My experience being diagnosed with Keratoconus and having Corneal cross-linking

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  • Опубліковано 27 січ 2025

КОМЕНТАРІ • 547

  • @janellechristopher5828
    @janellechristopher5828 11 місяців тому +9

    My daughter just had cross-linking surgery completed at the Mayo Clinic. Her provider went to college at the University of Nottingham and we were so blessed he knew of this option (only available in the US since 2008). Thank you for sharing your story.

    • @BenPaton81
      @BenPaton81  11 місяців тому +1

      Thank you, I hope your daughter is doing well.

    • @michaeljoppa8460
      @michaeljoppa8460 7 місяців тому

      I am about to be seen at mayo for this too in July. Just got diagnosed. Hopefully all goes well.

  • @loribeynon
    @loribeynon 4 роки тому +110

    I just got diagnosed. Thank you so much for calming me down so much :( all I heard was disease, incurable and surgery for a disease I didn’t even know I had. It was really scary. You made me feel a lot better :)

    • @BenPaton81
      @BenPaton81  4 роки тому +6

      Hey Lori I'm glad to hear my video helped calm you down. The thing to remember is it's treatable and life will continue on past when you get diagnosed with Kertaconus. I now have a daughter and forget I even have it most days.

    • @loribeynon
      @loribeynon 4 роки тому +5

      @@BenPaton81 thank you so much. I have anxiety so it was super scary for me to find out. this means a lot

    • @tylerwatson9332
      @tylerwatson9332 3 роки тому +1

      @Ro Mel that's still experimental at the moment. My doctor told me about that, as I had my CXL procedure on my right eye two days ago, and go in for my left eye next month. But my Doc mentioned that, but said he thinks it'll probably be 5-10 years before it's publicly available. But I'm hoping they perfect it. It's only in testing in those countries you mentioned.

    • @g.c.t.v6669
      @g.c.t.v6669 2 роки тому

      @@tylerwatson9332 how much did the recovery hurt after the procedure was done

    • @THEBOGGEMAN12345
      @THEBOGGEMAN12345 2 роки тому +1

      @Ro Mel lies only people can have prk if it’s not bad and it can come back and progress more again

  • @readyplayerone1110
    @readyplayerone1110 2 роки тому +20

    Just got diagnosed with keratoconus at the age of 21. Thanks for calming me down, I thought I was going to go blind. I used to frequently rub my eyes whenever I had allergies and this probably made the condition worse. I’m going for my cross linking within the next 3 months, wish me luck.

    • @21tonyplayz86
      @21tonyplayz86 2 роки тому +6

      Good luck friend. I barley have my consultation today. I’m 20 years old, and deep down I knew I had something in my eyes due to one being blurry. I hope for the best for everyone with this disease.

    • @BenPaton81
      @BenPaton81  2 роки тому +2

      Good luck for the cross linking. I'm glad my video calmed you down. Wish you all the best!

    • @BenPaton81
      @BenPaton81  2 роки тому +1

      Best of wishes to you too!

    • @RastATH
      @RastATH Рік тому +1

      exactly same to me same age same thoughts :D stay strong king

  • @Insightvisionoc
    @Insightvisionoc 3 роки тому +16

    Thank you so much for telling your story! Your story will definitely help others suffering from keratoconus.

    • @BenPaton81
      @BenPaton81  3 роки тому +1

      Thank you for saying so, it was an early UA-cam video and not that great quality but I'm glad it has helped people.

  • @daosizm
    @daosizm 6 місяців тому +3

    Thank you so much for sharing this , I was diagnosed yesterday and I am panicking right now I was about to cry but this video helped me a lot to calm down

    • @BenPaton81
      @BenPaton81  6 місяців тому +2

      I remember crying when I got home from the hospital when I was first diagnosed thinking it was the end of the world. I'm now eight years down the road and after cross linking, most days now I forget I was even diagnosed with this disease. I hope you have a similar experience too. Wishing you all the best and I hope you overcome it, I feel confident you will!

    • @daosizm
      @daosizm 6 місяців тому +1

      @@BenPaton81 thank you very much, I feel the same way right now, I just don’t see the reason to live anymore with this disease.

    • @kassiep
      @kassiep 3 місяці тому

      ​@@daosizmI know exactly how you feel. I've had this condition for 3 decades now and never thought to get cross linking done, just too scared to go for the procedure and tried to ignore it. Now I've had a suddenly exaleration in the condition and my one eye is basicly unusable, it's only seeing colour and basics shapes, no details at all :'( I wish I had this cross linking done earlier cos it would have saved this happening to me . I got mega depressed when my eyes changed , so so depressed, my world felt so different and scary and I didn't want to leave the house or see anyone. Thank gosh for current technology

  • @cwilliams526
    @cwilliams526 Рік тому +3

    Thank you so much for making me feel more comfortable I have my Crosslinking procedure coming up March nineth

    • @BenPaton81
      @BenPaton81  Рік тому

      Best of luck! I'm glad my video gave you a little more comfortable.

    • @mokp2984
      @mokp2984 Рік тому

      All the best. You will be fine. Let us know how it all goes

  • @mrtennessee1988
    @mrtennessee1988 Рік тому +6

    I’ve had cross linking done in my right eye that and scleral lenses have been amazing for me but people please remember cross linking does not clear your vision it stops the progression and retains what you have left. I keep seeing comments with people assuming after cross linking there vision will be better well guys it won’t. But it’s a good surgery to stop or greatly reduce the progression of the disease

    • @BenPaton81
      @BenPaton81  Рік тому +1

      Yes this is what I try to tell me if they message me, it's purpose is to halt the progression of the disease. You are lucky if you get any improvement post op.

  • @kyserjamal6762
    @kyserjamal6762 4 роки тому +31

    Thank you so much for this. I was diagnosed with keratoconus today when i went in to get my eyes checked for the first time ever in my life hoping to get maybe prescription glasses but nope, I've been feeling quite depressed due to that but your video surely gave me hope to fight this condition. Cheers!

    • @BenPaton81
      @BenPaton81  4 роки тому +5

      Hi Jamal, I'm glad my video helped, I was the same as you, quite depressed when I was diagnosed and I remember coming home and crying. There are loads of Kertaconus support groups on Facebook which are worth joining to so you can talk to people with the same experience. Four years on now and my consultant has discharged me and I forgot I even have it! You will get there.

    • @chrisbaker7136
      @chrisbaker7136 3 роки тому +1

      @@BenPaton81 did you go private treatment mate, I've had this eye condition since I was 17, I've had an eye graft done in both eyes, the stitches are still in & they keep breaking, this has been for 3 years now, I have sore eyes every other day & Stitches keep breaking, if you have any advice on what I can do going forward please let me know. Take care.

    • @kemirembeflavia845
      @kemirembeflavia845 2 роки тому

      Same experience I thought dat they were going to give me glasses but making scans they told me its keratoconus and they told me DAT in order to give me glasses they have to first do an operation which operation I have gone through this very week on Friday but

  • @everydaythesunrises2378
    @everydaythesunrises2378 3 роки тому +7

    Thank u so much for sharing ur story, man. Stay strong, everyone.

    • @BenPaton81
      @BenPaton81  3 роки тому +3

      No worries, I'm glad it helps some people!

  • @kensational1
    @kensational1 3 роки тому +20

    I am 29 and I was diagnosed with keratoconus yesterday (9/27/2021) and I’m more scared of going blind than anything. Not scared of surgeries as I’ve been through an arteriovenous fistula placement surgery, a kidney transplant, 2 bunion surgeries, and 3 hip replacements. I don’t want to take off work for a long period of time but I supposed the procedure is worth it.

    • @BenPaton81
      @BenPaton81  3 роки тому +5

      Hi Kendra, wow it sounds like you have had a lot of surgeries this will be the least taxing of them probably Make sure you get cross linking if you are offered it, it should halt the progression and then your fear of going blind will never come true. Sending you my best wishes!

    • @kensational1
      @kensational1 2 роки тому +1

      @@BenPaton81 thanks, my surgery is now scheduled for October 31, 2022. starting with my left eye.

