What saddens me is the abject failure of our medical professionals. I say this as an RN who has been misdiagnosed and nearly killed by this system myself. This cancer isn’t what will be the cause of his death. It’s the failure of the first doctor to treat this very treatable cancer when it was in the early stages. This is utterly unacceptable and an embarrassment to our profession and a real shame for him and his family.
I've given the misdiagnosis a lot of thought over the years and it still makes me angry. That's one of the reasons I share my story, to encourage people to ask questions, ask for a second opinion of referral.
I was just diagnosed with squamous cell carcinoma today, so obviously I'm binging on videos related to that. I just wanted to say thank you, David, for sharing your journey. I hope that you're doing well! ♥️🙏🇺🇲
Thank you for watching our video if you are looking for more information please visit: melanomacanada.ca/understanding-skin-cancer/cutaneous-squamous-cell-carcinoma/
I have an scc (not diagnosed, but have an appointment in a few days) I’ve been very worried and I thank you for scarring the $h*t out of me to the point of almost fainting! Of course I realize this is you goal as it drums up business.
Hi there, we're so sorry that this video scared you. That is never our intention with sharing patient stories and perspectives. We share stories to raise awareness and help others to feel less alone. If you have any questions about your upcoming appointment, or squamous cell carcinoma, feel free to visit our website melanomacanada.ca/understanding-skin-cancer/cutaneous-squamous-cell-carcinoma/ or email support@melanomacanada.ca. All of our support services are free so there is no financial incentive for participation. Wishing you the very best for your upcoming appointment.
You have an scc. But it is not diagnosed by a medical professional. Therefore you must have diagnosed it as scc yourself. My recommendation is that you treat it yourself. That way you can say that you know/knew, everything about your condition and therefore cured yourself ! Unless you are wrong !😂 . Best of luck .
My dermatologist told me if ever you see a new lesion on your skin and it hasn't completely gone after 6 weeks get it checked out. In the UK a basal cell carcinoma is treated as "routine" and the waiting list for treatment is long. You are treated much faster if you have a suspect squamous cell carcinoma. It would be easy for the untrained eye to fall into the trap of assuming you have a BCC (especially if you've had one before) so it's always best to get things properly assessed.
Wow 8m so sorry Dave . Youve really been thru the wringer and back. Im going to share your story. Ok. My son in law had melanoma a ccouple of yrs ago on his face just above his right eye.
I am so sorry to hear of your Cancer Journey, my husband too has Squeamous Carcinoma of the skull that was penetrating to his brain, he was lucky that so far it has not got there. He is on Immunotherapy for 2 years, he has another 12 months to go. Squeamous Cell Carcinomas are more aggressive than Basel Cell skin Cancers. My husband has half his nose removed as well as other skull lesions being treated. I commend your bravery and resilience to this horrible disease. Keep strong and god bless 👍
Thank you for viewing our video and sharing your husband's experience with cSCC. If you would like to connect with others we have a private Facebook group facebook.com/groups/csccsupport
Those one that look like Eczema or Psoriasis to begin with can be a rare kind of T Cell Lymphoma called Cutaneous T Cell Lymphoma and most commonly Mycosis Fungoides but sometimes other kinds like PCTL NOS , Large Cell Anaplastic,Sezary Syndrome,etc . PCTL NOS and Sezary Syndrome,as is the advanced stage of Mycosis Fungoides ,are formidable diseases with,sadly,a poor prognosis.With Squamous, and Basal Cell Carcinomas the complications that this man had would appear to be very rare so much so that as I understand it they aren't even staged with the 1 to 4 stages that Melanoma, and most other cancers, have.
Dave, power to you and hang in there. I just want to say as a 62yo male I have been going through an almost identical journey as you including blistering sunburns as a child and scc on my right shoulder the metastasized to lymph nodes in right am pit. Then to lungs and latest is tumor on my spine. Multiple surgeries, chemo and radiation and currently one year into immunotherapy (keytruda). Unfortunately inoperable tumor in armpit and it’s big but slowly getting smaller with immunotherapy. Strange thing is and you described it perfectly is the occasional kaleidoscope vision issue. That started with me about a year ago. Wondering if there is anyway we can connect? I’m in Colorado USA. Stay strong.
