My understanding is that Mavacamten (Camzyos) is prescribed for obstructive HCM today and that there are discussions on making it available for non-obstructive HCM patients. I believe that there are many people out there with HCM that are not aware of it as it is not easy (or cheap) to diagnose. There does seem to be a need to put more emphasis on heart related illnesses as cardiovascular issues are by far the leading cause of death globally today, double that of cancer related deaths. Anyhow, it was good short video on HCM that should influence those with concerns to dig deeper into the topic.
i have been prescribed this medication and i am on it for the last one and a helf month only. i am feeling 70-80 percent better. Doctors are trying this medicine ( Me being used as a guinna pig) on me as i was advised surgery and was told if i would like to try this mecicine and i okaed it happily.
Professor Barlis Is the most honest professional smartest cardiologist in the whole world. He doesn't try to scare people to become his patients like all other drs do. He just gives the facts and options may he live at least forever!
Thankyou for posting about HCM. I've talked with two cardiologists in Sydney this year about Camzyos however have been unable to receive this treatment for HCM. I understand that it is TGA approved however it was rejected from the PBS in March. Are you treating HCM patients with this new drug, and if so can you let me know how they are paying for it?
You have to through hoops to get this medication. My mother was just diagnosed and can barely breathe...doctor prescribed it but have to go through endless paperwork for INSURANCE to approve it. Lunacy that they are the gatekeepers...weeks and weeks she could literally die without it.
Peter, thanks for this information, a friend and I were speaking only last week about a heart condition her 17 year old son has been just diagnosed as having. She couldn't remember what it's called but from her description I think it is this. He's being treated with some new drug which may be the one you mentioned.
I have diagnosed with non obstructive HCM in Germany in the year 2018. I am currently taking beta blockers but still exhausted if i do little bit exercise. I do not know when this drug will be available and will it be really beneficial for me for long term.
My understanding is that Mavacamten (Camzyos) is prescribed for obstructive HCM today and that there are discussions on making it available for non-obstructive HCM patients. I believe that there are many people out there with HCM that are not aware of it as it is not easy (or cheap) to diagnose. There does seem to be a need to put more emphasis on heart related illnesses as cardiovascular issues are by far the leading cause of death globally today, double that of cancer related deaths. Anyhow, it was good short video on HCM that should influence those with concerns to dig deeper into the topic.
Extremely helpful... thanks and all the best.
i have been prescribed this medication and i am on it for the last one and a helf month only. i am feeling 70-80 percent better. Doctors are trying this medicine ( Me being used as a guinna pig) on me as i was advised surgery and was told if i would like to try this mecicine and i okaed it happily.
what was your heart gradient and what is it now?
@@olejniczakphotographyplease share benefits of the medicine
Hi I want to discuss what was your gradient and what is price of medication can you please share your email
Good information sir
Sir
Thanks for good information
Professor Barlis Is the most honest professional smartest cardiologist in the whole world. He doesn't try to scare people to become his patients like all other drs do. He just gives the facts and options may he live at least forever!
Thankyou for posting about HCM. I've talked with two cardiologists in Sydney this year about Camzyos however have been unable to receive this treatment for HCM. I understand that it is TGA approved however it was rejected from the PBS in March. Are you treating HCM patients with this new drug, and if so can you let me know how they are paying for it?
You have to through hoops to get this medication. My mother was just diagnosed and can barely breathe...doctor prescribed it but have to go through endless paperwork for INSURANCE to approve it. Lunacy that they are the gatekeepers...weeks and weeks she could literally die without it.
How many years can be taken this medicine?
Peter, thanks for this information, a friend and I were speaking only last week about a heart condition her 17 year old son has been just diagnosed as having. She couldn't remember what it's called but from her description I think it is this. He's being treated with some new drug which may be the one you mentioned.
Indeed, we can see this condition picked up at a very young age. Thanks for supporting the channel!
I have diagnosed with non obstructive HCM in Germany in the year 2018. I am currently taking beta blockers but still exhausted if i do little bit exercise. I do not know when this drug will be available and will it be really beneficial for me for long term.
Prajen kondition good sir
Madison name tell mi sir
it is in germany since 07.2023
From where i can get this medicine is it available globally??
Thanks sir
هل هذا الدواء يخفف الأعراض فقط ام يخفف من ثخانة الحجاب بين البطينين
HCM is not always genetic.
Exactly
IS THIS IN CANADA? IF NOT, I WILL BE A GUINEA PIG❣️❣️❣️❣️