Howdy! I would welcome any assistance here. (I believe that if someone sends me a file with the subtitles, then I can upload them into UA-cam for a given video). Thank you for wanting to help my videos reach as many folks impacted by MS, regardless as to what language they speak! #WeHaveMS and are truly #StrongerTogether
Aaron Boster MD we all should thank u Doctor for what u always doing for helping people like us and for always trying explain for those who need and btw u are a famous here special in the Arab countries
That's amazing. I've presented in Dubai a few years back and would LOVE to revisit the Middle East someday. (Wonder if we could encourage the local societies to bring me for a lecture tour!)
I am a nurse and I’ve had MS >25 years. I am going to ask my husband and children to watch this video. Your explanation of the various forms of MS pain is spot on. Thank you for putting into words the pain symptoms that I have been trying to convey to others for years. Blessings to you.
Nobody seems to understand the feelings....😢 My 2 kids are the only ones who empathize with me...but nobody takes kids seriously 😢 They have lupus n mystenia Gravis...different kinds of pain ....
Unfortunately, there are still doctors who say MS isn't painful, and explaining our pain to them or other people is hard. So thank you for this great video, and everything you do for us, doctor :)
Monika Gombkotoová hey there, how are you? The fact that some doctors stil believe this is mind blowing to me. Does your doctor still believe this? If so please, please, please find a new doctor. I hope you have other options
Finally shits changed and they can't deny it anymore.. like how can someone who doesn't have MS tell me I'm not in pain..it's ridiculous, no one would never tell someone who has cancer isn't in pain. Who's nerves have been cut wasn't in pain. It took me a long ass time and a bunch of drs to finally get proper pain medications. All nerve pain meds send me absolutely loopy like ended up trying to unalive myself multiple times.
This is hands down my favorite video EVER related to MS. This should be shown to every new MS patient. I never realized itchy hands was relayed to MS so I never told anyone! So much of this now finally makes sense!!!!
I had a ER visit in Jan, head of the ER told me to my face that it does not cause pain, I almost left and that would have not worked out well as my lactic acid was dangerously high. The education needs to change, thank you for doing these videos
I moved countries recently and saw a very well regarded neurologist who turned around and said pain is rare in MS and it's all in my head as I must be a very sensitive person 🙈 Let's just say I didn't go back to see that consultant again!!
Are you a woman? I have been told by a female doctor and I've experienced. I think myself that when you're a woman you're symptoms or severity of them are often dismissed. Every doctor knows that we all have differing number of pain receptors some have more than others which makes them more sensitive to pain. The fact that they would say that makes me angry
I do take pain medication for the pain I do have, and its amazingly helpful. I don't think taking that option completely out of the picture is right because everyone is different and reacts differently to certain meds. Before I was put on pain medication, I had no quality of life. I did everything asked of me- high dose IV steroids, multiple injections, multiple medications (and some that I'm still on). I have no insurance and went into serious debt trying one new treatment after another. I no longer own my own home. I live with my daughter and her husband now. Ultimately, pain medication was one of the best decisions for me, but I know in today's opioidphobic environment, I'm truly blessed to have such good relief. I sincerely hope everyone can find a path that leads to less pain and more movement.
yes, none of those medications helped for pain with MS, only actual pain medication. I love when doctors feel forced yo have to go through the litany of all other options and make the patient endure them when they know, and many patients know (they speak to each other) that they just don't treat pain effectively and come with slew of side effects.
@@AaronBosterMD We appreciate it so much. I was terrified when I was first diagnosed. My doc was good about meds but didn't help much with the "nuts and bolts" of this disease. I felt so lost and overwhelmed. I prayed to God for help and found your channel. 😅
Hi there Dr I presented to the er 4 Times with Ms hugs before being diagnosed with MS and was really upset when they said I had munchausens!!!! . So I understand that these pains can be confusing, but I think young doctors should be more educated about pain syndromes in different illness. PS I did receive a full apology from my NHS Trust. I am now being treated by a great neurologist a Dr Gabe De Luca here in the UK.
Dr Boster my wife was diagnosed a couple years ago and she isn’t receiving very good care here in PA, we fear her ms is progressing and they aren’t even taking it seriously and who knows how much of her life is being wasted by their inaction and inability? Do you see out of state patients? Is there someone we can talk to to find out if it’s even a possibility she could see you? She loves watching your videos you give her hope! Ms sucks man! Thankful for people like you who make such a difference in people’s lives.
Tony, I am from Pa. can you request she be seen by a MS specialist/ MS neurologist? They do have them in a few larger hospitals across the state. MS Focus also has transportation assistance grants for neurologist appointments. God bless your wife and you her #1 supporter
Tony, I posted a reply to the user named: hamcki. Scroll up and read his question. I made a recommendation that could possibly work for your wife. If there aren’t an adequate amount of neurologists who specialize in MS, then look at another state and try to find a practice that has more than two MS specialists. Sometimes the practice can be over loaded and the wait for a follow-up appointment is very long. Please search for my reply further up. My best wishes to you & and your wife.🍀
Cannabis is gods wonder drug. I have nerve damage and it helps alot. I also have ptsd and lack of appetite and cannabis helps me eat. Everyone involved with cannabis prohibition will hang their head in shame in the future. Thc and CBd are wonderful chemicals
Thank you for taking the time to look into MS, I have Recommended Arron Boster to friends, not even one has looked, people see what they want to see. thank you
Dr Aaron, I appreciate this clarity on the various pains of MS. I have had bilateral leg pain constantly on a daily basis. In my 20’s the first unusual pain was an episode of trigeminal neuralgia treated with Baclofen then both arms with numbness tingling to be told that was carpal tunnel. I have had the electric shocks with turning the head side to side not much with extension or flexi on. Your teaching on this top needs to be submitted to Journal of Medicine and include a copy to be submitted to the MayoClinic maybe they could start to rewrite MS symptoms including pain to educate Dr’s that are not informed.
I am based in UK. DRs have asked me if I experience pain. The definition of pain with them and with most of the public is not clear and that makes things confusing. Thanks for letting me understand that my spasticity can be defined as pain. This helps with my interaction with the doctors here.
I ran into a young ER neurologist, who believed MS doesn’t cause pain the first time I had to go to the ER for a relapse because I had a very long wait to get into my new neurologist when I moved to a new state. I was shocked when he said “MS actually doesn’t cause pain.” I just told him “let’s move on,” but almost immediately afterwards I wished I had asked him why the National MS Society has a web page on pain if MS doesn’t cause pain. Thank you for making these videos. They are very helpful to keep informed about types of pain other people with MS may have so I can be a good advocate for others too. 🧡🎗🧡
Great video Dr Boster. You mention that trigeminal neuralgia is one of the most intense pains that a human being can experience. I've been hospitalised with it, together with the MS hug and also what was far more painful than my particular experience of trigeminal neuralgia - muscle spasms in lower back, which were believed to be due to an old L5-S1 disc injury and later diagnosed as cauda equina syndrome. Since being diagnosed with MS, I begun to wonder how much MS impacts the chronic pain I suffer from the disc injury. In other videos you advocate exercise, another great piece of advice. I've found that while it may sometimes be painful to move, exercising the muscles can often prevent the pain becoming worse. Thanks for your awesome work!
The MS Hug can be very confusing. Very painful . But I have learned and utilized a way that you can calm down the MS Hug. You can curl your fingers under your rib cage and massage your diaphragm and the muscles. It can be sensitive so you may need to start off very gently.
