It's big pharma covering for prescribing an end-stage last-ditch effort medication as a long term use early treatment medication. Its like prescribing alcohol for someone who wants to relax. It works at first, until you have to increase the amount to get the same effect all while causing damaging effects.
@@chaseme9860 At this point, I'm past caring. Dyskinesia of my left arm and leg sucks, but it is manageable. Severe cervical dystonia (forcing my head up and to the right), however, completely cripples me. I can't walk more than a few paces, especially out in the open with nothing to support me. Heck, for the past two weeks, the neurologist has been trying to find the right balance of medication to address the dystonia without triggering the diskenesia. Meanwhile, I'm also trying out a portable pump that is continually infusing me with yummy apomorphine (just kidding, it's not an opiate like morphine). All of this means that when I go home tomorrow, I'm taking the bus and walking the rest of the way. For the first time since my dystonia kicked into gear, I can be reasonably confident that I can get through a full day without major symptoms hindering me. The nights are still difficult, but manageable. Added tidbit: I'm 32.
Thanks for sharing.
It's so frustrating 😢
It's big pharma covering for prescribing an end-stage last-ditch effort medication as a long term use early treatment medication. Its like prescribing alcohol for someone who wants to relax. It works at first, until you have to increase the amount to get the same effect all while causing damaging effects.
@chaseme9860 maybe 🤔, you may be right. Do you have pd?
@@tinakehoe2168 Dementia and RBD, with PD as suspect.
@@chaseme9860 At this point, I'm past caring. Dyskinesia of my left arm and leg sucks, but it is manageable. Severe cervical dystonia (forcing my head up and to the right), however, completely cripples me. I can't walk more than a few paces, especially out in the open with nothing to support me.
Heck, for the past two weeks, the neurologist has been trying to find the right balance of medication to address the dystonia without triggering the diskenesia. Meanwhile, I'm also trying out a portable pump that is continually infusing me with yummy apomorphine (just kidding, it's not an opiate like morphine).
All of this means that when I go home tomorrow, I'm taking the bus and walking the rest of the way. For the first time since my dystonia kicked into gear, I can be reasonably confident that I can get through a full day without major symptoms hindering me. The nights are still difficult, but manageable.
Added tidbit: I'm 32.