I’ve watched many of your videos and what always comes thru loud and clear is that you are so passionate about your “kids” meaning you speak to us as tho we are a family member who truly cares.
I just got diagnosed 2 days ago ... I am literally in tears 😢.. so young, so much life.. now this!! Thanks 😊 for all ur information.. really gives me hope 🙏🏽
Don’t prejudge & be frightened. 35 years ago I thought life was over. It’s a ride, BUT everything is. I am so happy THIS has been MY ride. Happy thoughts are hard sometimes, but force it. Think Strawberries, Watermelon & Lollipops. Hard to cry. Isn’t it? Hard not to smile. WINNER. !!! :- ) Good luck. btw.... In 1987 there was NO A. Boster. You are so lucky. Dig.
As someone who got into diagnostic imaging, I was able to help a lot of patients understand what to expect from MS. There's a weird connection people with MS have. None of us have the same symptoms, but we all know exactly how each other feels somehow. I also feel there's a kinship with cerebral palsy and obviously lupus.
Would also love to hear your thoughts on some of the recent news out of Case Western on myelin regeneration medicines, www.convelotx.com and where that industry as a whole stands currently. A video idea perhaps ?
Dr. should be prescribing this channel to their patients with MS! I am on to my second team of doctors, now in Boston. I am now receiving excellent care, but even so, I don't always know enough about the disease to even ask the right questions. The information on this channel is incredibly helpful. Thank you.
Dr. Boster I am so glad there is someone such as yourself who is teaching others about MS. When people ask me about MS which I do have I have SPMS I refer them to your videos I'll see if I can explain it to them but you do it way better than I can LOL I can just tell them how I feel and tell them that it's not imaginary that is an actual thing. Thank you for being out there and giving these videos of educational standpoints for those who do not know
I’ve recently found you..sadly my MS neuro specialist just left the practice so I’m seeing a new one and your videos are helping me while I await my appointment in August. Thanks you for these.
Dr. Boster~ You are the best! I have had "probable" MS for 24 years. My second flair was just a few months ago. Of course, I've been so nervous about this new reality....Your videos have calmed me so very much. I'm seeing a new neurologist next month. I hope she is as compassionate and understanding as you are. I have just been prescribed Neurontin by my GP for chronic nighttime leg pain. I am hoping this helps, but I am scared to death of side effects. You have helped my anxiety regarding this drug with this video. Thank you!
Thank you so much for this video. I have just been diagnosed with MS last August at the age of 69. My sister at 63 has had MS for years and years. She is having trouble with spastic legs. I will pass along the knowledge.
How I wish you were my neurologist. But its so good to hear information being explained and given so generously I have alerted my friens with ms to your videos. Here in Ireland we are so let down even going privately the actual dmts can only be accessed on the public and they would rather pay office staff 100,000 dollars per year and them not working g at all all through covid and now 'working' from home. They won't give any high tech meds to over fifties age. I was verbally abused by 2 neurologists my gp who referred me apologised as he had heard other negative things about them. Its unreal to be ill and be abused by these egotists. Others not with ms have same story. But writing this out has helped me. I am going to neurologist tomorrow I'm going to fight for myself we trust these people to look out for us...
LEARNED A LOT OF INFO IN THIS VIDEO DOC, YOU VERY WELL EDUCATED WITH FULL DETAILED SUBJECTS TOO. MY LADY TAKES BACLOFEN NOT FOR M.S FOR ANOTHER MEDICAL ISSUE, BUT GOOD MEDICATION TOO. THANK YOU FOR BEING HONEST IN MULTIPLE SCLEROSIS.
I'm glad you mentioned Provigil. I've been using it on and off for 15 yrs. Originally I took it to stay awake as a cab driver. But I had to stop working in 2013 and that was when I realized I have fatigue problem. Currently my problem is I don't have a doc who believes I have MS so he only gives me 20 Provigil a month. As of Labor Day the fatigue got much worse and I often need 2 Provigil a day if I have to accomplish things.
Dr Boster, I have told you in person but I will say it again. Your videos are wonderful! You bring a passion and personality to a disease that often makes us feel the opposite. My question is about melatonin. I have seen information warning that it can cause relapses in people with MS. My previous MS physician told me that there was not enough research to show one way or the other. Do you have an opinion on this? Thanks again for the videos. I think that you have made a great impact on not only your patients, but many others as well.
I too am very happy to have found your channel and have watched many videos. I have learned a lot and have written down things to talk to my neurologist about. Please keep up with these very informative videos BC I've learned things to talk more in depth during Dr visits that I don't think of at the time plus other helpful tips for dealing with certain symptoms /daily life.
I really enjoyed this video, I have watched others of yours Aaron and I really like your passion and engagement. I completely endorse your recommendation for melatonin for sleep. combined with the med I take to reduce the urinary symptoms (not the one you recommend but effective for me, fyi it's the ditropan twice a day) I now get something resembling a normal night of sleep. That makes everything else more manageable. Thank you.
Being in Florida it's horrible. I walk out and a normal person says it's hot, I'm like I'm on fire. I hate it.makes me want to stay in all summer. That's not living.
@@michelemiller2822 lm In FL too. I can't tolerate the heat anymore and I'm tired of hibernating indoors for most of the year because I can't walk or function when it's 90 degrees.
Thank you for this wonderful insight. As always, I appreciate your effort and generosity in helping us. I am so grateful to have the added support, education, guidance, and encouragement you provide us. Dr. Aaron Boster, You are moving mountains within the MS community worldwide!