When I was first diagnosed, I was trying to describe my symptoms. I didn't know what was going on. Told my Neuro it felt like I was wearing a girdle or corset that was three sizes to small or like I was being squeezed too tightly. He said he'd never heard of that symptom and it wasn't MS related. I was so confused because I had mentioned it to my PCP during a physical and she said it was MS related. Happened for a few months years ago, and hasn't happened since.
My son had that and they told him at the hospital MS doesn't cause pain. He got a muscle relaxer from someone and said he felt so much better. I'm tired of these damn Drs. making people suffer because they're worried about getting sued. They should get sued for not taking care of their patients properly.
Good morning guys! Just wanted to say that it’s great to have such another wonderful big family here with Boster and you guys! Have a great days everyone. Try to Keep our heads up and keep moving forward
Yes, my son kept complaining about neck pain and stiff necks. We found out he had MS from a MRI. He had a long lession on his neck where he had pain and many on his brain. He also lost vision in 1 eye before he was diagnosed.
Honestly, I started smoking cannabis after the first and second time I went to the ER. I was diagnosed and I never stopped. Not only does it help with pain, but also appetite and stability. My tremors and spasms astonishingly
This is a really great video, so informative. I love your videos, I find them a real help. I think I may share this with my family. I still don't think some folk believe me just how painful MS can be. Perhaps I'm just good at hiding it. And my the way, I wish you were my doctor. Took me 10 years to get my GP to take me seriously and eventually get diagnosed.
Thank you so much for making this video and for understanding that MS causes pain. I have had trouble in the past explaining to my job about me being in pain. Thankfully, now I have an understanding boss but it is hard explaining when it is invisible. It makes you feel like you are crazy or making it all up... still thank you so much for this! Have a blessed day!
This is a new journey for me and I am grateful that I found your video. I am having crippling pain from this disease and it is frustrating when no one seems to understand. I heard things like "push through it, your getting old, I'm pretty soar today as well, it's in your head" along with many other explanations of what my issue is. Unless you have spent the majority of your time- over a 5 year period- in the fetal position, then I feel confident in saying you don't get it.
I understand that this may not have the same outcome for everyone; however: I have found that intermittent fasting (IF) on a regular basis- and voracious, cold-water swimming has helped me immensely. Thinking of all of you. Thank you, doctor- for your stellar content.
Thank you for your video. That was the best explanation of my MS pain I have ever had. I new most of that from 30 years of pain , but no one from pain clinics has that understding.
Thank you Aaron, For taking your time for Making these vids, Between Work, Family, and campaigning to bring awareness. Where do you find the time to sleep : ) A BIG Thank you for all your work
Hi, today I got my diagnosis RRMS, I'm not new to the condition,my mum had MS, Back in the 80s. so I now have experience from both sides, growing up with someone with MS, to living with the condition. I have expanded on you soldiers know self analogy, My fatigue analogy for the younger generation, Is an old laptop battery, 99% to start with, 10 minutes later 5% I'm 53 white male, been living with MS for about 12 years, other conditions complicated diagnosis, and only mild symptoms up until this relapse. i do have one question. can MS trigger or make worse tourettes specifically Coprolalia. PS your the second person I have told about my diagnosis, and i would like you to know, you have been a great help to me, i have recommended you to my MS nurse and to anyone who doesn't know what MS is. people love a bit of utube.
Oh my stars! This is the first time I've heard someone say this- at 2:44 optic neuritis! It feels like my eyeballs are hanging by strings, and the strings hurt terribly. I'm a registered nurse and I can't explain it better! Thank you! Now, on with the show....
I stumbled upon your video from a MS group from Facebook, so glad I found you! Excited to share with friends and family to share the education you provide 🙂 I was diagnosed at the age of 19.
Dr. Aaron Thank you so much for this latest video. It was a good refresher of the types of pain so I can take these back to my Neurologist to better explain how I feel. I always love your videos and the way you explain things. Thank you so much for making these available to those of us who don't have the privilege of being under your care.
You're very welcome! My goal with this channel is to educate, energize and empower folks impacted by MS. You're taking the time to comment means a lot, thank you for participating in our village!
A fantastic video. My daughter has been “pushing thru” her MS pain since she was diagnosed 10 years ago. She is now 40 years old and has been given 4 different drugs over that time period. The last drug Gylenia has kept the lesions at bay but there is always MS side effects that are not improved by the drug itself. It’s a life changing disease and I am so pleased to have your break down of the various MS pain and possible treatments. Please keep posting your videos and thank you so much for your care and expertise.
My father (actually very healthy and still alive, 85) each time he forgot something and had to go back to get it, used to say: "Sclerosis does not hurt, it just makes one run a lot". As I have MS now, I know that MS does hurt a lot, while running is not a common thing. :-(
Hi Dr Aaron love watching you all the way from Australia, very interesting segments on MS having had MS for many years it’s wonderful to understand it all in plan English. Thanks again
Thankyou for doing this one Aaron. It was very helpful! The ms hug was one of my very first symptoms 7 years ago. I wasn't officially diagnosed until 3 years ago,go figure. I've been waiting for this for a couple of days and as always you did a great job explaining everything. So much appreciated my friend.
Join the club. I also arrived at the ER with MS hug in 2009, and incredibly, was not diagnosed until 2018. I try to imagine that God made everyone deaf, dumb and blind until Ocravus was authorized for use in Israel. Best greetings from Jerusalem! 🌸 💖
Doctor still to this day I refer people back to you in groups when they comment something along the lines " I'm feeling ___ am I crazy or is it real? " Thank you for your YEARS of service
Also speaking of eyes right before I was diagnosed I actually lost vision in both eyes two days in a row for about 30 to 40 seconds I wonder if you seen this before?😔
I have it too but has never been able to explain it for Dr:s,I called it epileptic jumps or cramps. Like being electrocuted. I,ve had this since I was 19 now I am 62. And a lot of the other symptoms. I will never get a diagnosis because Dr;s here do not have a clue.And it´s getting worse.Hard to walk and move my arms are "gone". And my bladder.
No diagnosis. But I feel as though this is extremely important. I've had pretty much every type of pain listed here in the past decade, on an off as well as other symptoms but mostly pain. I've been treated like I'm bonkers by almost every gp I've seen and refused specialist referrals over and over. I saw a new gp who looked at my history and was absolutely gobsmacked that I've not yet been referred for an mri, which she did immediately. I'm not sure a diagnosis of ms would be at all welcome, however some answers would be nice. If all doctors understood the probability of ms causing all these different types of pain and sensations, then maybe people like myself with pain that's both transient and disabling, might be checked out sooner. Over a decade of debilitating symptoms followed by recovery, over and over and this is the first time someone thought it could be MS.
Thank you for explaining the MS hug, that's the painful thing I've been experiencing now for the last 16weeks, but it's in my lower back and hugging around to my hips, it's burning/tight and with inflammation that's going up and down in severity, it's also effecting my hips/knees because I've had to change my gait, I've got so much going on from my waist down, swelling of limbs,one foot is half numb, hoping this neurologist appointment hurrys up, to much going on.
Hi did you get a diagnosis as I see your comment is from 2 years ago. At the time of the symptoms you presented explained in your comment, where did your lesions appear? Thanks
I had the pain down my back and legs back in my early 20's,(I was DX at 40yo in 2013, although my neurologist is certain that I've had MS since I was 16) along with the 'hug'. I had optic neuritis when I was 32ish, but put it down to stress.
