Childhood apraxia of speech 
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- Опубліковано 30 бер 2023
- Lindy heads to the dentist with her AAC device.
#ChildhoodApraxiaOfSpeech #Specialneeds #Apraxia #apraxiaawareness #SpecialneedsFamily, #Disability #disabilityawareness #dentist #PediatricDentist #DecentAppointment#AAC #AACDevice #communicationdevice
my daughter has this, she was in kindergarten and had maybe 10 words. it's put her so behind. she's talking so much better now she's 9 and in 4th grade, but it's been so hard for me as a parent thinking what I did wrong or if I could have changed anything. it makes me feel like a failure as a parent watching kids her age be so advanced. she's still struggles with alot of sounds but she's grown so much and I'm so very proud of her. best of luck to you ❤
I have a very severe case and I know at times my mom felt the same way. I had speech and motor delays, getting diagnosed when I was 1 1/2 years old. I also was put behind in reading and writing. Now as an adult I am just happy she advocated like she did when I was younger. I was able to get all the help/ support young. I had extra support in class until I was in Grade 5 and had speech therapy until I was 12. So when I older and started high school I was all caught up with my peers. I excelled in high school and got into a highly competitive university program. I also end up playing on a selective sports team as well. My only effects from it is, I still struggle with my writing skills. Keep in mind in some cases there is a gene mutation that happens that can cause it to happen. I got the testing done because of how bad mine was and I have the gene. I am pregnant with my first and it's my worse fear the he has it as well. I just didn't want him going through what I did. As it was such a big struggle. Just keep in mind you did nothing wrong and things like these happens.
Mine is 14 with a severe stutter, I know it’s not our fault but I kinda feel the same way. He only had about 5-10 words between 2 & 3 so we started speech therapy and it turned into a bad stutter. He was the baby of the family so everyone said they always speak less because there siblings do it for them, I heard so many things that stopped me from addressing it sooner. Everyone said he would grow out of it, and his dad really thought that, so I do blame myself that maybe I didn’t do enough. But 11 years of speech therapy and well, he still has a severe stutter.😢
@@joseagoudy-gervais8590 I wonder what this gene in, and do we just have to ask the Dr to test for it? My sons aunt had a slight stutter when she was a child and grew out of it, which is why my ex always said our son would since his sister did. I explained my son under your comment.
Luckily he had great support in school and still does and has his IEP, hes confident and he has a very large group of amazing friends and plays sports. He stays high school next year so I’m a little worried, but I stressed so much when he started jr high, and turns out everyone loves him and he’s the captain of his Volleyball team, he’s pretty awesome actually!
It just hurts when he breaks down and wants to end a conversation because “forget it, I just can’t talk”
@@beauR-u9m I don't know what the gene is for sure. When I got pregnant my mom told me about me having the gene that makes it more likely. But also said just because the kid has the gene doesn't mean he will develop it. She also gave me warning signs early on to watch out for. I also had family history of speech disability and that what lead them to do genetic testing on top of how severe it was. I am happy your son is doing well and has a great group of friends. If he decides to go to university get him to do accomdations. I really didn't need a lot of mine that was given. But it gave me a chance to talk with the prof about what I struggle with the most and might need some assistance with. So in your son's case case will be studdering during presentation. Profs are very approachable and helpful if you ask for help. They are there to help and isn't this distance person most people make it out to be .I also understand how frustrating some of the effects of it is.
My little sister had some speech and movement difficulties when she was younger. She did go to physical- and speech therapy for several years. All of us siblings have dyslexia so that hasn't gone nowhere, but otherwise she is doing so well nowdays. She graduated from highschool and just finished 12 months of army training (we are not from the US). She has dealt with lots of difficulties, but that has made her really strong mentally. If she wants to do something, she will do it no matter how long it takes. I'm so proud of her.
My son had apraxia. I did Hooked on Phonics and his speech improved faster than I could have imagined. He learned sign language starting as a baby to communicate before he could talk. As an adult now, one would never know he dealt with this as a child.
My little brother also had the same diagnosis a few years ago but still he is young and i was wandering can he speak normally ? And i noticed he had some reading and writing difficulties dose ur son face the same problem?
@@user-uw6gh4eo4x He did as a youngster but I kept a schedule with him and knew it would take what I called "beating the path". I could tell he was smart but couldn't get that out very consistently or well. It was as if the "telephone lines" between whatever he was learning, his brain, his repeating, his learning for life were not direct lines. They seemed to bounce all over like a badly scheduled plane trip instead of a direct flight. It took a lot of repetition before it became that direct line and needed to be repeated periodically to stay that way, although more with just normal living and learning.
