The Parkinson's You Don't See: Cognitive and Non-motor Symptoms
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- Опубліковано 22 тра 2024
- Some of the first symptoms people with Parkinson's may experience are not visible to others. As Parkinson's progresses, cognitive, and other non-motor symptoms continue to be a significant aspect of living with Parkinson's. Joanne Hamilton, PhD, ABPP-CN, of Advanced Neurobehavioral Health of Southern California in Poway, CA, explains what to expect and how to distinguish symptoms caused by Parkinson's from those caused by medications. Her presentation for the Davis Phinney Foundation audience offers hope and practical strategies for understanding and managing cognitive and non-motor challenges.
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0:00 Introduction
1:47 Recognize the symptoms, be an advocate for yourself and your loved ones
4:59 95% of people with Parkinson's experience cognitive changes
7:20 Executive dysfunction affects problem solving, planning, organization, decisions
10:28 Memory problems in Parkinsons are different than Alzheimer's
11:29 30-50% of people with Parkinson's experience some degree of depression
11:42 Suspiciousness, apathy, anxiety and lack of motivation are common
12:15 Movement disorder specialists can separate symptoms from side effects
12:57 Impulse control problems can be a side effect of medication
13:30 Sleep disorders can be aggravated by medications
14:32 Consult with your physician about over-the-counter drugs
17:46 Reduce stress to improve thinking and mood
19:03 Limit distractions and use memory aids, lists
20:03 Depression is a treatable condition
20:17 Exercise is essential for good physical and mental health
20:52 Care partners can schedule activities to help overcome apathy
23:37 Parkinson's symptoms are not limited to what we can see
24:40 Behavioral therapies and exercise can improve quality of life
25:15 Overall health provides strong foundation for coping with Parkinson's
25:28 Be proactive in communicating changes to your doctor
Patients with Parkinsons do much better under the care of a neurologist than other md's. As soon as my dad's hand tremors started, I got him to a neurologist. He has had Parkinsons for about 10 years & now is 90 years old. He is doing a lot better than some 70 year olds!!! I am in the health care field & understand Parkinsons very well....Also, most patients are slower in the morning. My dad's best time for md appointments is 1:00 pm. Then we go to lunch, maybe stop at Home Depot or Costco, we return home & he is ready for a nap. Don't overschedule & try to do 2 md appointments in one day unless they are in the same building. Costco & lunch are fun things after a doctor appointment. Sometimes he wants to do both. Other days if he is tired, we just do one. Be flexible as a caregiver.
These are really great strategies for care partners. Your dad is lucky to have you!
@@davisphinneyfdn Thanks for your reply. I am the lucky one. My dad has always been there for me & has been a wonderful father my entire life. I couldn't ask for better dad. I will do anything I possibly can to try to make his life easier & fullfilling for the rest of his days. I have been blessed & feel very,very fortunate to have him as my dad.
Mother is having parkinson for six good yrs.what is ur advice it get worsen daily
@davisphinneyfdn I'm 36 and just got diagnosed with it, it has started with my short term memory and my wife kept telling me it's fine, its fine your over worked, and stressed and I told her I'm not over worked and somethings off I need to get in and figure this out. We'll I'm kinda getting the answers to these questions.
K@@dynoranch1205
This Doctor is a fantastic professor! 👏👏 English is my second language and I have been having problem undestanding some Americans and British accents, but I understood easily 100% of what she said. Literally! She speaks standard English and should be a role model for all lectures who want to present an intelligible lecture on the any international arena!
Thanks for this comment! We'll pass along your feedback.
@@davisphinneyfdn It is appreciated! 👌🙏
I was diagnosed with PD just over 5 years ago and this video explains most of what I personally have gone through. I shared it with my friends and family hopefully they get it and understand it a bit more . All you Parkies out there remember to take ur meds in time and get your buts out of bed stretch, move your muscles , get some sun on your face , drink lots of water and smile cause your not gonna let this PD own you !!!! Ok nap time 😊
Thank you so much for this information
Which video is mentioned in the comments and quotes
,❤
Well, now I know... no longer in denial 🙌 😌 thank you for explaining everything we are experiencing because of Parkinsons... wow, jaw drop, sigh.
