My Endometriosis Story | Laparoscopy Surgery, UK Diagnosis + Recovery
Вставка
- Опубліковано 2 чер 2019
- My Endometriosis surgery and recovery experience. I live in the UK and was diagnosed with Excision Surgery through the NHS. It took 10 years to get this diagnosis, so I wanted to record / vlog my experience. I had my surgery and was diagnosed at John Radcliffe Hospital, Oxford.
#endometriosis
#endometriosissurgery
Endometriosis affects 1 in 10 women around the world - let's break the silence and talk about it, people shouldn't live in pain, and it shouldn't take so long to receive a diagnosis.
I am not a medical expert! So please, if you are struggling with pain or symptoms please reach out to a doctor and get medical help
This was a different, but very important video for me, so if you watched this and also got this far, THANK YOU! I was very hesitant to upload this video and footage, but think talking about the condition is so important.
Camera Used
Canon 700D with Snowball Mic
Instagram
/ sophiemelissa_
Website
www.sophiemelissa.com
Thank you SO much for watching! xx
I have my surgery in a little less than a week, so even a few years later ur video is still helping people :) so thank you so much!!
Had my surgery three days ago and the feeling of validation I got when they told me they found endo was just so overwhelming.
I have surgery Friday and I desperately need validation for my pain 😩
Yes I’m 3 days out from surgery now and that’s exactly what I keep telling everyone. I just feel so validated.
I have been suffering since I was 13 from gynae and bowel related issues. Dismissed it was IBS. Hospitalised in 2019. Diagnosed with Coeliac's, currently under investigation for Crohn's. Had a laproscopy last Friday even thought the gynae insisted it would be normal and nothing would be found. To everyone's surprise they found Endometrosis, did the ablations and ahesionlysis needed and I finally have another answer that could also explain my bowel issues. No one wants to be told that they have endo, but to have finally have another answer, along with the Coeliac's after so many years is validating and overwhelming. I am hoping I don't have Crohn's too but if I do atleast I will know to do deal with it.
I have being feeling so overwhelmed, I am still in so much pain and I feel restless, have such painful bloating, cannot sleep, feel frustrated because I hate not having control and not being able to do anything.
I know everyone's recovery time will vary but I don't know when I can return to normal.
It is nice to find a community here in the comments, we are not alone, and we will get through this!
I think ill cry from happiness just getting a name to the pain I have been having your story was comforting thankyou
FELT
Thank you so so so much for this video!! I am currently waiting for the surgery to give name to something destroying my life for few years now and it is so scary. Thank you
Thank you so much for this video!! You’re amazing for being so open and it really helped me in preparing for my surgery!! You inspired me to share my story on my channel! Hope you’re doing well since your surgery
I just felt that relieve today....thank you for this video, it was nice to hear your words
Thanks for putting this up to help other people. X
i am 38 and have been having all the symptoms of endo for all this time i have been very grateful to have had 3 children, which now given the possibility of endo has made me feel incredibly lucky. they are hoping to book laperoscopy soon but i was literally the same as you terrified of being put under and also just being in a hospital environment like surgery. your video really helped me to feel more at ease and also to have an idea of whats to come.thank you so much for sharing
Just had surgery yesterday and all the videos I’d find everyone seems to be doing great so
I thought something was wrong w me but ur experience sounds like mine and to see a happy ending makes me feel hopeful. Hope you are fully healed and long well. Thank u for the video.
Thank you Sophie for sharing your experience. Currently awake at 3am a week after my laproscopy and being diagnosed with endo. In so much pain, thought to search on youtube how long it will take to recover and your vlog popped up and honestly it is helping so much to watch your vlog, thank you and hope you are doing well ❤
I have a laparoscopy next week!! Thanks for this video
Thank you so much for sharing this! I'm on day 2 post surgery and have been trying to find information online to see whether the amount of pain I'm in is normal. Found myself weeping as I was listening to you tell your story because it is so similar to mine, and I could relate to so much of what you were saying about not knowing what's wrong and wanting to know, and feeling relieved and validated post surgery, and really scared while waiting, it really comforted me to hear I was not alone. I hope you are well.
Thank you so much for this video Sophie. I too had Laparoscopy surgery back in April 2017 and was so nervous and scared. You're video brought back so many memories of the day for me. So glad you got through this & totally agree about documenting & sharing your experience. I too have a channel documenting my own experience with endometriosis. I will link my channel for you below xx
Here is my channel ua-cam.com/video/xdqrCwP7gn8/v-deo.html xx
Such a great video, thanks for sharing your story ❤️
Thanks so much for sharing your experience, I know this video I quite a few years old but I really appreciate your honesty about what to expect. I have a diagnostic laparoscopy next Tuesday after 5 years of going back and forth from the doctors and being in pain, and if I am being honest I'm more scared that they won't find anything even though there is definitely something that is not right. This video has really helped me feel more relaxed about the whole process just knowing that other women have experienced a similar situation as me feels great. Thank you so much and I hope things are better for you now!
