Some are difficult to remove and you need several operations. As in my case, it too large to remove. I have heard the latest technology is to wrap the AVM with a coil so as to cut off the blood supply. I am living with my AVM, to this day, it is still in my head. I really don’t know what to say about your mother. The glue process really work for me, after several attempts at different hospitals. Maybe she should try a different hospital. Keep in touch
@@michaeljfanoun7237 my mom is 48 years old right now shes in hospital, india pune hospital name is sahyadri,currently they jst keep her in observations at icu they were saying that they treat her avm after 1.5 months dont know how they gonna treat..i dont know what to do right now iam so disturbed..
My son, 15 years old has a AVM and some steps we did to be survive i.e Stereotactic Radiotheraphy (like laser) done on July last year in Jakarta-Indonesia, fixed in vp shunts on his left and right of head (for lifetime) on October in Jakarta, then Stemcell treatment in Guangzhou China. Many improvement he got like the body balance back to normal, no more tremor, etc. But, one thing that still not recovered yet, is loss vision. He can not see anything now. Need your suggestion, what should I do then. Thanks in advance.
A swell started growing on my mandible. The doctor at local hosptial told me it was an AVM but he wasn't concered and never got medical attention. Till it grew and I began to feel dizzy, vision loss, blacking out and half paralyzed on left jaw around the AVM. Went to the same hospital and told them about that. The doctor said it has nothing to do with AVM and those are just normal symptoms or just my imagination. Went to foreign hoapital dr.Yaaks where he did an urgent surgery on the same day and I got much better after 2 weeks of recovery. I almost had brain stroke. If you have AVM cure it right away. The more you wait the worse ir get.
had one when i was 51 now i am 57i was lucky i can talk make fun in my wheelchair cook do computer it all depends how you accept it just go on with live love your dear ones and think omg i can stilllove them hold them hug them that gives you the will to go on donot look at the negative things i have them can not denie that like to make fun in my wheelchair i just went on with live see my kids grow up they make fool out of me like clap your hands o sorry you can not and do not runaway stand here when you can not acceptthat stop live make somrthing out of the remaining time love it good luck you all keep your head straight and go on di not give up you capn only live once
i had one since the age of 12, after 3 brain surgries and one laser surgrie im pretty much alive. dont you think that my phyiscal side effects will last forever? im 16 years old.
My daughter may have this. She was diagnosed with Sturge Weber syndrome ten years ago. She had an MRI two weeks ago, and the specialist said that he is worried that she may have an AVM. I'm scared to death. Waiting on a brain angiogram. I hate HMO's.
Arteriovenous malformation (AVM) is an abnormal connection between arteries and veins, bypassing the capillary system. This vascular anomaly is widely known because of its occurrence in the central nervous system, but can appear in any location. Although many AVMs are asymptomatic, they can cause intense pain or bleeding or lead to other serious medical problems.
My dad had one of these when he qas 41 (one year ago) and he had an operation His left side is asleep but he can move his left leg His left hand is still upgrading He wasnt in coma
Assalaamu Alaikum Kindly remove music.nude image, not allowed in islam Read Quran. ALLAH your creator is talking with you Follow Islam, because no salvation without Islam
I discovered i had avm on 2013. I collapsed at school & became coma for 3-2 days. Couldnt speak after i regain conscious. Even walk or hold stuff on my left side body. I was 16 then. But now i could speak, walk except for my hand of course since it really took time to be back by itself again. I even had my surgery 3 months ago. I feel a little bit better but still living with some side effects. Though it was tough at first with me crying all the time after knowing that i could never be the same again, but i have my family who cares for me. They are my strength. To make me keep looking things on the bright side. To stay positive and go through this sickness with faith inside. To be strong cause life awaits. We cant stop here. I kept thinking that i can do this. Shoutout to kids and adults who have avm, STAY STRONG, LIFE ISNT OVER YET, JUST DONT LOSE HOPE & I LOVE U MAY GOD BLESS US ALL
Damia K Abdullah can I know what the side effects are after you have surgery? because I just found out last July 2018 that I have an avm and now it's been 5 months, yesterday I just did a DSA check, it's like pre-operation for avm, the symptoms are the same as you said. I had convulsions and had a coma for a week and now I look like a stroke people on the left side
I had AVM removed at Mass Gen almost 10 yearsago. I sufferered a stroke on the operating table and woke up with left side paralysis... Through months of rehab it regressed ti left side neglect, and now I'm at 90% mobility gross motor skills on my left with some fine motor skill issues... Besides fatigue and some mumbling I feel great. I actually just completed a half Ironman triathlon this past summer! I'm very lucky and blessed!!!
