Adult Autism Regression & Social Differences

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  • Опубліковано 23 жов 2024

КОМЕНТАРІ • 80

  • @juliejackman2649
    @juliejackman2649 6 місяців тому +21

    I have the trait that I leave comments on people's channels about something that's similar that's happened to me and when I read through other's comments they always say things just about the person whose channel it is. I think another personal story might be interesting to hear too.

    • @i.am.mindblind
      @i.am.mindblind  6 місяців тому +14

      I agree, I love it when people leave relatable stories in my comments. It gets so boring when they all are about me. Lol, I'd much rather hear how what I had to say reminds you of something that relates to you. 😁

    • @tracik1277
      @tracik1277 6 місяців тому +6

      Yes, and I really like to hear that someone else can relate to my experiences, especially after so many years feeling out on my own.

    • @EricAllenGriff
      @EricAllenGriff 5 місяців тому +3

      Funny and not with all but a few friends we have AuDHD multi convos all at once... And we are all understanding. The stuff that confuses the heck outta those different from us. Not bad, just different. It's neat when we can free flow thru a varying conversation wherever it will go.

    • @Brainalicious
      @Brainalicious 5 місяців тому +5

      See, and that's exactly what makes conversation with other neurodivergent people so much more interesting! The conversations range widely, but still come back eventually if the topic is still of interest. ​@@EricAllenGriff

    • @vazzaroth
      @vazzaroth 5 місяців тому +5

      Omg I never even thought of this but 100% same. I can have a comment about p.much anything in the entire world. It's something I've been mostly admonished for but occasionally complimented for and now that I'm a full adult (30+) I realize it really IS more of a strength than a weakness. At least when you can get control of the gas and brake pedals. But otherwise I can basically 'yes, and..." anything from anyone forever as long as they're willing to play. (I called that "here's something about me, now you go" badminton communication in a diff comment and it really does feel like actual PLAYing to me. That's part of why 'serious' conversations freak me out so much.)
      What I personally notice is that my comments are often like you say. It was me responding to the same prompt the video maker was responding to. "Another answer" to the same question, basically. Then I look in comments and 80-90% are, instead, people having '1-step' (Ie not 'fractal', not multi-branching, singular and one-track) emotional reactions to what was actually, concretely said in the video. Always gives me a strong sense of embarrassment after I've already wrote my 5 paragraph response and 99% of the people above and below me went "Lol when you said bingus". Funny how it mirrors the same type of social 'too much' rejection I was experiencing so often in school and even work, and why I am, generally, a 'shut down' person in reaction. The only thing that screws deeply with me is when people just stop responding. I don't know what to do with that because I can't carry a convo on my own. Or if I'm forced to, then i actually do start to feel like I'm really monopolizing everything with my own thoughts, because what else do we have in life besides our own thoughts to talk about?
      (I say, autistically perhaps lol... Apparently NTs figured out something else that life is made of to talk about? Enough that they call even a modicum of re-telling self-facts being 'self-centered' I guess. IDK, I don't understand and never have, prob never will. I am only aware of 2 modes of social communication: Self starring anecdotes or re-telling anecdotes of others I've heard, and talking about a technique or opinion about a topic, like a TV show or other work of art. I can't even come up with a single thing that falls outside of this range currently... hmm. Yea I got nothing. I guess maybe that's what all this 'small talk' is? Just like......... restating recent facts or something, like weather. Not that this reads as communication to me, just kinda gapfilling contentless nothingness.)

  • @garrettwilliams6246
    @garrettwilliams6246 5 місяців тому +9

    14:00
    My mask is all about making other ppl comfortable, that’s how I had friends..
    As a black kid in all white schools my main goal was for ppl not to be threatened by me. It felt like I had the entire African American race on my back to prove to these ppl that black ppl are not dumb or ignorant and that we can be very well spoken and intelligent as well as funny and anything that I felt like I was “supposed to be” at the time.