Im having my surgery in a week and this video really prepared me mentally for it thank you
Thank you for your video and it’s very helpful! I’ll have my surgery in the end of February in London. The whole diagnose process was long, actually 7 years from the very first time I had severe period pain to receiving my surgery appointment . I do think people should be aware of it and brave to talk about it.
UK Wendy i’m on my first week of recovery from laparoscopic surgery and it’s still painful. Everyone’s recovery is different. Hope yours goes well.
Thanks so much for sharing your experience! My op is at the end of June for suspected endometriosis - reallt helpful to see how this was for you.
I absolutely love your video! I have an endometriosis channel, i’m so sorry that you are having to deal with this pain! you are so strong x
Thank you so much! Talking about this is so important so I’ll have a look at your channel now :) sorry you have to deal with this too, it’s so awful and nobody can understand the pain unless you’ve experienced it xx
@@SophieMelissa I used the lush witchy bar it a god safe
Thanks for the video it so helpful I had surgery two weeks ago and every time I try to do some light housework I feel pain and tiredness kicks in, I thought what's wrong with me but I feel better now knowing I'm not alone thank you God bless you.
This video has been so helpful - thank you. I’ve been fighting for a diagnosis for a few years now and finally have a diagnostic laparoscopy scheduled for in a few days time. My hospital haven’t been very helpful with information - in fact, I was given a scrap piece of paper with laparoscopy written on it and told to do my own research. There’s 31:19 so many conflicting pieces of info on the internet. They haven’t told me when I’ll be able to go back to work, be intimate, exercise etc which I think worries me the most. At the moment I’m due to return to work the day following my surgery :/ hope your surgery has given you the answers you needed ❤
I’m so so grateful to you and all the other women on here who felt brave enough to share their stories. And allowing themselves to be so vulnerable! I wanna thank you! And reassure you! How helpful you are. I’m a mother with a 23 year old daughter scheduled for surgery in 2 weeks. I watched her suffer! With what we now know is this silent disease. But l’ve watched her suffer both physical (of course) but also psychologically! Due to such a delayed diagnosis, since she was about 17 years old! She’s now 23! She’s been made to hell like a “drama queen” “delusional”, “drug seeker” and a criminal! In her journey! Just to get pain relief in countless ER’ and doctors offices! Including gynos! Who should not only be more compassionate! Not to mention! Knowledgeable! I’m diagnosing this very common condition! I’m so furious! That we literally had to come up with the diagnosis our selves! And then beg! 2 different gynecologist to refer us to a Endo specialist!!! But it seems like we are finally coming down the home stretch!
Just to add, it was thanks to women like you, here on you tube, that my daughter was finally able to put all her symptoms together, and finally come up with a name! For all of her symptoms! And finally schedule a surgery that will hopefully give her vindication for all these years of silent suffering. And of corse more importantly Some much needed RELIEF! So thank you! Your video is also very helpful on what to expect after surgery
Hello Sophie, I’ve just discovered your channel and I just wanted to say, thank you so much for all your honesty! You are very courageous for doing this video, and I think it’s gonna help a lot of people! This is extremely important that we raise awareness about such things, because the way some health problems, especially the ones having to do with reproduction system and stuff, are being muted is really harmful for society. I just imagine all these girls, who, like yourself, were in great pain for so long and didn’t get any help because they’re taught that period pain is something normal, and not a proper subject to even bring up. I know it’s been awful for you (if regular cramps are shitty enough!), but it makes me glad somehow that you’ve put this video out there, and it’s just the way you have turned this negative experience into something good and helpful. Thank you so much! I hope you’ll feel better, and I subscribed to your wonderful illustration videos :) Cheers!
Thank you so much for this lovely and thoughtful message! I really hope so, and I definitely plan to keep talking about this topic publicly, as it is still taboo and people are so scared to talk or ask about it in society today, which is crazy - because so many people are struggling for years with no answers, and when something affects fertility and the quality of life, this is not okay! I'm so glad you enjoy my videos! xx
Sophie Melissa Absolutely! What you’re doing is so important, and we will all support you in this 💕
I’ll be 48 and you are reminding me what a truly strong gender we are. Trust me. Men respect us more than you know....