Joe Devitto I was in comatose because of a ruptured AVM that popped. I was asleep for about 1-2 weeks, and crazy for 2 more weeks.
Joe Devitto where was your avm?? I got Diagnose with AVM 5 Days ago. It is near the left temple. I am just 15 Years old so I am a bit scared of course. Thats why I'd like to know where your avm was
@@FortexVize Well i am 17 and i have AVM, mine ia couple mm from centers for sight, and hearing
@@truthdealer9 Wow, sorry to hear that. It must be hard . Do the doctor think they can help you? How big is your avm?
@@FortexVize 3cm big, not a small one but, treatment is going well and i am happy. Just believe in god and pray everynight. I even returned to gym and started working out. Point is not be scared at all if it god wants you to die you will die in 10 seconds.
I discovered i had avm on 2013. I collapsed at school & became coma for 3-2 days. Couldnt speak after i regain conscious. Even walk or hold stuff on my left side body. I was 16 then. But now i could speak, walk except for my hand of course since it really took time to be back by itself again. I even had my surgery 3 months ago. I feel a little bit better but still living with some side effects. Though it was tough at first with me crying all the time after knowing that i could never be the same again, but i have my family who cares for me. They are my strength. To make me keep looking things on the bright side. To stay positive and go through this sickness with faith inside. To be strong cause life awaits. We cant stop here. I kept thinking that i can do this.
Shoutout to kids and adults who have avm, STAY STRONG, LIFE ISNT OVER YET, JUST DONT LOSE HOPE & I LOVE U MAY GOD BLESS US ALL
same as you, but i didnt got into coma, and i could speak. god dammit i almost died 6 times. i got it on my front-right side of my brain [nerve system].. im still doing tons of sport inorder to recover.
Ravid Chen me too! well will pray for your recovery though. hope you're fine. :)
I pray for your recovery kiddo. We're all in this together fighting it ❤️
Qasha Abdullah thanks for sharing your story, it really helps reading Storys of people that had/have the same problem
I had a brain bleed in December caused by an AVM. I went to the hospital because of a headache, and vomiting. Then I was diagnosed with a brain bleed, and they found the AVM. I had four embolizations, and my open brain surgery was in January. I was very lucky to get out of this with no deficits. Just on medication to prevent seizures. I never had one, but doctors want to be on the safe side. I had an amazing neurology team at Mount Sinai
At mount Sinai New York or some where else.....?
i had an avm in my brain at the age of 10 that was bleeding and caused a big blood clot. the way i found out i had an avm was i got pushed over and my head hit a pole. i went to sickbay and i couldnt see out of my right eye because the blood was pushing against it. i started vomiting and the school nurse was extremely worried and i got an ambulance to the hospital. they told me it was a concussion and i had to stay the night for them to check on me. the next morning they asked me some questions and asked if my head still hurt i said it still did but the sent me home anyway. later on in that day my head was getting worse and worse so my dad took me to the hospital again and they did a ct scan on me and put me in a room. 30 mins later the doctor came in and explained to me that i had a tumor like object in the right side of my brain. my dad immediately called my mum and they told me i was getting operated on in 2 days. the surgery was 6 hours long and thay explained it was an AVM they said i will not be able to walk for a couple of weeks but the next day i was on my feet. when i started going back to school i got severe bullying. now im fine and i still get occasional headaches. please like this, dont believe my story then ignore it
Dear Karla, Thanks for sharing your experience with AVM.
This might inspire other patients or family members of patients who experience the same. Thanks
Dear, we do appreciate your positive feedback and appreciate more sharing with us your experience with AVM. Many patients would need a psychological support that gives them a hope in recovery and empowerment to challenge the medical condition. We believe your story would inspire other AVM patients and their families. Thanks again and all our wishes to have a joyful and healthy life.
My sister has this, but in her jaw. At the time of her diagnosis, the doctor who had recently developed treatment for this rare disorder...had just finished writing a book about it and the random dentist in my hometown had happened to finish reading it when he had xrayed my sister after massive bleeding from her gums. She's been having surgeries for 9 years to correct it and she is almost fully into remission. Her treatment info and her case was published in medical textbooks
Its really hard to give a thumbs down, because I am so appreciative of anyone that puts out free, beneficial, useful information. This video is awesome and would be even better if it had words with it; this will prevent confusion....thanks for this video.