    • @HappyMomma412
      @HappyMomma412 5 місяців тому +1

      Yes!! It’s exhausting. 🤦🏾‍♀️👏🏾🙏🏾💜

  • @not.a.kewpie
    @not.a.kewpie 6 місяців тому +17

    I’m a 22 year old medium support needs autistic and I find so much comfort and feel so seen listening to you talk. I talk very similar, and struggle in similar ways although I’m not really able to mask. Currently feeling overwhelmed from a long day but this video feels like a FaceTime with a friend and is bringing me back to earth. So glad I found your channel. :3 🍓💫💕☁️🌈

    • @i.am.mindblind
      @i.am.mindblind  6 місяців тому +3

      Thank you, thank you, thank you. I'm so glad I can be that for you. ❤️ I hope you have a good evening.

  • @nesrasiti
    @nesrasiti 5 місяців тому +6

    Insanely relatable, transparent and profoundly validating! I swear, 90% hits home hard. Thnx 4 real 4 real. Hugs.

  • @laymayday
    @laymayday 6 місяців тому +9

    I’ve always thought of asd and adhd as the nts saying “because they are not like us they are therefore wrong”, which I strongly disagree with. There’s not something wrong, it’s just a difference!
    Thanks for the video ❤ (I hope you understood what I was trying communicate🙈)

    • @i.am.mindblind
      @i.am.mindblind  6 місяців тому +4

      I gotcha! That is what they have said, but we're changing the narrative! 😁❤️

  • @lisawanderess
    @lisawanderess 5 місяців тому +5

    I am so glad I found your channel! (Thanks UA-cam algorithm 😂)
    I can so relate to you as I was late diagnosed with autism after having been diagnosed with CPTSD too. I agree that being an undiagnosed autistic for most of your life is hugely traumatising. Social communication is my biggest challenge. I have friends scattered around the country who adore me but also have no social “group” and most people I really struggle with and always feel “too much”.
    I used to be a member of “Sisters on the Fly” who are a huge womens camping group that love to dress up and decorate their trailers all cute and I was like “Yay these are my people” we went on trips all around America in vintage trailers and I did a full trip of Route 66 with them but I ended up going off on my own a lot as I get too overwhelmed in group settings.
    Now I’m homeless and live full time in my vintage trailer and have moved back to Australia. I have a UA-cam channel that I’d love you to check out as I don’t have many people in my life who understand how much being autistic affects my life. My family have completely cut me off 😢
    Oh I so get the being told I’m talking too much or self absorbed because I tend to just fill in the gaps of conversation with my stories and completely forget to ask people questions about them, and when I remember to do that all I’d get was one word answers and no details! 😂

  • @loridennis6979
    @loridennis6979 5 місяців тому +5

    I love the idea of camping with a group of women. Someone meeds to start "Autistic Women Who Camp"! 😊

    • @i.am.mindblind
      @i.am.mindblind  5 місяців тому +1

      Sounds so lovely!

    • @lisawanderess
      @lisawanderess 5 місяців тому

      I am an autistic woman who camps full time as I live in a tiny vintage trailer! ❤

  • @vazzaroth
    @vazzaroth 5 місяців тому +3

    Man same to all of this. I had my wife point out that "I talk about myself" a lot and never realized, because to me, I'm not talking about myself at all. I'm 'offering' and then going "Ok now you go..." but it's been super spotty whether that works w/ people. That much I did notice. it wasn't until my 30's where I started to realize not everyone is getting the badminton back-and-forth I'm expecting, and are instead just... idk I guess waiting for a stimulus that they recognize for a conversation topic. I'm def more ADHD/AuDHD than anything, and after trying to figure this out for years I guess I finally realized not everyone's brains 'light up' with related connections and related thoughts when any one thought passes across their grey matter like I (And other ADHD + AuDHD people report) do. I've heard reports that allistics need to be 'prompted' for their thoughts to turn, and otherwise just kinda go the same way they were already going and it blew my mind entirely. That was the moment I fully and 100% accepted that I have ADHD onboard, and I sure hear a lot of AuDHD ppl specifically talk about this, more than any other one community in fact. So I'm still very questioning there but allies always lead towards answers so far.