Many of these symptoms describe what my 32 year old son was experiencing. Especially the SPASTIC HEMI-PARETIC GAIT, his severe spasms, pain and so much more. He was always in pain and would say no one understood how much pain he was in. They had diagnosed him with dystonia because of the twisting pain and spasms but I know it was so much more. He passed away 18 months ago. Absolutely heartbreaking and devastating to watch him suffer so much. 💔My grandmother passed from MS at 48. Now they’re together. 🙏🤍🕊 Thank you for bringing light and awareness to what many don’t know. God bless you. 🙏
I'm so sorry about your Son and Grandmother, but we should be jealous as they are walking with God now renewed/pain free. God Bless You and your Family
Thanks Dr. B, dysesthesia causes my left leg to feel tight, like I am wearing a compression sock, and when I exercise I get a burning sensation on the bottom of my foot.. almost like I have blisters. I appreciate you sharing your insight and some possible treatments.
Aaron....you are brilliant. At explaining this disease/condition. You make it simple and easy to understand. Thankyou sooooo much. One question. Doctors dont seem to agree. Is MS caused by an over active immune system or an under active system? Your thoughts would be much appreciated. Thankyou.
Hi, I am 54 and now have secondary MS. My first sign was at 21, then 27 then 35, with no residual effect. Diagnosed at 35 , 2 years after a life stressful event. Then at 37 another major life stressful event and I have been slowly progressing since. I use a walker in home and scooter outside. I have been on low dose Naltrexone for over 12 years. The only pain I have is sacroiliac problems from walking.
Great video, so much good information, i will definitely be re-watching this video a few times to make sure I did not miss anything. Thank you for taking the time to put this information out there.
Thank you so much, I recently found out about you 3 days ago through Facebook, had my first symptoms in 2018 and was finally diagnosed in 2021,much is not being done for me right now by my doctor,but in just 3 days I have learnt a lot from you God bless you
Thanks doc. Hate ms. A lot of these I suffer with and tears started in my eyes because it’s so validating to hear my silent troubles coming from someone else.
Dr. Boster, I have had MS for 25 years. A few years ago I was diagnosed as SPMS. I am 63 and quite disabled. I have not had any MS treatment for over 10 years. My neurologist and GO say there is nothing more they can do. Would me arranging a teleappointment with you be advantageous? I live in the UK. Your talks have helped me in understanding my situation but I'm getting worse and that is worrying.
My boyfriend was diagnosed with MS in 1997 and has gone untreated to this day. He is 53 now. I've seen him quickly progress in the past 9 years. A couple of years ago he was turned by a supposedly good MS specialist near Indianapolis because they saw him pick up a piece of paper and told him he was fine. This is no joke. I went from seeing him very active to where he can hardly move cause he's so stiff. He goes through "attacks" everyday and rarely has a descent day without pain and fatigue. He describes the fatigue like the flu but hundred times worse. During these attacks he goes through extreme fatigue, dizziness and weakness. Ive seen him scream in pain followed by paralysis in both legs and arms. I often watch him go through seizures or a rhymn nodding. They come on without warning. Is there anything I can do for him?
Thank you so much for this video Dr. Bostr. People that don't suffer from MS really have no clue Bout how painful this illness can be. Family an friends of perso s suffering from MS really need to see your videos, especially this one. I plan on sharing this. Thank you once again you are a GOD send here on UA-cam. I really appreciate you!!!!
Thanks for info, I’ve been having a hard time explaining what I feel. Passing this along to friends/family and hopefully will help understand a bit more....infusion time 👋🏼🧡💪🏽🧡
That's weird because right now I'm feeling like my left foot and ankle is being shocked! I don't think I've felt this before. 🤯 I had spasticity when I was first diagnosed but thank God I was put on baclofen and it made it go away permanently. thank you Dr B for another informative great video keep them coming my friend
Thanks for the video. I like the candle background. Glossopharyngeal, occipital and trigeminal neuralgia are miserable. It’s hard to have a good day when it hurts to smile.
I am so glad i stumbled on to your channel Dr. boster! i was diagnosed with MS in 2016. i have some ot rhe things you are mentioning in this video. i have subscribed to your channel and look forward to watching more of them. God bless you!
MS runs deep on my side of the family. I had a cousin commit suicide and I had an uncle lose a lot of weight and then died. I take MS very seriously. Now I'm dealing with it again with my boyfriend!
In my experience with spasticity, not only cramps can be painful. For example, with spasms if I'm in a situation where I can't let the limb move freely, that can be very painful. MRIs were horrible for me for that reason. Thankfully I'm in a higher dosage of Baclofen and it's not that bad anymore. Also having a spasm in your arm while you are carring something and fighting to not drop it. That hurts a lot too. And with the stiffness, at least for me, everytime I start to move it feels like somethig is ripping.
I was diagnosed with MS in 1991 when I was 18. I was put on Tizinidine (Zanaflex) when it was still new as Baclofen stopped working. I still use it, but am on a high dose. It would reduce the amount of spasms that I get, but not completely stop then. I have found that taking CBD oil also helps and since taking it (with Zanaflex) I have had very few spasms.
I have not been diagnosed with anything but here searching what could be wrong ! My feet feel like they are being sqeezed and possibly broken ,spasms and cramps are unbearable pins and needles and swelling it feels like my feet are on metal rocks when on a pillow so much and over sensitivity and stiffness the pain is too much.The foot specialist says my nerves are damaged and I need a vascular Dr.that it is from poor circulation .I've had wierd symptoms that come on strong then are gone after a few days before this and wondering if it's all related .Ive been struggling at work lately because I get so exhausted then stressed and feel like I'm haveing a breakdown mixed with dementia and I just keep it inward fighting to concentrate and keep it together! I wake nauseous my neck and a spot on my back hurts and haveing migrains .Is there anyone else with such craziness ?How can I feel so bad then on good days I feel very good then think it's all in my head.Right now I feel something is very wrong.Sorry so awkward and long .
Shirley Morales, you are not alone, nor are you crazy. I too experience all that you mentioned. 2 years ago I told my Doctor that I might have fibromyalgia, he said NO and does not believe in fibromyalgia. He diagnosed me with peripheral neuropathy in both legs and feet. Well I went back to him a week ago cause I was having electrical shock leg flare-ups and numbness in my legs, feet, toes arms, hands and fingers. He has now diagnosed me with bursitis in both hips, carpal tunnel in both wrists. I mentioned all my other experiences and asked if I could have MS? He said NO you don't have MS, cause MS isn't painful, it only causes numbness. So he then ordered me a full MRI of the spine. And he wouldn't refer me to a neurologist. So I got my own appt with a neurologist which I see next Monday, May 15th. I see my doctor tomorrow May 12th to go over my spinal MRI. Which I happen to get the paperwork on it myself and I do have lesions on my spine. Can't wait to hear what he has to say about the MRI tomorrow. If he tells me he sees nothing, I am going to laugh and find myself another doctor, cause this blurry vision, fatigue, all over pain, depression, ect. It's killing me. I know for a fact I have MS. But doctor's just don't want to treat the real problem. They just treat symptoms and I'm tired of it!!😢
@@mchantris I am in the exact same boat as you with similar symptoms. 20 years running to Dr’a with chronic pain weakness numbness fatigue and now severe debilitation before a Dr would give me an MRI because I was physically fit and active I was not treated by a single Dr that believed I had MS! Then I started to lose that ability to move my legs & arms and all functioning in my brain, eyes, voice & speech, bowels, bladder & legs. The brain fog became brain smudge. The pain has become daily in both legs. Finally a diagnosis after MRI! What a nightmare. No one believed me when I told then these symptoms. Treated as a psychiatric hypochondriac!
I have experienced Lhermittes, for decades, until recently I hadn't realised it wasn't a normal human experience to have these, I'm still undiagnosed and still waiting for a appointment with a neurologist,I guess I should mention this to them.