So much great info! Thanks! Miralax IN the coffee?? THAT should get things moving. Haha. I tried wellbutrin, and I had trouble sleeping. I recently tried lexapro, and I would wake up at 12:45 and be up wide awake for four or five hours. So I'm glad you mentioned a class of antidepressants that won't cause insomnia. Maybe I'll talk to my doc about some options.
I wanna know when you are going to move to Nashville like the rest of the world is currently. I'll need a great neuro next year after mine retires!! 😕 Can't wait to watch more vids!! Wish I had found you years ago!!! I currently take zoloft but am curious about Cymbalta now. I have bilateral numbness, tingling, burning in my hands (worse on middle, ring and pinky) left over from a wonderful flare-up in 2015. Am definitely going to look into what it would take to change. Although I seem to be doing well on the zoloft so almost don't want to mess with a good thing. 🤔 Thank you as always for your thoughts! 😁
Provigal sounds good..I currently take amitryptaline and I do take a couple days off regularly ..I have some insomnia and fatigue...I haven't yet been diagnosed so I'm thankful to be getting the one drug I do from my nurse practitioner
Thank you for taking the time to make these videos for us. I am learning a lot from you! Any advice for someone who is hyper sensitive to medications, where side effects are almost always intolerable? Would love to hear your thoughts.
Wow, I had no idea there were meds for spasticity or neuropathic pain. Who wants to take another pill?! I sure don’t! But it’s good to know there are meds available.
Ty Dr B! I use a THC balm for my spasticity and minor lower back pain. It's a 10:1 THC/CBD works beautifully and within 10min if that. In my state which is New Jersey medical marijuana is legal with a prescription. I will not smoke or vape the flower cause of the psychoactive effects. This is what has worked best for me out of the meds you mentioned above. Which by the way I've tried. Anyone reading this I'am not a Dr and medical marijuana is not FDA approved yet. I'm just a person living with MS. Hope this helps. Have a great week ahead Dr B!
So, Dr. B. I went to see my doc for a follow up. The only upside is he took me off of Rebif. His decision! No discussion. He listed three other meds and I chose Tecfidera. The side effects freak me out but Rebif was impacting my quality of life. Aches and pains each day after injections. But he didn’t listen to other concerns. I’ll be trying to find another neurologist.
We are super happy you found us! Thank you for watching and please subscribe and ring the notification bell, so you don't miss future content. I try to publish a new video every weekend (ideally every friday am).
Love this! However I must comment. Melatonin makes my already horrible fatigue even worse the following day. I stay far away from Melatonin for this reason.
You might want to read up on when to take it. There is an optimal time window biologically which is fairly early in the evening when the melationin naturally would kick in. That time window depends on your natural proclivity to be a morning or a night person. In short if you take it too late - welcome to zombieville .( Some people can just take it and their Bodies go ” fine , whatever you want” others this trick works and for some well…it was worth a shot)
I cannot describe how depressing this is. And my heart goes out to those who suffered MS before science knew what it was. I cannot imagine the angst of a farmer in the Middle Ages who felt a burning sensation in his arms and started to lose mobility. The self-hatred for losing energy and motor function, or the superstitious fears that came from convulsions and exhaustion. Whew, I guess I shouldn't complain.
Hi, I just found your channel. I am wondering if you have done any videos that MS patients can show to co-workers or family members to help explain to them what the common symptoms of MS are like? Its hard to explain to people that fatigue with MS is not the same as just being tired and neuropathy is not just regular soreness. Thank you.
Non sedating Otc muscle relaxant Hylands Leg Cramps. Found at any drug store. Homeopathic, believe it's magnesium based. Writing so small, can't see! Take tizanadine at night. I titrate based on activity. Mud butt, great moniker. They've come a long way w pads and cleaning wipes. The struggle is real! Thanks again, Doc Lo the nurse in Pensacola.
Thank you so much I can’t stop watching your videos,you give me hope of better life ♥️♥️ I want to ask you for 2 points First .. can you talk more about wellbutrin about dosage and for how long it should be taken Second..it would be so great if you can insert arabic subtitles on your future videos I know it’s maybe hard but it would help so many of us Arabs (my mom’s) wish 😅😅 Big love ♥️♥️♥️♥️
Howdy! I can't give you specifics about Wellbutrin, although I would certainly encourage you to talk to your doctor about it. I tend to see folks use XL formulation somewhere between 150mg and 450mg based on a bunch of individual factors, so worth talking about it for sure. I would love to have the ability to translate my content into Arabic but don't know the language ;( If someone was willing to translate for me I would be delighted!! I think there is even a way on youtube for community members to contribute to such translations!
