Understanding Motor Neurone Disease
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- Опубліковано 21 лип 2024
- One in a series of informational and educational videos on how motor neurone disease affects people's lives.
Our mission is a world free from MND. Find out more and join the fight www.mndassociation.org.
My Dad died in 2021 with MND, he diagnosed in 2019, I never know about this disease until he get it. When he was showing his symptoms we assume that due to his hardcore job he is getting weaker also while he was eating hard to swallow & gets cough like he blocks to breathe, he used to cry like I want to live healthy for a few more years but god took him in his 50’s 52 year old I still miss him like anything and I hope there should be some curable treatment to future generations!
Sorry for your loss. RIP
God bless you all 💚 u cared for a 39 yr okd woman with this and it was truly devastating to witness. She's at peace now bless her heart
Jan gives me alot of hope. She's tackling this nightmare head on, a real champion
Im currently stuying medicine, its sad to think that this was filmed four years ago and that these people have probably already passed away from this disorder.
My mum and younger brother (48) passed away with MND mum had bulba poursey ..dreadfull ending of her life..(77)I'm hopeing one day they will find something to help with this dreadfull desese
Thanka
RIP fernando 🧡💙
Lost my sister in law on 14th Sept 22 to this - from diagnosis 5 years ago to her leaving. Kia kaha sister...
My mum is 83 and had great difficulty speaking and swallowing much of anything. Food was getting trapped in her throat and blocking her air way was happening more often. she battled for each breath. The riluzole did very little to help her. The medical team did even less. Her decline was rapid and devastating. The psychological support from the medical centre was non-existent and if it were not for the sensitive care and attention of our primary physician, there she would have died. There has been little if any progress in finding a cure or reliable treatment. Acupuncture eased her anxiety a bit. this year our primary physician started her on Healthherbsclinic MND natural treatment, 6 months into treatment she improved dramatically. It has been a complete turnaround with her speech, she no longer needs the feeding tube to feed, the treatment is a miracle. She recovered significantly!
How is your mother now?
Please share the treatment.. what was that she started recovering..
Please share the treatment with us 🙏
What is remisol?
My grandad passed in March from mnd was so hard only had a year
@Joice Omo 🤦♂️
Every patient of mnd must be lesson Surah Rahman three times in a day inshallah they all will be cure its a more than like a magic plzzzz try
Salam est qu'il y a des malades qui ont guérits de cette maladie SLA en écoutant surat Rahman répondez moi svp
Being a doctor it's so emotional disease!
Could the answer lies in how are we utilizing our minds- means to say: if we overthink or utilize our brains to the fullest, will the brain just out of unknown reasons- shut down or cast aside our bodily/physical motor functions so that our brains would be the only part of the body that is given priority to function?!?!?!
Just curious though, if there is no cure to date, then what we need is to improve their living conditions so that they can cope and still be productive despite their MND Diagnosis
no
Rip Stephen Hillenberg.
Hawking*
just got to know one of my uncles has mnd, I'm very very sad. It's what Stephen Hawking had, his life prolonged but can't be guaranteed to everyone
Sadley no..Stephen Hawkins was a exception. Just enjoy the time u have left with ur uncle😘
They need a cure, but all these diseases of the brain MND, Parkinsons etc they are not advancing at all! Even if they could slow it down!
We do research on neurodegenerative/ amyloid diseases. Your comment is absolutely wrong. I know many other people that are working day and night on this. We have learned a lot and It takes time to find the cause and molecular pathway of the disease, especially when its in the brain.
@@JamezBnd007 Disagree! Same with Brain Tumours they have hardly advanced treating and curing them, my dad died 42 years ago with a brain tumour. I am still seeing loads of people die from them
@@JamezBnd007 2 member of my family passed with Mnd.. much resurch is being done.iv visited SINAD in Sheffield UK. Amazing work done there but it takes time..One day I say that literally there will be a breakthrough 😘
Go to the SINAD resurch center Sheffield UK. You will see then you are very wrong to say they are not working on these dreadful neurological deseses I can tell you from personal level THEY ARE
@@JamezBnd007 Is it possible that these conditions are connected to iron overload, one has to wonder. An unlikely source that sends ferritin levels through the roof is the innocuous-seeming cod liver oil.
Do you think Motor nourious disease could be hunan form of CWD which is a deer disease. The symptoms of that deer illness is separation from the herd , depression,blank expression, difficulty in swallowing, increase in thirst , changes in the deer movements stumbling lack of coordination tremors and death. Now I say this because deer is eaten in lots of places around the world but the number one deer eaters is New Zealand. Now the place in the world with the highest infection rate of MND yes you guessed its New Zealand!!!
Also ticks I believe can carry it to humans!! Probably through some DNA code(God code) probably most likely a organic polymer like cellolose which is in grass and washers out of humans as the stuff that holds poo together, humans can't digest it but the tick can so the tick takes nutrition from it messages through the cellolose (cassette) which could of be taken from a dying deer with CWD, then that lays dormant for years like in deers which can go 24 months before showing symptoms so in it's life cycle it could add up to MND dormant ratios? Then that bite could send that DNA god message into the Human blood? Which copies CWD to MND? Cellolose as some thing to do with cell production in plant walls?
The crazy thing is the bible states not to eat deer, that book is full of information but all we hear is all the negative stuff that people sell? Wish the pope and others could share more information that's useful!!!!!
Anyway it's only a thought!!? Anybody who knows their stuff might debunk the idea?
What should I do with MND, which got me at 13. I'm 57.
Hello i was once an ALS caregiver to my husband because my husband was also diagnosed with motor neuron disease(ALS) but all thank to doctor Ehimare on UA-cam herbal remedy that help my family out. He is a great traditional Dr.
@@thelmacandid8530 It is disgusting the fact you are advertising herbal medicine for such a disease, really makes me sick, I have reported all of your comments.
@Joice Omo YOU ARE LYING TO PEOPLE THERE IS NO CURE FOR MND.
@@traderjo9552 man its so sad to see this shit...
@@Volfas mate is pisses me off to no end, the fact youtube allow this shit is vile
That is Steven Hawking's handicap
Stephen Hawking 😢
50 years Stephen Hawkins had it for.
They’re calling this rare and not telling you the cause. It’s common since the v rollout. They just dont want you to sue them
Drumming on leg.
Charge would be.
you Forgot About Stephen Hawking' Because he got it When he was Around 21 Years old Back Around 1963' so ☹️
Meds improve their quality of life? What quality? It is cruel to prolong these ppls lives with non working medication. All a money maker.
It is absolutely right
If it was an nhs hospital that is typical, no care anymore!!!