I/we need advocates navigating Drs ,meds tests ,diet and the very most important thing - truth - please stop abusing us , those who are suffering the most .
I have had high white blood cells that go up and down but never normal for years, liver is swelling fast went from 17cm to well over 20 in 8 months, I get off and on severe fatigue, malaise, low grade fevers, bad headaches, body aches and joint pain, had pretty bad iron deficiency anemia and had iron infusions last year. My hematologist just says that if I want to know anything I have to have a bone marrow biopsy. Is this the ONLY way to test for CLL?
That’s what my doctor told me that you will die with this disease not from it. I’m only stage 0 so I have not needed any treatment so far as I am asymptomatic.
Thank you for making us better doctors.
I/we need advocates navigating Drs ,meds tests ,diet and the very most important thing - truth - please stop abusing us , those who are suffering the most .
I have had high white blood cells that go up and down but never normal for years, liver is swelling fast went from 17cm to well over 20 in 8 months, I get off and on severe fatigue, malaise, low grade fevers, bad headaches, body aches and joint pain, had pretty bad iron deficiency anemia and had iron infusions last year. My hematologist just says that if I want to know anything I have to have a bone marrow biopsy. Is this the ONLY way to test for CLL?
That’s what my doctor told me that you will die with this disease not from it. I’m only stage 0 so I have not needed any treatment so far as I am asymptomatic.
Hello, does this apply to T Cell LGL too? My husband has the very rare Leukemia. I don’t find very much information on this type of Leukemia.