I spoke to my psychiatrist about it .. she doesn’t describe it for her patients , I’m taking sertraline at this moment but it causes kind of weight gain 💔 I wish I can help you with the arabic translation but I’m so busy ( resident doctor) and my shift can last 12 hours 💔 I’m sure at some point in the future Arabs gonna find way to translate your videos I’m certain cause they’re the best videos for ms out there ♥️♥️
I was supposed to use Baclofen but I read it can cause ovarian cysts. Having enough problems, I'm always terrified of trying something that can cause even MORE issues. I have no doubt it would help, but the anxiety I'd get from taking it (always worried it would cause problems) puts me off. My neuro said it's rare (he hadn't heard of the cysts before until I mention it). But the Copaxone symptoms that were rare ("You'll probably only have that once, or maybe again in another year if that") and I had it 2x in a row and 4 other times, so not so rare in my case. I can deal with welts, bruises, flu symptoms, whatever, but that heart-attack feel is a huge negative to me. And now they wanted to put me on infusions, but that can cause cancer so I passed on that. I have the worst luck with meds and side effects so "It's rare so you'll be okay" never sets well with me. MS is bad enough without cancer too (enough of that in my family as it is). Sentura sounds useful. That thing about stepping away and having to go again, ug! I attributed it to always sitting and my bladder has learned to be afraid to go when I'm sitting on the toilet. I really wish the side effects for stuff weren't so bad. Or at least my brain stopped worrying and imagining my organs, etc suffering. Anyway, love your piggy back there!
Hi I am long term PPMS, 71 years old. my legs are so weak now, but i still try to keep walking even if just a bit everyday but its hard. I get awful foot spasms in the day, when i wake up my legs are wood and its hard to walk, during the the night i wake up in pain all the time my left foot hurts so bad i could chop it off. i wear a blanket cage over my legs which keeps some of the weight off my legs and does help. I have tried a lot of things for my MS but i am very sensitive to them all. My neurologist who knows me well saw me tuesday, and has now offered me SATIVEX. Its very hard to be offered this. I am not sure about it, but willinging to give it a try. I am so sick of MS and PPMS is just the pits no one talks about it. no one helps.
Oh, I always swear by - and never at! - gabapentin (Neurontin) and Cymbalta, which very effectively delivers a double-punch with its painkilling and antidepressant features. No "mud butt" here (and kudos to your wife for her creativity, Dr. Boster!)… I only use Miralax intermittently. I was unable to take Provigil, though (I got hives). Instead, I'm on a 30-mg. dose of Vyvanse, and it's working perfectly.
Chicago I have a very sensitive stomach. I started Tysabri and I cannot tolerate it. Had to send a note to my doctor I wish to discontinue. How long before I can go back to tefedera?
I wish you were my doctor. The MS nurse refuses to admit that pain is caused my MS.I The doctor says that there is pain. However, I do not want Tramadol etc. Thanks Doctor.
God bless for your videos Aaron, it certainly helps and extremely helpful to learn about ideas for symptoms I believe my combination of both natural and medical solutions have helped me and I love that I have access to both … is there a specific anti depressant that can help ms physical symptoms?? Thank you 🙏
Another awesome video. Thanks! So much. I have a pandora S box of questions: 1. Is a history of 1x infantile febrile seizures a contradiction for ampyra? 2. If I have symptoms of both urinary urgency, frequency, and hesitancy, would something like Sanctura or Flomax be better? Also, interesting recent early (mouse model?) study identifying benefits of Vesicare for re-myelination 3. Agree with the drug holiday with Nuvigil. Restart def. boosts effect. 4. I've read melatonin May stim the immune system. Is this correct? Problematic? Thank you!!!
Elizabeth, thank you for watching and thank you for your questions. I can't provide medical advice to you via the internet and I think these are awesome questions to ask your provider. Delighted to hear provigil is working for you! Cheers, A
I had a rare reaction to Baclofen, it made the spasms worse and the tremors worse but helped with the pain, switched to tinazidine , but it doesn’t help the pain , spasms as well ,what do you recommend? The muscle spasms in the quads are so so bad I can see the muscles lumped up. In a bunch. Pain in spine like someone shoving a pole in the middle of the spine, tight tight muscles on either side and left breast.
Great info! Thank you for this video Dr. Boster. What about tingling and numbness? I have it on my right palm and its very pathetic. It doesn't allow me to write also.
I was just diagnosed Friday. I was told nothing about meds. Everything you mentioned that applies to me Im on. My friend who has a sister with MS is on a daily shot. She said I need to be on the shot. Yet, I can't find anything on this "shot" can you point me in the right directions?
My neurologist said that ocrevus is the best treatment that my insurance will cover so are there better treatments and if there are why won't my insurance cover them?
Dr . Boster, What are your thoughts and experiences with LDN or Low Dose Naltrexone? Do you have a video in your library that speaks about it. Thank you
Hi! Thanks for your videos! I watch them all the time. Do you know if there is an medication that helps numbness? I have numbness all over my body even inside my body I don't feel inside my stomachs or mouth ...which is so annoying. I had it for a year and I tried a lot of things but nothing seems to work.
This year is a succsses my last year And didn’t need Mavenclad again and I am better just don’t walk well but all is better memory and more and stop preing well even my got is better. And my Neurologist saw me a lot better 😘💞
Can stimulant drugs which doctors use to decrease fatigue or ADD worsen MS? Stimulants worsen anxiety n anxiety worsens MS. So may they cause more relapse rate? Is it reasonable to use them?
Is there anything that can be done for pins and needles in the hand? My right hand constantly feels like it's asleep and being right-handed and having been an artist not being able to use my right hand effectively has completely ruined my quality of life
Can you advise on medications that don't mess with the stomach or GI system? I need help with pain due to neuropathy and spasticity, but I have gastroparesis and gastritis.... Any recommendations?