Thank you for your video. My father has Parkinson's Disease caused by Agent Orange while serving in Vietnam. One day my father stopped talking. He would just whisper. He whispered for about 4 months then stopped talking all together. I'd give ANYTHING to hear his sweet-caring voice. 😢
It's awful watching him choke and aspirate while he wastes away. We are doing everything in our power to keep him well and pain free. 🇺🇸
PD impairs:
*ability to think flexibly
*ability to problem solve
*ability to initiate behaviors
*behavioral regulations
*cognitive problems
changes in personality
50% unusual anxiety
90% sleep disturbances
autonomic system dysfunction
*bladder
*constipation
*heat problem, temp regulation
*saliva/tear production
30% pain syndrome that cant get figured out
5:00
95% experience cognitive changes (in thinking)
25-30% develop some frank dementia; impairments that (temporarily) disrupt routine daily functions.
executive and organizational function
language and communication
executive dysfunction affects
*problem-solving
*planning/organization
*decision-making
*retrieval of words (ex when excited)
*cognitive flexibility
initiation/motivation to engage (ex exercise or socialize)
visual spacial dysfunction
*depth perception (bump into things)
*hallucinations
speech/language problems
10:22
memory, difficulty retrieving (ex old memories), but once retrieved does not go lost again as in alzheimers.
11:00
personality changes
*greater irritability
*difficulty with frustration
*anxiety
*lack of motivation
13:30 dopamine therapies can cause
sleep disorders
*random daytime sleep attacks (dangerous in car, at work, if standing/walking)
mixed with anti-histamines can cause confusion and higher risk of falls
14:50 you are not crazy or lazy; you have PD
16:15 movement disorder specialists grasp the complexity of PD and how Rx impact it all
19:36 speech therapy
20:20 exercise is as beneficial as any PD Rx
24:22 early DBS treatment may lower need for dopamine therapies later which can relieve/benefit non-motor challenges. DBS deep brain stimulation involves a brain implant invasive surgery.
How is this different than adhd
Why does she keeps lifting up her arm every so often?
Thanks for putting this together. It helps to see it written down, especially in a list format.
Thank you so much
It is incredibly nice of you to do clearly outline thee entire content. Great Appreciation!!
No one has said what I deal with every day so well as this Lady has and made me understand it better. GREAT JOB.
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How did they diagnose u did u have a tremor?
Helpful for my family and I. Finally found out 4 months ago. I've gone through so much and now it's maintenance. I'm 60
My husband was just recently diagnosed & this video explained it all… I had SO many questions! Thanks much… valuable info!
1:22 my son in 1:52 law just diagnosed
What can I do to help??
I have been struggling WITH everything you have talked about...I wish I had known this, you changed my life...I would just put myself down and say I must be lazy, stupid and a )big baby concerning pain). I was diagnosed two months ago....out of the blue. Thanks to my "abnormal movement's"!
I was just diagnosed at age 69. Honesty I am scared. I have to say this speaker has done a beautiful job, making an advanced topic be comprehensive. Simply brilliant.
I had my family watch this as they didn’t believe I had PD as I’m tremor free. Hang in there, Jude.
@@timbiglow9676 thank you so much
Porn you guys can get the car 🎉 nmmmmmmm my uh hey hi hi uuuuuhhjhhhhhh😢😢😢
@@judemorales4Umy
4:26
I was diagnosed about a year ago and have to say thank you for addressing these issues. Mostly people look for visible signs and the only ones I had were falling for no reason. You addressed nearly every symptom I experience.
Great lecture. In our opinion not enough discussion and awareness of the difficulty of managing the non motor symptoms, and also the side effects of some of the medications for PD. Thank-you for posting this.
Im 45 & was diagnosed this yr with this. My mood swings, & over all total body exhaustion is really hard to deal with. On maximum dose of medication for it & it helped the 1st month with my mind was clearer & i could think of each step to do thru the day. Now tho I'm already slowing down with thinking again. The anxiety & depression is just so crazy too
Should be required viewing for every PCP, neurologist, and psychologist who deal with maturing adults!
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This is the best video I’ve found about Parkinson’s. I highly recommend it to anyone who knows anyone with Parkinson’s.
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@@sandrahelmantoler7098 i agree. I dont know how many people ive referred to this video. My husband has watched it a number of times
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Hoe is pd se progmode
Nothing short of brilliant. Twenty-six life altering minutes for some people. Limitless thanks, Dr. Hamilton.
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i agree excellant
Excellent presentation. I would welcome corresponding with you, Dr. Hamilton. My first indication of PD was "loss of smell."
