Been dying from Vestibular Migraines for month. Tried making an appointment with Doctor Cho in NYC. They told me she's booked until 2026.............. EMBRASSING
Omg I was just going to call but 2026!!!! I’m in NY too - have you found anyone else? I’m doing a virtual with dr Beth in Texas at the end of the month
Hey@@marlac.876 I ended up getting an appointment somehow after 1 month of waiting. They put me on a call list when someone cancelled their appointments so i Got lucky. She's really smart btw, not the happiest personality but definitely an expert in this field
Yes, please come to California West coast... Why they're in New York 😭😭 I'm suffering everyday... The gravitational pull from the swaying is the biggest torture...
Just watched this again after seeing it when it first came out and I wonder if there is a big assumption being made that, if you don't see patients return to your clinics, it is because they have recovered. Maybe they have run out of money, or couldn't afford more time off work/family responsibilities/study etc, or didn't feel heard, or had a bad reaction to medications, or - even if they hadn't previously been re triggered by exposure to passive motion - got re triggered and couldn't afford to risk that again, or ... There are any number of reasons why someone might not come back and 'because they are better' is only one of them. As we've been saying/asking in the patient groups for years - please check this and please, whenever possible, reopen the cold cases so that patients can benefit from the new knowledge in this field of medicine.
Dr. Cho is my physician and her account here is most accurate about how she treats her patients - with patience and individuality. This is such a debilitating condition.
@@edwingarcia9626 I would love to. But I live in Arizona and for me to go there is not that easy . . I tried the optokinetic training with vertical stripes and movement to the left (my body seems to lean toward right with bopping sesation . ) am I doing the right one ?
@@edwingarcia9626do you know if they only to the vertical stripes either to the right or left depending on what the pt’s feels ? I also see on UA-cam vertical stripes going up and wasn’t sure if I should try that as well . I had MDDSs almost 3 yrs now and just want this symptoms to go away . I am assuming you are all well now ?
@@edwingarcia9626 I am sorry to hear that you got scammed . Hope you feel better soon. I went through so many diff docs, medical imaging, PT and nothing has helped .. I knew about the optokinetic training but it didn’t seem to help so I stopped doing it . But I am going to give it another try . Head movement is alway side to side ? But the stripes can go up or down R and L ?
Just a heads up, dr shin bey, who they have mentioned many times is now in private practice in Frisco, TX. HOWEVER...he takes NO INSURANCE! NONE! Not even Medicare or Medicaid. This is extremely disappointing for me. I don't have the cash to see him. So.....I'll just keep on keeping on. (An hour appt is almost $400 and then he charges $115 every 10 min you go over! )
@@1lebailey join all the vestibular Facebook's groups, lots of very helpful information there. Many of which have been to him for appointments. They can share info with you
I live in Olympia WA and have a diagnosis of MdDS going on 14 months. I want to try this and no one around here does this? Where can I find a practitioner in WA state that could treat me?
Been dying from Vestibular Migraines for month. Tried making an appointment with Doctor Cho in NYC. They told me she's booked until 2026.............. EMBRASSING
Omg I was just going to call but 2026!!!! I’m in NY too - have you found anyone else? I’m doing a virtual with dr Beth in Texas at the end of the month
Hey@@marlac.876 I ended up getting an appointment somehow after 1 month of waiting. They put me on a call list when someone cancelled their appointments so i Got lucky. She's really smart btw, not the happiest personality but definitely an expert in this field
I had the same results with trying to get an appt with her!
Such a helpful video. Thank you.
Yes, please come to California West coast... Why they're in New York 😭😭 I'm suffering everyday... The gravitational pull from the swaying is the biggest torture...
Look up Gregory Whitman he was on the east coast. He was trained with dr Dai’s protocol. He moved to California.
Just watched this again after seeing it when it first came out and I wonder if there is a big assumption being made that, if you don't see patients return to your clinics, it is because they have recovered. Maybe they have run out of money, or couldn't afford more time off work/family responsibilities/study etc, or didn't feel heard, or had a bad reaction to medications, or - even if they hadn't previously been re triggered by exposure to passive motion - got re triggered and couldn't afford to risk that again, or ... There are any number of reasons why someone might not come back and 'because they are better' is only one of them. As we've been saying/asking in the patient groups for years - please check this and please, whenever possible, reopen the cold cases so that patients can benefit from the new knowledge in this field of medicine.
You make a really good point, Polly.
@@seeyouonthefly2024 Thank you :)
Thank you for doing this.
Dr. Cho is my physician and her account here is most accurate about how she treats her patients - with patience and individuality. This is such a debilitating condition.
Hi may I ask where she practices ? I have severe MDDs and nothing is working … I have bopping sensation and I can’t quite balance well.
@@edwingarcia9626 I would love to. But I live in Arizona and for me to go there is not that easy . . I tried the optokinetic training with vertical stripes and movement to the left (my body seems to lean toward right with bopping sesation . ) am I doing the right one ?
@@edwingarcia9626do you know if they only to the vertical stripes either to the right or left depending on what the pt’s feels ? I also see on UA-cam vertical stripes going up and wasn’t sure if I should try that as well . I had MDDSs almost 3 yrs now and just want this symptoms to go away . I am assuming you are all well now ?
@@edwingarcia9626 I am sorry to hear that you got scammed . Hope you feel better soon. I went through so many diff docs, medical imaging, PT and nothing has helped .. I knew about the optokinetic training but it didn’t seem to help so I stopped doing it . But I am going to give it another try . Head movement is alway side to side ? But the stripes can go up or down R and L ?
@@edwingarcia9626 I've seen you from other mdds vestibular videos... Omg you spent $4600 for a treatment that did nothing?! Omg...
come the the west coast please!😁 thank you for all the information truly helpful. hoping to show this to my VT.
I'm from the west coast too.. Northern California :)
Just a heads up, dr shin bey, who they have mentioned many times is now in private practice in Frisco, TX. HOWEVER...he takes NO INSURANCE! NONE! Not even Medicare or Medicaid. This is extremely disappointing for me. I don't have the cash to see him. So.....I'll just keep on keeping on. (An hour appt is almost $400 and then he charges $115 every 10 min you go over! )
@@1lebailey join all the vestibular Facebook's groups, lots of very helpful information there. Many of which have been to him for appointments. They can share info with you
Could you please supply the information about the stripes and goggles .
Viewing this video again now in MdDS hell for half a decade. I do not spend anymore money on treatments. Not one moment of stillness.
I live in Olympia WA and have a diagnosis of MdDS going on 14 months. I want to try this and no one around here does this? Where can I find a practitioner in WA state that could treat me?
How much does this treatment cost? Or, does this all depend on individual insurance?
I need your help!!! I have MDdS. 10yrs I live in Portland OR and Im a VA patient, the VA vistibular therapy made me worse
Where in Chicago is the VOR treatments being preformed?
this is the doctor who can't see me until 2026. and is not scheduling any appointments whatever at this time, mid-20224.