😂 what gender she is women simple
Thanks so much for putting this up and I hope your recovery is going well! You are so right that these videos are needed. Both the pre surgery and recovery info is so helpful. Everyone seems to have very different experiences-I am 4.5 weeks out from mine and still experience some pain at what I assume are the excision sites (hoping to get the rundown at a post op appointment next week) but nothing like that first week pain!
Our surgery must have been around a similar time! I’ve also been a little achy still in those areas, feels a bit like a pulling sensation but apart from that my pain has gotten so much better, finally had a pain free period! :) I keep forgetting I even had the surgery, wishing you all the best and I hope everything heals well and you get some relief, endo is horrible x
How long did it take you to recover fully? I’m on my first week after surgery. It’s still quite painful. Still dealing with gas from my stomach after laparoscopy.
Thank you so much for putting this video up and sharing your experience. I'm currently waiting to see my gynaecologist and hopefully get surgery too. So glad you are feeling better! Fellow Endo Warrior in the UK. xx
Cyd-Getting better is possible.I am 3rd year endo free.Google anti inflammatory diet and make it your lifestyle.Fellow endo warrior from Scotland
@@jolaaljakhbirI know of an 70 year old woman who had endometriosis surgery at 30 and has been fine since. It wasn’t on the U.K. though.
@@jolaaljakhbirhiya, did you have a laparoscopy or did you manage to cure yourself without the need for surgery?
Thank you for this. I am 21 and ever since I started my period at 11, it's been absolute hell. I could go up to a year without one but then, when I did finally get another one, it would be absolutely excruciating and extremely heavy. I would feel faint and sick and have to take a week off school. It would last a whole 7 days. My cycle was just always very erratic. After starting puberty, I also rapidly gained so much weight despite my diet not really changing. I had severe acne that not even prescription treatments would get rid of and I have always been so. damn. hairy. 😅 When I was about 13, my mum, after years of trying to conceive another child, finally got diagnosed with Polycystic Ovarian Syndrome (PCOS) and as she learnt about this condition of hers, it became very apparent that I had it too. However, I was too embarrassed to go to the doctors at first but I got to 16 and things were getting really bad and so I agreed to let her take me for an appointment. It took two years but I was finally diagnosed with PCOS in 2016, at the age of 18, and suddenly, my life became pretty centred around my health. I was, and still am, morbidly obese according to my doctors, and it's mainly thanks to PCOS as it can cause you to rapidly gain weight and it's difficult to lose that weight and being overweight also makes it worse so it's a vicious cycle. My uterus was basically on holiday for the most part lol so we were trying to treat that and it was just so. many. doctors. And pills that failed. It wasn't fun. 🙃
Around the time I got diagnosed with PCOS, I was beginning to have periods that would last 2-3 weeks and my cramps were beginning to move out of just my period and I would have them at other times as well. I was in college at the time and it was just really tough and I ended up having to leave my course due to the pain I was in. We told my gynae who was seeing me for PCOS and I just got dismissed basically. Since then, we've watched it just get worse and worse and worse and have told many doctors that we are concerned about Endometriosis and they just haven't listened. I now am at the point where my cramps cause me to vomit multiple times in a day. I'm at the point where I am bedbound a lot and my periods can last for months with very little to no breaks. Earlier this year, I watched my auntie pass away from Endo blocking her small bowel, which was all she had left because it had ravaged her large bowel years earlier. I realised that, that could be me one day if I don't start sticking up for myself. I have autism and social anxiety so I'm not confrontational like at all, my mum does my talking for me, and I will let people push me around tbh, but I knew that next time I saw a doctor, nothing was going to change if I didn't force myself to tell them where to shove it. I had a period this year that lasted for the entire summer, despite being on the pill to try and stop my periods. I ended up in emergency gynae crying from pain and being told "oh it's probably just an infection" and I was so done at that point, I was like "no, I know my own body, this is a gynae thing, I need to see a gynae NOW, I can't wait until my regular appointment!!" and so they admitted me for the night so I could have a scan and see a gynae the next day. I spent basically the entire time crying, curled up in pain, begging the nurses for more pain relief. It was the absolute worst. But after my internal scan, the gynae said they could only see PCOS on it so she agreed it could be Endo and the next logical step was a laparoscopy. However, she told me she can't refer me herself, it needed to be my regular gynae, so she rushed up my regular appointment for me and personally recommended I have a laparoscopy to my gynae. I am so, SO grateful for her, she was the only person that ever listened to me and I just wanted to cry tears of relief right then and there tbh.