Also, like I said Hooked on Phonics helped a lot. All those hard sounds became easier to say at the beginning, middle and end of words. Not only did it help his speech, it helped his reading. He still had some difficulty reading out loud throughout grade school but his comprehension was years ahead of his peers.
Kids with apraxia are often very smart. It takes work when they are young but it is worth it. It is important to teach sequence and to help the child with apraxia to have organizational skills. Martial arts might help.
My son who had all the "misfiring" between his brain, his speech, his motor skills, etc" is currently a Capt in a fire department, a homeowner, a husband and a new dad. One would never know he struggled so much as a kid.
@@user-uw6gh4eo4x As-salaamu alaykum, Great and encouraging advice from Dee Dee above. Find professional help for your younger brother, if possible. Maybe find a Speech and Language Pathologist (SLP) through his doctor. With referral it might be covered by health insurance. Also, do the dua of Sayyidna Musa (the prayer of Moses, who had speech difficulties). I did that for my son, and he's improved a lot, thank God.
I’m a speech therapist, and this makes my heart so happy!!!
Same!
Also SLP
I have a daughter with DS who had a massive stroke and was left non verbal. What would be a good app for her to use? Thank you!💙💛
@@reenroseser6646collaborate with her school team and SLP. Does your daughter already have a device? Abilities and preferences can vary greatly, so it’s hard to make any sort of recommendation. The best way to teach her is for you to become fluent in the language of her device. When you speak to her, use her device and touch all of the content words that you are using yourself. She can’t learn it without a consistent model.
@@Fiery154 she does not have a device. She is 33 and not in school and since she is on medicaid they cut her speech therapy...i cant seem to find help anywhere and it is heartbreaking watching her struggle. 😢🥺
@@reenroseser6646 I am so sorry! Your daughter deserves to communicate as much as anyone else! If you have a university near you that has a speech therapy graduate program they will likely have a speech and language clinic, where your daughter could receive speech therapy at a greatly reduced cost! Without seeing your daughter and conducting a device trial, it is impossible for me to know what AAC device and system would be most appropriate for her. Most of the systems come in app form that you can buy and download on iPads. I personally like snapcore from Tobii Dynavox, but it is not a good fit for everyone. It is also important to remember that if your daughter gets a device, she will need extensive training from a speech therapist, and you will also need to model language on the device in order for carryover of the communication system to be successful. Good luck! ☺️
She is darling. There’s no other word for it!!!
You might also consider ASL. It is super fun and easy to learn.
The spoken German language would also good be good for her she can speak the spoken German language if she does do it everyday like me
i’m so glad apraxia is being acknowledged! my little brother had this, he’s 11 and going into middle school next year. he has come VERY far from where he was and it is still difficult for him to form certain words, but i’m proud of him. it’s difficult sometimes trying to get people to understand him. but he’s super smart and just like any other typical 5th grade boy (annoying as well ✨)! thank you for this video😊
I had very profound speech apraxia when I was a child. My parents knew that I had been diagnosed, and did nothing. The school provided speech therapy once a week. I was forced to go to school with no other assistance. I got no device like this, it truly is a blessing for her to have!
My daughter had apraxia of speech and went through years of speech therapy. She didn’t have the communication device though back then -that would’ve been so helpful! But now, her speech is perfect and it wAs definitely worth all the hard work she did!😊
Same here, Jennifer. No device, just signing so she could communicate with us.
That’s so cool, I had speech problems as a child and learned basic sign language words, a device like that must give her so many more options and help so much
I'm glad you are supporting her and give her alternative methods of communication besides speaking! 💜
You’re so wonderfully supportive of your children and it makes me so happy to see❤
Awww we all want to be understood. Thank heavens for this device
Wow I just found this channel and TBH I don't know how you do it! 😳 I mean having 6 young kids is extremely hard but then add on that most of them are special needs, what you do is incredible and can tell you're an amazing mom! Are their disorders genetic? Is it something to do with a gene that you or your husband carries? I couldn't imagine how hard your days can be, but your kids are all so cute and seem so kind and very loved and happy so I think they all got the right mama!! So excited to watch and meet your family thanks for sharing your experiences, I know you help a lot of people!! 🫶🏻🫶🏻🫶🏻
my cousin was born with this too. she's 17 now and was in therapy for many years when she was little. she got a lot better but sometimes I struggle to understand her. especially if she's speaking fast or is crying. I have to ask her to repeat herself but I think she knows I ask because I care what she has to say.
whereas others get frustrated and just mock her. it breaks my heart for her.