MS hug really hurts me, I also have had the trigeminal neuropathy, and my spine hurts to a 10, I have the arm, hand snd foot pain, but the eorst is the spasms in my legs and feet. Thank you for explaining all of this. I also have itching,vfor no apparent reason.
You are an excellent teacher. Great doctor. I don't have MS but serious medical conditions interest me. My dad got very ill working as a tool & dye machinist. So when I born, he started regular visits to the hospital. Back in the late 50s, early 60s, nobody really diagnosed my dad properly. Always sickly he couldn't be the dad he wanted to be and I remember him always telling his 3 kids, "You can have all the money in the world, but it means very little when you have a serious chronic illness." Americans have more than enough problems with our medical for-profit industry. Anything we can do to help ourselves like educating ourselves can really help. So here I am. Thanks, Doc! Great video. ❤
Dr. Boster you are the Best. Thnx for explaining me😊 gonna have my family watch this so I don't have to try an explain my pains. See you later this month
Stress as of now in care of another, sets off a good portion of realm of MS pain. Fun of times of the squeeze of the chest & elbow joint(some days it's left, right, both{bad day}, or all three areas {down for the count; pain medication, cold pack, laying in bed seems to help in the short term but one cannot gain rest for as with me it returns} like an anaconda wrapped around.
Hi! I came across your video’s randomly on my main page and I have questions. I am 38 and was diagnosed with Young onset Parkinson’s disease, fibromyalgia, osteoarthritis, digestive disc disease, chronic pain, chronic fatigue and migraines. After watching you I am now wondering if MS “fits” better. Is MS commonly misdiagnosed as Parkinson’s disease? Thank you from NJ
I had optic neuritis with double vision but it wasn’t painful. I also live with chronic pain in my leg muscles which wasn’t really covered in this video. Although I’m being treated for MS with Ocrevus, my MRI is not typical for MS and was thought to be Neurosarcoidosis for many years. Someone needs to do a video on the MS diagnosis journey!
I believe I have almost all these symptoms at an early stage (9 months into RRMS diagnosis): spasticity, lermithe, but my main pain is in my back, which diminishes on its own by doing stretching exercises. Thank you very much for the information.
Ironic or fortuitous, I'm not sure. However, I have an appointment with the pain doctor at my neurologist's office today. Thank you, for the topics of conversation.
This video is very informative, thank you very much! Doctor, is there a way to reverse the Myelin damage? How do I repair the damaged Myelins in my nervous system?
If I use your systems as a tick book list I am pretty sure I get close to half the symptoms. If we apply quantum physics to computers results in quantum AI which use analysing medicine on a atomic scale. After all we are made of atoms. If that's the case we can an analyse what's going on a atomic scale If we are made of atoms by definition quantum computing can customise a diet, medication and treatment by using quantum mechanics to customise individuals DNA such as MS,
I have lhermittes phenomenon. I have trigeminal neuralgia. I have the paresthesia, the aladoynia, occasionally I have optical neuritis. And constantly dealing with the ms hug feeling. All of this started around 2018. In 2019 both of my lungs collapsed. I had to have thoracic surgeries on both with sections of both lungs removed. Then 12 more lung collapses after those lung surgeries and then in 2020 not even 6 months later caught covid and it gave me double pneumonia which they had nothing they could do for me. I was hospitalized and thankfully my immune system fought it off after being very sick. I go into the emergency room about every 6 weeks thinking I must be having a heart attack with severe chest pain and always get sent home and told they can't find anything wrong and that it must be nerve damage. I've had MRI and go to a neurologist who sent me to have a few test done and then she started injecting me with botox in my skull for migraine treatments and put me on depression medication to " treat my trigeminal neuralgia " and that's it. She thinks I'm just fine. I've been in constant excruciating pain since 2019. I haven't been able to work. Or stand for long periods of time. If anything touches my skin it's like needles and sometimes like being burned by a fire. And she says I'm just fine.
Dear Dr Boster, thanks so much for your work and these videos. None of my doctors (two different Neurologists and one GP) understand that my MS causes itchiness. At night it drives me nuts and is a cause of insomnia, which in itself is debilitating. I’ve been taking anti-histamines which help, but I will seriously consider some of the tricyclic anti-depressants that you mention. I’ll chat about this in my next visit to the doc. Again, thanks so much, your videos really help me understand my MS and your positivity helps boost my confidence that I’m going to be OK.
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Really really dr we need translator videos for the people’s or family’s cannot understanding English ☹️ god bless u Dr and really thanks for all
That would be awesome!
Howdy! I would welcome any assistance here. (I believe that if someone sends me a file with the subtitles, then I can upload them into UA-cam for a given video). Thank you for wanting to help my videos reach as many folks impacted by MS, regardless as to what language they speak! #WeHaveMS and are truly #StrongerTogether
Aaron Boster MD we all should thank u Doctor for what u always doing for helping people like us and for always trying explain for those who need and btw u are a famous here special in the Arab countries
That's amazing. I've presented in Dubai a few years back and would LOVE to revisit the Middle East someday. (Wonder if we could encourage the local societies to bring me for a lecture tour!)
Aaron Boster MD I can send to you your videos subtitles in Spanish and Portuguese :)
I am a nurse and I’ve had MS >25 years. I am going to ask my husband and children to watch this video. Your explanation of the various forms of MS pain is spot on. Thank you for putting into words the pain symptoms that I have been trying to convey to others for years. Blessings to you.
Agreed girl xx
Nobody seems to understand the feelings....😢
My 2 kids are the only ones who empathize with me...but nobody takes kids seriously 😢
They have lupus n mystenia Gravis...different kinds of pain ....
MS. Is a horrible disease but there is always hope
I'm a nurse too and was diagnosed about 3.5 years ago. I work in critical care.
@@LKDelahunty hi please can you contact me you understand more as a nurse
Unfortunately, there are still doctors who say MS isn't painful, and explaining our pain to them or other people is hard. So thank you for this great video, and everything you do for us, doctor :)
Well said!
Monika Gombkotoová hey there, how are you? The fact that some doctors stil believe this is mind blowing to me. Does your doctor still believe this? If so please, please, please find a new doctor. I hope you have other options
Finally shits changed and they can't deny it anymore.. like how can someone who doesn't have MS tell me I'm not in pain..it's ridiculous, no one would never tell someone who has cancer isn't in pain. Who's nerves have been cut wasn't in pain.
It took me a long ass time and a bunch of drs to finally get proper pain medications. All nerve pain meds send me absolutely loopy like ended up trying to unalive myself multiple times.
My last neurologist told me M doesn't cause pain and treated me like I was a fool....needless to say I quit going to that doctor...
I completely understand you
This is hands down my favorite video EVER related to MS. This should be shown to every new MS patient. I never realized itchy hands was relayed to MS so I never told anyone! So much of this now finally makes sense!!!!
Every MS patient needs to watch Dr. B. Actually, all neurologists need to take a cue from his approach.
@@meloneyparker it's pretty sad that my neurologist never heard of him but my nurse practitioner has. How screwed up is that?
Was my first symptom followed by numbness and tingling. Was lucky enough to have a neurologist who noticed me itching and put it together.
My right leg (shin & foot) is numb yet I feel it's driving me nuts with itching.
Is this part of MS too?
I had a ER visit in Jan, head of the ER told me to my face that it does not cause pain, I almost left and that would have not worked out well as my lactic acid was dangerously high. The education needs to change, thank you for doing these videos
I moved countries recently and saw a very well regarded neurologist who turned around and said pain is rare in MS and it's all in my head as I must be a very sensitive person 🙈 Let's just say I didn't go back to see that consultant again!!
I can relate to that!