Hello, thank you for viewing our video and sharing your journey. We have a private Facebook group available that Dave is a part of you are welcome to join and connect with others here facebook.com/groups/csccsupport
Thanks for your comment and viewing our video. More information on Basal Cell can be found here as well melanomacanada.ca/understanding-skin-cancer/basal-cell-carcinoma/
Too young for skin cancer???? Absolutely ridiculous. I have cared for an 18 month old in the hospital with ovarian cancer, and my co worker gave birth to her last child who was born with kidney cancer. My friend’s 3 year old daughter was having some obvious symptoms, they took her to the family doctor, she tested positive for sugar in her urine and the doctor said she was too young for type 1 diabetes!!!!! News flash….type 1 diabetes used to be called juvenile diabetes because it is typically diagnosed in children and there is no such thing as being too young to have type 1 diabetes! My friend’s child was diagnosed with type 1 diabetes several days later when the parents further pursued a diagnosis. NEVER accept a doctor telling you that you are too young for a diagnosis. I am terribly frustrated with these doctors who dismiss the patient’s story/history without doing a thorough examination/inquiry. Never underestimate the value of being your own advocate. And it helps greatly if you have someone/loved one supporting you with your advocacy. ❤️ I am a former long time emergency nurse.
What saddens me is the abject failure of our medical professionals. I say this as an RN who has been misdiagnosed and nearly killed by this system myself. This cancer isn’t what will be the cause of his death. It’s the failure of the first doctor to treat this very treatable cancer when it was in the early stages.
This is utterly unacceptable and an embarrassment to our profession and a real shame for him and his family.
I've given the misdiagnosis a lot of thought over the years and it still makes me angry. That's one of the reasons I share my story, to encourage people to ask questions, ask for a second opinion of referral.
I was just diagnosed with squamous cell carcinoma today, so obviously I'm binging on videos related to that. I just wanted to say thank you, David, for sharing your journey. I hope that you're doing well! ♥️🙏🇺🇲
Thank you for watching our video if you are looking for more information please visit: melanomacanada.ca/understanding-skin-cancer/cutaneous-squamous-cell-carcinoma/
I am still alive and kicking, feel blessed every day.
Stay strong man..... You have put up a great battle, don't let it win. Thanks for sharing your story.
Thank you for watching and sharing your encouraging words with Dave🙏
I’m sorry to hear all this, but you’re an amazing man. I will send thoughts and prayers your way. ❤
Thanks for watching🙏
Thank you
All the best to you
Thank you for watching!
I have an scc (not diagnosed, but have an appointment in a few days) I’ve been very worried and I thank you for scarring the $h*t out of me to the point of almost fainting! Of course I realize this is you goal as it drums up business.
Hi there, we're so sorry that this video scared you. That is never our intention with sharing patient stories and perspectives. We share stories to raise awareness and help others to feel less alone. If you have any questions about your upcoming appointment, or squamous cell carcinoma, feel free to visit our website melanomacanada.ca/understanding-skin-cancer/cutaneous-squamous-cell-carcinoma/ or email support@melanomacanada.ca. All of our support services are free so there is no financial incentive for participation. Wishing you the very best for your upcoming appointment.
You have an scc. But it is not diagnosed by a medical professional. Therefore you must have diagnosed it as scc yourself. My recommendation is that you treat it yourself. That way you can say that you know/knew, everything about your condition and therefore cured yourself ! Unless you are wrong !😂 . Best of luck .
My dermatologist told me if ever you see a new lesion on your skin and it hasn't completely gone after 6 weeks get it checked out. In the UK a basal cell carcinoma is treated as "routine" and the waiting list for treatment is long. You are treated much faster if you have a suspect squamous cell carcinoma. It would be easy for the untrained eye to fall into the trap of assuming you have a BCC (especially if you've had one before) so it's always best to get things properly assessed.