    • @varun123rup
      @varun123rup 2 роки тому +1

      @@kensational1 How did it go? Is there any improvement in your vision? I've been recommended to get it done by my doc.

    • @stash7714
      @stash7714 2 роки тому

      @@varun123rup I had this done on Monday in my left eye, vision still pretty blurry. Insurance wouldn’t cover my right eye.

    • @ayli04
      @ayli04 Рік тому

      U r a real warrior

  • @jenniferschindel6219
    @jenniferschindel6219 2 роки тому +3

    Thank you so much for responding.
    I talked to my daughter today. Her cross linking was two weeks today.
    She said to be she feels her blurry eye is staying stagnant that it’s not getting better but staying the same.
    I am praying this will end and she will not be blurry any longer. I’m kinda worried about it staying the same for over a week now.

    • @HomeInBeing
      @HomeInBeing 2 роки тому +1

      Don't think it corrects vision just helps from progression

    • @felixricardocabreramolina2647
      @felixricardocabreramolina2647 5 місяців тому

      yes it does not correct the vision but how much time u waited to recover the blurry vision???
      I am almost 3 weeks and I still with it , waiting to get better

  • @NumairRana
    @NumairRana 2 роки тому +2

    Thank you for talking about the full process from diagnosis to after care, it was very reassuring to hear since when I too was told I had the disease when I was getting a standard eye test and it put me in a whirlwind.

    • @BenPaton81
      @BenPaton81  2 роки тому

      I'm glad my video has helped you. Sending you my best wishes as it sounds like you are on a similar path

    • @kampallyroja5960
      @kampallyroja5960 Рік тому

      ​@@BenPaton81is the double vision is common during prk after surgery

  • @blackmenace1
    @blackmenace1 Рік тому +1

    Thanks for making this video. I'm headed in for cross-linking today.

    • @BenPaton81
      @BenPaton81  Рік тому

      Sending you my best wishes, I hope everything goes well. Be patient with the recovery.

  • @thatb2666
    @thatb2666 2 роки тому +5

    I am so nervous for my procedure, it is eating me alive. Thank you so much for making this content, it’s literally my story as well!

    • @BenPaton81
      @BenPaton81  2 роки тому +1

      You got this! You will be fine. It's natural to be nervous, I was. Send you my thoughts.

    • @thatb2666
      @thatb2666 2 роки тому

      @@BenPaton81 were you awake for yours?

  • @nasseralsharif
    @nasseralsharif 11 місяців тому +2

    Big shout out to that optician, who is the first to discover that you have signs of Keratoconus.
    We need more opticians like him👍

    • @BenPaton81
      @BenPaton81  11 місяців тому

      Good call, I'm very thankful he spotted it

  • @michaeloakes3667
    @michaeloakes3667 3 роки тому +3

    Same here. Just got admitted to the Keratoconus club last month after being told by the Optometrist with my left eye blurry vision. Thanks for making this video it really calmed my nerves about going blind or something, lol. Off to see the Ophthalmologist next week - cannot wait!

    • @BenPaton81
      @BenPaton81  3 роки тому +1

      Sorry to hear that but glad my video helped. Wishing you the very best of luck with it!

    • @michaeloakes3667
      @michaeloakes3667 3 роки тому +1

      @@BenPaton81 Cheers mate! Everything is pretty well at the moment. Still seeing a tad bit blurry, but your video was incredibly insightful so thanks! Wishing you the best in your life Ben

  • @LidyaTamerat-x3t
    @LidyaTamerat-x3t 10 місяців тому +1

    I'm struggling with kc for over 14 years these disease very harsh because of it i had to drop out of college its really depressing not being able to find the contact lens , specialist in my country has made life very hard

    • @BenPaton81
      @BenPaton81  10 місяців тому

      I'm truly sorry to hear about the challenges you've been facing with keratoconus for so long. It's incredibly tough to deal with, especially when it impacts major aspects of your life like your education. The difficulty in finding the right contact lens and specialist sounds really frustrating. While I might not fully understand what you're going through, please know you're not alone. Have you considered looking into online forums or support groups for people with keratoconus?

    • @LidyaTamerat-x3t
      @LidyaTamerat-x3t 10 місяців тому +1

      @@BenPaton81 thank you for your understanding ,yes I have been a following on online like joining support groups on face book

  • @benmitchell9713
    @benmitchell9713 2 місяці тому

    I got diagnosed with this today. Thank you so much for this i feel alot better

    • @BenPaton81
      @BenPaton81  2 місяці тому +1

      I'm glad my video helped a bit. Wishing you all the best!

  • @rashondabrown2033
    @rashondabrown2033 3 роки тому +6

    Glad I came across this. I go for my consultation tomorrow. I’ve transitioned to scleral lenses since 2019 (which has been great) and the doctor has seen minimal changes in my mappings etc.
    hoping for good news tomorrow. I am scared of surgery.

    • @BenPaton81
      @BenPaton81  3 роки тому +1

      Good luck for your consultation! Don't be too scared of surgery, if you are recommend cross linking it will stabilise the disease and once done it's out the way and you can forget about it.

    • @archanakoparkar2811
      @archanakoparkar2811 Рік тому +1

      I have a question about scleral lenses. Do you have irritation or pain if you wear it for a long time? What precautions to take?

  • @juanma9554
    @juanma9554 3 роки тому +12

    Hello! Today is my fourth day post op and I was getting so worried that the blurry vision wouldn’t go away. This helps me calm a bit. Hope my vision comes back quickly 😭

    • @AishaAhmed-dj5xv
      @AishaAhmed-dj5xv 3 роки тому +2

      exactly it's been 12 days to mine. its blurry

    • @BenPaton81
      @BenPaton81  3 роки тому +3

      Hang in there, might take a couple of months but your vision will get back to where it was if not a little better but at least you will know you halted the progression of the disease

    • @deepp0
      @deepp0 3 роки тому

      @@AishaAhmed-dj5xv how is it now

    • @deepp0
      @deepp0 3 роки тому

      How is it now?

    • @juanma9554
      @juanma9554 3 роки тому +2

      @@deepp0 Honestly I think I got the short end of tue stick lol. My vision eventually came back, but I feel it didn’t got any better. It feels like its the same and sometimes a little worse. Nothing too worrying though. Im not blind like I felt at the beginning. I suppose the main idea of the operation is to stop the condition from making progress and not entirely to help you see better.

  • @laurensmith8806
    @laurensmith8806 4 роки тому +4

    What a small world, I'm also from Romsey and have to go to the general to see Dr Hossain, but my appointment isn't until September 2021 due to COVID. I was referred two months ago after a routine appointment, was very nervous to hear them say that I need to go to the hospital but your video has given me lots of really helpful information and settled my nerves a bit. Thanks!

    • @BenPaton81
      @BenPaton81  4 роки тому +2

      Hi Lauren, it is a small world! Dr Hossain is really good. In fact 4 years on he has discharged me and I no longer need to see him for yearly post op check ups as he is fairly certain the Kertaconus has stabilised. So now I'm just back to regular opticians appointments. September 2021 is a long way away, any chance you can go private? Covid has really a lot to answer for. If you are nervous or want to chat more about what to expect DM me on instagram. Best of luck!

    • @laurensmith8806
      @laurensmith8806 4 роки тому +2

      @@BenPaton81 Oh that excellent news!. Yes it is a long way away, they do keep saying they're trying to bring it forward, so if I don't hear anything by the end of January or if I feel my sight is getting worse, I think I might consider going private. Thank you!

  • @jxshy5398
    @jxshy5398 3 роки тому +3

    Just been diagnosed with the disease in both eyes and now waiting for a date for cross linking! It seems they have caught it reasonably early! But I’m still freaking out to be honest, but just a waiting game now!, thanks for you video it has calmed me down a bit!

    • @BenPaton81
      @BenPaton81  3 роки тому +4

      Try to stay positive, it's a really good thing you have caught it early. You will halt the progression with cross-linking and with a bit of luck never need to worry about it again after that!