👍🏾
Are you a woman? I have been told by a female doctor and I've experienced. I think myself that when you're a woman you're symptoms or severity of them are often dismissed. Every doctor knows that we all have differing number of pain receptors some have more than others which makes them more sensitive to pain. The fact that they would say that makes me angry
I do take pain medication for the pain I do have, and its amazingly helpful. I don't think taking that option completely out of the picture is right because everyone is different and reacts differently to certain meds. Before I was put on pain medication, I had no quality of life. I did everything asked of me- high dose IV steroids, multiple injections, multiple medications (and some that I'm still on). I have no insurance and went into serious debt trying one new treatment after another. I no longer own my own home. I live with my daughter and her husband now. Ultimately, pain medication was one of the best decisions for me, but I know in today's opioidphobic environment, I'm truly blessed to have such good relief. I sincerely hope everyone can find a path that leads to less pain and more movement.
What pain meds did you take?
I too take pain meds!! Percocet, Gabapentin, and a muscle relaxer called Baclofin!!
You sound like my twin. Good to know that I am not alone
yes, none of those medications helped for pain with MS, only actual pain medication. I love when doctors feel forced yo have to go through the litany of all other options and make the patient endure them when they know, and many patients know (they speak to each other) that they just don't treat pain effectively and come with slew of side effects.
You are the best neurologist EVER. I have learned more from you than I have from my own doc.
Thank you but I'm just sharing medical information to help educate folks impacted by MS.
@@AaronBosterMD We appreciate it so much. I was terrified when I was first diagnosed. My doc was good about meds but didn't help much with the "nuts and bolts" of this disease. I felt so lost and overwhelmed. I prayed to God for help and found your channel. 😅
Hi there Dr I presented to the er 4 Times with Ms hugs before being diagnosed with MS and was really upset when they said I had munchausens!!!! . So I understand that these pains can be confusing, but I think young doctors should be more educated about pain syndromes in different illness.
PS I did receive a full apology from my NHS Trust. I am now being treated by a great neurologist a Dr Gabe De Luca here in the UK.
Dr Boster my wife was diagnosed a couple years ago and she isn’t receiving very good care here in PA, we fear her ms is progressing and they aren’t even taking it seriously and who knows how much of her life is being wasted by their inaction and inability? Do you see out of state patients? Is there someone we can talk to to find out if it’s even a possibility she could see you? She loves watching your videos you give her hope! Ms sucks man! Thankful for people like you who make such a difference in people’s lives.
Tony, I am from Pa. can you request she be seen by a MS specialist/ MS neurologist? They do have them in a few larger hospitals across the state. MS Focus also has transportation assistance grants for neurologist appointments. God bless your wife and you her #1 supporter
Tony, I posted a reply to the user named: hamcki. Scroll up and read his question. I made a recommendation that could possibly work for your wife. If there aren’t an adequate amount of neurologists who specialize in MS, then look at another state and try to find a practice that has more than two MS specialists. Sometimes the practice can be over loaded and the wait for a follow-up appointment is very long. Please search for my reply further up. My best wishes to you & and your wife.🍀
Yes he does. Very often.
Cannabis has helped me immensely, I hope you have access. I have all of this, but two. Good luck to you. 😢
Agree
It's helped me, too. My doctor includes it in my pain management.
Its horribly expensive. How do unwell people with limited resources afford it?
Cannabis is gods wonder drug. I have nerve damage and it helps alot. I also have ptsd and lack of appetite and cannabis helps me eat. Everyone involved with cannabis prohibition will hang their head in shame in the future. Thc and CBd are wonderful chemicals
I do not have MS but contininue to learn from Dr. Boster's videos, for my cousin with MS. Thanks for another very informative video.
Thank you for taking the time to look into MS,
I have Recommended Arron Boster to friends, not even one has looked, people see what they want to see. thank you
You are so welcome!
@@kitshrapnel8548 I agree I think he is wonderful. I WISH he was my doc.
Your cousin is blessed to have you care so much! ❤
Best video to calm down someone who is just afraid of having ms
Sadly it didn’t calm me down
I have 7 out of the 11 symptoms, so I guess I got my answer
Dr Aaron, I appreciate this clarity on the various pains of MS. I have had bilateral leg pain constantly on a daily basis. In my 20’s the first unusual pain was an episode of trigeminal neuralgia treated with Baclofen then both arms with numbness tingling to be told that was carpal tunnel. I have had the electric shocks with turning the head side to side not much with extension or flexi on. Your teaching on this top needs to be submitted to Journal of Medicine and include a copy to be submitted to the MayoClinic maybe they could start to rewrite MS symptoms including pain to educate Dr’s that are not informed.
I am based in UK.
DRs have asked me if I experience pain. The definition of pain with them and with most of the public is not clear and that makes things confusing. Thanks for letting me understand that my spasticity can be defined as pain. This helps with my interaction with the doctors here.
I ran into a young ER neurologist, who believed MS doesn’t cause pain the first time I had to go to the ER for a relapse because I had a very long wait to get into my new neurologist when I moved to a new state. I was shocked when he said “MS actually doesn’t cause pain.” I just told him “let’s move on,” but almost immediately afterwards I wished I had asked him why the National MS Society has a web page on pain if MS doesn’t cause pain. Thank you for making these videos. They are very helpful to keep informed about types of pain other people with MS may have so I can be a good advocate for others too. 🧡🎗🧡
I agree eleehaley!!!!
IF MS doesn’t caused any pain so why docs recommends physical therapy and PAIN MANAGEMENT or pain meds. Is like saying 😒 DUH!!!!!!!!!!!!!🙄
Great video Dr Boster.
You mention that trigeminal neuralgia is one of the most intense pains that a human being can experience. I've been hospitalised with it, together with the MS hug and also what was far more painful than my particular experience of trigeminal neuralgia - muscle spasms in lower back, which were believed to be due to an old L5-S1 disc injury and later diagnosed as cauda equina syndrome. Since being diagnosed with MS, I begun to wonder how much MS impacts the chronic pain I suffer from the disc injury.
In other videos you advocate exercise, another great piece of advice. I've found that while it may sometimes be painful to move, exercising the muscles can often prevent the pain becoming worse.
Thanks for your awesome work!
Of course, we feel pain!
In different places in different way.
You really explained it well!
Thank you for understanding us Dr. Boster.
The MS Hug can be very confusing. Very painful . But I have learned and utilized a way that you can calm down the MS Hug. You can curl your fingers under your rib cage and massage your diaphragm and the muscles. It can be sensitive so you may need to start off very gently.
TY for the pro tip Scotty!
Yoga breathing helps me.
When I was first diagnosed, I was trying to describe my symptoms. I didn't know what was going on. Told my Neuro it felt like I was wearing a girdle or corset that was three sizes to small or like I was being squeezed too tightly. He said he'd never heard of that symptom and it wasn't MS related. I was so confused because I had mentioned it to my PCP during a physical and she said it was MS related. Happened for a few months years ago, and hasn't happened since.
@@soniam372 I described the MS hug very similar to yours and it also felt like I was a tree trunk, hard to bend comfortably
My son had that and they told him at the hospital MS doesn't cause pain. He got a muscle relaxer from someone and said he felt so much better. I'm tired of these damn Drs. making people suffer because they're worried about getting sued. They should get sued for not taking care of their patients properly.
I describe and compare the ms hug to being squeezed by a boa constrictor while trying to breathe through a coffee stir straw.