    • @ninconnue5609
      @ninconnue5609 5 місяців тому +1

      I also have a very strong tendency to come up with related connections and thoughts! Often when I talk to people I have to explain why it relates, though, because they don't see the linkages. My brain is like a natural version of that "conspiracy theorist's wall" meme where there are strings showing connections between every piece of paper pinned on the wall in multiple different ways.

    • @BliffleSplick
      @BliffleSplick 4 місяці тому

      "I talk about myself because I know a lot about the topic. I don't talk about others because that's rude as hell. I would PREFER to talk about ideas and things, but that seems to not be common."

  • @jesterr7133
    @jesterr7133 4 місяці тому +1

    I have a good example of PDA. I do small engine repair as one of my special interests. A friend of mine had an old mower in his back yard that hadn't run for years, and asked me to see if I could get it running for him about a year and a half ago. I had it running within 8 hours, but then made a mistake changing the oil that necessitated a complete teardown of the machine. I disassembled it, and then my PDA kicked in. I just got it running again yesterday. It sat disassembled in my shop for over a year because I just could not bring myself to work on it, even though I wanted to work on it. I had to force myself to work on it, but I should be giving it back to him tomorrow, barring any unforeseen disaster.

    • @i.am.mindblind
      @i.am.mindblind  4 місяці тому

      Its so frustrating when PDA gets in the way of things we actually want to do.

  • @notsillyone
    @notsillyone 5 місяців тому +4

    Thanks Amanda for another relatable video!
    As an adult unless I'm asking people very specific questions like "whats the time", I find it very awkward. I prefer to be with people who talk a lot so I can listen, because they are more likely to say something where I can ask a specific question to show I'm interested. There are a bunch of people like this I work with, that I'm very comfortable catching the train home from work with, where as most of the time I would prefer to just read a book and avoid talking to anyone.
    As a kid, I used to drive everyone nuts asking questions. Most of my questions were about things I could find answers at the library. So once I got access to the school library, that mostly satisfied my curiosity. But with social interactions as got older I became out of practice from being more cautious from too many mistakes.
    Now though I'm lucky to work with a good bunch of people that understand me, so I'm able to learn from them. The best part about it, is the social interactions are spread out through the day, with the actual work feeling like a break from them. Also because we are often busy, people tend to be more accepting of anyone being direct but still polite on work related matters, which suits my communication style.

    • @i.am.mindblind
      @i.am.mindblind  5 місяців тому +1

      Yes questions about things are a bit easier than anything that may be considered personal in nature to me

  • @OlegWoronin
    @OlegWoronin 4 місяці тому +1

    This video almost perfectly describes my communication style, as well as the social difficulties i face due to these differences. Thank you for the validation! It means a lot to me to know i'm not alone in this 💚

  • @EricAllenGriff
    @EricAllenGriff 5 місяців тому +1

    56 years in... I've come to the conclusion that a good friend is someone that is them self, and honest. Everything else good or bad just makes sense then . Free flow. Not masked or hidden. Blatantly out in the open. I can handle the truth far better from the get go then the crash later on when the truth comes out. What is real is important to me.

  • @Velvet_Wings9
    @Velvet_Wings9 6 місяців тому +4

    Asking questions is the hardest

    • @i.am.mindblind
      @i.am.mindblind  5 місяців тому

      It really is for so many of us who were told not to do so.

  • @kj7238
    @kj7238 4 місяці тому +1

    This resonates so much with me, especially the friendship bit about 'I will share something about myself and then you will share a similar thing about yourself' thought process of 'getting to know you'. This has generally led to the non-autistics kind of just thinking I'm very self-centered and always trying to make every conversation about me, or that I'm thinking it's a competition, if that makes any sense. I am very grateful that I have found several extremely close friends who get me and don't judge.