Very good point thanks for highlighting this for other viewers.
Medics are human and make mistakes. Always get a second opinion from outside the hospital that gave the first opinion. X
Sorry for your journey you are fighter
Thanks for watching and sharing your encouraging comment.
Wow 8m so sorry Dave . Youve really been thru the wringer and back. Im going to share your story. Ok. My son in law had melanoma a ccouple of yrs ago on his face just above his right eye.
Thank you for watching and for sharing Dave's story🙏
I am so sorry to hear of your Cancer Journey, my husband too has Squeamous Carcinoma of the skull that was penetrating to his brain, he was lucky that so far it has not got there. He is on Immunotherapy for 2 years, he has another 12 months to go. Squeamous Cell Carcinomas are more aggressive than Basel Cell skin Cancers. My husband has half his nose removed as well as other skull lesions being treated. I commend your bravery and resilience to this horrible disease. Keep strong and god bless 👍
Thank you for viewing our video and sharing your husband's experience with cSCC. If you would like to connect with others we have a private Facebook group facebook.com/groups/csccsupport
Thanks for sharing. You are helping others
Thank you for watching!
Those one that look like Eczema or Psoriasis to begin with can be a rare kind of T Cell Lymphoma called Cutaneous T Cell Lymphoma and most commonly Mycosis Fungoides but sometimes other kinds like PCTL NOS , Large Cell Anaplastic,Sezary Syndrome,etc . PCTL NOS and Sezary Syndrome,as is the advanced stage of Mycosis Fungoides ,are formidable diseases with,sadly,a poor prognosis.With Squamous, and Basal Cell Carcinomas the complications that this man had would appear to be very rare so much so that as I understand it they aren't even staged with the 1 to 4 stages that Melanoma, and most other cancers, have.
Hello, is there an update on this gentleman?
I'm still alive, most recent MRI was stable.
Dave, power to you and hang in there. I just want to say as a 62yo male I have been going through an almost identical journey as you including blistering sunburns as a child and scc on my right shoulder the metastasized to lymph nodes in right am pit. Then to lungs and latest is tumor on my spine. Multiple surgeries, chemo and radiation and currently one year into immunotherapy (keytruda). Unfortunately inoperable tumor in armpit and it’s big but slowly getting smaller with immunotherapy. Strange thing is and you described it perfectly is the occasional kaleidoscope vision issue. That started with me about a year ago. Wondering if there is anyway we can connect? I’m in Colorado USA. Stay strong.
Hello, thank you for viewing our video and sharing your journey. We have a private Facebook group available that Dave is a part of you are welcome to join and connect with others here facebook.com/groups/csccsupport
Wow you poor chap. I had a Basel Cell. They say does not spread and rare with Scc
Thanks for your comment and viewing our video. More information on Basal Cell can be found here as well melanomacanada.ca/understanding-skin-cancer/basal-cell-carcinoma/
Too young for skin cancer???? Absolutely ridiculous.
I have cared for an 18 month old in the hospital with ovarian cancer, and my co worker gave birth to her last child who was born with kidney cancer. My friend’s 3 year old daughter was having some obvious symptoms, they took her to the family doctor, she tested positive for sugar in her urine and the doctor said she was too young for type 1 diabetes!!!!! News flash….type 1 diabetes used to be called juvenile diabetes because it is typically diagnosed in children and there is no such thing as being too young to have type 1 diabetes! My friend’s child was diagnosed with type 1 diabetes several days later when the parents further pursued a diagnosis. NEVER accept a doctor telling you that you are too young for a diagnosis. I am terribly frustrated with these doctors who dismiss the patient’s story/history without doing a thorough examination/inquiry. Never underestimate the value of being your own advocate. And it helps greatly if you have someone/loved one supporting you with your advocacy. ❤️
I am a former long time emergency nurse.
Great advice to advocate and bring a support with you, Thanks for watching!