@lilylaura6955um....I dont know what you're on but I don't have herbs nor am I a doctor let alone by that name. 😅
F me , to have clear speech. To just speak 🗣 and someone understands you. In my dreams . Or in my next reincarnated life.
@Tom-zg6sb what was your point to comment that to me though Tom? I'm sorry. ☹️
I'd suggest write what you want to tell the person and give it to them. less struggle to understand you that way and faster communication between both of you. ❤️.
I have times where my autism takes away my ability to speak at all so I'm forced to write.
but frankly I've always been better at written communication than speaking anyways.
if you're nervous to write because you want to speak then I suggest write what you want to tell whoever it is and then leave the note with them and leave. they can either write back in reply or come up to you later on and tell you what they need to in response. way less stress that way.
Goodluck ❤️
@Tom-zg6sb but if it's to do with stuttering, a way that helps people is getting a special chest band that helps you breathe properly when you'd normally start stuttering. which helps you regulate yourself.
and sometimes people are helped by singing.
I suggest of it's anything like that then do some research on ways to help yourself out. you cant lose hope in yourself.❤️
My great nephew has a device similar to that. What a Godsend for your beautiful little girl!
I'm a Lindy too!😃 She is adorable!
My little sister has dyspraxia. She basically speaks her own language but does ok. She's in her 30s so when she was little her communication device was huge! We had to bring a cart everywhere to push it in. I'm so grateful for the use of tablets now.
Neat device. And she's adorable!
That’s good to see that Lindy is using her communication device. Haven’t seen her using it in recent videos. A communication device should never be taken away from someone just because they can speak. We are identical twins who have autism and we use a communication device Evan though we are semi verbal. We still benefit from aac.
She is soooo adorable 😍
I was diagnosed with verbal aplexia when I was two years old
My little brother also had the same diagnosis a few years ago but still he is young and i was wandering can he speak normally ? And i noticed he had some reading and writing difficulties did u face the same problem?
I really feel like your such a supportive en lovely mom
She is so cute what a sweetheart 💗
I’m happy to see Apraxia being acknowledged! My little brothers both have it and struggle with helping people to understand. Neither of them can say my name properly, but my friend Jameson is helping to teach Nolan!
She is just adorable.❤
I have a friend who uses an eye gaze communication device to help her speak. that device for my friend and lindy us there voice
I wish I had this device as a child, instead I just had people getting mad at me
Well if your non- Speaking Than yes you would get one of these most likely but Just saying you want one doesn't mean you need it.
As a former AAC SLP, this warms my heart!
She’s a doll how adorable ❤❤
My son had severe aphasia. They thought he would never talk. Now he doesn't shut up. Haha. Hang in there. Your daughter is really çute.😊
She is adorable! So glad she has, in place, a way to communicate that seems, for the most part, to work for her. 😊
My daughter has this. She was diagnosed when she was 3 yrs old (1995). She had difficulty in school because of it. While teaching her to speak with speech therapy, I went through special sign language classes. We did sign language, but we had her to try to say her words. She is now 30 years old and still stutters and has difficulty speaking when she gets overwhelmed. Hugs for you and your daughter.
My little brother also had the same diagnosis a few years ago but still he is young and i was wandering can he speak normally ? And i noticed he had some reading and writing difficulties dose ur daughter face the same problem?
Hii, Oh my goodness!!! I had apraxia when I was little and I wish I had this. My mom was the only one who kind of knew what I was saying. But I learn and proved
The doctors wrong and that I I will speak! I love this little girl and tell her the it is ok because it takes a long time.
How about she tries to speak German I am doing it for reasons that do involve Lufthansa and also because it is very beautiful too I would like to see her try and speak German if I can do it then she can too
I wish i had this with my first son who couldnt speak at all until about 4. We started using sign with him but my family did not like that and so not everyone would do it this would have been better
Thanks for sharing! We can't know all the differences in the world until we are introduced, I do appreciate you reminding me/reteaching me that all issues can affect all people at all stages of life (essentially). So many times we get caught off guard by a concept we haven't yet come across or considered, and then we can be rude or thoughtless because we're flustered. If I was to meet a small child with dyspraxia of speech now, my brain is prepared to recognise that and try to respond appropriately (ie Respond! Ask! Learn! Appreciate!) Thanks again for sharing and making the world a kinder place. (Do you watch SBSK? Gosh, I LOVE that channel!)
She’s adorable, love her dress! Such a pretty smile.