I had my regular gynae appointment last month and am now due to finally have the laparoscopy!! 😊 I am so happy that, if nothing else, I'll finally get a good look at what's going on in there. If it's not Endo, at least it'll put my mind at rest and we can then look for other possible causes. But I am convinced it's Endo tbh. I watched my auntie suffer from it my whole life and I recognise myself in her. I don't have the date for my op yet but I have had my preop already. They said I should get a letter with the date on it. I've been under general anaesthetic before for a dental procedure when I was really young so I'm not _too_ scared about that. The only thing that scares me about anaesthetic is the fact that I'm overweight and that raises your risk of literal death under anaesthetic BUT the woman at my preop said I should be fine, it's just a precaution. 😊 I'm currently on a pill called Provera to stop my periods (although, I don't think it's fully working as I feel like I'm PMSing rn lol 🙃) and when I have the op, I'll be fitted with the Mirena coil instead as it's not really safe to stay on those pills forever, you should only take them for 3 months for Endo concerns/reasons, but because I'm coming off of them and Mirena doesn't work straight away, I'll likely wake up on my period. 🙃 So I'll have healing pains, gas pains, period pains, coil pains, and I'm fucking DREADING it. 🙃 I don't think they're gonna let me home straight away tbh, I'll prob be in way too much pain and bleeding way too much but we'll see.
Update: I have endo. I had my op on Dec 30th. Completely forgot about this comment. Fight for yourselves, ladies. You know your own body.
Thank you so much for this. I have a laparoscopy next week and my first time in surgery I am absolutely dreading the anaesthesia. My friends have never had it keep telling me to stop worrying and being silly. I’ve just spent the last Half-hour being absolutely comforted by your story. Thank you again. I’ve got peppermint tea, hot water bottle and a pillow for the car journey home on my to do list for the day.😊
Hey, I’ve got mine next month. How did it go? How long did it take you to recover?
@@summerupton6966 hi Summer. Been two weeks now and recovering nicely. My First period was a little painful but I was warned of that. I’ve noticed 80 percent of the endo pain gone. The doc told me there was a little bit left that he did t want to move as it’s on my bowel so we’re going to have a separate convo about it at my follow up. Shout if you have any more questions. I wish you the best with yours xx
@@jeria985hello, since having surgery have you continued to have improvements in your period pain? And since you had it on your bowel did you find you had IBS type symptoms, and have they improved? Thanks very much for any info!
God love you!!! I had my first laparoscopy and endometriosis removal on Monday evening! My pain has been at a 2 out of 5 the last 3 days but the pain from the air has been horrible so sore! I went back to working from home when I got home on Tuesday! They gave me codeine and paracetamol but I might stop the codeine because I’ve not gone to the toilet in 4 days 😭 im sorry your experience was so bad but hopefully you’re in way less pain from the endo!
Sat here age 39 been in pain since I was 26, was diagnosed with fibromyalgia and ibs and generalised anxiety disorder but the past year bleeding everyday and the most horrific pain in my life in my stomach, pelvis and Down below and swollen in all these areas and I can’t walk properly just had my pre op and surgery ready to go November so I have a month to wait. I am TERRIFIED and I have to go on my own to a hospital I don’t know as I can’t go to my hospital as there is no room and my
Mum is disabled so she can’t come with me. Thank you so much for doing this video I have cried a few times through it but I really appreciate that you sat down and did this video. I’m so glad that you are sorted 😊
hi, i’m writing this now from my sofa crying in agony bc of severe pain i’m 19 years old and i’ve been under gynae for years. they’ve said a lap is the best thing for me however i’ve told them i’ve avoided it bc im terrified of getting put to sleep and being under . and on the leaflet it says 1 in 1000 women face severe complications and that’s made me even more scared. i have ocd anxiety and im also autistic so i have no idea what to do but this pain is horrible. how was your experience?
Thank you for the video,I had my surgery 2 weeks a go,the hardest part was chest pain for 4 days I still have problem with constipation but dried Apricots or probes really helped.
Hey Sophie, I’m so sorry you’ve had to go through this. I’ve gone through some different health issues myself a couple of autoimmune things that I’m on medication for, and fingers crossed I’m fine. I haven’t had any surgery so I can’t imagine what you’re going through. But I wish you a speedy recovery 💕
Hey Emma, thank you! So sorry to hear you’re also struggling with health issues, it’s horrible isn’t it, so draining and scary. The main reason I had the surgery was because it’s the only way to get this diagnosed unfortunately! But hopefully it’s also going to give me some relief from the pain. I hope you’re okay 💛
Sophie Melissa Thanks Sophie, yes I’m fine right now. I just have blood tests every 3 months to check my medication is working. But I feel fine.