I had a large AVM in June 2007, had brain surgery, removed the AVM. Had a stroke from the surgery and AVM. Got a good case of aphasia. Could not read or write. Lost some of my vision so now I can't drive. But I learned to read and write again. Now a slower reader, etc. But I survived! Was on vacation in Italy. Drs. in Siena saved my life! YAY!
This is a great animation. I am also an AVM survivor, which lead to an intra parenchymal bleed. I had mine removed when I was 14. That was 16 years ago.
My cousin had a.v.m problem, can we cure through endovascular? Does it harm?
@@Ashu472thi hu ji hu na hi hi .😅😅😅
I am a 55 year old bus driver at a university campus. An AVM in my brain took me down one week ago while driving a bus. I experienced strobe light flashes in my left field of vision, a headache, dizziness and confusion. I parked up the bus and stepped out, radioed in "4234 to base, I can no longer drive this bus!" and passed out, smacking the sidewalk. I broke my nose, bit my tongue and put a knot on my head. In the ambulance, they said my blood pressure had gone through the roof. For now, I am forbidden to even drive my car and filed for workman's compensation. This is some freaky stuff, I feel like I'm stoned all the time. Thank you for the animation to help me understand what has happened.
I have a large AVM in the left frontal-lobe of the brain when I was 29 years old. I was treated with Proton Beam In Mass Gen Hospital in 1982, however, it wasn’t successful. Five years later I suffered another bleed. This time Doctors recommended Colombia Presbyterian in NYC. I was treated with
Platinum pellets inserted into my brain to cut off the blood supply. That procedure work well, however, I had some complications. The vein where the Platinum pellets went caused a “bubble “ and I stopped treatment. Ten years later I have a 3rd bleed and I returned to Colombia Presbytery Hospital. This time a new staff and new chief of Neurosurgery was there and they suggested a “glue” procedure. I took this procedure. I am now 69 years old , living well and never had a bleed again.
In your brain still avm is there??
@@samuelmeghnathan1594 Hello, how are you? I have never been bleed since 1997 and no body has enter my body to photo my lesion since the glues procedure. I have had countless seizures and continue to have them, about 1 to 4 or 5 per year, a result, I suppose I do have the lesion. Do you have the same problem? They come a long way in treating AVM. Keep in touch, I would like to hear from you again. Thank you for your interest.
@@michaeljfanoun7237 hello sir actually my mom diagnosed with an avm in 2017 when she has her first bleed doctors suggested that we have to tackle this avm into four steps,the reason is the avm is too large but different doctor suggested that do not treat the avm,now before 1 weak my mom has second bleed after 5years now doctors removed the blood from her head,now shes feeling too weak doctors are suggesting that after 1.5 month we have to treat this avm,my mother is in hospital now plz suggest me what to do iam so depressed..
@@samuelmeghnathan1594 How old is your mother and where was she treated? Does she have seizures and what medications is she on? Every AVM is different; it’s location and size. Some are difficult to remove and you need several operations. As in my case, it too large to remove. I have heard the latest technology is to wrap the AVM with a coil so as to cut off the blood supply. I am living with my AVM, to this day, it is still in my head. I really don’t know what to say about your mother. The glue process really work for me, after several attempts at different hospitals. Maybe she should try a different hospital.
Keep in touch
@@michaeljfanoun7237 my mom is 48 years old right now shes in hospital, india pune hospital name is sahyadri,currently they jst keep her in observations at icu they were saying that they treat her avm after 1.5 months dont know how they gonna
treat..i dont know what to do right now iam so disturbed..
My son, 15 years old has a AVM and some steps we did to be survive i.e Stereotactic Radiotheraphy (like laser) done on July last year in Jakarta-Indonesia, fixed in vp shunts on his left and right of head (for lifetime) on October in Jakarta, then Stemcell treatment in Guangzhou China.
Many improvement he got like the body balance back to normal, no more tremor, etc.
But, one thing that still not recovered yet, is loss vision.
He can not see anything now.
Need your suggestion, what should I do then. Thanks in advance.
A swell started growing on my mandible. The doctor at local hosptial told me it was an AVM but he wasn't concered and never got medical attention. Till it grew and I began to feel dizzy, vision loss, blacking out and half paralyzed on left jaw around the AVM.
Went to the same hospital and told them about that. The doctor said it has nothing to do with AVM and those are just normal symptoms or just my imagination.
Went to foreign hoapital dr.Yaaks where he did an urgent surgery on the same day and I got much better after 2 weeks of recovery. I almost had brain stroke.
If you have AVM cure it right away. The more you wait the worse ir get.
Excellent animation video on brain AVMs.