    • @Icoulson1
      @Icoulson1 4 місяці тому

      i do the same!! this is amazing

  • @Green_Roc
    @Green_Roc 4 місяці тому

    I have come to the end of the video.
    I believe there is someone for everyone.
    I found someone in my life who loves to hear me share my stories. Even if I repeat one of the stories about me, she is delighted to hear it again. I hope you find that friend for you, to share everything with, without fear.

  • @Velvet_Wings9
    @Velvet_Wings9 6 місяців тому +3

    Sometimes I can definietly feel my social differences as deficits cause they gave my such a hard time with socializing. 😢

    • @i.am.mindblind
      @i.am.mindblind  5 місяців тому

      That makes sense. I still prefer to use the more affirming "differences" because my way of communicating is valid but it really is hard to navigate society set up for Allistic communicators. 😢

    • @Velvet_Wings9
      @Velvet_Wings9 5 місяців тому

      @@i.am.mindblind true

  • @missmissy5170
    @missmissy5170 5 місяців тому

    Thank God I don't want friends. I've always wished I wanted to have friends, but just don't have the desire.
    Seeing how you are struggling with wanting friends, but not knowing how to go about it, really makes me count that small blessing. 😊

    • @i.am.mindblind
      @i.am.mindblind  5 місяців тому

      That's one way to look at it, and if thst works for you, I'm glad. I do struggle, but when I have friendships that work, even for a short while it does bring a lot of joy to my life.

  • @Green_Roc
    @Green_Roc 4 місяці тому

    13:05 My mother ordered me (when I was under 10 years old, an undiagnosed autistic girl) to not ask "why" questions, and in my literal mind, I obeyed her. I did not learn "pragmatic" social skills, nor learned why we have to ask "how are you?" nor did I know we are supposed to 'lie' as a response when asked. I refuse to LIE! Mom also told me that people really dont wanna know how I am really doing, as I was sharing too much 'real stuff' somehow.
    I was not allowed to ask why, for anything. I grew into a confused autistic adult... I'm glad she's dead. I am practically a child in many ways at age 47, as she only died less than 10 years ago. Only after her death was I free to find my own way in life, and not be obedient to her rules.
    I hear you (although, I am a month behind in my youtube inbox). I wish we knew how to make friends better too. I find myself with less than 5 close friends, and hundreds of broken bridges with ex-friendships. We both missed out on learning how to make friends in our unique autistic way, by the reoccurring denial of an environment suitable to our minds. My closest friends are ADHD and/or autistic people.

  • @lesliekarl3594
    @lesliekarl3594 5 місяців тому

    I am in the process of getting a ASD/ADHD diagnosis and highly suspect PDA in the mix as well (among other things). My hubby is ADHD and we are 163% sure he also has PDA. Our household is a real treat sometimes lol, but at least we can laugh about it now! Well, mostly! 😅 Thank you for mentioning that it may not be linked solely to ASD. ☺

  • @NixiesHaunt
    @NixiesHaunt 5 місяців тому

    Oof, I relate so much. Particularly the "questions" part, I used to be a lot more open and able to ask questions without worrying that the other person would be put off, but as i got older, it seemed like more and more i was unsure of what was a normal "getting to know you" type of question, (and when it was 'appropriate' to start asking those questions of an acquaintance,) and what was an intrusive/too soon/oversharing kind of question, so i eventually stopped asking questions beyond the most shallow, surface level topics like what books/tv/games do you like?
    And lately, it feels like people are immediately bored with me and i dont really know what to do about that. I don't know how to be open like i was as a kid/teenager. Plus throw in the tremendous burnout i hit several years into adulthood and the skill regressions i had as a result of that and also being intensely out of practice due to extreme isolation--even prior to the pandemic--and it's gotten really bad. I miss having friends, and i wonder if i ever really knew how to find/keep them in the first place.

  • @Vic-Meow
    @Vic-Meow 5 місяців тому

    Your hair is so pretty.
    And I love your thumbnail title -- I can't see it now that the video is playing but I think it said "if I'm too much, then go find less."