  • @571project
    @571project Рік тому +1

    Amazing difference between the US and Britain. It’s tragic really. My son had this surgery in his weakest eye yesterday. We had to pay$1780 in advance just for the vitamin B. We will have to pay 30% of the surgery cost after the insurance claim goes through. Of course we did it. We would do anything to save our son’s sight. It’s just interesting that you had the option to take 2 weeks off and get general anesthesia. My son we go back to work after three days off. He was given a pill to relax him before the procedure and was sent on his way after with a contact bandage. I took vacation days to look after him, and he’s fine. I am grateful, but I wonder about people who don’t have paid time off and decent insurance. I live in the wealthiest country in the world, so there’s some irony. Anyway, congratulations on your success. I hope my son sees similar results.

    • @BenPaton81
      @BenPaton81  Рік тому +2

      I'm glad you got the treatment your son needed even if you had to pay for it. It's tragic really a wealthy country like the USA doesn't provide it's citizens with decent healthcare and they must rely on overpriced insurance. Land of the fee...

    • @DIYmediaTV
      @DIYmediaTV 9 місяців тому

      In India it costs 20,000 inr approximately 240 usd. You are welcome to india when it becomes hard there

  • @amirariyama2349
    @amirariyama2349 3 роки тому +2

    Thank you for this video. I just June done in both my eyes by NHS under local anaesthetic. I will not recommend doing both at the same time! Please get one at a time!
    Very informative video. X

    • @BenPaton81
      @BenPaton81  3 роки тому

      Thanks for sharing your experience! Yes I would recommend doing one at a time otherwise you risk having complete blurry vision during the healing process.

  • @carlajaramillo1618
    @carlajaramillo1618 3 роки тому +12

    I got diagnosed with keracotonus about a month ago. I looking forward to get cross linking done. I hope it would resolve my vision issue as well as stop the progression of the desease because I’ve always tried to use glasses but can’t get used to then. Your experience gives me hope . Thank you for sharing

    • @BenPaton81
      @BenPaton81  3 роки тому +1

      I'm glad you found listening to me ramble on helpful. Wishing you the best of luck with your journey too!

    • @ihtishamulhaq2378
      @ihtishamulhaq2378 2 роки тому

      @@BenPaton81 Ben Paton , brother , I have had CXL 10 days ago and my vision is very blurry and foggy , can't read text and faces clearly , it is worse from before CXL ,
      How long will it take to recover and come back to how it was before CXL.
      Waiting for your response

    • @MBV180
      @MBV180 2 роки тому +2

      @@ihtishamulhaq2378 dude you just had surgery on your eyes! It will get there

    • @gotyoumad6828
      @gotyoumad6828 Рік тому

      ​@@ihtishamulhaq2378Update bro?

  • @JayTSandals
    @JayTSandals Рік тому +1

    This video really helped me ♥️. Thank you - I got diagnosed today

    • @BenPaton81
      @BenPaton81  Рік тому

      Glad it helped! Wishing you all the best🫂

    • @daosizm
      @daosizm 6 місяців тому

      How are you feeling now and did you get the surgery done?

  • @Mac3ronin
    @Mac3ronin 6 місяців тому

    Thanks for this just had mine yesterday and feeling a lot better after 24hrs

    • @BenPaton81
      @BenPaton81  6 місяців тому

      Great to hear! Hope your recovery goes well!

  • @shobhitha9694
    @shobhitha9694 2 роки тому +3

    I got diagnosed with Keratoconus 2weeks ago and had C3R on my left eye 7 days ago. My vision is still blurry and I'm unable to read letters of any size. To anyone who's afraid of going through the surgery, as explained in this video, its not overly invasive and you can leave the hospital the same day or next. Good luck! :)

    • @assyifas1637
      @assyifas1637 2 роки тому

      My son have diagnosed this sympthon... Do you already have surgery?

    • @BenPaton81
      @BenPaton81  2 роки тому +1

      That was good you went from diagnosis to crosslinking so quickly!

    • @kanchangyl8109
      @kanchangyl8109 2 роки тому

      How long does it takes to read the letters again for you

    • @shadowhymn5162
      @shadowhymn5162 2 роки тому +1

      Kindly tell your condition now.
      I was diagnosed with this condition 2 days ago. I am scared I don't lie. I don't want to go for the C3R. Please reply.

    • @shobhitha9694
      @shobhitha9694 2 роки тому

      @@shadowhymn5162 There's no need to be scared. Ensure that you are consulting a good doctor for the surgery. Its not an invasive surgery and the earlier you do it, the better so that you can delay/stop the progression of the condition. My left eye has a power of 1.5 now. With glasses I can read everything very well and without it, I can read letters in close proximity. I wish you good luck!

  • @c.rg.petrov5951
    @c.rg.petrov5951 3 роки тому +2

    Thank very much for your well exponeti

  • @mokp2984
    @mokp2984 Рік тому +3

    Thank you for the reassurance. I’ve been diagnosed with kerataconus only a few months ago. My left eye is really bad. Right eye is still fairly good. I’ve been told my left eye I cannot get cross linking done as it’s gone beyond repair. However, I’m on the waiting list for my right eye (really difficult with the NHS). I suffer from eczema which has worsened the situation through rubbing of the eyes 😢

    • @BenPaton81
      @BenPaton81  Рік тому

      Hello, thanks for your comment. I'm sorry to hear about your left eye at least you are on the waiting list for your right eye. You might be able to have it done faster privately but it will cost a few thousand but if not I hope the wait isn't too long for you. Yes there does seem to be a link between eczema and keratoconus unfortunately. Wishing you all the best.

    • @cristopherescobar3315
      @cristopherescobar3315 Рік тому

      I have the same diagnostic left eye still pretty decent can see perfectly when I squint but right eye needs a corneal transplant. Did you get cxl already, and if so what was the recovery like. Pls answer I’m really anxious and thinking I’m going blind

  • @OFM1209
    @OFM1209 2 роки тому +2

    Just had my right eye done today.

    • @BenPaton81
      @BenPaton81  2 роки тому +1

      I hope all went well. Recovery can take some time. Months in my case. Just be patient with the blurriness.

    • @OFM1209
      @OFM1209 2 роки тому

      @@BenPaton81 thanks for the kind words. Yeah vision blurry. Forts day it was like looking through a prism. Got better as days progressed. Now it’s like looking through a very dirty window. First night was serious pain. Had to take norco. Only took one pill been fine since.

  • @justforyou8
    @justforyou8 4 місяці тому +1

    I was diagnosed with keratoconus at the age of 14 year and now and now i am 16 i still not have money for my operation i am so worried about my both eyes i think all the time that i am going to blind but your video help me a lot thank you and i am also finding some Free hospital that can do the cxl for free in Pakistan please pray for me that i can find some free hospital thank you so much this video help me a lot

    • @BenPaton81
      @BenPaton81  4 місяці тому +1

      I'm glad my video helped a little. I hope you can find somewhere to get the cross linking operation done.

  • @hamdanisoumia2777
    @hamdanisoumia2777 3 роки тому +1

    Thank you very much that's what I really need.

  • @alexgreen5901
    @alexgreen5901 3 роки тому +1

    Thanks for sharing this story, I was interested in hearing about someones experience with the cross linking.

    • @BenPaton81
      @BenPaton81  3 роки тому +1

      I'm glad it was helpful and people are finding this video useful!

  • @breklein3338
    @breklein3338 4 роки тому +5

    Hey-- the UV light doesn't break your eye down lolol. Instead, it works with the B2 to strengthen it :P
    But hey I'm glad you got it taken care of :) Thanks for sharing your story!!!!
    I've had mine 13 years and went to optometrist this past summer and told her how all of a sudden my right eye was my worse eye and my left eye was better and I couldn't see much out of either of them and all she did was threw a new prescription my way (which ended up changing again next month)...She completely ignored my concerns and missed the diagnosis! so...I went to a free lasik appt (I have medicaid lol) and that's where I was diagnosed with KC!
    After much research, I got PRK & CXL done in my worse right eye at a center outside of the US. It took about a month to see again but by golly, I can see SO MUCH BETTER out of that eye! It went from 20/100 (best corrected 20/60) to 20/25 now 4 months post op!!!!
    A week ago I had CXL in my mild left eye so I can't see much out of it now, just thought I'd share that with you .PRK & CXL is done in many countries and has good research behind it if you ever want vision correction!