I was diagnosed last November, 2023. I am 70 years old and have suffered with anxiety and panic attacks all my life. I take meds for that. I am generally a fun happy person but lately I seem to be depressed terribly and I exercise every day, play ping pong, pool, foosball, take a rock steady boxing class twice a week. But my anxiety has really interfered with my daily functions, that scared feeling. I am going to seek help tomorrow to see a psychologist to get help for that. I love your book. It has helped me a lot. I have a sign on my bathroom wall that says rising helix because that is what I want to be for others! God bless you!
Thanks for your comment. We hope your visit went well and you found it helpful.
what about mobility?
I love this!! I have several clients with Parkinson but 1 with a rare Parkinson. I love working with all walks of life #elders #Parkinson #heavenlynailsonthegospa #love #blessings
So thankful to be reminded of this reality with Parkinson's Disease. My husband was diagnosed in 2017. Like this presentation, reminders of the "hidden" realities of Parkinson's helps to remind me that my husband is not perposefully choosing to be difficult. I will share this with family and remind them once again that Chuck does not necessarily have control over his resistive responses toward us. Thank you!!
😊
I have exactly the same with my husband. It is very hard to deal with someone who also does not accept help and gets aggressive. Im 59 and he is 73 and we have been together for 34 years. It is his inability to accept his situation, our situation, that is so frustrating for both of us and his behaviour towards me is so different to what he projects to others even our children. I have been trying all of these techniques, I think this video will certainly be very useful for him too. Thank you.
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Excellent presentation. Unfortunately I confirm many neurologists treating Parkinson limit their work to prescribing drugs to address motor symptoms and don't ever inform the patient and the family of the other symptoms or drugs side effects, so when those happen they are even more terrifying to witness because they are completely unexpected. Actually, I feel often doctors do not even recognize non-motor symptoms as relevant symptoms that can greatly impact the quality of life and should be addressed.
18:20 18:21
This is the best video on Parkinson's I've seen because the person knows what they are talking about. And that makes all the difference.
I wish someone had talked to me like this 32 years ago...
2008 I was diagnosed overactive thyroid problem 8 years ignore this disease 2016 February one day I was watching tv suddenly my both hands was numb I couldn't open my hands I was panic suddenly hear massive sound from my head it was mini stroke my tongue was shaking my face was red ! My thyroid level was high and I'm diagnosed Parkinson disease ! Silent stroke cause Parkinson disease ! Suddenly happened I was shocked unbelieveable
I found this presentation to be precisely accurate. My wife and I watched it together. I worry that my current neurologist doesn’t seem interested in the non motor aspects of my experience.
Exactly! My movement disorder neurologist is at one of the top five Parkinson's treatment and research facilities in the Country. He is very well respected in the field when it comes to evaluating and treating the non-physical symptoms of the disease but has very little advice regarding non-motor symptoms. Fortunately, I have had a long-term psychiatrist treating my ADHD who has a lot of experience treating people with non-motor symptoms of Parkinson's.
I am very happy to heard someone can explain Parkinson disease so clear and even make us feel secure optimistic, thank you for an excellent explanation! I wish more people can listening specifically those like me that have a son 27 years old now going in our 5th anniversary with PD and discovering so many of the topic she explained this disease is not only a tremor or walking slow is a lot more and definitely we all need to be educated
Lourdes, I'm so glad you got value out of this presentation. We are al about continuing to educate the community on ALL of the symptoms of Parkinson's, not solely the most commonly represented. I hope you continue to find our content valuable.
Thank you for explaining this!
She managed that I kept on listening until the end of the presentation. It lasted a very long while because I was stopping the video and made plenty of notes. I learned a lot. Awesome presentation. Thanks a lot.
Thank you for this video…can you provide one for Parkinson’s without tremors?
Loll same. Double sided
Never realized all my symptoms of other things are really part of Parkinson’s. She really has researched Parkinson’s.
Thank you for putting this on You Tube. My husband has Parkinson's. This explains so very much. Thank you.....
Excellent information! Thank You.
This is a very good talk. Thank you for posting it.
you are totally spot on x
Good friend of mine was diagnosed recently and as those of us within his inner circle prepare for the future this was a truly helpful presentation… thank you 🙏
Bless you & your friends for making a plan to help. This man is very fortunate.
Bless you. Parkinson’s people are the best people. They always have the biggest heart.
Excellent presentation. Thank you
❤thanks for the update 🎉❤❤
Thank you clarify cognitive issues our gang of specialists never address or mention.
Excellent!