  • @MissNikkiDawson
    @MissNikkiDawson 5 місяців тому +1

    I have simular issues feeling strong friendship vibes with someone but to them I am just an acquaintance. 😅 at least now in my process of trying to unmask, I will typically just ask straight up "Do you consider me a friend?" Or if I have a weird feeling like they dont like what I said, I'll ask if I did something to upset them or if I'm just overthinking LoL

  • @NateDani85
    @NateDani85 5 місяців тому +4

    I'm too much for my friends and even my spouse too 😢

    • @i.am.mindblind
      @i.am.mindblind  5 місяців тому +3

      It's so hard. ❤️

    • @Catlily5
      @Catlily5 5 місяців тому +2

      I was too in the past. Luckily I found a partner who could deal with my emotional dysregulation. With my few friends I try not to be too unregulated around them. I try to save it for therapy.

  • @allheartandsong
    @allheartandsong 5 місяців тому +1

    I relate to this so much and I havnt really founs someone who is like me. I struggle keeping friends and I also feel like people come to me for advice so they can go back to their real friends. I also put people in close or best friend catagories when I am only.an aqaintence to them. I over analyze past friendships and get really bummed and wonder why they ended.

  • @Catlily5
    @Catlily5 5 місяців тому

    It sounds like you were an informal therapist! I can take that role too! I am trying to have more balanced relationships where they support me sometimes as well.

  • @sleepingroses761
    @sleepingroses761 5 місяців тому

    I've been fortunate to encounter a lot of others who are comfortable with my neurodivergent conversation style. They are often also neurodivergent themselves! Those who aren't comfortable just don't seem to stick around, and thankfully it's worked out so far.

  • @lesliekarl3594
    @lesliekarl3594 5 місяців тому

    Wonderful musings! Thank you for sharing your experience with the rest of us 🥰

  • @garrettwilliams6246
    @garrettwilliams6246 5 місяців тому

    Your content is so relatable !
    Amanda = 🐐
    Greatest Of All Time (autistic content creator)

  • @RovingReader
    @RovingReader Місяць тому

    Just found your channel and am thinking about getting formally tested... Your content is helping me reflect on it.

    • @i.am.mindblind
      @i.am.mindblind  Місяць тому

      I'm really glad I can help. Getting diagnosed for me was life changing in the best possible ways. If I can help others understand themselves better, that means a lot to me.

  • @mylissahq4602
    @mylissahq4602 5 місяців тому

    This is so relatable! I too was that “friend” that everyone came to with their problems. I gave good advice (I’m terrible at taking my own advice though 😅). But no one ever asked about my problems or how I was doing. A lot of my friendships felt very one sided.

    • @i.am.mindblind
      @i.am.mindblind  5 місяців тому +1

      It always gave the illusion of being close with someone.

  • @CS-rd2nb
    @CS-rd2nb 5 місяців тому

    Another very good video and very relatable.
    I like the blurbs/little windows that you pop up to further explain, I often feel like that is what is needed in everyday conversations in order to clarify things with other people, but of course, that is not how the world works/or maybe it does, as you mention navigating friendships and communications with NT's, very challenging now even though diagnosed (very late, 40's), reevaluating all interactions and friendships through a half broken mask, work in progress and trying to catchup as a 50yr old teenager :)

  • @MissNikkiDawson
    @MissNikkiDawson 5 місяців тому +1

    Oh yeah, I totally relate to friendships ending in non healthy ways. 😢 I am still traumatized from losing my best friend after highschool which led to a lot of destructive and bad times in my life. Do you ever think about contacting those ppl from the past for some not so negative closure? Should we just let it go? 😅

    • @CS-rd2nb
      @CS-rd2nb 5 місяців тому +2

      I often struggle with the same question, to go back and figure things out, never having a clear picture then, but thinking I could figure things out now, The whys/how's for what has happened, but never having closure or answers, also, still not being able to really figure things out, so think " best not to try," or " that may be weird for them" or "was that bridge burned?"

  • @Meipmeep
    @Meipmeep 6 місяців тому +1

    I struggle with saying that people are friends because friendship has a checklist and I don’t meet those requirements. People call me their friend but I still can’t classify myself anything better an acquaintance. This has led to a lot of arguments.

