Updated Neck Range of Motion & Some Thoughts on Craniocervical Fusion Surgery (3.5 Years Later)
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- Опубліковано 30 лис 2022
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Sorry this video was a bit scatter-brained! 😅 Let me know if there's anything you'd like me to make videos about (aside from nitty-gritty details about illness/symptoms). I've missed making videos. ❤
Do you think you’d ever return to climbing? I miss it so much and I’ve been getting a lot better, but even if I feel pretty much fully recovered I’m not sure if I should go back. I got injured from it so much and one of my injuries seems to be what sent me into the deconditioning spiral that started all this
You're correct in that CCI surgery is not required to heal. Many athletes, especially gymnasts have EDS, yet they're perfectly healthy. And this study showed that 37% of 20 year olds to 96%(!!!) of 80 year olds had some sort of disc degeneration, yet they were ASYMPTOMATIC. The docs that do this surgery are just cashing in on fear.
Definitely interested in your thoughts on fusion surgery!
@@dancingpianofairy Did you not watch the video? Or her others? The entire point is that she -- and others -- have realized that CCI surgery isn't necessary...
@@DDumbrille Yes, I got that. I mean like a whole video going in depth about it and why.
It's encouraging to see your progress and positivity about further healing. I share your feelings about the way much of our medical care is done, and I admire your attitude regarding your surgery and past care. Best wishes.
So happy for you and your progress!
Such big improvements! Loved this video
So happy for you thanks for giving me hope
So happy to see this update! Hope it only gets better from here
Lovely to see you progressing, hope it all continues to go well. Take care. Michelle.
I appreciate you sharing your opinion it’s nice to find someone that has similar thoughts.
You're looking great Rachael! Carnivore is certainly helping you xx
Hey! I’m glad you’re doing better. I see a lot of people who ONLY consider allopathic medicine or only consider alternative medicine and I think each body is a mix of both. I’m like you, I see so many people not getting better. I’m not getting better BUT I do think at least some things could definitely improve, in my situation it’s just finances that impact me (honestly regardless of what direction I go in)….. I see some people (particularly MECFS usually because that’s been my longest running diagnosis) and some will go “I’m fully healed” as yet I haven’t seen anyone fully healed! I wouldn’t say that to a person because if they think they are and are living great life in their definition that’s fantastic regardless of my opinion… the only reason I say in that group (but it does go across some others that are easily known to cross over) is because the people are still constantly making adjustments in their life in order to not relapse etc…. That’s not fully healed! It’s a fantastic started but not fully healed… for that group of people I just wonder how much more out of life could they get with dealing with some underlying things. These are all rambly thoughts. What I love though about that group and anyone with chronic illness is the willingness and drive to at least TRY to get better!! So many people assume their situation is a death sentence and it doesn’t have to be! Anyway, keep it up be Rach, while I really love watching your videos, please don’t put pressure on yourself to have to make more! If you decide it’s what you want to do, great, but if you never want to think too much about this ever again and start planning your first comeback rockclimibing trip, that’s okay too! (Although tbh I would actually love to see that filmed hehe I would sooo be here cheering and celebrating for you!) You know maybe you decide to do some part time work, so on so forth, I feel pretty pathetic this morning so my creative mind isn’t so great but, I know I care about you and I suspect so do others that if you left this behind in order to do other things…. That’s actually okay too!! I’m just one person and I appreciate how much you’ve shared so so much. Like so much. But I also recognise you’re a person and you’ve gone down this route to LIVE so don’t stay stuck in the past. Hugs and many thanks and prayers xo
So happy to see your progress! And thank you for speaking out about modern medicine, and the way they do things...I share your opinion! I can't believe the surgeon told you to never move your neck again or lift more than 10 lbs! That's insane! I have a list of Chronic illnesses, and I didn't start healing until I started seeing a Natropath, functional medicine specialist, and diet. Diet is huge, which I know u know! Take care Rachel 🙂!