I have an AVM in my spinal cord... In Israel it is suggested to go to surgery by Professor Lawton.. What do you think?
had one when i was 51 now i am 57i was lucky i can talk make fun in my wheelchair cook do computer it all depends how you accept it just go on with live love your dear ones and think omg i can stilllove them hold them hug them that gives you the will to go on donot look at the negative things i have them can not denie that like to make fun in my wheelchair i just went on with live see my kids grow up they make fool out of me like clap your hands o sorry you can not and do not runaway stand here when you can not acceptthat stop live make somrthing out of the remaining time love it good luck you all keep your head straight and go on di not give up you capn only live once
I had one of these that bleed in my head when I was 16. Spent 3 months in the hospital. Im now 40 and still see the side effects.
i had one since the age of 12, after 3 brain surgries and one laser surgrie im pretty much alive. dont you think that my phyiscal side effects will last forever? im 16 years old.
My daughter may have this. She was diagnosed with Sturge Weber syndrome ten years ago. She had an MRI two weeks ago, and the specialist said that he is worried that she may have an AVM. I'm scared to death. Waiting on a brain angiogram. I hate HMO's.
Can someone please tell how much does it cost to operate using Catheter laser in the brain?!
geez there is no explanation at all!!!! just some cheesy music...
Arteriovenous malformation (AVM) is an abnormal connection between arteries and veins, bypassing the capillary system. This vascular anomaly is widely known because of its occurrence in the central nervous system, but can appear in any location. Although many AVMs are asymptomatic, they can cause intense pain or bleeding or lead to other serious medical problems.
hat do you want to know then what an avm is or about treatmenent or recovery i understand it is a difficult item to explain and/or accept
My dad had one of these when he qas 41 (one year ago) and he had an operation
His left side is asleep but he can move his left leg
His left hand is still upgrading
He wasnt in coma
Is this deathly? Plz answer my lil brother has this and his 6 but hes taking medication.
Yes they can bleed
I lost my brother to this :'(
I lost my son Nicholas to this, he suffered a spontaneous intra cerebral hemorrhage
I lost my Sister to this.
I'm heartbroken.
My son recently died from this.
sorry for your loss. How old was your son?
@@alim.hosseini4638 he was 14. It was located near the base of his skull by the cerebellum.
I lost my Sister to this.
She died in April 2024.
She was only 39.
I can't live without Her..
@@asias.9330 I am so sorry for your loss
@@alim.hosseini4638 thank You.
i'm so very sad..
Had AVM surgery at 14. Very scary stuff...
My lil cousin has this around his brain stem, it's causing him pain, seizures, paralysis and now he is in hospital again. Not sure what is happening.
Hi, can you give an update on your cousin's status?
@@arsalan3889 hi. Sadly he passed away about a year and a half ago now.
Im working hard to develop a permanent cure for AVM cases
i have one of these and im going through treatment now if you need affordable treatment in the usa try buffallo ny
sir i am a v m patient plss halpp me
How are you now
shiiiit I'm getting my surgery in a few weeks
Michael S how was it?
Why the horrifying scarey music....thanks for nothing that's not reassuring
Am I stoned or was the outro unfitting and silly
Terribly explained.
L have vain in brain and head hurts
raja
Assalaamu Alaikum
Kindly remove music.nude image, not allowed in islam
Read Quran. ALLAH your creator is talking with you
Follow Islam, because no salvation without Islam
Muhammad Shabbir Hassan Your oppressive religion isn’t the only thing that exists in this world.
Waste of time.
I discovered i had avm on 2013. I collapsed at school & became coma for 3-2 days. Couldnt speak after i regain conscious. Even walk or hold stuff on my left side body. I was 16 then. But now i could speak, walk except for my hand of course since it really took time to be back by itself again. I even had my surgery 3 months ago. I feel a little bit better but still living with some side effects. Though it was tough at first with me crying all the time after knowing that i could never be the same again, but i have my family who cares for me. They are my strength. To make me keep looking things on the bright side. To stay positive and go through this sickness with faith inside. To be strong cause life awaits. We cant stop here. I kept thinking that i can do this.
Shoutout to kids and adults who have avm, STAY STRONG, LIFE ISNT OVER YET, JUST DONT LOSE HOPE & I LOVE U MAY GOD BLESS US ALL
Damia K Abdullah can I know what the side effects are after you have surgery? because I just found out last July 2018 that I have an avm and now it's been 5 months, yesterday I just did a DSA check, it's like pre-operation for avm, the symptoms are the same as you said. I had convulsions and had a coma for a week and now I look like a stroke people on the left side
sir i am a v m patient plss halpp me