A man I very much admire has Parkinson’s. I have been trying for many years to explain my thoughts to him. After watching this, it o cures to me that as important as he has been in my life. I may actually be aggravating his situation by trying too hard to explain how important he has been in my life. This video explains many things that I really didn’t understand about what he going through.
Wonderful video!
Thank you for this! I’ve experienced all of these symptoms but couldn’t relay to my neurologist or family. I just thought I was losing my mind. I’ve now discussed this with my spouse and that’s a big help. The most stressful part of PD are family members that say “Well you don’t wobble all around like Michael J Fox so the diagnosis is wrong”. These ☝🏽are the unseen issues that are difficult to deal with.
Thank you, I found this very useful. Three years with PD.
So informative & clearly stated. Thanks for always helping.
Great teacher
Frans De Cock
I was diagnosed 10 Years ago. In a few minutes now I recognised my own non motor disorder. A partnerrelation meanwhile ended because of compulsiivedysorder and family discussions about mental health lay behind.Watched twice in tears. Now time to move on, exercise and work, challenge together.
Frans, so glad you found value in this video. I hope you realized you are not alone! Don't hesitate to reach out should you have any questions.
I found this very useful and interesting.....right to the end of video.Im a part time support giver for a friend who is 7yrs down the line with Parkinsons Disease.I recognise much of what was discussed.This learned woman put it into words for me.
Thank you. Makes so many moments clear for me.
Great video
Thank you, for this fabulously informative video about the many complications of PD I had no idea about.
Being a Health Care Worker to someone with Parkinson's, i found this to be the most informative video i have seen. She is so well spoken. I am going reccomend this video to anyone i know affected by this complex disease.
Excellent! I fear I haven’t been diagnosed with PD. I plan to bring it to my physician’s attention as well as my family’s. I must be pro-active.
Awesome! Thank you so much
Wonderful talk.
Wry clear and rational presentation recognizing many issues of PD.
Thanks for this presentation very informative answered a lot for me and my Parkinsons issues
Thank you for the presentation . Helped me and my family
Wow. This might be the most helpful video I've seen so far. She's amazing. She explains things so perfectly and I felt like she was speaking my story.
Thanks, my mom has Parkinson’s and I’ve been looking for a solid video to educate myself.
Excellent. I learned a lot!
Excellent information. Excellent speaker.
Excellent presentation ! Helped me understand much better.
This will educate my family
Thank you for that! I’m 38 and I have been told that it’s probably Parkinson’s! Some of the things that you’ve mentioned resonates for well. I’ve always been very healthy, and always been strong guy. Many of the points that you have pointed out have not been addressed with my movement specialist, especially the pain in different parts of my body that have been undiagnosed. No doubt you have truly taken time to think about and analyze this disease. I’m the baby of a eight children and no one else has this disease but me. I appreciate that you truly are trying to understand and sympathize with peoples feelings. Even though it doesn’t seem that you are coping with this disease it’s nice when someone tries to empathize with you. Thank you again,
We are here for you! If you haven't registered already, consider signing up for updates and to receive links for our monthly Meetup: davisphinneyfoundation.org/event/webinar-series-living-with-parkinsons-meetup/
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Hi, very nice presentation. I am 84, and in the “do I or don’t I have Parkinson’s”. I have gone to 4 movement neurologists/Dr’s and are 2 to 2. NEGATIVE DAT scan. I tend to be, I don’t have or I am in denial! I am doing ok, normal disintegration we all have. Trudge on, my main problem is “organization”.
Bless you, and I am sure you are doing well. SteveH
Best Parkinson disease presentation ever. Now showing it to all my patients and their families who deal with the disease.
Great instructional presentation. I sent to my immediate family once I was diagnosed. This explains the internal symptoms
EXCELLENT video. The best I have seen so far.
4+
Excellent
I just subscribed hope you do more videos on different illnesses you are a good send of information and mindset you are so beautiful inside and out your way of saying what is fact is very nice and whoever needs information about this will get it good bless you and love your videos
Very informative !
She is very good and explains the hidden side with solutions
I'm sure she's been inside brain
Excellent lecture. Very useful info
Packed with information and so very helpful.
Excellent presentation. Leaves one without questions. Thanks
Please please
you are a lovely person ,so many things i recognise with my Parkinson’s
This video is filled with helps for a Parkinson’s caregiver. She understands the problems very well.
This is an excellent presentation especially for patients and their families recently diagnosed with PD.