Blessings!
Great healing so far :) Having stronger vagus nerves may have helped turbo charge healing too. What do you reckon made them regenerate, the PRP?
Thank you Rachel. I have been following you through your challenging journey. I appreciate the wisdom you are sharing. I have found new answers in peptides, GHK, BPC, TB4 and liposomal phos. Choline. Years of research. Im far from there but feel am in the right camp. LOVE YOUR COMMITMENT AND SHARING. YOU ARE AWESOME.
Sounds so interesting!
Thanks for sharing! Do you have a short summary list of things you found helpful and not-so-helpful? My brain is having trouble processing everything at the moment and this would help me figure out my next steps. Thank you 😊
You needed that time dedicated ro heal.
yah not lifting more than 10 lbs is crazy. You don't want the muscle and ligaments to atrophy, you want them strong especially in an area that has had issues in the past. Thanks for sharing.
Hi Rachael.. How is your tinnitus now?
I did a 180 about sickcare too...I thought doctors were saints, LOL. I think a lot of people are confusing placebo effect with actual results but n =1...like if it helped them it helped them. I just question how many people are actually recovered long term. Medicine tends to be reductionist. There's an interesting article...I can't post direct link but it's "surgery is one hell of a placebo" on 538 where they performed sham surgeries compared to real ones. I highly highly recommend anyone considering invasive surgeries to read it. Glad you're feeling better
Also it goes into how MRI reads correlate very poorly with pain
God bless you Rachel. Thank you for always sharing your journey.
Stay positive. I have chiari malformation and CCI. I’m currently seeing doctor Hauser . I’m going into my third round this upcoming week. Healing has been feeling like a long road, but I have been reading “the secret” and it has helped me look at things differently.
Thank you again , you inspire me
Me too! I have my third treatment this month at Caring Medical. So far so good. Good Luck.
@@mikegervasi9688 I’ve seen some improvements, still have symptoms, but my hopes are very high!
@@mikegervasi9688 good luck as well!!
@@specialmoments6076 Good luck with your treatments, I am scheduled for 5 to 8 visits. Neck pain seems to be greatly reduced. Still have pulsatile tinnitus and throbbing in back of head. I wish CM was not a plane ride, but no regenerative Drs in my area would inject in upper cervical.
@@mikegervasi9688 sorry for the late response. yea I have to travel as well but I do it by car. 8 hour drives you know.
But I just did my third treatment. I got a major flare up of head pressure after my third treatment. Not sure why, but in my next appointment they are going to redo all the testing. Let’s see where we are at!
I still feel my neck clicking lot and I still have a lot of head pressure /eye pressure. (Keep in mind I do have chiari malformation. I feel like this is a slow process. I’m excited for the future . How are you doing ?
Have you ever heard of Dr. Raymond Perrin, an osteopath in the UK? He developed a brain lymphatic drainage system that has been dubbed “the Perrin technique” to help people with structural neck issues, who develop CFS/ME like symptoms. I would be interested to hear from you or your followers if they have heard of it or had success with it. The idea behind it is that when we have neck dis-structure our body can’t rid itself of the daily toxins that need to be processed out.
How do you reckon the chiari decompression factors in? Do you think the curve correction helped chiari too?
Personally I don’t believe chiari surgery has contributed at all to my healing. Curve correction has played a role, though!
At 5 years post-op, my ROM is very close to yours. I don’t regret my surgery but the impact of the severely restricted ROM and all that hardware back there so close to all the cranial nerves isn’t talked about enough. It’s disorienting and anxiety-provoking to not be able to see around you. And the stabbing nerve pains and muscle spasms from tilting or turning my head a bit, even briefly. Needing to be seated to do dishes, etc. to avoid said stabbing pains from looking down. Inability to see paperwork on the table in front of me. (I’m quite tall so it might just be me but daily life has certainly been changed due to reduced ROM in all directions.) Only being able to drive due to blind spot monitoring. Post-op I noticed an immediate improvement to even my lower leg pain and by most measures I’m a surgery “success story” but I still get into arguments online with people who call craniocervical fusion surgery a “cure.” It certainly shouldn’t be taken lightly. Hoping I can avoid a cascade of future surgeries to nearby spinal segments. Scary stuff. Glad you are finding healing.