    • @i.am.mindblind
      @i.am.mindblind  6 місяців тому +1

      I struggle with labeling someone a friend too.

    • @TheLastEgg08
      @TheLastEgg08 5 місяців тому +1

      Adhder only here, and I have so much hard time classifying acquaintances. I have acquaintances, everyday friends who are just acquaintances with a plus and true friends. PS: I don’t have true friends.
      Is it because we struggle with social things or is it because throw words around so damn easily?

  • @Catlily5
    @Catlily5 5 місяців тому

    I am an extrovert too but I can't handle too many friends at once because it is too much for me. I have 3 friends now.

  • @hollyspeckle
    @hollyspeckle 5 місяців тому

    I think you seem a really interesting person; I’d rate you prime friend material ☺️ would also love a deep friendship or two, a sort of platonic soulmate… In a stage of life where I have friends aplenty (makes a very welcome change! Think I’ve found my tribe at last) but none of them are that. Thank you for sharing your thoughts

  • @21zero64
    @21zero64 5 місяців тому +2

    🍩 can sympathize 💯
    its actually super exhausting to try to maintain appropriate conversation histories & boundaries w each individual preemptively, so a lot of the time its just Functionally Easier not to talk about anything substantial w anyone even when i Rly Want to just to avoid aggravating frustration thru dissatisfaction??
    i have a v hard time weighing cost benefit analysis of interacting for health when accessible options & capacities are so limited now bc responsible adulting is always priority by absolute necessity, too. doesnt leave much time & energy for philosophy for fun, lol
    so idk how to safely expand friend horizons to satisfy social needs when everyone around me seems to be focused entirely on basic survival anymore, either
    would love more simulating conversation & topic exploration w friends in my life, tho! is this video also an invitation for like minded people to reach out & say hi to you somewhere? :>

  • @EricAllenGriff
    @EricAllenGriff 5 місяців тому

    Another term that annoys me is "Co-Morbid". Thanks for sharing Amanda.

  • @tonyascott7887
    @tonyascott7887 5 місяців тому

    Omg you are explaining my life

  • @katzenbekloppt_mf
    @katzenbekloppt_mf 5 місяців тому

    Oh yes, exactly feel that way😢

  • @Velvet_Wings9
    @Velvet_Wings9 6 місяців тому +1

    My native language is hungarian, and it is very difficult language with difficult words, so a lot of the times, especially when I am tired the words just don’t come. English words come insted cause it is an easier language. So I speak half hungarian half english 😅

    • @i.am.mindblind
      @i.am.mindblind  5 місяців тому

      That's really interesting. I'd think your native language would be easier! Also, I've always heard English is so hard so I can only imagine Hungarian! Wow. I wish I knew more than one language but I've never been good at my attempts to learn a second language.

    • @Velvet_Wings9
      @Velvet_Wings9 5 місяців тому

      @@i.am.mindblind hungarian is one of the hardest languages. For me english is quite easy and simple

  • @Green_Roc
    @Green_Roc 4 місяці тому

    Talking outloud to nobody, never did my thinking any good.
    I have had so many people tell me to write in a journal, but that never felt as clear or solid to process stuff...Having an audience somehow makes my thoughts more clear.

  • @chrissimpson1183
    @chrissimpson1183 6 місяців тому +1

    Thanks for your incite, how is the book going?

    • @i.am.mindblind
      @i.am.mindblind  6 місяців тому +2

      It's coming along. I've got a few friends who are going to read it and give me feedback. Thanks for asking!

    • @chrissimpson1183
      @chrissimpson1183 5 місяців тому +1

      I am glad its coming along....

  • @taylorm1690
    @taylorm1690 4 місяці тому +1

    “Not a social deficit, but a social difference.” ugh brb cryin in the club rn 😭😂 27 y/o F with Asperger’s/ASD.

  • @garrettwilliams6246
    @garrettwilliams6246 5 місяців тому

    16:00