    • @BenPaton81
      @BenPaton81  4 роки тому +1

      I guess it's the way I always thought of cross linking working, breaking it down so the cornea grows back stronger, probably not medically correct.

    • @JoshtheRCguy
      @JoshtheRCguy 20 днів тому

      hows it now

  • @AstridinGeorgia
    @AstridinGeorgia 2 роки тому +2

    I was diagnosed with keratoconus two years ago and had cross-linking surgery. I found it painful and traumatic. I had it done in my right eye, which is my worse one, and my vision ended up worse than before. Everything is completely blurred with my right eye now. Also there was no anesthesia during the surgery. I refused to get it done in my good eye. I'm glad that you had a good experience and result from the surgery. I wish I could say the same.

    • @BenPaton81
      @BenPaton81  2 роки тому +3

      Sorry to hear of your traumatic experience. You just need to monitor your good eye. Maybe look up if there is somewhere they can do it with anaesthesia. Sending you my best wishes.

    • @AstridinGeorgia
      @AstridinGeorgia 2 роки тому

      @@BenPaton81 Thank you. I'm looking for a new doctor. Hopefully he/she is a good one. Can't be worse than the last one.

    • @isabelwangoi321
      @isabelwangoi321 2 роки тому

      @@AstridinGeorgia hey, did your vision get better?

    • @AstridinGeorgia
      @AstridinGeorgia 2 роки тому

      @@isabelwangoi321 No, my vision has decreased.

    • @Taryn_666
      @Taryn_666 2 роки тому +1

      Aww, I'm so sorry it got worse. I'm getting my cross-linking in 10 days in my worse eye; my right eye.

  • @humblednature9593
    @humblednature9593 3 роки тому +1

    Great vid. Thanks for sharing your experience

  • @judymarais12345
    @judymarais12345 2 роки тому

    This is very enlightening. Thank you. My son is scheduled for this surgery and I am petrified.

    • @BenPaton81
      @BenPaton81  2 роки тому +1

      I'm glad my video helped, wishing your son all the best!

  • @lynndavis120
    @lynndavis120 Рік тому +1

    My grandson is currently being managed by Moorfields for his keracatonus.
    Had his procedure on Monday

    • @BenPaton81
      @BenPaton81  Рік тому

      Glad to hear he is being treated, I hope all has gone well for him and I wish him a speedy recovery

    • @rossanaolivares8410
      @rossanaolivares8410 Рік тому

      How is your granson doing?

  • @Yeskid133we
    @Yeskid133we 4 роки тому +3

    Thank you so much, I'm an 18-year-old guy who recently got diagnosed with it, super nervous about cross-linking, hopefully it goes well

    • @BenPaton81
      @BenPaton81  4 роки тому +1

      Wishing you the very best! Operations I think are always scary but you will be fine and many people have had it done before you. It will be over quick and you just have to remember why you are doing it, to halt the progression of the disease. It will be worth it.

    • @Yeskid133we
      @Yeskid133we 4 роки тому +1

      @@BenPaton81 for sure! Thank you Ben!

    • @fsxanas90
      @fsxanas90 4 роки тому +2

      @@Yeskid133we Im 22, i have it tomorrow and pretty nervous about it too, hope it goes well

    • @Yeskid133we
      @Yeskid133we 4 роки тому +4

      @@fsxanas90 you il be fine bro! Just keep your head up, and know that better days are coming after the CXL

    • @fsxanas90
      @fsxanas90 4 роки тому

      @@Yeskid133we Thanks Bro! i did it, the surgery wasnt that bad except 1 part were i wasn't numb anymore and my eyes did hurt/burn until i told the doc to add more eye drop to make it numb again, otherwise i didn't feel any pain after the operation. like at all, its day2 but the lens rlly is uncomfortable and feels like a smol sand in my eyes sometimes which is annoying cant wait until i remove it

  • @louisemoes9863
    @louisemoes9863 3 роки тому +1

    Hope you make it to Australia - thank you for your video :)

  • @vin-marieburnett8525
    @vin-marieburnett8525 3 роки тому +1

    Thank you for sharing…very detailed

  • @JagHarEnFinne
    @JagHarEnFinne 2 роки тому +1

    I got diagnosed with Keratoconus in october 2021 and was as a new control two days ago. We decided to proceed with cxl in a month time. My left eye is also the most affected one. The right eye has traces of the disease, but has not become a huge issue

    • @BenPaton81
      @BenPaton81  2 роки тому +1

      Good luck for your operation!

    • @JagHarEnFinne
      @JagHarEnFinne 2 роки тому

      @@BenPaton81 But I forgot to mention it, but we have it in our family. My brother has keratoconus as well (and undergone cxl as well)

    • @DerekS-pe9hb
      @DerekS-pe9hb Рік тому

      My right eye is bad and like you they think it's in my other eye too. . Hopefully its not

  • @rarefiredsg1
    @rarefiredsg1 11 місяців тому +1

    Yeah, I have a cross-linking coming up in less than 2 weeks now. I've literally been getting more anxious and mainly frettin about future pain afterwards. I just hope I'm one of the people like you who who didn't have pain for that long.. 😅😅🙄🙏 I've been watching as many story share vids as I can find. 😅😂

    • @rarefiredsg1
      @rarefiredsg1 11 місяців тому +1

      Thinking I may do a share video myself. They definitely help me.

    • @BenPaton81
      @BenPaton81  11 місяців тому +1

      Yes definitely do a video it will help others and you may have a slightly different perspective or experience

    • @BenPaton81
      @BenPaton81  11 місяців тому +1

      Wishing you all the best and yes hopefully a speedy recovery! Yes the pain only lasted for 12 hours for me. Not that pleasant but then 12 hours goes by quickly.

    • @rarefiredsg1
      @rarefiredsg1 11 місяців тому

      @@BenPaton81 Also, from what I've seen so far, I guess I'll probably sleep a lot first couple days or so with the help of painkillers too. Lol Not sure, but I won't mind sleeping 😴 😅

    • @rarefiredsg1
      @rarefiredsg1 11 місяців тому

      @@BenPaton81 And I'll be awake and aware during it. 😱 BUT I think I'll be fine.

  • @weronikamynek5031
    @weronikamynek5031 8 місяців тому

    Thank you for this video! I was referred to an eye hospital in late March after a routine opticians appointment, and few days ago I recived keratoconus diagnosis which I was prepared for, but still came as a shock. I'm in my 30's so I didn't expect to be offered corneal crosslinking, but I was and ever since my anxiety is spiralling.
    I decided to have surgery on both eyes together due to my situation but now I have doubts 😔

    • @BenPaton81
      @BenPaton81  8 місяців тому

      What are your doubts? I think you are doing the right thing :) Wishing you all the best for the journey ahead. There will be a few tough times but you will come out the other side and eventually forget all about this period in your life!

  • @sharonsheehy3128
    @sharonsheehy3128 3 роки тому

    Thank you for your story

    • @BenPaton81
      @BenPaton81  3 роки тому

      Thanks for listening to it!

  • @jesset489
    @jesset489 2 роки тому +6

    I go for cxl surgery in 1 day. My anxiety has beyond taken control. I was never told about contact lenses instead of surgery and kind of wish I new about them. Im not worried about the pain so much as the sitting total still for an hour being awake as he scrapes my eye and just not being able to move. He gave me Ativan to take the day of to help but still im non stop worried and now on UA-cam watching every video on cxl. I swear I could almost preform the surgery myself now haha jk. Thanks for your video though it has helped the anxiety to some extent . Ide rather get this minimal invasive surgery vs a major one. The doc is letting my wife join in the room so my hope is talking to her will distract me enough to not fidget around.

    • @jesset489
      @jesset489 2 роки тому +5

      Post op now. And im happy I did it . The surgery was painless and the doc was great with me and my anxiety. I now feel happy I took the first step in stopping my disease from getting worse. To anyone nervous for cxl please don't worry. In the end yes after was uncomfortable but totally manageable with drops and pain meds. Just sleep sleep sleep and 2 days later will feel fine. I jad surgery yesterday and am currently out fishing on the river with my sunglasses on happier than ever.