Awww, I really feel for you & you definitely didn't look bad at all. How are you 2 years on? Best wishes K x
Hello fellow Sophie! I hope your pain days are much less frequent now 💕
Your video made me cry.
I could see how emotional you were and how hard it was for you to open up about your condition - but thank you for speaking out, because it really does help others - it's certainly helped me.
I too have suffered with chronic pain, heavy painful periods, along with bowel and bladder involvement. For 14 years I've been told my pain is 'normal', its 'just period pain', all my ultrasound scans were 'normal' and I have been put on every contraceptive pill you can think of - but this pain isn't budging - it's getting progressively worse. I have barely been surviving on prescription pain killers. I am currently on codeine and liquid Morphine to try and control my pain, along with a whole host of potions to keep everything moving - if you get my drift.
I too have been rushed to hospital in agony many times, just last Monday I was admitted to hospital for 4 days with a high temperature, high heart rate, severe pain and my inflammatory markers were 228 (they should be between 0-29) - I was due on my period. I was given antibiotics, when I asked the general surgey consultant if it could be endometriosis he laughed and said it was most likely a viral infection 🙄 they thought it was my appendix at first but decided against it and discharged me with pain meds 4 days later.
Luckily, I had an appointment that I had been patiently waiting for since November, with one of the best Endometriosis specialist doctors in the UK. It was the only thing keeping me sane, knowing I hopefully had someone who would listen and understand. And 2 days ago he listened to me, like really listened, and within 5 minutes of the appointment he put me on the list for a diagnostic Laparoscopy - I've even signed the consent forms! Honestly I haven't stopped crying (these bloody hormones)! I feel so relieved that hopefully in the next 3-4 months I will have some answers. But the excitement is short lived, I feel the same as you did. I have this overwhelming fear that they will find nothing, I'll waste everyone's time and they won't be able to explain my pain.
I have put my career on hold (I'm training to be a primary school teacher - in my last year with literally just 2 placements to go) because my body is letting me down. Now most days I can barely walk or talk with the pain. What 'normal' and 'healthy' 25 year old has to give up their career for 'just period pain'?! It's affecting my mental health not being able to physically do the job I love and have worked so hard for, it's just torture.
But I have to be positive, I have no choice and hearing your journey gives me hope. So I'm writing all this at 2am (because I'm unable to sleep with the pain) but to also say thank you. I know how hard this subject is to talk about. So thank you for sharing. You have helped me feel a little less scared and hopeful. I hope you are recovering well xx
Yesterday I got diagnosed with Endometriosis. Never give up, painful periods are not normal. Always trust your instincts, you know your own body.
thanks for showing us your scars, now we know where we could potentially be operated!
Sorry, hoping your feeling better
I am feeling a lot better now! Thank you :)
Thanks for the video,I am so glad O have watched it…peppermint tea..will sending my Husband tomorrow to get me some😂🥹Day 2 for me after my surgery…first ever and was 4hours long with stage four endometriosis. Still so much gas pain and very sour bellybutton…Trying to walk around more and sit up more but all I want to do is laying in bed😃Hope you getting better and wish all the best 👍🙏🏻
I came on your channel for some illustrations, and was surprised in a good way to see this. I actually found the name for my problem half year ago, when I met my current boyfriend and sex is just unbearable. Yes I've been dying every month since I have my periods, but since I am from 3d world country nobody gave a sh#t and many times I was gaslighted that is nothing when I was in agony. So I at some point I just accepted this state of mine. Now I live in US and someone finally told me whats wrong with me. I am trying pills now, I don't think they will help, but I have already have a half face covered by cystic acne(side effect). It's really a war. Now I am changing my pill the 3d time, I hope I will stop getting acne and my endometriosis will improve. Pills do help with pain during periods, though for now they don't help with sexual life. And for me it's very important, since I have perfect partner now and we both have libido higher than average. I started becoming ashamed of my condition and feeling like am not enough. Its very sad that people don't talk about it.
I'm having my surgery first week of February and I'm scared, I just had an ultrasound today and they found friboids
Your video is so helpful with my recovery for a week now. We had the same procedure. And i felt that my recovery is slow :( Though i was able to walk the ff day after surgery but i still got pain up to now that more than a week have passed. May i know how long you fully recovered after the procedure?
I’ve been dealing with this pain since I was 10. Finally got confirmed by MRI that I have deep infiltrating endometriosis, awaiting surgery. I’ve been so overwhelmed with emotions because I finally feel my pain is validated after years and years of being told my pain is normal by doctors. There are days I can’t walk!