AAA AAA I’ve had ms for 9 years, I’m jc positive had to get off tecfidera as it worked great but my titre got to dangerous, I went back to copaxone now I’m going through the worst relapse I have ever been through where I can’t feel my legs and had to be infused with steroids now I’m tapering off. I have a decision to make coming up, they found new legions in my brain and spine. In this scenario I’ve marked it down to ocrevus or aubagio? U think aubagio might work better then copaxone before deciding to do ocrevus???? Helpppp
Another great vid, thanks. I have PPMS and have been researching some of the meds you mention in this video over the last 3 years. But when i mention them to my consultants, they always say they are not effective for sufferers of PPMS. What medication can you suggest for PPMS, that i could mention to my MS consultant at my next appointment, to help with poor leg mobility, balance, muscle spasms, depression, low self esteem and lack of energy ? Many thanks
How am I gong to tell my new nero all my systems lol. I received word that my first nero from another province is now here in mine and I get him back. yaaaaa me. My systems are all over the place since the summer and I do not know is some are MS or my body getting old. I always feel like Im over reacting when I am with him and end up not telling everything. I wonder if its fear of being not believed like I felt for so long with others.
Thks again for sharing this information, you r awesome!!! Dr. Booster I have a question I'm on Ampyra but just this month they changed it to the Generic my insurance won't pay ? I've been on this for yrs an I'm afraid to take it , because I'm allergic to alot of meds that I wasn't 15 to 20 yrs ago from which I was diagnosed 20 yrs ago , this is why I'm afraid to even try taking Dalfampridine 2 a day, an I've been on Ampyra for about 9 yrs sorry for the long story but the med has stayed the same with no change for about 4 yrs any suggestions on anything similar?
talk to your doctor about this Richelle. They can write a script that says "Dispense As Written" on it and then the pharmacy has to administer what is written. Just a thought.
“Mud butt” 🤣. Yes, fatigue is a monster in MS. Well said.
Thanks for watching Cassie! I hope it was helpful educational content! #WeHaveMS
@@AaronBosterMD Hi Dr Aaron what's your take on Ponvory?
Haha. Yep mud butt 😂
Your UA-cam should literally be a prerequisite for all neurologists to pass their boards!
I’ve watched many of your videos and what always comes thru loud and clear is that you are so passionate about your “kids” meaning you speak to us as tho we are a family member who truly cares.
#WeHaveMS giftboutiq! TY for the kind words!
That is a perfect description of how he treats, too. This is the same energy you'd see in appointments.
I just got diagnosed 2 days ago ... I am literally in tears 😢.. so young, so much life.. now this!! Thanks 😊 for all ur information.. really gives me hope 🙏🏽
You got this!
Don’t prejudge & be frightened. 35 years ago I thought life was over. It’s a ride, BUT everything is. I am so happy THIS has been MY ride. Happy thoughts are hard sometimes, but force it. Think Strawberries, Watermelon & Lollipops. Hard to cry. Isn’t it? Hard not to smile. WINNER. !!! :- ) Good luck. btw.... In 1987 there was NO A. Boster. You are so lucky. Dig.
Hang in there!!! I was diagnosed at 19 . Do what I didn't and treat your ms!!! U will thank yourself 19 years from now.
2 days ago Nov 2023 hope you are doing well
As someone who got into diagnostic imaging, I was able to help a lot of patients understand what to expect from MS. There's a weird connection people with MS have. None of us have the same symptoms, but we all know exactly how each other feels somehow. I also feel there's a kinship with cerebral palsy and obviously lupus.
Thanks for making these I'm 29 n found out last week that I got ms happy your here ❤
You are like the Lorax...but instead of speaking for the trees you speak to help those with the disease! Beyond grateful! :-)
Please don't ever stop; information is empowering❤
if you keep watchin' then I'll keep makin' vids!
As a mother with a 24 year old son with Multiple Sclerosis, I appreciate this video so much! So thank you!!
"We don't only take care of people with a pill." Good quote Dr. Boster. Thank you for another educating video !
Thanks Kelly! I appreciate you watching!
Would also love to hear your thoughts on some of the recent news out of Case Western on myelin regeneration medicines, www.convelotx.com and where that industry as a whole stands currently. A video idea perhaps ?
I'm writing it down now Kelly ;)
Dr. should be prescribing this channel to their patients with MS! I am on to my second team of doctors, now in Boston. I am now receiving excellent care, but even so, I don't always know enough about the disease to even ask the right questions. The information on this channel is incredibly helpful. Thank you.
You're very welcome Max, and thank you for the kind words! Please help me by helping me reach more folks impacted by MS! #WeHaveMS
Spreadin' the word here, Doc!
Dr. Boster I am so glad there is someone such as yourself who is teaching others about MS. When people ask me about MS which I do have I have SPMS I refer them to your videos I'll see if I can explain it to them but you do it way better than I can LOL I can just tell them how I feel and tell them that it's not imaginary that is an actual thing. Thank you for being out there and giving these videos of educational standpoints for those who do not know
Finding your channel has been a god send for me. Thank you thank you thank you! I live in the U.P. and sure wish I was close to your clinic.
Howdy Nicole. The UP is amazingly beautiful, God's country! YW and if you want to make the drive down to Columbus, we'd be happy to see you one day!
You dear Dr are a thoughtful humanitarian!
I’ve recently found you..sadly my MS neuro specialist just left the practice so I’m seeing a new one and your videos are helping me while I await my appointment in August. Thanks you for these.
Welcome!