She did so great at the dentist. My son was very apprehensive going to the dentist at this age, he’s 22 now. They do grow up so fast!!
She’s absolutely adorable!
Thank you for making communication available to her via an AAC while she's young.
It’s so great that you are able to use the device with her. I have been a teacher for virtually impaired students and have seen students who use these at school but they were not available for them at home. This was quite a while ago as I’m retired.
What a cute girl! Glad she has a way of communicating that is awesome!
She’s is so cute 🥰 and what a very happy little princess she’s a smiling all the times that’s adorable 🥰 ❤❤❤❤❤❤❤. You have a beautiful angel 😇 from heaven take good care of her because God has blessed you . 🙏🏼🙏🏼🙏🏼❤️🥰🥰🥰🥰🥰
I love the fact that these communication devices exist!! I have known a couple of people who needed to use them/had children with them and it just makes me so glad that kids who otherwise couldn’t or would have a hard time communicating now can communicate so much easier
awww lindy that is such an adorable name she looks just like a lindy too
My son has the same condition but they are beautiful children
YOU'RE A GOOD MOM. WENDY IS BLESSED. 👏 👏 👏 👏 👏 👏 👏
She is a cute little girl and she seems like a very smart young lady. Even though she can't talk very well it seems that from watching this video that she knows what's going on. I'm sure with extra help she will come to speak and communicate so well.
Omg, she is so precious!
Lindy is a pretty name
she is adorable.
She’s adorable 🥰
She is adorable
She's adorable.
My 10 year old has this. He started speech therapy at a year old and now as a 5th grader he’s graduating from speech therapy.
My little brother also had the same diagnosis a few years ago but still he is young and i was wandering can he speak normally ? And i noticed he had some reading and writing difficulties dose ur son faces the same problem?
@@user-uw6gh4eo4x yes he’s a straight A student norw! He loves books and word puzzles
that's so AWSOME Lenny your so adorable my little one don't like x-rays either I know it's not comfortable your so precious your a brave little girl iam praying for you
my tenants' daughter still has to work really hard to verbally communicate, but she's able to do it consistently, and it's awesome to see her grow & develop, she definitely is a master of nonverbal communication now that she's 8.
My son has appraxia. Boy, I wish we had a device for him when he was young. It was so hard. He finally started making great progress with speech at 6-7 years old and finally understanding some words. He's 12 now and has graduated out of ST last year. He still has an impediment with some pronunciations, but it's amazing how far he's come!
My little brother also had the same diagnosis a few years ago And i noticed he had some reading and writing difficulties dose ur son faces the same problem?
It's difficult to see any problems, she's so cute and bubbly. All I see is pure sweetness. Hope you are able to help her to the max and love her every day.
Then she should try to speak the spoken German language if there is nothing to severe I am doing it if I can do it then so can she I would love to see her try to speak German
@@CamilaAntelo2004 Really? If she’s having trouble expressing herself in English what makes you think teaching her German would be any better? She’ll still have trouble saying words no matter the language.
The best of luck to you and Lindy! I am an aspiring BCBA and I work with a girl a little older than Lindy who is nonverbal due to autism. She also uses AAC and I'm glad to see it working for other families/other disabilities! I hope to go into the field of AAC and other assistive technologies someday.
I wish I had this when I was growing up, it would have been a lot easier for me
My son was diagnosed with this at first, but the specialists were not 100 certain that it was the right diagnosis. He did start talking at around 3.5- 4 years old. He was just a non-verbal autistic with other speech impediments. He does speak, just can't pronounce properly, get the words out nor grasp grammar. The CAS diagnosis was removed.
We used sign language up untill he started talking.
Those machines are brilliant! I wish we had one. She's so sweet and clever, she'll do just fine.
you should teach her sign language too! though i get this device may be helpful since not everyone can understand sign
My 6 yr old has apraxia. She still has quite a few issues but is doing so much better than 2 yrs ago
I struggled with this when I was younger as well. When I was younger it was like I couldn’t move my tongue correctly with I spoke. Luckily I had an amazing speech therapist that fixed that for me at the time. I’m 17 now and still slur my words all the time but it’s better than nothing
My little brother also had the same diagnosis a few years ago but still he is young and i was wandering can he speak normally ? And i noticed he had some reading and writing difficulties did u face the same problem?
I have apraxia also and I’ve gotten a lot better
She's so stinking cute! Her loss of words, definitely won't hold her back in life! ❤
Sha is a pretty little lady ❤
Very smart and beautiful little girl. Is that something she can out grow?