An MRI determined you had deep endometriosis. You are fortunate. My MRI showed me I had appendicitis and mild endometriosis. It was during my appendectomy that they have now seen I have deep endometriosis.
@@wordswondrouswords6120 mine showed up normal for years, this last one definitely showed it progressing. I’m glad you got answers!
Hi, what country are you in? I'm wondering if it is possible to get an MRI done to look for endometriosis in the UK
Hi Sophie, thank you for making this video. How are your periods these days? Did the surgery make a big difference for your period pain?
That’s right talk about it . That’s what was told to me that I might have it and you have to have surgery to see if that’s what it is
Currently researching on to go or not for the surgery, it looks really painful plus its not a total cure of endo~ thanks for sharing the true experience of how it looks like since the doctor just told me it is going to be fine only for 1-2 days of recovery….
Recovery was very sore but for me it was worth it for the full diagnosis and relief from the pain (even if just for a bit) wish there was more research but endo pain relief
Hi thank you for sharing your story. I just had surgery yesterday April 19, 2023. I understand how you feel because I’m going through all the symptoms. Did you ever conceive a baby after the surgery
Thank you
Hi Sophie, thank you so much for this! I’m only 19 and have suffered with chronic pain and the same symptoms you’ve had since I started my period at 14. Doctors first response was just to put me on birth control which was great until I decided I had enough of the hormones and my periods have gone exactly back to the way they were before. I’m currently on a waiting list to see a gynaecologist but because of my age apparently there are some procedures I’m still too young to have! Thank you for sharing your experience, it definitely helps to bring more awareness around the subject and what to expect! How are you coping since your surgery? X
I was told I was too young around that age too but I actually don’t think that’s true! I’m not sure many doctors know what they’re talking about sadly, but when you see the gynaecologist be really honest and go with a list of all your symptoms! Don’t let yourself be embarrassed to talk in detail, it’s not fair having to be in this much pain. I’m feeling a lot better though thank you! Recovery was fairly long but I had my first pain free period in 10 years! So I’m hoping it stays this way for as long as possible xx
@@SophieMelissa im currently helping my girlfriend research this, and i hate to ask this but how nervous are you of the endometriosis growing back in a year? How much does the surgery prevent it from coming back? That seems to be my main concern
@@SophieMelissa I got told it was pcos . So I had 3 blood test & apparently I dint need a another one so I am waiting for a disanoise
My sister has been diagnosed with Endo and I am trying to learn more about this illness. Will you be doing a talk about how things are now because some time has passed?
Thanks to share your whole experience with us.. more strengths to all those suffering from Endo
I am also diagnosed with Endo. But still thinking if i should go with laposcopy or not.
One question to ask... could you conceive after this surgery? This is the main thing which is bothering me
I'm due to have surgery next week. I'm shocked how much pain you're in, I had 2 c sections and refused pain killers afterwards but had minimal pain. I'm debating having it done if this is how bad the aftermath is
I have been diagnosed with deep endometriosis and I am convinced it’s give me sciatica due to how difficult walking is getting for me. I’m also having extreme fatigue which some have said is fibromyalgia. My GP thinks the pill will fix it, but at this rate the pain and numbness might lead me into a wheelchair. I have also been written off work.
😢😢😢😢 sorry to hear that
I am going thought the same thing . I have my pe op tomorrow
I have my Laparoscopy Sep. 14th. To check for Endometriosis.
Do any of you ladies also deal with pains in your bum? 🥺 They're thinking I may also have Levator Syndrome causing that pain. It feels like someone is shoving a dry piece of rebar up your butt, but the pain is also in my vagina... Usually happens before, during, and after cycles. That's a way I can tell I'm starting soon. Lately I have been either bleeding too much at once for a long while or spotting for a long while. Weeks apart.
How many times did you go to your gp and what made them take you seriously and let you have the surgery? Thanks
Thank you for sharing your experience, is the surgery pain worse than endo pain?
To me it’s very different! Surgery recovery is a different pain, hard to explain but sharp and stingy, where as my endo pain is dull and deep. I had a c section this year and the recovery was similar to the endo surgery, I would say the surgery was worth it for me
How was your pain 8-12 weeks post surgery? I’m at 8 weeks and I’ve started having pain worse than pre surgery.