Good morning guys! Just wanted to say that it’s great to have such another wonderful big family here with Boster and you guys! Have a great days everyone. Try to Keep our heads up and keep moving forward
Good morning Scotty! Top of the day to you good Sir! #StrongerTogether
Yes, my son kept complaining about neck pain and stiff necks. We found out he had MS from a MRI. He had a long lession on his neck where he had pain and many on his brain. He also lost vision in 1 eye before he was diagnosed.
Honestly, I started smoking cannabis after the first and second time I went to the ER.
I was diagnosed and I never stopped.
Not only does it help with pain, but also appetite and stability. My tremors and spasms astonishingly
This is a really great video, so informative. I love your videos, I find them a real help. I think I may share this with my family. I still don't think some folk believe me just how painful MS can be. Perhaps I'm just good at hiding it. And my the way, I wish you were my doctor. Took me 10 years to get my GP to take me seriously and eventually get diagnosed.
I get random stabbing zings of pain in my legs, arms and torso.
Thank you Doc! This is incredibly needed to be shared with our families🤓
Thank you so much for making this video and for understanding that MS causes pain. I have had trouble in the past explaining to my job about me being in pain. Thankfully, now I have an understanding boss but it is hard explaining when it is invisible. It makes you feel like you are crazy or making it all up... still thank you so much for this! Have a blessed day!
Glad it was helpful!
This is a new journey for me and I am grateful that I found your video.
I am having crippling pain from this disease and it is frustrating when no one seems to understand. I heard things like "push through it, your getting old, I'm pretty soar today as well, it's in your head" along with many other explanations of what my issue is.
Unless you have spent the majority of your time- over a 5 year period- in the fetal position, then I feel confident in saying you don't get it.
I understand that this may not have the same outcome for everyone; however: I have found that intermittent fasting (IF) on a regular basis- and voracious, cold-water swimming has helped me immensely. Thinking of all of you.
Thank you, doctor- for your stellar content.
Fasting has helped me too! Also I take ice baths. Does help I agree!
Thank you so much for such a comprehensive video. It helps us understand better that all these weird sensations are caused by MS.
Thank you for your video. That was the best explanation of my MS pain I have ever had. I new most of that from 30 years of pain , but no one from pain clinics has that understding.
Thank you Aaron, For taking your time for Making these vids,
Between Work, Family, and campaigning to bring awareness.
Where do you find the time to sleep : )
A BIG Thank you for all your work
Much appreciated! Thank you for recognizing. That means a lot Kit, thank you!
Hi, today I got my diagnosis RRMS, I'm not new to the condition,my mum had MS, Back in the 80s. so I now have experience from both sides, growing up with someone with MS, to living with the condition.
I have expanded on you soldiers know self analogy,
My fatigue analogy for the younger generation, Is an old laptop battery, 99% to start with, 10 minutes later 5% I'm 53 white male, been living with MS for about 12 years, other conditions complicated diagnosis, and only mild symptoms up until this relapse.
i do have one question.
can MS trigger or make worse tourettes specifically Coprolalia.
PS your the second person I have told about my diagnosis,
and i would like you to know, you have been a great help to me, i have recommended you to my MS nurse and to anyone who doesn't know what MS is. people love a bit of utube.
I have Primary Progressive ms and I've learnt such a lot from you. My age is 78 and i'm in a wheelchair full time. Good luck everyone.
Thank you! You too!
Oh my stars! This is the first time I've heard someone say this- at 2:44 optic neuritis! It feels like my eyeballs are hanging by strings, and the strings hurt terribly. I'm a registered nurse and I can't explain it better! Thank you!
Now, on with the show....
I stumbled upon your video from a MS group from Facebook, so glad I found you! Excited to share with friends and family to share the education you provide 🙂 I was diagnosed at the age of 19.
Dr. Aaron Thank you so much for this latest video. It was a good refresher of the types of pain so I can take these back to my Neurologist to better explain how I feel. I always love your videos and the way you explain things. Thank you so much for making these available to those of us who don't have the privilege of being under your care.
You're very welcome! My goal with this channel is to educate, energize and empower folks impacted by MS. You're taking the time to comment means a lot, thank you for participating in our village!
A fantastic video. My daughter has been “pushing thru” her MS pain since she was diagnosed 10 years ago. She is now 40 years old and has been given 4 different drugs over that time period. The last drug Gylenia has kept the lesions at bay but there is always MS side effects that are not improved by the drug itself. It’s a life changing disease and I am so pleased to have your break down of the various MS pain and possible treatments. Please keep posting your videos and thank you so much for your care and expertise.
My father (actually very healthy and still alive, 85) each time he forgot something and had to go back to get it, used to say: "Sclerosis does not hurt, it just makes one run a lot". As I have MS now, I know that MS does hurt a lot, while running is not a common thing. :-(
agreed Martin!
If only ppl would realize " 😕 not everyones MS experiences are alike"
How is MS diagnosed
Hi Dr Aaron love watching you all the way from Australia, very interesting segments on MS having had MS for many years it’s wonderful to understand it all in plan English.
Thanks again
Thanks for sharing! #StrongerTogether
Thankyou for doing this one Aaron. It was very helpful! The ms hug was one of my very first symptoms 7 years ago. I wasn't officially diagnosed until 3 years ago,go figure. I've been waiting for this for a couple of days and as always you did a great job explaining everything. So much appreciated my friend.
Join the club. I also arrived at the ER with MS hug in 2009, and incredibly, was not diagnosed until 2018. I try to imagine that God made everyone deaf, dumb and blind until Ocravus was authorized for use in Israel. Best greetings from Jerusalem! 🌸 💖
@@Jerusalem_Warrior Best wishes to you also. May God be with all of us.
Doctor still to this day I refer people back to you in groups when they comment something along the lines " I'm feeling ___ am I crazy or is it real? " Thank you for your YEARS of service
I have the electric shock it shoots up the back of my neck into the scull it brings me to my knees 😭 your the best!
Oh no!
Also speaking of eyes right before I was diagnosed I actually lost vision in both eyes two days in a row for about 30 to 40 seconds I wonder if you seen this before?😔
Had that once in 2018 I don't want it agian
I have it too but has never been able to explain it for Dr:s,I called it epileptic jumps or cramps. Like being electrocuted. I,ve had this since I was 19 now I am 62. And a lot of the other symptoms. I will never get a diagnosis because Dr;s here do not have a clue.And it´s getting worse.Hard to walk and move my arms are "gone". And my bladder.
No diagnosis. But I feel as though this is extremely important. I've had pretty much every type of pain listed here in the past decade, on an off as well as other symptoms but mostly pain. I've been treated like I'm bonkers by almost every gp I've seen and refused specialist referrals over and over.
I saw a new gp who looked at my history and was absolutely gobsmacked that I've not yet been referred for an mri, which she did immediately. I'm not sure a diagnosis of ms would be at all welcome, however some answers would be nice. If all doctors understood the probability of ms causing all these different types of pain and sensations, then maybe people like myself with pain that's both transient and disabling, might be checked out sooner. Over a decade of debilitating symptoms followed by recovery, over and over and this is the first time someone thought it could be MS.
Good morning Dr. Boster and everyone.
MS pain is real and the doc of the day has solutions!!
I wish everyone an awesome week.
Howdy John! Hope you and yours are healthy and well!
Your professor was on some bulls$*t. Im glad your your own thinking man.
Thank you for explaining the MS hug, that's the painful thing I've been experiencing now for the last 16weeks, but it's in my lower back and hugging around to my hips, it's burning/tight and with inflammation that's going up and down in severity, it's also effecting my hips/knees because I've had to change my gait, I've got so much going on from my waist down, swelling of limbs,one foot is half numb, hoping this neurologist appointment hurrys up, to much going on.