Dr. Boster~ You are the best! I have had "probable" MS for 24 years. My second flair was just a few months ago. Of course, I've been so nervous about this new reality....Your videos have calmed me so very much. I'm seeing a new neurologist next month. I hope she is as compassionate and understanding as you are. I have just been prescribed Neurontin by my GP for chronic nighttime leg pain. I am hoping this helps, but I am scared to death of side effects. You have helped my anxiety regarding this drug with this video. Thank you!
Thank you so much for all your videos! Your optimism always makes me feel better about my ms.
Howdy Silvia! Thank you for watching my vids and thank you for the kind words!! #WeHaveMS
Thank you so much for this video. I have just been diagnosed with MS last August at the age of 69. My sister at 63 has had MS for years and years. She is having trouble with spastic legs. I will pass along the knowledge.
YW Felicia!
Your videos have helped me more than I could explain. Thank you
I’m making a list of things I want to talk to you about at my apartment next week! Many of these topics are on it! Great video Dr. B!
Howdy Lauren! Thanks for watching !
You are the man. Thank you for making MS easier.
Any time!
How I wish you were my neurologist. But its so good to hear information being explained and given so generously I have alerted my friens with ms to your videos. Here in Ireland we are so let down even going privately the actual dmts can only be accessed on the public and they would rather pay office staff 100,000 dollars per year and them not working g at all all through covid and now 'working' from home. They won't give any high tech meds to over fifties age. I was verbally abused by 2 neurologists my gp who referred me apologised as he had heard other negative things about them. Its unreal to be ill and be abused by these egotists. Others not with ms have same story.
But writing this out has helped me. I am going to neurologist tomorrow I'm going to fight for myself we trust these people to look out for us...
LEARNED A LOT OF INFO IN THIS VIDEO DOC, YOU VERY WELL EDUCATED WITH FULL DETAILED SUBJECTS TOO. MY LADY TAKES BACLOFEN NOT FOR M.S FOR ANOTHER MEDICAL ISSUE, BUT GOOD MEDICATION TOO. THANK YOU FOR BEING HONEST IN MULTIPLE SCLEROSIS.
I'm glad you mentioned Provigil. I've been using it on and off for 15 yrs. Originally I took it to stay awake as a cab driver. But I had to stop working in 2013 and that was when I realized I have fatigue problem. Currently my problem is I don't have a doc who believes I have MS so he only gives me 20 Provigil a month. As of Labor Day the fatigue got much worse and I often need 2 Provigil a day if I have to accomplish things.
Dr Boster,
I have told you in person but I will say it again. Your videos are wonderful! You bring a passion and personality to a disease that often makes us feel the opposite. My question is about melatonin. I have seen information warning that it can cause relapses in people with MS. My previous MS physician told me that there was not enough research to show one way or the other. Do you have an opinion on this? Thanks again for the videos. I think that you have made a great impact on not only your patients, but many others as well.
I too am very happy to have found your channel and have watched many videos. I have learned a lot and have written down things to talk to my neurologist about. Please keep up with these very informative videos BC I've learned things to talk more in depth during Dr visits that I don't think of at the time plus other helpful tips for dealing with certain symptoms /daily life.
I really enjoyed this video, I have watched others of yours Aaron and I really like your passion and engagement. I completely endorse your recommendation for melatonin for sleep. combined with the med I take to reduce the urinary symptoms (not the one you recommend but effective for me, fyi it's the ditropan twice a day) I now get something resembling a normal night of sleep. That makes everything else more manageable. Thank you.
Thank you for the informative videos, they are very helpful when the patient (me) has a Neurologist and still has to be their own doctor.
Heat sensitivity to me is best described as a flower that wilts until it’s watered and then it perks up.
nice image! very helpful!
Being in Florida it's horrible. I walk out and a normal person says it's hot, I'm like I'm on fire. I hate it.makes me want to stay in all summer. That's not living.
@@michelemiller2822 lm In FL too. I can't tolerate the heat anymore and I'm tired of hibernating indoors for most of the year because I can't walk or function when it's 90 degrees.
I have been taking Amitriptyline for pain. I'm wondering why this medication wasn't mentioned. Brilliant talk. Thankyou.
Appreciated the breakdown by subject matter in the note section. An index for longer videos is extremely helpful! TY
Thank you for this wonderful insight. As always, I appreciate your effort and generosity in helping us. I am so grateful to have the added support, education, guidance, and encouragement you provide us.
Dr. Aaron Boster, You are moving mountains within the MS community worldwide!
We're building an online MS community together Kelly Bo Belly! #WeHaveMS
So much great info! Thanks! Miralax IN the coffee?? THAT should get things moving. Haha. I tried wellbutrin, and I had trouble sleeping. I recently tried lexapro, and I would wake up at 12:45 and be up wide awake for four or five hours. So I'm glad you mentioned a class of antidepressants that won't cause insomnia. Maybe I'll talk to my doc about some options.
Thanks Maggie!
This was really helpful, thank you!
This channel has been very helpful to me. I follow you on FB but didn’t know you had a channel. Great info
Thanks Debbie! Please help spread the word, the more folks impacted by MS I can reach the better and I would love your help!