    • @BenPaton81
      @BenPaton81  2 роки тому +2

      Thanks for taking the time to share your experience here, wishing you all the best for the future and a speedy recovery!

    • @TheOwiseOne1
      @TheOwiseOne1 2 роки тому +1

      I get my surgery tomorrow, looking all over UA-cam the night before because my nerves are getting the best of me right now haha, I wish I had known about the contacts as well before deciding on the surgery. How has your recovery been? What was your eye sight like after 2 weeks I’m nervous to have a blurry eye this semester for school

  • @Andreyabish
    @Andreyabish 4 роки тому +5

    This So thank you for that I just got diagnosed yesterday and I still have 2020 vision with glasses but I am very terrified that overtime even glasses won’t be able to help so I am looking into immediate courses of action

    • @BenPaton81
      @BenPaton81  4 роки тому +2

      Hey Andrew sorry to hear that, I had a hard time when I was diagnosed with it. It really isn't the end of the world or anything, they have good treatments now with cross linking. Hopefully you will get cross linking done it will stop the progression and like me you will never need anything stronger than glasses.

    • @Andreyabish
      @Andreyabish 4 роки тому +1

      @@BenPaton81 thank you so much!

    • @thechimericedits8843
      @thechimericedits8843 3 роки тому

      Never touch your eyes,don't sleep on your belly with your face against pillows, DONT RUB AND YOU WONT progress.There have been some cases where stopping eye rubbing lead to regression of the cone insted of progression.Stay strong.Best of luck. Regards Dr.G

    • @Andreyabish
      @Andreyabish 3 роки тому

      @@thechimericedits8843 well I haven’t done cross linking…. And I’ve gotten two tests since my first, and I only sleep on my stomach (I don’t rub my eyes anymore though) and no progression. Tbh I feel keraticonus is random and progresses randomly ugh.

  • @daliakarinegamaalmeida1408
    @daliakarinegamaalmeida1408 11 місяців тому +1

    I know the feeling....i felt the some way when I found out that I had the disease has well

  • @April4Detroit
    @April4Detroit 3 місяці тому

    I was just diagnosed by a specialist. My doctor is trying to during a trend with my eyes. My 1st appt (January of 2024) both eyes had deterioration. Today was my 2nd appt and one eye stabilized and the other deteriorated a bit more. I’ll have a 3rd appt to determine if i’ll receive the cross-linking procedure. Thank you for the info!

    • @BenPaton81
      @BenPaton81  3 місяці тому

      Glad to hear you are getting treatment, I wish you all the best for the future!

  • @markgreet3543
    @markgreet3543 2 роки тому

    Your a brave guy, I have the same condition.

    • @BenPaton81
      @BenPaton81  2 роки тому

      Thanks, wishing you all the best.

    • @markgreet3543
      @markgreet3543 2 роки тому

      @@BenPaton81 hi Ben kind regards all the best for the future.

  • @VinnieQ
    @VinnieQ 3 роки тому +1

    Thx for video. I was affraid to lose my job and driver licence after diagnoses

    • @BenPaton81
      @BenPaton81  3 роки тому

      Glad I could help

    • @VinnieQ
      @VinnieQ 3 роки тому

      @@BenPaton81 i am 38y old. Got diagnoses one week ago... went to dokter for a pair of glasses. Never needed them before. Came out with a eye desease i never hears off.

  • @callumstrong4215
    @callumstrong4215 2 роки тому +1

    I have this eye disease also. Just like you my left eye is fucked and my right eye is my good eye. I’ve been referred to get my right eye cross linked to prevent that eye getting any worse. Guessing just like you I’ll have both operations and hopefully it’ll improve how yours have. Thanks for this vid mate

    • @BenPaton81
      @BenPaton81  2 роки тому

      Glad this video was useful. Wishing you all the best for your cross linking!

  • @olasega2207
    @olasega2207 2 роки тому

    I got diagnosed when I was 15 and I’m having my first cross linking treatment in 6 days

    • @BenPaton81
      @BenPaton81  2 роки тому

      I'm glad you are getting cross linking. Wishing you all the best for your treatment!

  • @sarahk8512
    @sarahk8512 2 роки тому +1

    I wish my optometrists informed me about this condition early, when I told them abt having shadowing visions no matter how many times I changed my power. Bcz of that it took me five years to go to a doctor and finally do some serious tests. Doc told me my both eyes are suffering from keratoconus. I'm sure many people like me are living with this condition thinking they just have myopia.

    • @BenPaton81
      @BenPaton81  2 роки тому

      Sorry to hear that but glad you have got the right diagnosis now.

  • @MindSlide2012
    @MindSlide2012 3 роки тому +2

    I just had the transplant 9 hours ago! Onto a new opportunity.

    • @BenPaton81
      @BenPaton81  3 роки тому

      I wish you all the best and smooth and successful healing process.

  • @2smoovezay917
    @2smoovezay917 3 роки тому

    I'm glad I came across this video I've honestly been a little depressed ever since I was diagnosed with this. I knew my blurry vision was a little more extreme because glasses weren't helping. I have a appointment scheduled in September I've been contemplating but this video and these comments are having me really deciding to just go through with it. Thank you all

    • @BenPaton81
      @BenPaton81  3 роки тому

      Thanks for your comment Isaiah, just remember you will get through this. I'm glad my video helped a little, have a look at joining one of the keratoconus support groups on Facebook. It helps to hear from others who have been through it. Best of luck for your appointment and the future!

  • @stash7714
    @stash7714 2 роки тому

    Got diagnosed with this 20 years ago, hopefully getting the cross link done soon since it was fda approved here now. Anyone with this, you can see much better with contacts compared to glasses.

    • @BenPaton81
      @BenPaton81  2 роки тому +2

      My eyesight isn't bad enough for contacts but yes if your Kertaconus is worse than contacts probably help more

    • @HereDiianas
      @HereDiianas Рік тому

      @Ben Paton But the thing is that wearing contacts also help Keratoconus to develop much slower. I am 40 and I have to deal with it since I was 17.

    • @vishalacharya1346
      @vishalacharya1346 Рік тому

      ​@@BenPaton81how much vision with glasses

  • @nachospopthe3rd564
    @nachospopthe3rd564 5 місяців тому

    Thanks dude I have a procedure commong up in one month

    • @BenPaton81
      @BenPaton81  5 місяців тому

      Wishing you the best of luck for it, I hope it all goes well!

  • @respawnaim6023
    @respawnaim6023 3 роки тому +2

    I was actually born with kerataconus I’m 15 and I’ll be having cross linking surgery in October

  • @heatherc9366
    @heatherc9366 3 роки тому +1

    Good luck with the goal of visiting Australia soon :P

    • @BenPaton81
      @BenPaton81  3 роки тому

      Thank you, I actually had tickets booked last year but then covid struck!

  • @kingleungchan8928
    @kingleungchan8928 2 роки тому +1

    Hi Ben, hope everything is fine for you. I got diagnosed with KC weeks ago and will get the Cross-Linking by tomorrow. My right eye is worse (52D) which will get the epi-off treatment while the better left eye (47D) would be treated with epi-on. It sounds like experiment but let see the recovery time would be the same on different treatments.
    😀

    • @BenPaton81
      @BenPaton81  2 роки тому

      Hi Chan, that sounds interesting how they are treating the two eyes differently. I wish you a speedy recovery and best wishes. Come back and let me know how much quicker epi-on heals.

    • @kingleungchan8928
      @kingleungchan8928 2 роки тому

      @@BenPaton81 Thank you for your reply. Just wonder how long it takes for your rest in home? I just got a new job starting from 4th July and do you think 10 days are enough for the recovery?

    • @kingleungchan8928
      @kingleungchan8928 2 роки тому

      @@BenPaton81 I have done epi-on on better eye while epi-off on the wrose one.
      While on the UV section, the epi-off eye can see the whole UV in green color.
      Then for the epi-on eye, I can see the UV in blue and turn green just after adding the yellow eyedrops.
      I just worry if the epi-on treatment with enough effect although it is done on my better eye which still can see 20/20 by wearing glasses.