You are so welcome
Hi did you get a diagnosis as I see your comment is from 2 years ago. At the time of the symptoms you presented explained in your comment, where did your lesions appear? Thanks
I had the pain down my back and legs back in my early 20's,(I was DX at 40yo in 2013, although my neurologist is certain that I've had MS since I was 16) along with the 'hug'. I had optic neuritis when I was 32ish, but put it down to stress.
Many of these symptoms describe what my 32 year old son was experiencing. Especially the SPASTIC HEMI-PARETIC GAIT, his severe spasms, pain and so much more. He was always in pain and would say no one understood how much pain he was in. They had diagnosed him with dystonia because of the twisting pain and spasms but I know it
was so much more. He passed away 18 months ago. Absolutely heartbreaking and devastating to watch him suffer so much. 💔My grandmother passed from MS at 48. Now they’re together. 🙏🤍🕊
Thank you for bringing light and awareness to what many don’t know. God bless you. 🙏
I'm so sorry about your Son and Grandmother, but we should be jealous as they are walking with God now renewed/pain free. God Bless You and your Family
Thanks Dr. B, dysesthesia causes my left leg to feel tight, like I am wearing a compression sock, and when I exercise I get a burning sensation on the bottom of my foot.. almost like I have blisters. I appreciate you sharing your insight and some possible treatments.
You're welcome! #WeHaveMS
Been waiting for this all morning (Norway🇧🇻) my most bottersome symptom of my MS is pain, every day, all day😵🥳😜💪
#StrongerTogether
I enjoy these videos each & every one! I just recently was diagnosed with MS 🤔.
I'm an medical student & suffering from Ms thanks your videos are very helpful
Aaron....you are brilliant. At explaining this disease/condition. You make it simple and easy to understand. Thankyou sooooo much.
One question. Doctors dont seem to agree.
Is MS caused by an over active immune system or an under active system? Your thoughts would be much appreciated. Thankyou.
Hi, I am 54 and now have secondary MS. My first sign was at 21, then 27 then 35, with no residual effect. Diagnosed at 35 , 2 years after a life stressful event. Then at 37 another major life stressful event and I have been slowly progressing since. I use a walker in home and scooter outside. I have been on low dose Naltrexone for over 12 years. The only pain I have is sacroiliac problems from walking.
Great video, so much good information, i will definitely be re-watching this video a few times to make sure I did not miss anything. Thank you for taking the time to put this information out there.
Glad it was helpful!
You Sir are pretty dang Awesome. TY
Thank you so much, I recently found out about you 3 days ago through Facebook, had my first symptoms in 2018 and was finally diagnosed in 2021,much is not being done for me right now by my doctor,but in just 3 days I have learnt a lot from you God bless you
Thanks doc. Hate ms. A lot of these I suffer with and tears started in my eyes because it’s so validating to hear my silent troubles coming from someone else.
Dr. Boster, I have had MS for 25 years. A few years ago I was diagnosed as SPMS. I am 63 and quite disabled. I have not had any MS treatment for over 10 years. My neurologist and GO say there is nothing more they can do. Would me arranging a teleappointment with you be advantageous? I live in the UK.
Your talks have helped me in understanding my situation but I'm getting worse and that is worrying.
My boyfriend was diagnosed with MS in 1997 and has gone untreated to this day. He is 53 now. I've seen him quickly progress in the past 9 years. A couple of years ago he was turned by a supposedly good MS specialist near Indianapolis because they saw him pick up a piece of paper and told him he was fine. This is no joke. I went from seeing him very active to where he can hardly move cause he's so stiff. He goes through "attacks" everyday and rarely has a descent day without pain and fatigue. He describes the fatigue like the flu but hundred times worse. During these attacks he goes through extreme fatigue, dizziness and weakness. Ive seen him scream in pain followed by paralysis in both legs and arms. I often watch him go through seizures or a rhymn nodding. They come on without warning. Is there anything I can do for him?
Thank you so much for this video Dr. Bostr. People that don't suffer from MS really have no clue Bout how painful this illness can be. Family an friends of perso s suffering from MS really need to see your videos, especially this one. I plan on sharing this. Thank you once again you are a GOD send here on UA-cam. I really appreciate you!!!!
Please could you tell us if you have written any books on pain and PPMS? Thank you so much for the time you have spent trying to help others.
Thanks for info, I’ve been having a hard time explaining what I feel. Passing this along to friends/family and hopefully will help understand a bit more....infusion time 👋🏼🧡💪🏽🧡
Glad it was helpful!
Good morning from North Texas!!! Thanks for posting this topic. Many blessings to you, your family & staff. 😊
Thank you. Health and Happiness to your and yours Rope4 C!
That's weird because right now I'm feeling like my left foot and ankle is being shocked! I don't think I've felt this before. 🤯
I had spasticity when I was first diagnosed but thank God I was put on baclofen and it made it go away permanently. thank you Dr B for another informative great video keep them coming my friend
@@AaronBosterMD 💪🏻🤜🏻🤛🏻
Thanks for the video. I like the candle background.
Glossopharyngeal, occipital and trigeminal neuralgia are miserable. It’s hard to have a good day when it hurts to smile.
I totally agree!
Finally an answer for my itchy ears...No one could find anything wrong ent professionals etc..So at least I now know my MS causes this.
Thank you
I am so glad i stumbled on to your channel Dr. boster! i was diagnosed with MS in 2016. i have some ot rhe things you are mentioning in this video. i have subscribed to your channel and look forward to watching more of them. God bless you!
An absolutely wonderful video . Thank you.
Weird thing: I have all the symptoms of optic neuritis without any nerve damage meaning no diagnosis. How is this possible?
Thank you for this video. I don’t feel like a crazy person now for telling my neuro about my pain:)
You're so welcome!
God bless you, Doc 🥺
#StrongerTogether
MS runs deep on my side of the family. I had a cousin commit suicide and I had an uncle lose a lot of weight and then died. I take MS very seriously. Now I'm dealing with it again with my boyfriend!
In my experience with spasticity, not only cramps can be painful. For example, with spasms if I'm in a situation where I can't let the limb move freely, that can be very painful. MRIs were horrible for me for that reason. Thankfully I'm in a higher dosage of Baclofen and it's not that bad anymore. Also having a spasm in your arm while you are carring something and fighting to not drop it. That hurts a lot too. And with the stiffness, at least for me, everytime I start to move it feels like somethig is ripping.
TY for sharing this, it helps me better understand. That sounds awful Haghenveien!
I was diagnosed with MS in 1991 when I was 18. I was put on Tizinidine (Zanaflex) when it was still new as Baclofen stopped working.
I still use it, but am on a high dose. It would reduce the amount of spasms that I get, but not completely stop then. I have found that taking CBD oil also helps and since taking it (with Zanaflex) I have had very few spasms.
I have not been diagnosed with anything but here searching what could be wrong ! My feet feel like they are being sqeezed and possibly broken ,spasms and cramps are unbearable pins and needles and swelling it feels like my feet are on metal rocks when on a pillow so much and over sensitivity and stiffness the pain is too much.The foot specialist says my nerves are damaged and I need a vascular Dr.that it is from poor circulation .I've had wierd symptoms that come on strong then are gone after a few days before this and wondering if it's all related .Ive been struggling at work lately because I get so exhausted then stressed and feel like I'm haveing a breakdown mixed with dementia and I just keep it inward fighting to concentrate and keep it together! I wake nauseous my neck and a spot on my back hurts and haveing migrains .Is there anyone else with such craziness ?How can I feel so bad then on good days I feel very good then think it's all in my head.Right now I feel something is very wrong.Sorry so awkward and long .