She is so beautiful ❤ and perfectly made 🥰💕 I’m so sorry if you don’t believe but God bless you princess and your beautiful family and friends 🙏🥰💕🕊:))
I love the lamp in the background
Great device; thanks for telling about it 😌🌻
She’s so cuteeeee
My daughter had this also, she was diagnosed at age 3. we did a little sign for basic communication, she was in speech therapy until about age ten. She’s 31 now with a little one of her own 🙂
My little brother also had the same diagnosis a few years ago but still he is young and i was wandering can he speak normally ? And i noticed he had some reading and writing difficulties dose ur daughter face the same problem?
What a fantastic device.
My older brother when he was four started going to speech because he still couldn't talk and finally after being in speech since 4 years old he finished at the age of 15 over the summer!
My son get all A pluses at school and he learned a lot. He know how to spell you know how to read he got all special awards. He graduated his second grade.
Bless you all!
Omg I have the same iPad case!
My daughter has it too, we did speech therapy for 7 years. My Ali made up word her own language then by 5 she was starting to talk right now she is 25 working a good job, lives on her own. No issues at all
My little brother also had the same diagnosis a few years ago but still he is young and i was wandering can he speak normally ? And i noticed he had some reading and writing difficulties dose ur daughter face the same problem?
So sweet.😊
We used that for my little sister a few years back, she has temple syndrome and a couple other things so it was very hard for her to form words. She’s seven now and it’s still not the best but she’s doing much much better than when she was four- five. Before that we had actually used kid sign language.
I have apraxia as well.
When I was way younger I remember having something like that to help me learn how to say words correctly, I eventually had to return the device tho.
My little brother also had the same diagnosis a few years ago but still he is young and i noticed he had some reading and writing difficulties did you face the same difficulties?
@@user-uw6gh4eo4x I’m not sure it was awhile ago but it might be dyslexia or it could be due to speech as well
Great job Mom!
The X-ray is my favorite part!
One she is soo cute!!!
I have it too thanks for showing ararnice
I want that jellyfish thing
TD Snap is one of my fave AAC apps
Awww stay strong she's so cute she made me cry😢😢😢
She’s so cute
My oldest has CAS too. Was n9nverbal until .5 then spoke like a 2 yr old until 6. At 8 he can speak to anyone delayed but can communicate. He was denied an AAC at 4. We used PEC boards and ASL. Wish he'd had the AAC from 3 to 5 at least.
God bless her little heart,Thank You Jesus 🙏🙏🙏
❤❤❤
So frustrated I didn’t know about these things when my son was younger. At 3 he had to go to speech to learn to talk, Apraxia as well, no other learning issues. After about a year of starting to speak and starting new speech therapy he developed a stutter. Well he’s 14 now and still has a very severe stutter and no therapy has really helped. He still gets upset about it but has an amazing group of friends and seems pretty confident. I just wish I had something to help him know.
My little brother also had the same diagnosis a few years ago and i noticed he had some reading and writing difficulties dose ur son face the same problem?
Singing, maybe? I don't have a severe stutter, but i do stutter pretty badly sometimes. Like i have to stop, take a breath, and start over. But I've never run into this problem while singing.
Also, I believe The King's Speech, was about about that dude having a pretty severe stutter. I believe he practiced a lot and got better that way. So, if it bothers him, maybe he could try practicing or singing?
Sweet girl hope she makes friends that don't care about her speech problem.
I have speech apraxia I can relate
Beautiful
One of the girls in my class has that
I have childerenhood aprixa of speech. It is so important to have supportive family and friends.
I did also have apraxia when I was younger, but it did improve over the years and I started to talking more.
Now I’m really talkative but how I improved my talking was when I moved 3 times.
I moved to another country around 4 years old I didn’t really improve my talking but a bit. I moved 1-2 years later.
The 2 time I moved i improved more of talking but i still didn’t talk that much. I moved 4 years later.
The 3 time I moved I improved even more of taking not really in the first 3-4 years but 1-2 years later I started talking a lot.
Just don’t move if you have a child that has apraxia that’s one thing I don’t recommend I hated moving the 3 time. But it is people’s choice of what they do with a child that has apraxia.
I feel like my mother didn’t care about my happiness after moving the 3 time but she does take good care of me but I am still not happy until now because of moving the 3 time.
People out there that has kids you should give them happiness and take good care of them that is more important.
I love hearing about other peoples stories when they have special needs just like me I am visually impaired autistic and also have seizures so I understand a little bit because I can only see oh little bit but I definitely use my voice is my main way of communicating