    • @BenPaton81
      @BenPaton81  2 роки тому +1

      10 days off is enough to get over the operation but the blurriness is unlikely to have gone in that time span

  • @benjaminjontucker
    @benjaminjontucker 3 роки тому +3

    Thanks for sharing this. My brother has the disease and had to have a corneal transplant over 20 years ago. Now my son has it and I wanted to know how painful the crosslinking was going to be.....

    • @BenPaton81
      @BenPaton81  3 роки тому

      The cross linking pain I'd describe in my experience was like having a paper cut in the eye combined with sunburn, it's not that pleasant but it's manageable with strong pain killers you don't feel that much and after 12 hours or so all pain is gone and it is worth it in the long run.

  • @1lifeonearth
    @1lifeonearth 4 роки тому +5

    thumbs up for the rush hour clip

  • @holocaust8963
    @holocaust8963 3 роки тому +1

    I just got diagnosed for keratoconus today. Im 16 n i was scared of it. Now im fine. I hv to get my surgery done within this month🙃

    • @BenPaton81
      @BenPaton81  3 роки тому +2

      Good luck with your surgery, nothing to be scared of, soon it will be done and it will be behind you!

  • @jaykunstler9297
    @jaykunstler9297 4 місяці тому

    I got diagnosed with KC and acute corneal hydrops a few weeks ago.

    • @BenPaton81
      @BenPaton81  4 місяці тому

      I'm sorry to hear that, I hope you can get the treatment you need. My thoughts are with you!

    • @jaykunstler9297
      @jaykunstler9297 4 місяці тому

      @@BenPaton81 Thanks. I had no symptoms before so the diagnosis has been quite a surprise. I wish I just had KC but the hydrops sent me straight to the ER and I got a eye surgery. I hope to get better with treatment and avoid corneal transplant. Right now, I have a blurry eye but the other one makes up for it. It's hard to take, but I'm relieved that there are treatments available.

  • @bp7077
    @bp7077 3 роки тому

    Yes contacts help to a point. Very expensive. My husband had a cornea transplant about 13 yrs ago now we are waiting fir a couple of surgeries soon I hope. Now he developed cataracts and his cells are dying. God's willing it will happen soon. To all of you that have this please have patience getting correction w/ contacts it's a process I really wish you all the best.

    • @BenPaton81
      @BenPaton81  3 роки тому

      Thank you, I wish you and your husband all the best!

    • @bp7077
      @bp7077 3 роки тому +1

      @@BenPaton81 Thank you so much.

  • @kellymccarthy6035
    @kellymccarthy6035 2 роки тому

    I have had kerataconus since 21, progressed fast, had both eyes cornea transplanted, after several attempts of other trials in errors... I had tear ducts put in, you name it, at the time cross linking was not even heard of at the time..I'm still struggling with kerataconus and contacts every year, now I'll see about this new cross linking!!

    • @BenPaton81
      @BenPaton81  2 роки тому

      Definitely worth giving cross-linking a go if recommended by your consultant, sounds like you have really been through the ringer! I didn't realise that you can still get keratoconus after a cornea transplant!

  • @kevinchng6178
    @kevinchng6178 2 роки тому

    ya. i'm 32 this year...Quite worry that it would affect my work and eventually my income one day if it getting worst......Will try to get the cross linking as soon as possible....

    • @BenPaton81
      @BenPaton81  2 роки тому +1

      Yes better to get it sorted and maintain the vision you have now then let it get worse.

  • @Newb118
    @Newb118 Рік тому +1

    Dont understand why so many people say cross linking is the best? In on a waiting list for one, im 35 and only just been diagnosed with it and my vision is terrible so a cross linking wont help my vision only stop it from worsening

    • @BenPaton81
      @BenPaton81  Рік тому

      Because cross linking is one of only few options, whilst it probably won't make your vision better, it is a better option than going blind

    • @Newb118
      @Newb118 Рік тому

      @@BenPaton81 maybe so but the main thing people say about keratoconus is it cant make you blind…

  • @LauriePrevish
    @LauriePrevish Рік тому +1

    unfortunately here in the US the treatment is very expensive and not covered by insurance. I have worsening vision in one eye...they cannot make glasses for me nor can I afford the contacts...so am next to blind.

    • @BenPaton81
      @BenPaton81  Рік тому

      I'm so sorry to hear that the US healthcare system sucks, maybe you could start a gofundme for cross linking if that would help or at least for the contacts...

  • @hunnybSue
    @hunnybSue 2 роки тому +1

    I was diagnosed with Keratoconus in my early 20's. I'm now 52, I had cross linking done 2.5 years ago, apparently it's worked. But my vision has gotten much worse. I get headaches all the time. I updated my glasses recently, I have progressive lenses but they are useless. I have been back to the optician but they have said I'm looking through the wrong part of the lens. It doesn't matter which part of the lens I look through I can't see, my vision isn't any better with my glasses I enjoy knitting and reading but I now can't do either

    • @BenPaton81
      @BenPaton81  2 роки тому

      Sorry to hear of your struggles Susan, perhaps try another eye consultant or optician, maybe hard contacts will be better than glasses for you?

    • @nieshb6071
      @nieshb6071 2 роки тому +1

      hi susan i just got promoted into scleral lenses see if you can find a specialist i can see sharp i’m only day 2. putting them in is a little difficult but worth it .

    • @HereDiianas
      @HereDiianas Рік тому

      @Niesh B I have them and I agree. They are annoying to maintain and put on but once you get use to them... they are very worth it and unlike regular rigid contacts non painful and they do not make the eyes more sensitive.

  • @madisonkierstead6151
    @madisonkierstead6151 3 роки тому +2

    I just got diagnosed with this three days ago.

    • @BenPaton81
      @BenPaton81  3 роки тому

      Sorry to hear that Madison, on the bright side it's being detected so now you can monitor it and treat it, better than it being undiagnosed and left to get worse! My thoughts are with you. It's very treatable so I hope you can get the treatment you need or it's been caught early and hasn't affected you much yet.

  • @DerekS-pe9hb
    @DerekS-pe9hb Рік тому

    Just got intacs in my right eye a month ago. Epi off crosslinking tomorrow. With this week off of work following the surgery i hope i can see good enough to hunt, even if i have to use a crossbow w/ optics

  • @zeddluciano1775
    @zeddluciano1775 2 роки тому +1

    I had poor vision and got diagnosed. I tried RGP lenses but was unable to take out and put them in, also was difficult to keep them stable. I had an ulcer in my left eye and when it got better after a month my vision now is better than before. My right eye is worse and need a graft surgery but my optometrist is delaying everything. I request a consultation but he kept referring me to there contact lense team

    • @BenPaton81
      @BenPaton81  2 роки тому

      I hope you get the surgery you need on your right eye speedily, sending you my best wishes!

  • @Xavi-k4q
    @Xavi-k4q Рік тому

    Just got diagnosed today and my vision is really bad and getting worse really fast. Pretty scared of not getting my vision back ever again.

    • @BenPaton81
      @BenPaton81  Рік тому

      Try not to worry, I know it's scary. As your consultant talked about cross linking this can stop the disease from progressing.

  • @Powerispowerr
    @Powerispowerr Рік тому

    2013 i got keratoconus on my right eye. 2023 i got keratoconus on my both eyes. Last week i did c3r on my right eye. Now the ophthalmologist told me that on my left eye there is no big progression and asked to take pentacam scan every 6month once and if it progressed then we need to do c3r on left eye also. After 28days i have a checkup for spectacles appointment. My right eye power is now around -12 and on my left eye around -1.5

    • @BenPaton81
      @BenPaton81  Рік тому

      Glad to hear you are getting the treatment and monitoring you need for dealing with this disease!