Thankyou 💕
Thanks a lot for this upload!
A family member was diagnose one year ago and this video was very helpful.
Thank you so much for this talk. Exercise so important.Yes. So many great tips and information. Helps me to know what to do for my husband. Staying active. YEP!
This is the best info on non motor symptoms of P D I hv ever heard. It is concise and clear and gives help to caregiver in learning how to respond and help your loved one.
Helpful. Thank you.
Families ALWAYS develop denial. So glad she included the reaction responses of “ normal” people without the diagnosis. It puts the people diagnosed in a much more humane context. We all have brain tics, n’est ce pas? I like her humble approach to conditions of rather hard facts that can be harsh and disruptive to live with.
Excellent webnair about general "What is Parkinsons
Loss of p0wer in my legs
Killexiaw
@@seanmacentee7214I
Yes indeed, it is both heartbreaking and difficult.
Thanks...brilliant presentation
Along with the diet , vitamin and minerals have played a huge role in the recovery of clients...
Thank you for this video it is very informative !
I like this video. Great professional information. It's easy to understand. She explain very well and made it easier to understand. Thank you
Thankyou
Very informative. Thanks you. :)
This is great. I was beginning to think I was losing my mind prior to seeing this. Mood regulations, sleep issues, personality changes and cognitive etc
were really worrying me
Suzan - Yes, unfortunately, it is common. I'm sorry you are experiencing these symptoms, and I hope you will take a few ideas from this talk and see if they work for you.
Most insightfull video iv found
Very valuable information helps me understand as a Boxing coach
superbly explained-goes into very useful discussion of parkinsons aspect that are generally ignored but vital to wellbeing
And here I thought I was just turning into the laziest woman in the world! I've had the strange gift of this diagnosis for two whole weeks. I'm the same person I was before, except I've lost the comfort of my denial. This talk has given me hope.
Good luck Kathy
Has medication helped at all?
Me too! I used to be very physical. I miss it.
This may help, ua-cam.com/video/akuAUvYpZ6U/v-deo.html
I work with people with parkinsons and dementia and this is very interesting and worth watching and learning everything she said is spot on its very hard for someone to live a normal life and its heartbreaking to watch someone with the both parkinsons and dementia it breaks my heart xxx
Extremely well done presentation. This lady knows her stuff.
Agreed 100%. I have frontotemporal dementia and I wish I had seen this video before I got the diagnosis.
I am having my daughter and son-in-law (we live together now for financial and mental support.) watch this video so that we can work together and communicate better concerning my Parkinson’s.
Lou Sande
Amazing speech 👍
I was diagnosed with PD 9 months ago but I know now I had symptoms starting about 5 years ago. My tremor is mainly only in my left hand so not a big problem when I am not stressed. I used to be very organized and would enjoy taking on projects. Lately I have given up my volunteer position because I don’t feel I can do a good job any more. This video helped me immensely to understand some of the symptoms I was not aware of.
One of the most difficult[t symptoms is speech and the loss of speech or jumbled speech and not being understood It means I have to carry note paper and trying to get understood . The problem most of life is done at a cracking pace from the supermarkets to getting problems fixed. It is alright if you have someone who does not work that can go with you
Thank you very much madam
😅😅
😊
Did you have sleep problem fatigue or smell problem or constipation before any motor symptoms.
Great 🎉presentation 👏 👍.
Thank you very much.
As a care partner, it has been difficult for me to be as helpful as I can. Thank you for your detailed explanations along with ways to handle/deal with them as a partner and for my husband as well.
Can i ask you question?
This may help, ua-cam.com/video/akuAUvYpZ6U/v-deo.html
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Studying to be a practical nurse, this was really helpful! Thank you!
ifmy parkinsonsdisease deterioted, do i accting like crazy do i acct violence? tnx.
Help us come
I would have benefited from this 10 years ago.
The first video I have found which is actually helpful!
Thank you for making this video.... I think I have Parkinson's... My father and auntie did and I am now on the road to finding out what I have .... I have high CK and I yesterday just woke up and was unable to walk right ... But I have all on these on a very low level... So thank you for giving us this information...... I was in the ER... But will soon be able to talk to my PCP about this.
This is such an informative presentation which we have shared with family and friends to help them understand what their loved one may be experiencing. Thank you!
Thank you so much for your Insight and knowledge. I have nursed for 42 years. Your sound advice and humanity is absolutely welcome and astounding.You are a great listener and I will practice your kindness in my work.