I wanna know when you are going to move to Nashville like the rest of the world is currently. I'll need a great neuro next year after mine retires!! 😕 Can't wait to watch more vids!! Wish I had found you years ago!!! I currently take zoloft but am curious about Cymbalta now. I have bilateral numbness, tingling, burning in my hands (worse on middle, ring and pinky) left over from a wonderful flare-up in 2015. Am definitely going to look into what it would take to change. Although I seem to be doing well on the zoloft so almost don't want to mess with a good thing. 🤔 Thank you as always for your thoughts! 😁
Provigal sounds good..I currently take amitryptaline and I do take a couple days off regularly ..I have some insomnia and fatigue...I haven't yet been diagnosed so I'm thankful to be getting the one drug I do from my nurse practitioner
Thank you for taking the time to make these videos for us. I am learning a lot from you! Any advice for someone who is hyper sensitive to medications, where side effects are almost always intolerable? Would love to hear your thoughts.
Thank YOU dr. Boster!!! (from Israel)
Thank you for all the information...Im new to your channel and enjoy watching all the videos
Wow, I had no idea there were meds for spasticity or neuropathic pain. Who wants to take another pill?! I sure don’t! But it’s good to know there are meds available.
This was a really helpful video...thank you
Ty Dr B! I use a THC balm for my spasticity and minor lower back pain. It's a 10:1 THC/CBD works beautifully and within 10min if that. In my state which is New Jersey medical marijuana is legal with a prescription. I will not smoke or vape the flower cause of the psychoactive effects. This is what has worked best for me out of the meds you mentioned above. Which by the way I've tried. Anyone reading this I'am not a Dr and medical marijuana is not FDA approved yet. I'm just a person living with MS. Hope this helps. Have a great week ahead Dr B!
Super glad that you're getting benefit Matt!
So, Dr. B. I went to see my doc for a follow up. The only upside is he took me off of Rebif. His decision! No discussion. He listed three other meds and I chose Tecfidera. The side effects freak me out but Rebif was impacting my quality of life. Aches and pains each day after injections. But he didn’t listen to other concerns. I’ll be trying to find another neurologist.
I have been diagnosed just 2 months ago and only prescribed cortisone and a neurontin to help sleep.
I'm so glad I have found your channel!!!
We are super happy you found us! Thank you for watching and please subscribe and ring the notification bell, so you don't miss future content. I try to publish a new video every weekend (ideally every friday am).
Best Medication For MS Symptoms Thank you Dr for sharing #MSEducation.. Knowing some options to help treat our MS symptoms is very helpful!!
Right on! Thank you for watching and supporting my channel. I really appreciate it!
Kudos I appreciate as well being able to share with fello MS'ers !!!!!!
Any efforts to help me reach more people impacted by MS would be AWESOME!
Constipation, I noticed just before a major exacerbation so I make sure to prevent this by taking high doses of magnesium.
TY for sharing CAR
Thank you. This was great!
Another excellent video. Thanks Dr.Boster.
YW Ernie! Thanks for the support and I hope you are well!
I'll never forget hearing in school to always write at an eighth grade level so thank you for keeping it simple
Another thing I'll never forget is the kiss principle which simply stands for keep it simple stupid
Love this! However I must comment. Melatonin makes my already horrible fatigue even worse the following day. I stay far away from Melatonin for this reason.
You might want to read up on when to take it. There is an optimal time window biologically which is fairly early in the evening when the melationin naturally would kick in. That time window depends on your natural proclivity to be a morning or a night person. In short if you take it too late - welcome to zombieville .( Some people can just take it and their Bodies go ” fine , whatever you want” others this trick works and for some well…it was worth a shot)
Great information! Thank you.
I cannot describe how depressing this is. And my heart goes out to those who suffered MS before science knew what it was. I cannot imagine the angst of a farmer in the Middle Ages who felt a burning sensation in his arms and started to lose mobility. The self-hatred for losing energy and motor function, or the superstitious fears that came from convulsions and exhaustion. Whew, I guess I shouldn't complain.
So glad we have better diagnostics and therapeutics today To Bear!
@@AaronBosterMD Me, too!
What about Copaxone has MS treatment?
Also Cymbalta I use up for my depression what is that your thoughts on that?
Hi, I just found your channel. I am wondering if you have done any videos that MS patients can show to co-workers or family members to help explain to them what the common symptoms of MS are like? Its hard to explain to people that fatigue with MS is not the same as just being tired and neuropathy is not just regular soreness. Thank you.
Non sedating Otc muscle relaxant Hylands Leg Cramps.
Found at any drug store. Homeopathic, believe it's magnesium based. Writing so small, can't see!
Take tizanadine at night. I titrate based on activity.
Mud butt, great moniker. They've come a long way w pads and cleaning wipes. The struggle is real! Thanks again, Doc
Lo the nurse in Pensacola.
Thank you for watching Lo and thanks for the great info!
You are awesome! Thank you for what you do!!!
YW Martha! #WeHaveMS
So helpful thank you
Glad it was helpful!
Thank you, this is a very good video! I'm now worried about the options available when the time comes but now I know better, thank you Doctor
hopefully you can talk with you MS provider to find out what are the best options for YOU!
Thank you so much I can’t stop watching your videos,you give me hope of better life ♥️♥️
I want to ask you for 2 points
First .. can you talk more about wellbutrin about dosage and for how long it should be taken
Second..it would be so great if you can insert arabic subtitles on your future videos I know it’s maybe hard but it would help so many of us Arabs (my mom’s) wish 😅😅
Big love ♥️♥️♥️♥️
Howdy! I can't give you specifics about Wellbutrin, although I would certainly encourage you to talk to your doctor about it. I tend to see folks use XL formulation somewhere between 150mg and 450mg based on a bunch of individual factors, so worth talking about it for sure.