    • @Powerispowerr
      @Powerispowerr Рік тому

      @@BenPaton81 i did c3r on my left eye aswell on 20th may 2023

    • @Powerispowerr
      @Powerispowerr Рік тому

      @@BenPaton81 do u have any idea about scleral lens. I used rgp hard lens on my right eye but it didnt suit well so i tried scleral lens and it was like no lens feel on my eyes. Have you heard about this company boston xo2 from silverline laboratories. I am planning to buy scleral lens for my right eye

    • @AllinOnce-le9ht
      @AllinOnce-le9ht 9 місяців тому

      ​@@Powerispowerr
      Any update?

    • @Powerispowerr
      @Powerispowerr 9 місяців тому

      @@AllinOnce-le9ht i did c3r on both eyes last year itself (right eye c3r on march and left eye c3r on may)
      And after that still i didnt go for next checkup to see how is the condition
      I need to check and as of now i have a left eye power of now -1.75 and in right eye the condition is worse and i need to get a scleral lens

  • @muhammedasvat4794
    @muhammedasvat4794 4 роки тому +3

    Hey, I had both eyes done last week Friday and I was awake

  • @solveigst-juste6276
    @solveigst-juste6276 Рік тому

    The first person I met with KC (Like even before my optician referred me to a specialist to evaluate for it) is now legally blind and is disabled so that wasn’t encouraging when I got that but now I’m not that worried anymore

    • @BenPaton81
      @BenPaton81  Рік тому

      I guess it depends on when Keratoconus is picked up. Like with most diseases the earlier you catch it the better off you are going to be.

  • @jakgd
    @jakgd 6 місяців тому

    I have my schedule to get CXL for today, after taking 2 years of going to appointments to the hospital. I need to do emphasis that those 2 years were just to regular appointments, but 2 months ago the doctors told me that I need to get CXL as soon as possible, cause my left eye was progressing with KC. So, honestly I'm nervous, but I'm trying to be ok.

    • @BenPaton81
      @BenPaton81  6 місяців тому +1

      Wishing you the best of luck, I hope it all goes well. Many people have had this done before, it's relatively low risk you will come out the other side and get on with your life before you know it.

  • @buhlenelana8030
    @buhlenelana8030 3 роки тому +1

    My daughter has bn diagnosed and she can't do crosslinking as it's too expensive for me.....m trying to budget for contact lenses so long.....

    • @BenPaton81
      @BenPaton81  3 роки тому

      I'm sorry to hear that about the cross linking, how much does it cost in your country? Perhaps start a go fund me campaign. Without cross-linking there a chance her vision will just get worse and worse

  • @reg8297
    @reg8297 3 роки тому +2

    My son has this he's advised to get crosslinking I'm so worried about him and what he should do some say they got crosslinking and it didn't help at all ease the blurriness

    • @BenPaton81
      @BenPaton81  3 роки тому +1

      The main purpose of cross linking is to stop the progression of the disease, it may not improve the vision but it can stop the vision deteriorating until the sight loss is extreme. My advice is to get cross-linking to halt the progression as soon as you can.

  • @ayushjha9157
    @ayushjha9157 Рік тому +1

    how much time take it to stabilise your vision after do the procedure

  • @lovechild87
    @lovechild87 2 роки тому

    I just had the intec surgery day before yesterday. Still blurry vision but I’m hopeful

    • @BenPaton81
      @BenPaton81  2 роки тому

      Wishing you all the best for a speedy recovery!

    • @mendozaactiva-hy4zc
      @mendozaactiva-hy4zc Рік тому

      Did the blurriness went away? How long did it take? Thanks in advance

  • @erwanmusic2191
    @erwanmusic2191 3 роки тому

    hey , i have a very bad type of keratoconus stage 4 in my right eye cause it has 5 stages 5 being alsmot legally blind from my eye .. my elft eye is the eye im typing you with in the moment its only a 2 or 1.5 stage keratocnous .. got diagnosed 2 years ago when my lenses did not work anymore i was driving suddenly a huge pain started in my eyes esepcially the right one and could not drive no more i literally i stopped the car and called my dad anyway ... had the crosslinking collagen surgery on both my eyes and it was painful post op not during the surgery it was the worst pain of my life tbh no sleep no nothing .. but after 6 days the pain was starting to fade with the eye numbing drops thank jesus .. it did save my left eye the good one but the right one is legally blind almost .. still to this day to the point where my doc has put my name on the list to get a corneal transplant soon as soon as i get a donor .. unfortunately my keratoconus got so bad i cant drive my car by night anymore im a radio host and musician so i work by day now they undertstood my case and condition .. but yeah my life has completely changed cant go outside in the sun especially during summer so light sensitive its painful to look at the sky even not facing the sun during summer .. i have to capitalize all the letters to read and type on my iphone and tab pc every technological gadget pretty much i always dim my windows and lights .. the asian thing is real since im eurasian technically im caucasoid if you want caucasian but from originally lebanon and armenia georgia the caucas region from my dads side which explains alot since also my borther had a severe case of keratocnous and had a corneal transplant same as my sisters except she has recieved no transplant since her case is better than mine im the worst out of both of my siblings and im the youngest .. both my parents dont have it tho .... mom doesnt have asian blood as she is originally maltese italian ut from our dads side asia and caucas is predominantly strong even tho caucas people look like any average white person but genes are different as we are easterners anyway im only 26 and its been 2 years my life has changed my right eye is sh shaped like a cone so much you can see it from my side hope ill find a donor and hope my other eye doesnt worsen cause its already approaching stage two keratoconus

    • @BenPaton81
      @BenPaton81  3 роки тому +1

      Thank you for sharing your story. I wish you the best of luck with with finding a donor for a lens. Sending my prayers and thoughts your way. Hopefully the cross linking has saved the good eye and you will get that transplant soon for the bad eye and you will be set in a good position then for the rest of your life. I hope one day you no longer have to worry about it!

    • @erwanmusic2191
      @erwanmusic2191 3 роки тому +1

      @@BenPaton81 same to you dear wish you the best thank you sorry for the mistakes i could not see everything on my tab as i said my vision is getting worse anyway thanks again for your kind words and wishes bless your heart ill soon find a donor it doesnt take any longer than a year :)

  • @Vinay25
    @Vinay25 4 роки тому +3

    Today I have been diagnosed and it’s confirmed that I have keratoconus my doctor said it is too severe in my left eye and they also mention they are going to perform c3r surgery and if the condition improves gradually it’s good or else I need to go through cornea transplant. I hope eye goes well with c3r itself I am really worried 😟😔😔

    • @BenPaton81
      @BenPaton81  4 роки тому

      Hello, it's natural to be worried, I was really scared when I got diagnosed and thought I was going to go blind. But actually Keratoconus very treatable. Cross linking is a great way to halt the progression of the disease and may even improve your eyesight a little bit, it's not too invasive and the post op pain is over quick. It will be sore for about 24 hours and then blurry for a month or two. I wish you the best of luck. I recommend you join a keratoconus group on Facebook to talk to other people going through it. All the best.

    • @Vinay25
      @Vinay25 4 роки тому

      @@BenPaton81 thank you so much for your support i wish i over come from this problem and hope my eye goes well with c3r surgery

    • @Vinay25
      @Vinay25 4 роки тому

      @@BenPaton81 how many days you had blur vision after c3r treatment pls let me know

    • @Vinay25
      @Vinay25 4 роки тому

      @Pranjal Srivastava but its emergency for my condition and I dont much time left because in my case its rapid progressive in left eye i can wait max 15 days thats all. So i am getting c3r done

    • @BenPaton81
      @BenPaton81  4 роки тому

      @@Vinay25 it took a couple of months for my eyesight to get fully back to normal. You have to think they are scaring your lenses essentially so they grow back stronger, it takes the time to heal

  • @BloodHawwk
    @BloodHawwk 2 роки тому

    I got diagnosed and I’m scared but what sucks is that I have to pay for the procedure. Everyone keeps saying insurance does not cover it and I keep prolonging the procedure trying to save money.

    • @BenPaton81
      @BenPaton81  2 роки тому

      I'm guessing you are from the US? The longer the leave the more chance the disease will progress better to have it done sooner rather than later to freeze in place what vision you have.