Hi Sophie.This video is one year old and I am not sure if you are reading comments-just to let You know and other girls out there that getting healthy IS POSSIBLE.I did it after a long 20 years of suffering.I put my illness into remission naturally. Please search for how to help your body to heal.Unfortunately, Endo became big business and many doctors are affiliated with drug companies those days. Please do your own research . Getting better is possible.I am not the only one who did it. Sending love from Scotland
How ?
Hello ,I am 27 years old unmarried I did my laproscopy of endometriosis in 2017 and doctor advised me to take contraceptive inj after every 6 months untill I get married ..I m taking it .tell me treatment given to you by doctor after surgery
Everyone’s experiences are different iv had 3 surgeries and was one who just got up immediately but don’t take that as you wasn’t doing as good as everyone is different
Having my laparoscopic surgery in 3 days due to unexplained infertility. During consultation and ultrasound today the doc said I have Endometriosis.
Im doing the same the doctors are scheduleimg my appointment for August im scared ive had 3 miscarriages and very painfull periods
@@nedraflynn7327 so sorry to hear that. Wishing you well
Hey, I’m also under JR... I was told they could see my endo on an mri in 2017, finally got a date for surgery Jan 2019, it was cancelled the day before! So I’m now not seeing anyone until tomorrow (9/1/20) a whole year later!!! Can I ask how long it was from you seeing a specialist until your surgery appointment and surgery date? 💜
Ahhh!! That’s awful, to be honest after I filmed this I was supposed to have a pain clinic post op appointment which got put back to April 2020 so I’ve waited a year for that, the NHS is wonderful but these waiting times are disgusting :( I was told 8 months but then after going to my GP he contacted them and I got a cancellation, so only waited a month after getting referred for the op - I would firstly ring the hospital and ask to be put on the list for any cancellations and if that doesn’t work go to your GP, and if that doesn’t work, see another GP. It’s a fight for sure but worth it!
HI. I have a question. For you. How. Do. You deal WitH. Endo cause I have endometriosis. And. It is very. Painful to can you give me some great advice. On DO you. Deal with endo
I had this surgery 6 days ago and I’m barely starting to feel the pain from the incisions. How long did it take for your bowel movements to get back to normal?
It took me a week. 😞
I see that this video is now 2 years old. I wonder how you felt some time after like some months after the surgery and even now. Did it help overall with the pain to get them removed? My main reason for having put off this surgery for now 7 years is that I am afraid that the pain relief won't be significant / lasting. Would love to hear your experience
It helped massively! I would say the year after I had a lot less pain, pain was still there during periods but significantly less that before surgery. I’ve just had a baby this year, and during pregnancy didn’t experience endometriosis pain, so I will be interested to see how it is when things start to regulate again. I don’t regret the surgery though!
@@SophieMelissa Oh wow thanks so much for replying right away and that is really so great to hear! Of course it's different from everyone but it does make me a bit hopeful :) Congrats on your baby!
Hi Sophie how are you now?
Appreciate the honesty but doesn’t mean everyone will get this affected
Hey, I had my diagnostic lap for endometriosis 10 days ago. Mine was in both tubes and thick band of adhesions in my cesarean scar which fused my wall to my bowel. Can I ask, has your pain gone now after surgery? Have you had it reoccur?
It massively helped yes! I had a year with no pain after recovering and then it was nothing compared to prior, I did fall pregnant last year and had a c section and I feel it’s making things so bad for me again, but that could also be the c section as was only a few months back, so may have to talk to doctors about that!
@@SophieMelissa that is fantastic to hear! Endo loves cesarean sections, so definitely speak to them about that. Congrats on the birth of your little one :) xx
I wanna ask a few questions please about endometriosis
My endometriosis has been bad this year despite the implant and the pill. I’m suffering with it right now actually. I think it’s spread.
*Nothing can compare the joy in my
heart for being free from this terrible
disease fibroids, for 2years I suffer
from it not until I saw a review on
how Dromocure on UA-cam Cured
someone from Fibroids…I contact him
and bought his Herbal.☘️ medicine lucky for me
I was cured and free from this fibroids pain with the help of his herbal medicine....
Email ( dromo596@gmail. com )
WhatsApp. +2349033505260
. Dr Omo can also help you get rid of gallstones, Endometriosis, Ovarian cysts, Herpes, Pcos, low sperm& weak erection , Herpes virus, Blocked tubes, infections, Infertility & bleeding. Please help me share Dr Omo herbal medicine work fine no side effects .x ✝️ ☘️ >>☘️xx
@@joycenurse2894 I wouldn’t trust that.
@@Dani_Squishy What do you mean.?
I’m going for surgery I’m so scared
I. Love you're. Video. On. Endogenous. Cayce. It's not nice to have. Endogenous
Hi, did you have surgery in the morning then? I'll be going on Thursday, it's also been a long time coming for me, especially because of coronavirus. Maybe 3 years waiting.