I would love to have the ability to translate my content into Arabic but don't know the language ;( If someone was willing to translate for me I would be delighted!! I think there is even a way on youtube for community members to contribute to such translations!
I spoke to my psychiatrist about it .. she doesn’t describe it for her patients , I’m taking sertraline at this moment but it causes kind of weight gain 💔
I wish I can help you with the arabic translation but I’m so busy ( resident doctor) and my shift can last 12 hours 💔
I’m sure at some point in the future Arabs gonna find way to translate your videos I’m certain cause they’re the best videos for ms out there ♥️♥️
Great info Doc... Thanks for sharing.....Is that your house shown in the end of the vdo??
Howdy Swati! TY for the comment. No, not our house. This was in the neighborhood I came across during a recent walk ;)
Cymbalta works on my depression and my leg pain.
I was supposed to use Baclofen but I read it can cause ovarian cysts. Having enough problems, I'm always terrified of trying something that can cause even MORE issues. I have no doubt it would help, but the anxiety I'd get from taking it (always worried it would cause problems) puts me off. My neuro said it's rare (he hadn't heard of the cysts before until I mention it). But the Copaxone symptoms that were rare ("You'll probably only have that once, or maybe again in another year if that") and I had it 2x in a row and 4 other times, so not so rare in my case. I can deal with welts, bruises, flu symptoms, whatever, but that heart-attack feel is a huge negative to me. And now they wanted to put me on infusions, but that can cause cancer so I passed on that. I have the worst luck with meds and side effects so "It's rare so you'll be okay" never sets well with me. MS is bad enough without cancer too (enough of that in my family as it is). Sentura sounds useful. That thing about stepping away and having to go again, ug! I attributed it to always sitting and my bladder has learned to be afraid to go when I'm sitting on the toilet. I really wish the side effects for stuff weren't so bad. Or at least my brain stopped worrying and imagining my organs, etc suffering. Anyway, love your piggy back there!
Hi I am long term PPMS, 71 years old. my legs are so weak now, but i still try to keep walking even if just a bit everyday but its hard. I get awful foot spasms in the day, when i wake up my legs are wood and its hard to walk, during the the night i wake up in pain all the time my left foot hurts so bad i could chop it off. i wear a blanket cage over my legs which keeps some of the weight off my legs and does help. I have tried a lot of things for my MS but i am very sensitive to them all. My neurologist who knows me well saw me tuesday, and has now offered me SATIVEX. Its very hard to be offered this. I am not sure about it, but willinging to give it a try.
I am so sick of MS and PPMS is just the pits no one talks about it. no one helps.
God knows how much I wish this was my doctor or at least wish my doctor was like this!
Where are you from Precious Loves Lopez?
@@AaronBosterMD Maryland
road trip!
@@AaronBosterMD might have to do that! Either way, I'm so grateful for your videos! Your amazing!
Oh, I always swear by - and never at! - gabapentin (Neurontin) and Cymbalta, which very effectively delivers a double-punch with its painkilling and antidepressant features. No "mud butt" here (and kudos to your wife for her creativity, Dr. Boster!)… I only use Miralax intermittently. I was unable to take Provigil, though (I got hives). Instead, I'm on a 30-mg. dose of Vyvanse, and it's working perfectly.
TY for sharing! #WeHaveMS
Chicago
I have a very sensitive stomach. I started Tysabri and I cannot tolerate it. Had to send a note to my doctor I wish to discontinue. How long before I can go back to tefedera?
Thank you dr for this video. :)
You're very welcome Bahareh! What will be your biggest take away point from this video?
Thanks dr. B
I wish you were my doctor.
The MS nurse refuses to admit that pain is caused my MS.I
The doctor says that there is pain. However, I do not want Tramadol etc.
Thanks Doctor.
God bless for your videos Aaron, it certainly helps and extremely helpful to learn about ideas for symptoms
I believe my combination of both natural and medical solutions have helped me and I love that I have access to both … is there a specific anti depressant that can help ms physical symptoms??
Thank you 🙏
Another awesome video. Thanks! So much. I have a pandora S box of questions:
1. Is a history of 1x infantile febrile seizures a contradiction for ampyra?
2. If I have symptoms of both urinary urgency, frequency, and hesitancy, would something like Sanctura or Flomax be better? Also, interesting recent early (mouse model?) study identifying benefits of Vesicare for re-myelination
3. Agree with the drug holiday with Nuvigil. Restart def. boosts effect.
4. I've read melatonin May stim the immune system. Is this correct? Problematic?
Thank you!!!
Elizabeth, thank you for watching and thank you for your questions. I can't provide medical advice to you via the internet and I think these are awesome questions to ask your provider. Delighted to hear provigil is working for you! Cheers, A
Aaron Boster MD totally understand. Mostly, I don’t get satisfying answers from my truly wonderful HCPs...
I had a rare reaction to Baclofen, it made the spasms worse and the tremors worse but helped with the pain, switched to tinazidine , but it doesn’t help the pain , spasms as well ,what do you recommend? The muscle spasms in the quads are so so bad I can see the muscles lumped up. In a bunch. Pain in spine like someone shoving a pole in the middle of the spine, tight tight muscles on either side and left breast.
I Take baclofen (rivotril) for spasticity and epilepsy (seizure) îs very good seizure în ms
Great info! Thank you for this video Dr. Boster. What about tingling and numbness? I have it on my right palm and its very pathetic. It doesn't allow me to write also.