  • @kemirembeflavia845
    @kemirembeflavia845 2 роки тому +1

    I was also diagnosed with keratoconus last week and I was operated on Friday of DAT week but the experience is not easy I need some help please

    • @BenPaton81
      @BenPaton81  2 роки тому

      Have a look at the Facebook support groups for kertaconus. You will get through this!

    • @kemirembeflavia845
      @kemirembeflavia845 2 роки тому

      @@BenPaton81 oh k txs so much let me try finding them

  • @HomeInBeing
    @HomeInBeing 2 роки тому +2

    Just wish cross linking corrected the vision

    • @BenPaton81
      @BenPaton81  2 роки тому +1

      Yeah it's a shame it doesn't but it's better than nothing to at least lock in the vision you have

  • @Karmakoon18
    @Karmakoon18 5 місяців тому

    Hello! When my doctor told me that i was diagnosed woth Keratoconus, i triwd holding my tears because i thinking if i was about to go blind. But my doc told me that i wont and there would be a way to stop keratoconus from progressing. Cross linking or corneal transplant. Since we are financially not ready for the amount of money to pay, we thought of going for cross linking since the doc said it could still be of a help..

    • @BenPaton81
      @BenPaton81  4 місяці тому

      Yes definately get the cross linking done if you are able to.

  • @Superdad0410
    @Superdad0410 3 місяці тому

    Did you say you had a bandage lense? Just had it done on a week ago and did not get a bandage lense.. took a good 3 days for pain to subside

    • @BenPaton81
      @BenPaton81  3 місяці тому

      Yes I did it was like a contact lense which didn't affect or correct my vision

  • @salmaafathum9416
    @salmaafathum9416 2 роки тому +1

    I did cross linking but its stil not comfortable... Wat wil be the next steps.. Is there no any solution than cornia transplant

    • @BenPaton81
      @BenPaton81  2 роки тому

      When you say comfortable, I assume you mean you are not comfortable with the amount of sight you have? It's worth discussing with an eye consultant. You might want to look at whether your vision can be corrected with hard lenses or intacs first.

    • @ihtishamulhaq2378
      @ihtishamulhaq2378 2 роки тому

      @@BenPaton81 Ben Paton , brother , I have had CXL 10 days ago and my vision is very blurry and foggy , can't read text and faces clearly , it is worse from before CXL ,
      How long will it take to recover and come back to how it was before CXL.
      Waiting for your response

  • @juli8vdberg562
    @juli8vdberg562 3 роки тому +1

    My new bf has it and he had a small surgery on Friday and I witnessed how awfully sick he was after, with much tears and not feeling well in total darkness and it took two full days to slightly be better and today his check up and I hope all will be going well but still no news from him since he says he can’t watch phone or bright surfaces and I am away for a couple of weeks, not sure if he would have the crosslinking treatment eventually but in his case it is been the other treatment I guess with UV and vitamin B

    • @BenPaton81
      @BenPaton81  3 роки тому +1

      Crosslinking is with UV and vitamin B so I expect it is this that he has had done. His vision will be blurry for awhile but it's will heal with time

    • @juli8vdberg562
      @juli8vdberg562 3 роки тому

      @@BenPaton81 oh I see… I just know he went inside and an hour or bit later could walk out but eye covered and he couldn’t stand light at all, all day, night etc loads of tears, tired and super sensitive to noise, light, everything and still not in the mood or position to talk, so I still don’t know how a control visit has been going today and trying to find answers

  • @suryapetyoutuber
    @suryapetyoutuber 4 місяці тому +1

    Sir answer at any worse case with keratoconus im not going blind is that true pl answer

    • @BenPaton81
      @BenPaton81  4 місяці тому +1

      Sorry I don't understand your question?

    • @suryapetyoutuber
      @suryapetyoutuber 4 місяці тому

      ​​@@BenPaton81will I go blind through keratoconus??? At any worst case scenarios??? And how is your vision after C3R after 4years do you see clearly till this day??

    • @BenPaton81
      @BenPaton81  4 місяці тому +1

      Ah I see sorry, you are unlikely to go blind if you get the proper treatment. My vision is still good 8 years after getting cross linking.

    • @suryapetyoutuber
      @suryapetyoutuber 4 місяці тому

      @@BenPaton81 what surgery you did for vision sir ?? And how can I know if I'm in last or advanced stage in keratoconus??

    • @BenPaton81
      @BenPaton81  28 днів тому +1

      I had a procedure called cross linking for my Keratoconus. If you are in an advanced stage you would have increased blurriness and significant corneal thinning. The trick is to get the procedure before the lenses get too thin otherwise I don't think the procedure would be possible. Please consult an eye specialist.

  • @ananyamandal3696
    @ananyamandal3696 3 роки тому +1

    What if we remained untreated even after diagnosed with advanced keratoconus??? Plz answer

    • @BenPaton81
      @BenPaton81  3 роки тому

      Hello Kertaconus is a degenerative disease, so the sooner it's picked up and treated the better. Untreated your eyesight might get progressively worse, gradually you would need stronger and stronger measures to help improve your sight e.g. moving from glasses, to contacts, then maybe onto scleral lenses or intacs eventually you would have a high degree of sight loss and the only treatment option would be to have a lens transplant as I understand it. I'm not an expert though so please if you have been diagnosed with Keratoconus go and see an eye doctor local to you.

    • @thechimericedits8843
      @thechimericedits8843 3 роки тому

      Life can be much better if you get treated.yes transplants and/or cross linking can be painfull,but the pain is temporary.Eventually it will subside.Your vision might improve.If you don't get treated however,The cornea may thin to a point where it might rupture leading to hydrops.If you don't find your cornea specialist supportive,change him,Got to another one who understands you.But please don't ignore the condition and get treated Before it's too late. Regards :Dr.G

  • @corrigana1
    @corrigana1 11 місяців тому

    I was diagnosed with the same eye condition in 1990

    • @BenPaton81
      @BenPaton81  11 місяців тому +1

      How were things different in 1990? How is your vision now?

    • @corrigana1
      @corrigana1 11 місяців тому +1

      @@BenPaton81 I wear glasses I tried contact lenses but they were too fiddley

  • @kemirembeflavia845
    @kemirembeflavia845 2 роки тому +1

    Caria jaramillo I would like u to recommend me to any group of keratoconus patients please

    • @BenPaton81
      @BenPaton81  2 роки тому

      There are lots of groups for people with kertaconus on facebook worth looking into

  • @darragh3573
    @darragh3573 3 роки тому +1

    how are u wearing glasses with keratoconus, i got crosslinking and have had hard lenses ever since

    • @BenPaton81
      @BenPaton81  3 роки тому +1

      Hey, I'm thinking I'm lucky that I can get away with just glasses the cross-linking improved my eye sight so that I could read six lines smaller on the eye chart at the opticians. I'm absolutely fine with just glasses as one of my eyes, my right eye isn't too badly affected by keratoconus.

  • @MohamedM360
    @MohamedM360 3 роки тому +1

    I was diagnosed a few years ago, i go get my eyes checked every 6months but i always get the same feedback, my eyes are stable and come back again in 6 months, Its been 5 years. I can survive without wearing glasses or contacts but they always recommend me to wear contacts, maybe i should and i am stubborn.

    • @BenPaton81
      @BenPaton81  3 роки тому +1

      Thank you for sharing, just keep getting your eyes checked. It's great it's stable maybe for you it will never progress further, count your blessings that you can get by without glasses and contacts. I wear glasses mainly to even out the difference in my eyes otherwise I get headaches with poorer eyesight in my left than my right.

  • @Jen-vy5pq
    @Jen-vy5pq 3 роки тому +3

    Hi ben, how long did it take to get back from blurry vision

    • @BenPaton81
      @BenPaton81  3 роки тому +2

      Hi Jen, honestly it's had to remember now, it was around a month I think for the worst part but it goes away very gradually so it's hard to tell. I do remember one morning being able to read cereal boxes a bit more clearly again. After the operation I had to sit about an inch from my pc monitor to read it and I didn't drive for a while. It was weird being out and not being able to make out peoples faces or even the face of my waiter in a restaurant but gradually it gets better little by little.