Have you done it yet
@@gloriawhite2214 yes, two weeks ago, very different experience from what I saw in the few videos I watched on YT
@@QueenMarissaD so what now ?
@@gloriawhite2214 I did it through the NHS so they haven't told me anything about what next. Hopefully I won't need more laparoscopies in the future. They removed A LOT of endometriosis. I don't have any appointments booked for post-op. Don't know if there will be one. For now I just need to wait 4 more weeks at least for everything to heal inside and see if the pain actually went away.
@@QueenMarissaD you know surgical procedure on Endometriosis is 50/50 and might grow back in few years like 5years !! I'm sure they didn't tell you that...that's why I decided to try herbal medications which don't require them removing anything from me and now I'm free it worked with no side effects whatsoever
Can someone please tell me how they got referred for surgery in the UK. I've been told that it's too risky so they don't want to do it. I'm literally taking codeine, naproxen etc almost on a daily basis. All they want to do is to stop my periods in case it is endo.
It can be a serious battle, the U.K. health system doesn’t take women’s pain seriously. I just kept asking, eventually whilst in a&e I got a letter for my GP to refer me to a gyno, the gyno tried to push the pill again but I put my foot down and refused and asked for surgery, they were then happy to refer me for it. It’s sad you have to fight this much. Definitely try a new GP first
Im just scared of the nausea and vomiting I have a phobia 😢
I have all the symptoms but I’m worried that if the surgery shows nothing, then I would have put myself through it for no reason 😪 That’s why I’ve put it off for over two decades now. They keep trying to get me to take hormones but that makes my anxiety and depression worse.
I've got my surgery tomorrow and I'm worried about the same thing!
@@KatiePackman all the best Xx ❤️🤗
@@KatiePackman katie did you get diagnosis ?
*Nothing can compare the joy in my
heart for being free from this terrible
disease fibroids, for 2years I suffer
from it not until I saw a review on
how Dromocure on UA-cam Cured
someone from Fibroids…I contact him
and bought his Herbal.☘️ medicine lucky for me
I was cured and free from this fibroids pain with the help of his herbal medicine....
Email ( dromo596@gmail. com )
WhatsApp. +2349033505260
. Dr Omo can also help you get rid of gallstones, Endometriosis, Ovarian cysts, Herpes, Pcos, low sperm& weak erection , Herpes virus, Blocked tubes, infections, Infertility & bleeding. Please help me share Dr Omo herbal medicine work fine no side effects .x ✝️ ☘️ >>☘️xx.
Same... ultrasound always looks great but everything else, i mean every single symptom, i have...
And its very painful 😔 and emotional...
They just say: "then only way to know its to go to surgery"
Idk what to do 😬😬 i am very scared of surgeries and that would be my first one
Did the Endo pain go away after surgery?
So it hasn’t been a year, so I’m aware it might change! But overall it’s lessened a lot, I’ve not had any mid cycle pain, and periods are shorted and only painful for the first day or so, so I’ve noticed a big improvement with pain xx
@@SophieMelissa hey Sophie, glad all is well with you! When you say " painful first day of period or so" do you mean really painful that you will miss work etc. And no pain killer can help or is it manageable with painkillers ? I am thinking to go for this surgery all my symptoms are pretty much endo and I am terrified! Many thanks xxx
@@SophieMelissa That's great to hear!
Everybody hasdifferent pain thesholds.
Very true! Some people seem to be fine after a few days of the op but it took me weeks to get walking without pain, bodies all react differently
Did you ever get pregnant
*Nothing can compare the joy in my
heart for being free from this terrible
disease fibroids, for 2years I suffer
from it not until I saw a review on
how Dromocure on UA-cam Cured
someone from Fibroids…I contact him
and bought his Herbal.☘️ medicine lucky for me
I was cured and free from this fibroids pain with the help of his herbal medicine....
Email ( dromo596@gmail. com )
WhatsApp. +2349033505260
. Dr Omo can also help you get rid of gallstones, Endometriosis, Ovarian cysts, Herpes, Pcos, low sperm& weak erection , Herpes virus, Blocked tubes, infections, Infertility & bleeding. Please help me share Dr Omo herbal medicine work fine no side effects .x ✝️ ☘️ >>☘️xx.
What if milk is the cause of endometriosis
Were you barefooted or socks in the hospital bed
3 years on what improvement have you noticed in all your symptoms? I'm on the waiting list for surgery with severe symptoms 🤍