@jeesa wow you're feeling stabbing pains and spasms 5 years later your neck hasn't normalized with "just" limited ROM? that's scary, I'm currently contemplating this procedure, I read a lot of journal articles where people's pain nearly disappears after this surgery I was really hoping for a better outcome than you describe :-(
I concur with what you're saying. I've researched it for my own problems. I think you should only consider this surgery if you're not functional. Having pain for less than 24 months is not sufficient, unless you've exhausted everything like physio and multifaceted rehabilitation. The main point I would make is that just because you have some CCI, it may not be the underlying cause of your problems. So when you correct for it, you may give up a lot and not get anything in return. You have to be sure that the instability is very serious and that's many surgeons will want to wait to determine if that's the case so that they are operating only on the very bad cases of instability.
I had decompression in 2022. My surgeon is wanting CCI fusion surgery. I want it to fix the headaches, the dizziness, the floating feeling, the blurry vision. You talked about natural healing. Do tell.
If you could do it different, would you just do prolotherapy and the retraining and diet? Thanks for doing all these videos!
Yes, absolutely. I wish I could go back and not have surgery. But I’m just grateful to be healing :)
@@HealingWithRachael I am so glad you are healing too!
I'm having sleep issues from all this. Do you have any suggestions?
Thanks! I love your updates! You are one strong woman!
@@HealingWithRachael also though, I truly believe that you are right. God wants good things for us, and so maybe there is a reason for the fusion. Because God doesn't make mistakes Right? So it's easy to punish ourselves for everything but we do the best we can with what we know at the time!
Did your jaw ever unlock? My jaw has been locked now for 27 days
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Glad your feeling better.. can believe that doctor would tell you that about not moving your neck ! They will literally scare the Shit out of patients due to what is going on in their own life …
Stay true to yourself and your beliefs... medicine, surgery or natural. The truth is what sets others free :)
Can you drive with that range of motion?
Yes!
I had a doctor look at me yesterday and say, “so you want to lose your neck motion eh?” I was like doc I have no quality of life as is. I have severe nerve damage, that’s no way to treat a patient.
So if you had to do it over again would you have done the surgery or just waited?
I was told NOT to have this surgery that it will only get worse by having the surgery. Especially when you are given this surgery by s Dr. who doesn’t take insurance AND asks you to sign Do Not Disclosure Statement.
There’s so many other things to do than to jump into a surgery that might do MORE than good.
Plz listen to Rachel.,, I think surgery isn’t what it’s cracked up to be.
Rachel would you share who did your surgery plz?
Yes that’s correct. I definitely wouldn’t have had surgery if I could do it all over again and see things much differently now. But I can’t go back so I try to view it as part of Gods plan for me even if it’s just to help other people see there are better paths to healing in most situations. I’m guessing if you look through my videos, you could figure out who my surgeon was. All the best ❤️
I’m so happy for you! Hopefully one day you can rock climb again! I found your channel last month so I’m new. I have CFS, and before I got sick, had been an avid rock climber for 6 years. I miss the gym, my coach, and everything about rock climbing.🥲 A few months ago, I started going to a holistic doctor as my CFS continued to worsen. We found I have 10-15 different kinds of bacteria in my system. And now are making progress on killing the bad bacteria and growing the good bacteria. I think natural and western medicine can be good depending on the situation. I know for me and my situation western medicine has done nothing but diagnose me and give me nausea medication. Holistic is trying to find what’s causing my CFS instead of just diagnosing. My holistic doctor makes me feel heard.❤️
Do u have any trouble with your neck muscles at base of skull ?