Shirley Morales, you are not alone, nor are you crazy. I too experience all that you mentioned. 2 years ago I told my Doctor that I might have fibromyalgia, he said NO and does not believe in fibromyalgia. He diagnosed me with peripheral neuropathy in both legs and feet. Well I went back to him a week ago cause I was having electrical shock leg flare-ups and numbness in my legs, feet, toes arms, hands and fingers. He has now diagnosed me with bursitis in both hips, carpal tunnel in both wrists. I mentioned all my other experiences and asked if I could have MS? He said NO you don't have MS, cause MS isn't painful, it only causes numbness. So he then ordered me a full MRI of the spine. And he wouldn't refer me to a neurologist. So I got my own appt with a neurologist which I see next Monday, May 15th. I see my doctor tomorrow May 12th to go over my spinal MRI. Which I happen to get the paperwork on it myself and I do have lesions on my spine. Can't wait to hear what he has to say about the MRI tomorrow. If he tells me he sees nothing, I am going to laugh and find myself another doctor, cause this blurry vision, fatigue, all over pain, depression, ect. It's killing me. I know for a fact I have MS. But doctor's just don't want to treat the real problem. They just treat symptoms and I'm tired of it!!😢
@@mchantris I am in the exact same boat as you with similar symptoms. 20 years running to Dr’a with chronic pain weakness numbness fatigue and now severe debilitation before a Dr would give me an MRI because I was physically fit and active I was not treated by a single Dr that believed I had MS! Then I started to lose that ability to move my legs & arms and all functioning in my brain, eyes, voice & speech, bowels, bladder & legs. The brain fog became brain smudge. The pain has become daily in both legs. Finally a diagnosis after MRI! What a nightmare. No one believed me when I told then these symptoms. Treated as a psychiatric hypochondriac!
Thank you Dr. Bostor for another amazing video! You have a new subscriber. I am wishing you and everyone watching the best!
Thanks and welcome
AZO is making several products now which can be confusing. The Phenazopyridine HCl 99.5mg product is ‘AZO Urinary Pain Relief Maximum Strength’
Great video !
TY!
sounds right!
Aaron Boster MD , from a RPh. With MS.😊 Your videos are invaluable!
Excellent video Dr. !!!!
Glad you liked it!
I have experienced Lhermittes, for decades, until recently I hadn't realised it wasn't a normal human experience to have these, I'm still undiagnosed and still waiting for a appointment with a neurologist,I guess I should mention this to them.
MS hug really hurts me, I also have had the trigeminal neuropathy, and my spine hurts to a 10, I have the arm, hand snd foot pain, but the eorst is the spasms in my legs and feet. Thank you for explaining all of this. I also have itching,vfor no apparent reason.
You are an excellent teacher. Great doctor. I don't have MS but serious medical conditions interest me.
My dad got very ill working as a tool & dye machinist. So when I born, he started regular visits to the hospital. Back in the late 50s, early 60s, nobody really diagnosed my dad properly. Always sickly he couldn't be the dad he wanted to be and I remember him always telling his 3 kids,
"You can have all the money in the world, but it means very little when you have a serious chronic illness."
Americans have more than enough problems with our medical for-profit industry. Anything we can do to help ourselves like educating ourselves can really help. So here I am.
Thanks, Doc! Great video. ❤
Dr. Boster you are the Best. Thnx for explaining me😊 gonna have my family watch this so I don't have to try an explain my pains. See you later this month
Thank you for your information.
Stress as of now in care of another, sets off a good portion of realm of MS pain. Fun of times of the squeeze of the chest & elbow joint(some days it's left, right, both{bad day}, or all three areas {down for the count; pain medication, cold pack, laying in bed seems to help in the short term but one cannot gain rest for as with me it returns} like an anaconda wrapped around.
Hi! I came across your video’s randomly on my main page and I have questions. I am 38 and was diagnosed with Young onset Parkinson’s disease, fibromyalgia, osteoarthritis, digestive disc disease, chronic pain, chronic fatigue and migraines. After watching you I am now wondering if MS “fits” better. Is MS commonly misdiagnosed as Parkinson’s disease? Thank you from NJ
Excellent video Doc ❤️ #WehaveMS sharing is caring
Thanks for sharing!! #WeHaveMS
Resharing this video ❤
I had optic neuritis with double vision but it wasn’t painful.
I also live with chronic pain in my leg muscles which wasn’t really covered in this video.
Although I’m being treated for MS with Ocrevus, my MRI is not typical for MS and was thought to be Neurosarcoidosis for many years.
Someone needs to do a video on the MS diagnosis journey!
I believe I have almost all these symptoms at an early stage (9 months into RRMS diagnosis): spasticity, lermithe, but my main pain is in my back, which diminishes on its own by doing stretching exercises. Thank you very much for the information.
Great information
Glad it was helpful!
The things you went over explained alot of my questions. Thank you so much. 😉🙂
Ironic or fortuitous, I'm not sure. However, I have an appointment with the pain doctor at my neurologist's office today.
Thank you, for the topics of conversation.
You 100 percent understand MS.
1995. Look normal But have been terrible since then. 1960 to 1995 were great.
I don't know anymore what normal is.
This video is very informative, thank you very much! Doctor, is there a way to reverse the Myelin damage? How do I repair the damaged Myelins in my nervous system?
This video 👏🏾... thanks Dr., i needed this!
You are so welcome
If I use your systems as a tick book list I am pretty sure I get close to half the symptoms. If we apply quantum physics to computers results in quantum AI which use analysing medicine on a atomic scale. After all we are made of atoms. If that's the case we can an analyse what's going on a atomic scale If we are made of atoms by definition quantum computing can customise a diet, medication and treatment by using quantum mechanics to customise individuals DNA such as MS,
Thank The Lord, I don't have all these types of pains, just a few, thats enough :) thanks for the info Sir!~John
Very welcome
Wish every medical student had to see this video, here in Norway, and all over ❤ Thank you :)
MS no pain, that is a good one😂
Stellar content! Thank you for sharing your knowledge.
I have lhermittes phenomenon. I have trigeminal neuralgia. I have the paresthesia, the aladoynia, occasionally I have optical neuritis. And constantly dealing with the ms hug feeling. All of this started around 2018. In 2019 both of my lungs collapsed. I had to have thoracic surgeries on both with sections of both lungs removed. Then 12 more lung collapses after those lung surgeries and then in 2020 not even 6 months later caught covid and it gave me double pneumonia which they had nothing they could do for me. I was hospitalized and thankfully my immune system fought it off after being very sick. I go into the emergency room about every 6 weeks thinking I must be having a heart attack with severe chest pain and always get sent home and told they can't find anything wrong and that it must be nerve damage. I've had MRI and go to a neurologist who sent me to have a few test done and then she started injecting me with botox in my skull for migraine treatments and put me on depression medication to " treat my trigeminal neuralgia " and that's it. She thinks I'm just fine. I've been in constant excruciating pain since 2019. I haven't been able to work. Or stand for long periods of time. If anything touches my skin it's like needles and sometimes like being burned by a fire. And she says I'm just fine.
Dear Dr Boster, thanks so much for your work and these videos. None of my doctors (two different Neurologists and one GP) understand that my MS causes itchiness. At night it drives me nuts and is a cause of insomnia, which in itself is debilitating. I’ve been taking anti-histamines which help, but I will seriously consider some of the tricyclic anti-depressants that you mention. I’ll chat about this in my next visit to the doc. Again, thanks so much, your videos really help me understand my MS and your positivity helps boost my confidence that I’m going to be OK.
I'm having my husband and kids watch this. It's so hard to explain as mine is going fast. This explains what I keep trying and failing too.