Thank you for watching and for the question. I'd totally ask your MS provider about options to addressing the numbness!
My daughter found out a few months ago she has ms dr is putting her on mayzent how do you feel about it
Thanks you are good!😅
No problem
I was just diagnosed Friday. I was told nothing about meds. Everything you mentioned that applies to me Im on. My friend who has a sister with MS is on a daily shot. She said I need to be on the shot. Yet, I can't find anything on this "shot" can you point me in the right directions?
Hi Doc, did you say Sanctura XL? Why does the video show Sanctura XR (8:12) ? FYI ☺
XL and XR both involve a sustained release formulation. Sorry I must have mis spoke
My neurologist said that ocrevus is the best treatment that my insurance will cover so are there better treatments and if there are why won't my insurance cover them?
Is vertigo a ms symptom. I had a bad attack last night. It was horrible.
Ampyra helps with my walking and speed of walking but not my heat sensitivity
I repeat to me my favorite Eagles song-lyric “Get Over It”!!!
Dr . Boster, What are your thoughts and experiences with LDN or Low Dose Naltrexone? Do you have a video in your library that speaks about it. Thank you
Hi! Thanks for your videos! I watch them all the time. Do you know if there is an medication that helps numbness? I have numbness all over my body even inside my body I don't feel inside my stomachs or mouth ...which is so annoying. I had it for a year and I tried a lot of things but nothing seems to work.
This year is a succsses my last year And didn’t need Mavenclad again and I am better just don’t walk well but all is better memory and more and stop preing well even my got is better. And my Neurologist saw me a lot better 😘💞
Stop smoking a year ago thanks my Fiancé and this year we finally marry
Thank you for your great videos!! So helpful! I have a question - is it safe to take Alpha Lipoic Acid while taking Teriflunomide (Aubagio)?
Can stimulant drugs which doctors use to decrease fatigue or ADD worsen MS?
Stimulants worsen anxiety n anxiety worsens MS. So may they cause more relapse rate? Is it reasonable to use them?
Is there anything that can be done for pins and needles in the hand? My right hand constantly feels like it's asleep and being right-handed and having been an artist not being able to use my right hand effectively has completely ruined my quality of life
Do you have a videos for 'Dawson's Fingers'? Also Viagra does work for my ED but Cealus? Worked for 20 minutes. Please help
Can you advise on medications that don't mess with the stomach or GI system? I need help with pain due to neuropathy and spasticity, but I have gastroparesis and gastritis.... Any recommendations?
Definitely recommend talking to your doctor!
Have had severe trigeminal neuralgia which I had before other sx of MS. Have been taking Lamotrigine , and this has been miraculous. Any comments?
AAA AAA
I’ve had ms for 9 years, I’m jc positive had to get off tecfidera as it worked great but my titre got to dangerous, I went back to copaxone now I’m going through the worst relapse I have ever been through where I can’t feel my legs and had to be infused with steroids now I’m tapering off. I have a decision to make coming up, they found new legions in my brain and spine. In this scenario I’ve marked it down to ocrevus or aubagio? U think aubagio might work better then copaxone before deciding to do ocrevus???? Helpppp
Hang in there AAA AAA! IMO from an efficacy stand point Ocrevus >> Aubagio > Copaxone. Just my 2 cents.
Thank you!
YW Margaret!
Very informative
I mentioned fatigue/lassitude and static drop foot / stiffness to my neurologist and she pretty much offered nothing! no tips blank 👀
I hope you'll bring up your concerns again. It's YOUR BODY and YOUR LIFE and it's super important she hear what is impacting you.
Another great vid, thanks. I have PPMS and have been researching some of the meds you mention in this video over the last 3 years. But when i mention them to my consultants, they always say they are not effective for sufferers of PPMS. What medication can you suggest for PPMS, that i could mention to my MS consultant at my next appointment, to help with poor leg mobility, balance, muscle spasms, depression, low self esteem and lack of energy ? Many thanks
Symptomatic medications (for example baclofen for spasticity and wellbutrin for depression) are equally effective in relapsing MS and PPMS patients.
Thank youuuu againnn
How am I gong to tell my new nero all my systems lol. I received word that my first nero from another province is now here in mine and I get him back. yaaaaa me. My systems are all over the place since the summer and I do not know is some are MS or my body getting old. I always feel like Im over reacting when I am with him and end up not telling everything. I wonder if its fear of being not believed like I felt for so long with others.
Make a list of every thing that concerns you and bring the list into the visit. Then bring it out and ask to review all of it with the doctor.
Thks again for sharing this information, you r awesome!!! Dr. Booster I have a question I'm on Ampyra but just this month they changed it to the Generic my insurance won't pay ? I've been on this for yrs an I'm afraid to take it , because I'm allergic to alot of meds that I wasn't 15 to 20 yrs ago from which I was diagnosed 20 yrs ago , this is why I'm afraid to even try taking Dalfampridine 2 a day, an I've been on Ampyra for about 9 yrs sorry for the long story but the med has stayed the same with no change for about 4 yrs any suggestions on anything similar?
talk to your doctor about this Richelle. They can write a script that says "Dispense As Written" on it and then the pharmacy has to administer what is written. Just a thought.
Is it alright to take all these medications together??santrua and wellbutrin??
What about IV Infusions? I start in 2 weeks.